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Remote
£54,000 per year
Full-time
Permanent
Job description

We have an opportunity for an experienced and motivated leader to join our Service Improvement & Transformation team. As a Programme Lead – Integrated Support, you will lead the development and delivery of integrated support models for people living with Motor Neurone Disease (MND).

As a Programme Lead, you bring expertise in project governance, stakeholder engagement and service improvement. You are confident managing risk, budgets and performance, and skilled at turning strategy into delivery. This Programme Lead role will see you coordinate interconnected projects, drive collaboration and ensure consistent, high-quality delivery across an ambitious programme.

This is a pivotal role at the heart of national transformation, where you will drive innovative approaches to service design, strengthen partnerships across health and care systems, and ensure that people affected by MND receive high-quality, coordinated support wherever they live.

Key Responsibilities 

  • Lead the planning and delivery of the Programme Lead – Integrated Support portfolio
  • Coordinate seven connected workstreams, ensuring alignment and quality
  • Develop and manage programme frameworks, governance and reporting
  • Drive progress across projects, managing risk and dependencies
  • Work with senior stakeholders to shape and deliver strategic priorities
  • Oversee timelines, budgets and outcomes across all activity
  • Promote inclusive collaboration with colleagues, volunteers and communities
  • Use data and insight to track performance and embed improvement

About You 

  • Proven experience as a Programme Lead or within a similar role
  • Strong project and programme leadership across multiple initiatives
  • Formal project management qualification (PRINCE2, APM or Agile)
  • Experience in service improvement and quality improvement methods
  • Strong stakeholder engagement, including senior leaders
  • Skilled in risk management, planning and delivery within budget
  • Analytical thinking with the ability to translate insight into action
  • Experience within health, charity or service-led organisations
  • Knowledge of integrated service delivery approaches
  • Experience developing sustainable programme frameworks

Further information about working for the MND Association and full job description is available in the attached Candidate Pack. 

This is a home-based role with travel requirements across England, Wales and Northern Ireland.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders. 

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements. 

What We Offer 

  • 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays 
  • Access to UK Healthcare, including dental, eyecare, health screenings, and therapies 
  • 24/7 GP access via phone and video 
  • Life assurance and confidential counselling helplines 
  • Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave) 
  • Access to Benefit Hub for discounts on everyday shopping 
  • Enhanced pension scheme 
  • Opportunities for training and personal development 

About Us 

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.   

Application resources
Organisation
MND Association View profile Organisation type Registered Charity Company size 101 - 500

We support people affected by Motor Neurone Disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

Posted on: 29 June 2026
Closing date: 13 July 2026 at 23:59
Job ref: MH1610249NorPLIS
Tags: Communications, Social Care / Development, Project Management, Business Development, Care Management, Operations, Compliance / Quality, CRM, Data Analysis, Delivery, Engagement / Outreach, Health / Medical, Information Management, Insights, Internal communication, Partnerships, Programme Management, Public Health, Governance / Management

The client requests no contact from agencies or media sales.