Research volunteer roles in Cardiff, wales

We are a Kingston-based social marketing enterprise using creative thinking to build community cohesion.

We aim to attract knowledgeable individuals encouraging different cultures to unite which enables us to share and celebrate essential lessons. 

Partnering with local organisations, we put on programmes of training, workshops and other events that promote unity and tolerance.

We conduct research to support our cause to challenge preconceptions around race and stereotyping. As well as delivering workshops on unconscious bias in the workplace. 

Join us in leading positive change!

Quilombo UK is looking for an experienced Research Assistant, who would love to join a growing organisation.

The Research Assistant role offers a great opportunity for the right person who is looking to: 

• Gain experience in the Third Sector. 

• Develop their skills and management experience; or just simply 'give something back to their community'.

The role provides you with flexibility and autonomy at work. Where necessary, specific training will also be provided to help you develop and grow your skill set.

Main Responsibilities

• Since its creation, Quilombo UK has collected a great amount of information, evidence and items through projects, fundraisers, events etc.

• We are looking for a team member to find published materials related to Quilombo UK key objectives and interests, especially cultural and racial diversity, and stereotypes in UK communities. The materials include all types of evidence, articles, journals, newspaper columns, local and global news stories. 

• The researcher will help to collect information that can be used as an evidence base to help inform future activities, and also in exhibitions, workshops, and community events. 

• We are looking for a self-starter who can source, collect, and share relevant materials independently. You will also be working closely with our Professional Development Programme participants in relevant areas such as Marketing and PR.

• Provide written reports as and when required. To undertake additional duties as required for the role.

General tasks

• Contribute to staff meetings and other internal meetings with views and suggestions etc.

Essential:

• You will need to have good written skills and be able to explain concepts and projects concisely and accurately. 

• You will be self-starting and willing to research the various projects that we have carried out and catalogue all the evidence collected.

• You will need to have good communication and team-working skills as you will be working closely with Marketing & PR and other members.

• Committed to working with the community with a passion for helping others less fortunate.

• Be computer literate - a good understanding of Microsoft Word is essential and Excel skills are beneficial although support from other members will be provided if necessary.

• To show professionalism at all levels and in all environments 

• Be a strong team player.

Desirable

• Committed to working with the community with a passion for helping others less fortunate.

• Proficiency in Microsoft and Excel

• Can work without much supervision.

The Professional Development Programme with Quilombo UK runs over a period of 16 weeks, is UNPAID and requires a minimum of 12 hours commitment per week across Monday, Wednesday and/or Friday.

Upon successful application, our HR team will contact you to arrange an interview. Following a successful interview, we'll initiate the onboarding process by sending you the necessary documents. Once your onboarding and identification documents are received and verified, you'll be invited to a 6-hour HR and System Induction. Subsequently, you'll meet with your Head of Department or Assistant Manager for your First Day.

QUILOMBO UK is dedicated to fostering an inclusive workplace environment that values diversity and promotes equality for all employees. As part of our commitment to upholding these principles, we adhere to the guidelines outlined in the Equality Act 2010. We firmly believe in creating a workplace where all individuals are respected and treated fairly. Discrimination of any kind will not be tolerated.

About Quilombo UK

Quilombo UK is a social justice organisation dedicated to inspiring individuals to "See, Think, Behave and Speak Differently" about equality, diversity, and inclusion. We create engaging experiences—ranging from our Beyond Bias training to our "Voices for All" podcasts—that raise awareness and empower unheard voices within our diverse communities.

The Research department serves as the intellectual foundation of our mission. As Operations Manager of Department, you will lead the critical task of gathering evidence, data, and lived-experience narratives that inform our training programmes and public discourse. While we host the Professional Development Programme (PDP) to support career changers, the Research function is a core strategic pillar that ensures our advocacy is grounded in fact and that the systemic barriers faced by our communities are accurately identified and challenged.

Operations Manager of Department (Research)

The Opportunity

This position offers a significant career step-up, providing experience in managing complex research projects and data analysis within a social justice framework. In this Operations Manager of Department capacity, you will gain the leadership credentials and strategic oversight necessary to advance your professional trajectory while ensuring our organisation’s voice remains authoritative, evidence-based, and impactful.

Role Purpose

The Operations Manager of Research sits between Directors and Managers, turning high-level investigative goals into clear, deliverable research plans. You own the direction, methodology, and delivery control of the Research department to ensure that all reports, white papers, and data sets are produced with academic rigour, accuracy, and pace.

Key Responsibilities

• Strategic Research Planning: Turning Director objectives into practical research schedules, including literature reviews, data collection phases, and report drafting.

• Manager Leadership: Coaching Research Managers to coordinate field work and data analysis effectively, ensuring all project components are visible in MeisterTask.

• Assurance & Quality Control: Reducing rework by refining research methodologies and ensuring all outputs are fact-checked and peer-reviewed before reaching the final sign-off stage.

• Director Reporting: Providing weekly reports on the research pipeline (active studies, pending analysis, and upcoming publications), WIP status, and risks to project timelines.

• Culture & Standards: Ensuring all research activities align with ethical guidelines, data protection standards, and Quilombo UK’s professional values.

Additional Professional Benefits

• Career Development: A full CV and profile review conducted by our Talent Acquisition and Learning & Development teams.

• Operational Support: Access to the services of the Legal, HR, PR, and Graphic Design teams for up to 10 hours per month for professional or departmental support (e.g., legal review of ethics or graphic design for data visualisation).

• Proactive Recruitment: Use of the Talent Acquisition team to actively search out new roles and opportunities via industry portals and LinkedIn.

Requirements

• Proven experience in research management, academic research, or social science investigation.

• A portfolio of published reports, articles, or research papers / CV.

• Familiarity with qualitative and quantitative research methodologies and project management software (such as MeisterTask).

• Flexibility and openness to work on a variety of subjects related to EDI and social justice.

• Focused, organised, and able to prioritise complex analytical tasks under tight deadlines.

• To show professionalism at all levels and in all environments.

• Strong team player with the ability to lead through others.

• Excellent written communication skills with a keen eye for detail and data accuracy.

• Degree in Social Sciences, Research Methods, Humanities, or a related field is a plus.

• This is a 100% remote-only position.

Desirable

• Committed to working with the community with a passion for helping others less fortunate.

Selection Process

• Informal interview.

• Requirement of two professional references.

Appear+

We provide psychosocial frameworks, training, and AI tools to combat appearance-based stigma.​

�� Role Summary

Appear+ is not just a product; we are building a system that understands lived experiences of appearance, identity, and psychosocial well-being. We are looking for someone who can help structure insights from user interactions into meaningful patterns.

�� What You’ll Do

• Help categorize and structure lived experience data
• Identify patterns in user responses and behavior
• Support development of simple insight frameworks
• Contribute to how Appear+ evolves based on real use

Essential Skills

• Background in research, psychology, sociology, or behavioral science
• Ability to work with qualitative data
• Strong pattern recognition and structured thinking

Desirable

• Experience with Airtable / Notion / Sheets
• Interest in human-centered AI or social systems

Impact

���� You will help shape how lived experiences become knowledge, and eventually influence systems and society.

Minimum Hours per Week:

2-3 hours per week

Duration:

3-5 months

About YAUK

Youth Advantage UK is a charitable organization that uses a research-led approach to inform policy work and projects
that aim to promote and further the human rights of young people aged 11 to 25 across the United Kingdom.

Please note that this is a VOLUNTEER role.

We won't accept applications from individuals residing outside of the UK as we operate on the principle of bettering the lives of young people in the UK. Therefore, we require our volunteers to have an understanding of what it is like to live in the UK.

This is an opportunity for someone who holds a PhD or Research Master’s degree to join our team as a Research Manager, and use their experience in guiding and managing our research function(s). Initially there will be a focus on managing the preliminary research function, which carries out research on specific topics to best inform, guide and direct our work in protecting the rights and interests of young people.

Responsibilities

· To manage welfare of researchers

· Look after day to day management and support of teams, stand in for absences (including undertaking research tasks, where necessary).

· Monitor and report on performance

· To advise on and provide feedback on matters of research

· To line manage senior researchers

· To advise on, guide and manage research workflow, ensuring of ethical research and policy compliance

· To ensure of a focus on organizational goals

· To lead planning as required

· To have oversight on research being carried out and the outcomes of such, ensuring it is to a high standard

You will need

· A PhD or Master’s degree

· To have experience operationally in a research role

· To understand how to motivate a team and manage others

Benefits

This is a UK based 100% fully remote and flexible role with a time commitment of 5 hours per week.

Supportive Team and Management to enhance your skills and build on your experience.

Your work will help transform and empower many young people’s lives, rights and interests and assist in promoting equality for all young people.

Why volunteer with us?

We are a supportive and friendly organisation that takes pride in developing and nurturing our staff and providing them with excellent opportunities to thrive and further encourage their career growth and future aspirations.

We offer a fully remote working environment and a flexible and adaptable working schedule. This is an excellent opportunity to join a growing organisation, enhance your skills, and gain valuable experience to help you begin your career in Research as we endeavour to grow our organisation and continue to make positive changes to the lives of young people. If this sounds like you and you are interested in applying for this position, please submit your CV.

We look forward to hearing from you!

Role Purpose

This is a senior volunteer leadership role designed to provide strategic and operational resilience across the department.

The Deputy Head works across both the Ethics Team and the Research Reporting Team, ensuring that ethical standards, research integrity and high‑quality reporting are upheld across all departmental activity.

Core Duties

• Support the Head of Department in delivering strategic and operational leadership.

• Provide continuity, stability and leadership resilience across the department.

• Lead delegated strategic initiatives or operational areas as assigned by the Head of Department.

• Share responsibility for departmental planning, performance monitoring and reporting.

• Support Senior Managers and Managers, offering guidance, oversight and problem‑solving support.

• Contribute to departmental policy development, risk management and quality assurance.

• Act as a key point of contact for cross‑departmental collaboration and organisational alignment.

• Step into leadership when required to ensure smooth, uninterrupted departmental operations.

Competency Requirements (Deputy Head)

To succeed in this senior volunteer leadership role, the Deputy Head should demonstrate:

• Strategic leadership capability, with the ability to translate organisational goals into departmental plans.

• Advanced ethical awareness, including deep understanding of research ethics, integrity and responsible data management.

• Clear, confident communication, suitable for volunteers, senior leaders and Trustees.

• Collaborative leadership, fostering a positive, inclusive and supportive departmental culture.

• Professionalism and integrity, modelling fairness, consistency and ethical behaviour.

• Sound judgement and decision‑making, especially in complex or sensitive ethical scenarios.

• Operational oversight skills, including planning, resource management and performance monitoring.

• Risk awareness, with the ability to identify, assess and mitigate ethical, operational and reputational risks.

• Ability to support and develop others, including Senior Managers, Managers and wider volunteers.

• Commitment to GDPR compliance, responsible data handling and good governance practices.

• Adaptability, particularly during the interim leadership period and subsequent transition.

Role Requirements (Deputy Head)

Given the seniority and responsibility of this volunteer role, the following experience is required:

• A PhD is required, along with postdoctoral research experience, or significant academic or practical research experience at an equivalent level, demonstrating advanced expertise in research design, ethics, governance or reporting.

• Substantial experience in research ethics, research governance or research leadership, ideally across multiple projects or teams.

• Experience in strategic planning, departmental oversight or senior‑level decision‑making, whether in a volunteer, academic or professional context.

• A strong track record of ethical decision‑making, particularly in roles where judgement, integrity and risk assessment were central.

• Experience with research reporting, research communication or academic publication processes is highly beneficial.

• A strong interest in ethical governance, research integrity and maintaining high standards across research projects.

• Familiarity with GDPR and responsible data management practices, or willingness to develop this knowledge quickly.

• Experience working with volunteers or mixed‑experience teams is advantageous.

Would you like to lead an innovative health think tank - enabling it to achieve more of its potential and encouraging a more preventative approach to mental and physical ill-health in the UK?

As Chair you’ll:

• Help Health Action Research Group develop more of its potential as an independent health think tank, on a sustainable basis

• Ensure effective governance, including chairing Trustees’ meetings and leading the recruitment and induction of new Trustees

• Represent Health Action Research Group, where appropriate, at external meetings and events

We'd like to hear from you, if you have:

• Experience of being a Trustee

• Experience of helping organisations grow and develop

• At least five years relevant UK experience of health research, health policy and/or health interventions - with a focus on preventing (as opposed to treating) ill-health

• Enthusiasm for our guiding principle that prevention is better than cure and that health in the UK should be more than a postcode lottery.

• The ability to build relationships and advocate for and champion our work.

United Nations CSO, Centre for Big Synergy, reaches over 250M in over 120 countries. We are seeking a research and outreach lead to help reach potential partners for various UK and global programmes. 

What will you be doing?

An opportunity to contribute to world leading projects impacting millions of people across the globe. Projects span across multiple sectors such as film and media, education, DEI, environment and climate change amongst others.

• Research key stakeholders/potential partners that fit our target audience. Working on LinkedIn and other partnership platforms
• Identify and collect details and impact of potential partner leads
• Compile, format, and maintain clean, accurate databases
• Cross-check data for accuracy and support wider outreach and campaign activity

This role is very flexible and can be fitted around your availability.

What are we looking for?

A committed and meticulous person, passionate about making the world a more sustainable, safer and peaceful place.

• Have some experience of research and working with senior leadership across organisations and identifying potential partners and stakeholders
• Ability to research and maintain database of potential partners, work on lead generation and follow ups
• Prompt communication and timekeeping, ability to deliver on time
• Maintain confidentiality and utmost standards of professional etiquette.

What difference will you make?

Billions of people globally, are unaware of the UN's Sustainable Development Goals (UN SDGs) let alone take any steps to create a more sustainable world for themselves and in the process for others in this complexly interconnected world.

Our projects and initiatives help educate the British as well as global societies about the UN SDGs. Your contributions can educate and inspire millions to act on the SDGs and bring positive changes that will impact all of us in this complexly interconnected world.

It will also help partner organisations join forces and work in synergy to amplify the impact of the initiative through communal as well as individual efforts. Thus, benefitting more lives that we would have helped acting alone.

Role: Director of National Impact

Job Description:
Youth Advantage UK is seeking a volunteer Director of National Impact to develop and lead its National Impact Directorate in identifying and delivering on opportunities for the organisation to grow its impact. The successful candidate will be responsible for ensuring the Directorate’s two Departments (Research and Project) produce high-quality research and related projects and events able to influence decision-making and policy on a national scale in line with the organisation’s strategic priorities. Working closely with the COO and the Policy and Ethics teams, the ideal candidate will use their prior experience to effectively guide and strengthen the organisation’s ability to enable evidence-based, national change. They should have excellent writing and speaking skills, IT literacy, and the ability to work well independently and in a team.

This role reports directly to the Chief Operating Officer.

Responsibilities:

● In line with the organisation’s strategic priorities, to lead the National Impact Directorate in designing, developing and implementing impactful research and project objectives.

● To line manage the Head of the National Impact Research Department and the Head of the National Impact Project Department, supporting them to effectively manage their own teams and to develop and implement the frameworks necessary for producing top quality research output (including academic articles) and subsequent events, campaigns and project relating to research findings and organisational strategy respectively.

● To work with HR in creating a strong National Impact Directorate composed of individuals with the appropriate skills and expertise. To ensure these volunteers are appropriately supported and trained during their period of service.

● To work alongside the Policy team to source potential commissions and influencing opportunities, shaping research and project focus and output accordingly.

● To develop short- and long-term strategies in relation to both aspects of the Directorate’s activity, ensuring that these align with the wider strategies of the organisation.

● To liaise with the Policy and Ethics teams on an ongoing basis, ensuring that their advice is incorporated into Directorate decisions and output.

● To take responsibility for relationships with key external stakeholders, at all times representing the organisation positively and professionally.

● To work on an on-going basis with the other members of the organisation’s Senior Leadership Team in determining its strategic priorities and incorporating these into the Directorate.

● To monitor, analyse and respond to external trends which impact on the organisation’s strategies and the National Impact Directorate’s activities.

● To work closely with the organisation’s Communications team in developing and implementing effective strategies to raise the organisation’s profile and impact.

● To create blogs and articles on related issues and to find and distribute information on related topics which may be of interest to the other organisation members.

● To support the Chief Executive Officer in presenting national impact strategies to Youth Advantage’s Trustees.

Requirements:

● Experience in research and planning, as well as leading key campaigns or programmes.

● High-level understanding of carrying out quality research, ideally in an area related to the organisation’s priorities.

● Excellent knowledge of a range of methods and approaches to effectively disseminating research results.

● Excellent leadership and organisational skills, with proven experience of setting priorities and motivating team members.

● Excellent writing and speaking skills.

● IT literacy, including proficiency with Microsoft Office and Google Suite.

● Ability to work well independently and in a team.

● Strong attention to detail and organisational skills.

● Ability to prioritise tasks and manage time effectively.

Benefits

● Gain valuable experience in leading a research and project team.

● Opportunity to work with a dedicated and passionate team.

● Flexible working hours.

The Lucy Faithfull Foundation is looking for three exceptional Trustees to help realise our vision: a world where children live free from the threat of sexual abuse.

For over 30 years, we’ve led the way in child protection — preventing abuse before it happens, supporting families, influencing policy, and running the world‑leading Stop It Now helpline. Our work is challenging, essential, and life‑changing.

Our charity has recently grown with remarkable pace and purpose. We are proud of the progress we have made and the strong financial footing we now stand on. As several of our long‑serving trustees prepare to retire, we are seeking three exceptional individuals to join our Board and help guide the next stage of our development.

We are now recruiting:

• Research Trustee who brings enhanced research expertise to strengthen the Board’s oversight of research strategy, quality, ethics and impact.
• Finance Trustee who brings enhanced financial expertise to strengthen the Board’s oversight of financial governance.
• Scotland Representative Trustee who is based in Scotland who can strengthen our strategic presence, partnerships and governance within the Scottish context.

If you bring strategic insight, strong leadership, and a commitment to safeguarding children, we want to hear from you.

What You’ll Do

• Shape the charity’s strategy and culture
• Support and challenge the CEO and Senior Leadership Team
• Oversee finances, risk, safeguarding, and compliance
• Champion our mission and raise our profile
• Attend four Board meetings a year (mix of in‑person and online), plus the AGM and relevant committees

This is a voluntary role; reasonable travel expenses are reimbursed.

What You’ll Bring

• Passion for protecting children
• Strategic thinking and sound judgement
• Strong communication and relationship‑building skills
• Commitment to equity, diversity, inclusion, and the Nolan Principles
• Ability to collaborate, challenge constructively, and lead with integrity

Why Join Us?

You’ll help steer a pioneering UK charity with national impact, working alongside experts dedicated to keeping children safe. Your contribution will shape prevention efforts today — and protect children for generations.

Ready to Make a Difference?

If you share our values and want to play a vital role in child protection, we’d love to hear from you.

Apply now and help us build a safer future for every child.

Apply to join the DISC founding pilot program - Becuase your safeguarding team needs better intelligence

We support safeguarding teams to identify emerging online harms, social media threats and exploitation risks through digital threat intelligence.

DISC is looking for safeguarding professionals who already understand the challenges they face and want real analytical support to help protect children and young people. Through practical intelligence, early warning insight and a direct voice in shaping a new national digital threat intelligence professional network, founding members will help strengthen how safeguarding teams respond to fast moving online risks.

• < Direct Access > to practical tools designed by PhD Crime Science researchers for safeguarding professionals, including platform risk tracking, trend monitoring, URL checks, username analysis and safeguarding intelligence resources.

We are now inviting a small group of founding members to join the DISC pilot project. This is a voluntary, free pilot opportunity designed for designated Safeguarding Leads, Deputy DSLs, safeguarding governors, other professionals working directly in child protection or safeguarding.

We are particularly keen to hear from safeguarding professionals who are dealing with the realities of online risk in schools, youth settings, charities, academies, trusts or community organisations. You do not need to be a technical or digital expert. What matters is your safeguarding experience, your understanding of children and young people, and your willingness to help build something useful, ethical and thats genuinely crime prevention focused.

As a founding member, you will receive access to DISC pilot services and help shape what the service becomes. Your experience, feedback and professional judgement will directly influence the tools, briefings and intelligence support we develop for safeguarding teams across the UK.

Digital Intelligence & Safeguarding Centre started as a UCL, University of London based social venture supporting schools, charities and youth organisations with digital safeguarding intelligence. We help safeguarding teams make sense of online harms, social media risks, harmful trends, platform threats, online offenders and emerging digital behaviours that may affect children and young people.

This pilot is about partnership and community. DISC resources are designed to support, not replace, existing safeguarding policies, DSL decision, making or statutory responsibilities. Final safeguarding decisions remain with your organisation. Our role is to strengthen your awareness, improve your access to digital threat intelligence and help you respond earlier to emerging online risks.

This is a founding member opportunity! Participation is voluntary, free of charge and there is no obligation to continue after the pilot. Founding members will be recognised as early adopters and expert contributors to the DISC intelligence network and will have a direct say in how the service develops. If you are a safeguarding professional who wants better intelligence on online harms, stronger support for digital safeguarding decisions and the chance to help shape a new crime prevention focused service, we would be very pleased to hear from you.

During the pilot, founding members will receive:

• Weekly Threat Briefing on online risks, social media harms, and digital safeguarding trends
• Access to our crime analyst’s intelligence reports, platform alerts and threat assessments
• The opportunity to submit digital safeguarding tasking requests to the DISC Threat Desk
• Beta access to the DISC members dashboard and digital intelligence toolkit
• Successful applicants must attend the initial onboarding training session

                                                               Ready for real threat intelligence?

Kaleidoscope Trust is a UK-based international charity working for a future where LGBTI+ people everywhere can live free, safe and equal lives. For more than 13 years, we have worked in partnership with governments, activists and community organisations to provide funding, capacity building, research and advocacy support to grassroots movements across the Commonwealth and beyond. In the UK, we work across politics, diplomacy and civil society to ensure LGBTI+ rights remain a central part of the UK’s foreign policy and are championed within international institutions.

We are operating at a defining moment for global LGBTI+ rights. Across many countries, hard-won freedoms are being challenged by increasingly organised anti-rights movements, shrinking civic space and growing political hostility. Yet this period also demands ambition, resilience and solidarity. Having navigated a period of significant challenge, Kaleidoscope Trust has emerged with renewed strategic focus, strengthened partnerships and a clear commitment to supporting LGBTI+ organisations on the frontlines of change.

This next chapter includes the work of our Global LGBTI+ Rights Commission, bringing together research, advocacy and convening power to better understand and respond to the global rollback of rights. We continue to believe progress is possible when communities, governments and civil society work together – and we are looking for a Chair who shares that belief and can help lead Kaleidoscope Trust through this critical period.

We are now looking for a new Chair to lead our Board at this pivotal moment. Our Chair is responsible for ensuring that the board operates effectively and oversees a clear strategic direction for the charity, providing ambassadorial leadership as needed and constructive, supportive partnership with our CEO, Alex Farrow and our Senior Leadership Team. But critically, they will be a calm voice and fierce advocate as we navigate this rapidly shifting landscape. 

We’re looking for someone familiar navigating complex human rights systems with the ability to foster high performing governance that enables our team to build connections and to recalibrate for best impact. The successful person will have prior Chair or non-executive experience, or at a minimum sustained Director-level board exposure. They will be an enabling, facilitative leader able to foster robust debate and decision-making, they will be comfortable advocating for the rights of LGBTI+ people and supporting our charity to remain financially sustainable and adaptive to evolving risk.

It’s important to us that as a Board, we represent the people that we are working to support. We know that diverse boards are the most effective, they can think creatively and hold each other to account, therefore we are particularly looking for applications from trans people, women, People of the Global Majority, people without a degree, working class people and people of faith.

Download the candidate pack for the full role profile and assessment process, and for a conversation about the opportunity, please contact Tanya Stevens at our search partner All Leaders.

This is a voluntary, hybrid position requiring attendance at several board meetings per year at Kaleidoscope’s London offices, several online sub-committee meetings, with wider remote advisory support totalling 10-15 days per year. The Chair commits to a three year term, which is once renewable. Travel expenses for interviews and board commitments will be covered as required. Discussions regarding access needs are welcome. 

The closing date for applications is midday on Tuesday, 23 June. 

WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.

We are seeking to recruit a Trustee with expertise in major donor fundraising to join our Board.

This is an exciting opportunity to help shape the future of a global charity working to improve diagnosis, treatment, support and research for people affected by encephalitis.

The Role

As a Trustee you will share collective responsibility for the governance, strategic direction and sustainability of Encephalitis International.

We are particularly seeking someone who can bring experience and insight in major donor recruitment, retention and stewardship to support the charity’s development and fundraising ambitions.

You will:

• Provide strategic guidance on major donor and philanthropic fundraising
• Help strengthen our approach to donor engagement, stewardship and long-term relationships
• Support the development of sustainable income streams and fundraising strategy
• Act as an ambassador for Encephalitis International and its mission
• Contribute to Board discussions and decision-making

This role is strategic rather than operational, though trustees may occasionally open doors, make introductions or support relationship-building where appropriate.

What We Are Looking For

We would particularly welcome candidates with experience in:

• Major donor fundraising or philanthropy
• High-value relationship management
• Philanthropic giving within the charity, corporate or private sectors
• Developing or advising on major gift strategies

You may have gained this experience through work in the non-profit sector, philanthropy, corporate leadership, wealth advisory, or as a major donor yourself.

We are also particularly keen to welcome candidates from under-represented groups.

Previous trustee experience is not essential.

Time Commitment

• Approximately 4–6 Board meetings per year (usually virtual) and one in-person away-weekend.
• Occasional participation in committee meetings or events
• Preparation time for meetings

This is a voluntary role, though reasonable expenses will be reimbursed.

Why Join Us?

By joining the Board of Encephalitis International you will play a vital role in helping the organisation expand its impact globally. Strengthening philanthropic support will allow us to reach more people affected by encephalitis, accelerate research and increase awareness of this often misunderstood condition.

You will be joining a passionate and committed Board helping to drive forward meaningful change for patients, survivors and families worldwide.

Description
Reports to: Chief Executive Officer
Direct Working Relationships: C-Level Executives, National Research, Policy, Ethics, Research Reporting, and Local Operations
Location: Remote, UK-based
Time Commitment: Part-time | Flexible hours | Long term commitment

About the Role
We are seeking a volunteer Chief Operating Officer (COO) to provide strategic and operational leadership across our national and local operations. Reporting directly to the Chief Executive Officer, the COO will play a pivotal role in ensuring effective delivery of projects and research, maintaining ethical and operational standards, and driving continuous improvement across all organisational systems and processes.

This is a senior voluntary position ideal for an experienced operations or strategy leader who thrives in a collaborative environment and wants to make an impact in the not-for-profit or research sector.

Please note: This is a voluntary and unpaid role. There is no direct financial compensation or future paid opportunity attached.

Key Responsibilities

• Provide executive oversight of Policy, Ethics and Research Reporting, National Operations, and Local Operations (including projects and research).

• Oversee operational delivery to ensure smooth, ethical, and effective implementation of all projects.

• Lead the optimisation of systems, structures, and processes to maximise organisational efficiency.

• Ensure resource allocation is effective and aligned with strategic goals.

• Support and collaborate with C-Level colleagues to drive organisational progress.

• Attend high-level meetings and provide regular operational updates and recommendations.

• Act as a key decision-maker in operational strategy, compliance, and performance management.

• Support and coach department heads and senior managers to strengthen internal leadership capacity.

• Step in to provide hands-on support to other C-Level officers and direct reports when needed.

What We're Looking For
We’re looking for a confident, experienced, and adaptable leader who can bring structure, strategy, and calm to a dynamic environment. You’ll be most successful in this role if you have:
• Significant experience in operations management, project delivery, or organisational leadership.
• Proven ability to oversee multiple teams or departments in complex environments.
• Strong ethical grounding and commitment to compliance and transparency.
• Excellent organisational, problem-solving, and communication skills.
• A hands-on, solutions-focused approach with the ability to balance strategy and execution.
• Experience mentoring or managing senior leaders or functional heads.
• Comfort working remotely with cross-functional, volunteer-led teams.
• A collaborative, supportive leadership style and openness to learning and adaptation.
• An understanding of the not-for-profit, research, or policy sectors (advantageous but not essential).

What You’ll Gain
• The opportunity to lead national operations for a values-led organisation making a tangible impact.
• Executive-level experience within a collaborative, mission-driven C-Suite.
• The chance to refine strategic and operational leadership skills in a complex, real-world setting.
• Recognition through:
o LinkedIn testimonial and reference
o A public thank you post
o Permission to list the organisation as an employer on your CV/LinkedIn
o A written reference upon completion of your commitment

Important Information
This is a voluntary position. There is no financial payment, benefits, or employment status. This opportunity is ideal for seasoned operations leaders or executives seeking to contribute their expertise to a meaningful, values-driven mission and support the growth of an impactful organisation.

Apply Now
If you’re ready to help shape the strategic and operational backbone of a growing organisation and support our mission through effective leadership, we’d love to hear from you.