238 Senior supporter care officer jobs

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis (APF) is the UK’s leading patient charity dedicated to improving the lives of individuals and families affected by pulmonary fibrosis. Our mission is underpinned by values of compassionate, bold, expert and collaborative. We believe in creating a supportive environment in which both our employees and beneficiaries can thrive.

Founded in 2013 by people affected by PF and clinicians, APF has grown into a respected national charity rooted in community and evidence. We provide trusted information and support, help a growing network of support groups, campaign to improve access to care and invest in research to bring hope of new treatments. APF strives to be an organisation of equity and inclusion, welcoming people from all backgrounds – our team and volunteers aim to reflect the diverse communities we serve.

We have just launched an ambitious five-year strategy (2025–2030), co-created with the PF community, which focuses on expanding support, transforming care, and accelerating research. This strategy marks a step change with a clearer focus, stronger delivery model and greater ambition to ensure no one faces pulmonary fibrosis alone.

Role Purpose

We are looking for a Senior Education and Events Officer to coordinate and deliver our education and events programme for people affected by pulmonary fibrosis, healthcare professionals and wider stakeholders.

This is a hands-on role at the heart of APF’s work. You will plan and deliver education sessions, webinars, conferences and events, making sure they are welcoming, accessible, well organised and shaped around the needs of the people we support.

You will manage the full attendee journey, from registration and communications through to delivery, feedback and follow-up. You will also coordinate APF’s presence at external conferences, work with speakers, clinicians and partners, and help ensure people who engage with our events can easily access wider APF information, support and opportunities.

We are looking for someone with strong experience of organising events, education sessions, webinars, training or similar activity. You will be highly organised, confident working with a wide range of stakeholders and comfortable managing logistics, digital platforms, databases and attendee communications.

You will also be confident hosting or supporting sessions both online and in person, and able to use feedback and data to improve future activity.

This is a great opportunity to help APF deliver high-quality education and events that give people affected by pulmonary fibrosis practical information, reassurance and confidence throughout their journey.

To apply, please submit a CV and a covering letter of no more than two pages outlining your suitability for the role and how your skills and experience meet the requirements of the job description.

Interviews will be held on a rolling basis, so we encourage interested candidates to apply as soon as possible.

Absolute Support Leading Light (ASLL) is looking for an inspiring, values-led Chief Executive to lead the charity through its next stage of development. This is a significant opportunity for an experienced leader to work closely with the Board of Trustees, senior leadership team, staff, commissioners, families and the people we support to sustain and grow high-quality outreach and supported living services for people with learning disabilities and autism.

ASLL is a small local charity based in Richmond-upon-Thames supporting people with learning disabilities and autism. Founded in 2006 and registered as a charity in 2019, Absolute Support has built a solid reputation as a caring provider with a warm and supportive home setting for the people we support. Through our two community-based, supported living homes and via a small outreach service, we work to enable 11 young adults to live happy and meaningful lives.

You will lead a skilled and committed staff team within a welcoming and collaborative culture whilst being supported by the active and experienced board of trustees. The successful candidate will provide strategic direction, strengthen governance and quality assurance, oversee compliance with statutory and regulatory requirements, and act as the organisation's lead spokesperson.

Job title: Chief Executive Officer.

Location: Office-based at ASLL's Teddington office, with regular travel to the locally based client sites.

Working hours: 24 hours (3 days per week).

Salary: £60,000 FTE (£36,000 based on 24 hours per week).

Regulatory role: CQC Nominated Individual (designate) for ASLL's regulated activity, pending CQC registration.

How to apply:

Please review the Recruitment Pack for further information about ASLL, the CEO position and for details on how to apply.

Closing date for applications: 9am Monday 5 October 2026

Both ASLL and Harris Hill operate an equal opportunity policy and commit to treating all of our candidates and jobseekers fairly. We welcome and encourage applications from everyone regardless of age, disability, sex, gender reassignment, sexual orientation, pregnancy and maternity, race, religion or belief and marriage and civil partnerships.

Lead the next chapter for liver health in the UK

This is a unique opportunity to lead a respected and financially stable health charity at a pivotal moment of transformation.
Following a successful merger, the organisation has proudly just completed a full rebrand to Liver UK, bringing together services, information and advocacy across all ages. With a clear, trustee-approved strategy for 2026–2032 already in place, the next Chief Executive will focus on delivery, growth and national influence.

A strong platform and a planned transition

This role comes at a natural and positive point within a planned leadership transition.Our current Chief Executive has provided long-standing, successful leadership and is excited to hand over the rebranded charity for it to be led into its next phase of strategic development, sustainability and growth.
The incoming CEO will inherit a well-led organisation with strong governance, a clear strategic direction, and real momentum.

About the role

As Chief Executive, you will lead delivery of an established strategy, ensuring the organisation continues to grow its reach, impact and income.You will work closely with an engaged and supportive Board of Trustees to maintain high standards of governance, regulatory compliance and risk management, while strengthening the charity’s voice in national policy and public affairs.
This is a role that balances external influence with internal leadership, ensuring both impact and organisational resilience.

Key responsibilities

• Deliver a trustee-approved long-term strategy, refining priorities as needed
• Ensure robust governance, legal and regulatory compliance
• Lead policy, public affairs and national influencing activity
• Maintain financial sustainability and drive income growth
• Lead and develop a high-performing Senior Management Team
• Oversee delivery of high-quality services and information

About you

You are a credible and values-driven leader with senior experience in the charity, health or related sectors.
You will bring:

• Proven senior leadership experience at Director or Chief Executive Officer level
• Strong understanding of governance, finance and regulatory compliance
• Experience influencing policy and working with senior stakeholders
• A track record of delivering organisational growth and impact
• Excellent communication and relationship-building skills

You will be confident working with a Board of Trustees, able to build strong relationships, provide clear advice, and operate effectively in a governance-led environment. 

You will be motivated by improving health outcomes and confident leading an organisation with both national influence and strong operational delivery.

Why join us?

• A clear, trustee-approved strategy ready for delivery
• Strong governance, financial stability and organisational foundations
• A positive and well-managed leadership transition
• The opportunity to shape a newly unified, UK-wide charity
• A chance to make a meaningful difference in an under-recognised area of health
• A strong, engaged and motivated Board

A competitive salary will be offered, reflecting the experience, skills and leadership qualities of the successful candidate.

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Stewardship helps Christians to be the best stewards of the resources God gives them.  

Every year we support tens of thousands of people with everyday giving through to strategic philanthropy, and help thousands of churches, charities and Christian workers to strengthen their finance and governance.

We operate with the financial scope and technical complexity of a mid-sized financial services institution, but with a clear Christian mission at our heart. Amongst other things, we safely received and granted out over £134m from our Donor Advised Fund in 2025, deliver payroll services to over 900 clients each month, reach thousands with our products and campaigns, and still have ambitious plans to grow.

The Chief Digital Officer (CDO) will see digital and technology not simply as a function or infrastructure, but as a ministry enabler: creating the systems, platforms and experiences that enable increased generosity, strengthen churches and charities, and scale Kingdom impact. A key part of the role is enabling scalable growth across both Giving and Ministry Services, with a focus on platform development, product capability, data infrastructure, insight-led decision making and innovation.

This role is a new addition to a well-established Executive team, who work with high levels of trust, candour and care, and who value laughter, integrity and grace as much as strategic insight and financial acumen.

The CDO will need to work from our office near Barbican, London at least one day a week. 

About us

Royal Museums Greenwich (RMG) is a collection of diverse historical sites. The sites are the National Maritime Museum, Cutty Sark, the Royal Observatory, and the Queen’s House. Each of these sites has a unique identity and a common purpose to serve our communities, through sharing our collections and expertise. We are a place to explore the sea, space, art and history, and our strategy ‘Charting Our Course’ puts people at the core of its success.

First Light

The Development Team secures vital funding to support core programming and public engagement, exhibitions, collections care and major capital projects at Royal Museums Greenwich. We work with philanthropists, companies and trusts & foundations, building a community of generous and loyal supporters from our Patrons Circle and legacies to major grants and corporate partners. Our current focus is to secure a team target of £2M revenue income in this financial year, and deliver the funding needed to deliver First Light, a landmark capital transformation of the Royal Observatory Greenwich.  

First Light is an £85M project to deliver an ambitious schedule of much needed repair to the unique built heritage, vital capital improvements to the site plus an embedded programme of activities to build the nation’s science capital. A focus on physical, cultural, intellectual and financial access will ensure that everyone can enjoy, and benefit from, all the Observatory has to offer.

Aiming to break ground winter 2025 and reopen in spring 2028, First Light will affirm the Royal Observatory as THE centre for the public understanding and enjoyment of astronomy - a place of awe and wonder.

This is an exciting time to join the Development Team as we begin to plan a high-profile public campaign, seek to secure a principal gift to close the campaign and liaise with our ambassadors to build our reach and reputation.

The Role

Reporting to the Senior Manager: Development Business Operations, the Campaign Manager, First Light will deliver vital fundraising activity in support of this capital campaign - working with colleagues to maximise fundraising opportunities, engage supporters and ensure the successful delivery of campaign events, communications and donor engagement activity.

Key responsibilities include to lead delivery of the First Light fundraising campaign to agreed objectives and timescales through the creation of fundraising materials and webpages and the delivery of a successful public fundraising campaign. The role will manage regular campaign communications for all stakeholders, co-lead on the organisation and delivery of a gala fundraising dinner in 2027 and coordinate major donor meetings and events for the campaign. There is also the opportunity to travel through the management of a fundraising visit to the USA in 2027.

The successful candidate will have demonstrable experience of planning and delivering events. They will have excellent organisational skills, with the ability to manage multiple tasks. They will also have excellent written and verbal communication skills, as well as strong teamworking skills, with the ability to build productive working relationships. 

This is a full-time, fixed term role until 30 June 2028 in Band 5 - Management and Proficient Specialists. Core hours of work will be 36 hours per week, Monday to Friday between 9am - 5pm, with an additional hour to be agreed upon with management. Occasional evening and weekend working will be required to ensure the successful delivery of First Light campaign events.

Salary: £38,568 per annum.

Prospective candidates are encouraged to read the attached Job Description and Person Specification before applying.

Please be aware that we are unable to sponsor visas.

Please also note that due to our commitment to internal opportunities for current staff, internal candidates will be considered first for this role.

Interviews are pencilled in for the week commencing Monday 5th October.

Benefits

We offer:

•    A generous pension scheme
•    22 days annual leave (rising to 25 after 1 year) plus bank holidays 
•    40% discount in our cafés, 30% in our shops
•    Interest-free loans (travel, bike, gym, learning)
•    Free Life Assurance Scheme covering you for 2 times your annual salary
•    Free entry to exhibitions at partner museums and galleries
•    Flexible and hybrid working options
•    A culture that celebrates individuality, collaboration, and innovation

To find out more, read a full list of our benefits.

EDI

Diversity and inclusion are integral to our work at Royal Museums Greenwich, as we are a museum for everyone. We want to foster a spirit of inclusion, collaborative working, innovation, and valuing people as individuals whose lives have been shaped by different experiences. Therefore, we welcome applications from everyone.

We actively work with Disability Confident scheme and ask that you let us know if there are any reasonable adjustments you need or things you would like us to know during the interview process, which may include being provided with the interview questions in advance, requiring a step free interview space, that you are eye-contact avoidant, or having the interview questions in a written format or additional time in timed tests, interviews or other assessment activities.

About Us

Royal Museums Greenwich is a collection of diverse historical sites. The sites are the National Maritime Museum, Cutty Sark, the Royal Observatory, and the Queen’s House. Each of these sites has a unique identity and a common purpose to serve our communities, through sharing our collections and expertise. We are a place to explore the sea, space, art and history, and our strategy ‘Charting Our Course’ puts people at the core of its success.

The Role

The Development Team secures vital funding to support core programming and public engagement, exhibitions, collections care and major capital projects at Royal Museums Greenwich. We work with philanthropists, companies and trusts & foundations, building a community of generous and loyal supporters from our Patrons Circle and legacies to major grants and corporate partners. Our current focus is to secure a team target of £2M revenue income in this financial year, and deliver the funding needed to deliver First Light, a landmark capital transformation of the Royal Observatory Greenwich.

This is an exciting time to join this busy, tight-knit fundraising team, to work across all fundraising disciplines and to play a vital role in our future success.

Reporting to the Senior Manager: Development Business Operations, and working with all our fundraisers, the post holder will play a vital role in creating action led prospect pipelines.  

Key responsibilities include the identification and assessment of new prospective donors to increase Royal Museums Greenwich's donor pool - based on a solid understanding of current projects and priorities. Prospect pipeline activity will be supported by detailed research profiles and due diligence, ensuring that fundraisers are informed and focussed and to ensure prospect cultivation actions and deadlines are regularly recorded, kept on track and on target.

The role is responsible for maintaining the department's systems, processes and data - always aware that effective management maximises income generation and donor engagement and always seeking improvement in these areas. This role has responsibility for day-to-day management of, and training on, the fundraising database: Blackbaud’s RE NXT. The database is a vital tool in recording fundraising opportunities and actions, recording gifts, stewardship and donor interactions with Royal Museums Greenwich. As such, a good understanding of data protection law and how it is applied will play a large part in this role.

The successful candidate will have a track record in successful research, an interest in the heritage sector, and will demonstrate strong writing and analytical skills. They will be able to work on their own initiative, as well as having an understanding of the importance of data management and how process improvement can lead to more efficient working.

This is a full-time, permanent role in Band 6 - Management and Competent Specialists. Core hours of work will be 36 hours per week, Monday to Friday between 9am - 5pm, with an additional hour to be worked as agreed upon with management. Occasional evening working will be required - as part of the wider team - to support fundraising events.

Salary: £31,400 per annum.

Prospective candidates are encouraged to read the attached Job Description and Person Specification before applying.

Please be aware that we are unable to sponsor visas.

Please also note that due to our commitment to internal opportunities for current staff, internal candidates will be considered first for this role.

Interviews are pencilled in for the week commencing Monday 5th October.

Benefits

We offer:

•    A generous pension scheme
•    22 days annual leave (rising to 25 after 1 year) plus bank holidays 
•    40% discount in our cafés, 30% in our shops
•    Interest-free loans (travel, bike, gym, learning)
•    Free Life Assurance Scheme covering you for 2 times your annual salary
•    Free entry to exhibitions at partner museums and galleries
•    Flexible and hybrid working options
•    A culture that celebrates individuality, collaboration, and innovation

EDI

Diversity and inclusion are integral to our work at Royal Museums Greenwich, as we are a museum for everyone. We want to foster a spirit of inclusion, collaborative working, innovation, and valuing people as individuals whose lives have been shaped by different experiences. Therefore, we welcome applications from everyone.

We actively work with Disability Confident scheme and ask that you let us know if there are any reasonable adjustments you need or things you would like us to know during the interview process, which may include being provided with the interview questions in advance, requiring a step free interview space, that you are eye-contact avoidant, or having the interview questions in a written format or additional time in timed tests, interviews or other assessment activities.

This is a unique opportunity to lead fundraising for a charity at the cusp of substantial growth, with an exceptional track record of recent fundraising success, an engaged base of supporters and significant untapped potential across multiple channels.

Overview
As Director of Fundraising and Development for Plum Village UK, you will provide strategic leadership of the charity’s fundraising at this critical juncture. Building on the successful campaigns that brought our new Being Peace Practice Centre into being, you will lead the development of a sustainable, diversified fundraising operation across donor stewardship, trusts and foundations, regular giving, legacies, and partnerships, to deepen relationships of trust and gratitude with our supporters.

This role is ideal for a fundraising leader, whether from a career fundraising background or another field, who brings strategic capability alongside deep alignment with the Plum Village tradition, where fundraising itself becomes a form of engaged practice in service of mindfulness and community transformation.

Fundraising in the Plum Village tradition is fundamentally relational. It is not a matter of extracting income from a base of supporters, but of deepening the relationships of trust, gratitude and shared purpose with those who make our work possible, in ways that embody the values of the tradition. Done well, fundraising is itself a form of engaged practice. The Director will be expected to lead the function in this spirit.

The role comes with a high level of strategic ownership. An initial fundraising strategy has been developed and shared with trustees, providing a framework of priority channels, governance arrangements and resourcing for the next phase. The new Director will inherit this as a starting frame, and will then be empowered and expected to develop, refine and bring forward a fundraising strategy on their own authority, working closely with the Lead Trustee for Fundraising and presenting proposals to the board as appropriate. The role also carries operational ownership of the fundraising mechanics, including the choice and management of supporting systems, databases and tools.
 

Key Responsibilities

Strategic leadership of fundraising

• Lead PVUK's fundraising strategy, developing and refining the strategic direction, and presenting proposals to the Board for approval and resourcing.

• Set, monitor, and report on fundraising targets across all income channels, in agreement with the Lead Trustee for Fundraising and the Board.

• Provide regular substantive updates on fundraising at quarterly board meetings, working with the Lead Trustee on the preparation of board-level reporting.

• Bring forward analysis and proposals to support the Board in setting wider strategic priorities, including realistic income potential by channel and the investment required to secure it.

• Identify and manage risk in the fundraising portfolio, including channel concentration, donor over-reliance, and the sustainability of resourcing.

Donor stewardship and relationship development

• Lead the stewardship of PVUK’s existing donors, lenders, and supporters with the depth of care that this base deserves, recognising it as the most precious resource of the fundraising function.

• Cultivate and deepen relationships with major donors, including through personal contact, site visits, and tailored communication of impact.

• Work with the Chair of Trustees, the Centre Director, and other senior figures on key relationships that require their involvement.

• Steward the friendly lender base throughout the lifetime of their loans, maintaining trust and keeping them informed of the charity’s progress.

• Build and maintain a culture of gratitude and recognition that appropriately honours the contributions of all supporters.

Income channel development

• Lead delivery and growth across PVUK’s priority fundraising channels: donor stewardship, trust and foundation fundraising, regular giving, legacies and Gifts in Wills, and partnerships with values-aligned organisations and networks.

• Develop trust and foundation fundraising as a substantial new income stream, including scoping aligned funders, building peer-to-peer introductions, constructing tailored funding propositions, and overseeing high-quality application writing and reporting.

• Design and grow a regular giving programme that converts members, retreatants and supporters into ongoing monthly donors.

• Develop a structured legacy and Gifts in Wills programme that normalises legacy giving across PVUK’s communications and supports those who wish to leave a Gift in their Will.

• Develop partnerships with values-aligned organisations and networks where these support both income generation and the wider reach of PVUK’s work, in close consultation with monastics and trustees.

Operations, systems and budget ownership

• Own the operational mechanics of fundraising for PVUK, including the choice, configuration and ongoing management of databases, donor management systems, online giving platforms, and integration with communications tools.

• Manage the fundraising budget, including a discretionary supplementary budget for consultancy, training, materials creation, contracted support and light administrative resource, deployed at the Director’s judgement to develop the function effectively.

• Maintain accurate, GDPR-compliant supporter records and ensure sound data practices throughout the fundraising operation.

• Provide accurate financial reporting on fundraising performance, working with PVUK’s finance function and external accountants as required.

• Make the case for additional resourcing where evidence of need supports it, including the possible recruitment of a Fundraising Officer in due course.

Communications and storytelling

• Lead the development of compelling fundraising narratives that authentically convey the work of PVUK and the Being Peace Centre to multiple audiences, including major donors, institutional funders, individual supporters and the wider public.

• Work closely with the PVUK Communications team on the integration of fundraising communications with the wider communications strategy.

• Commission and oversee the production of fundraising materials, including written content, graphic design, video and digital assets, drawing on contracted specialists where appropriate.

• Ensure that all fundraising messaging about the Being Peace Practice Centre is agreed with the Centre Director before publication.

Working partnerships across PVUK

• Work in close partnership with the Centre Director on all matters relating to Being Peace, with agreed ways of working on messaging, external representation, and any programming commitments made to funders.

• Work with the Lead Trustee for Fundraising as primary day-to-day point of contact at board level, supporting the Lead Trustee to hold strategic oversight of fundraising on behalf of the Board.

• Work with colleagues across PVUK’s communications, dharma programming, sangha-building and partnership functions, with these working relationships developing naturally in the first months of the role.

• Draw on external advisors and specialists as needed for support and assurance, both in technical fundraising disciplines and in sector-specific knowledge.

• Engage volunteer capacity from within the community where this can valuably supplement the fundraising operation.

Location: Contracted to our Peterborough office with the flexibility for hybrid working
Salary: £29,000 – £34,000 FTE depending on experience
Hours: Full time, 37.5 hours per week (part time considered, minimum 30 hours per week with office attendance at least every 2 weeks)
Contract: Permanent

Benefits: We want all our employees to feel valued and engaged and are committed to offering a positive working culture along with a good work-life balance. As well as ensuring we pay our employees fairly, we offer the following benefits: Flexible working, Generous annual leave, Private Medical Insurance, including dental and optical, Pension Scheme, Sick Pay, Death in Service, Employee Assistance Programme, Bike Loan Scheme, Cycle2Work Scheme, Eyecare, Discount Portal.

Be a part of an energetic and vibrant team who are driven by the desire to improve the lives of people living with kidney disease. Our vision is the day when everyone lives free from kidney disease.

As a senior legacy officer, you will play a key role in delivering our legacy and in-memory programme, helping to amplify this significant area and drive income growth for the charity.

The Role

• Deliver and develop our legacy and in-memory giving programme, helping to grow this significant area of our fundraising income
• Plan and deliver acquisition and stewardship campaigns for legacy and in-memory supporters across a range of channels
• Build and maintain strong relationships with supporters, family members and colleagues, handling sensitive and personal conversations with care and professionalism
• Monitor, analyse and interpret campaign results, using insight to make recommendations for continuous improvement
• Work closely with colleagues across Individual Giving and the wider organisation to ensure a joined-up approach to legacy and in-memory marketing
• Ensure all activity is delivered in line with best practice, relevant regulations and Kidney Research UK's values

What We're Looking For

• Proven experience of delivering acquisition and stewardship campaigns across multiple channels within legacy and/or in-memory fundraising
• Excellent attention to detail, with the ability to interpret data and results to inform decision-making
• Strong relationship-building skills, both internally and with external supporters and stakeholders
• Confidence and sensitivity when handling emotive or personal conversations with supporters and their families
• A collaborative, proactive approach and the ability to manage multiple projects at once
• A genuine commitment to Kidney Research UK's mission and values

About Kidney Research UK:

Kidney Research UK is the leading charity in the UK focused on funding research into the prevention, treatment and management of kidney disease. Our vision is the day when everyone lives free from kidney disease and for more than 60 years the research we fund has been making an impact. But kidney disease is increasing, as are the factors contributing to it, such as diabetes, cardiovascular disease and obesity, making our work more essential than ever.

At Kidney Research UK we work with clinicians and scientists across the UK, funding and facilitating research into all areas of kidney disease. We collaborate with partners across the public, private and third sectors to prevent kidney disease and drive innovation to transform treatments.

Over the last ten years we have invested more than £71 million into research. We lobby governments and decision makers to change policy and practice to ensure that the estimated 7.2 million people living with all stages of kidney disease in the UK have access to the most effective care and treatment, and to make kidney disease a priority.

Most importantly, we also work closely with patients, ensuring their voice is heard and is at the centre of everything we do, from deciding which research to invest in to how we plan our priorities and our work across the charity. Those patient contributions are vital, always helping us and our partners to understand what life is like with kidney disease, always ensuring we see the patient behind the treatment and always reminding us that behind every statistic and every number is a person – the patients and the carers who inspire our mission and push us forward to make a difference and change the future of kidney disease.

How to Apply

Please complete the online application form and submit together with your CV.

Closing date: Tuesday 29 September 2026. We may extend the closing date, but please apply as soon as possible.

Telephone interviews will be held week commencing 5 October 2026. Interviews will be held week commencing 12 October 2026.

We are committed to providing equal opportunities for everyone and encourage applications from all sections of the community.

No agencies please.

You may have experience in the following: Legacy Officer, Legacy Fundraiser, In Memory Fundraiser, In Memory Giving Officer, Individual Giving Officer, Legacy Marketing Officer, Gifts in Wills Officer, Donor Stewardship Officer, Fundraising Officer, Supporter Relations Officer, Charity Fundraising, Legacy and In Memory Marketing, Not for Profit, NFP, Third Sector, Charities.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.  

The Senior Trusts and Foundations Officer is responsible for researching prospects, developing applications and managing deadlines to maintain and develop a strong portfolio of small and medium trust and foundation supporters, securing sustainable income for all aspects of The Brain Tumour Charity’s work in line with fundraising priorities.  This is an exciting opportunity to join a collaborative and ambitious team.

You will manage and maintain a pipeline of compelling and well-written applications and reports being submitted to small and medium trusts and foundations, ensuring excellent cultivation and stewardship of these relationships. You will work with a wide variety of people including funders, volunteers and colleagues across The Charity to gather the information you need. You will also research and identify new trust prospects, interpret funder priorities and carry out due diligence checks, updating our CRM database. The role works primarily within the Trusts and Foundations team, whilst also working with colleagues from the wider Philanthropy and Partnerships team to support cross-team activities and projects. 

For the right candidate, we will consider 4 days a week.

WHO WE'RE LOOKING FOR:

We are looking for an experienced trust fundraiser with a proven record of writing successful applications, achieving four and five figure sums and multi-year grants and stewarding these relationships. You will have the ability to develop detailed and creative proposals and supporting budgets, with excellent written communication skills, research skills and a strong eye for detail and accuracy. You will work well with other teams to gather information, be able to work independently, meet deadlines and prioritise your workload.

KEY ACCOUNTABILITIES:

• Responsible for identifying and researching trusts and foundations, conducting due diligence checks and building a pipeline of prospects whose funding priorities resonate with the work of The Charity. 
• Managed by the Trusts and Prospect Research Manager, develop and manage  a portfolio of applications and reports in accordance with deadlines and fundraising priorities.
• Submit relevant, professional and inspiring applications and project proposals to small and medium trusts, securing multi-year awards wherever possible.
• Work with multiple departments  to gather information, case studies, budgets and project updates to write  compelling applications and reports.
• Manage trust relationships by maintaining existing relationships and being aware of each trust’s preferences and requirements. Optimising giving potential and long-term support through excellent stewardship and donor care.
• Maintain reporting systems to record fundraising activity and income generation, using our CRM database.
• Deliver against agreed income and expenditure targets.

About Chain of Hope

Chain of Hope is an international children’s medical charity providing life-saving cardiac care to children in developing countries. Through a combination of overseas missions, training and patient transfers, we work to ensure that children with heart disease have access to treatment regardless of where they are born.

Senior Finance Officer

Chain of Hope’s Senior Finance Officer will support the Director of Finance and Operational Systems in delivering accurate and timely financial reporting, including contributing to the preparation of monthly management accounts, statutory financial statements, and budget monitoring. The postholder will take full ownership of the charity’s purchase ledger function and purchase order management ensuring robust financial controls and strong supplier relationships.

 Responsibilities:

• Key Lead on the purchase ledger function, including processing, reconciling, and maintaining supplier accounts.
• Oversee and support the Finance Assistant in preparing weekly supplier payment runs, ensuring compliance with organisational procedures and payment deadlines.

• Administer the purchase order workflow and Finance inbox, actively chasing outstanding invoices and resolving queries with requesters to maintain smooth processing. Raising purchase orders when necessary
• Supporting month-end activities, maintaining accurate records and clear audit trails.
• Credit Card – Distribute statements for coding and monitor their return to ensure compliance within the specified timeframe.
• Manage the end-to-end accounts payable process, ensuring timely and accurate payments in line with internal controls.
• Maintain and reconcile bank accounts, month-end reconciliations.
• Support the production of statutory accounts in accordance with the Charity SORP and liaise with external auditors.
• Work collaboratively with the Director of Finance and Operational Systems in developing and improving financial systems and procedures.
• Keep the Finance Policy updated and ensure that the document remains current.
• Provide financial insight and support to non-finance colleagues across the organisation.
• Assist with payroll processing and pension contributions, as required.
• Ensure compliance with internal controls, financial policies, and relevant legislation.

Personal Attributes & Skills:

Essential:

• Part-qualified or qualified by experience in accounting (e.g. AAT, ACCA, CIMA).
• Proven experience managing a purchase ledger and banking platforms.
• Strong understanding of charity finance and the Charity SORP.
• Proficient in accounting software (e.g. Sage) and Excel.
• Excellent attention to detail and analytical skills.
• Strong communication skills and ability to explain financial information to non-finance staff.
• Demonstrate adaptability, understanding and a commitmentto learning, fostering working relationships and effective team collaboration.

Desirable:

• Experience working in the charity or not-for-profit sector.
• Familiarity with restricted and unrestricted fund accounting.
• Experience supporting audits and liaising with external stakeholders.

How to apply:

To apply, please send your CV and cover letter.

Closing date: Friday 18th September 2026

Job titleChief Executive

ContractPermanent / Full time (35 hours a week)

Location London / hybrid (regular London presence)

Salary£95,000 - £100,000

Benefits Up to 6.5% matched pension, total contributions of 13%.
28 days annual leave per year plus public holidays.
Enhanced sick leave cover of up to 5 years.
Death in service benefit of 2x annual salary.
Employee Assistance scheme.
Working from home allowance.
Annual wellbeing allowance.

Reports to Chair and Board of Trustees

Direct reportsDirector of Finance and Operations
Director of Evidence and Improvement
Policy and Communications Manager
People and Business Partner

Background information

About us:

National Voices is the leading coalition of health and social care charities in England. We have more than 200 members covering a diverse range of health conditions and communities, connecting us with the experiences of millions of people. We work together to strengthen the voice of patients, people with Lived Experience, unpaid carers, their families and the voluntary organisations that work for them.

Our mission:

We advocate for a more equitable and person-centred health and care, shaped by the people who use and need it the most.

We do this by:

- Understanding and advocating for what matters to people, especially those living with health conditions and groups who experience inequalities

- Finding common cause across communities and conditions by working with member charities and those they support

- Connecting and convening charities, decisions makers and citizens to work together to change health and care for good.

Our five-year strategy:

In September 2024 we published a new five-year strategy that was co-produced with our staff, our member charities, our Lived Experience Partners and our key stakeholders. This set out three clear goals:

- End unequal access
By addressing the barriers experienced by those facing the worst outcomes, we will find solutions that improve care for all.

- Transfer power to people and communities
As a leader in co-production, we will help communities to work with system leaders at national and neighbourhood level to make big decisions together. This will maximise the skills and capabilities of patients, ensuring care is truly person-centred.

- Shift the measures of success
By campaigning for better patient experience and outcomes metrics, we can ensure that what matters to people becomes the key measure of success for the NHS.

In the first two years of the strategy we have already made big strides. For example, our work encouraging the Government to focus on “getting the basics right” has seen major policy initiatives designed to fix access to primary care and the 8am rush. Similarly, our work on the experience of waiting for elective care has seen the introduction of the first ever set of minimum standards for waiting.

Our work on the 10 Year Plan, and on the Quality Strategy, has also seen both patient experience and outcome measures given much greater prominence in how the NHS judges success and National Voices has now been commissioned by NHS England to help design the future of patient feedback mechanisms.

We have also successfully campaigned for funding formulas to be revised to enable the NHS to directly address the inverse care law and tackle the impact of health inequalities head on.

But there are challenges ahead, not least the role patients and communities play directly in co-producing improvement. With ICBs under huge financial pressures, and so much change in the health and care system, we need to make sure every piece of work we deliver is of the highest quality and adds real value. This is the only way to help others across the sector understand the value that people with Lived Experience offer to problem solving processes and creating better and more inclusive solutions.

PLEASE SEE RECRUITMENT PACK FOR FULL DETAILS AND APPLICATION GUIDANCE

To support Relationship Managers and Senior Relationship Manager in the delivery and servicing of programmes across the VCS Alliance, providing tailored administrative and coordination support appropriate to each programme's needs.

The post will also provide general support to all staff and trustees across the VCS Alliance to ensure our work can run smoothly and effectively. This is an entry level role, and full support and training will be provided.

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Terms and Conditions

Job title: Senior Advocate (Housing)

Reports to: Housing Lead

Direct reports: Housing Advocate

Start date: ASAP

Salary: £28,244.80 pro-rata (£35,306 FTE inclusive of £3,990 London weighting)

Working hours: Part Time – 28 hours per week across 4 days

Contract: Fixed-term until March 2029

Location: 1 day per week working from home, three days in the South West London Women’s Hubs or other appropriate venues.

Job Purpose

The Senior Housing Advocate will lead the delivery of housing support to women affected by the criminal justice system, homelessness and housing insecurity.

The role will provide housing advice and advocacy to women, while also supporting Housing Advocates with complex cases and day-to-day advice. The postholder will build relationships with housing, criminal justice and other services to help women access and keep safe and suitable accommodation.

The role will also help develop the Future Foundations housing programme, including housing surgeries, referral pathways and new ways of working. The Senior Housing Advocate will use learning from the service and women's experiences to help improve housing support and influence wider services.

Key Responsibility Areas

• Lead the delivery of high-quality housing support to women affected by the criminal justice system.
• Build and maintain relationships with housing, criminal justice and other services to improve access to safe and suitable accommodation for women.
• Provide advice, support and guidance to Housing Advocates and other colleagues, particularly around complex housing cases.
• Support the development and delivery of the Future Foundations housing programme, including housing surgeries, outreach and referral pathways.
• Use learning from the service and women's experiences to improve how housing support is delivered and help address wider barriers to housing.

Please download recruitment pack for the full job description