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About the role
An opportunity to join the busy GIS and Data Team servicing an ambitious and evidence driven conservation organisation. Working with the Senior Biological Data and GIS Officer you will work on multiple conservation projects identifying and creating technical tools to assist with digital data capture and visualisation. The main focus of the role will be to support the Advisory Teams’ field and reporting work (grassland, rainforest and consultancy).
There will be multiple opportunities to work with a large range of projects and staff members, work with cutting edge technology and make a real impact to the operational success of the organisation.
This is a maternity cover.
About you
You will have experience working with ArcGIS technology and researching and developing technical products to assist with streamlined data flow. You will be proficient in creating visualisation outputs, mapping etc. and be comfortable liaising with staff to create the optimum products suitable for their needs.
You will have the ability to troubleshoot problems that may arise from staff and volunteers using technologies, identify solutions and work directly with end users to ensure they are able to utilise successfully.
You will likely be working on multiple projects concurrently so good time management and implementing prioritisation techniques will be key. You will also be a strong team player and willing to support ad hoc Data Team priorities that may arise at short notice.
You will take an active part in Data and Science Team meetings and meet with other staff to discuss needs and offer opinion on best solutions for their needs. You may also on occasion be asked to carry out basic training to assist with newcomers to the GIS field who are interested in starting their own GIS journey.
To apply for the role or view the full recruitment pack, please visit our website. We look forward to hearing from you!
Please note we do not accept CV's.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Description:
We are seeking a Health and Science Information Manager to lead the development of highquality health information and research communications for people affected by polycystic kidney disease (PKD). This is an exciting opportunity to shape how individuals access, understand and engage with trusted information throughout their journey, from diagnosis and day-to-day management, to the latest scientific and clinical research developments. In this role, you will oversee our extensive portfolio of patient information resources, ensuring all content is accurate, accessible, evidence-based and aligned with the PIF TICK quality standard. You will identify opportunities to create new and engaging resources that meet the evolving needs of the PKD community, using innovative approaches to improve how information is delivered across multiple channels. A key part of the role will be translating complex scientific and medical research into clear, compelling and patient-friendly content. You will help increase awareness of clinical research opportunities, communicate emerging developments in PKD science, and support greater understanding of how research can shape future treatments and care. We are looking for someone with strong strategic thinking, excellent editorial judgement, and the ability to communicate complex health and scientific information with clarity and empathy. This role would suit someone passionate about improving lives through trusted health information while helping connect people to the future of PKD research.
RESPONSIBILITIES:
Health information management and quality:
• Support the development and management of the PKD Charity’s health information portfolio across digital and print platforms
• Ensure all content meets PIF TICK standards, including robust processes for development, review, updating and governance
• Maintain oversight of the full information catalogue, ensuring content is accurate, consistent and aligned with current clinical guidance
• Work with clinicians, researchers, and people with lived experience to co-produce and review content Content development and user need
Content development and user need:
• Identify gaps in current provision and lead the development of new information resources
• Ensure content is clear, accessible, inclusive, and tailored to the needs of different audiences
• Use patient insight, feedback and data to continuously improve the quality and usability of information Innovation in information deliver.
Research and science communication:
• Explore new ways of delivering information beyond written formats (e.g. video, audio, webinars, digital tools)
• Improve how information is presented and accessed across the website and other platforms
• Stay up to date with best practice in health information and digital engagement Research and science communication
• Monitor developments in PKD research, treatments, and clinical trials
• Translate complex scientific and medical information into clear, engaging, and accurate content for non-specialist audiences
• Work with the Communications Manager and wider colleagues to plan integrated campaigns, awareness activity and audience engagement.
• Develop compelling stories, updates and features that bring research to life and show its relevance to people affected by PKD.
• Work with colleagues to increase awareness, understanding and interest in PKD research.
Building engagement with research:
• Help create a culture of interest and engagement in research across the PKD community
• Develop content that builds understanding of how research works and why it matters
• Support communication around studies and clinical trials to ensure patients feel informed.
Collaboration and stakeholder engagement
• Work collaboratively across the organisation to ensure consistency and alignment in messaging
• Build relationships with healthcare professionals, researchers, and external partners
• Involve patients and volunteers meaningfully in content development and review
Quality, monitoring and impact:
• Monitor the reach and effectiveness of health information and research communications
• Maintain accurate records of content review cycles and updates in line with PIF requirements
• Use insight and evaluation to continuously improve content and delivery
ABOUT YOU:
• Strong Content and Editorial Skills: You have experience producing high-quality written content, with excellent attention to detail and the ability to present complex topics clearly and accurately.
• Health or Science Communicator: You have experience working with health, medical or scientific information and can translate technical material into accessible language for public audiences.
• Collaborative Relationship Builder: You work well with others, build positive working relationships quickly, and enjoy partnering with colleagues across different functions to achieve shared goals.
• Confident Team Player: You are comfortable working closely with colleagues such as communications, fundraising, support and leadership teams, contributing ideas and supporting collective priorities.
• Strategic and Proactive: You can see the bigger picture, identify opportunities for improvement and take initiative to drive projects forward.
• Organised and Self-Motivated: You are comfortable managing your own workload, balancing priorities and delivering high-quality work in a remote setting.
• Values-Driven: You are motivated by improving lives, empowering patients with trusted information and supporting progress in PKD research.
HOW TO APPLY:
For information on how to apply, please read the job pack for further details.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are Gingerbread. We’re here to fight for single parents and their families.
We campaign against the injustices that single parents face every single day, and we challenge the stigmas around being a single parent. We provide information to support all single parents so that they have the tools to support their children and themselves. And we provide a support network so that, with Gingerbread, no single parent is ever alone.
Join us today. Together, we can create a world where all single parents and their children don’t just survive but thrive.
Why join Gingerbread?
The work we do has a real impact. We make a difference in the lives of single parents. We do this through collaborative, focused working. We care passionately about the work we do, and we care for each other.
Overview of Job
The Fundraising Manager will play a key role in developing and delivering Gingerbread’s fundraising plans. The role leads our trusts and grants programme, producing strong, well‑evidenced proposals, building positive relationships with funders and ensuring our reporting clearly reflects our impact. Working closely with colleagues across the organisation, they will help ensure fundraising is embedded in our work and aligned with Gingerbread’s strategic goals.
For more information about the role, please see the Advert Pack.
The client requests no contact from agencies or media sales.
About The Role
As our Global Communications Manager, you’ll lead the development and delivery of impactful global media and communications that elevate Compassion’s campaigns and strengthen our international voice. You’ll play a pivotal role in producing compelling content, securing global media coverage, and supporting colleagues worldwide to deliver clear, impactful communications.
As our Global Communications Manager, you’ll be responsible for:
About You
To succeed as our Global Communications Manager, you’ll combine strong editorial judgement with outstanding communication skills and the ability to lead global media activity under pressure. You’re strategic, adaptable, and skilled at storytelling, relationship‑building, and managing multiple projects with ease.
Skills and experience you’ll need to bring as our Global Communications Manager, you’ll be responsible for:
If you don’t meet every requirement but believe you could thrive in this role, we encourage you to apply.
Why Join Us
This is a unique opportunity to use your communications expertise to drive global change and give a powerful voice to animals, people, and the planet.
We offer a supportive, flexible workplace with a strong focus on wellbeing and development, including:
How to Apply & Key Dates
If you’re ready to make a global impact, we’d love to hear from you. Please submit your CV and a cover letter outlining how you meet the Person Specification. To support a fair and unbiased recruitment process, we kindly ask that you do not include a photo in your CV.
Please note that we may begin interviews on a rolling basis, so early applications are encouraged.
Closing Date: Thursday 14 May 2026
Stage 1 (TEAMS) Interviews: Tuesday 19 May and Friday 22 May
Stage 2 (Face to Face at HQ) Interviews, with presentation task: Thursday 28 May 2026
“Join us in building a more compassionate future for animals, people, and the planet.”
As part of Stage 1 of our recruitment process, shortlisted candidates may receive a small set of pre-shared, values-based interview questions in advance. This is designed to support a positive candidate experience and help you prepare, so the interview can focus on a thoughtful conversation about your motivation and alignment with our mission.
If you require any adjustments during the recruitment process, please let us know, we’re always happy to support candidates during the recruitment process.
About Compassion
Compassion in World Farming International is a leading global organisation working to end factory farming. Founded in 1967 by British farmer Peter Roberts, we’ve spent over 50 years driving change, successfully campaigning to ban cruel practices such as barren battery cages, veal crates, and sow stalls across the UK and Europe.
Our work combines advocacy, campaigning, and collaboration with policymakers and businesses to promote animal welfare and sustainable food systems. We envision a future where animals are treated with compassion, and farming supports both people and the planet. To learn more about our mission, culture, and opportunities, please explore our Candidate Pack, and Careers Page.
To comply with legal requirements in the UK and internationally, all applicants must be able to demonstrate their right to work in the country where the role is based.
Compassion in World Farming is absolutely committed to providing equal opportunities for everyone regardless of their background. We value diversity and live experience and acknowledge the underrepresentation of people from certain backgrounds, both within our organisation and across the sector. We welcome applications from underrepresented groups, whether these be of ethnicity, gender, identity, religion, physical ability, sexual orientation or other.
If you’re ready to make a global impact, we’d love to hear from you. Please submit your CV and a cover letter outlining how you meet the Person Specification. To support a fair and unbiased recruitment process, we kindly ask that you do not include a photo in your CV.
Please note that we may begin interviews on a rolling basis, so early applications are encouraged
Compassion in World Farming International is a leading global organisation working to end factory farming.



The client requests no contact from agencies or media sales.
Do you believe children should feel safe, happy, healthy and hopeful about their future? Because we do.
If you're an experienced legacy marketer and want to use your skills to help change childhoods and change lives, we'd love to hear from you.
We're recruiting for a Legacy Marketing Manager to join our team. In this role, you'll take the lead on the delivery and development of Barnardo's legacy and in-memory marketing programmes, playing a vital part in securing long-term, sustainable income for the charity.
This is a varied and rewarding role, offering a mix of strategic planning, campaign and project management, budget responsibility and people management. You'll work across a wide range of channels — including direct mail, telemarketing, DRTV and digital — and partner closely with internal teams and external agencies to deliver impactful supporter journeys and excellent experiences.
As Legacy Marketing Manager, you will:
We're happy to offer remote or hybrid working (depending on location) and are open to discussing flexible working arrangements.
You will have:
If this sounds like you, we'd love for you to apply. If you have any questions about the role, please don't hesitate to get in touch.
Together, we can help build brighter futures for children and young people across the UK.
The role
The Innovation team at Leadership Skills Foundation is responsible for the design and evaluation of learning programmes that give young people life‑changing skill development and leadership opportunities. As Innovation Officer you will provide support to our Innovation Leads across learning development, visual design, and research activities.
This role is ideal for a creative all-rounder. You don’t need to be an expert in all areas on day one. We are looking for a proactive problem solver who can grow into the role and is energised by the idea of wearing multiple hats to help young people succeed.
You will directly support a broad range of projects including:
Our strategic partnership with Sport England to positively impact a wider diversity of young people through sports leadership opportunities.
The development of our new youth voice initiative to empower young people to lead positive change.
The expansion of our Environment Leaders Programme to raise awareness and equip young people with green skills for their future employment.
What you’ll do
Learning development
Work collaboratively to help create and test new learning programmes, and continuously improve our range of Awards and Qualifications based on research findings e.g. from our Sport England Programme.
Support the creation, editing and quality-checking of course content and materials, such as Learner Evidence Records and tutor guidance documents.
Support digital learning activity, including content creation, managing online platforms and testing user experience.
Visual design and content
Create engaging visual designs for use in course materials and impact reporting, ensuring designs are always accessible and on brand.
Manage our library of learning resources, ensuring designs are reviewed regularly and improved based on feedback and research findings e.g. from our Sport England Programme.
Research and evaluation
Play a supporting role organising and conducting research interviews, observations, surveys and focus groups.
Assist with data collection and analysis of qualitative and quantitative insights.
Support the preparation of engaging impact reports and insight summaries.
What you’ll love
Remote working with flexible / agile working, with some travel to in-person meetings.
A small, friendly team committed to making a difference for young people.
Summer and winter team events.
Optional Vitality Health Care Plan, with option to add family/significant others at reduced rate ((following successful completion of probation period).
*** Please review the job pack for the full person specification and further information. This is a full-time, two‑year fixed‑term contract, with the ambition to extend subject to funding. ***
Empowering every young person to shape their future and lead their communities.



The client requests no contact from agencies or media sales.
Job title: Head of Co Production
Location: Working from home
SCIE Vision
We are committed to building a society which enables people who draw on social care to live fulfilling lives.
At the SCIE, we are driven by our values:
· Progressive – always learning and developing.
· Inclusive – working together for equality, diversity, and fairness.
· Credible – evidence-based, robust, and reliable.
· Transparent – open and honest.
· Committed - focused on making a difference to people’s lives.
The role:
We’re looking for a senior leader to make co-production the way we work — not a project, not a principle, but embedded practice across the organisation.
This is a high-impact role shaping how lived experience drives strategy, design, delivery, and decision-making. You’ll lead a specialist team, but your influence will stretch internally and externally.
You’ll be responsible for turning ambition into action — building a clear roadmap, strengthening capability, and ensuring co-production is consistent, credible, and genuinely embedded into our work.
You’ll lead the development and delivery of new co-production products and partnerships, generating income and strengthening our position as a sector leader in co-production practice.
What we are looking for:
Example as below
• Embedding co-production across the organisation so it becomes business-as-usual.
• Developing and delivering co-production products internally and externally and generating new income streams.
• Leading a bold roadmap for culture change and continuous improvement
• Influencing partners across social care and beyond.
• Strengthening governance, accountability, and consistency of practice
If you can help shift co-production from aspiration to reality — we want to hear from you.
What we offer in return:
We offer excellent staff benefits including a competitive salary and homeworking allowance. We provide an employer pension contribution above the statutory minimum, an award-winning employee assistance programme, and an attractive holiday package which rises with length of service. Benefits of working for SCIE can be found here Work for the Social Care Institute for Excellence - SCIE
If you would like to access the application form in a different format or if would like any assistance that might help improve your experience while completing the application, please contact us.
We reserve the right to close the advert at any point we are actively reviewing applications.
Together for Short Lives is looking for a driven and creative Business Development Manager to develop and secure high‑value corporate partnerships that will help transform the lives of children living with serious illness and their families. You’ll lead our business development strategy, build a strong pipeline of opportunities, and develop lasting relationships with prospective and existing supporters.
If you’re collaborative, tenacious and passionate about making a real impact in children’s palliative care, we’d love to hear from you.
Together for Short Lives is the leading UK-wide charity for children living with serious illness, their families and the services that provide them with palliative care.
Every child deserves many moments of happiness together with their loved ones. But it's hard for them to thrive when services don't fully meet their needs, leaving parents and siblings feeling isolated and alone.
That’s why we’re here. To make sure that every family can thrive as they navigate their child's life, death, bereavement and beyond.
Together we support families to live their lives, through the ups and downs, offering practical, emotional and financial help.
Together we unite our sector by prioritising and sharing crucial research, leading guidance and standards, connecting professionals and raising vital funds for children’s hospice and palliative care services.
Together we campaign to make sure that children with serious illness and their families get the care and support they need, when and where they need it.
Supporting, uniting, campaigning, together.
We are Together for Short Lives.
Purpose of role
The Business Development Manager will lead our efforts to secure high-profile, high-value partnerships with corporate organisations that will generate vital income for children's palliative care. Securing new partnerships and growing our income requires exceptional collaboration skills; a driven, tenacious and resourceful nature; innovation and creativity; and a passionate determination to make a difference to the lives of children and families across the UK.
The main objectives are as follows:
Follow the link to our website to apply and find out more about the role.
Together for Short Lives is the leading UK-wide charity for children living with serious illness, their families and the people who support them.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Role Overview:
The Talent Set are delighted to partner with their client on a fantastic Legacy Marketing Manager role. This key position involves leading strategic development and growth of the legacy programme, ensuring effective supporter engagement and sustainable income generation to support the organisation’s mission.
Key Responsibilities:
Person Specification:
What’s on Offer:
How to Apply:
To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button (please do not apply via email). We aim to get back to all successful candidates within 48 working hours.
Commitment to Diversity:
The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, religion or belief, sex, sexual orientation, gender reassignment, marriage and civil partnership, pregnancy and maternity, disability, or age. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.
We’re excited to be partnering with Consumers International, a high-impact, international non-profit, membership organisation, working at the forefront of social innovation, consumer rights and global policy. This is a fantastic opportunity for a Communications Lead – a proactive, strategic thinker who can help tell their story to the world.
I’m especially keen to hear from individuals with persuasive communications experience, reaching out to industry makers, government, society, or influencing change at a charity, as part of your communications background. B2B Communications experience is essential.
As Communications Lead, you will enjoy working within an innovative, entrepreneurial environment, with a drive to deliver excellence and aptly project manage across high-profile moments – events, product launches, campaigns.
Your experience:
Are you driven to lead strategic communications across digital, social, and campaign channels – helping shape global narratives and raise the visibility of key research, tools, and events for Consumers International? Please apply today!
Applications for the Communications Lead will be reviewed on a rolling basis. Please apply today. For more information, please apply now!
As leading charity recruitment specialists and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
Dreams Come True is an ambitious UK charity creating life‑changing dreams for children facing serious illness, disability and poverty. Driven by impact, relationships and creativity, we work with passionate partners to turn generosity into moments that truly change lives.
This is an exciting opportunity to join our small but mighty Dream Team, to continue to build on the growth we’ve seen in Corporate Fundraising. Over the past four years, our corporate fundraising programme has grown from early foundations into a dynamic, high‑performing income stream — now generating £450,000 annually and shows no sign of slowing down.
We have recently increased the salary for this role to reflect both the success of the programme and the significant opportunity ahead. With the right person in post, there is real potential to take this work even further.
You will manage and expand an inspiring portfolio of corporate partners including The Big Table Group, BSI, Tradeweb, Individual Restaurants, Howden, and Love Holidays. Our partners are not just supporters — they are part of our extended community of “Dream makers”, helping us create life‑changing experiences for children living with serious illness, disability and poverty.
*Successful candidates will be notified by the 13th of May*
Transforming lives by bringing joy, magic, and wellbeing to deserving UK children, reminding them that their dreams and happiness matter.


The client requests no contact from agencies or media sales.
Work with us at NCT
For pregnancy, parents and progress.
At NCT, what we do every day has a real impact on people’s lives.
We’re the UK’s charity for pregnancy, birth and early parenthood. For nearly 70 years, we’ve been alongside women and parents, offering trusted information, practical support and building communities.
Today, we reach hundreds of thousands of new and expectant parents every year. We provide antenatal and postnatal education, local and national support for infant feeding and mental health, and we campaign for fairer, safer maternity care. We listen to parents’ experiences and act on them - tackling health inequalities, challenging systems that don’t work, and pressing for progress.
Join our passionate team and contribute to the meaningful work that transforms the lives of parents and families.
Your role will include:
Why work at NCT?
Whether you’re supporting services, shaping policy, delivering programmes, raising funds, running operations or telling our story, you’ll be contributing to something bigger:
a society where everyone who becomes a parent feels confident, connected and safe.
People join NCT because they want to make a difference - and stay because they believe in how we do it.
How we work
We’re guided by a simple principle: no judgement, no exception. That shows up in how we support parents - and how we work with each other.
At NCT we are:
We deal with complex issues, make tough decisions, and work in environments that can be challenging. But we do it with honesty, care and a shared sense of purpose.
When you work at NCT you’ll get fantastic benefits to support your well-being and professional growth:
Join us
At NCT, we’re committed to fostering an inclusive and diverse workforce. If you need reasonable adjustments during the recruitment process or within your role, please let us know - we’re here to support you. If you want your work to contribute to lasting change - for generations of parents to come - we’d love to hear from you.
Together, we are NCT.
Our commitment to equity, diversity and inclusion
At NCT, we believe everyone should be able to shape their own journey - as parents, and as colleagues.
We are taking positive action to increase diversity across our organisation, at all levels, and to nurture a culture of inclusion and belonging for all our people and for the parents and families we support. You can read more about our Equity, Diversity and Inclusion action.
We are committed to zero discrimination, both internally and externally. This commitment applies regardless of visible or invisible difference, including (but not limited to): sex, sexual orientation, age, race, ethnicity, disability, impairment, learning difference or long‑term condition, religion or belief, gender identity, economic class, marital or civil partnership status, family status (including single parents), socio‑economic background, pregnancy and maternity.
We actively welcome applications from people from communities who are under‑represented in our organisation and the charity sector more widely.
We are the charity supporting people as they become parents. Here through pregnancy, birth, and early parenthood.



Lloyds Bank Foundation
Regional Public Affairs Manager
Starting Salary: £50,582 (if based outside London); £53,777 (if based in London)
Contract: Full-time, permanent contract (we are open to conversations about different ways of working - so please ask)
Location: Remote role - can be based anywhere in England or Wales with an expectation of frequent travel across England and Wales
About Lloyds Bank Foundation
Lloyds Bank Foundation for England and Wales is an independent charitable foundation, backed by Lloyds Banking Group and the people within it. We want everyone to be in a good place - personally, in a home that’s a good place to live, and in a community that’s a good place to belong.
We play our role by connecting and catalysing community-led change, providing the money, time, tools and connections that build organisations’ capacity and capability, to make people’s lives better and their communities stronger.
We back people and communities across England and Wales, to make that happen, because when you back brilliant people, brilliant things happen. Our communities are full of ambitious, energetic and determined people stepping up to make their neighbours’ lives better and their communities grow stronger. Day in, day out.
About the Role
This is an exciting opportunity to support the delivery of impactful public affairs and influencing activity, strengthening regional voice and national impact.
As Regional Public Affairs Manager, you will work closely with colleagues to support influencing activity across England and Wales, helping to build confidence, capability, and effectiveness. You will support engagement with decision-makers, campaigns, and partnerships, ensuring activity is aligned and impactful.
You will play a key role in connecting local insight to national influencing, identifying emerging themes and helping to shape wider organisational priorities. You will also build relationships with external stakeholders, supporting activity that raises the Foundation’s profile and impact.
About You
We’re looking for someone with experience in public affairs, policy, or influencing, particularly at local or regional level. You will have experience of supporting or delivering influencing activity and working with a range of stakeholders.
You will be a strong relationship builder who combines practical delivery with the ability to use insight and evidence to inform work. A good understanding of the UK political landscape and a commitment to diversity, equity, inclusion and belonging is essential.
How to Apply
Please click ‘Apply’ to be redirected to our website, where you can download the Candidate Information Pack and find details of how to apply.
For an informal conversation about the role and application process, please contact our recruitment partner, Atkinson HR via the information in the candidate pack.
Our Commitment to Diversity, Equity and Inclusion
We hold Disability Confident Employer status (Level 2) and are working towards full status by 2027. This means that if you're a disabled applicant and your CV and application answers clearly demonstrate that you meet the essential criteria for the role, we will invite you to interview.
More broadly, we are committed to building a diverse team that reflects the communities and people we work with. We believe that diversity of background, experience and perspective makes us stronger and helps us make better decisions. We actively welcome applications from people who are under-represented in the charity sector, including people from Black, Asian and minoritised ethnic communities, disabled people, and those with experience of the issues our funded charities work to address.
Key Dates
Closing Date: Wednesday 13th May 2026
Optional Q&A Session: Wednesday 6th May 2026 at 09:00-10:00
First Interview: Friday 22nd May 2026
Second Interview: Wednesday 3rd June 2026
We support small, local and specialist charities across England and Wales.


About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.