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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 1 day ago Apply Now
1001 Critical Days Foundation, London (Hybrid)
£60,000 - £65,000 per year
We are looking for a highly motivated proven team player to join our ambitious and fast-growing international charity.
Posted 2 weeks ago
Closing in 5 days
Save the Children, Multiple Locations (Hybrid)
£50,100 pa/€57,800 pa + generous benefits
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Closing tomorrow
The Lucy Faithfull Foundation, Epsom, Surrey (Hybrid)
£38,000 per year
Lead the charity’s digital presence, overseeing our websites, paid media, and digital projects to ensure they drive reach & engagement.
Posted 1 week ago
Every Casualty Counts, Remote
£68,200 per year FTE, dependent on experience. A London weighting may be applied if applicable.
Posted 3 days ago Apply Now
Closing in 5 days
Nottingham Trent Students' Union, Multiple Locations (On-site)
£37,820 - £40,937 per year
Posted 3 weeks ago
The Borrow Foundation, Waterlooville (Hybrid)
£60,000 - £72,000 per year depending on experience
Posted 4 days ago Apply Now
Closing in 6 days
Think Active, Multiple Locations (Hybrid)
£29,094 per year
Lead and manage relationships with partners, promoting collaboration across sectors. Raise awareness of funding opportunities.
Posted 1 week ago
Closing in 3 days
Rainforest Foundation UK, London (Hybrid)
£65,817 per year
Lead fundraising and communications for our growing global team, protecting rainforests and Indigenous rights.
Posted 1 week ago
Page 4 of 16
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.