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Page 8 of 14
Amersham, Buckinghamshire (Hybrid)
Greater London
£50,000 per year
Full-time or part-time
Permanent
Job description

About the role

Cardiomyopathy UK's Director of Research and External Affairs leads the charity's research, policy and advocacy, and communications and marketing functions, with a team of four staff. The post-holder sets the strategic direction of the directorate, drives high-quality delivery,  upholds the charity's values, and represents the charity externally. The Director is a member of the charity's Leadership Team, working closely with the CEO to steer the charity forward. 

For the right person, this is an opportunity with real strategic scope. We want to build on our strong policy positions and evidence base and translate them into more proactive campaigning and influencing, moving from good policy thinking to concerted public affairs activity, strategic stakeholder engagement, and campaigns that achieve real change. 

The Director will also lead the next phase of our research work, following our inaugural research grant-funding activity and James Lind Alliance top ten work. They will work with the Research Manager and our clinical and academic partners to better define and deliver our ambitions.

Raising awareness of cardiomyopathy, its signs, symptoms and genetic risk, is also within the team's scope. Too many people are still diagnosed late because neither they nor their GP knew what to look for. The Director will drive our communications and marketing agenda purposefully, equally ensuring the charity’s external profile is actively managed and enhanced.

About you

We're looking for a leader who is a collaborative and inclusive, able to build trust with staff, colleagues, external partners and the Board. They will have strong strategic, analytical and planning skills, with the ability to develop coherent strategies. They will have experience as a senior leader/ manager in a charity, health, research or patient-focused organisation. See the Person Specification for further details.
 
Why join us?

Cardiomyopathy UK is the national charity for people affected by cardiomyopathy. We provide specialist nurse support, peer support, wellbeing services and trusted information to thousands of people each year, as well as influencing policy, supporting advocacy, and funding and enabling better research.

We are ambitious about our future. We are committed to quality, accountability and continuous improvement. Most importantly, we are committed to ensuring that everyone affected by cardiomyopathy can live well with the condition.

We are a family friendly employer with flexible and hybrid working. We offer an enhanced Employee Assistance Programme, additional annual leave linked to length of service, and an extra special occasion day each year.

We are midway through our five-year strategic plan, at a genuinely exciting moment, both for the charity and for cardiomyopathy more broadly. If you are excited by the opportunity to shape our Research and External Affairs work, lead a strong team and ensure we can clearly demonstrate the impact of our work, we would love to hear from you.

Application resources
Application Instructions

First round interviews are scheduled to take place 20th/21st July
Second round interviews are scheduled to take place 3-6th Aug

Please note candidates will be asked to attend one interview in the Amersham office

We are happy to make any reasonable adjustments to the interview process - we will provide further details on this when contacting short-listed candidates.

Organisation
Cardiomyopathy UK View profile Organisation type Registered Charity Company size 11 - 20
Posted on: 26 June 2026
Closing date: 17 July 2026 at 09:00
Tags: Campaigns, Communications, Policy, Marketing, Advocacy, Health / Medical, Partnerships, Public Affairs, Research

The client requests no contact from agencies or media sales.