Chief information officer jobs in Manchester

The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.

The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.

Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.

Responsible for:

Trusts and foundations:

• Identify and research trusts and foundations that would support our organisational priorities and funding needs
• Develop high quality, compelling grant applications and cases for support
• Build and maintain a healthy pipeline of funding opportunities
• Lead funder relationship management and deliver high-quality stewardship
• Lead on grant reporting, including monitoring, accountability and opportunities for reapplication
• Working closely with technology and delivery teams to build evidence-based cases for support for key projects
• Ensure clear and effective handover of successful grants to delivery teams, including reporting requirements and timelines
• Attending external events and meetings to support our fundraising strategy and learning

Major donors:

• Identify and research potential major donors whose interests and capacity align with our mission
• Cultivate new donor relationships through targeted outreach, contact mapping, networking and events
• Build and maintain a healthy pipeline of potential major donors
• Develop tailored engagement and stewardship plans approaches for each donor
• Create meaningful opportunities for donors to share insight, experience or sector knowledge and ensure this expertise is valued and acknowledged
• Lead major gift conversations and negotiations, including face-to-face meetings
• Provide high quality, personalised stewardship to major donors
• Identify opportunities to grow or repeat giving through deeper donor engagement
• Deliver exceptional stewardship to major donors

Individual giving

• Maintaining regular contact with donors and potential donors (including our volunteers and alumni) to generate donations
• Maintaining and monitoring our individual giving platforms
• Ensure all donations and supporter interactions are accurately recorded and that donors receive timely acknowledgements

Application instructions

• Submit your CV and one-page cover letter via CharityJob
• Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria for the role, with a focus on the items tested in application and clear examples (see job description for the essential criteria)
• You must answer the screening question on the application page
• Applications without a cover letter or screening question will not be considered
• Applications due: 23:30 Wednesday 27 May
• First round interviews (online): 4/5 June 2026
• Final interviews (online or in person) 10/11 June 2026

When life gets tough, good relationships help us through.

TLC: Talk, Listen, Change is a relationships charity that has supported people in the North of England for over 40 years.

Our aim to ensure everyone within our community benefits from good emotional wellbeing, and the key to this is maintaining safe, healthy, and happy relationships.

We’re entering an exciting phase of growth across the country and are looking for a Group Finance Director to join our Executive Leadership Team to contribute to the collective leadership of the TLC Group.

The Role

This role will lead the financial strategy and financial management of the TLC Group.

You will:

· Lead financial strategy to ensure sustainability and growth.

· Advise the CEO, Executive Leadership Team, and Board on financial matters.

· Oversee budgeting, forecasting, cashflow, and financial planning.

· Ensure strong governance, controls, and regulatory compliance.

· Provide clear, high-quality financial reporting and Board assurance.

· Lead audit, statutory reporting, and external auditor relationships.

· Oversee financial systems and processes to support growth.

· Lead financial due diligence for partnerships, mergers, and opportunities.

· Lead and develop the finance team, promoting accountability, and transparency.

About You

We’re looking for a values-led, people-focused leader with sound judgement and strong operational experience.

You’ll bring:

· Qualified accountant (ACCA, CIMA or equivalent).

· Significant senior finance leadership experience.

· Strong expertise in financial strategy, planning, and governance.

· Experience of Board reporting and working with senior stakeholders.

· Skilled in budgeting, forecasting, and cashflow management.

· Experience in financial modelling and supporting growth.

· Proven ability to lead and develop high performing teams.

· Strong analytical skills, including advanced excel capability.

· Able to communicate financial information clearly to non-finance audiences.

· Collaborative, values-led, and motivated by social impact.

The Offer

· Salary: £61,429 - £71,069

· 37 hours per week

· Hybrid working, with time spent at TLC Group offices (various locations across England).

· The opportunity to help lead a growing national service with strong group-level support.

If you’re motivated by using your financial expertise to drive meaningful social impact, and want to play a key role in shaping the future of a growing, values-led organisation, we’d love to hear from you.

Application Deadline:

The deadline for applications is Thursday 14th May 2026

Interviews expected in Manchester on Tuesday 2nd June 2026

What does it take to lead the national voice for special schools at a time of real change?

Chief Executive Officer (CEO) – National Association of Special Schools (NASS)

National – home-based, with regular travel across England and Wales, particularly London

£90,000–£110,000 per annum

Full-time, permanent.

About NASS 

The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.

We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.

This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.

As our next Chief Executive, you will:

• Strategy & Impact: Lead NASS through a period of policy and structural change, ensuring the organisation remains clear on purpose, responsive to members and influential in the SEND landscape.
• Governance & Finance: Work closely with the Board of Trustees to provide strong governance, prudent financial stewardship, robust risk management and clear strategic oversight.
• Operational Leadership: Provide confident leadership to a small, remote team, strengthening collaboration, accountability, resilience and a positive, high-trust culture.
• Income Generation: Oversee budgeting, planning and reporting while developing thoughtful opportunities to diversify income through membership, partnerships, events and related activity.
• Community & Partnerships: Build and sustain trusted relationships with government, parliament, regulators, sector bodies and member schools, ensuring NASS remains relevant and well connected.
• Member Services: Protect and enhance the practical offer to members, from briefings and special interest groups to conferences, webinars, training and peer-to-peer learning.
• Brand & Profile: Act as a credible public ambassador for NASS, helping to modernise communications and broaden the organisation’s voice beyond a founder-shaped model.
• Future Growth: Shape a distributed leadership profile and support a more varied, accessible and engaging approach to membership, advocacy and communications.
• A seasoned senior leader with experience in a charity, membership body, education or public sector setting, and a clear track record of leading through change.
• A strong strategic thinker, able to absorb complex information quickly and translate it into clear, practical direction.
• A confident communicator with the gravitas to represent NASS with members, staff, trustees, MPs, peers, media and national partners.
• A politically astute relationship-builder, comfortable navigating a complex and fast-moving external environment.
• Experienced in governance, with a sound understanding of working with boards or trustees and supporting effective decision-making.
• Numerate and commercially minded, with experience of budgets, financial planning, income generation or partnership development.
• Credible, approachable and resilient, with the emotional intelligence to lead well in a high-profile, remote and sometimes uncertain context.
• Direct SEND experience would be a significant advantage, alongside understanding of specialist education or similarly complex stakeholder environments.

Why NASS?

• This is a chance to lead a respected, member-led organisation with a strong national reputation and a clear public purpose.
• You will help shape the future of specialist education at a time when SEND reform is high on the agenda.
• NASS has a loyal, experienced and collegiate remote staff team, supported by an active Board of Trustees.
• The organisation offers a genuinely influential platform, with strong connections across the sector and with government.

Application

For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.

Closing date for applications: 9am, Monday 8th June 2026

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

Combine your financial expertise with real-world impact by joining Parkinson’s Europe (PE) as our Senior Finance Manager. We’re seeking a proactive professional with heart and passion to safeguard our financial health and empower the Parkinson’s community across Europe, offering a role with significant autonomy and clear room for professional growth within our evolving organisation.

Job specification

Location: Remote working (but note that occasional travel – to attend quarterly team meetings in the UK and other ad hoc meetings/conferences – is required)

Salary: £17,200 – £20,000 per annum, dependent on experience (£43,000 – £50,000 FTE).

Annual leave: 13.5 days per annum (inclusive of pro-rata statutory bank holidays, based on a full-time equivalent of 25 days). 

Contract: This is a permanent, employed role

Responsible to: Director General

Collaboration with: Operations Director and Partnerships Director, plus the wider team

Job description

Main purpose of role

To oversee the charity’s financial management, ensuring accurate reporting, effective budgeting and robust controls. The Senior Finance Manager provides insight to support strategic decision-making, maintains compliance with statutory and regulatory requirements, and manages day-to-day finance operations to safeguard the organisation’s financial health.

In addition, as part of a small team, the Senior Finance Manager provides light-touch HR support to assist with processes – such as appraisals, payroll and staff records — helping to ensure smooth operations in the absence of a dedicated HR function.

Key tasks – finance

• Ensure accurate recording of information of various funding (industry, donations, memberships etc), spending, banking 

• Manual bookkeeping and liaising with Accountants in the UK and in Belgium to ensure data is uploaded correctly to Sage (or similar software) 

• Monthly month end checks on Sage and accurate nominal coding, working with PE’s appointed accountants 

• Raise invoices and credit control

• Accounts payable & expenses process including employee and freelance pay

• Managing all aspects regarding employee pay – working with PE’s appointed payroll agent, pension provider and insurance broker

• Year-end work – including checks and liaising with PE’s appointed accountants

• Charity Commission – completion of annual return

• Donations – check and manage paypal and other donation platforms accordingly

• Management of all PE bank accounts and all aspects regarding bank matters – i.e unknown payments, bank applications for new card holders, transaction queries etc

• Financial reviews with Director General and Operations Director, and to provide accurate information in regards to forecasting, funding, spending, general P&L and other financial matters

• Perform monthly cash-flow forecasting to ensure the 4-month reserve policy is maintained at all times

• Annual budgeting

• Liaising with Treasurer, dealing with any queries he/she may have; assist with AGM reporting 

• Join Board/AGM meetings as required, and deal with any finance-related queries the Board members may have

• Keeping abreast of UK national regulatory and budgetary developments

Key tasks – HR and other

• Support and liaise with the Operations Director and Partnerships Director with all treatment industry/funding agreements 

• Maintain the organisation’s Contract Register, ensuring all agreements (i.e., treatment iindustry partnerships) are tracked for payment milestones

• Keeping and maintaining employee/freelance agreements up to date 

• Holiday and sickness tracking

• Liaise and support the Operations Director with regards to various policies (i.e expenses, bereavement)

• Supporting the Director General and Operations Director with the appraisal process

Person specification

Essential skills and experience

• Minimum five years’ professional experience in an accounting or finance role, supported by a relevant accounting qualification or significant demonstrable experience. Prior experience within the charity or not-for-profit sector is highly desirable. Experience or comfort managing cross-border EU-UK financial complexities is a plus.

• Experience of preparing management accounts, budgets, forecasts and year-end reporting

• An understanding of charity finance requirements (e.g. charity accounting, Charity Commission obligations)

• Proficiency in accounting software (Sage or similar) and MS Office (especially Excel) 

• Experience of basic HR processes (e.g. recruitment, contracts, record-keeping, employee/er taxes and pension obligations)

• Understanding of payroll administration 

• Ability to interpret and explain financial information to non-finance colleagues and Board directors

• Strong organisational skills with the ability to manage multiple priorities

• High level of accuracy, attention to detail and integrity

• Excellent communication and interpersonal skills, with a collaborative approach

Personal qualities

• Commitment to the values and mission of the charity

• A proactive, hands-on approach suited to a small organisation

• Ability to work independently and take initiative

• Flexibility and willingness to adapt to changing needs

• Discretion and respect for confidentiality

Application process 

To apply for this role, please submit your CV and a cover letter outlining your suitability via the CharityJob portal. The deadline is officially 27 May; however, please note that applications will be reviewed on a rolling basis, and we reserve the right to begin the interview process or close the vacancy early if a suitable candidate is found. Therefore, early applications are strongly encouraged.

Parkinson's Europe is an inclusive employer committed to diversity, equity and inclusion. We use an anonymous recruitment process to prevent unconscious bias, and welcome applications from all qualified candidates, regardless of age, disability, gender identity or expression, race, religion, sexual orientation, or any other characteristic. We believe that a diverse team enriches our work and strengthens our ability to serve the entire Parkinson's community across Europe. Please let us know if you have any accessibility requirements we can provide to support you during the application process. 

We are looking for an all-round Communications Manager to join our small team.  You'll be able to build on your existing experience with some exciting upcoming projects that will have direct impact on the head and neck cancer community – as well as generating awareness across the general public.  We have a unique opportunity to develop our organisation to create maximum impact for head and neck cancer patients and their families while staying true to our origins.  There’s a lot of work to do.

Main responsibilities and duties:

• Contribute to a PR and communications strategy in conjunction with our Executive Director.
• Produce and rollout a new brand identity for the organisation.
• Manage and develop a new organisation website.
• Maximise media opportunities by identifying news angles and producing stong stories.
• Produce high quality materials – written, digital and visual – to promote the organisation and engage audiences to action.
• Use case studies and impact to develop our storytelling and create compelling copy to encourage financial support.
• Oversee literature production to support head and neck cancer patients and their families through their experience and work towards PIFtick accreditation.
• Co-ordinate production of a quarterly e-newsletter to keep our supporters informed of charity developments and that of the wider head and neck community.
• Regularly update our website to ensure all information is current and fit for purpose.
• Design and implement a social media plan to increase awareness of the charity and its activities.
• Produce monthly reports to track engagement and use these to improve our reach.
• Create campaigns to support our work in HPV awareness in line with the government’s target to increase vaccine take up.
• Identify opportunities to promote the organisation to those diagnosed with head and neck cancer and their families.
• Work with the Fundraising Manager, develop compelling fundraising campaigns that will appeal to the wider general public as well as our existing stakeholders.
• Liaise with the Executive Director to represent head and neck cancer patients with policymakers and raise awareness of the unique issues that affect this group.
• Act as the organisation’s spokesperson when required.
• Ensure that the charity meets all GDPR and data handling responsibilities in line with UK law.

Lead Pure Insight into its next chapter as Chief Executive, building on a strong foundation to grow impact for care-experienced young people across the North West.

Applications close at 9 a.m. Tuesday 2nd June.

Location: Hybrid, primarily remote with regular travel across Greater Manchester

About the organisation

Pure Insight is a charity dedicated to supporting young people leaving care to build positive, fulfilling and connected lives. Founded and shaped by people with lived experience, the charity understands the realities many care-experienced young people face and provides long-term, trauma-informed support that helps them feel valued, supported and not alone.

At the heart of Pure Insight is a belief in belonging, long-term support and community. The charity is ambitious for the future and is looking for a CEO who can help shape that future with care, clarity and courage.

About the role

This is a rare opportunity to follow a long-standing founder CEO and build on a strong reputation, a committed team and a distinctive model of support for care-experienced young people.

The new CEO will need to combine strategic leadership with operational grip. They will need the judgement to lead a complex, emotionally sensitive charity and bring the credibility to build relationships across the care sector.

The successful candidate will lead the next phase of organisational development, with a particular focus on sustainable growth, quality of service delivery and financial resilience.

Reporting to the Chair and working closely with the Board, this is a hands-on role, balancing vision with delivery.

Who we are looking for

We are looking for a leader who is motivated to make a meaningful difference, bringing both compassion and sound judgement to a complex leadership role.

You may already be a CEO or stepping into your first chief executive role.

You will have:

• Senior leadership experience in a charity or mission-driven organisation
• Financial and income generation experience
• Strong relationship-building skills
• Understanding of trauma-informed practice

Applications for this role close at 9 a.m. Tuesday 2nd June

For further information about the role and to register your interest, please visit the Peridot Partners page and contact our advising consultants.

Our Room is a values-driven, creative support community working with male, trans and non-binary people who do sex work: an often-hidden population experiencing some of the highest levels of homelessness, trauma, poor mental health and social exclusion in Manchester. For twenty years, we have been a trusted, specialist service providing intensive advocacy alongside creative, developmental programmes that help participants stabilise their lives and imagine new futures.

As a Manchester-based organisation, we are the only organisation in the UK whose core mission is to support male, trans and non-binary people who do sex work. We believe that everyone who sex works deserves dignity, respect and safety.

We are seeking someone who can bring together clear strategic thinking and hands-on-leadership to inspire our staff team and represent the charity externally across key sectors and partnerships. This is an opportunity to lead a unique and vital organisation supporting male, trans and non-binary people who sex work.

The CEO acts as the primary external ambassador for the organisation, maintaining partnerships across housing and homelessness, sex work and VCSE sectors. The role is responsible for establishing our inclusive, values-led culture and is accountable for ensuring the charity delivers impact for male, trans and non-binary people who sex work. 

Transport for All has a strong reputation for leading the debate and advocating for change to improve the journeys made by disabled people. This role presents an opportunity for a strong leader with the commitment, enthusiasm and expertise to build on our success.

Our Chief Executive will be responsible for continuing to delivering the remainder of our 5-year strategy, whilst horizon-scanning to work with the team and wider DPO community to engage in the opportunities and changes ahead. We’re a small team and this is a wide-ranging role which includes:

• Representing the voice of the 16 million+ people in the disabled community by influencing policy and infrastructure decision-makers through our campaigns.

• Overseeing a highly regarded policy and public affairs function with associated communications and stakeholder engagement, maintaining our high profile and reputation with national and local governments.

• Ensuring the charity’s funding is robust and sustainable, looking at how we can diversify our income and direct it towards what matters through continuing to deliver our strategy and planning for our future.

• Overall responsibility for our successful training, research and consultancy business, building partnerships and further growth. This includes the National Accessible Transport Survey.

• Championing our award-winning support services for disabled people.

• Leading our expert teams through a period of growth and consolidation, embedding a strong organisational culture and matching our structure and systems to our upcoming challenges and increasing size.

You will report to and be supported by a well-functioning and committed Board of Trustees who are professionals with experience of working in the charity and transport sectors, as well as finance, legal and government backgrounds.

Release Counselling and Therapy for Women is entering an exciting new chapter. 

Founded in Brighton and Hove in 2013, Release has grown from a small local charity into a financially robust organisation with a growing national reach. Under the leadership of our outgoing CEO, the charity has been transformed—moving from a challenging financial position to one with strong reserves, clear sustainability, and ambitious plans for growth. 

We now provide affordable 1:1 online counselling to women across the UK, alongside specialist group programmes supporting maternal mental health and key life transitions. One-to-one counselling is a core offer and a vital income stream, enabling us to extend our reach while staying true to our values. 

This period has also seen Release grow to working with over 20 dedicated volunteer counsellors, strengthening our capacity and community impact. 

As our CEO steps down, Release is ready for its next phase—building on strong foundations, amplifying our national impact, and remaining firmly rooted in our purpose: being a charity that supports women’s mental health, run by women, for women.

Harris Hill is delighted to be supporting the recruitment of a Lawyer (UK Financial Sector Focus) on behalf of the Commonwealth Climate and Law Initiative (CCLI). CCLI is a UK charity working at the intersection of law, finance and sustainability, with a global reputation for producing rigorous legal analysis that helps clarify how existing legal frameworks apply to climate and nature-related financial risks. This newly created role will play a key part in shaping CCLI’s expanding programme of work on investor fiduciary duties across the UK financial sector.

The postholder will lead the development and delivery of CCLI’s UK investor fiduciary workstream, initially focusing on the insurance, pensions and banking sectors. This will involve scoping and commissioning authoritative legal analysis from leading commercial law firms and academics, translating complex legal findings into practical guidance for boards, trustees and their advisers, and tracking relevant regulatory and disclosure developments across the financial services landscape. The role involves building and maintaining relationships with a wide range of stakeholders, including institutional investors, regulators, professional bodies, and the legal community, as well as representing CCLI at conferences, roundtables and other external forums. Working closely with the Executive Director within a small and collaborative team, the successful candidate will also contribute to communications, strategic development and fundraising activity.

We are looking for a qualified solicitor or barrister in England and Wales with strong expertise in financial services law, ideally in insurance, banking, or pensions. Candidates should be able to demonstrate clear engagement with climate change or environmental sustainability, whether through their professional work, research, writing, pro bono activity, or other initiatives that connect legal practice with climate- and nature-related financial risks. To be successful, you need to bring a deep understanding of how financial institutions are structured and regulated, alongside a demonstrable commitment to addressing climate and nature-related financial risks through legal and governance frameworks. You will be a confident communicator, confident and effective in public speaking, with the ability to represent the organisation at conferences, roundtables and stakeholder events, and to communicate complex legal ideas clearly to diverse audiences. This role would suit a self-starter who is comfortable working with a high degree of ownership in a small, purpose-driven organisation and who is motivated by the opportunity to apply their legal expertise to drive meaningful change.

To apply, please submit your up-to-date CV by 24 May at 23:59 AM. Shortlisted candidates will then be asked to provide a tailored cover letter.

Please note, only successful applicants will be contacted with further information.

As a leading charity recruitment specialist and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

The Katie Piper Foundation is seeking an experienced Finance and Business Manager to join our small, dedicated team in this newly created role, central to supporting our growth over the next three years.

You will lead all aspects of financial management, working closely with the CEO on budgeting, planning, and resource allocation. Responsibilities include overseeing day-to-day finances, producing management accounts, reporting to the Board, and ensuring strong financial controls and compliance.

In addition, you will help strengthen the charity’s wider operations, improving systems across IT, data, and reporting, as well as supporting risk management, policy development and measuring and communicating our impact.

This will be varied and evolvingrole suited to someone confident working across both strategic and operational areas, and comfortable driving organisational improvement.

We are a fully remote team. The role is home-based and part-time (28 hours a week, FTE 35 hours), and we are open to flexible working arrangements.

We are looking for a proactive professional with strong financial expertise and a broader business mindset. If you are ready to take on a pivotal role in a small team supporting a life-changing cause, we would love to hear from you.

To learn more about the role and how to apply, please view the full job pack here:
https://lnkd.in/dXjWSVwV

Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.

Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.

Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.

At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.

As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.

This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.

If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.

Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).

About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June. 

Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.

We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.

Job Summary

As the Senior Public Affairs and Campaigns Officer, and with the support of the Senior Public Affairs and Campaigns Manager you will be responsible for the development, implementation and monitoring of public affairs and campaigns activity in order to achieve real change through influencing policy and legislation on health services which impact the lives of people affected by bowel cancer in England, with a particular focus on Westminster.

Safeguarding

Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.

Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.