Community supporter care officer jobs in home based

About Child’s i Foundation

Child’s i Foundation is a small but mighty social impact organisation that started in Uganda and now has a growing global footprint. We work with communities, caregivers, and individuals with lived experience to co-create and scale sustainable alternatives to institutional care. We address the root causes of family separation and demonstrate that every child belongs in a safe and loving family, not in an orphanage.

Purpose of the Role

The Business Development Lead will play a critical role in driving the financial sustainability of Child’s i Foundation. This person will lead efforts to secure new income, grow existing partnerships, and strengthen supporter engagement. This role combines strategy and execution and is ideal for someone with a passion for social justice, a flair for building relationships, and experience in both fundraising and donor communications. The role will report into our Chief Executive Officer. 

Key Responsibilities
Business Development & Income Generation

• Develop and execute the fundraising and income generation strategy across diverse streams including:
  • ​Trusts and Foundations
  • Corporate Partnerships
  • Major Donors
  • Regular Giving
  • Campaigns and Events (UK & Uganda)
  • Track investment in partnership with Finance Manager
• Identify and cultivate new funding opportunities aligned with Child's i mission, values and strategic objectives. 
• Lead proposal writing, donor reporting and relationship management for high-value funders and partners.
• Work closely with the CEO and Board to unlock networks and steward strategic relationships

​Supporter Engagement & Communications

• Oversee supporter care and stewardship, ensuring timely acknowledgements and meaningful engagement.
• Manage and work with the comms team to develop content for digital fundraising platforms (website, social media, and email).
• Guide the comms team to develop compelling supporter journeys and storytelling that reflect the voices of communities we work with.
• Oversee the development of newsletters and donor communications that build long-term loyalty.

Operational Fundraising Management

• Oversee donation processing, database management, and tracking of fundraising KPIs.
• Coordinate with UK and Uganda teams to align messaging, campaigns, and compliance.
• Provide strategic oversight of volunteer-led and community fundraising initiatives.

Team Collaboration & Leadership

• Line manage junior fundraising support if applicable.
• Work collaboratively with programme, comms, finance, and impact teams to ensure donor requirements are met and learning is shared.
• Contribute to organisational learning on ethical fundraising, locally-led development, and shifting power to communities.

Person Specification

Essential

• Proven experience in business development and fundraising (minimum 3 years), ideally in the social impact or NGO sector. 
• Track record of securing income from trusts, foundations, or major donors.
• Excellent written and verbal communication skills, with the ability to craft compelling narratives.
• Strong relationship-building skills, from individual supporters to institutional donors.
• Organised, proactive, and adaptable, able to juggle multiple priorities in a small, fast-moving team.
• Commitment to Child’s i’s values and vision, and to ethical fundraising grounded in dignity and equity.

Desirable

• Experience working in East Africa or with Global South-led organisations.
• Familiarity and confidence with use of CRM systems. We use Beacon. 
• Understanding of child protection, care reform, or community development sectors.

What We Offer

• A chance to make a tangible difference in the lives of children and families.
• Flexible and supportive working environment.
• Opportunity to be part of a globally respected, locally rooted team shaping the future of child care in Africa and beyond
• 25 days of holiday entitlement 
• Contributory Pension

Normal office hours are 9:30am to 5:30pm (with one hour for lunch), but flexibility will be required

We are open to part-time working requests.

Who we are: Brake has been supporting victims of road carnage since 1995, and we're on a mission to prevent future collisions. Every 20 minutes, someone is killed or seriously injured on our roads, impacting lives profoundly.

Join our team: We are seeking a Service Delivery Lead to have operational oversight and responsibility for Brake’s National Road Victim Service (NRVS). Reporting to the Chief Operating Officer (COO) and working closely with the Senior Leadership Team (SLT), the role will focus on building strong foundations, fostering a positive team culture, and ensuring effective service delivery.

Not your average job: This role is an excellent opportunity to build on our current support offer as well as driving meaningful service improvement, and playing a key role in building a stronger, more effective team culture across the National Road Victim Service.

What we offer:

- A generous 35 days of annual leave (including bank holidays and 3-day shutdown period between Christmas and New Year, pro-rata for part-time working patterns)

- Birthday day off

- Enhanced sick pay and compassionate leave

- Death in service benefit

- Pension

- Employee Assistance Programme

- Flexible working

- A rewarding role with purpose

- Be part of a skilled, friendly team with an engaged Board of Trustees 

Who you are: An excellent communicator, with the ability to engage and inspire and a proven ability to get things done.  You will have strong, robust, and consistent leadership skills, and be capable of making sound judgments under pressure and ensuring timely resolutions.  Proven experience in managing or leading a team within a service delivery environment is a must as is experience in safeguarding, and managing risk, including clinical escalation and operational risk mitigation.

You will have a visible, approachable and supportive leadership style, combined with resilience and adaptability, a collaborative mindset and a commitment to Brake’s mission to support road victims and create safer roads for everyone.

Specifically seeking candidates with:

- Excellent communication skills

- Ability to delegate effectively

- Proven experience in managing or leading a team within a service delivery environment

- Competence in managing risk, including clinical escalation and operational risk mitigation

- Commitment to inclusivity, fairness, and promoting a culture of equality

- Competence in monitoring performance metrics and reporting outcomes to senior leadership

- A full, clean UK driving licence (if you are a driver)

- competent IT skills for remote work

Join our mission: Your greatest reward will be knowing you've made a positive difference in someone's recovery from psychological trauma.

About us: Brake is passionate about creating an inclusive workplace that values diversity. We welcome your application whatever your background or situation. We particularly welcome applications from those who are part of the global majority, the LGBTQIA+ community or disabled. We are proud to be a disability confident employer. We don’t want you to ‘fit’ our culture, we want you to enrich it. So, if you have a passion for making a difference and share in our vision for a world where no one is killed on our roads, we would love to hear from you.

Apply now: If you're up for a new challenge and have the skills, read our full job descriptions and apply now.

Not for traffic offenders: Due to the nature of our work we can't accept applications from traffic offenders. Candidates will be asked to disclose whether they have any unspent points on their licence at interview.

A DBS check is required due to the sensitive nature of our service.

Join us today and be part of the solution! 

Position title: Health and Wellbeing Lead

Reports to: Head of Shed Development and Sustainability

Direct reports: None currently

Location: Remote (with regular travel)

Key stakeholders: UKMSA Volunteers, Sheds and Shedders, Head of Shed Development and Sustainability and team, Head of Volunteering

Salary: Level 3 – £30,000-£35,000

As Health and Wellbeing Lead, the purpose of your role will be to work with volunteers and colleagues to support Sheds and Shed Networks to improve men’s health and wellbeing across the UK. This work is within the context of informal, peer-led, self-determined spaces, where the emphasis is on activity not health prevention, which suits many men and works well for them.

This role involves engaging directly with Sheds and Shed Networks, supporting them to foster partnerships with local health and social care organisations, as well as supporting local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.

You will work with volunteers, colleagues and external experts to gather and share accurate, accessible and relevant resources, information and case studies related to men’s health and wellbeing with Sheds and Shed Networks. This will include developing and engaging with digital health tools, information and training, as well as taking an empowering and capacity building ‘train the trainer’ approach to the design and delivery of all training and workshops related to men’s health and wellbeing.

You will work closely with the Head of Volunteering to support volunteers to promote the role of Men’s Sheds in preventative and community-based health locally and will work with colleagues to support volunteers to actively contribute to promoting the role of Men’s Sheds in preventative and community-based health at a national level. 

You’ll be the main contact for volunteers, Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing.

Key responsibilities:

1. Sheds and Shed Networks

· Be the main point of contact for all Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing – ensuring you are approachable, responsive and consistent.

· Empower volunteers and colleagues to support Sheds and Shed Networks to foster partnerships with local health and social care organisations.

· Empower volunteers, colleagues and the wider Shed community to support local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.

2. Information and resources

· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to continuously gather, develop and update relevant resources, information and case studies related to men’s health and wellbeing. Regularly share clear and accessible information and resources with Sheds and Shed Networks.

· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to build knowledge and understanding of relevant organisations and services related to men’s health and wellbeing. Regularly share clear and accessible information about organisations and services with Sheds and Shed Networks.

· Work with Sheds and volunteers to gather case studies and develop resources highlighting Sheds that demonstrate innovation and best practice in the field of health and wellbeing.

3. Training and workshops

· Work with volunteers, colleagues and external partners to develop an empowering train the trainer model to enable Shed Leaders and Shedders to plan, deliver and evaluate training and workshops related to men’s health and wellbeing.

· Work with volunteers, colleagues and external partners to co-design and deliver training and workshops related to men’s health and wellbeing at UKMSA events.

· Support peer-to-peer learning amongst Sheds and Shed Networks through regional events, online forums, and learning networks.

4. Digital health and wellbeing

· Work with volunteers and colleagues to test and empower Sheds and Shed Networks to use digital platforms for hybrid training, remote participation, or digital inclusion efforts.

• Work with volunteers and colleagues to utilise and adapt data tools (e.g. CRM, health analytics and dashboards) for monitoring health and wellbeing related outcomes and for reporting impact.

5. Monitoring and Reporting

· Work with volunteers, Sheds and Shed Networks to collect and report data in relation to men’s health and wellbeing to demonstrate the role and impact of Men’s Sheds in preventative and community-based health.

· Work with volunteers, colleagues, Sheds and Shed Networks to contribute to relevant evaluation and research projects relating to Sheds and men’s health and wellbeing.

6. Stakeholder Engagement

• Work with volunteers to build relationships with local and regional health, community, and voluntary sector organisations.
• Represent UKMSA at relevant networks, events, and conferences.
• Contribute to the planning and delivery of the annual Shedfest and other key events, coordinating and supporting volunteer involvement in relation to men’s health and wellbeing.
• Work with colleagues, including the CEO, to build effective working partnerships across the UK men’s health sector  

Key expertise required:

• Knowledge, skills and experience in men’s health and wellbeing.
• Some knowledge of how to effectively improve men’s health and wellbeing in the Shedding context, and a willingness and interest in working with volunteers to develop and share expertise in this area.
• An understanding of the importance of taking an empowering train the trainer approach to planning, delivering and evaluating training and workshops related to men’s health and wellbeing.
• Ability to build relationships with local and regional health, community, and voluntary sector organisations, and to support others to do so.
• Skilled at actively collaborating with volunteers and subject matter experts.
• Confident communicator - able to build rapport, deliver training, and manage sensitive conversations.

· Strong relationship builder - able to connect with people, build trust and maintain long term engagement.

· Willing, able and confident to travel to meet volunteers and attend Shed events regularly.

· Confident working with data and systems - including CRM tools and digital tools.

· Proactive and creative - always looking for ways to improve how things are done.

· Self-motivated and able to manage your own workload without needing close supervision.

· An understanding of the nuances and limitations of how Sheds can support health and wellbeing

What success looks like:

• Strong, collaborative relationships established between Sheds, Shed Networks and local health and community partners.
• Demonstrable improvements in the health and wellbeing of Shedders through supported activities and case studies.
• Volunteers, Sheds and Shed Networks feel empowered and equipped to deliver activities that support mental and physical health.
• Health and care organisations view Men’s Sheds as trusted, valuable partners in preventative health and social prescribing pathways.
• Resources, training, and support materials are well-received, practical, and widely adopted in Sheds and across Shed Networks.
• Clear and impactful reporting informs and supports UKMSA’s work at a national level.

This job is not:

• An expert, clinical or therapeutic health role—you will not be expected to deliver personal care, therapy, or counselling.
• Solely office-based or desk-bound—this is a varied, outreach-focused role that involves relationship-building, travel, and hands-on support.
• Focused only on one region—this is a national role, requiring awareness of regional variations across the UK.
• A short-term fixer—you’ll be building capacity and confidence in communities for long-term sustainability, not quick fixes or prescriptive solutions.

This job description is intended to outline the general responsibilities and expectations of the role. It may be reviewed and updated as the organisation evolves, and from time to time you may be asked to take on other reasonable tasks that fall outside this scope - we’re a small team, and flexibility is part of how we work.

Closing date: 9th October 1200 hrs
Interview: 17th October

Membership Manager

This is an exciting opportunity to join an ambitious and talented Development team

We are looking for an experienced Membership Manager to join our small and friendly Development team (Fundraising and Membership) and drive our strategy for Membership. With a healthy existing membership base of nearly 15,000, and a database of 100,000 registrants, this role will support the Head of Development in delivering the best possible membership offer for families in the Twins Trust community. You will be supported by a Membership Officer to continually evaluate and improve our membership proposition, giving members a brilliant experience and ensuring we can secure sustainable income for the charity.

Contract: Permanent
Hours: Four-five days per week (30 - 37 hours) Negotiable for the right candidate
Flexibility: We are a flexible employer and most of our staff are juggling things (including caring for multiples!). We are great at making jobs work around life.
Salary: £35k - £37k pro rata
Reports to: Head of Development 
Work location: Hybrid/remote. Office space in London Bridge, although entirely remote option is fine.
How to apply: CV and covering letter
Closing date: 8th October 2025
Interview dates: First-round interviews will be virtual and take place in September/October on a rolling basis

Purpose of the role

• Accountable for Twins Trust’s annual membership income, delivering a high-quality membership journey through all phases of membership
• Work closely with our Communications Team to develop and implement strategies to attract new members, and lead on retention plans to maximise member satisfaction and loyalty
• Line manage a Membership Officer, guiding them to provide excellent customer service to Twins Trust's members, process all membership income and maintain membership information on the database, Microsoft Dynamics
• Ensure membership processes – including processing income - are efficient, effective and implemented consistently
• Draw intelligence from our membership database, using surveys and analysing data to inform decisions that keep our membership offer fresh and relevant
• Champion the member voice internally, bringing together working groups to continuously improve our offer and ensure members’ needs are reflected in service delivery
• Collaborate with the Comms team to deliver our membership offer on our digital platforms and explore ways to harness technology to deliver what our members want and need in the long term

Ideal candidate

The ideal candidate will have experience in creating and delivering a membership strategy as well as managing the operational aspects of membership processing (database, compliance with codes of practice, data protection and BACS regulations). They should have excellent attention to detail, the ability to think creatively and analytically, excellent digital skills and IT skills, and a can-do attitude.

Person specification

Essential

• Experience of delivering and marketing membership schemes
• Working understanding of admin processes relating to membership
• Ability to influence senior stakeholders and internal colleagues
• Experience working in a CRM and analysing data to inform decision-making, Microsoft Dynamics experience a plus
• Excellent communications skills and attention to detail
• A creative and analytical approach to problem solving
• Strong IT skills, including advanced Excel.
• Enthusiasm for the issues we work on

Desirable

• Experience working with online payment/donation platforms, extracting and manipulating data.
• Experience of working with discount providers
• Knowledge of GDPR compliance and data protection
• Experience of creating a strategy around membership schemes
• Line management experience​

WDC’s Games For Waves initiative engages the gaming and streaming communities to raise funds and awareness for whale, dolphin and ocean conservation. The Influencer Lead will help drive this mission by developing strategic digital fundraising events, managing relationships with creators and influencers, and creating impactful content.

Trusts and Foundations Fundraiser 

We are seeking a motivated Trusts and Foundations Fundraiser to secure vital income and build strong partnerships with funders across the UK.

Salary: £30,000 per annum (pro rata for part time hours)
Location: Remote, UK wide
Hours: 30 – 37.5 hours per week (permanent)
 

About the role

As Trusts and Foundations Fundraiser, you will play a key role in generating income to support our mission of sharing the joy of live music in care settings. You will manage a portfolio of small and medium value trusts and foundations, writing compelling funding proposals and delivering excellent stewardship to strengthen long-term relationships.

Overview of the Job:

• Preparing tailored applications to trusts and foundations in line with organisational strategy and values.
• Managing and developing relationships with funders, providing regular updates and impact reports.
• Undertaking prospect research to identify new funding opportunities.
• Supporting larger-scale applications in collaboration with the Trusts and Foundations Fundraising Manager.
• Working with internal teams to gather data, acknowledge donations, and ensure accurate reporting.
• Contributing to the strategic planning and stewardship approach for trust fundraising.

This is a fantastic opportunity to make a real difference by helping to grow sustainable income that brings music to people in all care settings around the UK.

About you

You will be an enthusiastic fundraiser with excellent written communication skills and an eye for detail. You will be confident in writing creative, persuasive proposals and tailoring them to funders’ priorities. Organised and proactive, you will enjoy building strong relationships and managing multiple deadlines.

Essential skills and experience:

• Proven experience of generating income through trusts, foundations, grants or sponsorship proposals.
• Strong written and verbal communication skills, with the ability to produce clear and engaging content.
• Excellent organisational skills, able to work independently and as part of a team.
• IT proficiency, including MS Office.

Desirable:

• Experience using CRM databases.
• Financial acumen, with knowledge of preparing budgets.
• Strong research skills for identifying potential funders.

Other roles you may have experience of could include: Grants Fundraiser, Fundraising Officer, Trust Fundraiser, Development Officer, Partnerships Officer, Bid Writer, Income Generation Officer

Shape the future of the voice of the rare condition community.

Genetic Alliance UK is looking for an exceptional Director of Engagement and Impact to transform how we connect with our 220+ member organisations, communicate our mission, and foster a thriving, supportive team culture.

If you’re a strategic leader with a gift for building relationships, crafting compelling messages, and creating positive change, this is your opportunity to make a lasting difference for the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. 

Director of Engagement and Impact
Salary: £55,167 – £63,654 (with new starters usually starting at the lower end of the range)
Location: Home-based, UK (occasional travel required)
Contract: Permanent, full-time (35 hours per week) with applications for up to 28 hours per week considered.
Closing date: 09:00 on Monday 22 Sept 2025 

About Genetic Alliance UK
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, bringing together patient voices to campaign for timely diagnosis, better care, and improved access to treatments. We host Rare Disease UK and SWAN UK, and lead national activity for Rare Disease Day.

About the role
This is a new senior leadership position designed to strengthen our membership engagement, amplify our communications impact, and support a positive, collaborative working culture.

As part of our Senior Management Team, you will:

• Lead and develop our approach to engaging and supporting our diverse membership.

• Provide strategic oversight for all communications, ensuring our messages are clear, consistent and impactful across multiple audiences.

• Champion and embed systems for staff performance, development and wellbeing, ensuring our culture is inclusive, supportive, and sustainable.

You will oversee the Head of Membership and Communications, the Communications and Engagement Manager (SWAN UK), and two new posts (Communications Officer and Project Support Officer). You will also provide operational oversight of SWAN UK, and work closely with the Policy, Public Affairs and Research teams to maximise impact.

About you
We are looking for a strategic leader who combines a talent for building relationships with outstanding communication skills. You will bring experience of leading teams, delivering organisational change, and working effectively with diverse stakeholders. You will be comfortable navigating the needs of a membership organisation, and passionate about making a tangible difference for people living with rare conditions.

What we offer

• Generous pension (5% employer, 3% employee)

• 25 days annual leave plus bank holidays and full office closure over Christmas/New Year

• Flexible, home-based working with occasional UK travel. 

• The opportunity to lead work that has a direct and lasting impact for people affected by rare conditions

Head of Internal Audit

We’re looking for an enthusiastic and motivated individual to join the team as the internal auditor.

Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.

Position: SIT60 Head of Internal Audit

Location: Home-based. However, occasional travel will be required as part of this role (may include team meetings or other work-related meetings)

Salary: Circa £33,500 (FTE circa £51k) (inner London weighting £2,595 pro rata or outer London weighting £1,495 pro rata may be applied in accordance with where you live)

Hours: Part-time, 23 hours per week

Contract: Permanent

Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.

Closing Date: 10 October 2025. We reserve the right to close this vacancy early if we receive sufficient applications for the role.

Interview Date: 21 October 2025. Depending on the outcome a second interview may be arranged.

Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.

The Role

The role reports to the Associate Director of Legal and Governance, with an independent reporting line to the Chair of the Finance Committee.

The role will provide a comprehensive programme of internal audits into the activities of our charity and will report to our Finance Committee with recommendations for improvement. This is a crucial role in safeguarding the charity’s assets and reputation.

Key responsibilities will include:

• To establish effective and robust operational and strategic Internal Audit plans for the Charity and to report on progress of the plan
• To carry out the Internal Audits within the Internal Audit Plan, within the agreed timetable and budget shown in the Plan, to report on them, to present them to Board and Committee meetings and to monitor progress.
• To liaise with externally sourced providers of internal audit services in support of the role and for conducting internal audits into specialist areas of activity of the charity (such as IT arrangements).
• To maintain a strong working relationship with the Finance Committee, its Chair and the Chief Executive and to act as a Business Partner to all Executive Directors in relation to internal audit.
• To contribute to the Charity’s efforts to avoid fraud, including by advising on new policies and to lead on fraud investigations where appropriate
• To ensure a joined-up approach to both the external and internal audit work, minimising duplication and feeding into the external audit risk assessment.
• To liaise effectively with colleagues to ensure any potential new financial systems have adequate consideration of internal controls.
• To keep up to date with Internal Audit practice and developments and advise the Charity in relation to internal audit matters.

About You

You will have:

• A qualification in internal audit or accounting (e.g. CIA, MIIA, AAT, ACCA, CIMA) as a minimum.
• A good knowledge of how charities operate and their main processes including Finance, HR, Fundraising and CRM systems.
• An in-depth knowledge of risk based internal auditing techniques, including testing and sampling methodologies.
• A good understanding of charity related compliance requirements, and appropriate counter-fraud measures and risk management processes
• An ability to act with authority and provide an independent voice on internal audit matters affecting the charity.

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role.

Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience. Please state any preferences for flexible options in your covering letter. Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.

Finding strength through support

The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of supporters and donors that they can provide vital support. 

The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.

The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.

A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work. The charity has a variety of staff network groups and are committed to continuously improving diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

You may also have experience in areas such as Auditor, Lead Auditor, Head Auditor, Head of Internal Audit, Head of Internal Auditing, Director of Internal Audit, Director of of Internal Audit, Internal Auditing Director, Internal Audit Director, Senior Auditor, CIA, MIIA, AAT, ACCA, CIMA. #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.

UK-based/ Colchester or Home-based with monthly travel to Colchester office. Overseas travel with trips lasting from 10-14 days. 

This post requires the candidates to have independent rights to live and work in the UK

Background

Lepra is dedicated to addressing leprosy and lymphatic filariasis (LF) and their consequences through direct support, advocacy, and the promotion of inclusive communities. We work in Bangladesh and in India, through our sister organisation, LEPRA Society. We work in partnership with people affected by leprosy and LF to improve detection, ensure access to treatment and care, and promote inclusion and wellbeing. Last year we finalised our new Global Strategy for 2024-30, which will guide us in our efforts to accelerate progress towards global targets for leprosy and LF, and towards our vision of a world free from leprosy and LF.

Job Context

Our Global Strategy marks a significant evolution in our organisational direction, introducing innovative approaches and renewed priorities. This includes our first-ever global Theory of Change (ToC), our most comprehensive Monitoring, Evaluation, Accountability and Learning (MEAL) framework to date, a Research and Innovation strategy, and a dedicated Advocacy sub-strategy to guide our influencing efforts.

With the Lepra Advocacy Strategy, we will be working over the next 6 years to strengthen our approaches to our advocacy efforts. The post holder will play a key role in supporting the roll out of the Advocacy strategy working closely with the Director of Programmes and Advocacy, the Head of Research, the Senior Programme Manager, the Programme Officer and the teams where we work.

Job Purpose

This role is an exciting role within the programmes team in response to evolving needs. The incoming post holder will work within the 5 person UK’s Programme and Advocacy team and will drive, advise and support the team in relation to Lepra’s advocacy profile. We are looking for an enthusiastic, motivated, strategic and creative person who has outstanding skills to engage and work with a diverse team. We are looking for someone to work with a clear strategy and then develop, grow and successfully shape the future of Lepra’s advocacy efforts.

Working Relationships

Reports to Lepra UK’s Director of Programmes and Advocacy (DPA)

Works closely with the Programmes and Advocacy Team

Close working links with colleagues in India and in Bangladesh and the UK’s communications team

International travel as needed for programmes oversight and support, and external representation.

Key responsibilities

Advocacy Delivery (50%)

Under the supervision of the DPA implement Lepra’s global Advocacy strategy and coordinate advocacy initiatives.

Serve as the driver of advocacy efforts, facilitating the transitional year of implementation including coordinating the Advocacy Steering Group; advocacy toolkit development; action planning.

Represent Lepra in specific fora and advocacy networks and within the broader leprosy and NTD community in close coordination with the DPA.

Produce quarterly advocacy newsletters

Maintain quarterly reports on flagging areas of concern and actioning steering committee advice.

Assist in the preparation of policy documents and the presentation of papers for publication, conferences, or specific institutions and/or individuals - identifying and targeting the most appropriate audiences.

Support and contribute to the development and implementation of initiatives that foster an inclusive, equitable, and diverse environment across organisational programmes, policies, and advocacy efforts.

Support and contribute to initiatives that promote inclusion and equity, with a strong focus on developing the leadership and advocacy capacity of people with lived experience of leprosy, ensuring their voices are central in decision-making and programme design.

Knowledge management / Learning and Development (20%)

Support the preparation of Lepra advocacy and policy documents.

Disseminate knowledge so that it is integrated into Lepra’s portfolio to amplify the impact for target audiences and improve their outcomes.

Facilitate the new knowledge and learning hub and forge a clear path for its evolution.

Facilitate knowledge sharing through updating the communications team with relevant materials for the new programme folder on the website.

Organise and develop advocacy training.

Develop and take ownership of the new programme’ s team knowledge sharing approaches.

Develop a workplan of knowledge sharing events. 

Support annual review meetings.

Communications (10%)

Assist the programmes team with the documentation of Lepra examples and models of best practice, at the same time identifying and developing mechanisms and avenues for the effective dissemination of this knowledge – internally and externally.

Assist the programmes team, DPO, Chief Executive and Country Programme staff in the synthesis of complex technical/scientific information adapting it to language and formats easily used by target audiences.

Contribute to content development of community engagement materials (public information, brochures, leaflets) that help explain the operations and impact of Lepra’s work to LF and/or leprosy affected communities.

Maintain good working links with Lepra’s UK Fundraising and Communications Team, contributing towards UK facing communications materials as and when required.

Prepare updates, papers, and reports for trustee meetings, funding partners, and wherever else applicable.

External representation (10%)

Support the Chief Executive, DPA and programmes team to maintain and expand existing strategic relationships with key international stakeholders to further Lepra’s advocacy strategy and advance Lepra’s agenda.

Ensure Lepra’s external profile is raised and become the go-to organisation for the leprosy community in terms of advocacy and policy briefings.

Support the preparation of documents for presentation, publication or dissemination at international fora.

Develop/support the development of country specific briefing notes/press kits with the communications team.

Represent Lepra at key events, conferences, and meetings to enhance our visibility and opportunity for impact.

Safeguarding (5%)

Promote a culture of respect, transparency, and accountability within Lepra’s implemented projects.

Ensuring that safeguarding mechanisms are in place and remain at the heart of all activities.

Support the integration of strong safeguarding and PSEA practices into project design and delivery.

Monitoring, evaluation, and impact (5%)

Ensure that all advocacy and knowledge transfer efforts are captured and embedded in appropriate results frameworks, objectives, outputs, indicators and Key Performance Indicators (KPIs). Provide inputs to Lepra’s reports, according to Lepra’s needs.

Person Specification

Qualifications

Essential

Relevant degree level of education in Public Health, Social Sciences, Global Health, Human Rights, Political Sciences or equivalent experience.

Desirable

Relevant post-graduate qualification

Relevant professional health-related qualification

Knowledge and Experience

Essential

Minimum of 2 yrs experience of advocacy/campaigning/policy work with an overseas development organisation

Experience of working to advance the rights of excluded populations

Extensive knowledge of global health issues and an up-to-date familiarity with issues and practice in the international development sector

Experience in planning and implementing successful strategies/campaigns/advocacy in Asia.

Experience in programme/project planning, budgeting, M&E and reporting, within a non-governmental organisation, including the preparation of reports for institutional donors.

Ability to analyse and act on data.

Experience of working on issues in relation to disability, mental health, gender, human rights and social inclusion.

Experience in project coordination and management.

Desirable

At least two years’ experience as an advocacy manager, preferably gained with an overseas development organisation or in academia, in a similar health focused role.

Familiarity with data visualisation tools and packages.

Proficiency in one or more Indian languages (e.g., Hindi, Tamil, Bengali, Telugu, etc.) is an asset.

Skills, Attitudes and Personal Qualities

Highly motivated individual with excellent interpersonal and communication skills, both written and verbal to build strong relationships, negotiate and persuade a wide range of audiences, with confidence at presenting and representing.

Proven strength in both written and verbal communication

Able to reach, network with and communicate to a wide range of stakeholders and potential stakeholders.

Excellent attention to detail, and organisational and time management skills

Ability to manipulate and analyse data to draw useful conclusions to improve programme delivery.

Ability to use databases, Word, excel, PowerPoint and other Office packages

Ability to work independently, be flexible and prioritise workload.

Ability to travel within the UK and overseas.

The right to work in the UK.

We operate a non-bias recruitment process and run our job advertisements through anonymous recruitment methods.

We offer a lot of flexibility in working practices and there is free reserved parking available at our Colchester office. We also offer 26 days annual leave plus public holidays (pro-rated), pension, Employee Assistance Programme and support from an in-house well-being team.

Only shortlisted candidates will be contacted and invited for interview. Please check your email inbox and spam/junk mail folder for any email correspondence for this vacancy.

If you require any reasonable considerations such as access or information in an alternative format, please inform us soon as you are able so that we can make the appropriate adjustments.

Please do not use AI to help you write cover letters, CVs and responses to any screening questions.  We want to hear your original voice.