Youth specialist jobs in Leeds

This role will support the development and delivery of our services and resources for young people born with a cleft lip and/or palate. Working closely with the Engagement & Services team to help us achieve our mission. 

The Youth Engagement Coordinator will sit within the Engagement & Services Team. They will join a friendly and supportive team of seven colleagues who, together, are responsible for the delivery of CLAPA’s adult, family, children and young people and involvement services. The post holder will develop and deliver services for eight- to seventeen-year-olds, which will enable the young cleft community to connect, share experiences and access guidance and emotional support. Shaping what support looks like, creating positive impact and strengthening reach, this new role for CLAPA will make a real difference to the lives of children and young people born with a cleft.

If you think you have the talent, passion and experience to help us ensure we can always meet the needs of the community we serve, we want to hear from you.

Leeds Mind promotes positive mental health and wellbeing and provides help and support to anyone who needs it in and around Leeds.  We have faith and optimism in our clients and so the services we deliver are built around their needs. We support the people of Leeds to discover their own resources to ‘recover’ from periods of poor mental health, and to live life independently with their mental health condition. 

Our values of Being Open, Supportive, Brave, Connected, and Resourceful are pivotal to the work we do.

Belonging at Leeds Mind

Leeds Mind is committed to creating an inclusive environment – equity, diversity and inclusion are at the heart of everything that we do.

We are committed to ensuring that our colleagues, volunteers and people who access our services feel a sense of belonging at Leeds Mind that gives them the confidence to share their unique perspectives and experience.

By creating an inclusive environment that fosters belonging, we aspire to attract colleagues and volunteers who offer diversity of experience and thought. We believe this will ultimately improve the service we provide as well as the employee and volunteer experience.

To find out more about how we are developing this you can visit our website.

Our Service

Employment is a key part of mental health recovery. Our employment services are delivered in line with the IPS model, supporting people with mental health challenges to retain paid employment in line with their aspirations. IPS is delivered in close partnership with NHS mental health services, employers, commissioners and the wider system.

Due to receiving new funding we are excited to expand our WorkPlace Leeds service to develop our existing support in the community.

The Role

To provide an evidence-based IPS employment support service, delivered in a trauma‑informed, person‑centred and inclusive way, in line with Leeds Mind values and IPS fidelity standards.

You will be required to manage a caseload of clients who have experienced mental health difficulties and who are either unemployed or seeking to return to current employment following long term absence. You will be expected to deliver the IPS approach (according to the key principles of IPS). You will work with all relevant stakeholders, including employers, to support the client to gain and retain paid employment. 

We encourage all interested candidates to watch an introductory video which describes the impact of being an IPS Employment Specialist. You can find this link on the job advert attached.

Essential Skills and Experience:

· Experience of working directly with individuals who face complex barriers, using a person‑centred, strengths‑based and non‑judgemental approach.

· Able to manage a varied caseload, support people to find, return to or stay in work, and work towards agreed outcomes in a performance‑focused environment.

· Ability to build positive, trusting relationships with clients, employers and partner professionals, and communicate clearly, empathetically and professionally.

· Willing and able to proactively approach employers, promote inclusive employment, and support workplaces to understand mental health and reasonable adjustments.

· Able to prioritise workload, maintain accurate records using digital systems, work within safeguarding and GDPR requirements, and engage with supervision and feedback.

· Demonstrates a commitment to Leeds Mind values, inclusive and trauma‑informed practice, partnership working, and ongoing learning (including completing IPS training and competency assessment).

Hours – 37 hours per week (we are unable to offer part time hours unfortunately but may be able to accommodate flexible working)

Selection process will include a telephone screening and assessment centre.

Location: The role is predominantly community-based but you will also attend meetings at Clarence House, Clarence Road, LS18 4LB.

Successful candidates will be required to undertake a right to work in the UK check as well as an enhanced DBS check.  At Leeds Mind, we've made significant progress in Equity, Diversity, Inclusion, and Belonging in recent years, resulting in a genuinely diverse team. We are committed to maintaining strong representation in our workforce and always encourage applications from LGBTQIA+, culturally diverse, neurodivergent, and disabled individuals.   

Reg charity number: 1007625

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary

This role forms a key part of a new Strategy & Insight Team at Bowel Cancer UK, which seeks to build core capabilities to enable us to be as effective as we can be for people affected by bowel cancer. The Audience Insight Specialist will be an internal leader, building our capability to understand our core audiences and the people we need to reach to achieve our strategic goals. You will support a cultural shift in how the charity takes an audience-led approach to planning, decision-making, and communications, as our CRM, data infrastructure, and Strategy & Insight functions continue to develop. Making best use of internal and external sources, you will distil data into meaningful insight, tailored to different audiences. You will support a consistent approach to audiences across the organisation, while flexing to meet the needs of different teams, ensuring that any understanding of audience is rooted in evidence.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.

What does it take to lead the national voice for special schools at a time of real change?

Chief Executive Officer (CEO) – National Association of Special Schools (NASS)

National – home-based, with regular travel across England and Wales, particularly London

£90,000–£110,000 per annum

Full-time, permanent.

About NASS 

The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.

We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.

This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.

As our next Chief Executive, you will:

• Strategy & Impact: Lead NASS through a period of policy and structural change, ensuring the organisation remains clear on purpose, responsive to members and influential in the SEND landscape.
• Governance & Finance: Work closely with the Board of Trustees to provide strong governance, prudent financial stewardship, robust risk management and clear strategic oversight.
• Operational Leadership: Provide confident leadership to a small, remote team, strengthening collaboration, accountability, resilience and a positive, high-trust culture.
• Income Generation: Oversee budgeting, planning and reporting while developing thoughtful opportunities to diversify income through membership, partnerships, events and related activity.
• Community & Partnerships: Build and sustain trusted relationships with government, parliament, regulators, sector bodies and member schools, ensuring NASS remains relevant and well connected.
• Member Services: Protect and enhance the practical offer to members, from briefings and special interest groups to conferences, webinars, training and peer-to-peer learning.
• Brand & Profile: Act as a credible public ambassador for NASS, helping to modernise communications and broaden the organisation’s voice beyond a founder-shaped model.
• Future Growth: Shape a distributed leadership profile and support a more varied, accessible and engaging approach to membership, advocacy and communications.
• A seasoned senior leader with experience in a charity, membership body, education or public sector setting, and a clear track record of leading through change.
• A strong strategic thinker, able to absorb complex information quickly and translate it into clear, practical direction.
• A confident communicator with the gravitas to represent NASS with members, staff, trustees, MPs, peers, media and national partners.
• A politically astute relationship-builder, comfortable navigating a complex and fast-moving external environment.
• Experienced in governance, with a sound understanding of working with boards or trustees and supporting effective decision-making.
• Numerate and commercially minded, with experience of budgets, financial planning, income generation or partnership development.
• Credible, approachable and resilient, with the emotional intelligence to lead well in a high-profile, remote and sometimes uncertain context.
• Direct SEND experience would be a significant advantage, alongside understanding of specialist education or similarly complex stakeholder environments.

Why NASS?

• This is a chance to lead a respected, member-led organisation with a strong national reputation and a clear public purpose.
• You will help shape the future of specialist education at a time when SEND reform is high on the agenda.
• NASS has a loyal, experienced and collegiate remote staff team, supported by an active Board of Trustees.
• The organisation offers a genuinely influential platform, with strong connections across the sector and with government.

Application

For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.

Closing date for applications: 9am, Monday 8th June 2026

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

Role Purpose

The Education Trainer supports the Education Manager in the design and delivery of specialist, evidence-informed trainings programmes for education professionals equipping them to support bereaved children, young people, adults and communities.

Using trauma-informed, evidence-based content delivered through both digital platforms and in-person, the role ensures schools and educational staff have practical tools to identify, respond to, support and/or refer bereaved children, young people and adults.

We are recruiting for two Education Trainers, both to work full-time hours (35 per week). One term-time only and the other to work year-round.

Main Responsibilities

• Working collaboratively with the Education Team and the team’s administrator to co-ordinate training requests responses.
• Working with the Education Manager and colleagues, support the design of training programmes tailored to the needs of the training delegates.
• Deliver the organisation’s education training packages online and/or face-to-face as required.
• Work with the team to ensure efficient flow of processes and procedures.
• To research key areas in need of bereavement training packages.
• To be an ambassador for the ASK Me Training and Manifesto to early years, primary, secondary and higher education institutions and professionals.
• To form key relationships with individuals and organisations to promote off-the-shelf training as well as rapid response, ASK Me and bespoke education training.
• To work with the team to develop new education training programmes and content.
• Work with the Marketing and Communications Team to promote education training programmes.
• Collaborate with the team to develop and review feedback framework to evaluate the training.
• Use feedback to improve the current training offer and identify gaps in education training offers.

 Communication and Relationships

• Build and maintain effective relationships with education professionals across early years, primary, secondary and higher education sector.
• Act as an ambassador for the organisation’s ASK Me Training and Manifesto and other key education programmes, promoting values of empathy, inclusion and best practice in bereavement support.
• Collaborate closely with the Education Manager, colleagues and the Education Administrator to co-ordinate training requests and ensure a seamless client experience.
• Engage with internal teams, including Marketing and Communications, to publicise training offers and strengthen audience reach.
• Work proactively to establish and nurture key relationships with external education networks, commissioners, and organisations to increase awareness and uptake of training programmes.
• Communicate sensitively and confidently when delivery content that may evoke emotional responses, ensuring a safe and supportive training environment.
• Demonstrate and promote the organisation’s values and culture through all forms of communication, behaviours and professional relationships.

Knowledge, Training and Experience

• Strong presentation, facilitation and communication skills, adaptable to a variety of audiences.
• Contribute to the creation of bespoke education programmes or training sessions as well as to the development of new education training packages.
• Develop and adapt training content for both in-person and digital delivery using a variety of digital platforms.
• Demonstrate a robust understanding of grief, loss, trauma, child development, and the psychological and social impact of bereavement on children, young people, and adults, including families.
• Demonstrate a high level of understanding of the organisation’s evidence-based tiered service model.
• Demonstrate strong knowledge of current education frameworks and the wellbeing priorities for schools and colleges.
• Participate, and where appropriate, lead on consultations with individual education settings to formulate an assessment of their individual training needs.
• Use outcome measures and/or feedback tools to monitor progress, evaluate the impact of delivery, and reflect on own practice.
• Adhere to legislation and statutory guidance related to Safeguarding Children and Young People and Safeguarding Adults at all times.
• Participate actively in clinical supervision and reflective practice to ensure safe, ethical, and effective delivery.
• Contribute to the development and sharing of knowledge within the team by supporting training, mentoring, and peer learning opportunities.

Analytical and Judgement Skills

• Assess training needs of education settings through consultation, feedback and sector research to inform targeted content development with the support of the Education Manager.
• Evaluate participants’ feedback systematically to review the quality, relevance and impact of training’ identify areas for improvement and gaps in provision.
• Exercise sound judgement when responding to sensitive disclosures or emotionally charged discussions during training, ensuring appropriate support and signposting.
• Apply analytical thinking to review emerging issues in bereavement education – such as curriculum integration – to guide future training design.
• Recognise and manage situations that involve ambiguity, uncertainty, or emotional intensity, drawing on supervision and established frameworks for professional support.
• Apply a trauma-informed and developmentally appropriate lens to training development and delivery, ensuring sensitivity to cultural, social, and contextual factors influencing grief.
• Ensure accurate, timely, and meaningful data recording and reporting to inform service evaluation, and organisational performance monitoring.

Planning and organisational skills

• Prepare thoroughly for assigned training sessions, ensuring all materials, technology and resources are ready in advance.
• Deliver training sessions to time and quality standards, managing transitions between content, activities and Q&A smoothly.
• Deliver a suite of education training packages online and/or face-to-face as required, adapting content to meet specific delegate needs as needed.
• Contribute to the design and maintenance of robust systems and workflows that support the smooth flow of processes from enquiry to evaluation.
• Research new areas of bereavement education need and contribute ideas for the development of new programmes and resources.
• Collaborate with colleagues to maintain and refine the evaluation and feedback framework, drawing on insights to drive continuous improvement and suggesting improvements to the training offer.
• Manage time effectively across multiple projects and priorities, working flexibly to delivery high quality outcomes within deadlines.
• Maintain accurate, up-to-date documentation in accordance with confidentiality, data protection, and statutory requirements.
• Demonstrate self-awareness and reflective capacity, using supervision and peer support to sustain personal wellbeing and professional effectiveness.
• Provide cover and support for team members when needed.

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Person Specification

Education/Professional Qualification

Essential

• Relevant professional qualification in working in education, training or learning
• Evidence of ongoing professional development and commitment to continuous learning
• Training in bereavement, grief and trauma informed practice

Desirable

• Relevant professional qualification in working with children and young people

Skills and Experience

Essential

• At least three years’ recent experience (in the past six years) of delivering training to professionals
• At least three years’ recent experience of working with children, young people and families in a health, social care, youth, community or education setting
• For one of the two roles, a Welsh speaker is required
• Experience of planning and designing training programmes
• Experience of liaising with and working alongside organisations that support children and young people
• Experience of working with vulnerable communities
• Experience of delivering training using a digital platform
• Demonstrable experience of safeguarding children, young people and vulnerable adults and an ability to practise in a way that promotes this
• Experience of working collaboratively with multi-agency professionals

Desirable

• Experience of working within a bereavement, palliative care of mental health setting
• Experienced in using outcome measures to evaluate practice

Knowledge and Understanding

• Demonstrate a strong understanding of bereavement, grief, loss, trauma, and their psychological and developmental impact on children, young people, parents and families
• Knowledge of current research, theories, national frameworks, and NICE guidance related to bereavement and children’s mental health
• Empathetic, compassionate, and youth driven approach
• Proven ability to design, deliver and adapt bereavement training effectively through digital platforms, maintaining engagement, safety and impact
• Excellent communication and interpersonal skills, with the ability to engage sensitively with stakeholders while maintaining professional boundaries at all times
• Consulting mindset with the ability to quickly assimilate information and to translate this into potential solutions and ways of working
• Awareness of safeguarding legislation, policies, and procedures
• Understanding of information governance, confidentiality, and data protection requirements
• Understanding of equality, diversity, and inclusion within practice
• Emotional maturity, stability and resilience with a strong commitment to self-care and the ability to seek support and guidance when difficulties arise in the course of work

Recruitment Timetable

Application deadline: 27th May 2026 at midnight

First Stage Screening Interviews

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

Youth Team Forum Discussion

For roles in our Bereavement Services Team, we will invite those applicants selected for interview along to a discussion forum with members of our Youth Team. This session is held remotely and lasts approximately 20 minutes. The discussion topic will be shared with you in advance of the session.

Location: Leeds General Infirmary & St James’ Hospital
Closing date: 24th May 2026, 11:59 PM
Interview date: 4th June 2026

Change lives in a life-changing career

When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.

The impact of cancer on young lives is more than medical. And that impact can be felt by entire family. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer.

We remove barriers, solve problems and prioritise wellbeing. And we stop at nothing to make their voices heard and their unique needs understood, so they can get the right care and support at the right time

About the role

We are looking for an experienced Social Worker to join our Leeds Team supporting children and young people diagnosed with cancer.

We pride ourselves on delivering the highest quality support tailored to the needs of the children and young people and their families. The work we do is rewarding but also complex and demanding. You will be part of a close-knit Young Lives vs Cancer social work team, working with an established NHS multi-disciplinary team and services in the community.

This role is predominantly site-based with an element of occasional working from home as agreed with the line manager. Your contractual base will be both Home and Hospital.

This post is subject to an Enhanced Disclosure and Barring Service check. A previous conviction is not necessarily a barrier to employment. We encourage qualified applicants to apply, and we will consider each case individually.

About you

You will be committed to delivering high quality social work support to promote the best outcomes for the children, young people and families we work with. You will need to be resourceful and resilient. You will have a positive attitude and be willing to embrace difference. As part of the wider Young Lives vs Cancer team you will actively engage with the work of the charity and welcome opportunities to get involved.

You will have:

• A recognised Social Worker qualification and current registration with Social Work England
• Experience working with children, young people and their families/carers in a social care setting.
• Experience of working in a multi-disciplinary environment, ideally in an NHS setting.
• Sound knowledge of child and young people development.
• An understanding of the impact of serious illness for children, young people and their families.
• Excellent interpersonal skills.

What will I gain?

For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:

• Flexible working: we’re open to working hours outside of 9 - 5 and we can talk through your flexibility requirements at interview stage
• Wellbeing, Thinking & Growth Days: four days a year to step back from the day-to-day and focus on your own learning and development
• Generous annual leave allowance
• Great family/caring leave entitlements
• Enhanced pension
• Access to our employee savings scheme

To find out more about our benefits package, have a look on our website.

Our commitment to Diversity, Equity, Inclusion and Belonging

At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.

We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. We particularly welcome applications from members of minoritised communities. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.

To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value AI adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to tell us about your skills and experiences in your own voice.

Accessibility

We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible.Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.

To arrange an informal chat, please contact Bev Barker.

#ShowTheSalary

Harris Hill is delighted to be partnering with Scotty's Little Soldiers, who have been supporting children and young people who have been bereaved of a parent who served in the British Armed Forces. They are searching for a Head of Strategic Partnerships (Trusts & Foundations) to join their team.

This is an exciting opportunity to have a direct and measurable impact on the future growth of the organisation. The role combines strategic influence with hands-on delivery, offering the chance to build long-term partnerships, contribute to ambitious income growth and help strengthen support for the families Scotty’s Little Soldiers supports.

As Head of Strategic Partnerships (Trusts & Foundations), you will be responsible for leading and growing a significant grants income portfolio, with a focus on increasing multi-year and high-value funding opportunities. You will develop a strategic pipeline of aligned funders, proactively identifying and qualifying opportunities and building long-term relationships that support sustainable income growth. You will lead the development, writing and submission of compelling grant applications and partnership proposals, translating organisational strategy and impact into strong, funder-aligned cases for support. Another key aspect of the role is managing and stewarding relationships with funders, acting as a trusted point of contact, you will ensure funders remain engaged, informed and connected to the impact. You will also be responsible for grant management and compliance across the full funding lifecycle, including financial tracking and reporting.

To be successful, you will need or need:

• Proven track record of securing £50k+ grants from trusts and foundations, ideally including multi-year funding.
• Strong relationship builder, able to engage and influence funder decision-makers.
• Able to balance strategic thinking with hands-on delivery.
• Excellent written communicator, able to craft compelling, high-quality proposals and reports.

Salary: £50,000 - £55,000

Permanent, Full-time

Location: Remote (must be located within 2 hours of Cambridge)

Deadline – Monday 1st June at 9am

Application process – CV and Cover Letter

If this sounds like you, then please do get in touch ASAP!

As leading charity recruitment specialists and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

Money & Energy Advice Service Lead

Pro rata salary: £39,825 (35 hour week)

Home-based, with travel as required

Up to 35 hours per week with occasional evenings and / or weekend work will be required

Permanent (subject to external funding)

Responsible for: 2.0 FTE Money & Energy Advisers

About the role

This is an exciting opportunity for an experienced welfare benefits practitioner with a passion for sharing knowledge and enabling teams to deliver above and beyond.

With around 4 in 10 beneficiaries, we support seeking help with financial difficulties, this is a pivotal role for Kidney Care UK.

We are seeking a knowledgeable and confident specialist income maximisation activities for a role with three key parts: to lead a small team delivering benefits and energy advice and support directly to clients; to play a key role in upskilling and supporting our outstanding Patient Support team across the country; and to be the subject matter expert within Kidney Care UK.

Our external partners – British Gas Energy Trust have committed to fund our Money and Energy Service until March 2027. We are advertising this position as ‘permanent’ – we anticipate confirmation by December 2026 whether funding will be extended beyond March 2027.

This role is made possible thanks to the support of British Gas Energy Trust.

About Kidney Care UK

Around 3.5 million people in the UK live with chronic kidney disease, and one million of them don’t know that they do.

Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease. 

About the Money & Energy Advice Service

The Money & Energy Advice Service (MEAS) provides information and support for welfare benefits and income maximisation and promotes awareness of efficient energy use. Working closely with Patient Support officers, MEAS provides specialist knowledge and directly supports clients to achieve sustainable financial outcomes. The service was established in 2023 with the support of British Gas Energy Trust and is embedded as a valued element of the many ways Kidney Care UK supports people affected by kidney failure.

What we offer

Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:

• Flexi-time – we are flexible about start and finish times, and flexible about your location.
• Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
• Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
• Health cashback plan – ability to claim back a wide variety of routine medical treatments.
• Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
• Cycle2Work scheme

Today, 12 children and young people will be diagnosed with cancer. We’ll stop at nothing to make sure they get the right care and support at the right time.  ​

• Directorate: Innovation, Policy & Systems Change
• Reporting into: Associate Director of Research, Learning and Systems Change
• Colleagues reporting into role: No direct reports at present. However, coaching and managing of volunteers and/or consultants is expected. 
• Location: You can be home-based anywhere in the UK, with travel for meetings. You can also choose to work from our Bristol or London offices.
• Closing date: Monday 8 June at 12 midday
• Interview dates: Monday 15 June and Tuesday 16 June (please tell us in your application if you cannot attend interview on one of these days)

Change lives in a life-changing career

When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.

The impact of cancer on young lives is more than medical. And that impact can be felt by entire family. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer.

We remove barriers, solve problems and prioritise well-being. And we stop at nothing to make their voices heard and their unique needs understood, so they can get the right care and support at the right time.

About the role

We’re looking for a Head of Research & Evidence to join our ambitious Research, Learning & Systems Change Team. 

Young Lives vs Cancer has a strong and growing commitment to changing the system for children and young people with cancer, and their loved ones. Our North Star vision and Time is Now Strategy focus on influencing how the wider system works – from services and policy to practice on the ground – so that families get the support they need.

The Head of Research and Evidence sits in the Research, Learning & Systems Change team, within our Innovation, Policy & Systems Change Directorate. The role is responsible for ensuring our work is grounded in strong, credible and useful evidence, and that learning is actively used to shape decisions, practice and change across the system.

This is a leadership role within a small but ambitious team. You will set direction and provide thought leadership, but you will also be hands on – designing, commissioning, managing and using research alongside colleagues and partners.

Building trusted relationships and using evidence to influence thinking and action are central. You will work with colleagues, children and young people, families, and partner organisations (such as the North Star Cancer Collective) to learn, strengthen credibility and create change.

This role is subject to a Criminal Record Check. In the event of a successful application, a Basic Criminal Record Check will be completed. A previous conviction is not necessarily a barrier to employment. We encourage qualified applicants to apply, and we will consider each case individually.

What will I be doing?

No two days are the same at Young Lives vs Cancer. So, summarising your ‘day to day’ isn’t easy. You’ll work as part of a strong internal team, collaborating closely with colleagues across the organisation and with key external partners to generate, use and apply evidence that supports learning, influence and system change. Here are some of the main things you’ll be doing, but you’ll find more details in the job description and pack:

• You’ll be setting the direction for research and learning, leading a clear and purposeful research programme focused on the psychosocial experiences of children and young people with cancer. You’ll ensure research is high‑quality, ethical and impactful, including commissioning work with partners and contributing to research funding bids.

• You’ll be understanding needs and experiences to grow a strong, credible evidence base, building and using robust evidence on need, inequality, impact and progress to inform strategy, services, policy and system change. You’ll ensure children, young people and families meaningfully shape research and that insight is shared in clear, practical ways.

• You’ll be providing system insight and leadership, analysing how the system works, identifying trends and pressures, and using evidence to guide where change is most needed. You’ll build trusted relationships across the voluntary sector, NHS and research community, sharing learning and strengthening our credibility and influence.

• You’ll be turning learning into action and influence, helping teams apply research to real‑world practice and supporting testing, learning and improvement over time. You’ll put feedback and learning loops in place and assess how research‑informed change is affecting practice and outcomes.

What do I need? 

Diverse perspectives and unique skill sets are at the heart of Young Lives vs Cancer. If you're passionate about making a positive impact and eager to learn, we encourage you to apply, even if you don't meet the criteria and person specification fully. Your potential is what matters most to us, and we’re committed to fostering an inclusive and supportive work environment to help you develop.

The key skills we’re looking for in this role are:

• Experience leading and delivering research, including setting direction, choosing methods, commissioning or carrying out research, analysing data, and ensuring high quality and ethical practice.

• Strong research and analytical skills, with confidence working with both qualitative and quantitative data and evidence, and turning insight into practical action.

• Experience using evidence to support change, such as shaping strategy, influencing policy, improving services or supporting system change.

• Experience working across organisations, building trusted relationships with colleagues, partners, and where appropriate, children, young people and families.

• Ability to communicate complex research clearly and accessibly to different audiences, in writing and in conversation.

• A collaborative way of working, with strong people skills, curiosity and a learning mindset, and a clear commitment to equity, inclusion and anti‑oppressive practice.

What will I gain?

For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:

• Flexible working: we’re open to working hours outside of 9 - 5 and we can talk through your flexibility requirements at interview stage
• Well-being, Thinking & Growth Days: four days a year to to step back from the day-to-day and focus on your own learning and development
• Generous annual leave allowance
• Great family/caring leave entitlements
• Enhanced pension
• Access to our employee savings scheme

To find out more about our benefits package, have a look on our website.

Our commitment to Diversity, Equity, Inclusion and Belonging

At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.

We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.

To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value AI adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to tell us about your skills and experiences in your own voice.

Accessibility

We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible. Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.

To hear more about this role, please sign up to one of our informal drop in sessions taking place at 12:30pm on Tuesday 26th May and 17:30pm on Monday 01st June.

#ShowTheSalary #NonGraduatesWelcome

Role Purpose

As Head of Creative & Content, you will shape and champion the creative vision of Child Bereavement UK. You’ll lead the development of a bold, purposeful content and creative strategy that brings our mission to life, ensuring every story, campaign and asset is high-quality, evidence-based, accessible and emotionally resonant across all channels.

You’ll set the creative direction and ensure everything we produce is consistently compelling, inclusive and impactful, delivering outstanding user experiences that truly connect with our audiences.

This role leads the full content lifecycle, from strategic planning and innovative production to governance and evaluation. You’ll drive creativity that supports income generation, strengthens service delivery and grows brand awareness, making sure our content doesn’t just inform, but inspires action and change.

Main Responsibilities

1. Leadership, Team Management & Administration

• Work alongside the Director of Marketing & Communications to lead the Marketing & Communications team, ensuring there is a clear direction of travel, an understanding of purpose and exemplary culture embedded to drive future success.
• Provide clear leadership and direct line management to the Brand Lead and Content Creator.
• Build a high-performing content function with strong planning, evaluation and cross-functional collaboration.
• Support and mentor a network of volunteer content creators.
• Champion innovation, best practice and a user-centred approach to content.
• Proactively formulate appropriate, strategic and creative responses and pitch new ideas for campaigns and activities.
• Oversee the content strategy for all level 1 output, and seasonal appeals and campaigns.
• Effectively manage expenditure across all content workstreams in line with agreed expenditure budgets.
• Ensure that the recording of permissions and consents is adhered to in line with our policies and procedures and in accordance with GDPR.
• Deputise for the Director of Marketing & Communications when required.

2. Creative and Content Strategy & Governance

• Set, implement and continuously evolve the organisation-wide content strategy, ensuring alignment with strategic aims and audience needs.
• Oversee content systems, processes, policies and tools to ensure consistency, quality, accessibility and compliance.
• Develop a sensitive and safe lived-experience content strategy, ensuring safeguarding standards are met and contributors are appropriately supported in partnership with service teams.
• Identify and pursue content collaboration opportunities to enhance reach, impact and brand visibility.
• Manage the content budget and ensure effective prioritisation and resourcing.

3. Content Creation, Management & Delivery

• Lead delivery of high-quality cross-channel content, including copy, editorial, design and audio-visual assets.
• Develop and provide creative direction for content-led campaigns.
• Grow and manage a library of level 1 and evergreen content.
• Identify new and emerging content opportunities appropriate content opportunities using market insight and analytics to continuously develop Child Bereavement UK’s content position.
• Create, assign, commission and manage a diverse range of evergreen and project specific multimedia content including but not limited to video, audio, design and copy.
• Maintain a robust content production schedule to support organisational priorities.
• Quality-assure and ensure all content meets visual identity, user experience, accessibility, safeguarding and GDPR requirements.
• Support colleagues with interviewing service-users, professionals, staff and supporters and producing high-quality case studies for use across channels including the Impact Report, website, publications, social media and fundraising materials.
• Support and guide colleagues with basic content production duties as needed.

4. Brand & Information standards

• Provide line management and leadership to the Brand Lead to oversee brand (design, editorial and audio-visual) standards across all key external communications.
• Support the Brand Lead to identify and steward brand opportunities and collaborations.

5. Insight, Evaluation & Reporting

• Lead ongoing insight and research activities to assess content effectiveness and identify gaps or opportunities.
• Monitor and analyse content reach, performance and effectiveness producing regular reports for senior leadership.
• Adopt test-and-learn approaches (e.g., A/B testing and insight sharing) to drive continuous improvement.

6. Collaboration & Stakeholder Engagement

• Work closely with the Directors of Marketing & Communications, Services & Service Transformation, and Income Generation to deliver strategic content needs.
• Partner with bereavement services, income generation and participation teams to identify and maximise high-value content opportunities.
• Collaborate with brand and marketing colleagues to deliver projects aligned to the marketing strategy and comms plans.
• Liaise with creative agencies, media partners and freelance suppliers.
• Foster strong cross-charity relationships to ensure coherent messaging and shared learning.

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Person Specification

Essential

Experience & Knowledge

• Proven experience developing and delivering an organisation-wide content strategy.
• Experience leading a content or editorial function in a complex organisation (charity, health, social care or similar desirable).
• Proficient in graphic design and video editing skills (e.g. Canva, Adobe, CapCut).
• Strong track record for producing and overseeing high-quality written, digital, graphic and audiovisual content.
• Experience commissioning and managing agencies, freelancers and creative partners.
• Demonstrable experience creating or stewarding sensitive or lived-experience content, including safeguarding, trauma-informed practice and GDPR compliance.
• Experience of embedding and adhering to content governance and policy.
• Experience managing a team of content specialists and/or volunteers.
• Experience working collaboratively across multiple directorates and with subject matter experts.
• Experience using insight, analytics, testing and research to evaluate content performance and inform decision-making.
• Strong project management experience, managing multiple concurrent content projects and deadlines.
• Strong understanding of accessibility, UX principles, brand management and content governance.

Skills

• Excellent copywriting, editing and storytelling skills across multiple formats and for diverse audiences.
• Skilled in producing high-quality video and audio content, including hands-on skills in filming, recording and editing.
• Ability to translate complex or clinical information into clear, engaging content. Ability to set strategic direction and translate it into actionable plans and workflows.
• Strong ability to prioritise, allocate resources and manage competing demands.
• Ability to balance creative ambition with commercial or organisational objectives.
• Skilled in coaching, mentoring and motivating individuals and teams.
• Strong interpersonal and relationship management skills, with the ability to influence internal and external stakeholders.
• Ability to interpret data, identify insights and make evidence-based recommendations.
• Excellent attention to detail and commitment to editorial quality.

Attributes & Values

• Compassion, emotional intelligence and ability to work respectfully with bereaved children, young people and families.
• Collaborative, approachable, and able to build trust across teams.
• Creative, innovative and proactive, with a solutions-focused, self-starter mindset.
• Highly organised, resilient and able to work independently in a remote environment.
• Strong commitment to equity, diversity, inclusion and ethical storytelling, including amplifying lived experience safely and respectfully.
• Willingness to undertake relevant training and development opportunities.
• Willingness to be flexible work to meet organisational need.
• Ability to undertake periodic UK travel and represent the charity at meetings and events.

Desirable

• Experience working within the charity/third sector, particularly in bereavement, mental health or social care.
• Understanding of bereavement and the needs of bereaved children, young people and parents.
• Previous experience in a Head of Content or similar leadership role.
• Experience of leading in-house and external creative teams.
• Background in storytelling, editorial or publishing environments.
• Experience of delivering large-scale content programmes across multiple channels.
• Familiarity with CRM systems such as Salesforce.
• Experience managing or supporting lived-experience contributors, ambassadors or volunteers.
• Knowledge of digital marketing principles (e.g., SEO, user journeys, content optimisation.
• Active engagement with creative or content industry networks

Recruitment Timetable

Application deadline: 27th May 2026 at midnight

First Stage Screening Interviews – on-going

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews – Friday 5th June

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

The Pepper Foundation is a local charity funding children’s hospice care at home, specialised play and family days for children living with life-limiting and life-threatening conditions in Hertfordshire and Buckinghamshire. 

The Trusts & Foundations Fundraiser will be joining Pepper at an exciting time as we launch our new three-year fundraising strategy. Backed by committed investment and with full Board approval, we are delighted to be growing the charity to deliver sustainable income that directly supports local children and families with hospice care in the comfort of their own homes.

Working closely with the Head of Trusts & Foundations, you will play a pivotal role in increasing income from trusts and foundations by developing and managing a strong pipeline of funders, securing new grants, and building long-term relationships that lead to increased and multi-year support. You will research and prepare compelling applications to both new and existing funders, alongside producing timely, engaging reports that clearly demonstrate impact.

This role requires a highly organised and motivated individual with a passion for writing, strong attention to detail, and the ability to deliver exceptional cultivation, stewardship and relationship management of trusts and foundations aligned with our mission.

Your work will directly support hospice at home care, specialist play services, and meaningful family days out for children with life-limiting and life-threatening conditions – making a tangible difference to families during the most difficult of times.

Hours: 22.5 hours per week working from home – applicants must live within Hertfordshire or Buckinghamshire (or surrounding counties)

Salary: £19,800 per annum for 22.5 hours per week (£33,000 FTE per annum)

Key requirements:

• Work with the Head of Trusts & Foundations to agreed income targets and growth.
• Build and maintain a strong pipeline of small and medium trusts and foundations (giving up to £10,000).
• Produce high-quality, tailored applications to prospective funders aligned with agreed criteria.
• Prepare meaningful update reports, demonstrating the impact of a funder’s support, whilst ensuring all reporting requirements and deadlines are met.
• Deliver excellent relationship management and stewardship through regular reporting and tailored communications.
• Conduct prospect research to identify and prioritise new trust funding opportunities aligned with The Pepper Foundation’s work.
• Maintain accurate and up-to-date records of all communications on the Donorfy CRM database whilst keeping abreast of GDPR.
• Stay up to date with current trends in trust fundraising.
• Ensure compliance with relevant regulations, including the Fundraising Regulator Code of Practice, and internal Safeguarding Policies.
• Represent The Pepper Foundation at events as required.

How to apply: For further details about the role, please download our recruitment pack. Please send your CV with a cover letter explaining why you would make a great candidate for this role and how you meet the job description. 

Closing date: 1st June 2026 at 5pm

Interview dates: First-round interviews on 10th and 11th June and second-round interviews on 15th June 2026.

Interviews will take place at our office in Berkhamsted. Please let us know if you have any accessibility requirements or need any adjustments for the interview.

If appointed, an enhanced DBS check will be required.

Location: Home based- Please note that while the role is primarily remote, candidates must be based in the UK due to periodic travel requirements, including attendance at conferences and other in-person meetings. 

Hours: Part time - 18 hours 

Terms: One-year fixed term contract (with a possibility of extending the role funding allowing)

Salary: FTE £24,750 (actual £11,880)

Pension: NEST Scheme 

Annual Leave: 28 days pro rata (inclusive of bank holidays) 

Normal working week: 37.5 hours 

What we can offer you: 

• Flexible, remote working from home. 

• A positive and friendly staff culture. 

• Annual in-person meet-ups as a team. 

• Laptop and Phone as required. 

• Option to discuss and set your own regular working hours. 

• The opportunity to make a difference to a growing charity and a large, engaged 

community.

• Organisation wide shut down at Christmas in addition to your holiday entitlement 

ABOUT US

PANS and PANDAS are complex neuro-psychiatric conditions which are frequently 

misunderstood and misdiagnosed. PANS PANDAS UK are the only charity in the UK 

working to improve outcomes and ensure brighter futures for people affected by PANS and PANDAS. 

We provide support and information to families, and work tirelessly to inform medical 

practice, raise awareness, engage with medical, social work and educational 

professionals, and much more. 

We are a small team based at home in various UK locations. We keep in touch frequently online and have a warm, supportive and positive culture. 

OVERALL PURPOSE 

The Education Training Development Manager will lead the operational development, and delivery of the national education training programme, ensuring it aligns with organisational priorities and emerging national guidance. The role is responsible for the coordination, growth and quality assurance of PANS PANDAS UK’s national CPD training offer for teachers and educational psychologists (EPs), supporting the development and delivery of high‑quality training modules and strengthening partnerships.

The role reports to and works in close collaboration with the PANS PANDAS UK Education Lead, who retains overall ownership, strategic responsibility and final decision‑making authority for the training programme and the wider education strategy.

Central to this role is working collaboratively with the PANS and PANDAS community and the Youth Advisory Board (YAB) to ensure all training is informed by lived experience.

Key Responsibilities

Programme & Content Development

• Jointly review, update and refine existing CPD materials with the Education Lead, informed by national guidance and emerging research, with the Education Lead holding overall responsibility
• Support development of new training modules and associated materials.
• Explore future delivery models to expand national reach and scalability.
• Identify opportunities for integration of PANS or PANDAS training/materials within University/Initial Teacher Training (ITT) and other relevant programmes.
• Work collaboratively with the PANS PANDAS community and Youth Advisory Board (YAB) to ensure training reflects lived experience.

Trainer Recruitment & Capacity Building

• Recruit and induct additional trainers.
• Support trainer development.
• Maintain consistent quality standards.
• Deliver priority or pilot training sessions when needed to help support programme growth and maintain delivery capacity.

Strategic Programme Oversight

• Provide leadership and direction for the development and delivery of the national education training programme within the strategic framework set by the Education Lead.
• Ensure training content and delivery models align with organisational priorities and upcoming national guidance.
• Lead long-term programme planning, sustainability and continuous improvement.

Partnership Development & Sector Engagement

• Build relationships with MATs, LAs, Universities and other national relevant organisations.
• Work with the charity Communications and Engagement Officer to promote the training models across social media and education networks.
• Attend and present at education sector events and networks to raise awareness of training opportunities.

Commissioning & Income Support

• Develop commissioning packages tailored to MATs, LA’s and other relevant organisations.
• Support pricing structures.
• Identify sustainable income opportunities for the charity via the training.

Quality Assurance & Evaluation

• Oversee monitoring and evaluation processes.
• Prepare reports for the charity as required.

Operational Coordination

• Coordinate scheduling, setup and delivery logistics for all training sessions.
• Manage bookings, confirmations, resource distribution, attendance recording and data collection
• Lead regular training team meetings to support planning and quality assurance.
• Support management and storage of training assets.
• Maintain regular communication with the Education Lead.

Working Environment & Culture

• Remote and flexible working within a digitally enabled national team.
• Supportive work–life balance, flexible leave arrangements and an organisational shutdown during part of December.
• Commitment to equality, diversity and inclusion, with lived experience valued.

Skills, Knowledge & Experience

Essential

• Relevant qualifications (teaching, SEND, adult learning, training design, project management).
• Ability to set priorities and align training with national guidance.
• Experience shaping or influencing SEND practice or programme development within an education context.
• Relationship building skills within the education sector.
• Strong organisational and project management skills.
• Excellent communication skills.
• Ability to work independently and as part of a team.
• Knowledge of the UK education sector.
• Familiarity with digital learning platforms.
• Willingness to gain an in depth understanding of PANS or PANDAS.
• Ability to work sensitively and confidently with the PANS and PANDAS community, including the YAB, creating safe and inclusive spaces.

Desirable

• Degree-level education or equivalent professional experience
• Experience contributing to strategic planning within education, a charity or Local Authority.
• Experience with CPD
• Experience leading multiagency or cross sector initiatives.
• Lived experience of PANS and PANDAS

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).

Recruitment Timetable:
Deadline for initial CV interest – Wednesday 20th May
Deadline for applications – Tuesday 26th May
First stage interviews - Monday 8th, Tuesday 9th or Thursday 11th June
Final stage interviews – Friday 26th June

Harris Hill has an exciting opportunity for a Community Fundraising Consultant, to help cover an interim permanent recruitment period of 3-6 months, on a full or part time basis. 

This role is totally remote however, you may need to attend certain events around the country, with all travel and expenses paid. The pay rate is based on a salary of £66500, and can be paid either PAYE, or Umbrella. The client is looking at freelance payments, but this is still only a possibility, The pay will be weekly, and you will also receive holiday pay contributions.

Job notes:

Operating at Head of Department Level

Excellent experience in driving fundraising performance, especially across Community streams, including Sports 

Ability to hit the ground running and work autonomously in a fast-paced environment

Skillset:

Strong people leadership skills to catalyse colleague engagement and fundraising momentum

Comfortable working at pace, bringing clarity, challenge and focus

Able to balance strategic thinking with hands-on team support

Creative approach to supporter stewardship, including senior stakeholders 

Other:

Remote working

Open to parttime 

If you would like to be considered and to find out more, please apply for further information.