Grants jobs in Home based

Your outstanding management of the Woodland Heritage Skills project will ensure that the project meets its objectives and in doing so help the charity in achieving its mission.

You will be a core part of how Woodland Heritage is achieving its mission and it will be an incredibly rewarding and varied experience!

Your work with the charity will be as part of a small, dedicated team of staff and a wider group of passionate trustees. Everyone will want you to succeed and will support you along the way.

Woodland Heritage is creating a thriving UK wood culture that benefits our environment, all people and our economy. We do this by championing the good use of home-grown timber from sustainable, productive woodlands for the benefit of present and future generations. Through a combination of demonstration sites, research, education, membership and outreach, we build on the wisdom and skills of the past to weather the challenges of tomorrow. 

About the role

• The role is full time 37.5 hours per week for a fixed term of two years, with planned evening and weekend working as required. 
• We can offer flexible working and hybrid working. You may wish to work at Whitney Sawmills, Herefordshire, for example for a day per week, though this is not required.
• 25 days plus Bank/Public holidays as paid leave
• Salary £35,000 PA FTE
• Your line manager will be the Chief Executive
• Employer contribution from nest pension

 All other terms and conditions will be as per your contract. More details are available via our staff handbook which can be provided to shortlisted candidates. 

This role is part of a £238,442 grant from The National Lottery Heritage Fund to create ‘Woodland Heritage Skills’; two years of educational workshops, digital educational assets and collaboration with its members and partners to deliver the charity’s new Open Woods & Workshops initiative.

A tremendous £13,547 of this grant is matched funding from the outdoor furniture B-Corp Gaze Burvill, a corporate member of Woodland Heritage, alongside fellow personal and corporate members of the charity. 

About you

You will have a committment to the vision and values of Woodland Heritage and a desire to bring about positive change in the relationship between people and woodlands. You will have demonstrable experience of managing projects, delivering educational impact and a willingness to learn and to be flexible.

Visit our website to download the job specification and learn how to apply. We'd love to hear from you!

Job Description

Job Title: Finance Director/Finance Officer

Location:Remote working (Home based)

Responsible to: Board of Trustees

Salary:£55,000

Hours: Full time (35 hours per week)

About React:

React – Rapid Effective Assistance for Children with potentially Terminal illness is a dynamic charity working to improve the quality of life for children with life-limiting illnesses living in financially disadvantaged households throughout the UK. Our work is unrivalled by any other organisation and our passion and belief that every child should have comfort, dignity, and the opportunity to participate in life as fully as possible is our driving force.

The Job, in a few words:

Reporting directly to the Board, you will lead day to day finance, produce monthly & annual accounts, prepare payroll and monitor React’s grant application process.   The Finance Director/Officer will develop strong working relationships with the React Team and lead all aspects of charitable expenditure.

KEY RESPONSIBILITIES:

• Managing all aspects of Financial controls

• Processing Payroll, restricted & unrestricted funds through Xero software

• Liaising with auditor, bankers, pension providers & HMRC

• To maintain accurate records and produce monthly management accounts

• Production of Statutory accounts and annual budget

• Manage the grant application process and understand the needs of families caring for terminally ill children.

SKILLS, QUALIFICATIIONS, EXPERIENCE AND ATTRIBUTES:

• Accountancy qualification or equivalent senior experience in charity finance
• Xero or Sage experience
• Confident with PAYE & Gift Aid submission
• Flexible and pro-active approach
•  Ability to work on your own initiative
• ·A natural team leader who can liaise confidently with all members of staff

About the Tax Justice Network

The Tax Justice Network (TJN) is an independent international network, launched in 2003. It is dedicated to high-level research, analysis and advocacy around international tax and financial regulation, including the role of tax havens. TJN maps, analyses and explains the harmful impacts of tax evasion, tax avoidance and tax competition; and supports the engagement of citizens, civil society organisations and policymakers with the aim of a more just tax system. TJN pursues systemic changes that address the international inequality in the distribution of taxing rights between countries; the national inequalities – including gender inequalities – that arise from poor tax policies; and the national and international obstacles to progressive national tax policies and effective financial regulation.

The Tax Justice Network operates virtually with its legal base in the UK and staff working from home across multiple countries and continents. 

Role description

The Finance Officer is part of the Organisational Support and Development (OSD) team at the Tax Justice Network, which is led by the Director of OSD, and the role reports to the Head of Finance and Reporting. The OSD team leads and delivers on a range of operational services from finance management, risk management, project management, event management, human resources, IT systems and other enabling functions. The team is also responsible for fundraising for the organization. This includes responding to calls for proposals, tracking funding opportunities and engaging with donors regularly.

The role offers the chance to work across the financial functions and offers an experience through a breadth of finance work across the organisation making it a varied and a well-rounded role. 

Key Responsibilities

• Undertake the day-to-day bookkeeping including accounts payable, accounts receivable, banking payroll and general ledger maintenance 

• Ensuring accuracy and integrity of all financial records and keeping a clear audit trail of all financial records 

• Manage the staff payroll process including pension, HMRC and other related processes 

• Manage the periodic payment runs and ensure that all payments are paid on time 

• Supporting financial planning and reporting for project proposals, project reporting and management reports 

• Support with project and year end audits schedules 

• Assist in the preparation of accruals, prepayments and other journals 

• Maintaining fixed asset register 

• Provide guidance to team on internal financial processes and policies and assist with queries and escalating them as necessary 

• Ensure organisational adherence to our internal and funder specific procurement policies 

• Undertake other financial administration work and supporting the wider OSD team on team responsibilities and duties as required 

Person specification

Skills and experience

Essential 

• Holding or working towards a CCAB or CIMA qualification 

• Hands on experience of working in a finance department of charities or not for profit organisations 

• Experience of carrying out detailed reconciliations, and can demonstrate a keen eye for detail and a thorough and methodical approach in all work 

• Strong IT skills with intermediate knowledge of Excel and cloud-based accounting software (preferably Xero) 

• Ability to communicate effectively, accurately and succinctly in English, in writing and verbally 

• Excellent interpersonal skills 

Desirable 

• Experience of producing financial reports for a range of purposes 

• Experience of working with multi-currency transactions and cash holdings 

• Experience of working with EU funded grants 

• Experience of working with a variety of cloud-based platforms such as Airtable, Xero, SharePoint, Slack and Zoom 

Attributes

Essential 

• Ability to work collaboratively as part of a team and independently with a high degree of initiative 

• Flexible and able to manage a varied workload and deadlines 

• Ability to deliver work of a high standard with excellent attention to detail 

• Knowledge of UK and / or EU financial regulations 

• Resourceful and flexible approach with a “can do, will do attitude” and willingness to learn and adapt 

Desirable 

• Passion for tax justice and international development issues 

• Previous experience of grant management 
• Use of electronic banking software 

Please do not use AI tools when completing your job application. We would like to hear your authentic voice and want to understand your unique skillset and perspective.  

Key details

Application closing date: Sunday 22 February 2026 (2359 UK time)
Start date:  April 2026
Reports to:  Head of Finance and Reporting
Contract:  Fixed Term to 30 June 2027
Hours:  Between 60% (22.5 hours a week) or 80% FTE (30 hours a week)
Salary: £39,501.57 –  £46,524.59 (FTE equivalent pro rata for 60% or 80% FTE) plus employer pension contribution, or equivalent based on contractual requirements. Appointment within range depending on skills and experience.
Location: For administrative reasons, this role is set to be Home-based in the UK. To be considered candidates must already have the right to work in the UK.

The Katie Piper Foundation is a small, national charity founded in 2009 by Katie Piper, a burns survivor. We exist to provide rehabilitation to survivors of life-altering burns and traumatic scarring.

This is a new and varied role where you will be responsible for the development of our supporter-led fundraising and challenge events portfolio, be involved in event management and administration and provide exceptional stewardship to maximise fundraising from supporters and donors. You will be part of a small but talented team full of passion for fundraising and this life-transforming cause.

This is a home based part time role. We welcome fexible working and will work with you to find a working pattern which suits us all. 

Working closely with the Corporate and Partnerships Manager and Communications and Storytelling Manager, you’ll amplify our reach, ensuring we can continue delivering life-changing rehabilitation services.

As our Fundraising Manager, you will take the reins in shaping and executing an ambitious annual fundraising plan. Your mission? To grow supporter-led fundraising income by spotting opportunities and championing third-party events that inspire our supporters. You’ll also craft an engaging, inclusive community fundraising plan, building a thriving network of supporters and empowering survivors to get involved, and support our events programme, including our annual carol concert.

But that’s not all. You’ll play a key role in driving diverse income-generating initiatives, ensuring the charity remains strong and sustainable. Your work will directly fuel our ability to offer vital therapy and rehabilitation, creating real, lasting change in the lives of survivors.

Find out more in the job pack and feel free to get in touch for an informal chat

Purpose of the post

The Finance Business Partner plays a crucial role within HDR UK, as the key point of contact and financial support for the Institute Office teams. The Finance Business Partner supports key non- finance stakeholders to provide timely and insightful analysis and reporting and supports with the alignment of financial plans to operational and strategic priorities. The role will support the Institute Office as well as some of our separately funded programmes. The Finance Business Partner is responsible for the management of the Institute’s support costs and recharges, and therefore plays a pivotal role in the long-term financial sustainability of HDR UK. The role is responsible for maintaining clear and effective communication between the Finance team and the wider business and for ensuring that financial concepts and priorities are understood by the Institute Office and programme teams.

Main responsibilities

• Work with Budget Holders to manage financial performance, forecasts, and budgeting including understanding financial opportunities and risk for the area of business partnership.

• Lead on monthly reporting to the Institute Office and Programme teams, including posting month end journals, meeting with Budget Holders to discuss performance and budget variance and providing commentary and analysis on reports.

• Provide donor reporting and analysis as required to funders of specific programmes.

• Work with the Head of Financial Planning and Analysis to plan, deliver, and review the annual budget and quarterly forecasts.

• Support the Associate Director of Finance and Head of FP&A to continuously review and update the 5-year financial plan.

• Support with projects and new process development to continuously improve and evolve our approach to internal financial reporting and modern finance business partnering.

• Support the Finance Business Partnering function with ad hoc reports and grant management and reporting.

• Provide training and advice to individuals internal and external to the Finance department.

• Support the Finance Officer with ad hoc queries and helpdesk needs.

• Support the Head of FP&A in utilising JET Reports to generate monthly management accounts for our Senior Leadership Team and Budget Holders, ensuring their accuracy and timely delivery.

Job Description

Job Title: Family Liaison Officer

Location: Remote working (Home based)

Salary: £28,000

Hours: Full time (35 hours per week)

About React:

React – Rapid Effective Assistance for Children with potentially Terminal illness is a dynamic charity working to improve the quality of life for children with life-limiting illnesses living in financially disadvantaged households throughout the UK. Our work is unrivalled by any other organisation and our passion and belief that every child should have comfort, dignity, and the opportunity to participate in life as fully as possible is our driving force.

The Job, in a few words:

Reporting directly to the Director, this role will support our small team working with React families and donors.  We encourage our staff to get involved with all aspects of our work and candidates must be literate, logical and have sympathy for the cause. Good writing skills are essential. To succeed in the role you must be a self-motivated team player who is happy to roll up their sleeves and get on with the job.

SUMMARY OF ROLE AND REQUIRED SKILLS:

Working directly with our families and donors you will be responsible for a variety of administrative tasks and must have:

• Ability to work on your own initiative

• Excellent communication and interpersonal skills

• Strong literacy skills are a must

• Good computer skills including Word, Excel and Outlook

• Flexible and pro-active approach

• To operate within the ethos and culture of React and promote our values

KEY RESPONSIBILITIES:

• To summarise family applications

• To liaise with families and healthcare professionals

• To make grant awards to React families and process payments

• To enter data on databases and maintain accurate records

• To assist with the preparation and writing of new fundraising applications

• To identify and research funding opportunities as requested

• Be a collaborative team-player who is willing to learn all aspects of React’s work

SKILLS, QUALIFICATIIONS, EXPERIENCE AND ATTRIBUTES:

• Educated to degree level

• Excellent administrative and time management skills

• Intelligence, organisation and creativity

• Ideally at least two years work experience

About the role

You will work with and support health and social care professionals with projects and programmes, equipping them with the latest tools, resources, evidence and data to develop and improve services for people with Parkinson’s. You’ll also work with health and care professionals and Parkinson’s UK colleagues to respond to any threats to Parkinson's services and effect positive change.

You’ll support the development of a vibrant national network, working in collaboration with the Professional Engagement team and the regional clinical leads. You’ll also work with health and care professionals and Parkinson’s UK colleagues to respond to any threats to Parkinson's services and effect positive change.

What you’ll do

• Facilitate health and care service redesign and improvement projects in collaboration with clinicians, Parkinson’s UK staff and people living with Parkinson’s and drawing on the principles of co-production

• Build relationships to influence service improvement across the England South West region, and support the development of a vibrant national network

• Maximise participation in the UK Parkinson's Audit and relevant surveys

• Support health & care services to develop and implement service improvement plans, using the results of the UK Parkinson's Audit as a lever

• Promote the Excellence network funding opportunities, providing support where appropriate with the development of business cases and grant applications

What you’ll bring

• Experience and expertise in service redesign and effecting change within health and/or social care in the South West region

• Knowledge of health and care structures and commissioning across the South West region

• Strong interpersonal skills with proven ability to build and manage successful relationships with internal and external stakeholders, including senior clinicians 

• Experience in the use of quality improvement and project management tools 

• Ability to negotiate and influence, with strong report writing and presentation skills

This is an exciting time for Parkinson’s UK and we would love you to join us!

Please apply by sending us your CV, together with a detailed supporting statement which will fully demonstrate how you meet all the criteria of the role, as stated in the "What you'll bring" section of the job description.

This role is home based with the requirement to live within and travel around your assigned geography. The assigned geography for the region covers the NHS England South West region. You will also be required to attend team and individual meetings that usually take place in our London office but may be in other locations across the UK. There may also be the requirement for occasional overnight stay.

Interviews are scheduled to take place from the 4 March 2026, online via googlemeet

Anyone can get Parkinson’s. It’s vital that the people who work for Parkinson’s UK are representative of our diverse community. We actively encourage people from all sections of the community to apply, regardless of race, ethnicity, gender identity, age, disability, sexual orientation, or religion.

Arvon, the UK's most renowned creative writing charity, is looking for an experienced and dynamic Management Accountant (Maternity Cover) to work closely with its CFO on the preparation of management accounts, budgeting and forecasting processes, as well as other key finance tasks. Arvon has been delivering courses from its three beautiful houses for over 57 years, and you would be joining a dedicated and spirited national team, all of whom are passionately committed to delivering on Arvon's transformational charitable mission.

SUDC UK is a national charity dedicated to funding research, raising awareness and supporting families affected by Sudden Unexplained Death in Childhood (SUDC). Our team is passionate, warm, friendly and impact-driven.

SUDC is the sudden and unexpected death of a child aged 1-18 years where the cause of death remains unexplained despite a thorough investigation. 40 children are affected every year in the UK, more than young child deaths due to traffic accidents, fires or drowning and comparable to 1-2 seemingly healthy children dying every fortnight, often going to sleep and never waking up. 

As a specialist charity, SUDC UK informs, empowers and advocates for families when their child dies suddenly and unexpectedly. We operate nationally and have expertise in SUDC, bereavement support, the child death process, genetic investigation, SUDC research and medical screening.Founded by three bereaved parents, we have deep understanding of the impact of SUDC and loved children, and their families, are at the heart of all we do.

The purpose of this role is to lead and deliver our income generation and marketing strategy, growing sustainable income streams while increasing our profile, reach and impact. This dynamic and rewarding role blends strategic leadership with hands-on delivery, including first-line management of a small team.

Senior Policy Officer

We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.  

We currently have around 95 staff based in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to grow our staff team to deliver our ambitious strategy, On a mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a future where nobody dies of bowel cancer. 

Senior Policy Officer Job Description

Do you want your policy work to genuinely change lives? As a Senior Policy Officer, you’ll lead a defined area of our UK-wide policy work, shaping evidence-based positions that influence decisions across health systems and government. You’ll have the autonomy to own your brief, the space to think strategically, and the support of an expert, collaborative team who care deeply about impact. Your work will directly affect people living with bowel cancer.

This role is ideal if you’re an experienced policy professional who enjoys tackling complex problems, building trusted relationships, and turning evidence into action. You’ll work closely with policymakers, clinicians and sector partners, represent us in high-level forums, and help steer how we respond to fast-moving health policy developments. In return, we offer flexibility, trust, and a strong values-led culture and the chance to be part of a growing organisation delivering an ambitious strategy at a critical moment.

If you’re motivated by purpose, confident in your judgement, and ready to step into a role with real responsibility and influence, we’d love to hear from you.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

Campaigns and Public Affairs Officer

We’re looking for a Campaigns and Public Affairs Officer to help turn insight, lived experience and evidence into powerful public campaigns that drive change for people affected by bowel cancer. You’ll play a hands-on role in delivering creative, inclusive campaigns that mobilise supporters, grow engagement and help people take meaningful action across the UK. Working closely with colleagues across policy, communications and fundraising, you’ll support the design and delivery of campaign actions, digital activity and events, while also contributing to our wider influencing work with decision-makers. This is a UK-wide role, with an initial focus on devolved nations, ideal for someone who’s passionate about campaigning, motivated by impact and excited to be part of a team pushing for earlier diagnosis and better care.

About Us

We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.  

We currently have around 95 staff based in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to grow our staff team to deliver our ambitious strategy, On a mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a future where nobody dies of bowel cancer. 

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

About This Job

Are you passionate about digital transformation and supporting the delivery of impactful projects? As a Software Developer within Cadet Digital Services, you will play a vital role in ensuring the successful development and maintenance of digital applications, primarily the Westminster MIS platform.

Working as part of a collaborative digital delivery team alongside a Solutions Architect, the developer will deliver well-structured, secure solutions in line with MOD digital and security standards, supporting the effective delivery of cadet activities across the UK.

You will have the opportunity to engage with volunteers and staff nationwide, delivering support through a mix of in-person sessions, webinars, and online learning resources.

If you thrive in a dynamic and fast-paced environment, enjoy problem-solving, and are keen to make a difference in the digital landscape of the Cadet Forces, this role is for you.

Responsibilities

· Develop and maintain application components using Oracle APEX, PL/SQL, and related technologies.

· Implement user interface elements and application logic in line with existing designs and patterns.

· Collaborate closely with your product owner, testers, and other team members to understand requirements and contribute to user-focused solutions.

· Participate fully in Agile ceremonies (daily stand-ups, sprint planning, reviews, and retrospectives) and work within agreed sprint commitments.

· Apply established MOD standards for security, accessibility, and performance across all development tasks. Take part in estimating, code reviews, testing, and documentation to support quality and maintainability.

· Contribute ideas for improvements and raise technical issues through the team’s established processes.

· Resolve bugs and minor enhancements raised by the Service Operations Team, prioritised and assigned to sprints as part of the development workflow.

· Suggest improvements and raise technical issues through established team processes.

· Continue developing knowledge of Oracle APEX and best practices through day-to-day delivery and supported learning.

Please refer to the attached Job Description for further information.

Our charity

ACCT UK is a national youth charity dedicated to improving the life chances of young people. The Combined Cadet Force Association (CCFA) is a charity dedicated to the promotion of the ideals and activities of the Combined Cadet Force in schools. Together we want to ensure that every young person has the opportunity to learn new skills, build confidence and be inspired through their cadet experience.

We want to develop the youth leadership and training abilities of adult volunteers whilst also helping young people to access cadet activities through fundraising, grant-making, developing new resources and direct support.

We strongly believe that everyone benefits when you help young people to develop their character and values through activities that stretch and mature them. We also know that when young people engage with others at a range of levels in their communities it builds confidence and improves empathy for other’s lives.

Who we are

You will enjoy being part of our small team who work very happily together. By joining ACCT UK you will help us to reach more young people and make a greater difference and we look forward to working with you. We actively promote and encourage you to explore ideas that improve all aspects of the charity’s work in pursuit of its charitable aims.

What we can offer you

In addition to your salary, we offer all staff:

· Flexible working arrangements (you agree a working pattern with your line manager).

· Personal Accident Insurance, including loss of earnings cover and death benefit.

· 15 days of sick pay in any 12-month period (after 12 months employment - pro-rata for part time staff).

· A contributory pension scheme (you contribute at least 5% and we will contribute 10%).

· Good leave allowances (which are offered pro-rata for part time staff):

o 20 days annual leave plus Bank Holidays.

o Additional privilege leave, on set days each year, such as between Christmas and New Year.

o An additional five days of volunteering leave.

· Support for qualifications and personal development.

· Employee Assistance Programme.

· Season ticket loan.

· Railcard (if you are eligible)

· A caring and supportive team environment.

How to apply

Please send a CV and Cover letter that details how you meet the requirements of the job description by 2359 hrs by Sunday 1st March 2026.

Interviews will be held in person during the week commencing 16th March 2026.

While AI tools can be beneficial, we value the personal touch and authenticity in job applications. We encourage you to highlight your unique experience, knowledge, skills, and abilities, ensuring all information is accurate. Please use AI tools responsibly and with integrity throughout the application and selection process.

Please note that as a charity dedicated to improving the lives of young people, we require staff to make a declaration about any relevant convictions, undergo both a Disclosure and Barring Service check and a Baseline Personnel Security Standard (BPSS) check (one of the requirements being that applicants must have been resident in the UK for 3 years). In addition, we will follow up references.

Please be advised that this position may close earlier than the stated deadline if a sufficient number of high-quality applications are received. To ensure your application is considered, we strongly recommend submitting it as soon as possible. Candidates will be notified of the next stage in the recruitment process if they are shortlisted.

Interview process

Once Shortlisting has been completed, the application process will consist of the following:

Stage 1: Application Questions to be completed by candidates

Stage 2: Assessment day (successful candidates will progress to the final stage)

Stage 3: Interviews

The Ecological Land Cooperative is seeking a strategic and values-driven Finance Coordinator to help secure the long-term financial resilience of a pioneering land justice organisation.

We widen affordable access to land for ecological farming and currently steward seven farm sites supporting 18 small farm businesses.

This senior operational role combines hands-on financial management with strategic oversight.

You will:

• Lead budgeting, forecasting, and financial modelling
• Prepare management and annual accounts
• Oversee compliance and financial reporting
• Support Board decision-making and governance
• Contribute to funder and investor reporting

We’re looking for strong financial experience, strategic thinking, and alignment with cooperative and ecological values.

Permanent | 2.5 days per week (flexible) | Flat pay structure | 4% matched pension

If you meet most of the criteria, we encourage you to apply.

https://ecologicalland.coop/home/work-with-us/

Please apply by: 9am Monday 9th March

Interviews: Monday 16th March

How to Apply

Please submit your CV and a covering letter (maximum 2 pages) 

We use an anonymised shortlisting process and assess applications against a structured score sheet based on the criteria in the Job Description and Person Specification.

In your covering letter, please clearly demonstrate how your experience, skills, and knowledge meet the essential criteria, using the headings in the Person Specification as a guide. We recommend providing specific examples to show how you meet each area, rather than general statements. Applications are scored solely on the evidence provided, so please ensure you explicitly outline relevant experience, including transferable skills where appropriate.

About Metabolic Support 
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well. 

About the Role 
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact. 

Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels. 

As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease. 

Key Responsibilities 

• Lead and deliver an integrated fundraising and communications strategy 

• Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events 

• Act as an external ambassador for Metabolic Support 

• Oversee communications, marketing, social media and brand development 

• Manage donor relationships, stewardship and CRM (Nutshell) 

• Provide fundraising forecasts, reports and budgets to the Board 

• Ensure compliance with GDPR and fundraising regulations 

About You 

• Proven experience in fundraising, communications or income generation 

• Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors) 

• Excellent written and verbal communication skills 

• Confident relationship-builder and storyteller 

• Highly organised, proactive and comfortable working autonomously 

• Strong alignment with Metabolic Support’s mission and values 

Other Information 

• UK-based with eligibility to work in the UK 

• Willingness to travel and work occasional evenings/weekends