• Are you looking for volunteer roles ?

    Go to volunteering section

1,020

Organisation development manager jobs

Job Alerts On

Get job alerts sent straight to your inbox.

By clicking 'Create alert' you agree to the Terms and Conditions applicable to our service and acknowledge that your personal data will be used in accordance with our Privacy and Cookie Policy and you will receive emails and communications about jobs and career related topics.

You will now get the latest from this search sent to your inbox.

You can manage your job alerts by clicking here:

Closing tomorrow
University of Birmingham, B15, Birmingham (Hybrid)
£36,636 - £46,049 with potential progression once in post to £48,822
We seek an International Engagement Manager to join our team to refine and expand a bold and innovative alumni volunteering programme.
Posted 1 week ago
Not For Profit People, Multiple Locations (Hybrid)
£32,000 - £35,000 per annum pro rata (actual £25,600 - £28,000)
Posted 1 day ago
Closing tomorrow
Kidney Care UK, Alton, Hampshire (Hybrid)
Circa £30,000 per year - depending on experience
Posted today Apply Now
Closing in 4 days
Sussex Beacon, Brighton (On-site)
£40,000 - £43,000 per year
Posted 3 weeks ago Apply Now
Closing in 2 days
Christian Aid, Multiple Locations (On-site)
£50,199 (Cardiff, Edinburgh, Warrington), £55,000 (London - inclusive of London allowance)
Posted 1 week ago
Staffordshire Pathway Project, Staffordshire (On-site)
£35,000 to £45,000
Posted 2 weeks ago Apply Now
Blesma, Remote
£28,938 pro-rata
Join Our Mission: Make a Difference as a Part Time Trusts Fundraising Officer at Blesma!
Posted today Apply Now
Closing tomorrow
Sister Circle, E1, London (Hybrid)
3 days: £19,800-21,000 or 4 days: £26,400-28,000
Project Manager: Healing Conversations (Trauma Counselling, Peer Support, Domestic Abuse survivors)
Posted 5 days ago Apply Now
Age UK Kensington & Chelsea, London (Hybrid)
£38,000 - £42,000 per year PRO RATA
Seeking an experienced Information and Advice Service Manager for a fantastic charity in London!
Posted 5 days ago Apply Now
Page 13 of 68
Dunmow, Essex (Hybrid)
£40,000 to £46,000 (pro-rata) depending on experience
Part-time (22.5 hours per week (Tuesday, Wednesday and Thursday))
Permanent
Job description

Senior Families and Professionals Advisor

Fragile X Society

Salary: £40,000 to £46,000 depending on experience
Hours: Part-time  (22.5hours per week)
Location: Great Dunmow, Essex, with some flexible and hybrid working considered
Contract: Permanent

Help change lives for families affected by Fragile X

The Fragile X Society is the UK’s leading charity supporting individuals and families affected by Fragile X syndrome and associated conditions, including FXTAS and FXPOI.

For more than 35 years we have provided trusted information, emotional support, and practical guidance to families across the UK. Our work connects families with clinicians, researchers, and services while helping professionals better understand Fragile X.

We are now looking to recruit a Senior Families and Professionals Advisor (Adult Enquiries) to join our small and dedicated team as part of a planned transition when our long serving advisor retires later this year.

This is a rare and rewarding opportunity to take on a respected specialist role supporting families navigating complex health, social care, and life transitions.

About the role

This is a senior advisory role supporting adults, families, carriers, and professionals affected by Fragile X conditions.

You will provide information, guidance, and emotional support to individuals and families across the UK, helping them navigate services such as adult social care, benefits, housing, health services, and transition into adulthood.

The role also plays an important part in ensuring that the Fragile X Society continues to provide trusted, accurate, and meaningful information for families and professionals.

A structured handover and training period will be provided by the current postholder to help transfer specialist knowledge.

Key responsibilities

You will:

  • Lead the handling of adult and carrier enquiries including those relating to Fragile X associated conditions such as FXTAS
  • Provide emotional support and practical guidance to families navigating complex situations
  • Maintain up to date knowledge of adult benefits, legislation, and social care services
  • Work with clinicians, services, and professional networks supporting people with Fragile X
  • Ensure the Society’s information resources and website content remain accurate and relevant
  • Support colleagues through mentoring and case discussion where appropriate
  • Contribute to the continued development of the Society’s information and support services.

About you

We are looking for someone with experience in complex advisory or support work within areas such as:

  • disability services
  • adult social care
  • learning disability
  • health services
  • rare disease charities
  • advocacy or advice organisations.

You will also have:

  • strong knowledge of UK benefits systems and adult social care
  • excellent communication and listening skills
  • high levels of emotional intelligence and resilience
  • experience supporting people in complex or sensitive situations
  • the ability to work both independently and collaboratively within a small team.

Previous knowledge of Fragile X is not required, but an interest in learning about rare genetic conditions and the lives of families affected by them is essential.

What we offer

Working at the Fragile X Society means being part of a values driven charity where your work genuinely changes lives.

We offer:

  • Salary of £40,000 to £46,000 (pro-rata) depending on experience
  • 25 days annual leave plus bank holidays (pro-rata)
  • Pension contribution
  • Flexible and hybrid working options where possible
  • Professional development opportunities including rare disease and clinical learning
  • A supportive and collaborative team environment.

The role also includes the opportunity to work closely with leading clinicians, researchers, and national rare disease networks.

About the Fragile X Society

The Fragile X Society supports thousands of families across the UK and works closely with clinicians, researchers, and policymakers to improve understanding and support for Fragile X conditions.

Our mission is to ensure that every family affected by Fragile X has access to reliable information, compassionate support, and a community that understands their journey.

How to applyTo apply, please send:

  • your CV and supporting statement explaining your interest in the role and relevant experience.

Further information about the Society can be found on our website.

Application resources
Application Instructions

To apply, please send your CV and supporting statement explaining your interest in the role and your experience in supporting individuals or families facing complex situations involving disability, health conditions, or social care services.

Organisation
Fragile X Society View profile Organisation type Registered Charity Company size 1 - 5

Support. Connect. Shared Strength

Fragile X Society logo Play
fx101-collage-featured.png038e80_5ad72b11d40d40f29acc97e717b9b012~mv2.jpg558808279_1290175183154925_1929036474841158501_n.pngimages (56).jpg
Posted on: 17 March 2026
Closing date: 15 April 2026 at 21:42
Tags: Advice / Information, Social Care / Development, Housing, Engagement / Outreach, Information Management, Research, Safeguarding, Wellbeing, Governance / Management, Social / Support Work

The client requests no contact from agencies or media sales.