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The Charity and Our Vision.
For over 15 years, Scotty's Little Soldiers has been supporting children and young people who have been bereaved of a parent who served in the British Armed Forces. We are about to embark on an exciting journey which will see the charity evolve to support anyone affected by a military-connected bereavement and ultimately empower a community of more than 25,000 bereaved individuals and their families by 2035.
Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity currently offers a unique blend of emotional, practical, and educational support to over 750 young people.
We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles and believe in the power of community, resilience, and connection.
Role Mission.
To be an integral part of the delivery of Scotty’s new navigating entitlements casework (START) Programme, a single point of contact service designed to support anyone affected by military-connected bereavement.
This is a hands-on, and vital role within a brand new team. You’ll be the first step in ensuring that everyone in the bereaved military community receives compassionate, personalised, and well-coordinated support.
The key responsibilities of this role are:
Service Design & Delivery
Working closely with the Head of START, contribute to the planning and rollout of the START Programme
In many cases be the first port of call for Scotty’s families, and be a welcoming and inclusive contact for all those families
Implement the new service model, workflows, triage process and beneficiary journey
Ensure the service you deliver is trauma-informed, inclusive, and responsive to beneficiary feedback
Manage your own caseload with support from Head of START programme
Team Leadership & Development
Once your experience has grown, provide peer support to any further caseworkers joining the team in 2027 and beyond (depending on demand)
Ensure an ongoing focus on your own learning and development, always creating space for reflective practice
Ensure that you live the culture that reflects The Scotty’s Way and encourages your own personal growth
Be an active part of the wider Families team contributing to Daily Huddles and team plans and objectives
Collaboration & Partnership
Build and maintain, alongside the Head of START strong referral pathways with external organisations (military & non-military charities, NHS, social care)
Build your expertise on navigating entitlements for the bereaved community to ensure that Scotty’s families receive the best possible support.
Work collaboratively with other Programme teams to ensure consistency, shared learning & efficient internal referrals
Monitoring & Evaluation
Ensure that you are reporting consistently on beneficiary engagement, support outcomes, and follow-up actions
Work with your direct support to use evidence and insights gathered to adapt and improve the service over time
Ensure CRM records are complete, accurate, so they can be used to inform delivery decisions
Contribution to Charity-Wide Goals
Feed into cross-functional projects including Outreach, Fundraising, and Strategy
Act as a representative of Scotty’s at sector events or external meetings where appropriate
Support content development by sharing anonymised stories, insights, and themes
The 30-day goals for this role are:
Built a deep understanding of Scotty’s mission, our audience, the services we provide, and strategic direction.
Worked closely with the Head of START and other programme Heads to understand the history of Scotty’s helping families navigate entitlements, including reviewing current and recent cases.
Become familiar with the key stakeholders, partners and organisations (including statutory, charitable and others) for casework in the START Programme.
The 60-day goals for this role are:
Built confidence and knowledge around the START programme aims and objectives, and the needs of Scotty families.
Supported the Head of START to implement the new casework programme and beneficiary journeys.
Built understanding of the processes that are in place to monitor the outcomes and impact of the new START Programme.
Contributed to the design of a light CRM for initial use in START casework.
Supported the development of and started to build understanding of the necessary processes and procedures for casework including safeguarding, triage, wait time limits etc.
Started the training plan for new START caseworkers.
The 90-day goals for this role are:
Supported the launch of the new START Programme alongside Scotty’s team members.
Welcomed the first families to Casework following the processes and framework that the Head of START has implemented.
Worked with the Head of START to set a clear plan for the remainder of 2026 and beyond for the START programme, establishing it as a quality Scotty’s service for families.
Starting to provide outcomes and data that enable the programme’s outcomes to be evidenced.
About You:
Must-Have
Experience in service delivery, casework, and personalised support services
Ability to work independently and manage a busy, varied caseload
A compassionate and person-centred approach to casework
Excellent organisational and communication skills
A clear understanding of safeguarding vulnerable adults
Nice-to-Have
Familiarity with military family life or bereavement support
Background in information, advice and guidance within the charity or statutory sector
An understanding of the importance of service co-design with users or lived experience groups
Additional Information
The role will require some evening or weekend work
Enhanced DBS check required
Travel will be required to events and team training days
The Scotty’s Way
At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:
Families Come First
Everyone a Supporter, Every Supporter a VIP
Love What You Do
Remember, Every Day
Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Take Ownership and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.
Closing date: 15th May 2026. Due to resource and time constraints, we are unfortunately unable to provide feedback for every application received and will only contact candidates shortlisted for an interview.
Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.
We do not discriminate based on race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.
We encourage all qualified individuals to apply for employment within our charity, and we provide a fair and inclusive recruitment process for all candidates.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Release Counselling and Therapy for Women is entering an exciting new chapter.
Founded in Brighton and Hove in 2013, Release has grown from a small local charity into a financially robust organisation with a growing national reach. Under the leadership of our outgoing CEO, the charity has been transformed—moving from a challenging financial position to one with strong reserves, clear sustainability, and ambitious plans for growth.
We now provide affordable 1:1 online counselling to women across the UK, alongside specialist group programmes supporting maternal mental health and key life transitions. One-to-one counselling is a core offer and a vital income stream, enabling us to extend our reach while staying true to our values.
This period has also seen Release grow to working with over 20 dedicated volunteer counsellors, strengthening our capacity and community impact.
As our CEO steps down, Release is ready for its next phase—building on strong foundations, amplifying our national impact, and remaining firmly rooted in our purpose: being a charity that supports women’s mental health, run by women, for women.
The client requests no contact from agencies or media sales.
Divisions Committee Administrator
£25,590 - £27,793 pa, plus excellent benefits
Birmingham (including flexible working)
The Royal College of Psychiatrists is looking to appoint an efficient and driven individual to support our Divisions’ executive committees.
Taking your own initiative will come as second nature and you will enjoy working as part of team to ensure that meetings and other member engagement activities run as smoothly as possible.
You will have a proven record of working in an administrative support role, of supporting committees and will be able to demonstrate that they can deliver a high level of customer service.
You will have strong interpersonal skills as well as experience of using electronic databases and CMS. Flexibility and self-reliance are essential.
We also have a vacancy for a Divisions Committee Administrator in our London office. Please indicate which location you are applying for.
The College values a diverse workforce and welcomes applications from all sections of the community, reflecting the population it serves.
We are committed to building and maintaining an inclusive and supportive culture, a place where we can all be ourselves and succeed on merit. We aim to promote a more inclusive environment, which attracts all candidates and signals our commitment to celebrate and promote diversity.
We will provide appropriate reasonable adjustments for candidates who may have a disability.
We only recruit the best and in return for your commitment, the College offers an attractive salary and benefits.
We operate a hybrid working model of on-site and working from home/remote, which helps to ensure a flexible work-life balance.
We welcome applications from all sections of the Community.
The Royal College of Psychiatrists is the professional membership body for psychiatrists and promotes excellent care for people with mental illness. It has 20,000 members and engages with government and the media as the leading voice of the UK’s mental health services. The College is a values-based organisation and was named Charity of the Year in the European Diversity Awards.
Closing date: 21 May 2026.
Interviews: 9 June 2026.
We are looking for a part time Fundraising & Development Lead to join a small innovative global charity and play a critical role in securing funding from Trusts and Foundations to support the charity with their community development initiatives.
The ideal candidate would bring senior-level fundraising experience from a similar role at an NGO, organisation, or charity with an established network of executive relationships in major global trusts and foundations.
This is a remote working role.
The charity
A small charity having a big impact. They offer home working with some of the team in London and others in Scotland and Europe.
The Role
This is a new business focussed role, where you will be required to build a high value pipeline of suitable donors and develop and deliver compelling high value bids for support.
Reporting into the Director and working alongside another Fundraising & Development Lead who recently joined the team.
Applications & Fundraising Development
Lead the development of high-quality grant proposals, ensuring proposals are compelling, well-written, and tailored to meet the requirements and priorities of each donor.
Relationship Management
Oversee the complete grant lifecycle, from initial lead to application to reporting and closeout.
Build and maintain relationships with current and prospective donors, program officers, and other key stakeholders.
Events and Networking and Representation
Effectively convey the charity mission, vision, and programs to potential donors, organising fundraising events while overseeing teams of volunteers and probono partners.
The Candidate
Senior-level fundraising experience from a similar role at an NGO, organisation, or charity.
Extensive existing network of senior executives with major global foundations and organisations.
Proven track record of identifying and closing deals for 6 - 7 figure gifts.
IMPORTANT NOTE
Our aim is to respond to all successful applications within 5 days. If you havent been contacted within 5 days your application has been unsuccessful, but we positively encourage you to apply for any other positions that you may see in the future.
We apologise that we cannot contact everybody in person but thank you in advance for your interest.
Third Solutions encourages applications from individuals of all ages & backgrounds. Appointment will be made on merit alone but candidates must be able to demonstrate their ability to work in the UK. Third Solutions acts as an employment agency for permanent recruitment & an employment business for temporary recruitment as defined by the Conduct of Employment Agencies & Employment Business Regulations 2003.
Volunteer and community involvement is a core part of what we do here at Sands. From Sands United Teams, Support Groups, knitters, Parent Speakers and event volunteer, volunteers are at the heart of Sands delivering peer support, and building a local community for bereaved parents.
Sands Groups are volunteer led, and community driven.
Sands has a vision to grow community-based peer support, community activity and volunteer involvement across the organisation. This requires an investment in enabling, innovation in peer support and volunteer involvement and partnership working.At the heart of this is our Befrienders.
Befrienders are in every Group across the UK and enable online support groups too.
This post is all about developing, delivering and managing our fantastic volunteer befriender programme across Sands. Ensuring that Sands befrienders are enabled to provide warm, supportive, evidence-based and values-driven peer support to bereaved families across the UK.
This maternity cover post will have two key focus areas
- Maintaining key components of the befriender programme, including regular communications and meeting with Befrienders, driving recruitment opportunities, supporting innovation in Befriending and troubleshooting in partnership with volunteers.
- Deliver a fixed timeline project focused on developing the Befriender programme.
Responsibilities
Best practice in peer support and befriender programmes
· To engage, inspire and support existing Sands befrienders, providing a positive volunteer experience from recruitment to saying goodbye
· To identify learning and development opportunities for befrienders and create a culture of continued learning for all Befrienders
Develop and innovate
· Build a data driven understanding of gaps in service and representation, and make promotion and recruitment decisions to support growth for under-represented towns/regions/groups
· Support continuous improvement and accurate delivery of processes in the welcome journey for new befrienders, including in recruitment, on-boarding and off-boarding processes in partnership with the Volunteer Coordinator
· Use the CRM to record accurate information and help make data informed decisions
Internal and external partnerships
· Work with the Engagement Team to ensure Sands befriending is represented in an engaging and positive way across Sands social media and the media
We are here to support everyone touched by pregnancy loss or the death of a baby. Always.


The client requests no contact from agencies or media sales.
This is a new role, working remotely from the UK and reporting to the Directors to handle the increased financial and logistics workflow of the organisation as we embark on a new 18-month EU-funded grant. In this respect, the role involves day to day operational and financial administration but is also an opportunity for a flexible and pro-active person to support the organisation’s development and expand its capabilities, and also to engage with project partners and learn more about our work. While this is a fixed term contract, the role may be extended (subject to funding) and evolve to meet changing needs. As a small team, we are open to flexible working.
Grant management:
Logistics support: Supporting the organisation and financial administration of Indie Peace project initiatives. Includes:
Other:
Line-management and relationships: While the position works with both Directors of the organisation, day to day line management and supervision is provided by the Director responsible for operations. Other people the post will need to liaise or maintain communication with on a regular basis include: in-country partners, consultants, and donor representatives. While this is a remote role, we would require occasional in-person meetings, usually in London which is where Indie Peace is based.
EXPERIENCE: Minimum of two years of proven experience in UK-based international non-profit organisation, involving financial management of EU grants.
Related Skills or Knowledge:
Contract hours and time-frame: 15 months (July 2026 – September 2027) fixed term contract.
To apply, please submit an up-to-date CV (maximum 3 pages) and a cover note explaining your motivation, interest and relevant experience for the post (max 1-2 pages) by 25 May 2026.
Interviews will take place in early June. Only qualified candidates will be contacted.
Research, analysis, training & dialogue facilitation for conflict transformation
The client requests no contact from agencies or media sales.
Department: Communications & Public Affairs
Contract type: Permanent
Hours: 37 hours per week
Salary: Circa £30,000 per annum
Location: Home Based (UK wide travel as required)
The Role:
The Digital Content Officer will support the implementation of digital communications plans that will help NFCC to deliver on its vision of being a digital first service to support fire and rescue services and the communities they serve. This will include developing and enhancing NFCC’s digital presence across the corporate website, online engagement platforms, and wider online and social media channels. The postholder will work to support the Digital Communications Manager and wider Communications team in the implementation of our Digital Communications Strategy which seeks to establish NFCC platforms as the go-to place on information about our work and resources. They will work closely with the Content and Guidance, IT and Digital Transformation teams, and other departments, to help establish and maintain a standard of excellence across website content, social media, and elements of digital design.
What you will be doing:
Website content
Social Media
Digital Design & Asset Production
Additional Duties
Who we are looking for:
If you think this could be the role for you, please have a look at the Job Description and apply.
What you can expect:
We are people centred and focus on creating a positive and engaging working environment. Wellbeing, reward, recognition, and personal development are not just words we talk about, we put them into action daily.
We offer an enhanced annual leave allowance of 26 days (pro-rata) plus bank holidays (increasing with length of service), healthcare cash plan, access to an Employee Assistance Programme and flexible working.
How to apply:
If this sounds like the role for you, please complete our online application form linked on the ‘Apply Now’ button below. Please note, CV’s will not be accepted for this position.
Closing Date: 17th May 2026
Interviews:Week commencing 1st June and week commencing 8th June 2026 (via Microsoft Teams)
PLEASE NOTE – THIS VACANCY WILL CLOSE BEFORE THE CLOSING DATE IF WE RECEIVE A HIGH NUMBER OF APPLICATIONS.
NFCC is committed to safeguarding and promoting the welfare of children, young people and adults and will require a DBS check to be completed prior to commencing in post.
NFCC is committed to being an inclusive employer. We comply with the Equality Act 2010, and we believe that everyone deserves to work in safe environments that are free from bullying, harassment and discrimination, abuse, and harm, where they feel supported, welcome, and able to thrive.
NFCC acknowledges the duty of care to safeguard, protect and promote the welfare of children and vulnerable adults and is committed to ensuring safeguarding practice reflects statutory responsibilities, government guidance and complies with best practice, all staff are expected to share this commitment.
NFCC is an independent membership association and the professional voice of UK fire and rescue services.
The client requests no contact from agencies or media sales.
Kennedy Memorial Trust is seeking a junior Administrator who can playing a key role in supporting one of the UK’s most prestigious international scholarship programmes. This role is offered on a full-or part time basis, based predominantly from home with travel to London on an occasional monthly basis.
Reporting to: Director of the Kennedy Memorial Trust (KMT)
Contract: Permanent
Hours: Part-time or Full-time, 30 - 37.5 hours per week (flexibility in hours and working pattern available)
Salary: £26,000 - £28,000 FTE
Location: Work from home with monthly travel to London and occasional event attendance.
Applicants must have the right to live and work permanently in the UK. The Trust cannot offer visa sponsorship.
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About the Kennedy Memorial Trust
The Kennedy Memorial Trust is a registered charity (No. 234715) that funds exceptional UK graduates to pursue postgraduate study at Harvard University and the Massachusetts Institute of Technology (MIT). Established as a living memorial to President John F. Kennedy following his assassination, the Trust has supported around 600 Kennedy Scholars since 1966.
In addition to administering one of the UK’s most prestigious international scholarship programmes, the Trust maintains the Kennedy Memorial at Runnymede, Surrey. The Trust is governed by a Board of up to eleven Trustees appointed by the UK Prime Minister, the Presidents of Harvard and MIT, or the President of the United States.
Kennedy Scholars go on to make significant contributions across public service, law, science, technology, education, business, charities, the arts and media.
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The Role
This Administrator role is an exciting opportunity for a self-starter to play a central role in supporting the running of one of the UK’s most prestigious international scholarship programmes. The Administrator will help provide an excellent experience for applicants, Scholars, alumni, Trustees and partner institutions.
The Administrator role with support on the full scholarship cycle which includes providing high quality administrative support to the Director, Scholars and other stakeholders. The Administrator will support on keeping accurate financial and data records, governance, communications, event planning and alumni engagement activities as required.
The role requires someone who has demonstrable experience of providing Administration support, has excellent written skills, can use their discretion, has good attention to detail as well as possessing strong interpersonal skills.
DUTIES AND RESPONSIBILITIES
1. Scholarship Administration and Selection
Administer the scholarship application process and selection cycle, including its promotion, application timelines and manage applicant enquiries. Respond promptly and professionally to applicant enquiries via email, phone and online channels.
Prepare longlists and shortlists in consultation with the Director. Provide administrative support to the selection panels, including scheduling scholar interviews and preparing interview packs, briefing papers and secure document folders for panel members.
Work with the Director to communicate selection outcomes professionally and sensitively to applicants.
Support safeguarding, compliance and due diligence processes relating to applicants and Scholars. Maintain accurate records of applicant demographics, progress, decisions and feedback.
2. Scholar Support and Engagement
Arrange onboarding for new Scholars, including orientation materials, pre departure meetings, events and information sessions. Maintain FAQs and administrative briefings.
Maintain up-to-date Scholar profiles, biographies and photos for the Trust’s website, social media and publications.
Facilitate community‑building among current Scholars through sharing news, arranging check‑ins, online meet‑ups and occasional social or academic gatherings.
Contribute to the Trust’s pastoral and administrative support of Scholars throughout their studies in the US. Monitor Scholar engagement, academic progress and wellbeing, escalating concerns where appropriate.
3. Financial Administration and Reporting
Prepare documentation for tuition payments, stipends and approved expenses; maintain timely and accurate payment schedules.
Provide administrative support to the Director regarding statutory reporting including the Annual Report and Charity Commission returns
4. Communications, Outreach and Marketing
Draft, edit and publish web content, including scholarship information, news updates, Scholar profiles and stories and application guidance. Maintain FAQ pages and ensure accurate, clear and up to date information for applicants.
Support digital communications, including social media posts, email campaigns and website announcements to highlight Scholar achievements and alumni successes. Maintain a database or scholar profiles which are published on the website.
Represent the Trust at events such as graduate fairs, widening participation meetings and university visits.
Maintain a database of UK Universities and partner organisations who support the Trust to reach the widest possible audience for promoting the scholarship. Build relationships with UK universities, careers teams and relevant networks to promote the scholarship.
5. Governance and Committee Support
You will work with the Director to provide the scheduling, servicing and administration of Trustee meetings, scholarship panels and standing committees, including the preparation of meeting agendas, briefing materials, papers and securely held meeting papers.
Draft accurate minutes of meetings and keep track of deadlines of actions.
Maintain governance records, committee membership lists and document archives. Support working groups and sub committees, including document preparation and follow up tasks.
Support the Director with the ongoing review and development of policies and procedures to ensure they are fit for purpose.
6. Executive admin and other functions
You will work with the Director on executive and administrative support, including diary management, correspondence, travel and expenses
Undertake other reasonable duties in support of the Trust’s work
Maintain accurate records in all internal systems, ensuring high data quality standards.
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SKILLS, EXPERIENCE AND BEHAVIOURS
Essential
· Proven administrative and organisational experience in any sector
· Demonstrable high level written skills
· High level of office software ability
· During interpersonal skills
· High level of accuracy, numeracy and attention to detail
· Able to demonstrate experience of managing competing priorities and meeting deadlines
· An interest in the work of the Kennedy Memorial Trust
Desirable
• Minimum of a B grade in A level English or a Degree
• Experience in scholarship administration, or student support
· ` Experience editing or creating web content
• Knowledge of higher education and current affairs
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Personal Attributes
• Highly organised and self motivated
• Warm, professional manner with a willingness to learn
• Sound judgement and discretion when handling confidential information
• Empathic and able to be self-confident when working with scholars and the team
• Proactive, flexible and comfortable working in a small team
• Commitment to equality, diversity and inclusion
• Willingness to invest in ongoing professional development
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HOW TO APPLY
Please submit:
• A CV
• A covering letter with a supporting statement (maximum 2 pages) outlining how you meet the role criteria and what you feel you could bring to the Kennedy Memorial Trust
Application deadline: midnight 25th May 2026
A Basic DBS check will be required for the successful candidate.
Please submit:
• A CV
• A covering letter with a supporting statement (maximum 2 pages) outlining how you meet the role criteria and what you feel you could bring to the Kennedy Memorial Trust
Application deadline: midnight 25th May 2026
A Basic DBS check will be required for the successful candidate.
Forced Marriage and Honour Based Abuse Support and Outreach Worker
We are looking for a Forced Marriage and Honour Based Abuse Support and Outreach Worker to provide direct support and advocacy to victims of Forced Marriage (FM) and Honour Based Abuse (HBA)
Join an organisation that supports Black & Minoritised communities affected by domestic abuse. Set up in 1979, the charity is a leading provider supporting survivors through their journey to safety, confidence and independence to live free from violence, abuse and fear.
Please note that due to the nature of this role, we can only accept female applicants.
Position: Forced Marriage and Honour Based Abuse Support and Outreach Worker
Location: West Midlands
Hours: Full-time (37.5 hours per week)
Salary: £25,000 - £26,000 (depending on experience and qualification)
Contract: Fixed term contract until 31 March 2028
Closing Date: 20th May 2026
Interview Date: 28th May 2026
The Role
As a Forced Marriage and Honour Based Abuse Support and Outreach Worker you will provide person-centred, needs-led support, advocacy and safety planning to victims and survivors, ensuring they are safeguarded and supported to access appropriate services, including legal advice and assistance with evidence gathering.
You will support applications for Forced Marriage Protection Orders and other civil protection orders, and help individuals to report abuse and navigate the criminal justice process with ongoing emotional and practical support. You will work in partnership with statutory and voluntary agencies to coordinate effective responses and improve access to support pathways.
The role includes delivering and supporting group work, workshops and outreach activities that reduce isolation and build confidence, resilience and independence. You will also contribute to awareness-raising and training for young people, community members and professionals, as well as supporting the development of campaigns and engagement work. In addition, you will participate in a 24-hour helpline rota, assist with policy development, and ensure compliance with safeguarding, health and safety, and organisational procedures and regulatory requirements.
Specific areas of responsibility include:
You will be expected to cover on a rota basis out of hours and weekend on-call for emergencies.
About You
We are looking for someone who has excellent communication skills with the ability to communicate effectively when advocating for service users, raising awareness of FM & HBA and representing the charity.
You will bring with you the following key skills and experience:
Female applicants only. Our client is committed to equality of opportunity and encourage applications from all sectors of the community. In light of the nature of work, the candidate’s gender is considered to be an occupational requirement in accordance with Schedule 9 (part 1) of the Equality Act 2010.
This post is subject to Rehabilitation of Offenders Act 1974. A criminal record will not necessarily exclude you from this post but under the Act, we must have details. An Enhanced Disclosure will be sought in the event of a successful application for this post and therefore you will be required to give details of spent and unspent convictions disclosed above. The charity operates under the Revised Code of Practice for Disclosure and Barring Service.
You may also have experience in roles such as Advocacy, Advocate, Domestic Abuse Advocate, IDVA, Domestic Abuse Advocate, Domestic Abuse Advocacy, Domestic Abuse Outreach Worker, Domestic Abuse Case Worker, Domestic Abuse Case Worker and Outreach, Domestic Abuse Support Worker, Junior IDVA. #INDNFP
Please note this role is advertised by the recruitment agency acting for the client – Not For Profit People.
Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.
Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.
Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.
At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.
As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.
This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.
If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.
Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).
Recruitment Timetable:
Deadline for initial CV interest – Wednesday 20th May
Deadline for applications – Tuesday 26th May
First stage interviews - Monday 8th, Tuesday 9th or Thursday 11th June
Final stage interviews – Friday 26th June