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Job Purpose
The Research Programme Manager will have a strong grounding in scientific research, expertise in grant management, and report to the Director of Research.
The role’s core responsibility will be to lead on the implementation and delivery of large-scale collaborative programmes and funding schemes. The post holder will have a visible presence within the research community acting as an important point of contact between partner organisations, researchers, committee members, peer reviewers and the charity. They will be expected to keep updated with the latest research developments in order to use strategic scientific expertise and judgement in the ongoing development and improvement of the Foundation’s grant funding schemes.
They will be responsible for the successful delivery of a large portfolio of active projects by working closely with others in the team to ensure all awards are expertly administered, monitored, evaluated and reported against, ensuring the outputs are of the highest quality and supporting the charities activities. The post-holder will identify opportunities to communicate the progress or impact of the work we fund and work with the communications team to develop compelling communications for our supporters.
Key responsibilities:
Grant Funding Programme
● Lead on the setup of large-scale collaborative research programmes ensuring robust peer review, effective contracting and close collaboration with funding partners;
● Lead on the management of multiple grant funding schemes, as well as ad-hoc applications that come to the Foundation;
● Oversee the smooth running of application rounds, peer review and ensure that funding committees function in line with AMRC guidance;
● Be the main point of contact for the AMRC with regards to research management;
● Support the ongoing implementation and development of the Foundation’s Grant Management Software, ensuring the research team are using the platform effectively;
● Manage project set-up including contracting, the development of detailed project plans, including go/no-go milestones and budgets;
● Work with the other Research Programme Managers to oversee the research programme budget including planning, monitoring and forecasting; work with the Directors of Research and Finance to ensure that accurate research finance information is available for organisational budgeting and planning;
● Seek opportunities to improve the Foundation’s grant funding schemes to increase the number and quality of applications received year on year, ensuring funding projects support the delivery of the Foundation’s research strategy;
● Monitor any developments or innovations across the sector and implement changes to maintain a high-quality impactful research funding programme.
Project Portfolio and Impact
● Oversee the delivery of large-scale collaborative research programmes including:
● Manage and oversee project delivery of the Foundation’s active project portfolio by:
● Lead on the development and implementation of an Impact Evaluation Framework, to monitor and evaluate the impact of the research we fund.
● Lead on the development of an annual impact report to demonstrate the impact of the research we fund.
Line Management
● Provide line management responsibilities to the Research Officer, supporting their performance and ongoing development.
General Responsibilities
● Support the Director of Research to deliver the Foundation’s research strategy;
● Support more junior members of the team through training and mentoring;
● Contribute to the team being proactive and supportive, and working effectively and efficiently to achieve agreed objectives;
● Support the development of research communications activities, working closely with our communications team.
● Contribute to the development and maintenance of strong internal relationships across the charity, working specifically with the Fundraising Team to support income generation;
● Support the Director of Research in the development of updates for the Board of Trustees and other groups such as our Scientific Advisors;
● Keep updated with the latest scientific developments in the field, attend conferences and build strong relationships with MND experts and other relevant stakeholders;
● Represent the Foundation at external scientific meetings and conferences;
● Undertake other work as required by the Director of Research.
Skills and experience required:
● Educated to PhD level or with equivalent experience in a science subject relevant to MND;
● Experience of research management, including the management of grant schemes, preferably with experience of using Flexi-Grant;
● Experience of research communications, including the ability to disseminate complex scientific information and present it to non-technical audiences;
● Experience of liaising with senior individuals in a variety of organisations with an ability to create favourable working relationships;
● Proven project management skills, with the ability to manage multiple projects at the same time;
● A great communicator, with excellent written and oral skills and the ability to maintain relationships with a wide variety of individuals, including those within the Foundation, researchers and clinicians, relevant organisations and industry bodies, MND patients, and other MND charities;
● Self-motivated, proactive and able to work using own initiative;
● Organised, with a proven ability to successfully manage a broad spectrum of tasks, deadlines and individuals;
● Motivated to make a real difference for those living with MND and future generations.
Working Pattern: Full time, permanent, home-based with regular travel across the UK
Salary: Circa £45,000 dependent on experience
Direct reports: Research Officer, 1 FTE
Closing date: Friday 8th May
Interviews: Week commencing 11th May
We are My Name'5 Doddie Foundation and we're absolutely committed to our goal: A World Free of MND



The client requests no contact from agencies or media sales.
Head of Operations
Salary: Up to £61,600 (dependent on experience)
Location: Home-based or hybrid London-based co-working
Contract: Full-time (flexible working requests welcome)
Suicide is preventable. That’s why we are working to create a safer online world and to connect young people with the help and support they need to stay safe and well.
We’re Molly Rose Foundation, founded following the death of 14-year-old Molly Russell. At Molly’s inquest, a coroner ruled harmful online content contributed to her death. In her name, we’ve now got big plans to create change and save young lives.
We’re looking for a Head of Operations who can ensure we grow effectively and focus our energies on helping young people live long and stay strong. You’ll lead and develop our finance, governance, HR, and IT operations, ensuring we can deliver with impact and grow and scale smoothly.
You’ll play a leading role in shaping and delivering our organisational strategy, monitoring our progress and budgets, and leading the process to design and develop our next Strategy to 2030. You’ll be adept at designing effective and robust policies and committed to developing a high functioning, high-impact organisation.
As a member of our Leadership Team, you’ll have the vision, strategy, and entrepreneurial zeal to help us thrive.
But you’ll also relish the opportunity to build a small organisation from scratch with the drive and passion to really get stuck in and help us to fulfil our potential.
We offer a comprehensive package that includes:
- 27 days annual leave plus 1 volunteering day, rising to 30 days holiday after three years’ service;
- annual leave buyback scheme, with the option to purchase up to 5 additional days;
- employee pension scheme;
- £500 employee wellbeing budget;
- we welcome applications from diverse range of applicants in circumstances, and actively welcome flexible working requests.
Application Process
To apply, please send a CV (maximum 2 sides of A4) and cover letter (maximum 2 sides of A4) via the Charity Jobs website.
Application closing date: Friday 22 May 2026
There will be a 2-stage interview process with first interviews held online between 11 - 12 June 2026.
Second interviews will be held in-person in London.
The client requests no contact from agencies or media sales.
We are seeking an enthusiastic and efficient Partnerships Coordinator to join our dynamic team. The main purpose of this role is to support the delivery of high-quality partner engagement and stewardship, ensuring positive and responsive partner experiences. You will be involved in the development of compelling partner communications, and proactively identifying new funding opportunities. Additionally, there will be opportunity to support the implementation of organisational system and process improvements. Essential attributes for this role include a willingness to learn, enthusiasm, drive and a proactive mindset.
If you are passionate about making a difference in the global health or non-profit sector, keen to work with a collaborative & dedicated team, thrive on building and maintaining strong relationships with corporate partners, and eager to get involved in improving internal systems and processes, we would love to hear from you.
Experience & Skills:
Essential:
Desirable:
Why join us?
Other essential:
First stage interviews will be conducted on 2 & 3 June.
Our vision is a world in which both the prevention and care of people living with obesity are embedded in global values and systems.
The client requests no contact from agencies or media sales.
Work with us at NCT
For pregnancy, parents and progress.
At NCT, what we do every day has a real impact on people’s lives.
We’re the UK’s charity for pregnancy, birth and early parenthood. For nearly 70 years, we’ve been alongside women and parents, offering trusted information, practical support and building communities.
Today, we reach hundreds of thousands of new and expectant parents every year. We provide antenatal and postnatal education, local and national support for infant feeding and mental health, and we campaign for fairer, safer maternity care. We listen to parents’ experiences and act on them - tackling health inequalities, challenging systems that don’t work, and pressing for progress.
Join our passionate team and contribute to the meaningful work that transforms the lives of parents and families.
Your role will include:
Why work at NCT?
Whether you’re supporting services, shaping policy, delivering programmes, raising funds, running operations or telling our story, you’ll be contributing to something bigger:
a society where everyone who becomes a parent feels confident, connected and safe.
People join NCT because they want to make a difference - and stay because they believe in how we do it.
How we work
We’re guided by a simple principle: no judgement, no exception. That shows up in how we support parents - and how we work with each other.
At NCT we are:
We deal with complex issues, make tough decisions, and work in environments that can be challenging. But we do it with honesty, care and a shared sense of purpose.
When you work at NCT you’ll get fantastic benefits to support your well-being and professional growth:
Join us
At NCT, we’re committed to fostering an inclusive and diverse workforce. If you need reasonable adjustments during the recruitment process or within your role, please let us know - we’re here to support you. If you want your work to contribute to lasting change - for generations of parents to come - we’d love to hear from you.
Together, we are NCT.
Our commitment to equity, diversity and inclusion
At NCT, we believe everyone should be able to shape their own journey - as parents, and as colleagues.
We are taking positive action to increase diversity across our organisation, at all levels, and to nurture a culture of inclusion and belonging for all our people and for the parents and families we support. You can read more about our Equity, Diversity and Inclusion action.
We are committed to zero discrimination, both internally and externally. This commitment applies regardless of visible or invisible difference, including (but not limited to): sex, sexual orientation, age, race, ethnicity, disability, impairment, learning difference or long‑term condition, religion or belief, gender identity, economic class, marital or civil partnership status, family status (including single parents), socio‑economic background, pregnancy and maternity.
We actively welcome applications from people from communities who are under‑represented in our organisation and the charity sector more widely.
We are the charity supporting people as they become parents. Here through pregnancy, birth, and early parenthood.



Interviews will be taking place the 18th and 19th May via MS Teams
Shelter is looking for a Digital Fundraising and Marketing Manager within our Community and Events team to fuel our fight for home.
If you’ve got the digital marketing skills to help shape mass participation and community fundraising events, inspire supporters and thrive on collaboration this could be the role for you.
About the team
This exciting opportunity sits in Shelter’s Community & Events department in Shelter’s Income Generation Directorate.
Community & Events is made up of our Community Fundraising, Supporter Experience, Digital Fundraising & Marketing and Mass Participation teams, across the team we look after a wide range of fundraising activities encouraging supporters to raise money and providing them with the support to do so.
This role as Digital Fundraising and Marketing Manager sits within Shelter’s Digital Fundraising and Marketing team.
About the role
Line managed by the Senior Digital Fundraising Manager, you will work closely with Community & Events team members, as well as colleagues across the organisation - including Digital, Marketing, CRM and Income Generation Digital Leads – to ensure the Community & Events digital strategy is implemented effectively.
This is a great opportunity to join a dynamic team, for someone who is looking to take their digital skills to the next level, implementing strategic plans and working with the Senior Digital Fundraising and Marketing Manager to improve performance.
About you
You bring strong digital expertise from a fundraising or marketing environment, with hands‑on experience using tools like Meta Business Suite, Google Ads, Canva, and Google Analytics. You understand best practice in marketing communications, can implement and optimise digital strategies, and are confident in setting meaningful KPIs and reporting on performance. Audience‑led and supporter‑centric, you are dedicated to delivering excellent digital experiences that drive acquisition and income growth.
You’re an effective communicator and collaborative team player, able to work confidently across teams and build positive, influential relationships with both internal and external stakeholders. Skilled in managing multiple projects at once, you’re comfortable contributing to data processes and using insights to guide decisions. You thrive in innovative, fast‑paced environments—testing, learning and adapting to improve outcomes, and sharing successes and failures openly.
Results‑driven and curious about the Community & Events fundraising market, you excel at translating data into clear, actionable recommendations for non‑technical audiences. You actively champion diversity and inclusion, leading by example and encouraging inclusive thinking in others. Flexible and adaptable, you enjoy horizon scanning for new opportunities, implementing new tools or channels, and evolving approaches throughout product development and delivery.
Apply to be part of our team and be the change you want to see in society.
Benefits
We offer a wide range of benefits, including 30 days of annual leave, enhanced family friendly policies, pension and interest free travel loans. We are committed to offering fully flexible working to help all employees maintain work-life balance. Our employees also have access to a tenancy deposit loan, payroll giving, cycle to work scheme and an employee assistance programme.
How to apply
To apply, please click ‘Apply for Job’ below and submit your work history and a supporting statement. Your supporting statement should outline how you meet the ‘Person Specification’ section of the job description.
Any application submitted without a supporting statement will not be considered.
About Shelter
Home is a human right. It’s our foundation and where we thrive. Yet everyday millions of people are being devastated by the housing emergency.
We exist to defend the right to a safe home. Because home is everything.,
We need ambitious, passionate people to join us. This is your chance to play a part in the fundamental change we are striving to achieve.
Our enemy is the social injustice at the core of the escalating housing emergency. To win this fight, we must be representative of the people we are here to help and those who support our movement. In all our people decisions, we take pride in being inclusive, equitable and transparent. We are committed to combating racism both within and outside Shelter. We welcome you on our journey to becoming truly anti-racist.
Safeguarding statement
Safeguarding is everyone's business. Shelter is committed to protecting the health, wellbeing and human rights of those we support, and enabling them to live free from harm, abuse and neglect. All our staff will be expected to observe professional standards of behaviour and conduct their work in line with our Safeguarding Policies.
Shelter does not accept unsolicited CVs from external recruitment agencies nor accept the fees associated with them.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Money & Energy Advice Service Lead
Pro rata salary: £39,825 (35 hour week)
Home-based, with travel as required
Up to 35 hours per week with occasional evenings and / or weekend work will be required
Permanent (subject to external funding)
Responsible for: 2.0 FTE Money & Energy Advisers
About the role
This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.
With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.
We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.
Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.
This role is made possible thanks to the support of British Gas Energy Trust.
About Kidney Care UK
Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.
Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease.
About the Money & Energy Advice Service
The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.
What we offer
Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:
We are the UK's leading kidney patient support charity



The client requests no contact from agencies or media sales.
Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast
Salary: £32,750 per annum
Hours: 35 hours per week
Closing date: Monday 19 May 2026 at midnight
Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026
This is a full time fixed-term position for one year (with possible extension subject to funding).
Who we are looking for
Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum.
The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.
You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.
Experience required
Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse
Experience of leading public affairs delivery in one of more of the devolved nations
Experience in analysing Government policy in-depth and creating policy briefings
Experience of drafting briefings, reports and policy submissions
Experience of communicating across a range of parliamentary and professional stakeholders at all levels
Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment
Experience of organising stakeholder events
About Breakthrough T1D
Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia.
You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1.
Employee benefits
As an employer we offer:
Hybrid working arrangements
Flexible working and will consider compressed hours
Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service
Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment
Season ticket and cycle loan
Pension scheme
Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates
Personalised training to suit your career aspirations and professional development
Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age.
Improving lives today and tomorrow by accelerating life-changing breakthroughs to treat, prevent, and, ultimately, cure T1D and its complications
Please see attached Recruitment Pack for full job description and person spec for the Senior Programme and Network Lead.
This role leads our work across Birmingham at an exciting moment. We are developing a participatory, community-centred approach to analysing the city's economy, identifying opportunities for change and coordinating alliances to act on them. This means bringing together mixed groups, including grassroots changemakers, researchers, funders and other partners, and facilitating processes that help people make sense of complex information together, find common ground and make decisions about collective priorities. The role requires someone who can hold these processes well: strong facilitation skills, communicating complex ideas accessibly, building trust across groups, sustaining momentum over time and helping diverse coalitions move from analysis to strategy to action.
The Senior Programme and Network Lead will develop and deliver initiatives that support a growing movement for economic justice across the city, with a particular focus on building support and engagement amongst grassroots changemakers and communities experiencing economic injustice. It will manage projects and resources, conduct programme development and delivery, oversee outreach and partnerships, changemaker recruitment and contribute to fundraising, ultimately playing a key role in shaping our regional impact. This position is crucial in coordinating our work across Birmingham and driving meaningful collaboration with local and national stakeholders, in particular working collaboratively with Economic Justice Brum, a long-standing initiative working on local economic systems change.
Working with communities across the UK experiencing economic injustice to reimagine, rebalance, and transform the economy.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Role Overview
You will be part of Shine’s specialist Health Team, providing condition-specific health advice and support to people of all ages living with spina bifida, hydrocephalus, Normal Pressure Hydrocephalus (NPH) or Idiopathic Intracranial Hypertension (IIH). You will support delivery of, delivering an established, evidence-based programme, promoting good self-management and care, and enabling our members to live in optimum health.
You will deliver high-quality, person-centred physiotherapy assessments, treatment, and advice to children, young people and adults with a wide range of physical needs, enabling them to maximise independence, function, and quality of life.
The role is home or hybrid based; member contact is predominantly via phone and video calls.
This job role is an exciting opportunity to join our specialised service delivering spinal stimulation. You will be attending a 2-day physiotherapy clinic once a month. Clinics take place on a rolling programme of one location per month, current locations include Birmingham, Bristol, Leicester, Leeds and Oxford but these may vary.
There will be occasional travel required across wider areas and nationally including attendance at conferences and meetings at our head office in Peterborough.
Benefits to working at Shine
Competitive salary: Review due April 2027
Regular working hours, and no shift work (some occasional weekends or evenings)
3% pension contribution
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
Additional annual leave awarded for ‘long service’
Opportunity to purchase additional annual leave
Broadband allowance for home-based roles
Life insurance after 12 months’ employment
Access to our Employee Support Programme and Mental Health First Aiders
Reimbursement for HCPC registration
Support to learn and develop including specialist training for Spinal Stimulation and ongoing mentoring and clinal supervision.
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role in more detail or have any questions, please contact Lindsey Reid, Head of Health.
To apply please submit your CV and supporting statement*, which should outline your interest and explain how you meet the role criteria
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 18th May at 11pm
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Interviews (virtual): Thursday 28th May 2026
Please see full details of the job description and person specification below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
Job Description
Job Title: Digital Content Officer – SEND
Responsible To: Senior Parent Adviser - SEND
Team Membership: Helpline/IAS- (Information, Advice and Family Support Directorate)
Hours: 14 hours a week
Salary scale:
Scale point 26
£32,168.00 FTE
£12,867.20 – actual (14 hours a week) plus £26.00 a month home working allowance
Contract: Fixed – until 31 March 2027
Location: Home based - UK
Job Purpose:
To write engaging plain English website copy on SEND law and related education law matters in England.
To help ensure the provision of quality information, advice and support to parent carers.
Main Duties:
To write quality plain English copy for the Contact website.
To review, edit and update existing SEND and education related copy on the Contact website.
To work with the education helpline team to identify and prioritise the information and advice needs of parent advisers and parent carers.
To write and develop content to respond to common SEND and related education law concerns of parent carers.
To help ensure our information and advice reaches more families by working with the comms team to promote our IAS through social media, and digital channels.
To build positive working relationships with colleagues, contributing to a culture of mutual respect, trust, and shared responsibility.
To respect diverse experiences and perspectives within the team and contribute constructively to problem‑solving and decision‑making.
Demonstrates awareness of education legislation, statutory guidance, and good practice in England.
A commitment to the provision of quality information and advice.
General duties
In common with all Contact staff, the post holder will be expected to work in accordance with the aims of Contact and to observe the policy and procedures set out by the directors of the charity.
The post holder will be expected to assist with any reasonable duty at the request of the line manager for the post.
Staff will be expected to attend and participate in Contact staff meetings and the staff annual conference.
Staff will be expected to attend training events relevant to their specific responsibilities.
Staff will be offered supervision, support and annual review s incorporating their training needs.
The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Research Policy and Partnerships Officer
We’re looking for a Research Policy and Partnerships Officer to join the team.
Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.
Position: CE402 Research Policy and Partnerships Officer
Location: Home-based, UK Nationwide. However, occasional travel will be required as part of this role (may include team meetings or other work related meetings)
Hours: Full-time, 35 hours per week
Salary: Circa £35,500 (inner London weighting £3,950 per annum or outer London weighting £2,457 per annum may be applied in accordance to where you live)
Contract: Permanent
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.
Closing Date: 8 May 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.
Interview Date: 26 May 2026
The Role
The Research Policy and Partnerships Officer monitors UK research policy and governance developments, synthesises evidence and supports preparation of clear internal briefings, policy statements and consultation responses.
Reporting to the Research Policy and Partnerships Manager, the role helps ensure the Association’s research portfolio and the Research Academy remain well aligned to national frameworks and governance standards, and that lived experience is appropriately reflected in system facing outputs.
The role also supports the Research Policy and Partnerships Manager in building and maintain partnerships with research funders, medical research charities, academic institutions and health system leaders.
Key responsibilities will include:
About You
You will:
To fulfil the role, you must be a resident of the UK and have the right to work in the UK
Please state any preferences for flexible options in your covering letter.
Finding strength through support
The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of supporters and donors that they can provide vital support.
The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.
The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.
A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.
You may also have experience in areas such as Research Officer, Research and Policy Officer, Partnerships Officer, Research Policy and Partnerships Officer, Research and Policy, Policy and Partnerships.
Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP
We’re excited to be partnering with Consumers International, a high-impact, international non-profit, membership organisation, working at the forefront of social innovation, consumer rights and global policy. This is a fantastic opportunity for a Communications Lead – a proactive, strategic thinker who can help tell their story to the world.
I’m especially keen to hear from individuals with persuasive communications experience, reaching out to industry makers, government, society, or influencing change at a charity, as part of your communications background. B2B Communications experience is essential.
As Communications Lead, you will enjoy working within an innovative, entrepreneurial environment, with a drive to deliver excellence and aptly project manage across high-profile moments – events, product launches, campaigns.
Your experience:
Are you driven to lead strategic communications across digital, social, and campaign channels – helping shape global narratives and raise the visibility of key research, tools, and events for Consumers International? Please apply today!
Applications for the Communications Lead will be reviewed on a rolling basis. Please apply today. For more information, please apply now!
As leading charity recruitment specialists and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
Operations Specialist Opportunity:
We are seeking an experienced operations specialist with excellent IT knowledge to deliver a fixed-term internal operations project which will focus on a number of project outputs related to reviewing, updating and embedding key organisational policies, procedures, systems and training to support the smooth running of our operations, including a focus on CRM, IT, data protection and procurement.
Background and purpose:
Stronger Together is an impact driven, not for profit organisation providing businesses with practical training, resources, business services and collaborative programmes to create a world where all workers are recruited responsibly and have fair work free from exploitation. Read more about our story on our About Us page.
Project Outputs:
The intended project outputs include the following- Appx. 35 days are available to deliver these project outputs over a minimum of 16 weeks (2/2.5 days per week) to ensure wider capacity to review outputs and embed with the team, and a maximum of 20 weeks.
Review and update of IT security and user guideReview of Data protection and GDPR policy and processesReview and update of Organisational policies and processes, e.g. Anti-Bribery and Corruption Policy; Health and Safety Policy; Environmental/Sustainability Policy; Supplier Code of ConductReview of training/free places admin management process and recommendations for efficiency improvements (considering process and technology systems)Operational team support on our ACT CRM systemReview of storage monitoring and SharePoint/OneDrive systems and processComparison Eventbrite/alternative ticketing systemsAnnual insurance reviewDevelopment and delivery of training for team on various systems, policies and processes as per aboveDevelopment of concise brief with recommendations for ongoing management, maintenance and team training on the above.Ad-hoc projects as capacity and company prioritisation allows
Person Specification
Who you are:
To view the full Person Specification click here
What we can offer you:
Application process:
Details: Closing date: Wed 20th May 2026 | Interviews: w/c 1st June 2026 | Starting date: June/July 2026
To apply: Please visit our website.
The client requests no contact from agencies or media sales.