Care management volunteer roles

Volunteer and join our Board of Trustees and help strengthen support, awareness and long-term sustainability for people affected by Chronic Granulomatous Disorder (CGD) and their families. Please note this oppurunity to volunteer as a trustee is open to UK residents only. 

A range of backgrounds

It is great if you have skills or experience which you think would beuseful to support our board, but this is by no means a requirement.We’re looking for people who are enthusiastic about us doing good work for the community and committed to helping us see this mission through.

We provide a full induction and training to everyone who joins as a trustee, and we also encourage interested parties to attend a boardmeeting before joining so you can see how we work.

Commitment from you

Being a trustee is an official duty as they have joint legal control of the charity and are ultimately responsibly for making sure it’s doing what it was set up to do. The CGD Society is also a registered company in England & Wales, so our trustees are also directors for the purposes of company law.We expect the following of all of our trustees, committing around one hour of time per week:

1.To attend our board meetings, which occur via video conference every two months. 2.To keep in touch via email, through an official email address that we will provide for you, at a minimum of once per week.

Our board meetings occur 6 times a year, usually on a weekday evening, and we provide an agenda with reading material two weeks in advance. We ask all participants to read this material and come prepared with comments and questions. Every input is welcomed, debates are encouraged, and all views matter.

We try to host one meeting per year - our Annual General Meetingor AGM - in-person at a central location, to provide an opportunity for our team to meet face-to-face. We cover all travel expenses for trustees to attend these in-person if they are able to.

We also encourage our trustees to engage with one of our subcommittees, which are smaller groups overseeing specific areas of our work, such as our nursing service or financial governance.This is optional, as we recognise that not all of our trustees can spare the time to participate.

To express your interest please send an email to hello@cgdsociety with the subject line 'Trustee rescruitment' explaining why you are interested in becoming a trustee for CGD Society. Including a CV is useful but not required.