Personal volunteer roles in Chapeltown, west yorkshire

THE IDEAL CANDIDATE
We are seeking a volunteer with a strong professional track record in finance or accountancy, who can provide senior level oversight on our Finance and Compliance Committee. You will have an understanding of best practice in financial reporting, controls and governance. A background in charity finance is not essential but would be advantageous. We are seeking a Trustee with sound judgement, the highest professional standards and integrity and strong communication skills who would enjoy contributing to the overall governance of the charity. This role would suit someone with a finance background looking for their first trustee position or who has been a Treasurer for a smaller charity and is not looking for a larger Treasurer role at this time.

THE RECRUITMENT PROCESS
Please see the How to Apply section further below to apply for this role.
We will have an informal selection panel to consider volunteer applications and if you are selected you will be one of the people who will lead the CCFA and decide how it is run.
Working with our other trustees, your skills and experience will be key to the success and development of the CCFA. The successful candidate will benefit from being part of a dynamic and successful trustee body of a charity which demonstrates great social value to young people and to society, and to those adult volunteers who train and develop the cadets, inspiring them to achieve their full potential.
As you will become a charity trustee and company director, and as we work with young people, there are a number of eligibility criteria which we will cover with you. Please ask us if you have any questions around your eligibility for this role.
You can find out more about what we look for in a Trustee in Annex B.

TENURE
Once elected as a trustee, you will be asked to serve for a three-year term, following which by mutual agreement you could be elected for a further three-year term.
On election you will have a probationary period of 3 to 4 months depending on your joining date and dates of board meetings and committee group meetings. In the probationary period you should attend one board meeting and at least two committee meetings as a trustee. This will give you an insight into the work done by trustees and the commitment required to be a trustee and will allow both the board and you to assess whether this role is suitable for you. You will have full trustee voting rights during the probationary period.

Job Title: Personal Assistant                                                                         

Reports To: Department Manager 

Location: Remote

Employment Type: Volunteer (12 hours/week for 6 months)

About the Project – “Solta o Jogo”
“Solta o Jogo” is a vibrant cultural competition and festival celebrating Brazilian heritage through Capoeira, music, dance, acrobatics, and a Brazilian arts & crafts fair. Hosted at Kingston University Townhouse, the event invites the community to participate in free performances, workshops, and exhibitions promoting cross-cultural understanding.

As part of this initiative, we are seeking a Personal Assistant to support daily coordination, scheduling, and communication tasks across departments. This remote volunteer opportunity is ideal for someone who is detail-oriented, proactive, and looking to gain experience in nonprofit administration while contributing to a meaningful community-driven programme. 

Position Overview:
The Personal Assistant will be responsible for organising meetings, managing calendars, supporting internal communications, and assisting in day-to-day administrative operations. This role plays a vital part in ensuring smooth coordination between teams, and offers autonomy, flexibility, and mentorship opportunities for someone looking to develop or apply their administrative and organisational skills in the Third Sector.

Key Responsibilities:

Administrative Support & Coordination:

• Manage meeting schedules, appointments, and internal calendars.

• Organise virtual events, staff briefings, and team check-ins.

• Support in planning and executing internal conferences or training sessions.

Data & System Management:

• Maintain and update internal databases and contact lists.

• Implement and uphold procedures and administrative systems.

Staff Liaison & Communication:

• Act as a point of contact between managers and teams.

• Assist in internal communications and task follow-ups.

General Administrative Tasks:

• Contribute to internal meetings with updates and suggestions.

• Provide ad hoc administrative support to leadership and teams as needed.

Required Qualifications:

Education:

• No specific degree required, but relevant administrative or office support experience is preferred.

Experience:

• Prior experience as an administrative or personal assistant is an advantage.

• Familiarity with coordinating meetings, managing data, or supporting organisational logistics.

Skills:

• Strong written and verbal communication.

• Excellent organisational and time-management abilities.

• Proficiency in Microsoft Office, particularly Word and Excel.

• Proactive, professional, and able to work independently or collaboratively.

• Strong team player with attention to detail.

Benefits:

• Gain valuable administrative and coordination experience in the nonprofit sector.

• Receive support and mentorship to build confidence and skills.

• Work flexibly in a fully remote setup with a collaborative team.

• Build your network within a mission-driven cultural organisation.

• Reimbursement of local travel expenses (if in-person support is required for specific events).

Equality Statement

Quilombo UK is committed to fostering an inclusive and diverse environment. We promote equal opportunities in line with the Equality Act 2010. Discrimination of any kind will not be tolerated, and we encourage applications from individuals of all backgrounds.

We are currently looking for a personal assistant to the charity's chair person.

Responsibilities typically include: 

· Acting as a first point of contact for enquiries: (email/calendar management and managing diaries 

· Typing, compiling, and preparing reports, presentations, and correspondence. 

· Miscellaneous tasks to support the Chair

· Forming a relationship with our clients as they are part of the community. 

Essential skills for this role are: 

· Organisation skills: The ability to prioritise tasks, manage time, and keep track of deadlines is crucial.  

· Communication skills: should be able to communicate effectively in writing. 

· Attention to detail: the ability to pick up on small details can prevent costly mistakes from occurring. 

· Problem-solving skills: the ability to identify and resolve problems quickly and efficiently.  

This is an exciting opportunity to contribute to a worthy cause. The organisation has a warm and friendly atmosphere and will be extremely rewarding for the candidate. 

Thank you for your interest in volunteering with VoiceAbility,

About VoiceAbility

VoiceAbility is an independent charity and one of the UK’s largest providers of advocacy and involvement services. We deliver a wide range of service contracts funded by local authorities, health trusts and other voluntary and private sector organisations. 

We’ve been supporting people to have their say in decisions about their health, care, and wellbeing for over 40 years. We make sure people are heard when it matters most.  For more information on what Advocacy is and the services offered then please visit our website.

Why Volunteer with VoiceAbility

Volunteering with VoiceAbility gives you the opportunity to make a meaningful difference in your community by helping others ensure their voices are heard and valued. The roles we offer are deeply rewarding and may challenge you in new ways. You’ll develop your communication skills, meet new people, and gain a greater understanding of others, while enjoying a sense of personal fulfilment along the way!

Whether you're looking to give back to your community, learn something new, or simply enjoy connecting with others, we’d love to have you on board!

Independent Visitor Volunteer

Our Independent Visitor Volunteers provide consistent and supportive relationships to children and young people in care, offering emotional support, companionship, and guidance through shared activities and time together.  The Independent Visitor plays a vital role in helping the young people build confidence and feel secure while enhancing their personal, social, and cultural development.

As an Independent Visitor Volunteer in England, you might:

• support the child/young person to experience enriching activities that contribute to their personal and cultural development 
• engage in activities such as pursuing hobbies, meeting for meals, or socialising in a community setting 
• listen to and support the young person, fostering a sense of safety and trust 
• help the young person develop social skills and increase their involvement in their community 
• develop a positive and lasting relationship, ensuring the young person feels valued and supported

You will need to be over 18 years old and be living in the UK. Please note that the Independent Visitor Volunteers generally volunteer at evening and weekends due to the children’s and young person’s availability.

Safeguarding Commitment Statement

VoiceAbility are committed to safeguarding all clients who access our services. All Volunteers will be required to undertake a DBS check at the appropriate level and provide contact details for a minimum of two referees in line with our safer recruitment practice.

ED&I Statement

VoiceAbility believes in fostering an inclusive workplace which welcomes, values and celebrates the diversity of its staff and partners, treats all on a basis of equality and encourages all to meet their maximum potential.

VoiceAbility are a Disability Confident employer, any applicant that identifies themselves as having a disability and can demonstrate that they meet all the essential criteria for the role will be offered an interview. If you need to apply in a different way, please contact the Volunteering team for further options.

To find out more click “Apply Now”. 

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. We are looking for a new Treasurer to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills. 

Endometriosis UK is the largest UK charity for those with endometriosis. Endometriosis UK works to:

• Provide support to those with endometriosis and their families and friends

• Provide clear, objective information about the condition and its treatments

• Raise awareness amongst health professionals and the general public about the condition

• Support research into endometriosis.

This is an unpaid role. Reasonable pre-agreed travel expenses will be paid.

Time commitment:

• Five meetings a year, including preparation for meetings, reading papers etc; and attendance at an annual strategy day and AGM (held on the same days as Board meetings).

• Trustees have the opportunity to take part in Board sub-groups and project groups to develop aspects of the organisations’ work. Current sub-groups include the Finance Committee and Diversity & Inclusion Sub-Group. Trustees are also invited to attend Endometriosis UK events.

We are recruiting for one new treasurer to join the board. We are particularly looking for:

• Personal or professional experience of diversity and inclusion issues

• Marketing and digital marketing

• Communications and social media

• Campaigning and achieving change

• Experience of working in Primary Care

• Charity finance experience

• Currently living in Northern Ireland, Scotland or Wales

Personal experience of living with, or having a close family member with, endometriosis, is vital on our Board. Whilst we look favourably on applications from those in the endometriosis community, we already have Trustees with first hand lived experience and new trustees do not need to have endometriosis. 

We also particularly welcome applications from trustees from a range of backgrounds and experiences as part of our commitment to diversity.

The role will start at a Board meeting on 28th November 2026, when our current Treasurer reaches the end of their 6-year term of office. Prior to the roles starting, the incoming Treasurer will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

The e-Assessment Association Ltd. (eAA) is seeking committed and experienced members to join its Board of Directors and help shape the future of e-assessment. 

Following the Association’s incorporation as a company limited by guarantee in 2025, the Board plays a critical role in providing strategic leadership, governance and oversight, ensuring the eAA continues to deliver positive impact for members and the wider assessment community. 

Three Director positions will become vacant in September 2026: 

• Two Ordinary Director roles, to be filled by Ordinary Members 

• One Organisational Director role, to be filled by an Organisational (Sponsor) Member. 

Directors are appointed for a three-year term, as part of the eAA’s annual rotation system, which balances continuity with fresh perspectives.

The Role of a Director 

Directors collectively support the delivery of the eAA’s objectives, including professional support for the sector, positive advocacy for technology in assessment, the development of good practice, and awareness-building across the global assessment community. 

The role involves: 

Always acting in the best interests of the Association 

• Contributing to Board discussions, decision-making and strategy 

• Providing constructive challenge and assurance 

• Contributing in practical ways where appropriate 

The expected time commitment is approximately 4–6 hours per month, including Board meetings and preparation. 

A Skills-Led Recruitment Approach 

The eAA Board operates on the principle of collective capability. No individual Director is expected to cover every skill or area of expertise. 

Recruitment is therefore skills-led and informed by the Board’s Skills Matrix, which identifies areas of strength, gaps and emerging risks at a collective level. Each recruitment round focuses on strengthening priority capability areas, ensuring the Board remains effective, balanced and future focused. 

Applicants are encouraged to be open and proportionate when describing their skills and experience, focusing on how they would complement the existing Board. 
 
How to Apply 

Applications and nominations are submitted via an online form.

• Depending on membership type: 
  Ordinary Members must be nominated by two other Ordinary Members
• Organisational Members may nominate an employee to apply as an Organisational Director   

The application form includes: 

• Background and eligibility information 
• A personal statement (up to 500 words) 
• A structured skills and experience section aligned to the Board Skills Matrix
• Availability and commitment information
• A high-level declaration of interests 

Key Dates 

• Nominations close: 26 June 2026 (12 noon GMT) 

• Interviews: 16 or 17 July 2026 

• Outcome announced: September 2026 

• Appointment start date: 25 September 2026 

Application process

All applications are reviewed by the Nominations Committee, which: 

1. Verifies eligibility and completeness 

2. Reviews applications against the agreed skills priorities 

3. Invites shortlisted candidates to meet a selection panel 

4. Takes up references 

5. Makes recommendations to the Board 

The Board makes the final appointment decisions, and all applicants are informed of the outcome.

JOB PURPOSE: We are seeking a passionate, creative, and community-driven Book Club Manager / Community Lead (Volunteer) to help build and grow a thought-provoking book club focused on awakening, education, critical thinking, and personal growth. This role involves developing the vision and structure of the book club, curating impactful reading materials, and creating a welcoming space where members can engage in meaningful discussions and self-reflection. The successful candidate will lead both online and offline sessions, organize engaging events, and foster a strong sense of community among members aged 16–35. The ideal volunteer is someone who enjoys bringing people together through ideas, conversations, and learning experiences, while encouraging intellectual curiosity and personal development.

About the role: The purpose of the Book Club Manager / Community Lead (Volunteer) role is to establish, manage, and grow an engaging and intellectually stimulating book club community that promotes education, awareness, personal development, and critical thinking. The role holder will be responsible for creating and implementing the club’s structure, coordinating discussions and events, curating impactful reading materials, and developing systems that enhance member participation and overall community experience. This position aims to create a safe, inclusive, and inspiring environment where members can explore new perspectives, challenge mainstream narratives, and build meaningful connections through shared learning and discussion.

Experience Qualification and Requirements

Experience running or managing book clubs, discussion groups, or community programs is a plus, but passionate and motivated individuals are encouraged to apply.
Strong organizational and event management skills.
Excellent communication and facilitation skills for leading discussions.
Knowledge of tools and platforms for virtual book clubs (Zoom, Discord, social media, event management platforms, etc.).
Ability to research, source, and recommend books that challenge mainstream narratives and promote critical thinking.
Passion for personal growth, education and community development.
Ability to engage members aged 16–35 and fosters a welcoming and intellectually stimulating environment

Main Responsibilities/ Key Duties

Develop and establish the structure of the book club, including mission, themes, and long-term goals.
Schedule and organize regular book club sessions, both online and offline.
Manage and moderate discussions to ensure engaging, respectful, and thought-provoking conversations.
Source, curate, and recommend books aligned with the club’s mission of awakening, education, and self-reflection.
Create and host events such as webinars, author talks, workshops, or live discussions.
Promote the book club through social media, community networks, and other channels to grow membership.
Develop systems and processes to streamline operations, track member engagement, and improve overall club experience.
Mentor and guide members on critical thinking, awareness, and personal growth.

We are looking for new volunteers who live in Hounslow, Richmond or Ealing boroughs who can take on a postcode area and deliver and collect our collection cans, and reseach and identify potential new can placement venues. Enthusiasm, local knowledge and good communication skills required.

This is based at our shop at 3a Northgate Centre (behind McDonalds), Heckmondwike WF16 9RL.

Role Purpose:

To assist our charity shop team(s) in raising the essential funds which allow us to continue supporting local children and their families.

Tasks & activities:

Supporting the day-to-day running of our charity shop, in which some of the activities may include:

• Handling and sorting donations
• Setting up attractive displays on the shop floor
• Providing friendly customer service on the till

Personal qualities & experience:

Previous experience of working in retail is useful, but not essential as full training will be provided.

For this role you will need to be:

• Friendly and enthusiastic
• Honest, reliable and have a willingness to learn

Benefits:
In return as one of our volunteers you will have the opportunity to:

• Be part of a friendly team (who love biscuits and a cuppa!) and meet new people to boost your mental health
• Choose your own hours so you can work when it suits you
• Receive a full induction with continued support to further grow your skills and confidence
• Build on personal development and have the option to undertake our Level 2 training

To telephone befriendees at their home for approximately 10 to 30 minutes, you will arrange the specific times of your future calls directly with them. These calls are intended to occur once a week, but individual needs will be matched with your availability.To provide a telephone conversation, a listening ear and chat about interests and hobbies, helping to alleviate loneliness and feelings of isolation. To provide companionship and human interaction at a time when this may be limited. To provide an update after each call to the Telephone Befriending support Team. This is so we can keep a track of the amount of befriending calls each volunteer is undertaking, the type of support being offered during these calls and if there is anything further required.

It is important to note telephone befriending is not counselling or therapy and other services must be sought if this is required.

Benefits

• FREE DBS.
• Discounted food.
• Store discount.
• Volunteer from home.
• Above all you will be making a positive difference in your befriendee’s life.
• As a volunteer telephone befriender, you will learn how to support others, make friends, become more confident, and practice communication skills.
• You will gain new and transferable skills. We offer support for you to increase your own job-readiness and personal development.
• Training opportunities,
• Volunteering experience
• Detailed references will be provided.

​

IKWRO is a registered charity which provides advice and support to Middle Eastern, North African and Afghan women and girls living in the UK, who have experienced, or are at risk of all forms of “honour” based abuse, including; forced marriage, child marriage and female genital mutilation (FGM), or domestic abuse.

We work with women and girls of all ages, including lesbian women, bisexual women and trans women. We offer services in Kurdish, Farsi, Arabic, Dari, Pashto, Turkish and English.

The overall role of a treasurer is to:

• Maintain an overview of the organisations’ affairs
• Ensuring its financial viability
• Ensuring that proper financial records and procedures are maintained.

General responsibilities

• To ensure that the organisation complies with its governing document, charity law, company law and any other relevant legislation or regulations.
• To ensure that the organisation pursues its objects as defined in its governing document.
• To ensure the organisation applies its resources exclusively in pursuance of its objects (the charity must not spend money on activities which are not included in its own objects, no matter how worthwhile or charitable those activities are).
• To contribute actively to the board of trustees' role in giving firm strategic direction to the organisation, setting overall policy, defining goals and setting targets and evaluating performance against agreed targets.
• To safeguard the good name and values of the organisation.
• To ensure the effective and efficient administration of the organisation.
• To ensure the financial stability of the organisation.
• To protect and manage the property of the charity and to ensure the proper investment of the charity's funds.
• If the charity employs staff, to appoint the chief executive officer and monitor his/her performance.

In addition to the above statutory duties, each trustee should use any specific skills, knowledge or experience they have to help the board of trustees reach sound decisions. This may involve:

• Scrutinizing board papers
• Leading discussions
• Focusing on key issues
• Providing guidance on new initiatives
• Other issues in which the trustee has special expertise

Additional duties of the treasurer

• Overseeing, approving and presenting budgets, accounts and financial statements
• Being assured that the financial resources of the organisation meet its present and future needs
• Ensuring that the charity has an appropriate reserves policy
• The preparation and presentation of financial reports to the board
• Ensuring that appropriate accounting procedures and controls are in place
• Liaising with any paid staff and volunteers about financial matters
• Advising on the financial implications of the organisation's strategic plans
• Ensuring that the charity has an appropriate investment policy
• Ensuring that there is no conflict between any investment held and the aims and objects of the charity
• Monitoring the organisation's investment activity and ensuring its consistency with the organisation's policies and legal responsibilities
• Ensuring equipment and assets are adequately maintained and insured
• Ensuring that the accounts are prepared and disclosed in the form required by funders and the relevant statutory bodies, e.g. The charity commission and/or the registrar of companies
• If external scrutiny of accounts is required, ensuring that the accounts are scrutinised in the manner required (independent examination or audit) and any recommendations are implemented
• Keeping the board informed about its financial duties and responsibilities
• Contributing to the fundraising strategy of the organisation
• Making a formal presentation of the accounts at the annual general meeting and drawing attention to important points in a coherent and easily understandable way
• Sitting on appraisal, recruitment and disciplinary panels as required

Treasurer person specification

• Commitment to the organisation
• Willingness to devote the necessary time and effort
• Strategic vision
• Good, independent judgment
• Ability to think creatively
• Willingness to speak their mind
• Understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship
• Ability to work effectively as a member of a team
• Nolan's seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty and leadership
• Financial qualifications and experience
• Some experience of charity finance, fundraising and pension schemes
• The skills to analyses proposals and examine their financial consequences
• Preparedness to make unpopular recommendations to the board
• Willingness to be available to staff for advice and enquiries on an ad hoc basis

Prison-based volunteers are the backbone of Fine Cell Work (FCW). Supported by the Fine Cell Work programmes team and by other staff at the FCW office, they teach and administer FCW stitching groups in prisons.

Prison volunteers work in teams to organise classes and teach our stitchers, as well as providing groups information to the prison and to the FCW office. The precise mix of skills will vary from prison to prison.

Volunteering in prison for Fine Cell Work requires ideally a good level of needlework skill (or a willingness to learn), some teaching experience and/or experience of working with socially-excluded groups. Volunteers must be patient and non-judgemental in order to work effectively. As a prison volunteer you will:

• Developing skills and confidence
• Teach prisoners to stitch FCW products within the framework of our training programme
• Encouraging and supporting prisoners to volunteer as class coordinators and peer mentors
• Encouraging and helping prisoners who wish to undertake their own creative projects
• Teaching prisoners to stitch FCW products within the framework of our training programme
• Encouraging and supporting prisoners to volunteer as class coordinators and peer mentors
• Encouraging and helping prisoners who wish to undertake their own creative projects

It is essential for volunteers to support FCW ethos, believe in rehabilitation, be an excellent teamworker, observe personal boundaries, be reliable and patient to ensure cell groups run smoothly, and have record-keeping skills and have at knowledge of tapestry/needlework. . 

Volunteers work in prisons around the UK dependant on where groups are based, therefore it is requred that volunteers will be able to travel to the relevant prisons. Travel expenses will be reimbursed by the charity. 

Please take some time to read the role description to find out more details about the role and what we offer to our volunteers.

At Fine Cell Work, we know diversity fosters creativity and innovation. We are committed to equality of opportunity, to being fair and inclusive, and to being a place where all belong. We therefore particularly encourage applications from candidates who are likely to be underrepresented in FCW’s workforce.

These include applicants from Black, Asian and minority ethnic backgrounds, people with disabilities, LGBTQI+, and male identifying applicants as these are currently under-represented in our volunteers groups.

Learning & Development Lead – VOLUNTEER ROLE

Remote | Approx. 4 hours per week | MINDSET Charity (UK)

Transforming men’s mental wellbeing through action, challenge, and real‑world connection

MINDSET is building a new kind of men’s mental wellbeing and personal growth movement in the UK — one that speaks the language men actually respond to: doing, belonging, challenge, and shared purpose. We’re not clinical. We’re not corporate. We’re not another “sit in a circle and talk about your feelings” model. We create experiences that help men grow, connect, and rebuild confidence from the inside out.

And now, we’re looking for a Learning & Development Lead to shape the knowledge, skills, and growth pathways that will power this national movement.

Why This Role Matters

Every programme we run — every breakthrough moment, every challenge completed, every man who reconnects with his confidence — depends on one thing: meaningful learning experiences.

Your work will shape how our volunteers, coaches, and programme participants learn, grow, and develop. You’ll be the architect behind the training, resources, and development frameworks that help our people thrive.

This is a founding role. You will build the learning culture and infrastructure that will support men across the UK for years to come.

What You’ll Lead

As our Learning & Development Lead, you will:

• Design and build MINDSET’s learning and development framework from the ground up

• Create simple, engaging training pathways for volunteers, coaches, and programme facilitators

• Develop resources, guides, and learning materials that support confidence, clarity, and growth

• Shape a learning culture rooted in belonging, purpose, and real‑world action

• Work closely with programme leads to understand training needs and build solutions

• Support the development of future programmes, challenges, and wellbeing experiences

• Help build a movement that changes the way men experience personal growth in this country

This role is remote, flexible, and designed for someone who wants to make a real impact in just a few hours each week.

Who This Role Is Perfect For

You’ll thrive in this role if you are:

• Someone who loves designing learning experiences that actually work in the real world

• Organised, creative, and able to turn ideas into simple, practical training materials

• Passionate about men’s wellbeing, personal growth, and community

• Excited by the idea of shaping a national movement from its earliest days

• A believer that learning should feel empowering, not overwhelming

You do not need charity experience. You do need heart, initiative, and a desire to help men live fuller, healthier lives.

What You’ll Be Part Of

MINDSET is creating a new narrative for men in the UK — one built on strength, connection, and growth. Your work will directly support the delivery of programmes such as:

• Our 12‑week Self‑Improvement Programme

• Our Life Coaching Programme

• Future activity‑based wellbeing programmes and challenges

You’ll be helping to build a movement that gives men the tools, confidence, and community they’ve been missing.

If you want to help build something bold, needed, and genuinely life‑changing…

We’d love to hear from you. Join us and help shape the learning culture at the heart of MINDSET.

WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.