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Wolfram Syndrome UK (WSUK)
WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. For further information visit the Wolfram Syndrome UK website
WSUK Adult Support Co-ordinator Role
WSUK is seeking a part-time adult support co-ordinator (2.5 days per week, working over 4-5 days, 0.5 FTE, £14.1k-£15.6k per annum), based in the Midlands area. This home-based role will provide support to WS affected adults and their families to help improve the quality of their lives. Through liaising with professionals (including the WS expert clinical team at Queen Elizabeth Hospital (QEH), Birmingham), external or advocacy organisations, this role will help facilitate access to the services to which WS affected adults and their families are entitled. The adult support co-ordinator will help adults and their families to increase their confidence and independence in living with their condition. This role will also act as an important point of contact for WS affected adults, providing advice and support in confidence.
Skills and experience
Applicants should have several years’ experience in a similar position, working with people affected by sensory loss, long-term medical / genetic condition, or disability. Applicants should also have a strong desire to help improve the lives of adults living with a long-term condition or disability and be confident in talking with people with a range of abilities and diverse cultural backgrounds.
Applicants should have experience in working effectively as part of a remote team, be confident in working independently and in managing conflicting priorities.
Some limited UK travel will be required (particularly to meet WS affected adults during their WS clinic visit at QEH, Birmingham (6 clinics per year) and the annual WS conference. An enhanced DBS check will be required.
The client requests no contact from agencies or media sales.
Thank you!
Are you highly organised, confident with digital systems, and motivated by work that genuinely transforms lives? This part-time maternity cover role offers an exciting opportunity to join Embrace the Middle East’s friendly Shared Services team and support the charity’s vital mission.
In this role, you will help ensure our CRM and wider digital systems run smoothly and effectively, enabling teams across the charity to deliver exceptional service to our supporters.You will use your strong attention to detail, technical capability, and problem-solving skills to maintain accurate data, streamline processes, and support colleagues in their work.
With flexible working arrangements, a supportive team environment, and the opportunity to contribute to meaningful, justice-focused work across the Middle East, this role is ideal for someone who enjoys enabling others to thrive through excellent systems and service.
This role is predominantly home working, with the requirement to work at Embrace’s office in High Wycombe once every fortnight for team building purposes.
For more information and to apply, please visit our careers page.
Closing date: 5.00pm on Thursday, 9th April 2026.
Thank you!
We are seeking a proactive and organised Hub and Helpdesk Coordinator to oversee the day-to-day operation of the URC Resources Hub and deliver an efficient, user-focused helpdesk service.
In this role, you will be the first point of contact for enquiries, triaging and tracking queries through to resolution and escalating issues as needed. You will monitor Hub performance, flag content and technical issues, maintain service documentation and coordinate closely with the relevant teams and users to ensure a consistent and reliable service.
The role also involves preparing regular performance reports and escalating risks or development needs, helping to support continuous improvement of the Hub’s operations.
The successful candidate will demonstrate excellent judgement, strong risk awareness and confident use of IT tools. You will have outstanding communication and interpersonal skills, the ability to manage a complex workload within the tight deadlines and the confidence to act on your initiative when appropriate.
This is an excellent opportunity for someone who thrives in a service-oriented digital environment. We offer you a flexible and friendly hybrid work environment from the Office of General Assembly in London and from home.
If you are interested in working for us and can meet the above requirements, please see our website for a job description and application form (noting that we do not accept CVs).
Closing date for applications: 12 noon, Wednesday 15 April 2026
Interview date: Tuesday 28 April 2026
Registered Charity
51 - 100
Wherever you are on your journey, we are here for you. We are a community that shares Gods love and joy in the hope of making the world a better place
The client requests no contact from agencies or media sales.