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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Purpose of the role
We are seeking a project coordinator to contribute research, project management and stakeholder management skills to support key projects advancing the consumer voice in the sustainability transition. This is a critical role in our team, and it comes with significant development opportunities.
An initial focus will be supporting delivery of key workstreams in our Clean Energy Futures Programme, where our vision is for an affordable and accessible energy system in which all people can enjoy the benefits of increasingly clean, decentralised and interconnected energy. You can explore our past achievements in promoting consumer interest in clean energy on our website, here: Clean Energy Futures - Consumers International.
The Research and Events Coordinator will work alongside the Strategy and Projects Leads for Clean Energy Futures to manage engagement with the communities of practice that feed into our Clean Energy Futures work. This includes the Member Taskforce on Energy and the Multi-stakeholder Expert Group, comprised of cross-sector experts from business, academia and government.
The Coordinator will also contribute to project delivery through research into energy policy and practice and report writing, as well as joining programme strategy discussions in a strongly collaborative and non-hierarchical environment. We also anticipate the Coordinator working closely with our Insights Lead to conduct desk research and stakeholder interviews to deliver insights components of Sustainability Programme workstreams.
After an initial 6-month period focused on Clean Energy Futures, there will be opportunities for the Coordinator to broaden their remit to other projects and topics within the Sustainability Programme.
Reflecting this breadth and the opportunities to grow, the Coordinator will initially report into the Director of Sustainability, who will provide guidance and mentoring support.
The ideal candidate is a highly organised, proactive and energetic individual who can demonstrate their knowledge and professional interest in sustainability and an understanding of the importance of consumers in the transition. They should be comfortable working remotely in a busy and varied global environment and able to communicate clearly and effectively, verbally and in writing.Prior knowledge of the energy sector is useful but not a pre-requisite.
This role can be shaped to focus on variety of potential topics, capabilities and opportunities as we grow the team, depending on the needs of the organisation and skills and interests of the individual.
The role is open to candidates globally.
Key Responsibilities
Key responsibilities of the role include the following:
Project Coordination: Support the implementation of Sustainability Programme projects, with an initial focus on Clean Energy Futures. This will include managing project plans and tracking timelines for project deliverables, as well as engaging project partners to keep them updated on project progress.
Research support: Support the Clean Energy Futures Strategy and Project Leads in conducting research and gathering examples and insights from our global network of stakeholders to inform the development of our analysis, reports and proposals. Support the Insights Lead with consumer insights research and stakeholder interviews.
Community coordination and meeting organisation: Support organisation of in-person and online stakeholder workshops or meetings including supporting the development of agendas, invite lists and online and in-person logistical arrangements where needed. This may include project related meetings and representation at other events and high-level global moments such as COP31.
Communications support: Draft, provide input to, and disseminate communications (e.g. meeting minutes, research reports, topic briefings) to project stakeholders, ensuring accurate, timely and appropriate communications.
Strategic inputs: Contribute your thoughts and ideas to development and delivery of the clean energy futures and wider sustainability work programmes and strategy as needed.
The overall work of Consumers International:
Work collaboratively with colleagues across the organisation to support the implementation of the Strategic and Business Plans.
Contribute as needed to team meetings and other Consumers International-wide communication and outreach.
Embody the culture and values of Consumers International and help us deliver on those.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are seeking a Clean Energy Futures Projects Lead to manage initiatives in our high-performing Clean Energy Futures team. This is a high-impact role that blends strategy, innovation, and delivery.
This role is central to our unique, global, multi-stakeholder programme, which includes various aspects of consumer rights in energy including energy affordability, energy access, and participation in clean energy opportunities, including emerging technologies such as smart home energy management and dynamic grids.
Working alongside the Clean Energy Futures Strategy Lead, the Director of Sustainability and the wider team, the Clean Energy Futures Project Lead will be responsible for co-creating and managing projects including policy research, consumer insights and campaigns, reports and recommendations to business and government, and coordination with international bodies (UN, IEA, OECD) on standard setting. They will have a key role in the team's engagement with a wide network of consumer organisations and energy sector stakeholders from government, multilaterals organisations, NGOs, think tanks and individual experts, and they will manage and grow critical relationships with private sector partners and funders.
This is a diverse role working on vital aspects of the clean energy transition, helping to ensure that the consumer voice and consumer interests are central to future energy systems design.
The ideal candidate is a results-driven team player with expertise in clean energy policy and practice, an understanding of the importance of demand-side solutions, and a belief in the potential of international and cross-sector collaboration in achieving a fast, fair and equitable transition.
The role is open to candidates globally.
Key responsibilities of the role include the following:
Project Management
Lead multi-country, multi-stakeholder projects from inception to delivery, ensuring they are completed on time, on budget, and with measurable impact.
Manage budgets, risks, and reporting in line with organisational standards.
Coordinate across internal teams to ensure seamless delivery of complex initiatives
Develop new project proposals, initiate/support projects and pursue relevant funding opportunities with partners and other external actors.
Insight and Innovation
Provide deep, up to date understanding of energy and related consumer issues globally.
Track trends and policy developments to ensure the organisation is at the forefront of global debates.
Write reports and thought leadership that can influence decision-makers.
Contribute to updating our Consumer Power strategy in the Clean Energy Futures team and identify opportunities for innovation and growth in this area.
Member and Stakeholder Engagement
Collaborate closely with Consumers International’s membership to drive collective action.
Work with cross-sector partners to support project delivery and support in identifying new partners, including private sector, to grow programme impact.
Global Representation
Advocate for consumer rights and sustainability, positioning Consumers International as an important voice in fair and equitable transition to the clean energy future.
Contribute to policy discussions and global narratives.
Represent Consumers International at global events.
Working across teams
Work collaboratively with colleagues across the organisation to support the implementation of the Strategic and Business Plans.
Constantly be on the look-out for new opportunities for Consumers International to build our impact and organisational strength.
Contribute as needed to Consumers International-wide communication and outreach.
Embody the culture and values of Consumers International and help us deliver on those.
The client requests no contact from agencies or media sales.
Portland Press Limited – the wholly-owned subsidiary of the Biochemical Society – is seeking a Non-Executive Director to join its Board.
The current Board is a dynamic forum comprising a mix of Biochemical Society Trustees and specialist Non-Executive Directors.
This is a pivotal time for the organisation as it capitalises on links between Portland Press and the Society and continues to navigate open science and changes across the wider academic publishing landscape. Publishing is key to the research dissemination goals of the Group and vital to the financial viability of the Society.
We are looking for individuals who are excited about contributing to the Group’s endeavours over the coming three-year period. The successful candidates will have:
• Demonstrable recent experience in evolving scholarly publishing and content services to meet the changing needs of researchers across the globe.
• Deep knowledge of making business-model changes and sculpting/structuring new commercial offerings.
• Awareness of research-funder policy shifts, with ideas about how to navigate these changes.
In addition you should meet the eligibility requirements for company directors, be able to commit the time necessary to fulfil the duties of the role, and understand the associated legal responsibilities.
This role offers a remuneration package of £7,500 per annum and will require the quarterly review of reporting in line with attendance at four board meetings per year.
It is intended that interviews will take place by the end of June 2026. The role will commence from January 2027 onwards, with a preceding period of shadowing (from September 2026).
Closing date for applications is Friday 12th June 2026.
To apply follow the link and upload a CV and Cover letter addressed to Prof. Nigel Hooper via the button below. It is important that you DO NOT include your Personal Information i.e. name and contact details in your CV or Cover Letter.
The Society reserves the right to close the vacancy prior to the stated closing date in the event that a high volume of applications are received.
The Society is committed to promoting a diverse and inclusive community - a place where we can all be ourselves and succeed on merit. We offer a range of family-friendly, inclusive employment policies to support staff from different backgrounds.
The Society takes the security of your data seriously. It has internal policies and controls in place to ensure that your data is not lost, accidentally destroyed, misused or disclosed, and is not accessed except by our employees in the proper performance of their duties.
Please note that due to limited resources it is not possible for the Society to acknowledge receipt of applications. If you do not hear from us within two weeks of the closing date, please assume that your application has been unsuccessful on this occasion.
Founded in 1911, we’ve been at the forefront of advancing molecular bioscience for over 100 years.



The client requests no contact from agencies or media sales.
Policy and Public Affairs Manager (England)
Reporting to: Head of Policy and Public Affairs
Line Management: 1 Policy and Public Affairs Officer England
Location of work: Remote but role holder will ideally be London-based to be able to frequently commute for meetings/ events at Westminster. The role may involve also some infrequent travel across the UK.
Contract type: Full-time, 35 hours per week, although flexible/ compressed hours will be considered. The role will require occasional evening and weekend work.
Contract Length: Permanent
Salary: £42,000
BACKGROUND
Magic Breakfast is the UK’s leading school breakfast charity and makes a difference to over 350,000 children and young people every day by offering breakfasts and expert advice to tackle child morning hunger in schools across England and Scotland.
This is an exciting time for Magic Breakfast as the benefits of school breakfast provision are increasingly recognised by policymakers, educators and the public. The Policy and Public Affairs (PPA) Team is central to this work. And through our new organisational strategy, Nourishing Futures, the work of the PPA Team is growing to meet our advocacy ambition to expand school breakfast provision and deliver our vision which would see every child in the UK nourished, empowered and thriving.
JOB PURPOSE
The role of the Policy and Public Affairs Manager is a high-impact role, central to designing and delivering Magic Breakfast’s national policy and public affairs strategy in England. The role holder will lead the development of evidence-based policy positions and work collaboratively to drive forward strategic, integrated and impactful advocacy campaigns to successfully influence decision-makers, policy change, and funding frameworks aligned with our key objectives. Specifically, you will also lead the design and implementation of our new workstream to expand school breakfast provision to secondary schools and early years settings, alongside our work to ensure the effective implementation of the Free Breakfast Club Programme.
More broadly, you will keep abreast of political developments relevant to Magic Breakfast - proactively identifying opportunities to respond, influence and shape the debate across the school food system and provide strategic, analytical and timely advice to the Senior Leadership Team.
Using your excellent communication skills, you will be able to translate complex policy into tailored and effective communications, policy briefings, positions and submissions, and will play a lead role in confidently engaging external stakeholders including UK Government Ministers, Parliamentarians, special advisers, officials and sector partners.
We are looking for someone who enjoys collaboration, who shares our passion for driving systematic change, and who can use their experience to navigate, respond to, and influence the fast-moving political environment to deliver lasting and meaningful change. You’ll be part of a collaborative and ambitious organisation, working at the intersection of policy, practice and impact – putting children and young people at the heart of everything we do and helping to ensure every child starts their day nourished, empowered and ready to thrive.
KEY RESPONSOBILITIES
Build and maintain strong relationships with UK Government Ministers, Parliamentarians, Special Advisers, officials and sector organisations, including conducting stakeholder mapping and power analysis to identify key routes to influence.
Design, lead and implement integrated advocacy campaigns to deliver maximum impact in collaboration with cross-organisational teams.
Work closely with colleagues to share expertise and intelligence, inform and shape research areas, support campaign activities aligned with advocacy objectives, and respond proactively to live developments across the organisation.
Line manage and support the development of the Public Affairs Officer.
Strong ability to translate complex policy into clear, persuasive communications tailored to specific audiences to deliver maximum impact.
Please read the full job description attached below.
WHAT WE OFFER
At Magic Breakfast we value our employees and work hard to develop offer a supportive, respectful culture which enables everyone to thrive.
Please see our job pack below
Please see our website
APPLICATION PROCCESS
Should you wish to discuss the role before applying please email our People and Culture Team, HR @ magicbreakfast .com
Shortlisting: w/c 25th and 26th May
Interview 1: w/c 1st and 2nd June
Interview 2: w/c 8th and 11th June
We reserve the right to close the vacancy early if a high volume of applications are received. This is to ensure that we can manage application levels whilst maintaining a positive candidate experience. Unfortunately, once a vacancy has closed, we are unable to consider further applications.
The client requests no contact from agencies or media sales.
About us
We’re Breast Cancer Now, the research and support charity. We’re the place to turn to for anything and everything to do with breast cancer. However you’re experiencing breast cancer, we’re here.
The brightest minds in breast cancer research are here. Making life-saving research happen in labs across the UK and Ireland. Support services, trustworthy breast cancer information and specialist nurses are here. Ready to support you whenever you need it. Dedicated campaigners are here. Fighting for the best possible treatment, services and care for anyone affected by breast cancer.
About the role
This is an exciting opportunity to work within our policy, evidence and influencing team to deliver change for people with breast cancer in Wales.
You’ll play a key role leading the development and delivery of our policy and public affairs work in Wales. You’ll develop evidence-based policy positions, and design and deliver influencing plans in line with our new strategy. Over the coming year this will include our engagement following the Senedd election and with the new Welsh Government. You’ll also support the roll out of campaigning activity in Wales and act as a key spokesperson for the charity in Wales, representing us in the media as well as with campaigners and senior stakeholders.
About you
You’ll have experience of working in relevant policy or public affairs roles developing policy positions and materials, and a proven ability to build strong external contacts.
Along with strong analytical and communication skills, you’ll have the ability to work well independently while managing a varied workload, and the capability to lead projects and work with teams across the UK.
You’ll have a good understanding of the current health policy landscape in Wales or the UK as well as knowledge of Welsh or UK parliamentary processes and legislative systems.
Job description and benefits
Please download the job description and our attractive benefits package.
Location and hybrid working
This role is primarily based in our Cardiff office. Our hybrid working model allows you to work up to 3 days per week at home.
When applying
We hope you choose to apply for this role. To support your application, you’ll be asked to submit your anonymised CV and a supporting statement online. Please refer to the essential criteria on the person specification and clearly provide as much information as you can with examples, to demonstrate how and where you meet the criteria.
Our commitment to equity, diversity and inclusion
We’re committed to promoting equity, valuing diversity and creating an inclusive environment – for everyone who works for us, works with us, supports us and who we support.
Closing date: Tuesday 26 May 2026 at 09.00am
Interview date: Thursday 4 and Friday 5 June 2026
We reserve the right to close this advert early. Therefore, to avoid disappointment please submit your application as soon as possible, if you’re interested in this opportunity.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Relationship Manager (North and Scotland)
Full-time (37 hours) | permanent
c£36,000 depending on experience | Home-based | Hybrid
At the Bone Cancer Research Trust, we exist because families refused to accept a world where primary bone cancer had no hope, no answers and almost no research. Today, we’re the UK’s leading bone cancer charity and every supporter you engage helps push vital research forward and provides comfort to families who need us.
About the role
As Relationship Manager, you’ll build genuine, lasting connections with our Special Funds - our named funds created in honour or memory of someone affected by primary bone cancer, community supporters and local businesses. Your relationship-led approach will help create the family feel connections we’re known for, inspiring long-term support and raising vital income for people affected by primary bone cancer
You will:
About you:
Why you’ll love working with us
You’ll join a small team that works collaboratively and keeps our community at the centre of everything we do. We’re supportive, friendly and you’ll have the flexibility to manage your work while seeing the direct impact of the relationships you build.
What we offer
· Flexible approach to working hours
· 30 days annual leave per year plus bank holidays
· Private Health Insurance (following successful probation)
· 6% employer pension contributions
· Life Assurance of 4x annual salary
Our mission is to save lives and improve outcomes for people affected by primary bone cancer through research, information, awareness and support.
The client requests no contact from agencies or media sales.
Location(s)
This position is open to candidates currently based in Scotland, in line with the role’s operational requirements. The role is home-based with in person attendance to our ‘All Staff Days’ in London (5 per year), team meetings (roughly 6 meetings per year) and occasional travel to other meetings and Westminster as required. Where possible, these are combined with an overnight stay.
London office: AdviceUK, 83 Victoria Street, London, SW1H 0HW
Job Title: Policy and External Affairs Manager (Scotland)
Employment Type: Part-time
Reporting to: Head of Policy, Programmes and Media
Pay scale: £40,000 - £42,500 Full time equivalent (Actual salary £32,000-34,000)
Interview: In person interviews will take place on Friday 29th May at our London office
Working hours: 28 hours per week (4 days/0.8) within normal operating hours. Flexible working arrangements will be considered. (Normal operating hours are 8.00am - 6.30pm, Monday – Friday.) Lunch & other breaks are unpaid.
Special conditions: Some evening and weekend work may be required for which time off in lieu (TOIL) will be granted. Some travel will be required which may entail some overnight stays.
We are committed to diversity and inclusion and welcome applications from all backgrounds, particularly encouraging those from underrepresented groups.
CHARITY OVERVIEW
Since 1979, AdviceUK has been supporting advice organisations by helping them to be efficient, competent and effective, and by campaigning for a policy environment that supports advice agencies and people needing advice.
We are both a membership body and charity. We support our 700+ members (109 of which are located in Scotland) to provide advice to around 2 million people every year. We are working towards a world in which every individual, regardless of means, is able to access the advice they need to exercise their rights and deal with any legal and social welfare challenges they may face.
JOB PURPOSE
To set up and manage our policy and public affairs activities in Scotland ensuring AdviceUK has a strong voice, so we can secure policy change to benefit organisations delivering advice and the communities they serve. The post holder will be responsible for establishing AdviceUK’s first policy and influencing strategy for Scotland, including through developing policy solutions informed by strong evidence and rooted in member experience, and leading effective political and stakeholder engagement which will influence change. They will work closely with colleagues across the UK to join up policy, influencing and communications work.
KEY TASKS AND RESPONSIBILITIES
1.Strategy
1.1 Develop AdviceUK’s first policy and influencing strategy for Scotland, through consultation with members and stakeholders and analysis of the landscape and opportunities in Scottish policy making.
1.2 Put plans in place to roll out a specific programme of proactive and reactive policy work to further AdviceUK’s strategic aims in Scotland and represent the voices of Scottish members.
1.3 Devise measures to monitor the impact of our policy and influencing work in Scotland and report back to staff, trustees, members and stakeholders about the difference we are making.
2.Policy development
2.1 Collaborate with AdviceUK members, partners, sector stakeholders and
beneficiaries to develop clear, concise and authoritative policy positions on key issues.
2.2 Produce high-quality, well-argued policy materials based on data and evidence, including reports, select committee responses, evidence statements, briefings and responses to Scottish Government consultations.
2.3 Provide policy input for media statements, press releases and social media posts relating to Scotland, which are managed by the Press Officer and Digital Marketing Officer.
2.4 Develop an expert knowledge of policy issues affecting Advice UK members, keep up to date on the political and legislative environment and identify opportunities to use these to further Advice UK’s strategic objectives.
2.5 Represent AdviceUK at policy and/or sector meetings and events.
3. Public affairs
3.1 Roll out a programme of public affairs work including Scottish parliamentary engagement to promote AdviceUK’s strategic priorities.
3.2 Build and maintain effective relationships with stakeholders across the Scottish Government and parliament, local and decision makers, non-governmental bodies and other relevant stakeholders.
3.3 Champion an evidence based approach to all Advice UK’s advocacy and external relations work, drawing on research and member insight to inform our campaign messages.
3.4 Ensure regular opportunities for Advice UK members in Scotland to feed into our public affairs and advocacy work, and regular communications on our impact, to demonstrate how we amplify their voice.
3.5 Monitor and evaluate public affairs work, including collecting relevant metrics, to report back on our success and inform future campaigns.
4. Research and data
4.1 Work with Policy, Programme and Media (PPM) colleagues as well as the wider AdviceUK team to develop the evidence base needed to inform our policy and campaigns work in Scotland.
4.2 Work with the Research and Policy Analyst to carry out analysis that identifies emerging trends in the Scottish advice world and use this to provide evidence-based policy briefings and specific policy solutions.
5. General duties
5.1 Ensure you effectively communicate Advice UK’s vision, mission and objectives to staff, members and external stakeholders.
5.2 Ensure you demonstrate Advice UK’s values and behaviours in all aspects of your work
5.3 Build and maintain positive relationships with key stakeholders including staff trustees; members, partners and suppliers
5.4 With support from your manager, deliver your agreed personal objectives and undertake any agreed development or training
5.5 Maintain a strong understanding of our members and the advice sector more generally, by reading internal reports; accessing relevant data reports; following our social media channels and, where possible, attending member and other relevant events. With the agreement of you line manager, ensure you make time to speak to members and visit their services.
5.6 Adhere at all times to Advice UK’s policies and procedures
5.7 Carry out any reasonable duties compatible with the post assigned by your line manager
Our purpose is to improve the lives of people in need of advice. We do this by supporting our members, so it is easier for them to help their clients.
The client requests no contact from agencies or media sales.
This role combines evidence-based policy development with impactful communications to drive meaningful progress towards gender equality in Wales. You will research the barriers to gender equality and develop clear policy recommendations – always through an intersectional lens. You will use the insights of this work to influence decision-makers, engage WEN’s diverse membership and shape public opinion to mobilise real change.
The ideal candidate will have a proven track record in researching and drafting effective and accessible writing and content for a wide range of audiences, including policy-makers, campaign supporters, and the wider public. You will know how to identify and build relationships with key stakeholders and partners, have strong political awareness, and the ability to think strategically. You will also need a good eye for detail and excellent self-management skills, with the ability to prioritise competing demands in a fast-paced environment.
If you are passionate about gender equality, motivated to make real change for women in Wales, and have excellent research and communication skills, this could be the role for you.
We particularly welcome applications from candidates who have lived experience of intersecting discrimination.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Community Fundraising Assistant - North
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is an exciting, innovative, and ambitious charity. We are passionate about finding a cure for brain tumours through the establishment of dedicated Brain Tumour Research Centres of Excellence around the UK.
After a successful 2025, we’re building on our momentum and looking ahead with ambition. As our work continues to expand, so does our impact. We are now looking for passionate people to join us on the next stage of our journey!
It is a fantastic time to be joining us and we are keen to share this with likeminded and talented individuals. We currently have an opening for a Community Fundraising Assistant - North, to join our Community and Digital Fundraising team.
Have you answered Yes to these questions?
Does this sound like the opportunity to really take the next step in your career?
Excited to learn more about this position? Then please take a read through our recruitment pack which is included within this advert.
If you have the skills and ambition that we are looking for we are excited to receive your application. We are really looking forward to welcoming a new member to our team!
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
National sight loss charity, Retina UK is currently recruiting for a personable, motivated Senior Research Coordinator with experience in communicating science to a lay audience, who is educated to degree level in a biomedical or clinical science, and has excellent presentation and planning skills.
Key responsibilities will include ensuring effective communication of research into inherited sight loss, including the projects we fund, to our community, fundraisers, supporters and staff and measuring the impact of our research programme.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Help Change the Future of Polycystic Kidney Disease Research
Patient & Public Involvement and Engagement (PPIE) Manager
PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)
The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.
This is not a standard engagement role.
You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.
PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.
We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.
That’s where you come in.
The Opportunity
As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.
You’ll:
We’re Looking For Someone Who:
Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.
Why Join Us?
At the PKD Charity, you’ll join a passionate national charity working to improve lives through:
This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.
What We Offer
✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity
Apply Now
For details on how to apply, please see the application pack.
Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.
The client requests no contact from agencies or media sales.
Today, 12 children and young people will be diagnosed with cancer. We’ll stop at nothing to make sure they get the right care and support at the right time.
Change lives in a life-changing career
When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.
The impact of cancer on young lives is more than medical. And that impact can be felt by entire family. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer.
We remove barriers, solve problems and prioritise well-being. And we stop at nothing to make their voices heard and their unique needs understood, so they can get the right care and support at the right time.
About the role
We’re looking for a Head of Research & Evidence to join our ambitious Research, Learning & Systems Change Team.
Young Lives vs Cancer has a strong and growing commitment to changing the system for children and young people with cancer, and their loved ones. Our North Star vision and Time is Now Strategy focus on influencing how the wider system works – from services and policy to practice on the ground – so that families get the support they need.
The Head of Research and Evidence sits in the Research, Learning & Systems Change team, within our Innovation, Policy & Systems Change Directorate. The role is responsible for ensuring our work is grounded in strong, credible and useful evidence, and that learning is actively used to shape decisions, practice and change across the system.
This is a leadership role within a small but ambitious team. You will set direction and provide thought leadership, but you will also be hands on – designing, commissioning, managing and using research alongside colleagues and partners.
Building trusted relationships and using evidence to influence thinking and action are central. You will work with colleagues, children and young people, families, and partner organisations (such as the North Star Cancer Collective) to learn, strengthen credibility and create change.
This role is subject to a Criminal Record Check. In the event of a successful application, a Basic Criminal Record Check will be completed. A previous conviction is not necessarily a barrier to employment. We encourage qualified applicants to apply, and we will consider each case individually.
What will I be doing?
No two days are the same at Young Lives vs Cancer. So, summarising your ‘day to day’ isn’t easy. You’ll work as part of a strong internal team, collaborating closely with colleagues across the organisation and with key external partners to generate, use and apply evidence that supports learning, influence and system change. Here are some of the main things you’ll be doing, but you’ll find more details in the job description and pack:
You’ll be setting the direction for research and learning, leading a clear and purposeful research programme focused on the psychosocial experiences of children and young people with cancer. You’ll ensure research is high‑quality, ethical and impactful, including commissioning work with partners and contributing to research funding bids.
You’ll be understanding needs and experiences to grow a strong, credible evidence base, building and using robust evidence on need, inequality, impact and progress to inform strategy, services, policy and system change. You’ll ensure children, young people and families meaningfully shape research and that insight is shared in clear, practical ways.
You’ll be providing system insight and leadership, analysing how the system works, identifying trends and pressures, and using evidence to guide where change is most needed. You’ll build trusted relationships across the voluntary sector, NHS and research community, sharing learning and strengthening our credibility and influence.
You’ll be turning learning into action and influence, helping teams apply research to real‑world practice and supporting testing, learning and improvement over time. You’ll put feedback and learning loops in place and assess how research‑informed change is affecting practice and outcomes.
What do I need?
Diverse perspectives and unique skill sets are at the heart of Young Lives vs Cancer. If you're passionate about making a positive impact and eager to learn, we encourage you to apply, even if you don't meet the criteria and person specification fully. Your potential is what matters most to us, and we’re committed to fostering an inclusive and supportive work environment to help you develop.
The key skills we’re looking for in this role are:
Experience leading and delivering research, including setting direction, choosing methods, commissioning or carrying out research, analysing data, and ensuring high quality and ethical practice.
Strong research and analytical skills, with confidence working with both qualitative and quantitative data and evidence, and turning insight into practical action.
Experience using evidence to support change, such as shaping strategy, influencing policy, improving services or supporting system change.
Experience working across organisations, building trusted relationships with colleagues, partners, and where appropriate, children, young people and families.
Ability to communicate complex research clearly and accessibly to different audiences, in writing and in conversation.
A collaborative way of working, with strong people skills, curiosity and a learning mindset, and a clear commitment to equity, inclusion and anti‑oppressive practice.
What will I gain?
For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:
To find out more about our benefits package, have a look on our website.
Our commitment to Diversity, Equity, Inclusion and Belonging
At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.
We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.
To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value AI adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to tell us about your skills and experiences in your own voice.
Accessibility
We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible. Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.
To hear more about this role, please sign up to one of our informal drop in sessions taking place at 12:30pm on Tuesday 26th May and 17:30pm on Monday 01st June.
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