Upload your CV
Save time when you spot your dream job. Upload your CV with ease.
Save time when you spot your dream job. Upload your CV with ease.
An exciting opportunity!
This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.
As our next Chief Executive, you will
About you
Why join us?
A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.
Benefits
Join us and you will be working for a caring charity offering:
Further information
The successful candidate must be eligible to work in the UK.
The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.
Salary to be agreed depending on experience and will be pro-rata for part time hours.
This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.
This senior role requires flexibility in working hours and location. It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.
This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.
For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart. Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.
Please include your CV with a supporting statement of no more than 800 words. Your supporting statement should include an answer to the question below:
The MPS Society supports individuals and families affected by mucopolysaccharidoses (MPS) and related disorders. What interests you about coming to work in this area, and what motivates you to contribute to supporting individuals and families affected by these conditions?
To transform lives through specialist knowledge, support and advocacy, and research.
The client requests no contact from agencies or media sales.
The Diocese of Leicester is committed to reducing the overall diocesan Carbon emissions by 2030; aiming to reduce the emissions from energy consumption year on year and to incorporate sustainable working practices across all of our operations.
Are you passionate about sustainability and supporting churches to be open for future generations? We are looking for somebody relational, committed to carbon reduction and adaptable to be our Net Zero Carbon Programme Officer to work with our parishes and their communities, helping to reduce their carbon footprint and ensure church buildings remain sustainable as a place of worship and a resource for the local community.
This is a new fixed-term post made possible by a grant from of The Church of England through their Net Zero Carbon Capacity Building Programme.
In this rewarding role, you will:
What we are looking for
Why Join Us?
For an informal conversation about the role see contact details in general info document.
Closing Date: Sunday 20th September
Shortlisting date: Wednesday 23rd September
Interview Date: Thursday 8th October
We particularly welcome applications from UK Minority Ethnic / Global Majority Heritage candidates, who are currently underrepresented in our organisation.
The Diocese of Leicester, part of the Church of England, is committed to the safeguarding, care and nurture of everyone within our church community. We follow the Church of England’s Safeguarding Policies and relevant statutory guidance. We believe that safeguarding is everybody’s business.
This post is subject to a Basic DBS check and proof of right to work in the UK. The Diocese is unable to offer a Certificate of Sponsorship.
The client requests no contact from agencies or media sales.
KEY INFORMATION
Location: Bristol, Newcastle, Nottingham, Manchester or London
Hours: 37.5 hours
Start date: We will work with notice periods
Duration: Permanent
Salary: £35,175 - £40,675 per annum if based in Bristol, Newcastle, Nottingham or Manchester. £37,905 - £43,405 per annum if based in London
Application deadline:Thursday 10th September, 11:55pm
Application Process: written applications > assessment centre (interview & written task)
ROLE SUMMARY
upReach is seeking to hire an Organisational Initiatives and Governance Manager. This is an exciting opportunity to work directly with upReach’s Senior Leadership Team (SLT) on strategic projects, internal communication, governance, and other internal and external initiatives.
The role will provide direct support to the SLT, building their capacity and enabling the charity to continue to grow and increase its impact. They will support the collection of key data for strategic decision making and take responsibility for regular and accurate reporting to our Boards, whilst also leading on the planning and delivery of several key projects. Projects they work on will include exploring how to best to deliver on upReach’s national development, and coordinating the cohesive delivery of work that falls under the umbrella of our ‘Double Benefit’ approach.
Whilst Governance and the support provided to the SLT will remain consistent in this role, organisational initiatives will change over time, depending on where it is agreed with the SLT that the ROI is greatest and can best achieve upReach’s overarching mission.
CORE RESPONSIBILITIES
The Organisational Initiatives and Governance Manager will report to the Director of People and Strategy and work on initiatives and projects that the SLT believe will help us to best achieve our mission. In addition to this, the Organisational Initiatives and Governance Manager will also work closely with the SLT to provide governance and operational support. This will include coordinating with Trustees to organise the yearly calendar of governance events and preparing papers for Trustees, Advisory Board and Services meetings, including the Annual Report.
This role will require influencing and collaboration in order to deliver upReach’s mission through a range of stakeholders across the team.
Core responsibilities will include:
1) Strategic Projects & Organisational Initiatives
Be the operational driver of organisational initiatives, as agreed on by SLT, that have an impact on the success of upReach’s mission and our impact on Associates across the country.
Projects may be outward facing or operational in scope, depending on what is deemed to be of most importance at the time. They may also be at different stages in their life cycle, and as such, the role may require initial exploration phases, creation of implementation plans and the coordination of different teams to complete and assess success, as required by the specific initiative.
Attending meetings and following up with key stakeholders to ensure the completion of relevant projects to a high standard.
Collaborating with a variety of stakeholders to gather and report key information, along with recommendations, to the SLT or other senior managers.
2) Governance & Leadership Support
Preparing papers and required documents for Trustees, Advisory Board and Services meetings, including the yearly Annual Report.
This may also include supporting internal communications and calendar management for the SLT (for example, organising the yearly governance calendar).
3) National Development & Expansion
Be the champion for upReach’s national development strategy, ensuring there is understanding and buy-in across the team regarding the importance of upReach’s growth outside of London with respect to social mobility coldspots and existing regional presence and tracking OKRs related to this.
Drive plans regarding how best upReach can expand its work in Scotland. Having recently successfully registered as a Scottish charity we are exploring what expansion could and should look like, and this role will work on the practicalities regarding how upReach can sustainably support more students in Scotland. Pending approval of plans from the SLT and Board, the role would lead on enacting the agreed upon approach.
Liaison with relevant departments to collaborate on prospect fundraising, university and employer partnerships, as well as student attraction and onboarding activities, will be required as part of this initiative.
4) Double Benefit Approach
Have oversight of a cohesive, deliberate programme of Double Benefit effective practice at upReach, working across teams to do so. This will include:
Supporting the Events team in the creation of the agenda and delivery of the annual Championing Change event in collaboration with Bank of America, bringing together employers across industries to promote inclusion and social mobility.
Support work on policy being led by the Marketing and Communications Team to ensure it is cohesive with our wider Double Benefit approach.
Coordinating with the Partnerships team regarding use of our Employer Engagement Toolkit and any bespoke consultancy or training requested.
This role will also provide line management for 1-2 members of our Future Charity Leaders Programme one day per week, as they work on a six month ‘rotation’ in the areas described above.
Please note that it is not possible for the job description to cover the exhaustive list of responsibilities of your role due to the varied nature of the role, especially given the nature of this role to work on a range of projects and initiatives. As such, the job description aims to provide an overview of your remit and core responsibilities.
EXPERIENCE
To be successful, it is anticipated that you would have experience:
Working in a project management role, ideally within a charity
Working with a variety of stakeholders and a demonstrated ability to influence and coordinate with different teams
Researching and the ability to create a business case based on the research results
Creating project plans and completing end to end project work
Working in a fast-paced environment and working independently
Previous experience working in charity governance or supporting senior leaders would be desirable, but is not essential.
COMPETENCIES
upReach have created a Behaviours and Competency Framework to ensure the team have full visibility on the key capabilities required for effective performance, how these connect to our organisational values, and the level required for each band within the organisation. We would expect this role to be demonstrating mainly level 3 competencies, with some level 4 competencies displayed.
Below you will find a detailed summary of the key attributes required:
Essential skills and competency level:
Motivation – 3
Leadership – 3
Continuous improvement – 3
Planning and organising – 4
Problem solving and decision making – 3
Innovative – 3
Management – 3
Commitment to social mobility – 4
Communication – 3
TEAM CULTURE & BENEFITS:
By joining the upReach team, you will be joining a team who are committed to supporting you in your career journey and fostering an inclusive culture.
We offer:
Flexible and hybrid working
Statutory Holiday Entitlement of 25 days, plus bank holidays. This increases to 27 days 2.5 years and then to 30 days after 5 years of working with us.
Birthday leave and volunteering leave
Enhanced Parental Leave beyond statutory requirements for all team members.
3% Pension Contribution, which increases to 5% after 5 years of working with us.
Cycle-to-work and tech buying schemes.
Monthly socials
Dedication to Staff Wellbeing through our Employee Assistance Programme, Mental Health First Aid Training and annual wellbeing days
Summer Hours (early Friday finishes from June to Aug)
Personal Development Budget, activated after 6 months in the role
The opportunity to participate in our fantastic staff networks:
Disability and Inclusion Network
Diverse Roots Network
Green Network
LGBTQ+ Network
Mindfulness Network
Parents and Carers Network
Socio-economic Background Network
(Im)Migrants Network
READY TO APPLY?
We are committed to making our recruitment process inclusive. All applications will be blind screened, and our job packs are available in Braille, large text or another format upon request. We can provide reasonable adjustments throughout our recruitment application process and on the job, and we'll always endeavour to be as accommodating as possible.
Applications close on: Thursday 10th September 2026, 11:55pm
EQUAL OPPORTUNITIES
At upReach, we are committed to being an equal opportunities employer and do not discriminate in employment matters on the basis of race, ethnicity, religion, gender, age, disability, social background or any other protected class. We celebrate and value the diverse perspectives that people from all backgrounds bring to our team. We are passionate about creating a workplace that is inclusive and reflects the diversity of communities across the UK. Diversity in the workplace creates dynamic and effective organisations and we are actively working to build a more inclusive workforce by continuously improving our recruitment, retention, and development practices. We particularly encourage applications from individuals from underrepresented groups, including Black, Asian and other ethnic minority backgrounds, those with disabilities , those who are care-experienced, those from low socio-economic backgrounds, and those who are LGBTQIA+.
Award-winning social mobility charity supporting undergraduates from less-advantaged backgrounds to secure top jobs.


The client requests no contact from agencies or media sales.
Citizens UK
Citizens UK is the UK’s biggest, most diverse and most effective people-powered alliance. We bring communities and local organisations together to work on issues that matter; from campaigning for zebra crossings on dangerous roads, to reforming the immigration system, to the Living Wage campaign. We have a track record of winning change through hundreds of local and national campaigns. We know everyday people have the ability to shape the world around them. We believe that through developing local leaders, we can drive nationwide change and create community-led solutions to big and small problems.
Living Wage Foundation
The Living Wage movement began in 2001, after Citizens UK brought together communities in East London to discuss poverty and low pay. The campaign grew in momentum and soon required a mechanism to recognise employers who wanted to join the movement, which saw the establishment of the Living Wage Foundation in 2011.
Still part of Citizens UK today, the Living Wage Foundation continues to work with community organisations to make sure the voices of both workers and businesses are part of the Living Wage movement. We now work with over 16,000 employers, benefitting over 475,000 people and winning over £3bn of better wages for people who need it most.
Citizens UK works with a broad base of institutions across the political spectrum. At the Living Wage Foundation, we take the same deliberately broad-based approach and accredit all organisations who pay the real Living Wage to their directly and indirectly employed staff and are committed to tackling in work poverty. As a team we work across a range of industries and sectors to achieve this mission. We seek pragmatic coalitions in order to progress specific campaigns, and partnership around a particular issue such as Living Wage, does not imply an endorsement of broader purpose and policies.
Purpose
At Citizens UK, our organisers and project staff work within communities to develop leaders, strengthen organisations, campaign for change and organise across difference. There are various project roles and operational, communication, finance and HR roles that support the organisation and project staff and organisers to deliver on this mission and work. This work is rewarding and can be challenging; it requires a personal commitment to inclusion, a willingness to listen and disagree respectfully, and an interest in working in an organisation where our staff, member institutions and leaders will come from a diversity of backgrounds and often hold views that may be very different from our own. More information about how we operate within this context and build trusted relationships across difference can be found on our website and is covered in induction. Onboarding and navigating this relational culture, and type of work, is supported by line managers and further training.
Main Responsibilities
We are looking for a highly motivated and organised individual to coordinate our accreditation scheme. The role will work with our network of employers, and support new organisations through the accreditation process.
The Programme Officer will support our work across the South East and support our managers to grow and deepen engagement with Living Wage Employers through our associated schemes. You will help to ensure our resources and publicity materials are well written and up-to-date, and to coordinate events to grow our employer network.
Working as the Programme Officer for Citizens UK, reporting to a Programme Manager, your main responsibilities will include:
Contribute towards the achievement of CUK and LWF’s strategic objectives
Understand how the role contributes to LWF’s purpose and the core mission of CUK
Reliably implement CUK’s and LWF’s policies, procedures, and values in own work
Work with CUK community organisers and leaders to promote civic engagement with and ownership of the Living Wage campaign
Feed into the LWF strategy and objectives development
Living Wage Accreditation
Support key contacts at potential LW Employers through the accreditation process, from dealing with initial enquiries to guiding them through the employer journey, to checking and processing their accreditation
Develop rewarding relationships with key employers, industry, and campaign partners within our networks to build interest in the Living Wage and deliver a high-quality experience to our accredited employers
With support from the wider team, develop plans and strategies to grow the number of accreditations in specific regions or industries
Collate and disseminate Living Wage criteria and policy issues through both internal and external facing guidance, whilst reviewing and monitoring its suitability
Support the development and implementation of projects to promote and grow Living Wage accreditations and develop the quality of service offered
Build and manage projects and achieve work targets effectively
Successfully progress projects and tasks incl. tracking performance and expenditure
Deliver agreed areas of the LWF’s work plan and leading on agenda items to report into team meetings.
Support the growth and development of new and existing Living Wage schemes incl. Recognised Service Providers, LW Funders, LW Places, Living Hours, Global Living Wage and Living Work Consultancy
Deliver personal work targets on time and to standard:
Respond to telephone and web-based enquiries by providing advice and support to employers and supporters
Provide administrative support for all aspects of the accreditation journey, incl. processing accreditations, recognitions, and renewals
Maintain LWF data on systems, incl. Salesforce employer database
Support the maintenance of our systems to ensure efficient processes and develop reporting mechanisms for effective monitoring and evaluation of our impact and progress against plans
Coordinate and administrate Steering, Advisory or Leadership Groups as required, incl. coordinating agendas, sending out timely papers, taking minutes and following up on actions
Learning &expertise
Keep abreast of new developments in the accreditation space
Apply new learning to work and respond effectively to feedback
Work collaboratively with the LWF and franchise teams to share learnings and experience and ensure that we are meeting the expectations of our network and stakeholders
Develop and manage external relationships
Effectively develop and support a range of external relationships
Respond effectively to queries or requests from stakeholders
Engage with a diverse range of external stakeholders to support and develop projects as required
Communications
Communicate effectively within the LWF; ensuring that messages are reliably passed to those who need to know
Represent the LWF coherently in writing and verbally
Events and Communications
Plan and organise events to celebrate and grow our network of LW Employers, incl. playing an active role in the delivery of LW Week and assisting colleagues with event logistics
Represent and speak on behalf of the LWF at internal and external meetings and events
Develop or feed into employer resources incl. marketing materials, blogs, reports, templates, and guides
Develop and manage internal relationships
Work effectively with colleagues across Citizens UK
Work collaboratively within the LWF team and actively participate in the team to ensure we meet the expectations of our network and stakeholders
Generate income and resources
Contribute to plans and proposals to grow sources of income/resource.
Take personal responsibility for the careful stewardship of LWF’s resources
Personal Specification
(D) Desirable, (E) Essential
Experience
Comprehensive experience in an administrative role (E)
Experience of building positive relationships (E)
Experience of learning, managing and updating Salesforce or similar databases (D)
Key skills and knowledge
Excellent time management skills with the ability to juggle a wide range of competing demands (E)
Understanding of database and systems management (E)
Ability to take in and interpret information and present in a succinct manner(E)
Excellent communication skills, both verbally and written, combined with the ability to liaise with senior stakeholders, both online and in-person (E)
Ability to act on own initiative to introduce and develop new systems as appropriate (E)
Strong attention to detail (E)
Strong IT skills to include MS Office and database software (E)
Understanding of the policy and campaign landscape in the UK (D)
Personal qualities & values
A strong commitment to social justice and alignment with the Living Wage Foundation’s mission and Citizens UK’s values (E).
A proactive approach to all areas of work with a ‘can do’ attitude and a flexible approach to work demands (E)
About the application process
We work within diverse communities bringing people together. In line with our Inclusion value, we would love to see applications from LGBTQIA+ people, people from racialised communities, people living with disabilities and people of faith, all to better represent the communities we work in. We want our employees to have the working conditions that allows them to fully participate, be able to be their best authentic selves and thrive doing so, and we have employee networks to support staff. Even if you don’t quite meet all the required criteria still consider applying, as we invest in our employees and support them to develop the skills and knowledge required to deliver their role.
For questions and reasonable adjustments regarding your application including information in a different format, or our recruitment process, please email us.
Interviews will be in person in the South of England region, week commencing 5th October – in person most likely at Head Office in Whitechapel.
We’re the movement at the heart of fairer, better work. Fair pay, secure hours & enough to live on in retirement.



The client requests no contact from agencies or media sales.
About the PVRI
We’re a small charity with a global reach and an important purpose: to reduce the burden of pulmonary vascular disease (PVD) with a particular focus on pulmonary hypertension (PH) - a serious condition that can lead to heart damage and trigger symptoms like breathlessness, chest pain, fatigue, poor growth, fainting, and light-headedness. PH can reduce both quality of life and length of life, but it isn’t widely recognised or well-understood.
We aim to improve clinical care, education, and PVD research. To do this, we bring together an international network of thousands of clinicians, scientists, academics, and industry partners supported by our small team based in Bermondsey, London. Together, we deliver conferences, e-learning, and an academic journal, raise awareness of PVD, and encourage collaboration in research.
About the role
We are seeking a Marketing & Events Officer to help the charity achieve its mission by growing its international profile, driving membership, increasing engagement and income through delivering great marketing, webinars and event communications.
PVRI's events are delivered collaboratively across the charity, and this role acts as the key coordination point for event communications, delegate engagement and webinar delivery. No two days are the same. One day, you might be writing content for our website, emails, newsletters, or social media channels, and the next, you might be welcoming respected speakers and attendees to one of our international scientific webinars.
A key part of the role is supporting marketing and comms for our face-to-face events and working with the team to provide on-site support. These include our annual global scientific congress (often held towards the end of January in a different city around the world) and our biennial symposia (which usually take place in June, usually in the USA or Europe).
Our staff team are not scientists or medical experts – but we are skilled at warmly facilitating and uniting the global scientific and medical expert community. We are seeking someone who has excellent communication and organisational skills, is comfortable with complex medical terminology, genuinely cares about our mission, and will bring energy, skills and commitment to this exciting role.
If this sounds like you, we can’t wait to hear from you!
What we can offer
We offer a 35-hour working week and flexible working, a positive learning culture, international travel, and opportunities for you to learn and grow in your role. And for those who prefer hybrid working, we’re based in a vibrant, sociable office space close to London Bridge and Borough Market.
PVRI celebrates diversity and is committed to equality and inclusion in our recruitment practices and ways of working. If you’re excited about our mission and can bring talent and enthusiasm to our cause, we’d love to hear from you.
How to apply
To apply for the role, please send us your CV and a supporting statement (max 850 words) outlining what you could bring to the role and referencing the person specification. Please send these, together with the Equalities Monitoring Form, to Katie Corris by 09:00 on Monday, 07 September.
PVRI is a registered charity, number 1127115.
The client requests no contact from agencies or media sales.