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Help Change the Future of Polycystic Kidney Disease Research
Patient & Public Involvement and Engagement (PPIE) Manager
PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)
The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.
This is not a standard engagement role.
You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.
PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.
We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.
That’s where you come in.
The Opportunity
As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.
You’ll:
We’re Looking For Someone Who:
Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.
Why Join Us?
At the PKD Charity, you’ll join a passionate national charity working to improve lives through:
This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.
What We Offer
✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity
Apply Now
For details on how to apply, please see the application pack.
Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.
The client requests no contact from agencies or media sales.
To support the development and delivery of inclusive programmes and supported employment opportunities for learning disabled people, ensuring participants receive appropriate supportwhile helping to build sustainable opportunities through partnerships and funding.
Main duties and responsibilities
Programme and participant support
Act as a key contact for learning disabled employees, volunteers and programme participants.
Support individuals to engage confidently in activities, work placements and employment opportunities and seek progression routes for all learning-disabled employees.
Help identify support needs and practical adjustments to enable participation in clubs and employment programmes.
Liaise with staff, families, carers and external support organisations where appropriate.
Ensure programmes remain accessible and inclusive.
Programme coordination
Coordinate and oversee learning disability-focused activities: Tuesday evening adult social club; Friday evening youth sport club; hospitality and front of house employment programme.
Support scheduling, attendance monitoring and participant communication.
Gather feedback, outcomes and participant stories.
Help develop new opportunities and pathways for participation, skills and employment.
Work with staff across the organisation to embed inclusive practice.
Funding and development
Research grants, trusts and funding opportunities related to disability inclusion, supported employment and community programmes.
Support preparation of funding applications and contribute information, participant case studies and impact evidence.
Build relationships with local organisations, partners and funders.
Help identify opportunities to grow and sustain the role and associated programmes.
Maintain records of participation and outcomes.
Collect evidence demonstrating impact and learning.
Contribute to reports for funders and stakeholders.
Person specification
Essential
Experience working alongside learning disabled people in community, arts, employment or education settings.
Strong relationship-building and communication skills.
Understanding of inclusive practice and reasonable adjustments.
Ability to work independently and identify opportunities.
Good organisational skills with an ability to keep accurate records
Good IT skills, including Microsoft Word, Excel, Outlook, Powerpoint and the internet
Desirable
Support Work qualification or equivalent is preferred but not mandatory
Experience with fundraising, partnerships or bid writing desirable
An understanding of pan disability and employment
Local to SEACC
Please submit a short cover letter detailing how your experience meets the person specification.
Please give specific examples from your own experience and avoid generic statements.
The client requests no contact from agencies or media sales.
Company Description
Catch22 exists to help build a society where everyone has a good place to live, good people around them, and a fulfilling purpose. We call these our '3Ps'.
We achieve this in two ways. First, we improve lives on the frontline through delivery of public services. Secondly, we use our knowledge to change 'the system', to fix the complex web that can trap and disempower those it was set up to help. With the heart of a charity and the mindset of a business, we are uniquely placed to deliver on this challenging agenda.
Our Young People & Families (YP&F) Operational Hub delivers a wide range of integrated support services designed to help resolve complex difficulties experienced by young people and their families/carers.
Support is provided to people who find themselves in a range of circumstances; they may be missing from home or have emotional, housing or substance misuse issues. We also support families where parents/carers are experiencing domestic abuse, substance misuse, emotional issues, homelessness or unemployment. Whatever the situation, we work alongside young people and their carers to find a way of stabilising their lives.
Redthread is a hospital based youth work service, working alongside NHS staff and other professionals in emergency departments.
Our experienced, specialist youth workers engage with and support young people, aiming to support them with their needs in hospital and post-discharge. We often meet young people at a moment of change and work with them to find a positive way forward.
We provide long-term, holistic support. We consider every aspect of a young person’s life and build support around them.
About the Mental Health Youth Work Service Pilot
The prevalence of reported mental health challenges in children and young people living in England have been increasing. In addition, research tells us that children and young people facing such challenges with their mental health are more likely to self-harm. For some children and young people, A&E Departments may be a first point of contact with healthcare services following self-harm. While in recent years the number of attendances by children and young people for mental health needs and/or self-harm have stabilised, there was a sharp increase in attendances following the pandemic. For children and young people who have gone to A&E for support with their mental health, such as following self-harm, waiting a long time in A&E can be hard. A&E Departments are often very busy and loud places and there is not always access to secluded space for those who have gone to A&E when experiencing difficulties with their mental health.
Children and young people who are also neurodiverse may find the environment particularly challenging and overstimulating while they are waiting to access care and support. This pilot aims to strengthen the offer of support to young people aged 11-18 in A&E, and also consider the wider social and emotional wellbeing needs of those individuals whilst in that environment and following discharge by ensuring there is follow up support for a variety of services.
The Mental Health Youth Work Service model has been informed by young people with experience of hospital attendances after self-harming, and their feedback has been used to shape the care we aim to deliver.
The service runs across two hospital sites in London: King’s College Hospital and Queen Elizabeth Hospital. There will be a team consisting of one Senior Youth Worker and a Youth Worker embedded in each site.
Where you fit in
This is an exciting new service working in partnership with Queen Elizabeth Hospital Accident and Emergency Department. The project is a pilot that aims to provide specialist Youth Work support for young people presenting to a hospital because of their mental health, and specifically where they attend because of self-harm.
The Senior Youth Worker will lead on the Mental Health Youth Work service embedded within the A&E department. This will involve line management responsibilities for the Mental Health Youth Worker, partnership working to build relationships both internally within the hospital and externally in the local community, and with both statutory and non-statutory partners.
The Senior Youth worker will be expected to support and build trusting relationships with young people who present with acute needs and are often in a crisis. They will manage a caseload of their own, with contact taking place both in the hospital and post-discharge in the community.
The Senior Youth Worker will ensure the integration of the service at their respective hospital A&E department, and work alongside the Team Leader in reporting, monitoring and evaluation requirements
Main Duties & Accountabilities
QUALIFICATIONS
Essential:
Desirable:
KNOWLEDGE
Essential
Desirable
EXPERIENCE
Essential
Desirable
SKILLS & ABILITIES
Essential
Desirable
OTHER
Additional Information
When applying please be cautious over the answers you provide. If you select “NO” to the screening question regarding Right to Work in the UK, your application will automatically be closed.
Contract: Permanent
Hours & work pattern: 37 hours per week, with regular evening and weekend shifts required. Evening shifts cover the hours of 1pm to 9:00 pm
Salary: £32,917.50 per annum
Location: Queen Elizabeth Hospital, Woolwich, London. With regular travel to other Redthread sites and Catch 22 offices when required.
Screening: Successful admission to post subject to enhanced DBS check, police vetting check, and employer Right To Work in the UK check. The post-holder must have right to work in the UK. Catch22 does not currently provide a licence to sponsor visas but please see this register to see those that do.
To Apply: Please provide your CV and cover letter, along with the completion of the screening questions to express your interest in this opportunity. Please note, in the interest of safer recruitment and ensuring that applicants are a right fit for the role, submitted applications must contain a CV, satisfactory responses to the screening questions, and information detailing interest in the role, to be considered for this position.
Closing date: Midday on Friday 5th June 2026
Interviews will be held in week commencing 15th June 2026
AI generated applications are not acceptable and could lead to a disqualification of your current and future applications across Catch22 jobs. In order to ensure that applications are fair, genuine, and representative of the candidate applying, our teams may use a number of tools to identify occurrences where candidates have not given an honest response during the application process.
Catch22’s Commitment to Ban the Box
Catch22 is proud to have “Banned the Box”. This means that we do not ask for candidates to disclose criminal convictions at the application stage. Instead, we invite disclosures at interview stage, and encourage them at the offer stage.
Unless otherwise stated, interviews will be arranged as suitable candidates are identified, so early application is strongly advised.
We aim to review applications as quickly as possible. However, due to the volume of interest we receive, we may not be able to contact all applicants individually. If you have not heard from us within two weeks of the closing date, please assume that your application has not been successful this time.
At Catch22 we value equality, diversity and inclusion. We are wholeheartedly committed to the principle of equality of opportunity, both as an employer and as a provider of services. Diversity and Inclusion is part of what we do every day, working to deliver our vision to build a strong society where everyone has good people around them, a purpose, and a good place to live.
Catch22 is committed to rigorous safeguarding and safer recruitment practices; ensuring that every individual within the organisation has been safely and appropriately checked.
The client requests no contact from agencies or media sales.
Overview
Change Grow Live are a charity dedicated to the belief that we can make a difference to our Service Users lives, offering support and respect in a safe environment, treating each user as an individual and working with them to find the right treatment and care options.
Our core values are ‘Be open, be compassionate and be bold’ and our team members apply these daily to achieve our mission of helping people change the direction of their lives, grow as individuals, and live life to its full potential.
We have an exciting opportunity for a Non-Medical Prescriber (NMP) to join our service to lead on delivery of Hostel In Reach clinics.
Our NMP’s are integral members of our multi-disciplinary and multi-agency teams, delivering recovery orientated alcohol and drug intervention services. Offering care for presenting clients, prescribing and/or making amendments to prescriptions of opiate and/or alcohol substitute treatments and other related medications, they take a lead role in developing the prescribing clinic, acting as a point of contact for other workers and partner agencies around prescribing issues.
No two days are the same and we treat every person who comes into our service as an individual, so being flexible, curious and a good listener are key.
Where: Camden
Hours: 37.5 hours per week
Contract Type: Permanent
*Please note: Full-time hours at Change Grow Live are 37.5 hours per week. For part-time roles, the salary and payments will be pro rata based on contracted hours.
Responsibilities
About the role:
About you:
What we will give to you:
25 days of annual leave, plus bank holidays. Additionally, you'll receive one extra day of annual leave for each year of service during your first five years, therefore you will enjoy 30 days of leave after five years with us.
Please ensure that when completing your application form and supporting statement, you reflect on the details outlined in the job description. This will help us understand how your skills and experiences align with the requirements of the role.
Direct applications only we will not be engaging agencies for this vacancy.
We reserve the right to close the vacancy early if we receive a high number of applications, so we encourage you to apply as soon as possible.
Salary is subject to review in line with the 2025/26 pay award.
Salary Range (pro rata if part time)
CGL points 43 to 48 (£47,792.23 - £53,329.99)
ILW / OLW /Fringe
Inner London Weighting (£4,133.14)
Closing Date
2/6/2026
This post is subject to a Disclosure and Barring Service (DBS) check at an enhanced level.
We believe that having diverse people working as part of our team makes us the organisation that we are.
We actively encourage applications from people from all backgrounds to help us to provide the best possible experience for the people who use our services and to make Change Grow Live a great place to work. If you have any feedback on our recruitment processes (good or bad) we’d love to hear from you so that we can make sure they are fair and we attract and recruit the best, most diverse workforce possible.
The safety of vulnerable children, young people and adults is our absolute priority. We will support you in your role to make sure that you are equipped to support the safety of people who use our services and those around them, to the highest standard possible.
Our mission is to help people change the direction of their lives, grow as individuals, and live life to its full potential.