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Closing in 7 days
The Royal School for the Blind Charity, Liverpool (Hybrid)
£35,000 - £40,000 per year
Posted 3 weeks ago
Bowel Cancer UK, Remote
£39,465 per year plus £2000 London weighting if applicable
Posted 2 days ago

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Release Counselling and Therapy for Women, Remote
£50,000 - £55,000 pro-rata
Posted 5 days ago Apply Now
Molly Rose Foundation, Remote
£55,600 - £61,600 per year
Seeking an experienced operations professional to help grow and streamline our activities and deliver against our organisational strategy.
Posted 6 days ago Apply Now
The Pepper Foundation, Remote
£19,800 per annum for 22.5 hours per week (£33,000 FTE per annum)
Posted 6 days ago Apply Now
Closing in 5 days
Action Against Medical Accidents, Remote
£38,935 - £41,315 per year
An exciting opportunity to join AvMA as Senior Events Coordinator, working on some of the leading charity events in the medico-legal sector.
Posted 1 week ago
Humanimal Trust, Remote
£60,000 - £64,285 per year FTE (£42,000 - £45,000 pro rata)
Posted 5 days ago Apply Now
Kids Matter, Remote
£24,479 - £25,360 per year pro rata (£9,792 - £10,144 actual)
Posted 1 week ago
Page 1 of 2
Remote
£33,000 - £35,000 per year pro-rata (£19,800-£21,000)
Part-time (22.5 hours per week)
Permanent

Actively Interviewing

This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!

Job description

Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

  • Lead and support our Patient Involvement Panel
  • Facilitate high-quality patient engagement and focus groups
  • Work directly with researchers and industry partners
  • Champion authentic lived experience in research decision-making
  • Support awareness of clinical studies and research opportunities
  • Create compelling patient stories and engagement content
  • Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

  • Understands the power of meaningful patient involvement
  • Can confidently manage relationships with patients, researchers and stakeholders
  • Has experience in PPIE, health research, healthcare or the charity sector
  • Is an excellent facilitator and communicator
  • Brings empathy, professionalism and initiative
  • Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

  • Research
  • Advocacy
  • Support
  • Education
  • Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

Application resources
Application Instructions


Organisation
The PKD Charity View profile Organisation type Registered Charity Company size 1 - 5
Posted on: 12 May 2026
Closing date: 01 June 2026 at 09:00
Tags: Engagement / Outreach, Health / Medical, Helpline, Research

The client requests no contact from agencies or media sales.