Carers hub manager jobs in Islington, greater london
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About us
The UCL Dementia Research Centre (DRC), based in the Department of Neurodegenerative Disease and led by Professor Nick Fox, is a hub for clinical research into various forms of dementia. Our work focuses on identifying and understanding the disease processes that cause dementia, the factors that influence these disease processes, and how best to support people with dementia and their families. In addition to our research, we also provide a cognitive disorders clinic within the National Hospital for Neurology and Neurosurgery.
Rare Dementia Support (RDS) is a UCL-led collaborative service offering specialist social, emotional and practical support services for individuals living with, or affected by, a rare dementia diagnosis. Our vision is for all individuals with, at risk of, or supporting someone with one of these forms of dementia to have access to information, tailored support and guidance, and contact with others affected by similar conditions. RDS is provided by the UCL Dementia Research Centre (DRC) at the Queen Square Institute of Neurology and the National Hospital for Neurology and Neurosurgery - where the post is based - and partners, and funded by The National Brain Appeal.
About the role
You will contribute to the work of the Rare Dementia Support (RDS) direct support team providing advice via support calls and in-person at the new Rare Dementia Support Centre (RDSC) by supporting people living with atypical, inherited, and young onset dementias, their carers, their families, and their friends, and professionals and practitioners working to support them. This role includes the opportunity to shape and direct special projects related to the development of new support groups, professional training, or patient and public involvement/engagement (PPI/E), in line with the activities of RDS and the wider Dementia Research Centre.
The post is available immediately and funded by a donation from The National Brain Appeal until 31 March 2028 in the first instance.
The post is offered part-time at 21.9 hours per week (0.6 Full Time Equivalent). This role is eligible for hybrid working with a minimum of 67% of time on site.
If you need reasonable adjustments or a more accessible format to apply for this job online, or have any queries regarding the application process, please contact the Institute of Neurology HR Team (ion.hradmin at ucl.ac.uk).
Informal enquiries regarding the role can be addressed to Nikki Zimmermann (nikki.zimmermann at ucl.ac.uk).
Application deadline: 23:59, 29 June 2026.
We expect to hold interviews on 20 July 2026.
For a full job description please visit UCL's online recruitment portal (https://www.ucl.ac.uk/work-at-ucl/search-ucl-jobs) and search using vacancy reference B02-10620. To apply, please upload a current CV, complete the online application form, and use the supporting statement section or upload a cover letter to outline how you meet the essential and desirable criteria for the role. Please do not upload any additional attachments as these will not be considered by the selection panel.
About you
You will have an Honours degree (or equivalent) in a relevant health-related discipline and experience delivering pre-, peri-, and post-diagnostic rare dementia support. Extensive and expert knowledge of atypical, inherited, and young onset dementias, and up to date knowledge of the range of support available to people living with rare dementia and their families, and relevant aspects of the health and social care systems in the UK is essential.
A demonstratable understanding of, and ability to, manage the needs of patients with degenerative conditions, including the use of specific support skills and strategies as appropriate is also a requirement. You will also have excellent interpersonal, organisational, and communication skills, with the ability to communicate highly sensitive information to cognitively impaired and/or psychologically vulnerable people and their carers, who may have significant barriers to understanding or acceptance.
This role does not meet the eligibility requirements for a Skilled Worker Visa certificate of sponsorship under UK Visas and Immigration legislation. Therefore UCL will not be able to sponsor individuals who require right to work in the UK to carry out this role.
What we offer
Starting salary offered at UCL Grade 7 in the range £26,388.60 - £31,551.60 (i.e., 60% of £43,981 - £52,586) per annum, inclusive of London Allowance.
As well as the exciting opportunities this role presents, we also offer some great benefits; visit https://www.ucl.ac.uk/work-at-ucl/reward-and-benefits to find out more.
This appointment is subject to UCL Terms and Conditions of Service for Research and Professional Services Staff. Please visit https://www.ucl.ac.uk/human-resources/conditions-service-research-teaching-and-professional-services-staff for more information.
Our commitment to Equality, Diversity and Inclusion
As London's Global University, we know diversity fosters creativity and innovation, and we want our community to represent the diversity of the world's talent. 12% of Institute staff are actively working on EDI initiatives; visit https://www.ucl.ac.uk/ion/equality-diversity-inclusion for more information about what we're doing. We therefore particularly encourage applications from candidates who are likely to be underrepresented in UCL's workforce; these include people from Black, Asian and ethnic minority backgrounds, disabled people, LGBTQI+ and gender diverse people in all roles, and women in Grade 9 and 10 roles.
To support the development and delivery of inclusive programmes and supported employment opportunities for learning disabled people, ensuring participants receive appropriate supportwhile helping to build sustainable opportunities through partnerships and funding.
Main duties and responsibilities
Programme and participant support
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Act as a key contact for learning disabled employees, volunteers and programme participants.
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Support individuals to engage confidently in activities, work placements and employment opportunities and seek progression routes for all learning-disabled employees.
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Help identify support needs and practical adjustments to enable participation in clubs and employment programmes.
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Liaise with staff, families, carers and external support organisations where appropriate.
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Ensure programmes remain accessible and inclusive.
Programme coordination
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Coordinate and oversee learning disability-focused activities: Tuesday evening adult social club; Friday evening youth sport club; hospitality and front of house employment programme.
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Support scheduling, attendance monitoring and participant communication.
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Gather feedback, outcomes and participant stories.
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Help develop new opportunities and pathways for participation, skills and employment.
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Work with staff across the organisation to embed inclusive practice.
Funding and development
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Research grants, trusts and funding opportunities related to disability inclusion, supported employment and community programmes.
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Support preparation of funding applications and contribute information, participant case studies and impact evidence.
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Build relationships with local organisations, partners and funders.
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Help identify opportunities to grow and sustain the role and associated programmes.
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Maintain records of participation and outcomes.
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Collect evidence demonstrating impact and learning.
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Contribute to reports for funders and stakeholders.
Person specification
Essential
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Experience working alongside learning disabled people in community, arts, employment or education settings.
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Strong relationship-building and communication skills.
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Understanding of inclusive practice and reasonable adjustments.
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Ability to work independently and identify opportunities.
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Good organisational skills with an ability to keep accurate records
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Good IT skills, including Microsoft Word, Excel, Outlook, Powerpoint and the internet
Desirable
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Support Work qualification or equivalent is preferred but not mandatory
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Experience with fundraising, partnerships or bid writing desirable
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An understanding of pan disability and employment
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Local to SEACC
Please submit a short cover letter detailing how your experience meets the person specification.
Please give specific examples from your own experience and avoid generic statements.
The client requests no contact from agencies or media sales.