Policy and influencing officer volunteer roles in Walton on thames, surrey

Research & Policy Officer (Volunteer)

Purpose: To support research / policy projects in areas of the UK, ensuring strategic alignment, quality assurance, and effective collaboration that drives systemic change for young people across the UK.

Key Responsibilities

• Provide strategic oversight of research / policy projects, ensuring outputs are high-quality and impactful.

• Lead on drafting policy briefs and research reports, setting standards for evidence-based advocacy.

• Coordinate multi-stakeholder collaboration, i.e councils, commissions, and community organisations to deliver change.

• Identify emerging issues and opportunities, help in shaping the research agenda in line with organisational priorities.

• Represent the organisation in external meetings.

• Ensure consistency and coherence across multiple projects running in different localities.

Person Specification

• Background in social policy, law, health, climate, or political science, ideally with professional or postgraduate experience.

• Proven ability to manage complex projects and coordinate across multiple stakeholders.

• Excellent strategic thinking and communication skills, able to influence decision-makers.

• Strong IT and remote collaboration skills.

• Deep commitment to human rights

Letter from our Chair - Lucy Thomas

We are seeking a passionate and strategic individual to join our Board of Trustees, someone who brings strong commercial insight, business acumen, and ideally experience in fundraising and income generation.  This is an exciting opportunity to play a pivotal role in shaping the future of a respected national charity that continues to grow its reach and impact.

As a Trustee, you will also sit on our Commercial Advisory Group (CAG) a dynamic sub-group that advises on the Trust's commercial strategy, innovation, and sustainability.  You'll help us strengthen our commercial performance, explore new opportunities for growth and diversification, and ensure we remain on strong financial footing to deliver our vital mission.

We welcome applicants from all sectors and backgrounds.  Experience in marketing, partnerships, or charity leadership would be an advantage, but what matters most is your ability to bring fresh thinking, sound judgement, and a commitment to using your commercial experience for social good.

Background

Suzy Lamplugh Trust was founded by Diana and Paul Lamplugh following the disappearance of their daughter Suzy, a young estate agent, in 1986. Since then, the Trust has pioneered personal safety as a life skill and a public policy priority.

Our vision is to eliminate abuse, aggression and violence, creating a society where people are safer and feel safer.

Our mission is to reduce the risk and prevalence of abuse, aggression and violence with a specific focus on stalking and harassment through education, campaigning, and support.

What we do

• Campaigning - working in partnership with other charities, private and statutory organisations; raising awareness; influencing policy makers
• Education - advice; training; guidance; workplace support; free resources, information; consultancy
• Support - National stalking helpline and advocacy service; supporting people at increased risk of violence and aggression; community projects

The food system is unsustainable and unjust, and it’s damaging the health of a generation. We are a youth activist movement set up to challenge a food system that’s been set up to fool us all. We're looking for a new Chair who shares our passion for empowering youth leadership and transforming our food system

We are looking for a new independent trustee who can bring fresh perspectives and objective judgment from outside our immediate membership to join our very committed board. The successful candidate will need to demonstrate knowledge and understanding of charity law and regulation.

Location: Attendance at 4 board meetings (mainly online but with 1-2 in London) each year, and attendance at the Board strategy day.

You may also be required to attend the Council’s annual general meeting and any other general meetings. There may also be additional requirements upon appointment and periodically thereafter for training days in the Council’s office in central London. There will be a full induction as part of the onboarding process.

Remuneration: This is as voluntary unpaid role. Reasonable travel expenses will be reimbursed.

About: The Council of Deans of Health is a membership organisation and charity representing over 100 UK universities and colleges engaged in education and research for nursing, midwifery, and the allied health professions. At any one time, our members educate around 200,000 current and future professionals and carry out research that improves the population’s health and wellbeing.

Our Board of Trustees is responsible for oversight of the administration and management of the Council, which is led by the CEO who is accountable to the Board. The role of the Board includes setting and monitoring the implementation of the Council's strategy, and ensuring its financial sustainability and its compliance with legal requirements. The Board of Trustees will play an important role in taking forward the Council’s strategy, overseeing the continued growth of the Council, ensuring its financial sustainability, and avoiding exposing the charity’s assets, beneficiaries or reputation to undue risk. The Board comprises a mix of trustees drawn from our member organisations and independent trustees from a range of different professional backgrounds and experience.  

Key responsibilities:

• Contribute to the overall strategic direction of the Council, including taking forward the Council's agreed strategy.
• Ensure the Council complies with its governing document, company law, charity law and any other relevant legislation or regulations.
• Oversee the Council’s financial management with the overall aim of achieving financial sustainability.
• Safeguard the organisation and advise on diversification of income to support the Council’s development.
• Work effectively and collaboratively with the Chair and other Board members in providing support and effective scrutiny to the Council's senior staff team.

Some of the essential competencies we are looking for all Trustees:

• Demonstrate a commitment to understanding the Council's business, the sector context and wider policy issues across the four nations of the UK.
• Demonstrate excellent communication skills and an enabling, inclusive approach.
• Ability to think strategically and offer advice, guidance, support and constructive challenge to oversee the effective delivery of the Council’s strategic objectives.
• Demonstrate a track record of collaborative working in an organisation with a wide range of internal and external stakeholders.
• Ideally, have experience at senior management or board level in other organisations and experience of charity governance.

Full details of the role and responsibilities required can be found in the candidate information pack. Please apply by following the instructions in the candidate information pack. The closing date is 22 May 2026 at 4pm. 

Opportunity to use your expertise and knowledge of the planning system, sound grasp of related procedures and a keen interest in the environment. At CPRE London you will help us protect and improve access to London'sgreen spaces.

As a Senior Planning Volunteer for CPRE  this offers an opportunity to use your investigative skills on planning applications which affect Londoners' access to green spaces and help us to influence positive, environmentally friendly outcomes. You’ll also have the opportunity to contribute to national consultations and policy development.

You are accountable to the CPRE London Operations Director.

Hybrid working with occasional attendance at meetings. Our team will provide you with training and support to develop in your role.

This role would suit anyone with an interest in and knowledge of the planning system and environmental issues. CPRE London is dedicated to greening the city, sharing countryside's beauty, tranquillity, and accessibility. Volunteer with us to aid London in becoming carbon-neutral by 2030, boosting biodiversity, and enhancing life for wildlife and residents.

What will you be doing: 

• Investigating planning applications with an impact on London’s green spaces
• Preparing and submitting responses to influence the outcome of planning applications and appeals
• Visiting the local planning offices and proposed development sites to look at plans and record details
• Liaising with parish and district councils and other conservation bodies
• Seeking to influence local and neighbourhood plans
• Building relationships with local organisations to influence their management plans
• Liaising with the planning team and policy committee at National CPRE to contribute to consultations and policy development
• Proactively investigating the planning designation of green spaces in your local area to find out whether there is scope to strengthen these in order to better protect these sites for future generations.

What are we looking for: Skills / Experience

• An eye for detail and an interest in investigative work
• Knowledge of planning and environmental issues is essential 
• Some previous experience in the planning sector would be beneficial in this role
• Good local knowledge of one of these London boroughs would be useful: Barking & Dagenham, Redbridge, Newham, Haringey, Enfield, Harrow, Hillingdon, Westminster, Kensington & Chelsea, Hammersmith & Fulham, Wandsworth, Lambeth, Hackney, Camden, Brent, Ealing, Hounslow, Merton, Sutton, Croydon, City of London, Lewisham, Greenwich, Bexley, Havering,
• A willingness to visit the local planning office and proposed development sites
• Able to carry out tasks independently and as part of a team
• Good written and verbal communication skills
• Access to a computer and the internet at home and be comfortable using them

Benefits of the role:

• Use your skills and experience to contribute to the success of our charity and make a positive impact on London’s environment 
• Meet like-minded people and enjoy being part of a team
• Enhance your CV by developing new skills and gaining valuable experience
• We’ll support you to develop in your volunteering role and provide you with relevant training
• We’ll give you a reference for your future work or volunteering
• Get involved with social events and workshops on a local and national level, including the annual CPRE conference
• The opportunity to attend a volunteer induction day at CPRE’s national office in London or a regional centre
• We are happy to provide out-of-pocket travel expenses

Join the RCGP Scottish Patient Forum

The Royal College of General Practitioners Scotland is recruiting new members to the RCGP Scottish Patient Forum.

From feeding into policy consultations, to assisting with the development of College communications and campaigns, members of the RCGP Scottish Patient Forum play a key role in helping to shape the work of the College in Scotland.

This is a voluntary role for a term of up to three years. 

You do not need experience of being on a committee or advisory group.

What You’ll Do

· Take part in up to three online Forum meetings per year, offering your insights and lived experience.

· Provide feedback on RCGP Scotland policy papers, consultation responses and strategic documents.

· Act as a sounding board for press and communications activity to help ensure the patient perspective is reflected.

· Represent the Forum at relevant conferences, workshops, seminars or clinical groups (subject to your availability).

· Contribute to wider College activities where capacity and interest allow.

What We’re Looking For

We welcome applications from individuals who:

· Understand or are interested in current health and social care issues in Scotland.

· Have an interest in the work and aims of RCGP Scotland.

· Can work collaboratively, respect diverse perspectives and contribute constructively to group discussions.

Interested?

If you want to help shape the future of general practice in Scotland and ensure the patient voice is heard at national level, we would love to hear from you.

RCGP Scotland

The Royal College of General Practitioners Scotland (RCGP Scotland) is the professional membership organisation for general practitioners in Scotland. We represent approximately 5,000 members in Scotland and our purpose is to encourage, foster and maintain the highest possible standards in general medical practice.

We’re REMIX, a Shoreditch‑based social mobility charity built on one belief: young people deserve the power, tools, and confidence to remix their lives and create futures that feel like theirs. We’re gearing up for our official launch this September — and we’re looking for a visionary volunteer CEO to take the lead.

This is not a symbolic role. This is hands‑on, high‑energy, entrepreneurial leadership at the heart of a new youth‑driven movement.

This VOLUNTEER Role

As our volunteer CEO, you’ll be the driving force behind Remix’s setup, launch, and early growth. You’ll shape our strategy, build our team, and create the momentum that carries us into — and beyond — September. If you thrive on purpose, pace, and possibility, this is your stage.

What You’ll Lead At REMIX

You’ll take ownership of the big picture and the practical steps that get us there, including:

• Steering the setup and launch of Remix.

• Building and motivating a passionate volunteer team.

• Developing partnerships across Shoreditch and beyond.

• Leading on fundraising, visibility, and community engagement.

• Setting the tone for a bold, youth‑centred culture.

• Guiding our long‑term strategy and organisational growth.

This is a role for someone who sees opportunity everywhere and isn’t afraid to make things happen.

What You'll Bring To REMIX

• A driven, entrepreneurial mindset.

• Natural leadership and the ability to inspire others.

• Experience building or leading teams, projects, or organisations.

• A passion for youth empowerment and social mobility.

• Confidence navigating fast‑moving, creative environments.

• The ability to turn ideas into action and action into impact.

What You'll Get From Your Time At REMIX

• The chance to build a charity from the ground up.

• A leadership role with real purpose and real influence.

• A platform to shape opportunities for young people across London.

• A creative, committed team who believe in the mission.

• The satisfaction of knowing your leadership will change lives.

Ready to Lead the Remix

If you’re excited by challenge, motivated by impact, and ready to help young people rewrite their futures, we’d love to hear from you.

Share a bit about your experience and what drives you — let’s build something powerful together.

We’re looking for an exceptional leader to become our next Chair of Trustees — and help shape the future of Little Village. 
 
What began as a grassroots response has grown into a London‑wide baby bank network, supporting thousands of families every year. But with more than one in three children in London living in poverty, our work — and our ambition — has never mattered more. 
 
Over the next chapter, we plan to expand our reach across London and scale our advocacy, including our national leadership as a co-founder of the Baby Bank Alliance, to drive lasting systems change for families experiencing poverty. 
 
As our current Chair’s term comes to an end in early 2027, we’re seeking someone with strong governance experience, strategic vision, and a deep commitment to social impact — someone ready to help lead an organisation with growing influence, reach and responsibility. 

We’d love to hear from you if you:  

• Have experience chairing boards, committees or senior leadership meetings.  

• Have strong understanding of governance (best practice)  

• Have experience of charity fundraising and income generation  

• Can commit the time and expertise to play a key role on our Board.  

• Share our passion for tackling child poverty and supporting families.  

This is an opportunity to play a defining role in a movement for change. 

We are especially keen to diversify our Board and particularly welcome applications from men and people under-represented in charity governance, including those from Black, Asian and Minority Ethnic backgrounds, LGBTQ+ people, people with disabilities, and people with lived experience of poverty.  

Next steps  

If joining the Little Village family sounds appealing, we’d love to hear from you. You can find more details in our recruitment pack, including how to arrange an informal chat before applying 

Find out more and apply here: Recruitment - Little Village 

Closing date: 12pm, Wednesday 3rd June 

The e-Assessment Association (eAA) is the leading professional membership body promoting better assessment through technology. We bring together awarding organisations, education providers, technology suppliers, researchers and policymakers to advance high-quality, innovative assessment practice in the UK and internationally.

We are now seeking a new Chair of the Board to lead the next phase of the Association’s development.

This is a high-impact governance role for an experienced senior leader who is passionate about assessment, education and technology, and who enjoys working collaboratively to make a difference across a complex and evolving sector.

Why this role matters

The Chair plays a pivotal role in shaping the direction, influence and effectiveness of the eAA.

Working with a committed Board of Directors and a small, professional operational team, the Chair provides strategic leadership, ensures strong governance, and acts as an ambassador for the Association and its members.

The Chair of the eAA Limited also serves as Chair of the Board of e-Assessment Services Limited, the Association’s trading subsidiary, supporting the sustainability and growth of the organisation.

This is an opportunity to:

• lead a respected, member-led organisation at the forefront of digital assessment;
• influence policy, practice and debate across assessment and education technology;
• support the continued professionalisation and growth of the Association; and
• work with a knowledgeable, engaged Board and an experienced executive team.

The role is supported by an annual honorarium of £6,000 in recognition of the time commitment and responsibility involved.

What you’ll be doing

As Chair, you will:

Provide strategic leadership

• Lead the Board in setting the strategic direction of the Association and monitoring progress against agreed objectives.
• Support the long-term sustainability, relevance and impact of the eAA.

Ensure strong governance

Ensure the Association operates within its governance framework and complies with all statutory and fiduciary duties.
Foster a positive, inclusive and professional Board culture that encourages open discussion, diverse perspectives and collective decision-making.
Work closely with the Vice-Chair and other Directors to maintain continuity and effective governance processes.
Support and challenge the Executive

• Provide support, guidance and constructive challenge to the CEO and operations team.
• Oversee performance against strategic and operational goals.
• Review budgets, management accounts and strategic plans in collaboration with the Treasurer and executive team.

Represent and advocate

• Act as an ambassador for the Association with members, partners, sponsors and external stakeholders.
• Represent the eAA at key events, including the e-Assessment International Conference and Awards.
• Use your networks and credibility to enhance the Association’s profile and influence.

Essential experience and attributes

• Senior leadership experience within assessment, education or educational technology.
• A strong understanding of assessment principles and the role of technology in transforming assessment practice.
• Demonstrated Board-level governance experience, ideally within a company limited by guarantee, charity or membership organisation.
• Excellent chairing and facilitation skills, with the ability to lead a diverse Board effectively.
• Strategic thinking, integrity and the confidence to provide constructive challenge.
• Strong communication and ambassadorial skills.

Desirable

• Experience of working in or alongside professional associations or member-led organisations.
• Established networks across education, assessment and technology sectors.
• Experience representing an organisation publicly at conferences or sector events.

Inclusive Boards is pleased to be supporting Together Active in their search for two new Trustees.

About Together Active

We’re Together Active, a charity working across Staffordshire and Stoke-on-Trent to make it easier for people to be active in ways that fit their lives. 

We focus on the systems that shape who gets included, and who doesn’t. That means looking beyond individual behaviours to understand how policy, funding, culture, and place shape people’s choices, freedoms, and access to movement. We support local organisations, influencing decision-makers, and helping the system work better for the people it serves.

We focus on the people most likely to be excluded: those living on low or no income, with poor health, discrimination, or long-term structural disadvantage. Our strategy for 2024-2030 centres on Stoke-on-Trent and the parts of Staffordshire where inequality is most entrenched. 

About the Trustee roles

The role of trustee at Together Active is an integral position that ensures the charity operates on the foundation of effective governance. That means providing oversight at strategic level and supporting a robust, informed decision-making process.

Together Active is seeking to appoint two trustees that have specialist knowledge across two key areas:

• Governance expertise

OR

• Strategic safeguarding expertise

​​​​​​Essential criteria

Knowledge and Skills:

• Experience of either charity sector leadership and governance; strategic communications or community development
• Ability to actively monitor the performance of the organisation
• IT literate
• Understanding of and commitment to Charity Commission’s Code of Governance
• Able to understand financial information

Leadership:

• Inspires confidence and creates stability

Communication:

• Exceptional communication skills particularly when speaking to others
• Active listener
• Confident networker
• Evidence of being able to persuade and influence in a range of settings
• Strong commitment to partnership working

Desirable criteria

Knowledge and Skills:

• Lived or professional experience of the challenges facing communities in Stoke on Trent
• Previous experience of trusteeship
• Understanding of risk and its effective management
• Knowledge and understanding of the sport and physical activity landscape

Communication:

• Understanding of principles of non-violent communication

This Role Is Not Symbolic. It Is Structural.

Safeguarding is not a policy document. 

It is not a checkbox.

It is not a compliance exercise.

In this CIC, safeguarding is the infrastructure that allows the work to exist at all.

We work with:

• Survivors of childhood sexual abuse (CSA)
• Vulnerable adults
• Young people
• Ex-offenders
• Volunteers with lived trauma
• Communities historically failed by institutions

If safeguarding fails, everything fails.

This role exists to make sure that never happens.

Purpose of the Safeguarding Officer Role

The Safeguarding Officer is responsible for designing, implementing, and protecting the safeguarding framework that allows the CIC to operate safely, ethically, and lawfully at scale.

This role ensures:

• Survivors are protected, not re-exposed
• Volunteers are supported, not exploited
• Risks are identified early, not ignored
• Safeguarding is embedded into every system, not bolted on

About the role:

To design and uphold safeguarding systems that protect survivors, volunteers and the organisation, ensuring safety, ethics and legal compliance are built into every practice as the CIC grows. Safeguarding is the infrastructure that allows the work to "SAFELY" exist at all.

Experience Qualification and Requirements

• Experience in safeguarding within:

 Charity

 Statutory services  

 Education

 Health

 Grassroots or community settings

• Experience working with vulnerable adults and/or children.
• Strong understanding of trauma-informed practice.
• Ability to respond to disclosures calmly and appropriately.
• Experience writing and implementing safeguarding policies.
• Risk assessment and incident management experience.
• Understanding of UK safeguarding legislation and guidance.
• Confidence challenging unsafe practice at any level.
• Ability to balance care with boundaries.
• Strong judgement under pressure.
• Clear written documentation skills.
• Capacity to work unpaid and full-time during build phase.
• Emotional regulation and professional restraint.
• Integrity, steadiness and clarity.

Main Responsibilities/ Key Duties

• Design, implement, and maintain a safeguarding framework that protects survivors, volunteers, members and the organisation.
• Develop and own safeguarding policies, procedures and reporting pathways covering:

 Adults and children at risk

 Volunteers and peer supporters

 Digital spaces, storytelling, and online engagement

• Ensure safeguarding is embedded into:

 Recruitment and onboarding

 Training and supervision

 Programme design and delivery

 Digital systems and data handling

• Establish clear risk assessment processes for activities, campaigns, and content.
• Act as the safeguarding lead for concerns, disclosures, and incidents, ensuring:

 Timely, appropriate responses

 Accurate recording

 Correct escalation to statutory agencies where required

• Build systems that prevent re-exposure, re-traumatisation, or exploitation of survivors.
• Ensure volunteers are supported, supervised and not placed in unsafe or inappropriate roles.
• Advise leadership on safeguarding risks, capacity limits and ethical boundaries.
• Deliver safeguarding guidance and training proportionate to role and risk.
• Monitor safeguarding practice across teams and intervene early where drift appears.
• Work closely with Digital, Membership, Fundraising, and Social teams to manage risk in:

 Storytelling

 Online engagement

 Data use

• Maintain professional distance and emotional steadiness when handling complex situations.
• Review and update safeguarding systems as the CIC scales.
• Contribute to external accountability and transparency where appropriate.

You must:

• Be able to commit 80% dedication during the build phase
• Be comfortable working unpaid while the CIC is being built
• Be emotionally grounded and professionally boundaries
• Understand trauma without centring yourself
• Be able to hold complexity without collapsing into control or avoidance

You should have experience in some of the following:

• Safeguarding (statutory, charity, education, health, or grassroots)
• Working with vulnerable adults and/or children
• Trauma-informed practice
• Policy development and implementation
• Risk assessment and incident management

Formal qualifications are welcome but not essential.
Integrity, clarity and steadiness are.

This role is not for you if:

• You want safeguarding to be “light touch”
• You avoid difficult conversations
• You seek authority without responsibility
• You are uncomfortable challenging leadership when needed
• You are looking for a title rather than accountability

What You Gain:

• A founding leadership role in a CIC tackling real harm
• The chance to build safeguarding the right way
• Influence over how protection, care, and accountability coexist
• The opportunity to shape a future paid safeguarding role
• Deep purpose-driven work that actually protects people

As the CIC scales, this role is expected to evolve into a paid senior safeguarding position, shaped by the person who built it.

Formal qualifications are not required, but desirable.
Essential equivalent experience mandatory.

Next Steps:

Shortlisted applicants will be invited to:

• A values-led conversation
• A practical discussion about event planning, coordination, and execution

If you believe that well-organised, purposeful events can change communities, and that experiences inspire action, this role is for you.

A Final Word

Safeguarding is an act of love.
It is also an act of discipline.

If you know that:

• Survivors deserve better systems
• Vulnerable people deserve real protection
• Community work must be safe to be sustainable

We’re looking for a new Brand, Communications and Creative Trustee who can use their skills to support our growing charity. In early 2026, CLAPA relaunched with a new brand identity. This role will ensure that our team are supported in brand and content strategy and making the most of the new brand for growth and engagement.

The Brand, Communications and Creative Trustee will participate in all areas of the charity’s governance with a special interest in brand strategy, content, communications and creative to support with the Board’s understanding and interpretation.

The Board of Trustees is responsible for the overall governance and strategic direction of the charity, developing CLAPA’s aims, objectives and goals in accordance with the governing document, legal and regulatory guidelines. You would be joining our board at an exciting time, as we continue to implement our 5-year strategy for 2025-2030.

About CLAPA

The Cleft Lip and Palate Action (CLAPA) is the national charity for people affected by cleft lip and palate in the United Kingdom.

CLAPA supports people affected by cleft to take control of their journey, connect with others, and use their voices to impact the future of care. Our vision is that no one affected by cleft lip and palate in the United Kingdom will go through their journey alone.

College of Sexual and Reproductive Healthcare (CoSRH)
Voluntary role | Travel expenses reimbursed | Hybrid (London and/or virtual)

CoSRH is seeking an experienced Digital, Technology and Cyber Security Trustee to join its Board and provide strategic leadership on technology, digital innovation, data governance, and cyber security.

As a Trustee, you will share collective responsibility for the governance, sustainability, and strategic direction of CoSRH. In this specialist role, you will act as the Board’s lead on digital and technology matters, offering insight and constructive challenge to ensure CoSRH’s technology strategy is forward‑looking, secure, ethical, and aligned with the organisation’s mission and member needs.

Key responsibilities include overseeing digital transformation and technology investment, advising on cyber security risk and incident preparedness, supporting data protection and GDPR compliance, and contributing to decisions on technology procurement and supplier management. You will also help the Board understand the implications of emerging technologies, such as AI and automation, and support the development of digital capability and awareness across the organisation.

We are looking for someone with significant senior‑level experience in IT, digital technology, or cyber security, ideally with board or executive‑level exposure. You will be able to communicate complex technical issues clearly to non‑technical audiences and have a strong understanding of governance, risk, and compliance. Experience in the charity, healthcare, or membership sectors is desirable but not essential.

Time commitment: Approximately 12 days per year
Term: Three years, with the possibility of renewal

This is an excellent opportunity to use your expertise to make a meaningful impact in a respected healthcare charity.

Epilepsy Action is a national charity with a bold vision: to create a world without limits for people with epilepsy. In 2024 we launched an ambitious new strategy to grow our income and extend the support we offer. After a successful start, we are ready for the next stage in the strategy, and we are looking for new trustees to join our Board and help turn our ambition into lasting impact.

You will bring the skills, values and perspective to help our charity thrive, whether that’s a track record of leading growth and transformation, the ability to open doors through your networks, experience in health or the medical sector, or expertise in law, digital technology or fundraising.

We are committed to building a diverse, inclusive and effective Board that reflects the communities we serve, and people affected by epilepsy. We welcome applications from everyone and are particularly keen to hear from people who are underrepresented on charity boards, including people from ethnically diverse backgrounds, disabled people, LGBTQ+ people, and people of different ages and socio-economic backgrounds. We believe greater diversity makes for better decisions.

If you want to help shape a world without limits for people affected by epilepsy, and use your voice and influence to raise understanding of the condition, then we would love to hear from you.

Purpose of the Role 

The role of a trustee is to share the Board’s collective responsibility for the effective governance and leadership of the charity, setting our strategic direction and major policies in accordance with our objectives, vision, mission and values.

Epilepsy Action (registered as the British Epilepsy Association) is both a registered charity and a company limited by guarantee. As such, trustees are both charity trustees and company directors and have the statutory and legal duties which these roles impose.

This is a voluntary (unpaid) role with a three-year term of office, renewable for up to two consecutive terms.

You need to be able to commit approximately 6–12 days per year, including: 

• Four Board meetings per annum, plus meeting preparation 

• Subcommittee meetings (if applicable) 

• Strategy days, training, and occasional events 

Meetings are a combination of hybrid and fully remote, with an annual in-person meeting in September in Leeds. Overnight accommodation will be booked for trustees and travelling expenses reimbursed for in–person meetings. 

To Apply 

For any questions in advance of your application please contact us via our recruitment email.

To make an application please send your CV and a supporting statement to our recruitment email.

Your supporting statement should answer the following questions:

· What has drawn you to apply to be a trustee for Epilepsy Action?

· What are the main skills and experience that you bring that could benefit the charity?

· How do you think your values align with Epilepsy Action’s values of being supportive, empowering, inclusive and ambitious?

We also ask candidates to fill in the Trustee Application Questionnaire as part of the recruitment process.  This form includes sections for diversity monitoring, as well as skills and experience.

If you need any adjustments to support you to apply or take part in the recruitment process, please let us know.

Shortlisted candidates will be invited for an informal meeting where they will have a chance to find out more about our work.

Formal interviews will be with the Chair, the CEO and relevant members of the Board and / or Advisory Panels will take place at the end of May and beginning of June.