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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 4 days ago Apply Now
Top job
The Gatehouse Oxford, Oxford, Oxfordshire (Hybrid)
£40,000 per year
An exciting opportunity to lead and grow fundraising for a charity supporting people experiencing homelessness, poverty & social isolation.
Posted 4 days ago Apply Now
Birmingham Women's and Children's Hospital Charity, Birmingham (Hybrid)
£39,689 - £41,886 per year
Posted 1 week ago Apply Now

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Not For Profit People, Greater London (Hybrid)
£46,000 per annum pro rata
Posted 2 weeks ago
Concern Worldwide UK, London (Hybrid)
£43,250 - £48,055 per year
Concern Worldwide (UK) is looking for a Digital Content Manager to join the team on a 12 month fixed term maternity cover contract.
Posted today
Together Active, Stafford (Hybrid)
£35,000 per year
We are looking for a passionate and person-centered individual to join us at Together Active, as our Safeguarding and Welfare Advisor.
Posted 3 days ago
The King's Trust, Multiple Locations (Hybrid)
£24,000.00 to £40,000.00, dependent on your location, skills, knowledge and experience
Posted 4 days ago
Closing in 5 days
Look Ahead Care Support and Housing, Islington (Hybrid)
Up to £42500 per annum + Benefits include 25 days Annual Leave etc
Posted 1 week ago
The American School in London, London (On-site)
£39,900 - £81,540 per year
Deliver a science curriculum to MS students in an engaging, stimulating and effective manner, using varied instructional strategies.
Posted 1 week ago Apply Now
Cambridge Science Centre, Multiple Locations (Hybrid)
£28,000 - £30,000 per year
“Own the Brand, Drive the Story, Grow the Impact”
Posted today Apply Now
Page 33 of 49
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.