Communications and public affairs officer volunteer roles

Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis? 

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.

Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.

We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.

The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.

1. Treasurer

We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.

In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board. 

2. Young Trustee

• Recent personal experience of the impact of living with endometriosis whilst at school
• Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
  May 2026
• Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
• Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.

3. Endometriosis UK Trustee

• Personal or professional experience of diversity and inclusion issues
• Currently living in England, Northern Ireland, Scotland or Wales
• Charity Trustee experience
• Charity Senior Management experience
• HR expertise
• NED experience
• Experience of grant making / philanthropy

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

Our trustees and non-executive directors play a vital role in making sure that the group achieves its core purpose. They oversee the overall management and administration of the charity. They also ensure that there is a clear strategy and that our work and goals are in line with our vision.

Just as importantly, they support and challenge the CEO and executive team in the exercise of their delegated authority and affairs, to enable Thrive Social Housing and Emerging Futures CIC to grow and thrive, and through this, achieve our mission.

The Board operates under the leadership and guidance of the chair and works in partnership with the chief executive officer and the executive team.

Board members are expected to always act in the best interests of the organisation and its stakeholders, and to use their background knowledge and skills to work with the chair and other board members to ensure that the Board, supported by its committees, carries out its responsibilities effectively and lead from the top in demonstrating our culture, values and behaviours.

Board members have a collective responsibility. This means that trustees always act as a group and not as individuals.

Proxy by IWI Overview

Proxy by IWI is dedicated to fostering thoughtful and engaged feminist responses to mainstream media, popular culture, legal issues, and advocacy.

Published daily, Proxy is committed to delivering ambitious and distinctive journalism. The publication covers topics that are of greatest significance to women’s human rights, focusing on people, ideas, laws and institutions from a feminist viewpoint and extending beyond. Proxy features original investigative reporting, insightful analysis, compelling arguments, and personal reflections, all designed to offer a multifaceted feminist take on current affairs.

Principal Responsibilities

· Maintain a thorough understanding of global trends and developments concerning women's human rights.

· Submit two articles per month for publication, each typically between 600 and 800 words in length.

· Ensure accuracy by obtaining supplementary material and further information from archives, reference libraries, and                  interviews with informed individuals.

· Conduct interviews in a variety of circumstances as required.

· Establish and maintain contacts to facilitate news gathering, including relationships with the police, emergency services,            local councils, community groups, health trusts, press officers from various organisations, and members of the public as            needed.

· Work collaboratively with the IWI and Proxy team to produce clear and precise content in accordance with house style              guidelines.

· Undertake research and write feature articles, occasionally contributing to subsidiary publications and supplements.

Requirements

· A minimum of four years’ experience in research and/or reporting.

· Proven interpersonal and collaborative abilities, able to work independently as well as part of a team.

· Flexibility, initiative, and robust problem-solving skills.

· Experience within multicultural settings and an awareness of cross-cultural differences.

· Dedication to promoting women’s human rights.

· Strong listening skills.

· Outstanding writing skills, including adaptability in writing styles and responsiveness to editorial guidance.

· Excellent analytical capabilities for precise understanding of subject matter.

· Superb organisational skills, with the ability to handle multiple projects and adhere to tight deadlines.

· Creative thinking in conveying messages innovatively.

· Rigorous attention to detail, including proficiency in proofreading one’s own work.

· Exceptional written English skills.

Could your leadership skills help shape the future of a Hopian?  Hopian is a registered charity that provides advice and support for adults and children who have experienced Domestic Violence and Abuse through the provision of refuge accommodation and community support services.  We also provide support and access to counselling for people affected by Child Sexual Exploitation.

The Role of Trustee and executive Trustee roles are voluntary positions. A Trustee for the Board is expected to meet the requirements of the board in line with the charities governing documents, governing good practice and legal requirements.  We also have a vacancy for a Treasurer should you be interested please visit our Hopian website - recruiter link below for further details.

Trustee Responsibilities :

The Board as a whole is collectively responsible for the success of the charity. A Trustee is a Board Member and has a number of responsibilities in order to ensure robust management of the charity including:

• Make decisions objectively in the interests of the charity.
• Implement Hopian’s Vision, Mission, and Values.
• Lead on the aims and objectives of Hopian by raising awareness of domestic and sexual abuse, and child sexual exploitation and abuse and its impact on individuals and their families.

Trustee Duties :

• Ensuring that the organisation pursues its stated objects (purposes), as defined in its governing document, by developing and agreeing a long-term strategy.
• Ensuring that the organisation complies with its governing document (i.e. constitution or memorandum and articles of association), charity law, company law and any other relevant legislation or regulations.
• Ensuring that the organisation applies its resources in pursuance of its charitable objects (i.e., the charity must not spend money on activities that are not included in its own objects) .
• Ensuring that the organisation defines its goals and evaluates performance against agreed targets.
• Safeguarding the good name and values of the organisation.
• Ensuring the effective and efficient administration of the organisation, including having appropriate policies and procedures in place.
• Ensuring the financial stability of the organisation.
• Protecting and managing the property of the charity and ensuring the proper investment of the charity’s funds.
• To work in the interests of the charity and not for personal gain.
• To ensure that the Board Members takes proper professional advice on matters in which it does not have competence.
• Following proper and formal arrangements for the appointment, supervision, support, appraisal and remuneration of the chief executive.

In addition to the above statutory duties, each trustee should use any specific skills, knowledge or experience they have to help the board of trustees reach sound decisions. This may involve scrutinising board papers, leading discussions, focusing on key issues, providing advice and guidance on new initiatives, or other issues in which the trustee has special expertise.

Tasks:

• To work with other Board Members to form an effective governing body for the charity.
• To attend meetings and to read papers in advance of meetings.
• Ensure that the charity’s focus places services users centrally.
• To understand and be committed to the mission of the charity.
• To maintain a long-term overview of the charity and its work.
• To make strategic and major decisions about the charity objectives, policies and procedures.
• To attend sub-group meetings as appropriate.
• To participate in other tasks that may arise from time to time such as interviewing for new staff, helping with appeals and fundraising.
• To keep informed about the activities of the charity and wider issues which affect its work.
• To monitor and evaluate the work of the charity on a regular basis. This includes receiving reports from staff, staff supervision, receiving feedback from service users and other agencies .
• To ensure that the charity is a good employer of its paid and voluntary staff .
• Provide opportunity for staff to meet with the board.

Person Specification

We are looking for a  Trustee who has an understanding and acceptance of the legal duties, responsibilities, and liabilities of trusteeship. It is expected that a Trustee takes ownership to develop and maintain this understanding and application of duties. In addition to having:

• A commitment to the organisation.
• A willingness to devote the necessary time and effort.
• Good, independent judgement.
• An ability to think creatively.
• An ability to work effectively as a member of a team.
• A commitment to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty and leadership

Experience & Knowledge

• Understanding and evidence of commitment to equal opportunities and diversity statement 
• Be objective and unbiased 
• Be supportive and approachable 

Time Requirements

To be able to attend scheduled committee meetings each year and read papers for each board meeting. To be available to for consultation, support and guidance on an ad hoc basis. Much of this contact will be via online, telephone or email.

We're looking for new Board Members who are interested in making a real difference to the future of Graeae.

A pivotal member who is recruited for their specialist skills or knowledge and because they are representative of those with a stake or interest in Graeae’s work. In law, Trustees of Graeae have three particular duties – compliance, care and prudence – which are set out in the recruitment pack.

We are interested in hearing from Deaf, Disabled and neurodivergent individuals and looking to recruit 3-4 people with experience in one or more of the following:

• Financial management
• Law
• Producing (commercial and subsidised sectors)
• Business planning and management
• Equity, diversity and inclusion
• Delivering digital projects
• Fundraising
• HR

Being a Graeae Board Member can be stimulating, challenging and rewarding. It offers the chance to work with a dedicated, committed, resourceful and professional group of people (staff team, Board and advisers) in an innovative and challenging environment.