Communication officer jobs in Liverpool

Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

Release Counselling and Therapy for Women is entering an exciting new chapter. 

Founded in Brighton and Hove in 2013, Release has grown from a small local charity into a financially robust organisation with a growing national reach. Under the leadership of our outgoing CEO, the charity has been transformed—moving from a challenging financial position to one with strong reserves, clear sustainability, and ambitious plans for growth. 

We now provide affordable 1:1 online counselling to women across the UK, alongside specialist group programmes supporting maternal mental health and key life transitions. One-to-one counselling is a core offer and a vital income stream, enabling us to extend our reach while staying true to our values. 

This period has also seen Release grow to working with over 20 dedicated volunteer counsellors, strengthening our capacity and community impact. 

As our CEO steps down, Release is ready for its next phase—building on strong foundations, amplifying our national impact, and remaining firmly rooted in our purpose: being a charity that supports women’s mental health, run by women, for women.

Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast 

Salary: £32,750 per annum
Hours: 35 hours per week 

Closing date: Monday 19 May 2026 at midnight 

Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026 

This is a full time fixed-term position for one year (with possible extension subject to funding). 

Who we are looking for  

Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum. 

The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.  

You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.  

Experience required 

• Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse  

• Experience of leading public affairs delivery in one of more of the devolved nations  

• Experience in analysing Government policy in-depth and creating policy briefings   

• Experience of drafting briefings, reports and policy submissions   

• Experience of communicating across a range of parliamentary and professional stakeholders at all levels  

• Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment  

• Experience of organising stakeholder events  

About Breakthrough T1D 

Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia. 

You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1. 

Employee benefits 

As an employer we offer: 

• Hybrid working arrangements 

• Flexible working and will consider compressed hours 

• Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service 

• Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment 

• Season ticket and cycle loan 

• Pension scheme 

• Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates 

• Personalised training to suit your career aspirations and professional development 

Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age. 

This is a new role leading on engagement in the Transport for the South East area, playing a vital role in building and strengthening local networks, supporting grassroots campaigning, and ensuring that disabled people’s experiences inform both regional and national influencing work. You’ll organise campaigns and forums, represent Transport for All at events, and work with service providers and councils to make transport fairer and more equitable.

We are a small, committed and disabled-led team working to make sure that disabled people’s voices are heard in politics, the media and beyond. This role is central to ensuring lived experience drives systemic change in London’s transport system.

You must be disabled and live in the South East of England to apply for this role

This role has a genuine occupational requirement of lived experience of disability. This explicitly includes those of us who are Deaf, neurodivergent, chronically ill, have a mental health condition, have age-related impairments, and people with both visible and non-visible impairments. If you do not meet the genuine occupational requirement, your application will not be shortlisted for an interview.

Job Purpose

Reporting into the Chief Operating Officer, the post holder will be responsible for leading on quality assurance and compliance across the organisation, including managing and ensuring compliance with ISO 9001 standard and GDPR, allowing Ygam to achieve its strategic objectives effectively and efficiently. The role will also have responsibility for certification of programmes with CPD.

Key Tasks

• Lead and encourage a culture of continual improvement across the organisation.

• Plan, organise and complete internal audits to ensure compliance with ISO standard and identify business risks.

• Review and evaluate operational procedures to ensure continuous improvement and maintain ISO9001 certification.

• Manage the internal non-conformance process (DV8) identifying root cause, trends and corrective actions.

• Liaise with external auditors to facilitate the annual ISO audit.

• Take responsibility for Ygam’s GDPR compliance supported by the In-house Lawyer and Head of Information Systems.

• Manage policies, due diligence and consent processes, ensuring that these are adhered to across the organisation.

• Oversee Ygam’s Quality Management System (Help Hub) and ensure this is kept up to date across the organisation.

• Lead the submission for CPD certification of programmes as required.

• Prepare reports for the Senior Leadership Team and Finance, Audit and Risk Committee and attend meetings where required, including internal audit updates, results of quality audits, etc.

• Support the management of operational risk, including maintaining Ygam’s RAID Register and ensuring that this is kept up to date across the organisation.

• Line manage Ygam’s In-House Lawyer who works for the organisation 1 day per week, primarily on contracts and GDPR compliance.

· Any other ad-hoc tasks for QA and compliance, and back-office support as required

Person Specification

Essential criteria:

· Significant experience of quality management, compliance and process improvement, including ISO 9001 certification.

· Strong analytical and problem-solving skills to interpret and implement ISO standards.

· Experience of providing an internal audit service.

· Experience of producing reports suitable for SLT and board committee level consideration.

· Excellent knowledge of GDPR compliance, including consents processes.

· Excellent verbal and written communication skills, and the ability to work with and influence colleagues at all levels across the organisation.

· Strong IT skills (MS Word, Excel, PowerPoint).

· Experience of driving projects to achieve agreed outcomes.

· Strong administration, time management and prioritising skills.

· Attention to detail and high standards of accuracy.

· Demonstrable diplomacy and ability to work in confidence

· Self-starter with ability to work effectively both independently and as part of a team.

· Willingness to travel regionally and nationally occasionally as required.

· Right to live and work in the UK.

Desirable criteria:

· Experience of working in the not for profit/charitable sector.

· Experience of working in a remote or hybrid environment with a geographically dispersed workforce.

The role

 We are seeking an experienced Manager of Philanthropic Giving with a strong track record in securing major gifts. The ideal candidate will excel at building trusted, long-term relationships with donors and feel confident leading conversations that result in significant philanthropic support. This role will also contribute to the development and delivery of a trusts and foundations strategy, helping to grow and strengthen our portfolio.

Working closely with the CEO, senior leadership and trustees, you will develop compelling funding propositions, steward donors and funders through excellent reporting and engagement, and represent myaware at meetings, events and networking opportunities. You will also maintain accurate records through our CRM system, track performance against targets, and contribute to income planning and reporting. This is a strategic and hands-on role with real impact for people affected by myasthenia.

The Manager of Philanthropic Giving will be predominantly home based within the UK (with occasional working and meetings at Derby HQ) and will work in co-operation with the fundraising team and all myaware colleagues to deliver agreed fundraising targets and campaigns. Own transport is essential for this role as occasional travel throughout the UK will be required to attend donor meetings, events and networking opportunities, as well as the ability to travel to the Derby office. There may be the need to occasionally work during weekends and evenings and therefore there is a need to work flexibly when required.

Who We Are Looking For

We are looking for an experienced and motivated fundraising professional with a strong track record in major donor fundraising along with experience in Trusts and Foundations fundraising. You will have experience in personal communication in asking for high level funds, and experience of stewarding high net worth individuals to maintain high levels of engagement over a significant period. You will have experience of Trusts and Foundations fundraising including pipeline management and stewardship, writing compelling funding applications and impact reports.

You will be a strategic thinker with excellent interpersonal, research and organisational skills, confident managing a complex pipeline and working collaboratively across teams. You will be comfortable working independently, using CRM systems, and engaging senior stakeholders, including trustees and high-level donors. Most importantly, you will share myaware’s values, demonstrate empathy with our cause, and be committed to making a meaningful difference through philanthropy.

If this sounds like you, we would love to hear from you.

Who are we?

Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor. 

Myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Application instructions

Candidates should submit their CV and tailored covering letter by: 11:30pm on Monday 25th May 2026.

Provisional interview date will be week commencing: 01.06.2026

Interviews will be held over Microsoft Teams.

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

The client requests no contact from agencies or media sales.

Department: Communications & Public Affairs

Contract type: Permanent 

Hours: 37 hours per week

Salary: Circa £30,000 per annum

Location:  Home Based (UK wide travel as required) 

The Role:

The Digital Content Officer will support the implementation of digital communications plans that will help NFCC to deliver on its vision of being a digital first service to support fire and rescue services and the communities they serve. This will include developing and enhancing NFCC’s digital presence across the corporate website, online engagement platforms, and wider online and social media channels. The postholder will work to support the Digital Communications Manager and wider Communications team in the implementation of our Digital Communications Strategy which seeks to establish NFCC platforms as the go-to place on information about our work and resources. They will work closely with the Content and Guidance, IT and Digital Transformation teams, and other departments, to help establish and maintain a standard of excellence across website content, social media, and elements of digital design. 

What you will be doing:

Website content 

• Upload content across NFCC’s website and NFCC Connect, ensuring it is well-structured and aligned with NFCC’s style, accessibility and quality standards 

• Be involved in the development of web templates to support a variety of NFCC products

• Work within bespoke Wordpress modules to implement agreed edits and upload content 

• Work with content owners to make best use of existing branding guidelines and templates for NFCC products.

• Work with internal content owners to prepare and publish digital content, ensuring consistent style and adherence to NFCC brand guidelines. 

• Ensure all NFCC content adheres to WCAG2.2 AA standards 

 Social Media

• Schedule, publish and monitor social media content across NFCC’s channels (currently X, Facebook, LinkedIn and YouTube), ensuring posts are timely, engaging and consistent with agreed communication plans. 

• Identify opportunities for promotion of NFCC products and fire and rescue service activities in a coordinated way across digital platforms

• Working closely with the media team, identify engagement opportunities by monitoring news, sector developments and platform activity. 

• Track and flag emerging issues, misinformation risks or reputational concerns across social platforms.

Digital Design & Asset Production

• Produce and edit basic digital assets (e.g., social graphics, web banners, visuals for newsletters), following NFCC brand and design templates. 

• Collaborate with colleagues to prepare materials for campaigns, webinars, and NFCC events. 

Additional Duties

• Provide wider communications support when required, including drafting short articles, internal updates, and member communications. 

• Participate in NFCC events, conferences, team away days and in-person meetings as required (travel costs covered). 

• Undertake other duties consistent with the role’s purpose, supporting the overall aims of the Communications and Public Affairs team. 

Who we are looking for:

• Demonstrable experience of Wordpress or similar content management systems (CMS) 

• Understanding and proven ability to use HTML to adapt web content where needed

• Experience of delivering projects in a communications environment. 

• A working knowledge of digital concepts and best practice including digital design, accessibility, user experience (UX) design and user interface (UI) design. 

• Experience in designing and delivering graphics, editing images, and basic web design. 

• Experience using the Adobe suite, especially Illustrator, PremierPro, and InDesign or functionally similar software.

• An understanding of copywriting and editing suitable for a range of digital platforms. 

• Proven track record in successfully driving social media activity as part of an integrated digital communications plan. 

• Ability to work to tight deadlines and maintain focus on longer-term priorities. 

• Excellent wider digital skills including competent use of the entire M365 suite 

• Commitment to professional development and a ‘returning with learning’ programme to support the wider development of the Comms team. 

If you think this could be the role for you, please have a look at the Job Description and apply.

What you can expect: 

We are people centred and focus on creating a positive and engaging working environment. Wellbeing, reward, recognition, and personal development are not just words we talk about, we put them into action daily.

We offer an enhanced annual leave allowance of 26 days (pro-rata) plus bank holidays (increasing with length of service), healthcare cash plan, access to an Employee Assistance Programme and flexible working. 

How to apply:

If this sounds like the role for you, please complete our online application form linked on the ‘Apply Now’ button below. Please note, CV’s will not be accepted for this position.

Closing Date:  17th May 2026  

Interviews:Week commencing 1st June and week commencing 8th June 2026 (via Microsoft Teams) 

PLEASE NOTE – THIS VACANCY WILL CLOSE BEFORE THE CLOSING DATE IF WE RECEIVE A HIGH NUMBER OF APPLICATIONS. 

NFCC is committed to safeguarding and promoting the welfare of children, young people and adults and will require a DBS check to be completed prior to commencing in post. 

NFCC is committed to being an inclusive employer. We comply with the Equality Act 2010, and we believe that everyone deserves to work in safe environments that are free from bullying, harassment and discrimination, abuse, and harm, where they feel supported, welcome, and able to thrive. 

NFCC acknowledges the duty of care to safeguard, protect and promote the welfare of children and vulnerable adults and is committed to ensuring safeguarding practice reflects statutory responsibilities, government guidance and complies with best practice, all staff are expected to share this commitment.

Role Purpose

The Education Trainer supports the Education Manager in the design and delivery of specialist, evidence-informed trainings programmes for education professionals equipping them to support bereaved children, young people, adults and communities.

Using trauma-informed, evidence-based content delivered through both digital platforms and in-person, the role ensures schools and educational staff have practical tools to identify, respond to, support and/or refer bereaved children, young people and adults.

We are recruiting for two Education Trainers, both to work full-time hours (35 per week). One term-time only and the other to work year-round.

Main Responsibilities

• Working collaboratively with the Education Team and the team’s administrator to co-ordinate training requests responses.
• Working with the Education Manager and colleagues, support the design of training programmes tailored to the needs of the training delegates.
• Deliver the organisation’s education training packages online and/or face-to-face as required.
• Work with the team to ensure efficient flow of processes and procedures.
• To research key areas in need of bereavement training packages.
• To be an ambassador for the ASK Me Training and Manifesto to early years, primary, secondary and higher education institutions and professionals.
• To form key relationships with individuals and organisations to promote off-the-shelf training as well as rapid response, ASK Me and bespoke education training.
• To work with the team to develop new education training programmes and content.
• Work with the Marketing and Communications Team to promote education training programmes.
• Collaborate with the team to develop and review feedback framework to evaluate the training.
• Use feedback to improve the current training offer and identify gaps in education training offers.

 Communication and Relationships

• Build and maintain effective relationships with education professionals across early years, primary, secondary and higher education sector.
• Act as an ambassador for the organisation’s ASK Me Training and Manifesto and other key education programmes, promoting values of empathy, inclusion and best practice in bereavement support.
• Collaborate closely with the Education Manager, colleagues and the Education Administrator to co-ordinate training requests and ensure a seamless client experience.
• Engage with internal teams, including Marketing and Communications, to publicise training offers and strengthen audience reach.
• Work proactively to establish and nurture key relationships with external education networks, commissioners, and organisations to increase awareness and uptake of training programmes.
• Communicate sensitively and confidently when delivery content that may evoke emotional responses, ensuring a safe and supportive training environment.
• Demonstrate and promote the organisation’s values and culture through all forms of communication, behaviours and professional relationships.

Knowledge, Training and Experience

• Strong presentation, facilitation and communication skills, adaptable to a variety of audiences.
• Contribute to the creation of bespoke education programmes or training sessions as well as to the development of new education training packages.
• Develop and adapt training content for both in-person and digital delivery using a variety of digital platforms.
• Demonstrate a robust understanding of grief, loss, trauma, child development, and the psychological and social impact of bereavement on children, young people, and adults, including families.
• Demonstrate a high level of understanding of the organisation’s evidence-based tiered service model.
• Demonstrate strong knowledge of current education frameworks and the wellbeing priorities for schools and colleges.
• Participate, and where appropriate, lead on consultations with individual education settings to formulate an assessment of their individual training needs.
• Use outcome measures and/or feedback tools to monitor progress, evaluate the impact of delivery, and reflect on own practice.
• Adhere to legislation and statutory guidance related to Safeguarding Children and Young People and Safeguarding Adults at all times.
• Participate actively in clinical supervision and reflective practice to ensure safe, ethical, and effective delivery.
• Contribute to the development and sharing of knowledge within the team by supporting training, mentoring, and peer learning opportunities.

Analytical and Judgement Skills

• Assess training needs of education settings through consultation, feedback and sector research to inform targeted content development with the support of the Education Manager.
• Evaluate participants’ feedback systematically to review the quality, relevance and impact of training’ identify areas for improvement and gaps in provision.
• Exercise sound judgement when responding to sensitive disclosures or emotionally charged discussions during training, ensuring appropriate support and signposting.
• Apply analytical thinking to review emerging issues in bereavement education – such as curriculum integration – to guide future training design.
• Recognise and manage situations that involve ambiguity, uncertainty, or emotional intensity, drawing on supervision and established frameworks for professional support.
• Apply a trauma-informed and developmentally appropriate lens to training development and delivery, ensuring sensitivity to cultural, social, and contextual factors influencing grief.
• Ensure accurate, timely, and meaningful data recording and reporting to inform service evaluation, and organisational performance monitoring.

Planning and organisational skills

• Prepare thoroughly for assigned training sessions, ensuring all materials, technology and resources are ready in advance.
• Deliver training sessions to time and quality standards, managing transitions between content, activities and Q&A smoothly.
• Deliver a suite of education training packages online and/or face-to-face as required, adapting content to meet specific delegate needs as needed.
• Contribute to the design and maintenance of robust systems and workflows that support the smooth flow of processes from enquiry to evaluation.
• Research new areas of bereavement education need and contribute ideas for the development of new programmes and resources.
• Collaborate with colleagues to maintain and refine the evaluation and feedback framework, drawing on insights to drive continuous improvement and suggesting improvements to the training offer.
• Manage time effectively across multiple projects and priorities, working flexibly to delivery high quality outcomes within deadlines.
• Maintain accurate, up-to-date documentation in accordance with confidentiality, data protection, and statutory requirements.
• Demonstrate self-awareness and reflective capacity, using supervision and peer support to sustain personal wellbeing and professional effectiveness.
• Provide cover and support for team members when needed.

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Person Specification

Education/Professional Qualification

Essential

• Relevant professional qualification in working in education, training or learning
• Evidence of ongoing professional development and commitment to continuous learning
• Training in bereavement, grief and trauma informed practice

Desirable

• Relevant professional qualification in working with children and young people

Skills and Experience

Essential

• At least three years’ recent experience (in the past six years) of delivering training to professionals
• At least three years’ recent experience of working with children, young people and families in a health, social care, youth, community or education setting
• Experience of planning and designing training programmes
• Experience of liaising with and working alongside organisations that support children and young people
• Experience of working with vulnerable communities
• Experience of delivering training using a digital platform
• Demonstrable experience of safeguarding children, young people and vulnerable adults and an ability to practise in a way that promotes this
• Experience of working collaboratively with multi-agency professionals

Desirable

• Experience of working within a bereavement, palliative care of mental health setting
• Experienced in using outcome measures to evaluate practice

Knowledge and Understanding

• Demonstrate a strong understanding of bereavement, grief, loss, trauma, and their psychological and developmental impact on children, young people, parents and families
• Knowledge of current research, theories, national frameworks, and NICE guidance related to bereavement and children’s mental health
• Empathetic, compassionate, and youth driven approach
• Proven ability to design, deliver and adapt bereavement training effectively through digital platforms, maintaining engagement, safety and impact
• Excellent communication and interpersonal skills, with the ability to engage sensitively with stakeholders while maintaining professional boundaries at all times
• Consulting mindset with the ability to quickly assimilate information and to translate this into potential solutions and ways of working
• Awareness of safeguarding legislation, policies, and procedures
• Understanding of information governance, confidentiality, and data protection requirements
• Understanding of equality, diversity, and inclusion within practice
• Emotional maturity, stability and resilience with a strong commitment to self-care and the ability to seek support and guidance when difficulties arise in the course of work

Recruitment Timetable

Application deadline: 27th May 2026 at midnight

First Stage Screening Interviews

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

Youth Team Forum Discussion

For roles in our Bereavement Services Team, we will invite those applicants selected for interview along to a discussion forum with members of our Youth Team. This session is held remotely and lasts approximately 20 minutes. The discussion topic will be shared with you in advance of the session.

Campaigns Officer

6-month Fixed Term Contract. Full time. Hybrid working (minimum of 2 days in the office)

Location: This role can be based in any of our UK offices; Cardiff, Edinburgh, London, Warrington

Salary; £39,617 per annum for Cardiff, Edinburgh, Warrington. £44,500 per annum for London (including London allowance)

About us

Christian Aid exists to create a world where everyone can live a full life, free from poverty. We are a global movement of people, churches and local organisations who passionately champion dignity, equality and justice worldwide. We are the changemakers, the peacemakers, the mighty of heart.

We’re committed to building a diverse and inclusive workplace, and recognise the value this brings in forming strong, creative and high performing teams. We welcome applications from all sections of the community, and from those with experience from outside of the voluntary sector. And no, you don’t have to be Christian to work here – we encourage people of all faiths and none to apply. We just ask that everyone lives out our values of dignity, equality, justice and love. We value a good work-life balance, so we’re open to part-time and flexible working. We also offer hybrid working for our office-based colleagues.

About the role

Reporting in to the Campaigns Advisor, the Campaigns Officer will lead on the delivery of Christian Aid campaigns aimed at both movement building (through the development of supporters’ agency and ability to lead campaigns), and mobilisation (encouraging key audiences in the church and the wider to public to achieve strategic policy, legislative and culture change).

The post-holder will be develop and deliver high impact plans, tactics and activities that align with the strategies developed for campaigns, in relation to supporting churches and community groups (with a focus on Black Christians, Pentecostal and Charismatic Churches, and young adult Christians) and mobilising supporters to engage advocacy targets in political, private sector or in church environments.

Some of the main areas of responsibility for the Campaigns Officer include:

• Develop and implement movement building and mobilisation strategies, tactics and plans for Christian Aid's core campaigns, proactively identifying opportunities for meaningful change.
• Materials are created, communications events are developed and delivered, and campaign tools are rolled out for target audiences that engage and inspire a deeper understanding of how to approach global justice and poverty issues; and that engage and inspire them to undertake campaign actions and maximise impact.
• Organising opportunities are developed, tested and learnt from to support churches and other public audiences in the delivery of core campaigns.
• Digital opportunities are maximised to mobilise church and other public audiences at scale to influence advocacy targets on core campaigns.
• Young Adult Christians are resourced and supported, deepening their understanding about issues of global justice and poverty, and empower their own agency to tackle these issues and to be a key part of campaigns.
• Organising and power building principles are embedded in campaign strategies and tactics and meet organisational values and goals.
• Ensure coalition campaigning is influenced and/or led (where appropriate) by Christian Aid and meets organisational values and goals.
• Campaigns Volunteer roles are created, recruited and effectively managed, creating a culture of continuous learning and improvement.
• Collaborate with staff across IPE, ensuring they are supported to engage their key audiences and involved with movement building and mobilisation, embracing a team mindset aligned with organisational values and goals.

This role is a fixed term contract for a period of around 6-months

About you

Who we are looking for:

Essential:

• Knowledge of campaigning, activism and organising methodologies and techniques: how to promote a campaign and mobilise a wide range of supporters to win campaigns.
• Proven project management skills.
• Experience of campaigning (preferably in a community or church-based context) and movement building including digital campaigning, resource-production, event management, writing and marketing.
• The ability to communicate complex messages creatively and effectively to diverse audiences through a range of different media.
• Experience of breaking down complex issues into engaging and accessible material, e.g. leaflets, flyers, posters, web content, e-actions and social networking tools.
• The ability to work collaboratively with a wide range of stakeholders at all levels of an organisation.
• The ability to lead workshops and facilitate training.
• Substantial experience of developing or supporting networks of activist groups.
• Demonstrable understanding of UK churches in their diversity and of the UK campaigning environment.
• Strong mentoring skills

Desirable:

• Experience of delivering campaigns and movement building within a Christian/Church context.
• Experience working with young adults and young people.
• Experience of public speaking.
• Experience of lobbying and/or advocacy.

Further information

At Christian Aid we strive to be an inclusive and diverse employer and recognise the value that this brings in helping to build strong, creative and high performing teams.

We are actively encouraging racialised minorities, LGBTQ+, people with disabilities, returning parents or carers who are re-entering work after a career break, people with caring responsibilities, people from low socioeconomic backgrounds, women, and older workers to apply. This is because these groups are under-represented within our teams, especially at senior level, and we recognise and value the contributions members of these groups make to strong, creative and high performing teams. 

We have a strong Christian ethos and we encourage applications from all faiths. Applicants will be expected to demonstrate an understanding of and sympathy with Christian Aid’s faith identity. 

All successful candidates will require a DBS/police check appropriate to the role and location and a Counter Terrorism Sanction check as part of your clearance for commencing your role with us. We also participate in the Inter Agency Misconduct Disclosure Scheme.  In line with this Scheme, we will request information as part of the referencing process from job applicants’ previous employers about any findings of sexual exploitation, sexual abuse and/or sexual harassment during employment, or incidents under investigation when the applicant left employment. By submitting an application, the job applicant confirms their understanding of these recruitment procedures.

This role requires applicants to have the right to live and work in the country where this position is based and undertake the role that you have been offered. If you are successful and we make you an offer for the role, we will be required to conduct a right to work check on your immigration status in the UK. We will contact you regarding the documentation you will need to provide to evidence this. 

Role Purpose

As Head of Creative & Content, you will shape and champion the creative vision of Child Bereavement UK. You’ll lead the development of a bold, purposeful content and creative strategy that brings our mission to life, ensuring every story, campaign and asset is high-quality, evidence-based, accessible and emotionally resonant across all channels.

You’ll set the creative direction and ensure everything we produce is consistently compelling, inclusive and impactful, delivering outstanding user experiences that truly connect with our audiences.

This role leads the full content lifecycle, from strategic planning and innovative production to governance and evaluation. You’ll drive creativity that supports income generation, strengthens service delivery and grows brand awareness, making sure our content doesn’t just inform, but inspires action and change.

Main Responsibilities

1. Leadership, Team Management & Administration

• Work alongside the Director of Marketing & Communications to lead the Marketing & Communications team, ensuring there is a clear direction of travel, an understanding of purpose and exemplary culture embedded to drive future success.
• Provide clear leadership and direct line management to the Brand Lead and Content Creator.
• Build a high-performing content function with strong planning, evaluation and cross-functional collaboration.
• Support and mentor a network of volunteer content creators.
• Champion innovation, best practice and a user-centred approach to content.
• Proactively formulate appropriate, strategic and creative responses and pitch new ideas for campaigns and activities.
• Oversee the content strategy for all level 1 output, and seasonal appeals and campaigns.
• Effectively manage expenditure across all content workstreams in line with agreed expenditure budgets.
• Ensure that the recording of permissions and consents is adhered to in line with our policies and procedures and in accordance with GDPR.
• Deputise for the Director of Marketing & Communications when required.

2. Creative and Content Strategy & Governance

• Set, implement and continuously evolve the organisation-wide content strategy, ensuring alignment with strategic aims and audience needs.
• Oversee content systems, processes, policies and tools to ensure consistency, quality, accessibility and compliance.
• Develop a sensitive and safe lived-experience content strategy, ensuring safeguarding standards are met and contributors are appropriately supported in partnership with service teams.
• Identify and pursue content collaboration opportunities to enhance reach, impact and brand visibility.
• Manage the content budget and ensure effective prioritisation and resourcing.

3. Content Creation, Management & Delivery

• Lead delivery of high-quality cross-channel content, including copy, editorial, design and audio-visual assets.
• Develop and provide creative direction for content-led campaigns.
• Grow and manage a library of level 1 and evergreen content.
• Identify new and emerging content opportunities appropriate content opportunities using market insight and analytics to continuously develop Child Bereavement UK’s content position.
• Create, assign, commission and manage a diverse range of evergreen and project specific multimedia content including but not limited to video, audio, design and copy.
• Maintain a robust content production schedule to support organisational priorities.
• Quality-assure and ensure all content meets visual identity, user experience, accessibility, safeguarding and GDPR requirements.
• Support colleagues with interviewing service-users, professionals, staff and supporters and producing high-quality case studies for use across channels including the Impact Report, website, publications, social media and fundraising materials.
• Support and guide colleagues with basic content production duties as needed.

4. Brand & Information standards

• Provide line management and leadership to the Brand Lead to oversee brand (design, editorial and audio-visual) standards across all key external communications.
• Support the Brand Lead to identify and steward brand opportunities and collaborations.

5. Insight, Evaluation & Reporting

• Lead ongoing insight and research activities to assess content effectiveness and identify gaps or opportunities.
• Monitor and analyse content reach, performance and effectiveness producing regular reports for senior leadership.
• Adopt test-and-learn approaches (e.g., A/B testing and insight sharing) to drive continuous improvement.

6. Collaboration & Stakeholder Engagement

• Work closely with the Directors of Marketing & Communications, Services & Service Transformation, and Income Generation to deliver strategic content needs.
• Partner with bereavement services, income generation and participation teams to identify and maximise high-value content opportunities.
• Collaborate with brand and marketing colleagues to deliver projects aligned to the marketing strategy and comms plans.
• Liaise with creative agencies, media partners and freelance suppliers.
• Foster strong cross-charity relationships to ensure coherent messaging and shared learning.

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Person Specification

Essential

Experience & Knowledge

• Proven experience developing and delivering an organisation-wide content strategy.
• Experience leading a content or editorial function in a complex organisation (charity, health, social care or similar desirable).
• Proficient in graphic design and video editing skills (e.g. Canva, Adobe, CapCut).
• Strong track record for producing and overseeing high-quality written, digital, graphic and audiovisual content.
• Experience commissioning and managing agencies, freelancers and creative partners.
• Demonstrable experience creating or stewarding sensitive or lived-experience content, including safeguarding, trauma-informed practice and GDPR compliance.
• Experience of embedding and adhering to content governance and policy.
• Experience managing a team of content specialists and/or volunteers.
• Experience working collaboratively across multiple directorates and with subject matter experts.
• Experience using insight, analytics, testing and research to evaluate content performance and inform decision-making.
• Strong project management experience, managing multiple concurrent content projects and deadlines.
• Strong understanding of accessibility, UX principles, brand management and content governance.

Skills

• Excellent copywriting, editing and storytelling skills across multiple formats and for diverse audiences.
• Skilled in producing high-quality video and audio content, including hands-on skills in filming, recording and editing.
• Ability to translate complex or clinical information into clear, engaging content. Ability to set strategic direction and translate it into actionable plans and workflows.
• Strong ability to prioritise, allocate resources and manage competing demands.
• Ability to balance creative ambition with commercial or organisational objectives.
• Skilled in coaching, mentoring and motivating individuals and teams.
• Strong interpersonal and relationship management skills, with the ability to influence internal and external stakeholders.
• Ability to interpret data, identify insights and make evidence-based recommendations.
• Excellent attention to detail and commitment to editorial quality.

Attributes & Values

• Compassion, emotional intelligence and ability to work respectfully with bereaved children, young people and families.
• Collaborative, approachable, and able to build trust across teams.
• Creative, innovative and proactive, with a solutions-focused, self-starter mindset.
• Highly organised, resilient and able to work independently in a remote environment.
• Strong commitment to equity, diversity, inclusion and ethical storytelling, including amplifying lived experience safely and respectfully.
• Willingness to undertake relevant training and development opportunities.
• Willingness to be flexible work to meet organisational need.
• Ability to undertake periodic UK travel and represent the charity at meetings and events.

Desirable

• Experience working within the charity/third sector, particularly in bereavement, mental health or social care.
• Understanding of bereavement and the needs of bereaved children, young people and parents.
• Previous experience in a Head of Content or similar leadership role.
• Experience of leading in-house and external creative teams.
• Background in storytelling, editorial or publishing environments.
• Experience of delivering large-scale content programmes across multiple channels.
• Familiarity with CRM systems such as Salesforce.
• Experience managing or supporting lived-experience contributors, ambassadors or volunteers.
• Knowledge of digital marketing principles (e.g., SEO, user journeys, content optimisation.
• Active engagement with creative or content industry networks

Recruitment Timetable

Application deadline: 27th May 2026 at midnight

First Stage Screening Interviews – on-going

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews – Friday 5th June

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

The Katie Piper Foundation is seeking an experienced Finance and Business Manager to join our small, dedicated team in this newly created role, central to supporting our growth over the next three years.

You will lead all aspects of financial management, working closely with the CEO on budgeting, planning, and resource allocation. Responsibilities include overseeing day-to-day finances, producing management accounts, reporting to the Board, and ensuring strong financial controls and compliance.

In addition, you will help strengthen the charity’s wider operations, improving systems across IT, data, and reporting, as well as supporting risk management, policy development and measuring and communicating our impact.

This will be varied and evolvingrole suited to someone confident working across both strategic and operational areas, and comfortable driving organisational improvement.

We are a fully remote team. The role is home-based and part-time (28 hours a week, FTE 35 hours), and we are open to flexible working arrangements.

We are looking for a proactive professional with strong financial expertise and a broader business mindset. If you are ready to take on a pivotal role in a small team supporting a life-changing cause, we would love to hear from you.

To learn more about the role and how to apply, please view the full job pack here:
https://lnkd.in/dXjWSVwV

A senior leadership opportunity to drive growth, build influence and secure the resources needed to tackle poverty and homelessness through access to safe, decent housing in the UK and around the world. 

Location:  Home-based with frequent travel to internal and external events, networking and other meetings in London and occasionally across the UK. Occasional international travel will also be required. All staff meetings are held in our ReStore, Romford.

About Habitat for Humanity Great Britain

Habitat for Humanity Great Britain (Habitat GB) is part of the global Habitat for Humanity Federation fighting global poverty and homelessness. We believe that a decent home helps to permanently break the cycle of poverty and allows families to achieve strength, stability, and self-reliance.

Habitat GB mobilises resources, partnerships, public engagement and advocacy to support high‑impact housing solutions in the UK and internationally, working closely with Habitat for Humanity International (HFHI) and the wider Habitat network.

Job Purpose

The Director of Fundraising & Partnerships is accountable for leading the vision, strategy and performance of Habitat GB’s fundraising, partnerships, engagement and resource mobilisation activity.

This role combines senior‑level engagement and income generation leadership with organisational and strategic responsibility. The postholder will design and deliver ambitious, sustainable income and partnership strategies; strengthen Habitat GB’s profile and positioning; and lead a high‑performing, values‑led team.

As a member of the Senior Leadership Team, the Director of Fundraising & Partnerships plays a key role in organisational leadership, transformation, and long‑term sustainability, working collaboratively across Habitat GB, the international Habitat network and with a wide range of external partners. This role has 4 direct reports, and an overall team of 10.

Key Accountabilities/Responsibilities:

Strategic Fundraising, Partnerships & Engagement

• Design, deliver and adapt an integrated multi‑year fundraising and partnerships strategy, setting ambitious and achievable targets that increase income, engagement and impact.
• Lead the organisation’s approach to partnerships, philanthropy, fundraising and resource mobilisation across all non-institutional income streams, including:
  • Trusts and foundations (UK and international)
  • Corporate partnerships and strategic alliances
  • High‑net‑worth individuals and philanthropic supporters
  • Blended funding, including institutional and investment‑linked income where appropriate
• Shape and deliver Habitat GB’s positioning as a credible, innovative and impactful development and housing partner.
• Lead the development and delivery of communication and engagement strategies that increase profile, visibility, audience engagement and supporter commitment.
• Draw on learning from the wider Habitat network and sector trends to inform strategy, innovation and continuous improvement.
• Ensure compliance with fundraising regulation, ethical standards, safeguarding and best practice, including oversight of relevant policies, due diligence and risk.

Income Management, Forecasting & Performance

•  Hold accountability for all non-institutional fundraising income targets and performance against agreed budgets, with responsibility for year-on- year growth and diversification of income streams.
• Set clear quality standards, KPIs and expectations to promote accountability, ownership and high performance within the team.
• Oversee active management of a robust, strategically aligned prospect and partnership pipeline.
• Work collaboratively with the Director of Impact & Influence to align opportunities, approaches and targets across non-institutional and institutional partnerships and fundraising pipelines.
• Work closely with the Director of Finance, Operations & Compliance on income forecasting, financial planning, reporting and budget management.
• Ensure high-quality impact, financial and narrative reporting to funders, partners, the SLT and Trustees.

Senior Partnerships, Stewardship & External Profile

•  Lead and model relationship-based development with priority prospects, partners and influencers.
• Act as senior relationship lead for key high value corporate partners, donors and funders, ensuring excellent stewardship and long‑term engagement.
• Support and enhance relationship building with High‑Net‑Worth Individuals, Trusts and Foundations.
• Work collaboratively with colleagues to develop compelling proposals, propositions and reports across funding opportunities, positioning Habitat GB as a partner of choice across all priority audiences.
• Raise the profile and positioning of HFHGB through public engagement, media opportunities, online presence and attendance at relevant networks and events.
• Respond strategically to external opportunities and challenges, protecting and enhancing Habitat GB’s reputation and impact.

Leadership & Management of the Fundraising & Partnerships Team

•  Lead, inspire and develop a high performing, ambitious team focussed on fundraising, partnerships, communications and brand marketing.
• Provide clear direction, prioritisation and performance management through regular 1‑to‑1s, objective setting, feedback and development.
• Ensure effective planning, resourcing and deployment of team capacity and budget.
• Foster a collaborative, inclusive and learning led team culture, role‑modelling Habitat GB’s values and behaviours.

Organisational & Executive Leadership

•  Act as a collaborative senior leader, supporting the National Director in delivering HFHGB’s strategy and vision.
• Actively shape and influence organisational strategy, ensuring income generation and partnerships are fully integrated into strategic planning and decision making.
• Contribute to organisational wide leadership on performance, productivity, risk, diligence and transformation.
• Work effectively across teams and functions to deliver integrated, organisation wide outcomes.
• Support Trustees in fulfilling their governance, ambassadorial and fundraising responsibilities.
• Represent Habitat GB at national and international meetings, forums and events, deputising for the National Director where required.

We are looking for someone with:

•  Substantial senior level experience in fundraising, development and partnership leadership.
• Proven track record of designing and delivering ambitious income strategies.
• Expert knowledge of fundraising best practice, partnership development and donor stewardship.
• Significant experience of leading and developing high performing teams.
• Experience and awareness of communication and brand marketing in a relevant context.
• Strong financial acumen, including budget ownership, income forecasting and performance management.
• Excellent interpersonal, influencing and communication skills, with the ability to engage diverse senior stakeholders.
• Experience working collaboratively within complex or networked organisational structures.
• Strong alignment with Habitat GB’s mission, values and commitment to equity, diversity and inclusion.
• Experience working closely with Boards and Trustees.
• Knowledge of UK charity governance, fundraising regulation and compliance.
• Experience of organisational growth, change or transformation.
• Experience within housing, international development, humanitarian or social justice contexts would b

Flexibility:

 Habitat GB is seeking to rapidly expand its activities and impact to fight poverty across the world. This requires adaptability and an ambitious, dynamic and flexible team.  The post holder is expected to be flexible in terms of location (within reason), line management, and duties and responsibilities.

Application Process:

We want our recruitment process to give you an opportunity to shine, to share your skills and experience as clearly as possible, and for you to find out more about Habitat for Humanity GB in return.  ​

​To apply for the role please send us your CV and a supporting statement (max two sides of A4) telling us about the skills and experience you would bring to the role and your motivation for applying, using the link found on our website.​

Deadline for applications is Monday 25th May 2026 (at 11:59 pm).​

​We plan for first stage interviews to take place w/b 1st June 2026. Interviews may be held online, or in person in London (please note that we do not reimburse any expenses incurred during interviews).

About Us
The National Landscapes Association represents and supports the UK’s National Landscapes (Areas of Outstanding Natural Beauty) – places where we want nature and people to flourish together. These living, protected landscapes are vital to the UK’s nature recovery, climate resilience, sustainable farming and wellbeing.

We work collaboratively and inclusively to ensure these treasured places are protected, restored, and accessible to all. Our policy work is central to this mission – and we’re looking for a proficient and motivated individual to help shape and drive it forward.

About the Role

You’ll be motivated by working to help National Landscapes, along with the other protected landscapes, be the backbone of nature recovery within the UK through national commitments such as the Protected Landscapes Targets and Outcomes Framework and 30by30. With experience of working in the environmental or social sectors, you’ll be skilled at using evidence and knowledge when building positive relationships and supporting our partners in using resources effectively.

Based within the National Landscapes Association, you will work closely with colleagues from across Association, the individual National Landscapes and the Protected Landscapes Partnership.

Key Responsibilities

• Working with individual National Landscapes, develop a framework for a Vision of Nature in 2050 in the National Landscapes
• Support work on a standardised framework for valuing natural capital across the protected landscapes
• Maintain and update the National Landscape Association GIS system
• Support Big Chalk in developing a spatial prioritisation tool and potentially sitting on the panel for reviewing applications to the Big Chalk Nature Recovery Fund
• Contribute to the development of the National Landscapes Association as the leading voice on protected and designated landscapes in the UK

See the role description for more information.

Why Join Us?
At the National Landscapes Association, you’ll be part of a passionate and forward-thinking team making a meaningful impact. You’ll gain exposure to a wide range of high-profile policy issues, work alongside experts across the UK, and help shape the future of our most valued landscapes.

How to Apply
To apply, please attach a CV and a covering letter (maximum two pages) outlining how you meet the criteria in the person specification included in the role description.

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).

Recruitment Timetable:
Deadline for initial CV interest – Wednesday 20th May
Deadline for applications – Tuesday 26th May
First stage interviews - Monday 8th, Tuesday 9th or Thursday 11th June
Final stage interviews – Friday 26th June