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Jobs in Crowborough

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Closing in 4 days
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 1 week ago Apply Now

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The Hepatitis C Trust, Redhill, Surrey (Hybrid)
£32,500 - £36,500 per year
We are looking for a passionate and skilled manager who has excellent communication and organisational skills.
Posted 1 week ago
The Southmead Project, Remote
£350 per day
Posted 1 week ago
Closing in 2 days
Harris Hill Charity Recruitment Specialists, Remote
£43K per annum
Posted 1 week ago Apply Now
THE ROAD SAFETY TRUST, Remote
£32,043 FTE 1/ £19,225 FTE 0.6
Posted 1 week ago Apply Now
Curieus Games CIC, Remote
£36,000 per year
Posted 2 weeks ago Apply Now
Stroke Association, Remote
Circa £17,000 per annum (FTE circa £28,300 per annum)
Posted 2 weeks ago
Closing tomorrow
Stroke Association, Remote
Circa £22600 per annum (FTE £28300) + applicable London weighting (pro rata)
Posted 2 weeks ago
Not For Profit People, Remote
£17,000 – £22,600 per annum depending on hours (FTE circa £28,340.58)
Posted 2 weeks ago
Not For Profit People, Remote
£30000 - £32000 Per Annum
Posted 2 weeks ago
Page 14 of 16
Tonbridge, Kent (Hybrid) 10.41 miles
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Refreshed on: 21 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.