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Are you passionate about creating lasting change in communities?

We are seeking an inspiring, compassionate and strategic leader to become our next Chief Executive Officer.

This is an exciting opportunity to lead a well-established charity that is committed to improving lives, empowering communities and creating opportunities for people to thrive. As our CEO, you will work alongside a dedicated Board of Trustees, staff, volunteers, partners and local communities to shape the future of the organisation, ensuring we continue to deliver meaningful impact while remaining financially sustainable and true to our values.

We're looking for someone who believes in the power of communities, values collaboration and inclusion, and can inspire others to help us achieve our purpose.

About the Role

As Chief Executive Officer, you will provide visionary leadership and be responsible for the overall strategic direction, governance and operational management of the charity.

You will:

• Lead the delivery of our vision, purpose and values, ensuring everything we do reflects our commitment to the communities we serve.
• Develop and deliver an ambitious strategy that responds to local need while building a sustainable future for the charity.
• Champion community voice and lived experience, ensuring the people we support are at the heart of decision-making.
• Inspire, support and develop our staff and volunteers, creating an inclusive, positive and empowering culture.
• Build trusted relationships with funders, commissioners, partners and local stakeholders, acting as an ambassador for the charity.
• Lead fundraising and income generation, securing grants, contracts and new opportunities that enable our work to grow and flourish.
• Ensure excellent governance, financial stewardship, risk management and compliance with charity law and regulatory requirements.
• Provide strategic leadership for safeguarding, ensuring robust policies, procedures, training, and reporting arrangements are in place and that the organisation maintains a strong culture of safeguarding and wellbeing.
• Oversee the effective delivery and evaluation of our programmes, ensuring we continue to demonstrate meaningful outcomes and impact.
• Work closely with the Board of Trustees to support good governance, strategic planning and organisational development.
• Providing appropriate oversight of CLP’s trading subsidiary, CLP Homes, ensuring effective governance, financial management and alignment with the charity’s objectives.

About You

You will be an experienced and values-led leader with a genuine commitment to social justice, equality and community development.

You will bring:

• Experience of leading within the charity, voluntary, community or social enterprise sector (or significant transferable experience with a strong commitment to the sector).
• A successful track record of strategic leadership and organisational development.
• Experience of securing income through grants, contracts, fundraising or partnership development.
• Strong people leadership skills with the ability to motivate, support and develop teams.
• An understanding of charity governance, safeguarding, risk management and regulatory compliance.
• Sound financial awareness and experience of budget oversight.
• Excellent communication and relationship-building skills, with the confidence to represent the charity externally.
• The ability to balance strategic thinking with a practical, hands-on approach.
• A collaborative leadership style that empowers others and promotes inclusion, innovation and continuous learning.

Why Join Us?

This is more than a leadership role—it's an opportunity to make a lasting difference.

You'll lead a passionate team that believes in the power of people and communities. Together, you'll help shape services that respond to local need, influence positive change and create opportunities for individuals and families to reach their full potential.

If you are motivated by purpose, inspired by partnership working and excited by the opportunity to lead a charity with ambition, we'd love to hear from you.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.  

Julie’s Bicycle is seeking a visionary, collaborative and values-led Chief Executive to lead the organisation into its next chapter.

About Julie’s Bicycle

Julie’s Bicycle is a pioneering not-for-profit organisation mobilising the arts and culture sectors to take action on the climate crisis. For nearly two decades, we have been at the forefront of the creative climate movement, working to put culture and creativity at the heart of climate action. We believe culture has the power to challenge, inspire and move people; to shape how we think, feel and act; and to help transform our future now.

Our work brings together cultural and environmental expertise to support practical action, build leadership, inform policy and strengthen collective impact. Through our programmes, tools, training, consultancy, campaigns and partnerships, we support artists, creative organisations, policymakers and changemakers to respond to the climate, nature and justice crises with confidence, imagination and purpose. To date, Julie’s Bicycle has worked with thousands of organisations and individuals, in the UK and globally, helping to equip people, places and policies with the knowledge and power to drive sustainable change.

Why this opportunity has arisen

This is a defining moment for Julie’s Bicycle. After 19 years of inspirational founding leadership, our Founder and Chief Executive, Alison Tickell, is stepping down from the role. As we approach our 20th anniversary, Julie’s Bicycle is renewing its strategy and theory of change. The climate, nature and justice crises continue to evolve, and so too must the leadership, partnerships and solutions needed to create meaningful change. This creates a significant opportunity for a new Chief Executive to honour a powerful legacy while shaping a bold, clear and ambitious next chapter for the organisation.

What we are looking for

We are looking for an exceptional Chief Executive who can provide strategic and organisational leadership, strengthen Julie’s Bicycle’s voice and influence, and ensure the organisation continues to deliver impact at the intersection of culture and climate. The successful candidate will work closely with an experienced Board and dedicated staff team to refine and deliver our next phase of strategy, sharpen our priorities, build sustainable income and communicate our distinctive value with clarity and conviction.

This is both an outward-facing and deeply organisational role. Externally, our next Chief Executive will be a visible and credible advocate across culture, climate and environmental networks, able to build partnerships, engage funders and policymakers, convene people around shared purpose, and speak persuasively about the role of arts and culture in responding to the climate crisis. Internally, they will inspire, empower and support a talented and values-led team, strengthening leadership capability, systems, decision-making and accountability while protecting the inclusive, creative and collaborative culture that makes Julie’s Bicycle special.

We are keen to hear from experienced senior leaders with a track record of organisational and people leadership, strategic development, partnership building and income generation. We expect our CEO to demonstrate a strong understanding of the relationship between culture, climate and wider social and environmental change, and to bring a deep knowledge and experience of the UK cultural landscape and key institutions and stakeholders, and/or a deep knowledge and experience of national and international climate policy and advocacy environments. However, we are also keen to hear from you if you are passionate about the intersection of culture and climate/environmental issues, but would benefit from a period of phased support to fully immerse yourself in the breadth of issues, sectors and contexts in which JB operates.  

This is an opportunity to lead a pioneering organisation with purpose and ambition: protecting what makes Julie’s Bicycle distinctive, strengthening the foundations that will help it thrive, and turning the power of culture into meaningful and lasting climate action.

To learn more about the opportunity and how to apply, please download the full appointment brief.

Closing Date:  18 October 2026

People Beyond Profit Conversations:  22 October2026 - 5 November 2026

JB Interviews:

First stage:  12 November 2026

Second stage:  19 November 2026