Family engagement manager jobs

FEMALE ONLY RESIDENTIAL REHAB | OXFORD BASE | TRAVEL MAY BE REQUIRED AT TIMES

Phoenix Futures are the leading provider of residential rehabilitation services in the UK. As part of our continued development of capacity and specialism in the sector, we are recruiting for a rehab in Oxfordshire, as a specialist female-only, trauma-responsive Therapeutic Community.

About you

We are looking for an exceptional individual to provide leadership to this new female-only service.

You will be understanding and passionate about the needs of women, have knowledge of the practical, emotional, social and economic issues facing them, have experience of and a desire to work in trauma responsive settings, and evidence experience of developing and shaping innovative services.

See a virtual tour of the brand new service here

This role will be the CQC Registered Manager for a women’s-only residential service specialising in providing safe therapeutic environments for those who have experienced multiple disadvantage and those who have experienced past trauma. Therefore there is an Operational Requirement for this role to be fulfilled by a female (determined compliant under ACAS guidelines for recruiting applicants with a protected characteristic to do a certain job).[1]

The role

This role is an operational manager post that requires securing registration with the Care Quality Commission as an individual, and the continued management of a service also registered with the CQC.  

You will report to one of five Heads of Operations across the UK who report to the Director of Operations, and you will provide leadership and management to deputy managers (who in turn will manage the staff teams) and a nurse. This role is the figurehead of the service on-site, and balances the ongoing service provision with regulatory compliance and stakeholder engagement.

Phase one is now complete, the building has been completely refurbished to a high specification and has since opened in Autumn 2023.

Following the launch, this role will be the CQC Registered Manager for this service, with overall responsibility for it, including the programme provided, the staffing, the environment and the care and safety provided to residents.

* If you're applying from outside the area, we're happy to discuss relocation support.

The organisation

Phoenix Futures has been providing rehabilitation services for over 50 years. In support of the current Drug Strategy in England (From Harm to Hope) and the investment in residential services in Scotland, Phoenix are committed to rebuilding capacity across both countries in the residential rehab sector. In 2022/23 we launched two new residential services (Oakwood Lodge, an Enhanced Therapeutic Community in Derby, and Harper House, a National Specialist Family Service in North Ayrshire), and continue to identify further opportunities to increase provision.

The Ley Community began delivering a Therapeutic Community from its site in Yarnton in 1971 and established a well-regarded service up to its temporary closure in 2019. Joining the Phoenix Group has secured the additional investment needed to redevelop, and join the largest portfolio of residential services in the country. Responding to feedback from across referrers and those who use our services, the new service on this site will provide for women in need of a female-only space to safely and comfortably engage in treatment in a residential setting. Phoenix has a history of providing specialist services, including the CQC-rated Outstanding Grace House, a female-only rehab previously located in Camden. We take the history of both organisations forward into this development and will open later this year with great expectation. You will be key to achieving this, and the ongoing successes of this service.

Your Rewards 

• Salary of £50,500 with potential performance related pay bonus of 7.5%
• 25 days’ annual leave plus Bank Holidays with option to buy/sell (increasing each year to a maximum of 30 days) 
• Benefits including season ticket loan, pension scheme and life assurance 
• Support through occupational sick pay, eye-care vouchers and regular wellbeing activities
• Continuous training and career development via PXL our dedicated learning management system  
• Access to a 24/7 Employee Assistance programme including telephone and online access 
• A rewarding role with the opportunity to help us support people on their journey to recovery and change their lives for the better. 
• We’ll ensure you get all the support you need to thrive and succeed in your role and find your place amongst our incredible and collaborative team. 

Please note, we will be assessing applications as they are submitted and may close this role should we find sufficient applicants with which to make our shortlist. As such, we would advise applying as soon as possible to avoid disappointment.

[1] Using protected characteristics in recruitment: Recruitment: hiring someone - Acas

About Us

The Victoria League for Commonwealth Friendship is one of the four Loyal Societies supported by His Majesty The King and has been promoting friendship and hospitality across Commonwealth nations since 1901. We remain committed to our founding belief that education, in its broadest sense, is the foundation of human development.

Currently, we are proud to offer Commonwealth students the opportunity to become part of a Commonwealth family, whose values are decency, respect for others, understanding, tolerance, integrity and partnership. 

One of our key priorities is to provide a vibrant student house for young Commonwealth students to live in when attending a university or college in London, to make lifelong friends and to learn from each other in a safe and secure environment. The Victoria League Student House is an affordable 'home away from home' whilst studying in London.

About the Role

As General Manager, you will play a central role in leading and developing the work of The Victoria League for Commonwealth Friendship, raising its profile and ensuring its long-term sustainability. You will oversee the overall management of the charity, alongside the effective operation of the Victoria League Student House.

This is a broad and hands-on leadership position, combining strategic development with day-to-day operational oversight. You will drive key fundraising initiatives and business development opportunities, as well as support the House Manager and their team, and the Membership and Administration Officer.

Key Responsibilities

• Lead the development and growth of the charity
• Drive fundraising and build partnerships
• Oversee the day-to-day operations of the Student House
• Support and manage staff
• Ensure effective financial management and governance
• Promote the charity through events, communications, and stakeholder engagement
• Oversee property management and health and safety for the Student House.

Please see attached the full Job Description and Person Specification.

This is an exciting opportunity for an Assistant Community Shop Manager to play a key role in supporting the successful operation and growth of our Hythe Community Shop. You will help drive commercial performance, nurture strong local community relationships, and create a welcoming, motivating environment for volunteers and customers alike. This role offers the chance to shape the shop’s impact, develop your retail and people‑leadership skills, and contribute to the wider mission and values of Family Action.

Community Shop Manager
 

Service: Relate at Family Action
Location: Warwick
Hours: 37.5 hours per week (full-time)
Salary: £13.72 per hour
Contract type: Permanent

We are looking for a talented Community Shop Manager who is an enthusiastic self-starter, with a passion for charity retail, to manage our Warwick shop on a full time (37.5 hours per week) basis.

Who we are
Relate is a leading relationships service, offering counselling, information, mediation and support to individuals, couples and families from all backgrounds and sexualities, at all stages of life. We also provide expert training for relationship support practitioners.

Relate is now part of the family charity, Family Action. Supporting people through change, challenge or crisis, we protect children, support young people and adults, and offer direct, practical help to families and communities. It’s what we’ve done for over 150 years. We see first-hand the power of family to shape lives, for better or worse, so we speak up for the importance of family in national and local policymaking, amplify family voices and represent the changing needs of families in the UK today. With Relate at Family Action, we work to support the creation of secure foundations for children and young people, and safe, supportive relationships for all.

We currently manage 11 shops located within 5 regions across the UK. Our shops generate income to support the work of Relate. The shops are managed by paid Community Shop Managers, supported by Assistant Community Shop Managers/Retail Assistants and our amazing Shop Volunteers.

What are we looking for?

• Charity retail experience preferred
• Experience of customer care
• High levels of organisational skills
• Highly focussed on maximising sales
• An eye for detail
• A sound track record in achieving targets and delivering success

You will be responsible for the creation of a warm and welcoming environment for customers, volunteers and donors, with a view to maximising sales, profits and Gift Aid to support the work of Relate at Family Action.

The successful applicant will be required to work flexibly for 37.5 hours each week (5 days per week including Weekends) across a 7 day trading week, Monday to Sunday.

What will we offer you?
We offer flexible working hours, a generous pension scheme and leave entitlements, eye care vouchers, a cycle to work scheme and other great benefits. We have an excellent wellbeing offer and we will invest in your professional development with on-going quality training and career development opportunities. We have six staff diversity networks that offer peer support and contribute to the strategic development of EDI; Accessibility Network, Anti-Racism and People of Colour Network, Gender Equality Network, Inter-Faith Network, LGBTQIA+ Equality Network and Parents and Carers Equality Network. You’ll join an established, supportive and high-performing service and have the opportunity to thrive in an innovative organisation that values your opinion, encourages learning and has the needs of children and families at its core.

Our commitment to Equality, Diversity & Inclusion:
We are committed to Equality, Diversity & Inclusion in all that we do and welcome applications from all sections of the community / particularly welcome applications from Black, Asian and minority ethnic candidates, LGBTQ+ candidates and candidates with disabilities because we are committed to increasing the representation of these groups at Family Action. We know that greater diversity will lead to even greater results for families and children and strive for our workforce to be truly representative of the diverse communities we support.

All candidates with a disability are welcome to apply under the Disability Confident Scheme and request priority consideration for an interview, provided they meet the essential criteria for the role.
To help remove financial barriers to working with us, we will reimburse travel costs if you are invited to attend an interview in person.

To Apply:

• Apply directly via our website and click the ‘Apply’ link to fill out our digital application form
• Closing Date: Thursday 2nd April 2026 at 11.59pm

Centre 404 is looking for an experienced and ambitious Fundraising & Engagement Manager to lead and grow our fundraising and engagement activity—helping us provide vital support to people with learning disabilities and their families. 

You will oversee the development and delivery of innovative fundraising initiatives, donor stewardship, and engagement campaigns, ensuring sustainable growth and increased visibility for the organisation.  As an expert in your field, you will work collaboratively across teams and with external partners, to champion Centre 404’s mission within local communities and beyond.

About the Role

This is an exciting opportunity to take ownership of Centre 404’s fundraising strategy and drive innovative approaches across individual giving, corporate partnerships, trusts and foundations, and community fundraising.  You will play a key role in shaping our income generation, increasing our visibility, and maximising our impact.

Key Responsibilities 

• Lead Fundraising Strategy - develop and deliver a dynamic fundraising strategy across multiple income streams. Identify new opportunities and drive year‑on‑year income growth.
• Engage & Inspire Supporters - build strong relationships with donors, corporate partners, and local communities.  Create compelling fundraising campaigns, events, and cases for support. Nurture long‑term supporter loyalty, including legacy and in‑memory giving.
• Secure Grants & Manage Bids - research and secure funding from trusts and foundations.  Monitor reporting requirements and maintain excellent funder relationships.
• Grow Community & Corporate Partnerships - network widely to raise Centre 404’s profile.  Secure financial support, gifts in kind and employee engagement.  Support individuals and teams to succeed in their own fundraising efforts.
• Strengthen Communications & Impact - work with the Communications Team to create engaging digital content and newsletters.  Champion consistent, mission‑driven messaging across all platforms.
• Lead with Purpose - Embed a fundraising culture across the organisation.  Implement a CRM system to manager data effectively. Contribute to organisational strategy as a member of the management team.

About You

• Substantial experience in fundraising from at least one of the following: trusts and foundations, corporates or individual giving.
• Substantial understanding of charity sector regulations, compliance requirements, and ethical fundraising standards.
• Knowledge of donor stewardship and supporter engagement strategies.
• A track record of achieving and exceeding fundraising targets.
• Strong communication skills with the ability to craft persuasive proposals and campaigns.
• Excellent project management, data monitoring, and CRM experience.
• A proactive, innovative mindset and a commitment to equality, diversity, and inclusion.

Centre 404 is a warm, values‑driven organisation with a rich history of supporting people with learning disabilities for over 70 years. We are collaborative, ambitious, and committed to creating life‑changing impact for families across North London. We will provide a detailed induction and on-going training and support. We are also committed to safeguarding and promoting the welfare of adults at risk and we are looking to recruit people who share these values. All offers of employment are subject to a relevant DBS check, proof of eligibility to work in the UK and satisfactory references covering a five year period.

We are dedicated to providing a meaningful and rewarding work environment, as well as offering a range of perks and benefits for our staff to enjoy.

Centre 404 is an equal opportunities employer and welcomes applications from all sections of the community. Charity ref number 299889

The International Alliance of Patients’ Organizations (IAPO) is a unique global non-governmental organisation
representing patient organisations supporting patients and people with lived experience from all regions of the
world across all disease areas.

We are a small, internationally focused team and are seeking a proactive, engaged and organised
Membership Engagement Manager to strengthen and enhance our global membership operations.

We do not have a physical office, so the post holder will work remotely. However, s/he must be based in the
United Kingdom, with the right to work here.

This post is offered on a part-time basis (28 hours per week). While the role is part-time, it carries a significant
level of ownership and requires strong organisational skills, prioritisation capability and the ability to work
autonomously within a small international team.

Join RUHX – Be part of something extra extraordinary.

At RUHX, we’re more than the Official NHS charity of the Royal United Hospitals Bath. We go further to give every patient the extra extraordinary care they deserve, while supporting our staff to do what they do best and furthering innovation within our hospitals. We’re out there in our community, collaborating with the people and organisations who drive real change. And we’re making sure that every penny we raise goes towards improving health, happiness and wellbeing for everyone in our community.

We are looking for an experienced Legacy and Tribute Manager who will be responsible for generating around £1.4 million annually through compassionate and professional management of Gifts in Wills and Tribute Giving. You will lead, shape and deliver RUHX’s Legacy & Tribute Programme—one of our most impactful income streams that enables supporters to honour exceptional care given at the RUH.

We’re looking for an experienced legacy fundraising professional with a strong track record in generating income through Gifts in Wills, creating inspiring marketing campaigns, and managing complex legacy administration with confidence and accuracy. You will bring proven expertise in handling sensitive donor relationships, working with solicitors and executors, and navigating legal processes with minimal guidance. 

Main duties of the job

We need someone highly skilled, emotionally resilient, and able to lead a busy programme while delivering outstanding stewardship rooted in compassion.

This is your chance to help create extra extraordinary healthcare for everyone—by giving supporters a meaningful way to express gratitude, honour loved ones and create a legacy that lasts.

No two days in our team are the same. We split our time evenly between working flexibly at home and onsite in the office in Bath, as well as being out and about in our community.  You will have a varied role which involves managing a wide range of duties and tasks including. 

You will:

• Lead legacy marketing, stewardship and administration with confidence and integrity
• Support bereaved families and grateful patients with empathy and professionalism
• Build strong relationships with local solicitors, legal partners and clinical teams
• Manage a wide and varied caseload of legacies with accuracy and legal competency
• Deliver marketing and supporter engagement activity that inspires long-term giving
• Drive forward RUHX’s Grateful Patient Strategy through legacy and tribute pathways

This is a role where compassion meets strategy—where technical knowledge of legacy administration and marketing is combined with meaningful relationship-building.

The purpose of the post is to take responsibility for the HR oversight, day to day HR matters and the overall HR management of the charity.

The role will require initially regular meets on the sites with the CEO & Senior Management Team to build relationships, understand current processes and to establish and implement a best-in-class HR service to managers and employees across the organisation, allowing the CEO & Senior Managers to focus on the essential strategic management of the charity. 

We envisage the first 6 months being a comprehensive review & reset of the charities HR policies, procedures and protocols. 

This will be a part-time role for 21 hours per week across 3-4 days. This role will be busy, interesting and provide an opportunity for you to make your mark within the charity. You will have line management responsibilities for a part time HR administrator who you will be working closely with. 

To succeed in this role, you must demonstrate that you have the necessary skills, knowledge and practical experience to perform effectively. You should also hold a CIPD Diploma-level qualification and have a thorough, up-to-date understanding of current UK employment legislation. 

Your strong organisational skills and excellent attention to detail should enable you to manage documentation and records effectively, ensuring processes run smoothly and efficiently. 

We are looking for a self-starter and someone with a demonstrable positive approach that has the ability to always remain calm and consistent with personnel at all levels, but capable of dealing with difficult situations. 

It is essential you have excellent English speaking and writing skills. You must have demonstrable skills for writing policy, procedures, letters, reports etc., and you must also be able to work in Office365 with confidence. 

Please read the full Job Description and Person Specification for this role.

To apply please click the Apply now button to be redirected to our website by 5pm on Tuesday 7 April 2026 and fill in all forms. Please note that CVs will not be considered.   

Unsuccessful applicants must wait 6 months before reapplying for similar roles. Application data is retained securely for 6 months in line with our data and privacy policy. 

Join RUHX – Be part of something extra extraordinary.

At RUHX, we’re more than the Official NHS charity of the Royal United Hospitals Bath. We go further to give every patient the extra extraordinary care they deserve, while supporting our staff to do what they do best and furthering innovation within our hospitals. We’re out there in our community, collaborating with the people and organisations who drive real change. And we’re making sure that every penny we raise goes towards improving health, happiness and wellbeing for everyone in our community.

RUHX are seeking a motivated and collaborative Charity Impact Manager to lead our internal grants programme and ensure that charitable funds deliver measurable impact for patients, families and staff.

You will play a key role in implementing our new grant‑making system to strengthen monitoring, compliance, approvals and financial forecasting across all restricted and unrestricted funds. Working closely with clinical, operational and fundraising teams, you will help shape a strong pipeline of strategically aligned projects and support the delivery of donor‑funded initiatives, including restricted grants and major donor commitments.

This is an exciting opportunity for someone with strong analytical skills, excellent relationship‑building capability, and a passion for improving patient and staff experience through effective, transparent and high‑impact charitable investment.

Main duties of the job

No two days in our team are the same. In this role you will spilt your time working onsite in the office in Bath, so that you can meet clinical colleagues across the hospital, with opportunities to work flexibly from home.  You will have a varied role which involves managing a wide range of duties and tasks including.

• Lead the RUHX internal grants process, ensuring all charitable expenditure is compliant and aligned to strategic priorities and donor intent.
• Support the implementation and management of a new grant‑making system that tracks assessments, approvals, expenditure, commitments and fund forecasting.
• Build strong relationships with RUH teams to encourage and support high‑quality, high‑impact grant applications.
• Work with the Development Team to deliver and monitor donor‑funded and restricted‑grant projects, ensuring accurate reporting for stewardship.
• Lead impact measurement and evaluation across all funded projects, producing clear and engaging reports for governance and donors.
• Monitor fund utilisation, project progress and risks, providing regular updates to senior leadership and the Charities Committee.

Interim Public Fundraising Manager

Salary: Band 6 £39,775.77 - £45,489.23 per annum inclusive

Contract type: Fixed term (6 months) | Full-time, 37.5 per week 

About the job role

We have an exciting opportunity for an Interim Public Fundraising Manager in our fundraising team at St Joseph’s Hospice.

We are looking for an experienced Fundraising Manager to join our small but dynamic fundraising team.

The successful candidate will be responsible for managing the public fundraising team – overseeing the recruitment and retention of individual supporters and community organisations through appeals, regular giving, in-memory, challenge events and fundraising activities. 

About you

You will need:

• Significant experience working in the public fundraising environment with specialism in one of the following: Individual Giving, Community & Events or Legacy & In-Memory fundraising.
• Experience in line management and supervision, providing support and leadership.
• Experience of developing donor journeys and delivering excellent supporter stewardship to retain donors.
• Experience of budget management, monitoring income and expenditure, delivering to budget and reforecasting.

Where you’ll work

St Joseph’s Hospice was founded in 1905 by the Religious Sisters of Charity and built on a rich Catholic heritage. Today, we are an Investors in Diversity-awarded charity, providing expert, compassionate care to people of all backgrounds, cultures, and beliefs across East and North London.

Our specialist palliative care services — delivered at home, in our in-patient unit, and through out-patient clinics — are grounded in respect for human dignity and guided by compassion, justice, and a deep commitment to quality. Our values guide us in everything that we do. We work to ensure that everyone receives the support they need, with kindness, understanding, and respect by delivering individualised, responsive and holistic support to patients and their families.

Why work for us?

• 27 days holiday plus public holidays, increasing up to 33 days with service
• Subsidised café and early access to retail sale events
• Season ticket/Welfare loans
• Continuation of the NHS Pension Scheme or an excellent salary-exchange pension scheme.
• Santander cycles discount and cycle to work scheme
• Health Cash Plan and access to the EAP services

Join St Joseph’s team and find out more!

For further information and to apply, please visit our dedicated recruitment page via the 'Apply' button.

Closing date: Friday, 17th April 2026.

Interview date: Friday, 24th April 2026.

We are an equal opportunity and a disability confident employer and welcome applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation or age.

About The Connection at St Martin’s

We believe that no one should have to sleep rough on London’s streets, and that everyone should get the support they need to find a place to call home. We get to know every person we work with, understanding what they need to recover, helping them build on their strengths, and supporting them to find their own way home. Help us make London a city where no one sleeps rough on our streets.

London’s diversity is its biggest asset and we strive to ensure our workforce reflects London’s diversity at all levels. We welcome applications from everyone regardless of age, gender, gender identity, gender expression, ethnicity, sexual orientation, faith or disability.

We particularly encourage applications from candidates with lived experience of homelessness who we believe are an essential asset in our sector.

We are committed to being an inclusive employer and welcome the opportunity to consider flexible working arrangements.

About the Role

We are looking for an experienced and creative communications generalist who enjoys working across a wide range of activities and can bring our mission to life through powerful storytelling and effective communications.

In this role, you will ensure that the charity’s mission, values and key messages are reflected clearly and consistently across all communications. You will be confident working with the press and welcoming high-profile visitors, helping to raise the profile of our work and the people we support.

As a small charity, we value creativity and initiative. You will enjoy finding innovative ways to maximise impact, using a mix of media, digital channels and partnerships to share our story and reach new audiences.

Working closely with colleagues across the organisation – including the people who use our services – you will help ensure our communications are authentic, inclusive and grounded in real experiences.

You will also collaborate closely with colleagues in the Fundraising team to develop and deliver a series of innovative fundraising and awareness-raising campaigns, helping to engage supporters, grow income and increase understanding of our work.

Our strategy focuses on developing services in new ways, involving clients in every aspect of our work and strengthening collaboration across the sector. The Communications Manager will play a key role in helping the organisation communicate more effectively, building communications confidence across the team, and supporting the growth of our fundraising activity.

This role is a 12 month FTC.

Salary: £44,181 - £50,461 (scale points 29 – 35)
Closing Date: Sunday 19th April
Interview Date: Tuesday 28th April

Our Benefits

· 30 days holiday plus bank holidays

· Generous training budget, plus an annual personal training budget

· Enhanced Sick Pay Policy

· Enhanced family friendly policies

· Day off for moving house

· Hybrid working (depending on role requirements)

· Pension – 5% Employer, 3% Employee

· Cycle to Work Scheme

· Season Ticket Loan

· Employee Assistance Programme

· Reward Gateway (access to discount vouchers and cashback at the UK’s favourite retailers)

We are a London Living Wage employer

Hearing Dogs for Deaf People – High Value Events Team Manager
Location:Hybrid working with some travel to Hearing Dogs offices in either Buckinghamshire or East Yorkshire.
Salary: £55,000 per annum.
Contract: Permanent, full-time hours. 

Hearing Dogs for Deaf People, whose mission is build confidence, companionship and connection for people with hearing loss, is seeking a High Value Events Team Manager to lead the development and delivery of inclusive, inspiring and impactful high-value event experiences that deepen relationships and generate transformational philanthropic support for the charity.

Hearing Dogs for Deaf People has been creating life-changing partnerships between hearing dogs and deaf recipients since 1982. As well as acting as an ear to their partners and alerting them to sounds, the charity’s clever and expertly trained dogs help deaf people to live life with confidence and independence, whilst providing love and emotional support.

Following on from a strategic review, the charity is now building a new Income Generation Directorate, to enable them to transform many more lives across the UK. This role will be critical to help Hearing Dogs reach their goals to significantly grow and diversify income.

With a strong focus on values-led, relationship-based fundraising, this role will provide strategic leadership to the charity’s new High Value Events function, bringing a consistent, high-quality approach to engagement, cultivation, fundraising and stewardship events. The post-holder will ensure that events are inclusive, mission-focused and deliver strong return on investment, building long-term commitment among principal and major donors, trusts and foundations, corporate partners and senior volunteers.

The ideal candidate will be a strong leader with a background in planning and delivering high-value fundraising or engagement events generating £100k+. You will have worked with high-value supporters, including high net worth individuals, committees and senior stakeholders, and will have a strong track record of working to income targets and maximising fundraising return on investment. Excellent organisational and communication skills will be combined with the ability to engage and influence a wide range of audiences. You will be creative and proactive, with a collaborative and inclusive approach to work, alongside the ability to communicate impact clearly and compellingly.

This is an exciting opportunity to shape the direction of High Value Events at an organisation which is changing people’s lives every day, and where you have the flexibility of working remotely or spending time at Hearing Dogs’ stunning bases in Buckinghamshire or Yorkshire, with friendly and passionate staff and their four-legged friends.
 

If you want to lead the pack and help deaf people live well with hearing loss Please download our Candidate Pack for further information [PDF], which includes details on how to apply.

Closing date: Monday 20th April, 9.00 am. 

Senior Families and Professionals Advisor

Fragile X Society

Salary: £40,000 to £46,000 depending on experience
Hours: Part-time  (22.5hours per week)
Location: Great Dunmow, Essex, with some flexible and hybrid working considered
Contract: Permanent

Help change lives for families affected by Fragile X

The Fragile X Society is the UK’s leading charity supporting individuals and families affected by Fragile X syndrome and associated conditions, including FXTAS and FXPOI.

For more than 35 years we have provided trusted information, emotional support, and practical guidance to families across the UK. Our work connects families with clinicians, researchers, and services while helping professionals better understand Fragile X.

We are now looking to recruit a Senior Families and Professionals Advisor (Adult Enquiries) to join our small and dedicated team as part of a planned transition when our long serving advisor retires later this year.

This is a rare and rewarding opportunity to take on a respected specialist role supporting families navigating complex health, social care, and life transitions.

About the role

This is a senior advisory role supporting adults, families, carriers, and professionals affected by Fragile X conditions.

You will provide information, guidance, and emotional support to individuals and families across the UK, helping them navigate services such as adult social care, benefits, housing, health services, and transition into adulthood.

The role also plays an important part in ensuring that the Fragile X Society continues to provide trusted, accurate, and meaningful information for families and professionals.

A structured handover and training period will be provided by the current postholder to help transfer specialist knowledge.

Key responsibilities

You will:

• Lead the handling of adult and carrier enquiries including those relating to Fragile X associated conditions such as FXTAS
• Provide emotional support and practical guidance to families navigating complex situations
• Maintain up to date knowledge of adult benefits, legislation, and social care services
• Work with clinicians, services, and professional networks supporting people with Fragile X
• Ensure the Society’s information resources and website content remain accurate and relevant
• Support colleagues through mentoring and case discussion where appropriate
• Contribute to the continued development of the Society’s information and support services.

About you

We are looking for someone with experience in complex advisory or support work within areas such as:

• disability services
• adult social care
• learning disability
• health services
• rare disease charities
• advocacy or advice organisations.

You will also have:

• strong knowledge of UK benefits systems and adult social care
• excellent communication and listening skills
• high levels of emotional intelligence and resilience
• experience supporting people in complex or sensitive situations
• the ability to work both independently and collaboratively within a small team.

Previous knowledge of Fragile X is not required, but an interest in learning about rare genetic conditions and the lives of families affected by them is essential.

What we offer

Working at the Fragile X Society means being part of a values driven charity where your work genuinely changes lives.

We offer:

• Salary of £40,000 to £46,000 (pro-rata) depending on experience
• 25 days annual leave plus bank holidays (pro-rata)
• Pension contribution
• Flexible and hybrid working options where possible
• Professional development opportunities including rare disease and clinical learning
• A supportive and collaborative team environment.

The role also includes the opportunity to work closely with leading clinicians, researchers, and national rare disease networks.

About the Fragile X Society

The Fragile X Society supports thousands of families across the UK and works closely with clinicians, researchers, and policymakers to improve understanding and support for Fragile X conditions.

Our mission is to ensure that every family affected by Fragile X has access to reliable information, compassionate support, and a community that understands their journey.

How to applyTo apply, please send:

• your CV and supporting statement explaining your interest in the role and relevant experience.

Further information about the Society can be found on our website.

Salary: £52,000 per annum.

Location: Hybrid Work Culture. We are proud to promote a truly hybrid work culture, recognising that every role is different, and everyone has unique needs and preferences. Our Hybrid Work Arrangement empowers each team member to work with their manager to choose the most effective way to work that balances your needs and Hospice UK’s.

For this role, we expect someone to come into the office for two or more days a week. One of those days would be a Tuesday when Income Generation & Grants colleagues come into the office. You can work remotely for the rest of the time, but equally, you may prefer to work from the office full-time. You can discuss your preferences as they meet our business needs with your line manager at the start of your employment. You will also need to be available for some out of hours events in the evenings.

Contractually this role is London-based.

Contract: Permanent.  Full time role - 35 hours per week.

Benefits:

• 25 days annual leave rising to 30 days after 2 years (+ an extra 10 days on each 5th year). Pro rata for part time hours
• Matched pension scheme up to 7% of salary
• Healthcare plan
• Support for staff with caring responsibilities
• Family-friendly culture

How to apply: CV and supporting statement - using Hospice UK’s supporting statement document – available on our website to download.

Closing date for applications: 10:00am on Sunday 29 March 2026.

Job Information:

The Role

This is an exciting time to join Hospice UK!  We are growing significantly as a charity and our brand awareness and profile has never been higher. 

You will have already proven you can raise significant funds from trusts and foundations and are now looking to develop your skillset and deepen your experience in an exciting new role. This is a great opportunity if you are ambitious and have the passion to excel. Hybrid working is part of the deal too, so you will be looking to work between time in the office and home.

As our Senior Philanthropy Manager we see you maximising the capacity of our well-established portfolio of warm trusts and foundations of all sizes via bespoke proposals and relationship management. You’ll also be developing exciting new business opportunities as we continue to grow our ambitious but achievable targets, with major income already pledged for future years. 

You will have the chance to work with large funders like the National Lottery, Wolfson Foundation, Masonic Charitable Foundation and others. You’ll be writing complex applications to secure new, multi-year income for interesting and fundable projects, as well as growing our pipeline of unrestricted income for the charity.

You will also be supporting the Head of Philanthropy and Philanthropy Manager (major donors) as well as line-managing the Philanthropy Assistant.

The Team

We are a supportive and collaborative team of four, focussed on delivering over £1.5M per year from trusts and major donors. Hospice UK offers a vibrant and rewarding work environment with a great culture of sharing, learning, social activities, and regular meet-ups. We work collaboratively, support each other, commiserate our failures and celebrate our successes!

At Hospice UK you will have the structure, support and opportunities to develop a stellar track-record and work towards your career goals. We pride ourselves as one of the best in the sector for providing excellent development and training opportunities for our fundraisers.

About You

You are a positive, creative, and proactive individual who embraces the challenge of a diverse portfolio. With success in cultivating new relationships, as well as managing existing donors, you will have the drive to succeed as a self-starter with excellent written and verbal communication skills. You’ll already have great database and prospect research skills, and pride yourself on your organisation and attention to detail. 

You will be able to quickly form relationships with internal and external partners, and act as a representative for Hospice UK. You will have a track record of generating income and hitting your targets through high quality applications and excellent reporting and account management.

More information is available in the candidate information pack, which is available on our website to download.