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Page 2 of 4
London, Greater London (Hybrid)
£40,000 - £45,000 per year
Full-time
Permanent
Job description

Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

This is an exciting new opportunity to lead Muscular Dystrophy UK’s major public-facing campaigns and help drive meaningful change for people living with muscle wasting conditions.

You’ll be at the forefront of our campaigning work—building our infrastructure, shaping bold strategies, building a vibrant campaigning network, and empowering our community to influence policy and legislation. Working collaboratively across the organisation, especially with colleagues in Policy and Campaigns, Marketing and Communications, Fundraising, Volunteering, and Data, and our devolved nations leads in Services and Support, you’ll help create powerful supporter journeys and engagement activities that reflect the passion and urgency of our cause.

Reporting to the Director of Policy and Campaigns, you’ll play a key role in delivering Muscular Dystrophy UK’s policy and campaigning objectives as part of our new organisational strategy—making a tangible impact on the lives of thousands across the UK.

About us:

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK. 

We share expert advice and support to live well now; fund groundbreaking research to understand the different conditions better and lead us to new treatments; work with the NHS towards universal access to specialist health; and together, campaign for people’s rights, better understanding, accessibility, and access to treatments.

Benefits:

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, cycle scheme, health cash plan, financial wellbeing and an employee assistance programme.

Location: Head Office, London, SE1 (with flexibility for homeworking)

Closing date: Sunday 16th November

Interview date: Tuesday 25th November

Please download the job description to see full role responsibilities

Application resources
Posted by
Muscular Dystrophy UK View profile Organisation type Registered Charity Company size 51 - 100

We connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions and people around them.

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Posted on: 31 October 2025
Closing date: 16 November 2025 at 23:30
Job ref: Campaign and mobilisation
Tags: Advice / Information, Campaigns, Communications, Policy, Advocacy, Operations, Business Intelligence, Commercial, Education, Engagement / Outreach, Global Health, Health / Medical, Internal communication, Monitoring and Evaluation, Partnerships, Public Relations, Research, Strategy, Wellbeing, Governance / Management

The client requests no contact from agencies or media sales.