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About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
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Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
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Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
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Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
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Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
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Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
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24-hour confidential Employee Assistance helpline
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Private health insurance
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Flexible hours
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5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
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Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
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Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
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Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
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Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
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Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
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Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
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Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
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Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
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Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
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Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
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Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
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Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
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Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
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Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
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Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
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Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
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Collect and analyse feedback, producing short evaluation summaries to inform future planning.
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Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
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Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
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Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
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Event logistics prepared within agreed timelines
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Accurate event information published and updated within required timeframes
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Participant satisfaction and engagement measured through surveys
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Conference and event attendance targets met
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CRM data entry completed within 2 working days of events
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Budget expenditure tracked monthly with minimal variance
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Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
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Experience organising in person events from start to finish for over 300 attendees.
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Experience liaising with suppliers, venues and speakers.
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Experience with CRM/data entry, with close attention to detail.
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Experience organising and hosting remote events.
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Understanding of hybrid events.
Desirable
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Experience in the charity sector.
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Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
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Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
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Understanding of the importance of safeguarding around events.
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Exceptional communication skills.
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Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
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Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
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Skilled in problem solving, with a proactive, solutions focused approach.
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Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
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Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
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Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
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Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
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Resilient and adaptable, able to navigate complexity.
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Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
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Demonstrable commitment to equity, diversity and inclusion.
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Personally, and professionally, responsible with high standards of integrity and accountability.
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A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
We’re looking for a People and Culture Manager to shape and lead Amala's first dedicated people function, ensuring our global team is supported by rigorous and human-centred people practices. You will work closely with the Head of Finance and our international leadership team to manage the end-to-end team member lifecycle and continuously foster a deep sense of belonging across our remote workforce.
Who we are
Amala’s mission is to use the power of education to transform the lives of young refugees, their communities and the world. We are a non-profit organisation with big ambitions to create a deep and lasting impact for young people who are displaced. We have developed the first accredited secondary level programme and qualification for out of school refugee and crisis affected youth, and we also offer Changemaker Courses in areas such as Peace-building, Ethical Leadership, and Social Entrepreneurship. Our approach to education is conveyed through our human-centred, context-inclusive curricula and learning programmes that are relevant to the lives that our students lead today and will lead in the future.
Key responsibilities
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Recruitment & Onboarding: Lead end-to-end hiring and design onboarding programmes that strictly adhere to Safer Recruitment requirements.
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Performance & Development: Manage the annual review cycle and coach managers to have meaningful, development-focused conversations.
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Policy & Culture: Act as a custodian of Amala’s culture while maintaining compliant HR and policies and the Single Central Record.
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Compensation: Maintain our job grading framework and lead salary benchmarking against the NGO sector.
You will be successful if you have
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CIPD Level 5 qualification and proven HR management experience within an NGO or mission-driven organisation.
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The ability to navigate the nuances of supporting globally distributed teams across different cultures and time zones.
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A human-centred mindset that balances rigorous HR compliance with empathy and a commitment to team wellbeing.
All roles at Amala are open to applications from all sections of society. We believe in the potential of everyone regardless of race, religion or belief, ethnic origin, disability, sexual orientation, family structure, economic background, age, nationality or citizenship, gender identity, marital or civil partnership status, pregnancy or maternity, age, or any other characteristic protected by law.
Safeguarding children, young people and vulnerable persons is a priority for Amala. All team members are expected to share that commitment and adhere to Amala’s Safeguarding and Welfare Policy and Team Code of Conduct. Any offer of appointment by Amala is conditional on satisfactory pre-appointment checks.
How to apply
Read the job description for more details on the role and for information on how to apply.
Deadline: Monday 18 May 2026, 12:00 BST
Our mission is to use the power of education to transform the lives of refugees, their communities and the world.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
- Generous holiday allowance
- Perkbox account (global benefits and rewards platform)
- Group Life Assurance after 6 months of service
- NEST workplace pension scheme
- Free inhouse staff benefits and welfare advice
- Investment in your personal and professional development
- Annual salary review
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
- Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
- Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear
- Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
- Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Role Name:Management Accountant
Salary: £41,000 - £49,000 per annum FTE (depending on experience)
Location: Remote (with occasional travel to Downton, Salisbury, SP5 3RB and other UK locations as needed).
Hours: Full time, 35 hours per week
Contract: Fixed Term Contract (9 Months, with potential to be extended to 12 months if business need)
About the Role
We have an exciting opportunity for a Management Accountant to join our Finance team on a 9-month fixed term contract and play a key role in supporting the organisation during an important period of systems change.
Reporting to the Head of Finance, you will provide high‑quality accounting support across the Group, while also supporting colleagues who are working on the development and implementation of a new finance system. You will also act as a trusted finance business partner to members of the Leadership Team, supporting informed decision‑making across the organisation.
Please see the job description for full details of the role and a comprehensive overview of the role and requirements.
About You
Are you a CCAB or CIMA qualified accountant with experience in charity finance, looking for an opportunity to make a difference while working in a collaborative and supportive environment?
You will bring experience of working in a business‑partnering finance role, with the confidence to build strong relationships across an organisation. You’ll be comfortable supporting audits and statutory reporting, with a proactive and solution‑focused approach.
You will also demonstrate:
- Experience of charity accounting and statutory reporting
- Evidence of working in a partnering approach to finance
- Evidence of providing year‑end information and support to auditors
- Strong communication skills and the ability to explain financial information clearly
- Excellent organisation, prioritisation and attention to detail
- A flexible, calm and professional approach, even under pressure
- A positive, collaborative mindset and willingness to support colleagues
Experience of finance systems development, charity tax (VAT, corporation tax, Gift Aid) and advanced Excel skills would be beneficial, but not essential.
You also hold a full UK driving licence and have access to a reliable vehicle with business insurance for work purposes. You are willing and able to travel as required for in-person meetings and events to Downton (SP5 3RB) or London, with occasionally travel to other UK locations. Central London travel will be by train.
You are also comfortable staying away from home overnight on occasion, when required to support events or team activities.
About the Team
You will join Help for Heroes’ Finance team, a collaborative and supportive team providing robust financial oversight and insight across the charity.
The team works closely with colleagues across the organisation, acting as trusted advisers and ensuring financial integrity while enabling our services to deliver life‑changing support to veterans and their families.
In return we can offer you:
- Belonging to a team who make a difference to our community and value equality, diversity and inclusion.
- 29 days’ annual leave plus 8 bank holidays, regardless of service — plus your birthday off to celebrate!
- Opportunity to buy and sell up to 5 days annual leave per year.
- Added to our free health scheme from day one, including discounts on dental, opticians, massages, and more - with the option to upgrade.
- 3 volunteer days per year to support the Help for Heroes community.
- A generous salary sacrifice pension scheme with an 8% employer contribution and a minimum 3% employee contribution, plus life insurance up to 4× salary as an active member.
Closing date: 10th May 2026
Please note: We may close this vacancy early should we receive a high volume of strong applications.
The client requests no contact from agencies or media sales.
JOB TITLE: Parent Partner
RESPONSIBLE TO:Peer Services Lead for England
HOURS OF WORK:As per individual terms
GRADE/SALARY:Grade 2.4/ £24,479
LOCATION:Home based
TYPE OF CONTRACT:Permanent
MAIN PURPOSE OF THE JOB
Provide peer support services via the transition service for One Adoption. You will support individual families with peer to peer goal-based intervention servicedeliverable via 6 sessions of support (1-1).
Provide peer support services via dedicated support phone line, bookable sessions & email cover. This will be delivered via rota’dsessions for the Eastern Region Peer Support Line.
MAIN DUTIES AND RESPONSIBILITIES
Direct 1-1 support
•To work with families to achieve agreed goal-based outcomes.
•To work to a plan for transition.
•To signpost families to relevant support.
•To provide 6 online support sessions of 1 hour via TEAMS covering the programme topics agreed within timescale.
•To follow a programme of support and monitor progress regularly.
•To empower families to work closely with schools, settings and relevant professionals encouraging them to build and strengthen relationships.
•To complete admin and paperwork relevant to the family including evaluation paperwork.
Support Line
•Following a scheduled work pattern, respond to adopters calling in to alive phone line, providing a listening ear & signposting to relevant resources/information.
•Following a rota ensuring bookable sessions are responded to, listening & signposting where required
•Monitor & respond to emails within your scheduled shifts.
•Ensure feedback texts are sent at the end of each interaction with a caller.
General
•Retain accurate records in accordance with Adoption UK policy and practice, complying with GDPR legislation.
•To ensure compliance with appropriate Adoption UK policies and procedures
•To carry out such other duties as may be deemed necessary.
•Ensure all admin tasks are carried out within a timely manner, Evide updated.
PERSON SPECIFICATION
EXPERIENCE, EDUCATION, QUALIFICATIONS & KNOWLEDGE
•Personal experience of adoption. (essential)
•Sound knowledge of current adoption issues, or a strong interest in developing such knowledge (essential)
•Experience within the education setting (desirable)
•Experienced mentor or similar support role. (essential)
•Experience of supporting families in group settings as well as 1:1 (desirable)
•A good understanding of One adoption RAA(s) systems and adoption landscape (desirable)
•Safeguarding – understanding of safeguarding policies and procedures (essential)
•Good working knowledge of how to use social media and a range of online platforms with confidence. (essential)
SKILLS AND ABILITIES
•Work and act on own initiative (essential)
•Work to deadlines and tight timescales and reporting around progress (essential)
•Flexible and able to work purposefully from home (essential)
•Excellent communication skills or verbally and written (essential)
• Group facilitation skills (essential)
•Good empathic listening skills, able to deal with issues in relation to significant trauma and loss (essential)
•Ability to organise and hold meetings, including by telephone and online (essential)
•Excellent IT skills including Teams, Outlook and Zoom or a willingness to learn (desirable)
•Ability to maintain confidentiality at all times. Aware of GDPR, particularly around holding information at home (essential)
•Ensure that internal policies and procedures are complied with. (essential)
BEHAVIOURS
•Supports, encourages and motivates adopters and families (essential)
•Values transparency and consistency (essential)
•Understands the role of individual and collective accountability (essential)
•Has a clear understanding of other colleagues’ roles and responsibilities (essential)
•Approachable and friendly (essential)
•Confident in 1:1 and group settings (desirable)
•Ability to empower and work in partnership with families (essential)
•Shares skills and knowledge appropriately (essential)
•Offers outstanding service to service users (essential)
•Takes pride in Adoption UK and promotes its values in all interactions with external stakeholders (essential)
•Willingness to learn new skills (essential)
Adoption UK is the leading charity for adopted and care experienced people and adoptive families.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are looking for an Activity Plan Consultant to draft RGB Kew’s Activity Plan, which forms a core part of our second round application for the National Lottery Heritage Fund.
If you’re a senior bid writer or experienced development lead, with a sharp eye for detail, please be in touch and/or share the role with your network.
This role will focus on shaping a clear, compelling and fundable narrative, drawing together existing materials and stakeholder input to demonstrate a well-evidenced, audience-focused programme.
The activity programme will expand engagement with diverse audiences, integrate co-production within learning and participation and strengthen inclusive access during the closure of the Palm House.
We are building on Kew’s successful first round application to develop our second round submission. We are looking for someone who can draw on existing materials and create a compelling narrative that demonstrates that our programme of activities are well designed and relevant.
We are looking for someone who can:
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Synthesise a wide range of inputs into a coherent Activity Plan
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Align the programme with NLHF priorities and outcomes
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Clearly articulate relevance, need, and impact
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Ensure the programme is robust, deliverable and well evidenced
Available immediately to join us on a contract basis.
Applications by 6 May.
Please get in touch if you would like further information. We look forward to hearing from you.
To apply for this consultancy work, apply with the following information:
- A CV of your experience and cover letter (optional, no more than two pages)
- Two relevant examples of report drafts or writing examples.
- An indication of the number of days required to deliver this work and consultancy
rates (see timescales above).
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Description:
We are seeking a Health and Science Information Manager to lead the development of highquality health information and research communications for people affected by polycystic kidney disease (PKD). This is an exciting opportunity to shape how individuals access, understand and engage with trusted information throughout their journey, from diagnosis and day-to-day management, to the latest scientific and clinical research developments. In this role, you will oversee our extensive portfolio of patient information resources, ensuring all content is accurate, accessible, evidence-based and aligned with the PIF TICK quality standard. You will identify opportunities to create new and engaging resources that meet the evolving needs of the PKD community, using innovative approaches to improve how information is delivered across multiple channels. A key part of the role will be translating complex scientific and medical research into clear, compelling and patient-friendly content. You will help increase awareness of clinical research opportunities, communicate emerging developments in PKD science, and support greater understanding of how research can shape future treatments and care. We are looking for someone with strong strategic thinking, excellent editorial judgement, and the ability to communicate complex health and scientific information with clarity and empathy. This role would suit someone passionate about improving lives through trusted health information while helping connect people to the future of PKD research.
RESPONSIBILITIES:
Health information management and quality:
• Support the development and management of the PKD Charity’s health information portfolio across digital and print platforms
• Ensure all content meets PIF TICK standards, including robust processes for development, review, updating and governance
• Maintain oversight of the full information catalogue, ensuring content is accurate, consistent and aligned with current clinical guidance
• Work with clinicians, researchers, and people with lived experience to co-produce and review content Content development and user need
Content development and user need:
• Identify gaps in current provision and lead the development of new information resources
• Ensure content is clear, accessible, inclusive, and tailored to the needs of different audiences
• Use patient insight, feedback and data to continuously improve the quality and usability of information Innovation in information deliver.
Research and science communication:
• Explore new ways of delivering information beyond written formats (e.g. video, audio, webinars, digital tools)
• Improve how information is presented and accessed across the website and other platforms
• Stay up to date with best practice in health information and digital engagement Research and science communication
• Monitor developments in PKD research, treatments, and clinical trials
• Translate complex scientific and medical information into clear, engaging, and accurate content for non-specialist audiences
• Work with the Communications Manager and wider colleagues to plan integrated campaigns, awareness activity and audience engagement.
• Develop compelling stories, updates and features that bring research to life and show its relevance to people affected by PKD.
• Work with colleagues to increase awareness, understanding and interest in PKD research.
Building engagement with research:
• Help create a culture of interest and engagement in research across the PKD community
• Develop content that builds understanding of how research works and why it matters
• Support communication around studies and clinical trials to ensure patients feel informed.
Collaboration and stakeholder engagement
• Work collaboratively across the organisation to ensure consistency and alignment in messaging
• Build relationships with healthcare professionals, researchers, and external partners
• Involve patients and volunteers meaningfully in content development and review
Quality, monitoring and impact:
• Monitor the reach and effectiveness of health information and research communications
• Maintain accurate records of content review cycles and updates in line with PIF requirements
• Use insight and evaluation to continuously improve content and delivery
ABOUT YOU:
• Strong Content and Editorial Skills: You have experience producing high-quality written content, with excellent attention to detail and the ability to present complex topics clearly and accurately.
• Health or Science Communicator: You have experience working with health, medical or scientific information and can translate technical material into accessible language for public audiences.
• Collaborative Relationship Builder: You work well with others, build positive working relationships quickly, and enjoy partnering with colleagues across different functions to achieve shared goals.
• Confident Team Player: You are comfortable working closely with colleagues such as communications, fundraising, support and leadership teams, contributing ideas and supporting collective priorities.
• Strategic and Proactive: You can see the bigger picture, identify opportunities for improvement and take initiative to drive projects forward.
• Organised and Self-Motivated: You are comfortable managing your own workload, balancing priorities and delivering high-quality work in a remote setting.
• Values-Driven: You are motivated by improving lives, empowering patients with trusted information and supporting progress in PKD research.
HOW TO APPLY:
For information on how to apply, please read the job pack for further details.
The client requests no contact from agencies or media sales.
Job Description
Job Title: Digital Content Officer – SEND
Responsible To: Senior Parent Adviser - SEND
Team Membership: Helpline/IAS- (Information, Advice and Family Support Directorate)
Hours: 14 hours a week
Salary scale:
Scale point 26
£32,168.00 FTE
£12,867.20 – actual (14 hours a week) plus £26.00 a month home working allowance
Contract: Fixed – until 31 March 2027
Location: Home based - UK
Job Purpose:
To write engaging plain English website copy on SEND law and related education law matters in England.
To help ensure the provision of quality information, advice and support to parent carers.
Main Duties:
To write quality plain English copy for the Contact website.
To review, edit and update existing SEND and education related copy on the Contact website.
To work with the education helpline team to identify and prioritise the information and advice needs of parent advisers and parent carers.
To write and develop content to respond to common SEND and related education law concerns of parent carers.
To help ensure our information and advice reaches more families by working with the comms team to promote our IAS through social media, and digital channels.
To build positive working relationships with colleagues, contributing to a culture of mutual respect, trust, and shared responsibility.
To respect diverse experiences and perspectives within the team and contribute constructively to problem‑solving and decision‑making.
Demonstrates awareness of education legislation, statutory guidance, and good practice in England.
A commitment to the provision of quality information and advice.
General duties
In common with all Contact staff, the post holder will be expected to work in accordance with the aims of Contact and to observe the policy and procedures set out by the directors of the charity.
The post holder will be expected to assist with any reasonable duty at the request of the line manager for the post.
Staff will be expected to attend and participate in Contact staff meetings and the staff annual conference.
Staff will be expected to attend training events relevant to their specific responsibilities.
Staff will be offered supervision, support and annual review s incorporating their training needs.
The client requests no contact from agencies or media sales.
Role Purpose
The Salesforce Administrator delivers high‑quality configuration, development and support of the organisation’s Salesforce platform to ensure it effectively enables Trussell’s strategic and operational goals. The role designs and maintains CRM solutions, manages enhancements and supports users to adopt efficient, data‑led ways of working. By ensuring a stable, well‑governed and continuously improving Salesforce environment, the role strengthens organisational effectiveness and enhances decision‑making across teams.
This role is part of Trussell’s Knowledge Transformation (KT) Programme. The Knowledge Transformation programme is an enabling programme at the heart of Trussell’s strategy, focused on gathering, curating and sharing our collective knowledge so that it can be used effectively to drive our mission. It brings together our systems, data, insight, and ways of working to ensure that the right information is available to the right people at the right time. By strengthening our technology, improving data quality and access, and building confidence across teams and food banks to use insights effectively, KT enables more informed decision-making, stronger collaboration, and greater impact across all our programmes.
Key Responsibilities
· Design and delivery effective Salesforce solutions.
Design and delivery effective Salesforce solutions by analysing user needs and translating them into Salesforce requirements and configurations to deliver reliable, user-centred solutions to improve workflows and system performance
· Co-ordinate CRM project delivery.
Work with the internal and external stakeholders to manage multiple CRM change projects, co-ordinating requirements, testing and deployment to ensure timely, high-quality delivery
· Manage Issue resolution and enhancements.
Work with external suppliers and internal teams to troubleshoot issues, deliver enhancements and oversee changes, ensuring solutions follow best practice and meet organisation needs,
· Enable and support Salesforce user adoption.
Enable and support user adoption of Salesforce by providing user support training and documentation to strengthen system understanding and ensure consistent, confident use of Salesforce across Trussell.
· Maintain and Improve Data Quality.
Monitor data quality and proactively resolve issues, guiding teams to maintain accurate, consistent data that strengthens reporting and decision-making
· Drive continuous Salesforce Improvement.
Continuously improve the Salesforce platform and ways of working by staying informed of Salesforce developments, identifying opportunities for improvement and to contribute to the ongoing enhancement of CRM processes and functionality
Person Specification
Core Knowledge
· Salesforce platform administration principles, including configuration, data management and security
· Salesforce Nonprofit Success Pack (NPSP) or Non-profit Cloud structure, objects and functionality
· CRM design principles, including process mapping, user experience and data governance
· Understanding of data quality, data protection and good information management practice
· Experience with third-party products such as Demand Tools, Click Deploy, Form Assembly, Own Backup, Apsona
Essential Skills
· Stakeholder management and the ability to influence and guide others to adopt best practice
· Ability to effectively communicate complex technical content to non-technical audiences.
· Strong analytical and problem-solving skills, with the ability to interpret requirements and translate them into technical
· Effective planning, organisation and prioritisation skills to deliver multiple tasks and projects in a multi-stakeholder environment
· Collaboration and teamwork with the ability to work across different internal and external teams and functions
· Ability to manage testing, documentation and change processes in a structured and consistent manner
Key Experience
· Experience delivering Salesforce configuration and administration in a professional setting
· Experience managing CRM-related projects or workstreams
· Experience working with complex CRM datasets including imports, updtes and data quality activities
· Experience collaborating with technical vendors or consultants to deliver enhancements or troubleshoot issues
Special Requirements
· Salesforce Certified Administrator/NPSP Certified.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Shine supports a community of over 15,000 members living with spina bifida and/or hydrocephalus, including 5,000 children and young people (0–25).
You will be delivering high-quality support and creating opportunities for children and young people living with spina bifida and/or hydrocephalus and their families/carers. Supporting Shine members to lead healthy, independent, and fulfilling lives by improving condition management and fostering connections within the Shine community.
This role will focus on children and young people (0–25), you will be primarily working within the Children, Young People and Families team. However, there will be occasions when you will work across age groups to ensure the best outcomes for our members.
The role is home-based but you will be required to attend regular clinics in London including GOSH (Great Ormond Street Hospital). Other travel across Southern England including Bristol, Devon and Hampshire may be required. There will be occasional travel required across wider areas and nationally including attendance at events, conferences and meetings at our head office in Peterborough.
Benefits:
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Competitive salary: Review due April 2027
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Regular working hours, and no shift work (some very occasional weekends or evenings)
-
3% pension contribution
-
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
-
Additional annual leave awarded for ‘long service’
-
Opportunity to purchase additional annual leave
-
Broadband allowance for home-based roles
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Life insurance after 12 months’ employment
-
Access to our Employee Support Programme and Mental Health First Aiders
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Support to learn and develop
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role please email Gill Valentine, Deputy CEO, to arrange a convenient time for a call.
To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria.
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 17th May 2026 at 11pm
Interviews: Tuesday 26th May 2026 (Virtual)
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Please see full details on the Job Description and Person Specification document below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Role Overview
You will be part of Shine’s specialist Health Team, providing condition-specific health advice and support to people of all ages living with spina bifida, hydrocephalus, Normal Pressure Hydrocephalus (NPH) or Idiopathic Intracranial Hypertension (IIH). You will support delivery of, delivering an established, evidence-based programme, promoting good self-management and care, and enabling our members to live in optimum health.
You will deliver high-quality, person-centred physiotherapy assessments, treatment, and advice to children, young people and adults with a wide range of physical needs, enabling them to maximise independence, function, and quality of life.
The role is home or hybrid based; member contact is predominantly via phone and video calls.
This job role is an exciting opportunity to join our specialised service delivering spinal stimulation. You will be attending a 2-day physiotherapy clinic once a month. Clinics take place on a rolling programme of one location per month, current locations include Birmingham, Bristol, Leicester, Leeds and Oxford but these may vary.
There will be occasional travel required across wider areas and nationally including attendance at conferences and meetings at our head office in Peterborough.
Benefits to working at Shine
-
Competitive salary: Review due April 2027
-
Regular working hours, and no shift work (some occasional weekends or evenings)
-
3% pension contribution
-
25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
-
Additional annual leave awarded for ‘long service’
-
Opportunity to purchase additional annual leave
-
Broadband allowance for home-based roles
-
Life insurance after 12 months’ employment
-
Access to our Employee Support Programme and Mental Health First Aiders
-
Reimbursement for HCPC registration
-
Support to learn and develop including specialist training for Spinal Stimulation and ongoing mentoring and clinal supervision.
How to apply
Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job.
If you would like to discuss the role in more detail or have any questions, please contact Lindsey Reid, Head of Health.
To apply please submit your CV and supporting statement*, which should outline your interest and explain how you meet the role criteria
*Please note applications without a supporting statement will not be accepted*
We understand that you may wish to use AI tools to help you with some aspects of your application, but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications.
Closing date: Monday 18th May at 11pm
Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible.
Interviews (virtual): Thursday 28th May 2026
Please see full details of the job description and person specification below and on our website.
Providing specialist advice and support for spina bifida and hydrocephalus



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Who we are
Every year, thousands of people in the UK face court alone. Often through no choice of their own, people must represent themselves at a moment that could have life-changing outcomes. This includes loss of access to children or homelessness. At the same time, people facing court alone may find themselves up against a party with legal representation. They are instantly at a disadvantage and overwhelmed by the enormity of the challenges they are up against. We supported unrepresented litigants in the civil and family courts in England and Wales over 45,000 times last year.
We provide a safe space with volunteers who listen to each client’s individual story. Last year, over 1000 volunteers helped people to get their thoughts in order, problem-solve and decide next steps, source relevant and reliable legal information, explain complex procedures, complete court forms, and clearly present statements.
At a time when legal support is increasingly limited, we have a vision that no one should have to face court alone.
To make this vision a reality, we have a focused communications strategy to ensure the charity has the brand, reach and impact it needs to connect with unrepresented court users and engage supporters.
Who we're looking for
Ambitious, professional, committed and friendly. That describes us. If it also describes you and you have a passion for designing and iplementing volunteer training programmes, then we’re keen to hear from you.
We’re looking for a Training Project Lead to join our team on a 4-month contract. You’ll be leading on a project to improve our volunteer training programme, with a focus on supporting survivors of domestic abuse and incorporating a trauma-informed approach throughout the training package.
The role
The Training Project Lead will be based in the service department, and you’ll be supported by the Head of Service Delivery.
We’re open to applications from training professionals who are able to work remotely, and undertake some travel to our offices across England and Wales.
To apply, please send your CV and a cover letter about why you're the right person for the role via Charity Job.
Please note, that we have two roles advertised, both of which are short-term contracts and could be held by the same person, running the projects consecutively. You may wish to apply for both positions, and if that is the case please only complete one application, detailing clearly in the application that you are applying for both roles.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Who we are
Every year, thousands of people in the UK face court alone. Often through no choice of their own, people must represent themselves at a moment that could have life-changing outcomes. This includes loss of access to children or homelessness. At the same time, people facing court alone may find themselves up against a party with legal representation. They are instantly at a disadvantage and overwhelmed by the enormity of the challenges they are up against. We supported unrepresented litigants in the civil and family courts in England and Wales over 45,000 times last year.
We provide a safe space with volunteers who listen to each client’s individual story. Last year, over 1000 volunteers helped people to get their thoughts in order, problem-solve and decide next steps, source relevant and reliable legal information, explain complex procedures, complete court forms, and clearly present statements.
At a time when legal support is increasingly limited, we have a vision that no one should have to face court alone.
To make this vision a reality, we have a focused communications strategy to ensure the charity has the brand, reach and impact it needs to connect with unrepresented court users and engage supporters.
Who we're looking for
Ambitious, professional, committed and friendly. That describes us. If it also describes you and you have a passion for designing and iplementing volunteer training programmes, then we’re keen to hear from you.
We’re looking for a Triage Project Lead to join our team on a 6-month contract. You’ll be leading on a project to improve the way in which we triage our clients across our services, with a focus on supporting survivors of domestic abuse better, by enabling our volunteers to identify them earlier in the process and respond accordingly, incorporating a trauma-informed approach.
The role
The Triage Project Lead will be based in the service department, and you’ll be supported by the Head of Service Delivery.
We’re open to applications from professionals with experience of designing and implementing effective traiging processes who are able to work remotely, and undertake some travel to our offices across England and Wales.
To apply, please send your CV and a cover letter about why you're the right person for the role via Charity Job.
Please note, that we have two roles advertised, both of which are short-term contracts and could be held by the same person, running the projects consecutively. You may wish to apply for both positions, and if that is the case please only complete one application, detailing clearly in the application that you are applying for both roles.
The client requests no contact from agencies or media sales.
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.





