Programmes manager volunteer jobs in Mirfield, west yorkshire

Marie Curie is the UK’s leading end-of-life charity. We are the largest non-NHS provider of end-of-life care in the UK, the only provider across all 4 nations, delivering community nursing and hospice care across the country, while providing information and support on all aspects of dying, death, and bereavement. Our leading research pushes the boundaries of what we know about good end-of-life, and our campaigns fight for a world where everyone gets to have the best possible quality of life while living with an illness, they’re likely to die from.

Marie Curie is looking for a confident new business professional to help secure high-value corporate partnerships that transform end-of-life care across the UK.

You may come from a sales, commercial or business development background or already be working in corporate partnerships within the charity sector. What matters most is your ability to identify opportunities, build relationships and close complex, high-value deals.

This is a chance to use your commercial expertise for real purpose. Your work will directly fund care for people living with terminal illness and support those close to them, while giving you the scope to shape strategy, influence senior stakeholders and build partnerships that truly matter.

What you’ll be doing

• Proactively identifying, developing and securing high-value corporate partnership opportunities, building a strong and sustainable new business pipeline across priority sectors
• Leading on early conversations with prospective partners, shaping opportunities and moving them confidently through the pipeline to close
• Creating compelling, tailored proposals, pitches and partnership models that align commercial objectives with Marie Curie’s mission
• Working closely with internal teams across fundraising, communications and caring services to bring partnership ideas to life
• Leveraging trustee, senior volunteer and stakeholder networks to unlock new relationships and opportunities
• Managing multiple opportunities simultaneously, prioritising effectively to meet and exceed income targets
• Representing Marie Curie externally, building trusted relationships and raising awareness of our work and impact

What we’re looking for

• Proven success in new business, sales, commercial partnerships or corporate fundraising
• Confidence engaging and influencing senior decision-makers
• Strategic, commercially-minded thinking with strong negotiation skills
• Excellent written and verbal communication, including proposal and pitch delivery
• Resilience, drive and the ability to manage competing priorities

Please see full job description

Application & Interview Process

• As part of your online application, you will be asked for a CV. Please review both the advert and job description and outline your most relevant skills, experience and knowledge for the role.
• Close date for applications: Sunday 17th May 2026

Salary: £36,900 - £41,000 (plus LW £3,500 were applicable)

Contract: Full time, perm  

Based: Homebased (can be based in London office 2 days per week)

Benefits you’ll LOVE:

• Flexible working. We’re happy to discuss flexible working at the interview stage.
• 25 days annual leave (exclusive of Bank Holidays)
• Marie Curie Group Personal Pension Scheme (we will match your contribution up to 7.5%)
• Loan schemes for bikes; computers and season tickets
• Continuous professional development opportunities.
• Industry-leading training programmes
• Wellbeing and Employee Assistance Programmes
• Enhanced bereavement, family friendly and sickness benefits
• Access to Blue Light Card membership
• Subsidised Eye Care

At Marie Curie, our values are central to everything we do. They guide how we care for people, how we work together, and how we make decisions every day. We are committed to creating a workplace that is safe for everyone — staff and volunteers alike — supportive, inclusive and rewarding.  We take stringent steps to ensure that anyone who joins our organisation are suitable for their roles and are committed to safeguarding all our people from harm. We actively consider our impact on the planet, embedding sustainability into everyday decisions to create a lasting, positive difference for the individuals we care for and the world we share.

We believe everyone should have the opportunity to thrive and fulfil their potential. Marie Curie is deeply committed to diversity, equity and inclusion, recognising both the social justice imperative and the strength a diverse workforce brings.  We actively encourage applications from people of all cultures, perspectives and lived experiences.

We are happy to make reasonable adjustments throughout the recruitment process. If you require any support, please contact us at .

Every application we receive is personally reviewed by a member of our Talent Acquisition team, and in return, we ask that your application authentically reflects you — your experience, perspective and voice.

JOB TITLE: Northern Partnership & Dog Training Manger

LOCATION:                         Northern Region (Including Scotland, Northern England and parts of the Midlands)

SALARY: £37,000 - £45,000 p/a

JOB TYPE: Permanent, Full-Time and Part-Time applications considered

Medical Detection Dogs trains dogs to save lives.

We train specialist dogs to detect the odour of human disease, providing life-saving Medical Alert Assistance Dogs to people with complex health problems across the UK and collaborating with NHS Trusts and other researchers and Universities both in the UK and internationally to advance the early diagnosis of disease.  We have an exciting new opportunity to join this small, but ambitious charity that is a world leader in its specialist, innovative field.

MAIN PURPOSE & SCOPE OF THE ROLE:

The Northern Partnership & Training Manager is responsible for the operational leadership, coordination and quality assurance of Partnership and Dog Training Instructor roles operating within the Northern region.

Partnership and Dog Training Instructor roles within the Medical Alert Assistance Dog department combine elements of dog training, client instructing, partnership placement and aftercare, depending on programme need. This role provides direct line management and oversight of Northern region staff working in these hybrid capacities.

The postholder ensures consistent, high‑quality delivery of MAAD partnerships, working collaboratively with training, welfare and senior management colleagues to support dog progression, client outcomes and compliance with ADUK and ADI standards.

WHAT YOU’LL DO:

Provide operational leadership for Northern region Partnership and Dog Training Instructor roles, ensuring staff who work across training, instructing and partnership delivery are effectively supported, coordinated and developed.

You will act as the regional lead for instructor‑delivered partnership work, maintaining oversight of workloads, partnership progression, accreditation readiness and aftercare delivery, while contributing to continuous service improvement under senior management guidance.

Reports to: Interim Head of Partnership Services

ABOUT THE ROLE

You will oversee and coordinate the Northern Medical Alert Assistance Dog function, managing staff in Partnership and Dog Training Instructor roles who support MAAD partnerships from allocation through placement and ongoing aftercare.

You will provide clear leadership, supervision and quality assurance, ensuring consistent delivery standards, balanced workloads and clarity of expectations for staff whose roles span multiple functions.

You will maintain oversight of partnership pipelines, regional capacity and accreditation timelines, ensuring accurate reporting and timely escalation of risks or concerns.

This is a senior operational role requiring strong people management, excellent dog training and instructing expertise, and a calm, organised approach to managing complex client‑facing services.

Responsibilities of the Role

Hybrid Role Leadership & Management (Northern Region)

• Line manage and support Northern region‑based Partnership and Dog Training Instructor roles
• Conduct regular 1:1s, supervision and appraisals
• Chair Northern regional team meetings and provide updates to the Interim Head of Assistance Dog Programme
• Approve annual leave and expenses, ensuring appropriate regional cover
• Support senior Partnership and Dog Training Instructor staff in mentoring or supporting less experienced colleagues
• Ensure staff adhere to departmental standards, methods and policies

Partnerships, Training & Client Delivery

• Oversee the progression of puppies within the Northern region and where required, carry out relevant assessments 
• Oversee the progression of MAAD partnerships across training, placement and aftercare within the Northern region
• Ensure client learning styles, family dynamics and individual needs are identified and supported
• Support or directly deliver Partnership and Dog Training Instructor role activity where required, including: Scent and odour training, Client‑specific training, Placement training, Aftercare and refresher support
• Maintain oversight of partnerships requiring remedial training or additional intervention
• Carry out or support final accreditation assessments where appropriate
• Ensure qualified partnerships continue to meet ADUK standards

Planning, Oversight & Reporting

• Maintain oversight of Northern region partnership activity, including: Applicants, Dogs approaching match, Partnerships in training, Accredited partnerships receiving aftercare
• Escalate risks, delays or welfare concerns to the ADPM with recommended solutions
• Contribute to departmental reports and inspection readiness

Governance, Welfare & Compliance

• Ensure all Partnership and Dog Training Instructor role activity complies with ADUK and ADI regulations
• Liaise with the Health & Welfare Manager regarding health or welfare concerns
• Support rehoming outcomes for withdrawn dogs in conjunction with relevant teams
• Ensure accurate and timely record‑keeping within the Harlequin CRM system
• Occasional handling of the emergency phone, liaising with clients and volunteers to manage emergency situations

Stakeholder & Cross‑Departmental Working

• To ensure volunteers and Dog training contractors based within the Northern region are well supported by regional staff.
• Act as the primary Northern region contact for partnership‑related matters
• Work closely with Applications and Welfare teams
• Support fundraising, communications and volunteering activities when required
• Promote best practice and learning across the charity

PERSON SPECIFICATION:

Experience & Qualifications

Essential

• Minimum 2years’ experience managing or leading staff in the Assistance Dog roles within an ADUK‑affiliated organisation
• Extensive experience delivering assistance dog partnerships, including training, placement and aftercarProven experience mentoring, supporting and performance‑managing staff
• Sound knowledge of ADUK and ADI regulations
• Strong organisational and caseload‑management abilities
• Confident working independently and managing competing priorities
• Comfortable working in the presence of dogs

Desirable

• Experience working with medical alert assistance dogs
• Knowledge of medical conditions affecting adult and child clients
• Experience supporting accreditation reviews or inspection processes

Knowledge & Skills

DESIRABLE

• Strong practical dog handling, scent training and knowledge of dog behaviour and development
• Excellent coaching, assessment and quality‑assurance skills
• Calm, clear and empathetic communication style
• Strong written and verbal communication skills
• Ability to exercise sound judgement in complex, client‑facing situations
• High level of IT literacy including Microsoft 365 and CRM systems

Other Requirements

• Full UK driving licence
• Willingness and ability to travel across the Northern region
• Willingness to stay away from home and have dogs reside in the home when required

DIVERITY, EQUALITY & INCLUSION

We are a welcoming, diverse and inclusive charity. Medical Detection Dogs thrives when everyone feels comfortable bringing their best self to work. We celebrate difference, whilst striving to create an environment where colleagues feel respected and valued for their unique potential. We are committed to our values on equity, diversity, and inclusion.

Values & Behaviours

Working at Medical Detection Dogs will be a richly rewarding experience.

Our Values & Behaviours encapsulate who we are, what we stand for and what it will feel like to be part of our team:

• We are respectful
• We stay positive
• We strive for excellence
• We communicate and listen
• We are ambassadors
• We are one team

And of course, we advocate for Medical Detection Dogs whenever we get the chance, and we pride ourselves on our role as ambassadors for the charity.

Pay: £33,000.00 per year

Job description:

Position: Volunteer Team Leader

Location: Remote in South West

Full-time Salary: £33,000 + car

Job Title- Volunteer Team Leader

Department- Regional Hub

Reports to- Head of Change

Grade- Team Leader

Job Purpose

To provide regional team leadership to designated Regional and Area Associations and their volunteers that inspires the delivery of excellent member benefits, sports and leisure events at a local level.

Key accountabilities

• To support volunteers to deliver a regional and local programme that: o Aligns to the CSSC strategy, mission, vision and values o Adheres to operating processes, framework and legislation o Enhances volunteer skills and experiences, celebrates volunteering, and attracts new volunteers to CSSC
• To work collaboratively with the Regional Chair and volunteers to monitor progress in line with their annual plan, attend local meetings and evaluate the delivery of activities and events.
• To foster effective networking and collaboration across the team championing best practices, seeking out new ideas, new ways of doing things, and celebrating success.
• To attract, recruit and induct new volunteers in such a way that they feel confident and can provide an excellent service for our members.
• To help volunteers to meet personal development goals and aspirations, ensuring that key volunteering roles have potential successors, retaining and developing the services and commitment of volunteers with CSSC.

Dimensions

No. of direct reports

0

Total staff overseen

0

Internal contacts

Volunteer Team, Events Team, Sports Development Team, Communications Team

External contacts

Regional and Area Officers, Communications Officers, Event volunteers

1

Person Specification

Personal

effectiveness

Essential

Desirable

Ability to manage and organise time and workload effectively.

Resilient and flexible with the ability to work under pressure

Ability to build and manage strong working relationships.

Able to work independently and as part of a team.

Personal drive and enthusiasm with a positive attitude and a desire to succeed.

.

Committed to continuous improvement

Skills,

experience & qualifications

Essential

Desirable

• Minimum of 3 years relevant volunteer management experience either in the work place or attained through a relevent qualification.
• Intermediate to advanced level of MS work and Excel
• Ability to communicate both through written and verbal
• Full UK driving license as travel will be required for this role
• A relevant degree or professional qualification in volunteer management

is not essential but may be advantageous.

• A working knoweldge of CRM and digital Event Management Systems
• Experience with building and working with high performing teams

Job Types: Full-time, Permanent

Benefits:

• Additional leave
• Company car
• Company pension
• Cycle to work scheme

Experience:

• Volunteer Management: 1 year (preferred)

Licence/Certification:

• Driving Licence (required)

Work Location: Remote

JOB TITLE: Membership Executive (England) 

CONTRACT: Permanent, Part Time (28 hours per week) 

ORGANISATION: Royal Life Saving Society UK (RLSS UK) 

DEPARTMENT: Membership & Education

LOCATION: Home/Field based
*with regular travel throughout England and to RLSS UK HQ, where required 

REPORTS TO: Head of Membership 

SALARY:£27,308 (Grade E) *Pro-rata for Part Time Hours

 
ROLE OVERVIEW 
We are seeking a self-motivated, personable, and enthusiastic individual to work as part of a team to support and grow our Branches and our lifesaving clubs as well as developing and grow recognition of and participation in Lifesaving Sport.

Pivotal to the role will be the collaboration with external agencies and clubs in England, to strengthen and publicise our water safety education throughout the region together with supporting the needs of clubs in the region. 

KEY TASKS, ROLES, AND RESPONSIBILITIES 

• To build and maintain productive relationships with organisations involved in the field of water safety, particularly with Water Safety England and associated partners including attendance at relevant meetings in coordination with the RLSS UK team
• To actively recruit and increase the number of clubs affiliated to RLSS UK 
• To support our Branches and their work in the regions through ongoing communication, sharing RLSS UK updates and feeding back on Branch activities and requirements
• Understand the water safety and drowning prevention geographical landscape across England and actively seek to enhance lifesaving provision in areas of low activity 
• In partnership with the Volunteering and Events Team and Sports Committee, continue to develop and grow participation in Lifesaving Sport 
• Support clubs to achieve and maintain the appropriate accreditation in line with RLSS UK requirements and policies 
• Support clubs to ensure they have the appropriate status, governance, and structure to enable them to be sustainable and effective 
• Support clubs, branches and working groups to offer effective pathways for the development of talent, growth, and retention of members 
• Support clubs to ensure they are compliant with the safeguarding requirements set out by RLSS UK 
• To support clubs to have an affective and appropriate workforce in place, including supporting them to recruit, train and retain 
• Contribute to RLSS UK’s Equality, Diversity, and Inclusion work to ensure affiliated clubs grow their capability to ensure every community enjoys water safely 
• Ability to attend occasional evening events 
• Willingness to travel throughout England as required

Other Duties & Responsibilities 

• Lead on and support ad hoc projects as required 
• Contribute to the successful operation of the charity by undertaking such other tasks as may from time to time be required including all other duties reasonably associated with your role, as directed by the Line Manager. 
• To demonstrate and uphold the Society’s values and behavioural standards 
• Proactively participate in the Society’s equality, diversity, and inclusion (EDI) initiatives and training, and to promote a culture of respect and inclusion for all staff and customers 
• Ensure compliance with UK GDPR and the Data Protection Act 2018 by complying with internal information governance policies and maintaining up to date as part of RLSS UK’s compliance programme. 

This job description is not to be regarded as exclusive or exhaustive. It is intended as an outline indication of areas of activity and responsibility and will be amended in light of the changing needs of the organisation. 

PERSON SPECIFICATION 

Essential Relevant Experience, Skills and/or Aptitudes 

• Experience of working with volunteers and sporting clubs 
• Experience of planning, prioritising, and managing a varied work programme and number of projects 
• Experience of effective liaison with external stakeholders to deliver outcomes and impact 
• Able to communicate effectively with people at all ages and all levels 
• High level of computer literacy 
• Excellent accuracy in numeracy and literacy 
• Ability to act on own initiative and to work as part of team with excellent interpersonal skills 
• A positive ‘can do’ attitude 
• Hold a Full UK Driving License, or have the ability to travel

Desirable Relevant Experience, Skills and/or Aptitudes 

•  An understanding of lifesaving and water safety sector/community 
• An understanding of working with branches
• An understanding of the aquatic sector and the structure of lifesaving clubs across the UK and Ireland 
• Demonstrable experience of increasing participation in underrepresented groups 
• Experience of working with governing bodies 
• Sport or Community Development qualification 
• Demonstrable experience of running or being involved in a sport club 
• Ability to adopt a flexible approach to work to meet the needs of the role 

YOUR STRENGTHS 

Personable – You can communicate effectively with people at all ages and levels. 

Relationship Building – You can develop positive and long last relations with clubs, organisations, and partners. 

Flexibility – You remain adaptable and flexible in the face of unfamiliar or changing situations.

Empathy – You readily identify with other people’s situations and can see things clearly from their perspective. 

Initiative – You take independent action to make things happen and to achieve goals. 

Resilience – You deal effectively with setbacks and enjoy overcoming difficult challenges. 

Optimism – You remain positive and upbeat about the future and your ability to influence it to your advantage. 

Developing Others – You promote other people’s learning and development to help them achieve their goals and fulfil their potential. 

YOUR APPLICATION

Please send your CV and a Cover Letter outlining why you should be our next Membership Executive (England) 

Closing Date – 5pm, Wednesday 13 May 2026

Interview Date – Thursday 21 and Friday 22 May 2026 our Worcester Head Office (subject to change)

WHAT RLSS UK CAN OFFER YOU

• Annual Leave based on 27 days + Bank Holidays + a discretionary day off for your birthday
• Private Medical Scheme*
• Enhanced Society Sick Pay*
• Eye Care*
• Employee Assistance Programme via Health Assured
• Life Assurance Scheme
• Howdens Sports Benefits
• Free RLSS UK Membership
• Free tea and coffee at HQ, including access to our wonderful Coffee Machine
• Free on-site parking when working from HQ
• Company Events and more!

*Subject to eligibility criteria

Should you wish to discuss the role, any reasonable adjustments you may require throughout the recruitment process, or have any questions, please get in touch where a member of the RLSS UK HR Department will be happy to help.

RLSS UK are a Disability Confident Committed Employer and an INclusive Worcestershire Leader.

Role outline and purpose

The Organising and Local Mobilisation (OLM) Manager is responsible for managing ongoing support to food banks as they organise and campaign for change. This varied, proactive, and fast-paced role will involve working closely with grant funded Local Organisers as part of Trussell’s Organising Programme, frequently visiting food banks and delivering online and in person training.

You will hold responsibility for providing direct support as food banks develop effective campaign strategies – covering local and Trussell priorities – and ensuring they have the capacity, skills, and resources to deliver them. You will also work closely with other departments at Trussell and external partners to support food banks outside of the Organising Programme to influence locally and play a leading role in mobilising them to campaign for change. 

This role is part of Trussell’s Supportive Communities programme, the goal of which is to enable local communities to become places where people at risk of needing to use a food bank are supported and are using their agency to bring about meaningful changes that prevent anybody from needing emergency food. This role is focused on the successful delivery of the overall programme outcomes, contributing to the fulfilment of our long term vision of a UK without the need for food banks.

Role responsibilities

· Network area-wide delivery of the Organising Programme: Lead and manage the delivery of OLM’s Organising Programme in your network area, recruiting food banks to join, providing in person and online training and ongoing relational support to Local Organisers to ensure campaign strategies are developed and delivered. Organise and lead area-wide training, clusters, or events for food bank staff and volunteers to promote co-operation and sharing of good practice around local influencing. 

· Training, learning and programme development: Play a key role in the design and delivery of a programme of training and other learning for food banks covering organising, mobilising, and influencing. Contributing to impact and process evaluations and assisting food banks involved to explore future sources of funding, as required.

· Supporting food banks to influence locally: Empower food banks to develop their local influencing work, triaging influencing issues and managing input from other relevant Trussell Trust experts to provide ongoing support that enables the food bank to progress their influencing work. 

· Mobilising food banks in Trussell’s campaigns: Support the development and promotion of national Trussell policy campaigns, working with other teams and external partners to engage the food banks you support in taking action - including how they might take ownership of campaigns locally and help shape those priorities.

· Internal stakeholder engagement: Project manage OLM’s involvement in assigned cross-organisational projects – e.g. a policy campaign or strategic project, ensuring the OLM team are consulted, negotiating with other teams and making decisions accordingly. As part of an area-based matrix team you’ll work closely with other food bank facing staff to ensure a joined up approach to food bank support, effective communication, as well as sharing learning and best practice. 

· External stakeholder engagement: Build and maintain strong relationships with food bank leaders, staff, volunteers, and trustees, as well as establishing effective partnerships with a range of stakeholders such as local authorities, community organisations, and churches. 

Person Specification

Technical skills and minimum knowledge:

·  Experience of delivering organising work and/or campaigning for change at a grassroots, local and/or national level. 

· Excellent knowledge and understanding of the political landscape of your assigned area. 

· A confident communicator with the ability to successfully influence and negotiate with a wide range of stakeholders, including food bank staff and volunteers, local authorities, community organisations, and churches. 

· Knowledge and experience of a wide range of campaigning tactics, campaign planning and developing theories of change. 

· Ability to develop and deliver training for organisers, trustees, staff and volunteers from food banks, including event management. 

Behaviours and competencies:

· Demonstrate a commitment to the values of Trussell. 

· Role models inclusive behaviour and values, including demonstrating empathy for people from disadvantaged, marginalised or socially- excluded backgrounds. 

· Able to build effective relationships with people from diverse backgrounds and with differing life experience, including in contexts where Christian faith plays a major part, and in which people of all faiths and none collaborate to make a difference together.  

· Effective project management ensuring alignment with the Trussell vision and strategy and collaborative working to maximise integration and effectiveness of activities

· Is tenacious, proactive, creative and propositional, and makes things happen. 

· Able to solve complex problems; with a self-motivated and solutions-focused outlook 

Key Stakeholders

·  Food banks, including local organisers, project managers, volunteers, and people they support. 

· The wider OLM team. 

· Network Area Teams, who support food banks in their day-to-day work

· Grants team 

· Participation team 

· Making Social Security Work programme team

· Others TBC

JOB TITLE: Membership Executive (Wales and Ireland) 

CONTRACT: Permanent, Part Time (21 hours per week) 

ORGANISATION: Royal Life Saving Society UK (RLSS UK) 

DEPARTMENT: Membership and Education

LOCATION: Home/Field based 
*with regular travel throughout Wales and Ireland, and to RLSS UK HQ, where required 

REPORTS TO: Head of Membership 

SALARY: £27,308 (Grade E) *Pro-rata for Part Time Hours

 
ROLE OVERVIEW 
We are seeking a self-motivated, personable, and enthusiastic individual to work as part of a team to support and grow our Branches and our lifesaving clubs as well as developing and grow recognition of and participation in Lifesaving Sport.

Pivotal to the role will be the collaboration with external agencies and branches and clubs in Wales and Ireland, to strengthen and publicise our water safety education throughout the region together with supporting the needs of clubs in the region. 

KEY TASKS, ROLES, AND RESPONSIBILITIES 

• To build and maintain productive relationships with organisations involved in the field of water safety, particularly with Water Safety Wales, Water Safety Ireland and associated partners including attendance at relevant meetings in coordination with the RLSS UK team
• To actively recruit and increase the number of clubs affiliated to RLSS UK 
• To support our Branches and their work in the regions through ongoing communication, sharing RLSS UK updates and feeding back on Branch activities and requirements
• Understand the water safety and drowning prevention geographical landscape across Wales and Ireland and actively seek to enhance lifesaving provision in areas of low activity 
• In partnership with the Volunteering and Events Team and Sports Committee, continue to develop and grow participation in Lifesaving Sport 
• Support clubs to achieve and maintain the appropriate accreditation in line with RLSS UK requirements and policies 
• Support clubs to ensure they have the appropriate status, governance, and structure to enable them to be sustainable and effective 
• Support clubs, branches and working groups to offer effective pathways for the development of talent, growth, and retention of members 
• Support clubs to ensure they are compliant with the safeguarding requirements set out by RLSS UK 
• To support clubs to have an affective and appropriate workforce in place, including supporting them to recruit, train and retain 
• Contribute to RLSS UK’s Equality, Diversity, and Inclusion work to ensure affiliated clubs grow their capability to ensure every community enjoys water safely 
• Ability to attend occasional evening events 
• Willingness to travel throughout Wales and Ireland as required

Other Duties & Responsibilities 

•  Lead on and support ad hoc projects as required 
• Contribute to the successful operation of the charity by undertaking such other tasks as may from time to time be required including all other duties reasonably associated with your role, as directed by the Line Manager. 
• To demonstrate and uphold the Society’s values and behavioural standards 
• Proactively participate in the Society’s equality, diversity, and inclusion (EDI) initiatives and training, and to promote a culture of respect and inclusion for all staff and customers 
• Ensure compliance with UK GDPR and the Data Protection Act 2018 by complying with internal information governance policies and maintaining up to date as part of RLSS UK’s compliance programme. 

This job description is not to be regarded as exclusive or exhaustive. It is intended as an outline indication of areas of activity and responsibility and will be amended in light of the changing needs of the organisation. 

PERSON SPECIFICATION 

Essential Relevant Experience, Skills and/or Aptitudes 

• Experience of working with volunteers and sporting clubs 
• Experience of planning, prioritising, and managing a varied work programme and number of projects 
• Experience of effective liaison with external stakeholders to deliver outcomes and impact 
• Able to communicate effectively with people at all ages and all levels 
• High level of computer literacy 
• Excellent accuracy in numeracy and literacy 
• Ability to act on own initiative and to work as part of team with excellent interpersonal skills 
• A positive ‘can do’ attitude 
• Hold a Full UK Driving License, or have the ability to travel

Desirable Relevant Experience, Skills and/or Aptitudes 

• An understanding of lifesaving and water safety sector/community 
• An understanding of working with branches
• An understanding of the aquatic sector and the structure of lifesaving clubs across the UK and Ireland 
• Demonstrable experience of increasing participation in underrepresented groups 
• Experience of working with governing bodies 
• Sport or Community Development qualification 
• Demonstrable experience of running or being involved in a sport club 
• Ability to adopt a flexible approach to work to meet the needs of the role 

YOUR STRENGTHS 

Personable – You can communicate effectively with people at all ages and levels. 

Relationship Building – You can develop positive and long last relations with clubs, organisations, and partners. 

Flexibility – You remain adaptable and flexible in the face of unfamiliar or changing situations.

Empathy – You readily identify with other people’s situations and can see things clearly from their perspective. 

Initiative – You take independent action to make things happen and to achieve goals. 

Resilience – You deal effectively with setbacks and enjoy overcoming difficult challenges. 

Optimism – You remain positive and upbeat about the future and your ability to influence it to your advantage. 

Developing Others – You promote other people’s learning and development to help them achieve their goals and fulfil their potential. 

YOUR APPLICATION

Please send your CV and a Cover Letter outlining why you should be our next Membership Executive (Wales and Ireland) 

Closing Date – 5pm, Wednesday 13 May 2026

Interview Date – Thursday 21 and Friday 22 May 2026 our Worcester Head Office (subject to change)

WHAT RLSS UK CAN OFFER YOU

• Annual Leave based on 27 days + Bank Holidays + a discretionary day off for your birthday
• Private Medical Scheme*
• Enhanced Society Sick Pay*
• Eye Care*
• Employee Assistance Programme via Health Assured
• Life Assurance Scheme
• Howdens Sports Benefits
• Free RLSS UK Membership
• Free tea and coffee at HQ, including access to our wonderful Coffee Machine
• Free on-site parking when working from HQ
• Company Events and more!

*Subject to eligibility criteria

Should you wish to discuss the role, any reasonable adjustments you may require throughout the recruitment process, or have any questions, please get in touch where a member of the RLSS UK HR Department will be happy to help.

RLSS UK are a Disability Confident Committed Employer and an INclusive Worcestershire Leader

Job Description

Job Title: Digital Content Officer – SEND

Responsible To: Senior Parent Adviser - SEND

Team Membership: Helpline/IAS- (Information, Advice and Family Support Directorate)

Hours: 14 hours a week  

Salary scale:

Scale point 26
£32,168.00 FTE
£12,867.20 – actual (14 hours a week) plus £26.00 a month home working allowance

Contract: Fixed – until 31 March 2027

Location: Home based - UK

Job Purpose:

To write engaging plain English website copy on SEND law and related education law matters in England.

To help ensure the provision of quality information, advice and support to parent carers.

Main Duties: 

 To write quality plain English copy for the Contact website.

To review, edit and update existing SEND and education related copy on the Contact website.

To work with the education helpline team to identify and prioritise the information and advice needs of parent advisers and parent carers.

To write and develop content to respond to common SEND and related education law concerns of parent carers.

To help ensure our information and advice reaches more families by working with the comms team to promote our IAS through social media, and digital channels.

To build positive working relationships with colleagues, contributing to a culture of mutual respect, trust, and shared responsibility.

To respect diverse experiences and perspectives within the team and contribute constructively to problem‑solving and decision‑making.

Demonstrates awareness of education legislation, statutory guidance, and good practice in England.

A commitment to the provision of quality information and advice.

 General duties

In common with all Contact staff, the post holder will be expected to work in accordance with the aims of Contact and to observe the policy and procedures set out by the directors of the charity.

The post holder will be expected to assist with any reasonable duty at the request of the line manager for the post.

Staff will be expected to attend and participate in Contact staff meetings and the staff annual conference.

Staff will be expected to attend training events relevant to their specific responsibilities.

Staff will be offered supervision, support and annual review s incorporating their training needs.

The Pepper Foundation is a local charity funding children’s hospice care at home, specialised play and family days for children living with life-limiting and life-threatening conditions in Hertfordshire and Buckinghamshire. 

The Trusts & Foundations Fundraiser will be joining Pepper at an exciting time as we launch our new three-year fundraising strategy. Backed by committed investment and with full Board approval, we are delighted to be growing the charity to deliver sustainable income that directly supports local children and families with hospice care in the comfort of their own homes.

Working closely with the Head of Trusts & Foundations, you will play a pivotal role in increasing income from trusts and foundations by developing and managing a strong pipeline of funders, securing new grants, and building long-term relationships that lead to increased and multi-year support. You will research and prepare compelling applications to both new and existing funders, alongside producing timely, engaging reports that clearly demonstrate impact.

This role requires a highly organised and motivated individual with a passion for writing, strong attention to detail, and the ability to deliver exceptional cultivation, stewardship and relationship management of trusts and foundations aligned with our mission.

Your work will directly support hospice at home care, specialist play services, and meaningful family days out for children with life-limiting and life-threatening conditions – making a tangible difference to families during the most difficult of times.

Hours: 22.5 hours per week working from home – applicants must live within Hertfordshire or Buckinghamshire (or surrounding counties)

Salary: £19,800 per annum for 22.5 hours per week (£33,000 FTE per annum)

Key requirements:

• Work with the Head of Trusts & Foundations to agreed income targets and growth.
• Build and maintain a strong pipeline of small and medium trusts and foundations (giving up to £10,000).
• Produce high-quality, tailored applications to prospective funders aligned with agreed criteria.
• Prepare meaningful update reports, demonstrating the impact of a funder’s support, whilst ensuring all reporting requirements and deadlines are met.
• Deliver excellent relationship management and stewardship through regular reporting and tailored communications.
• Conduct prospect research to identify and prioritise new trust funding opportunities aligned with The Pepper Foundation’s work.
• Maintain accurate and up-to-date records of all communications on the Donorfy CRM database whilst keeping abreast of GDPR.
• Stay up to date with current trends in trust fundraising.
• Ensure compliance with relevant regulations, including the Fundraising Regulator Code of Practice, and internal Safeguarding Policies.
• Represent The Pepper Foundation at events as required.

How to apply: For further details about the role, please download our recruitment pack. Please send your CV with a cover letter explaining why you would make a great candidate for this role and how you meet the job description. 

Closing date: 1st June 2026 at 5pm

Interview dates: First-round interviews on 10th and 11th June and second-round interviews on 15th June 2026.

Interviews will take place at our office in Berkhamsted. Please let us know if you have any accessibility requirements or need any adjustments for the interview.

If appointed, an enhanced DBS check will be required.

Do you want to work with a leading advocacy charity organisation supporting those in need?   

Do you have experience of successful delivery of safeguarding strategies and initiatives?  

Are you keen to make a difference to people who want to be heard through a profound commitment to safeguarding, protection and promoting the welfare of children and vulnerable adults? 

Then come and join us here at VoiceAbility.  

We have an exciting opportunity for a Designated Safeguarding Lead to join our team to Act as the expert organisational designated safeguarding lead (DSL) for all work 

covering children, young people (CYP) and adults in equal measure. Your role will be homebased but may require you to travel to locations such as hospitals and care homes nationally to meet with stakeholders; therefore, a suitable home internet connection is essential.

About us  

VoiceAbility is an independent charity and one of the UK’s largest providers of advocacy and involvement services. We deliver a wide range of service contracts funded by local authorities, health trusts and other voluntary and private sector organisations.  

We’ve been supporting people to have their say in decisions about their health, care, and wellbeing for over 40 years. We make sure people are heard when it matters most.  For more information on what Advocacy is and the services offered then please visit our website.  

About you 

You will have at least 2 years’ experience of working as a Designated Safeguarding Lead with line management responsibility, developing, implementing and evaluating of CYP and Adult safeguarding policies, procedures, and training programmes, reflecting current legislation and best practices.You will also have demonstrable experience in leading, managing, influencing diverse teams on safeguarding, focusing on developing a positive culture and promoting continuous professional development. 

You should have experience in managing complex safeguarding cases, including conducting risk assessments, deciding on immediate actions, and coordinating with external agencies and key stakeholders. 

How will you make a difference? 

You will be called upon internally and/or by external bodies as a source of organisational expert knowledge. 

You will provide leadership and accountability for the advancement of safeguarding best 

practices. 

You will work resourcefully and collaboratively across agencies and adapt child protection systems to address risks in diverse social environments as part of a contextual safeguarding approach, ensuring the safety and wellbeing of young people, vulnerable groups and adults alike.

Benefits  

28 days annual leave plus bank holidays (pro-rata for part-time colleagues) rising to 30 days upon 5 years’ service  

5% employer pension & minimum 3% employee contribution  

Salary sacrifices pension scheme  

Separate Life Assurance Cover (equivalent of two times your annual salary)  

Staff discount scheme including retail discounts, entertainment, holidays, gym membership etc  

24/7 Employee Assistance programme  

Access to remote counselling service  

Paid Disability Leave  

Paid compassionate Leave  

Home Working Allowance   

How are staff supported to work remotely?  

VoiceAbility has a small number of offices. Employees including Team Leaders are homebased for Administration and meetings will be held online as well as in person in the relevant community.  

When you need to travel for work, expenses will be paid (mileage or public transport costs).   

VoiceAbility offers the usual regular manager one to ones, Staff forums and communities of practice depending on role. Team meetings with a mix of virtual and in person approach.  

Equality and Diversity 

VoiceAbility believes in fostering an inclusive workplace which welcomes, values and celebrates the diversity of its staff and partners, treats all on a basis of equality and encourages all to meet their maximum potential. 

VoiceAbility are a Disability Confident employer, any applicant that identifies themselves as having a disability and can demonstrate that they meet all the essential criteria for the role will be offered an interview. 

There when it matters

About the role:

The Regional Fundraiser is responsible for delivering sustainable net income through a variety of income streams across a hospice catchment area in line with fundraising strategy.

The post holder delivers locally tailored activity, building and maintaining strong relationships with supporters, community groups, businesses and volunteers to grow income and engagement.
Working closely with the Regional Fundraising Team Manager and colleagues, the role contributes to planning, delivery and mitigation across key income streams.

As an ambassador, representing the charity within the local community, promoting collaboration across hospice, retail and fundraising teams.
The role ensures excellent supporter stewardship, accurate data management and compliant fundraising practice.

Through excellent supporter care, compliant practice and flexible cross-team collaboration, the Regional Fundraiser drives net income and supports the long-term sustainability and reputation of Sue Ryder.

About you:
• Experience of using a fundraising CRM to manage activity.
• Ability to contribute to a collaborative team culture
• An excellent networker, capable of developing relationships with people from a wide variety of backgrounds.

Essential Criteria
• Experience of successfully delivering activity in line with fundraising strategy.
• Experience of delivering net income, ideally across a variety of income streams including corporate, in memory, events (third-party and staff led) high value (£5k+), community groups and volunteer-led activity.
• Experience of forming, nurturing and maintaining relationships within local communities including individuals, groups and associations to deliver growth in income

Closing date: 10th May
Interviews: TBC

Competitive Benefits Package
- 27 days holiday rising to 33 with length of service plus bank holidays (pro rata if part-time)
- Company pension scheme
- Staff discount with thousands of retailers
- Refer a Friend scheme - £250 payment
- Enhanced maternity, paternity and adoption pay
- Enhanced sick pay
- Electric Vehicle Scheme
- Healthcare Cash plan, to claim back costs of routine healthcare
- Death in Service benefit
- Staff discount of 10% on new goods online
- Structured induction programme and learning and development opportunities.
- Access to Employee support programme
- and lots more. Please visit our careers website for the full list.

If you want more than just a job, we want you.
Join the team and be there when it matters.

Our commitment to equity, diversity and inclusion

At Sue Ryder, we recognise that a diverse workforce allows us to provide the best care and support. We are committed to encouraging equity, diversity and inclusion among our workforce, and eliminating unlawful discrimination.

We welcome applications from people from Black, Asian and Minority Ethnic communities, LGBTQ+ individuals, those from lower socio-economic backgrounds, and those living with disabilities.

As a Disability Confident Committed employer, we’re proud to support the ‘Offer an Interview’ scheme. This means we will offer an interview to all disabled applicants who best meet the minimum essential criteria for the role.

We use inclusive recruitment practices including sharing interview themes or questions in advance, offering remote interviews where needed, and other accessibility support.

Once in post you’ll have access to staff and volunteer networks for LGBTQ+ colleagues, ethnic diversity and equity, people with disabilities, and women and non-binary individuals, plus an Inclusion Passport to record and carry your workplace adjustments.

Join us in creating a culture where everyone feels respected, valued, and able to thrive.

Sue Ryder is here to make sure everyone approaching the end of their life or living with grief can access the support they need. There is no one size fits all when it comes to how we cope and the help we need, but with our support, no one has to face dying or grief alone. We are there when it matters.

About you

Do you want to use your skills to make it possible for people with myeloma to live longer and better lives?  We are looking for a Peer Service Co-ordinator who will facilitate the delivery of our Peer Service and collaborate on the future development and improvements of the service.

You will have experience of recruiting, training, and supervising staff or volunteers. Experience working with a diverse range of communities would be an advantage as we are looking to increase our reach. The role holder will have an understanding of the challenges that may arise from delivering digital/telephone support and the ability to understand and meet training and development needs of volunteers.

You’ll have excellent communication, organisational and IT skills as well as being self-motivated, committed with a desire to make a difference and willing to develop and expand the role.  Experience of facilitating peer support services, with a focus on volunteer/user involvement in service delivery would be an advantage but not essential.

About the role

The Peer Service Co-ordinator will facilitate and develop the Peer Service, a tailored support service utilising volunteers to provide peer support both in and out of standard office hours.

The postholder will be expected to train and develop the volunteers who support the Peer Buddy service, make suggestions for improvements and recruit and train new volunteers to increase the diversity of the volunteer pool. You will support in delivering ongoing improvements and further service development to enhance the offerings of the peer service while working with the Peer Service Lead to ensure possible risks have been identified, assessed and effective risk management strategies have been put in place.

You will need to develop and maintain a good understanding of myeloma and its’ related conditions, including patient need, and develop and evaluate the service in line with this. 

This role will be part of the team responsible for running this service and provide supervision and training to volunteers. They will be expected to adhere to safeguarding principles and good governance.

About us

Myeloma UK is the only UK charity focused on the incurable blood cancer, myeloma and its related conditions.  We provide support and influence access to treatments, while researching a cure.  Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well. 

We are committed to bringing together the best and brightest people to help us ensure that every person affected by myeloma has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every person living with myeloma, live well, for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change.

Our culture

Wellbeing and staff engagement are at the heart of our culture.  We offer employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working which includes both home and hub-based office working, health plan, employee assistance plan and holiday purchase scheme. We are committed to providing learning and development opportunities for all our employees.

How to apply

If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:

1. A cover letter telling us more about you and what you think makes you a good fit for this role

2. A CV that sets out your career history, with key responsibilities and achievements

Applications close on 9am on 11 May 2026 and interviews will be held w/c 18 May 2026

Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:

· sex

· race

· disability

· age

· sexual orientation

· gender reassignment

· religion or belief

· marital status

· or pregnancy and maternity

Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.

We are looking for a part time Fundraising & Development Lead to join a small innovative global charity and play a critical role in securing funding from Trusts and Foundations to support the charity with their community development initiatives.

The ideal candidate would bring senior-level fundraising experience from a similar role at an NGO, organisation, or charity with an established network of executive relationships in major global trusts and foundations.

This is a remote working role.

The charity
A small charity having a big impact. They offer home working with some of the team in London and others in Scotland and Europe.

The Role
This is a new business focussed role, where you will be required to build a high value pipeline of suitable donors and develop and deliver compelling high value bids for support.

Reporting into the Director and working alongside another Fundraising & Development Lead who recently joined the team.

Applications & Fundraising Development
Lead the development of high-quality grant proposals, ensuring proposals are compelling, well-written, and tailored to meet the requirements and priorities of each donor.

Relationship Management
Oversee the complete grant lifecycle, from initial lead to application to reporting and closeout.
Build and maintain relationships with current and prospective donors, program officers, and other key stakeholders.

Events and Networking and Representation
Effectively convey the charity mission, vision, and programs to potential donors, organising fundraising events while overseeing teams of volunteers and probono partners.

The Candidate
Senior-level fundraising experience from a similar role at an NGO, organisation, or charity.

Extensive existing network of senior executives with major global foundations and organisations.

Proven track record of identifying and closing deals for 6 - 7 figure gifts.

IMPORTANT NOTE

Our aim is to respond to all successful applications within 5 days. If you havent been contacted within 5 days your application has been unsuccessful, but we positively encourage you to apply for any other positions that you may see in the future.

We apologise that we cannot contact everybody in person but thank you in advance for your interest.

Third Solutions encourages applications from individuals of all ages & backgrounds. Appointment will be made on merit alone but candidates must be able to demonstrate their ability to work in the UK. Third Solutions acts as an employment agency for permanent recruitment & an employment business for temporary recruitment as defined by the Conduct of Employment Agencies & Employment Business Regulations 2003.

About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June. 

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.