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Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 4 days ago Apply Now
The British Museum, London (Hybrid)
Up to £48756 per annum
Posted 1 week ago
Closing tomorrow
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£15412.50 - £30825.00 per annum
Posted 4 weeks ago

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Closing in 6 days
Royal British Legion, City of London (On-site)
£34,000 to £37,997 per annum, inclusive of London Supplement
Posted 1 week ago
Dementia Together Wirral, Remote
£16,000 - £18,000 per year (FTE £26,667 - £30,000)
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Amnesty International UK, London (Hybrid)
Up to £48559 per annum + 35 days holiday (including BH)
Posted 2 weeks ago
Alzheimers Society, Bristol (On-site)
£25,391 - £27,450 Per Annum Pro Rata
Posted 4 days ago
BeSpace, Remote
£43,000 - £47,000 per year
BeSpace is a growing Christian charity with a big vision: to see every child joyful, resilient and growing spiritually for life.
Posted 1 week ago
Closing in 2 days
Depaul UK, Manchester (On-site)
£29,481 per annum
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Oak National Academy Ltd, Remote
£53,991 per year + benefits including 4.5 day week and 11% employer pension
Posted 1 week ago
Page 43 of 53
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.