Lived experience jobs

Hybrid working with regular travel to our London Bridge Office and to events (around the London and Midlands area)

What the job involves

We’re looking for a Black Health Equity Engagement Officer to join our Black Health Equity and Engagement team. The team plays a key role in supporting our community engagement work by building trust and strengthening relationships with Black community organisations and leaders across the UK. The aim is to raise awareness of prostate cancer risk within Black communities and help reduce the health inequalities experienced by Black men.

As a Black Health Equity Engagement Officer, you’ll be providing the logistical support to Prostate Cancer UK’s Black Men’s Advisory Group - who provide insights, support and guidance to the charity to help us address Black health equity. You’ll attend a wide range of community events and identify ways to spread awareness and build trusting relationships with groups, organisations and networks.

By building an understanding of the ways which health inequalities impact Black men affected by prostate cancer (and their families) you’ll establish effective and efficient working practices and gather data capturing the impact of this work.

You’ll get to meet a wide range of supporters and work with Black communities to ensure their lived experiences shape our work and help to increase our number of Black volunteers to increase awareness. You’ll also get to work with different teams across the charity and act as a source of knowledge for our work in tackling health inequalities. 

What we want from you

We’re looking for candidates who understand health inequalities and is able to explain how they may impact Black men affected by prostate cancer. Knowledge of, or previous involvement in health awareness initiatives would be beneficial for this role, although we also value transferable skills gained from other sectors.

You’ll have experience in organising meetings or events that cater to a diverse range of participants, ensuring that various perspectives are heard and valued, especially within Black communities. 

You’ll have a proven ability to build and maintain trusting relationships with a wide array of stakeholders. Furthermore, you’ll be a great communicator, especially when engaging with community stakeholders.

Please note that community events often take place on evenings or weekends – the successful candidate will need to work flexibly to attend roughly one weekend event a month and take time back mid-week. Community awareness events will take place in the Midlands and London.

Why work with us?
Every man needs to know about the most common cancer in men – prostate cancer. It’s a real and present danger that takes over 12,000 of our dads, grandads, brothers and friends each year.

Prostate Cancer UK is the largest men’s health charity in the UK. We have a simple ambition – to stop prostate cancer damaging lives. We invest millions in research to revolutionise testing, treatment and care. We’re blazing a trail to a screening programme that could save thousands of lives with regular, accurate tests for all men at risk. And we work tirelessly to spread the word about risk and offer specialist support to people living with the disease.

Work with us and you’ll see your efforts pay off as we give men and their families the power to navigate prostate cancer.

Our commitment to equity, diversity and inclusion

At Prostate Cancer UK we’re committed to righting health inequalities across the UK, starting with those faced by Black men. This includes ground-breaking research into Black men's risk and working with communities directly to overcome barriers to the diagnosis and treatment of prostate cancer. To make this happen, we're dedicated to being an inclusive, proactive organisation, as we strive to be Allies to Black communities. We’ll achieve this by advocating and working alongside those communities to promote change. We're also working to be Allies to each other, not only protected groups. In 2024, we launched our New Allyship Training Programme. All colleagues at Prostate Cancer UK will be trained to act and identify as an Ally.

We've also signed Business in the Communities Race at Work Charter, as a dedication to our Black health equity work and wider EDI priorities. As a signatory, we're responsible and accountable for driving positive change.

Ways of working

Our hybrid working approach combines the best of flexible working – a positive work/life balance, inclusive and accessible platforms, and online information at our fingertips.

Next steps
More information on what we offer, as well as the role, can be found on our vacancies page. Please download our job profile document (job description) with our ‘How to apply’ section sharing the key points to refer to in your application and to apply

Job Description

Brent Mencap has been passionate about a healthier and fairer Brent since 1979. We’ve developed and run successful housing, employment, health, advice, wellbeing and self-advocacy services. During austerity and Covid we diversified, successfully taking on NHS work with people with long-term health conditions. We provide social prescribing support and health and wellbeing coaching to patients for Brent GPs. In 2024-5 we helped over 18000 people. We’re a leading partner on the Brent Health Educators Programme. Recently we’ve focused on developing and retaining a much larger staff group, using our data better and improving our marketing.

Brent Mencap offers fantastic free creative and wellbeing activities for people with a learning disability, autism and long-term health conditions. These have flourished since Covid. People love yoga, poetry, singing, gardening, Breathe and Move, self-advocacy, campaigning, awareness raising, CREATE art activities for young people, external trips and parties. Small grants, donations and our reserves fund this while we get longer term funding. Our self-advocates want us to focus on paid employment, youth services and making Brent Council use accessible information properly. People with a learning disability, neurodiversity and their family carers are inclusively supported by social prescribers for advice and by health educators/coaches for health-related matters if needed.

Our current Executive Director, who has led Brent Mencap so well for 25 years wants to retire. The successful candidate will build on Brent Mencap’s history, current success and potential so our long-term passion for a healthier and fairer Brent can evolve and improve the lives of Brent People. Are you the amazing successor to lead and inspire our talented, committed team?

We are looking for someone who  

· Has the relevant voluntary sector experience, vision, determination and leadership skills

· Is committed to developing and supporting our diverse staff group

· Can see the bigger picture but also focuses on the important details

· Supports our ethos of person-centred service delivery and activities

· Can communicate well with users, partners, staff, trustees and funders

· Enjoys influencing and raising awareness

· Is entrepreneurial, savvy, confident and can maintain our current  financial stability and diversify our income streams

· Understands the lived experience of disability, long term health conditions and inequality  and wants to improve their lives

· Understands the importance of marketing and data to challenge inequality, promote positive change and attract new funds.

· Can prioritise reviewing and improving our data collection

· Can develop funding project plans that includes staffing for enhanced  wellbeing and creative activities, for  young people, employment  related support and other identified needs

In addition, they will have to:

· Work with the Board of Trustees and staff to develop our vision, implement strategic plans and  deliver agreed objectives

· Be able to ensure all aspects of our work are done safely, legally, in line with our articles/constitution  and able to assess risks and mitigate them

· Be responsible for staff development, management and all aspects of the administration of the organisation

· Be an ambassador for Brent Mencap, meeting and working with leaders with statutory and voluntary sector, Royal Mencap and local Mencaps

· Represent the lived experiences and voices of people with learning disabilities, neurodivergence, long term conditions and their families who inform our work and the work of others in Brent

· Work late occasionally, attend evening events, meetings and occasional weekends and undertake any other necessary tasks as required to ensure Brent Mencap functions safely.

In order to deliver services effectively, a degree of flexibility is required and the post holder may be required to perform work not specifically referred to above. This job description will be subjected to review with the post holder, from time to time to ensure it accurately reflects the duties and range of the post.

This post is:

• subject to Enhanced DBS Disclosure

• subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975. It will be necessary for a disclosure to be made to the Disclosure and barring Service for details of any previous criminal convictions.

• Candidates must be eligible to live and work in the UK

• Please note: Our office base is on the first floor of a Victorian building with steep stairs.

To be shortlisted,

· Candidates must fully complete our application form, and show clearly how their previous experience and knowledge meets all aspects of the person specification with examples given of actual actions/experience relating to the person specification. Please go to our website to complete the application by 9.00am on 28th August. We do not accept CVs

· Be prepared to visit Brent Mencap so key staff and self-advocates can meet them informally before the interview day  or have a 60–90-minute Teams meeting with them. To arrange a face-to-face or Teams  meet up on a Wednesday only  please contact our office manager Simon via the website.

Interview details

· A 4-part Interview with senior staff, self-advocates, operational managers and trustees, will take place at Brent Mencap on Friday 5th or 12th September 2025. Shortlisted candidates will be given a paper-based scenario to complete and send to us on the Thursday before the interview

· We anticipate the full interviews will take 2.5 hours with a 30-minute break at some point.

Could you be PLP’s new Senior Research Fellow and support our work improving access to justice for all?

  At Public Law Project (PLP), we work to champion fundamental rights and hold power to account. Our legal challenges have played a pivotal role in successful cases. In just the last year this includes:   

• The fight against the Rwanda deportation policy  
• The Government’s attempts to renege on Windrush commitments   
• Attempts to radically cut disability benefits to 100,000 people without lawful consultation   
• Intervention in the challenge against draconian and unconstitutional anti protest laws 

Our work is highly respected, impactful, and deeply valued across the legal and social justice sectors.

The Role

This Senior Research Fellow post offers the opportunity to join our team of researchers working to achieve PLP’s strategic objectives. This role will focus on ensuring that justice is accessible to all.

As a Senior Research Fellow, you will help us shape and deliver our research agenda. With support from PLP’s Research Director and colleagues across the organisation, you will develop and lead high-quality research. Your work will be central to our efforts to design and advance a fair and inclusive administrative law justice system and advocate for a better resourced and more effective system.

You will be a team player, who embodies PLP’s values and supports collegiate and inclusive working culture. Working closely with colleagues in casework, public affairs, communications, events and fundraising, you will bring a deep commitment to using research as a lever for change. You will use your expertise to represent PLP externally, collaborate effectively with external partners including people with lived experience and help advance our strategic priorities.

This is envisaged as a full-time role but we will consider part time arrangements for the right person.

As part of our commitment to recruit fairly we use anonymised-selection processes until interview, offer additional interview opportunities to the highest-scoring candidates from under-represented communities, and use ‘tie-breaker’ provisions at all stages of our selection process.

Head of Rough Sleeping Services 

About The Connection at St Martin’s 

We believe that no one should have to sleep rough, and that everyone should get the support they need to find a place to call home. We get to know every person we work with, understanding what they need to recover, helping them build on their strengths, and supporting them to find their own way home. Help us make London a city where no one sleeps rough on our streets. 

London’s diversity is its biggest asset and we strive to ensure our workforce reflects London’s diversity at all levels. We welcome applications from everyone regardless of age, gender, gender identity, gender expression, ethnicity, sexual orientation, faith or disability. 

We particularly encourage applications from candidates with lived experience of homelessness who we believe are an essential asset in our sector. 

No candidate will meet every single desired qualification. If your experience looks a little different from what we've identified and you think you can bring value to the role, we'd love to learn more about you! We are committed to being an inclusive employer and welcome the opportunity to consider flexible working arrangements.

About the Role 

The Head of Rough Sleeping Services will lead our services in our centre based at 12 Adelaide Street. The core purpose of these services is to minimise the harm associated with rough sleeping and support people into treatment and accommodation options. This will include Centre Services, our Community, Street Engagement and case work teams. You will also lead the delivery of any short-term emergency accommodation including SWEP and hotel provision.    

This opportunity comes at a particularly exciting time as the Connection looks to ambitiously develop our work at Adeliade Street into a hub of harm reduction and health inclusion for people rough sleeping in Westminster. As the Head of Rough Sleeping Services, you will lead the exciting strategic and operational work to deliver this, and have the chance to be part of a centre that aims to be a nationally recognised example of innovative practice.   

The role requires someone with a strong track record in service delivery with people who have complex needs. They must have experience of trauma informed care and similar associated practice.  Alongside ensuring high quality service delivery, they must have experience of developing new approaches, building relationships with statutory services and working with fundraising specialists to secure resources. The Head of Rough Sleeping Services will be a well organised and focused manager who uses coaching techniques to develop their team. Finally, they must be a positive role model with the personal credibility to build confidence in the charity both internally and externally. 

Salary: £51,939 
Closing Date: 10/08/25 
First Interview Dates: 18/08/25-19/08/25 

Second Interview Dates: 21/08/25-22/08/25 

Our Benefits 

• 30 days holiday plus bank holidays 

• Generous training budget, plus an annual personal training budget 

• Enhanced Sick Pay Policy 

• Enhanced family friendly policies 

• Day off for moving house 

• Hybrid working (depending on role requirements) 

• Pension – 5% Employer, 3% Employee 

• Cycle to Work Scheme 

• Season Ticket Loan 

We are a London Living Wage employer 

About the role:

When a family member sustains a spinal cord injury it is a life changing experience for the whole family. They can feel very isolated and that no one understands what they’re going through.

Back Up’s Family Support Service is there to help. We enable a wide range of family members of all ages whose loved one is affected by spinal cord injury (SCI) to improve their wellbeing, build a support network and transform their lives through Back Up’s services. 

The Family Support Coordinator will assist in supporting family members on an individual basis as well as in group settings as appropriate, together with providing support in the process of identifying, recruiting and training new family support volunteers.

A Family Support Coordinator will be comfortable and efficient with data management and GDPR compliance.

Lived experience of having a relative with SCI is essential, together with sharing our commitment to transform the lives of everyone affected by spinal cord injury.

For full details please see our role description.

 

About us:

At Back Up, we have big ambitions. Over the next few years, we’re going to be transforming the lives of even more people affected by spinal cord injury.

Together we’ll be working hard to make sure everyone affected by spinal cord injury has access to the support they deserve; and we are the only spinal cord injury charity in the UK providing specific services to children and young people.

At Back Up, inclusion is at the heart of everything we do. Please read our Equality, Diversity and Inclusion Policy Statement. We are committed to creating an inclusive working environment where all our employees are encouraged to reach their full potential, and individual differences are valued and respected. We particularly welcome applications from those from black, Asian or ethnic minority backgrounds or those with higher level spinal cord injuries.

In 2024 Back Up won The Times and The Sunday Times Spotlight Award for Best place to work for disabled employees. As well as this, Back Up has been voted one of the top ten charities to work for (Third Sector Best Charities 2020). The enthusiastic, inclusive and supportive spirit of our very skilled staff ensure excellence in the services we deliver.c

About Blagrave

We are a social justice funder committed to shifting power, dismantling oppression, and supporting communities to thrive. We fund organisations and young people creating change, with a strong focus on lived experience, anti-oppression, and systems change.

We are committed to centering the voices of those we seek to serve. Our board and staff team have relevant lived and learnt experiences to help us fulfil our mission. We listen to the communities we seek to serve both directly and broadly to have as accurate of an understanding as possible about the issues that they are facing. 

As we come to the end of our current strategy cycle we are ambitious to explore how we can put our full asset base to work in support of mission and we have some exciting plans unfolding. This new role will be instrumental in ensuring collaboration is at the heart of our next strategy, with our funder peers, young people, the youth sector and local government.

We fund work in England, as well as having a specific focus on several counties in the South East of England. 
 

About you  

You believe in the power of young people to lead change and are passionate about social justice. You’re a natural relationship-builder with experience working across public, private and voluntary sectors, confident engaging at both national and local levels. You understand how to develop partnerships that are equitable, transformational, and that centre the voices and needs of young people. You have a track record in bringing in substantial partnerships in service to organisational goals.

You bring strong problem-solving skills and experience managing people. You’ve worked in, or alongside, organisations going through growth or transition and thrive in complexity. You care deeply about genuine partnerships and have a track record of working collaboratively to build collective power and challenge injustice.

We welcome candidates from all backgrounds and are especially keen to hear from people who can help diversify the voices shaping philanthropic work. We are committed to creating an equitable environment where everyone can thrive.

Purpose of the Role

This exciting new role is about creating connections, building ecosystems and developing and strengthening relationships that power social justice movements. As a member of the Senior Management Team, you will work closely with the CEO to lead our partnerships and community engagement work — creating the enabling conditions and networks that help youth-led movements grow, sustain, and make lasting change.

You will take lead on:

• Partnering with other funders to resource youth-led change, including co-designed and co-held programmes with other foundations.
• Developing community partnerships based on the needs and priorities of the young people we are here to serve - including charities, local businesses, and local authorities.
• Understanding the landscape of youth-led change and social justice work, identifying gaps in support and guiding our investment to help fill them, both at the national and local level.
• Monitoring and communicating the impact of our work with external audiences.
• Ensuring our work is grounded in safeguarding practices that minimise harm and uphold our commitment to care, equity and justice.

Success in this role looks like:

· A stronger Blagrave presence and impact at a local level.

· Growing networks of trust and solidarity across youth-led social justice movements, nationally and locally.

· Greater capacity, visibility, and long-term sustainability for youth-led organisations.

· Strengthened support for collective action and systems change.

· Young people and communities feeling ownership of, and connection to, the work.

Join Portraits of Recovery (PORe) as Operations and Finance Manager and Drive Social Change with Art

Portraits of Recovery (PORe) is a pioneering visual arts charity based in Manchester and is the UK’s only visual arts charity inspiring and supporting people affected by and in recovery from substance use. Dedicated to fostering inclusion and systemic change for individuals and communities in recovery from substance use.

Through the transformative power of contemporary visual art, we collaborate with leading artists and Recoverists to challenge stigma, open new conversations about addiction and recovery, and empower marginalised communities. As the UK’s only contemporary visual arts organisation working within this field, we are committed to ensuring that recovery is recognised as a health, social, and cultural issue, driving change through creativity and engagement.

As Operations and Finance Manager, you will play a critical leadership role in shaping PORe’s future, ensuring our long-term sustainability, and driving impactful organisational development. You will work closely with the Director & CEO to enhance our operations, administration, and financial management while leading a small team to support the delivery of our Business Plan. This position offers a unique opportunity to shape strategic business processes, support PORe’s artistic programming, and play an integral role in our fundraising efforts. If you’re passionate about activism and believe in the power of art to change lives, we invite you to be part of this transformative movement.

You’ll be looking after a small team, and the administrative, and financial aspects of the organisation. You’ll also be inputting into funding bids, helping with data collection, and coming up with creative income generating opportunities to help us grow. As a small company, this role would be perfect for someone ambitious, looking to help shape and grow our organisation even further.

Key Responsibilities:

• Support the Director & CEO in strategic, financial, and organisational development.
• Play a senior management role, overseeing operations, administration, financial processes, and governance.
• Manage and support a small team to effectively deliver PORe’s Business Plan.
• Ensure efficient business activities, including HR and data collection processes.
• Oversee financial management, including budget control, reporting, and compliance.
• Support delivery of public programming and contribute to project development.
• Collaborate on fundraising initiatives, including bid writing.
• Represent PORe in meetings with funders, stakeholders, and key partners.
• Manage organisational governance, including trustee meetings and board development.
• Lead risk management, policy updates, safeguarding, health & safety, and diversity initiatives.
• Oversee IT systems, digital security, and business continuity planning.
• Drive internal communication, staff recruitment, training, and performance reviews.
• Ensure compliance with charity and company law, funding agreements, and legal obligations.

At PORe, we value diversity and inclusivity. We actively encourage applications from individuals of all backgrounds, including those with lived experience of recovery. If you meet even half of the requirements, we strongly encourage you to apply. Your unique perspective and skills could contribute significantly to our mission.

We are committed to promoting equality, diversity, and inclusion in our recruitment process. We seek to build a team that reflects the communities we serve, ensuring a welcoming and supportive environment for all. Applications will be reviewed on an ongoing basis, and we encourage early submissions. Join us in shaping a future where art and recovery intersect to create lasting impact.

• Application deadline: Friday, 15 August
• Interview notification: Friday, 22 August
• Planned interview date: Monday, 1 September
• Planned start date (subject to satisfactory references): TBC 

Be part of a movement to ensure no one faces pulmonary fibrosis alone.

Action for Pulmonary Fibrosis (APF) is the leading UK charity supporting people affected by pulmonary fibrosis – a serious, life-limiting lung condition. We’re growing fast, guided by an ambitious five-year strategy and a clear vision: a future where everyone with PF has access to the care, support and hope they deserve.

We’re now seeking a Director of Support and Services to join our Senior Leadership Team and lead all our beneficiary-facing activity. This pivotal role will shape and oversee the development and delivery of APF’s national services – including our information resources, support line, education programme, volunteer network, and engagement with over 80 local support groups. You’ll also establish a new Clinical Delivery and Health Partnerships function to improve integration with NHS care and champion equitable support across the UK.

You’ll bring strong leadership, deep experience in health or social care, and a clear commitment to quality, safeguarding, and lived experience. You’ll be an inclusive, values-driven leader who can build partnerships, lead strategic change, and deliver measurable impact.

If you’re passionate about helping people with serious illness live well for longer – and want to be part of a dynamic charity making change happen – we’d love to hear from you.

Closing date: 25 August 2025
First interviews (virtual): 5 September 2025
Second interviews (in person): 12 September 2025 (Peterborough)

About the role:

When a family member sustains a spinal cord injury it is a life changing experience for the whole family. They can feel very isolated and that no one understands what they’re going through.

Back Up’s Family Support Service is there to help. We enable a wide range of family members of all ages whose loved one is affected by spinal cord injury (SCI) to improve their wellbeing, build a support network and transform their lives through Back Up’s services. 

The Family Support Coordinator will assist in supporting family members on an individual basis as well as in group settings as appropriate, together with providing support in the process of identifying, recruiting and training new family support volunteers.

A Family Support Coordinator will be comfortable and efficient with data management and GDPR compliance.

Lived experience of having a relative with SCI is essential, together with sharing our commitment to transform the lives of everyone affected by spinal cord injury.

For full details please see our role description.

 

About us:

At Back Up, we have big ambitions. Over the next few years, we’re going to be transforming the lives of even more people affected by spinal cord injury.

Together we’ll be working hard to make sure everyone affected by spinal cord injury has access to the support they deserve; and we are the only spinal cord injury charity in the UK providing specific services to children and young people.

At Back Up, inclusion is at the heart of everything we do. Please read our Equality, Diversity and Inclusion Policy Statement. We are committed to creating an inclusive working environment where all our employees are encouraged to reach their full potential, and individual differences are valued and respected. We particularly welcome applications from those from black, Asian or ethnic minority backgrounds or those with higher level spinal cord injuries.

In 2024 Back Up won The Times and The Sunday Times Spotlight Award for Best place to work for disabled employees. As well as this, Back Up has been voted one of the top ten charities to work for (Third Sector Best Charities 2020). The enthusiastic, inclusive and supportive spirit of our very skilled staff ensure excellence in the services we deliver.

About OCD Action:

We have a vision of a time when OCD is well understood, and everyone gets the treatment and support they need when they need it. With the OCD community, we are fighting for this. Until that day arrives, our aims are:
1) that everyone affected by OCD has access to the high-quality support, information and guidance they need to enable them to access the right treatment;
2) that no one affected by OCD feels that they must face it alone.
To do this we raise awareness of the reality of living with OCD and its treatability, provide a helpline, over 50 support groups, online forums and a range of youth services.

About this role:

This new role has been established to ensure the effective planning, co-ordination and delivery of our three key events over the next year:

• our National Conference
• our Carol Service
• our spring fundraising event.

As a successful Senior Events Officer you will work with people from across the charity, from Trustees to experienced administrators. You will build and maintain strong working relationships with a wide range of stakeholders, including our small staff team, trustee Board, event speakers and suppliers. You will act as a key liaison for speakers and attendees ensuring all are left with the highest opinion of OCD Action. You will have a track record of managing event logistics, and be confident in developing event project plans and risk management plans. You will have project management experience and a solutions-focused approach. Ideally you will have a good understanding of event ticketing and will previously have used a CRM system to manage relationships with event attendees. Through this role you will be key to OCD Actions work and to delivering our vision and strategy.

Working at OCD Action:

It is important that working with us works for you. This is why we have an attractive benefits package, including flexible working and hybrid working.

We believe that diversity drives improvement and creativity. This fosters the environment needed to ensure we can do and be the best we can for the OCD community. We actively employ, and pro-actively seek to employ people with lived experience of intersectional disadvantage.

If you are passionate about being part of a movement for change for those impacted by OCD, we encourage you to apply. Please complete and return the application form by ....

About The Role
We are recruiting for a Senior Participant Experience Manager to join on a part-time basis, working 21 hours per week (0.6 FTE) as part of a job share. This is a fixed-term contract until the end of October 2026.

This is a fantastic opportunity to join our successful Events team, co-leading our 7-person Participant Experience team. Working closely with the other Senior Participant Experience Manager, you’ll be jointly responsible for identifying and delivering strategic projects and multi-channel supporter journeys to improve the supporter experience for all events participants, resulting in maximised income, retention and lifetime value.

You and your team will work across the Events team, adding value to our participants’ experience across our full range of products, from sign up to thanking and beyond. You’ll lead the team to drive cross product testing, learning and innovation. You will also maximise the impact of our communications across multiple channels, such as telephone, email, post, SMS, whilst pushing efficiencies by streamlining processes and ways of working across teams.

Working as part of the Events Management team you will contribute to the strategy and direction of the wider Events team.

Interviews for this role have been provisionally scheduled to take place on Wednesday 27th and Thursday 28th August. We are open to offering different working arrangements for this role, with a view to discussing specific working days with candidates during interviews.

About you
We’re looking for a strategic thinker who has a strong background in stewardship and customer experience with an understanding of the charity sector.

You will able to manage and inspire the team throughout busy and high-pressured events seasons. You’ll have experience of managing people to deliver the best results for the organisation whilst effectively developing team members within their roles. As a job share, strong collaboration and relationship building skills will be vital in this role.

Crucially, you will have a proven track record in developing and managing multichannel supporter journeys from planning to analysis. You will have experience of managing complex projects and will be confident in negotiating with and managing internal and external stakeholders, managing these vital relationships to ensure best practice and the best results for Alzheimer’s Society.

You will be data-savvy, with clear understanding of fundraising and data protection laws and have extensive experience streamlining and improving processes.

What you’ll focus on:

- Co-leading the Participant Experience team, creating a culture of high performance, collaboration and celebration.
- Managing the supporter journey programme from initial contact through to event day and beyond.
- Working across internal teams and with external partners to deliver exceptional supporter experiences for all our event participants.
- Leading innovation and testing around stewardship activities.
- Supporting the Head of Events and collaborating with Senior Managers to implement a new strategy for the Events team.

About Alzheimer's Society - who are we and what’s our mission?
Dementia is the UK’s biggest killer. One in three people born in the UK today will develop dementia in their lifetime.  

At Alzheimer’s Society, we’re the UK’s leading dementia charity and the only one to tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future. We give vital support to people facing the most frightening times of their lives, while also funding groundbreaking research and campaigning to make dementia the priority it should be.  

Together with our supporters, we’re working towards a world where dementia no longer devastates lives. 

Our values make sure that our focus is clear for the challenges and opportunities ahead and remind us of what we all stand for. 

Our commitment to Equity, Diversity, Inclusion & Belonging
We need to ensure the voices around our table better reflect and understand the communities we exist to serve. We strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as part of a minority ethnic background, as these groups are currently under-represented at Alzheimer's Society.     

Our hiring process
We want you to bring your whole self to the process. Applications are anonymised until interview stage, and we’re happy to support any adjustments. Share your feedback via our candidate survey when applying to help us improve. We may close early if we receive high interest (with 48 hours’ notice). Some roles may require a DBS check as part of our safer recruitment commitment. Thinking about using AI during the recruitment process? we know this can be helpful in many ways but remember to include your personal and authentic self too. Your voice and experience are what really set you apart. 

Giving back to you
At Alzheimer’s Society, we value our people and take a total reward approach to pay and benefits. You’ll enjoy a generous double-matched pension scheme, 27 days’ annual leave (plus bank holidays and wellbeing days), and access to a free Bupa Cash Plan, 24/7 EAP, Thrive mental wellbeing support, and virtual GP services. Our Society Plus platform offers exclusive discounts, wellbeing resources, and recognition schemes, while our flexible working, family-friendly policies, and life assurance provide peace of mind and work/life balance. We also offer a free Will-writing service and long service awards to recognise your ongoing commitment.

About the role:

When a family member sustains a spinal cord injury it is a life changing experience for the whole family. They can feel very isolated and that no one understands what they’re going through.

Back Up’s Family Support Service is there to help. We enable a wide range of family members of all ages whose loved one is affected by spinal cord injury (SCI) to improve their wellbeing, build a support network and transform their lives through Back Up’s services. 

The Family Support Coordinator will assist in supporting family members on an individual basis as well as in group settings as appropriate, together with providing support in the process of identifying, recruiting and training new family support volunteers.

A Family Support Coordinator will be comfortable and efficient with data management and GDPR compliance.

Lived experience of having a relative with SCI is essential, together with sharing our commitment to transform the lives of everyone affected by spinal cord injury.

For full details please see our role description.

About us:

At Back Up, we have big ambitions. Over the next few years, we’re going to be transforming the lives of even more people affected by spinal cord injury.

Together we’ll be working hard to make sure everyone affected by spinal cord injury has access to the support they deserve; and we are the only spinal cord injury charity in the UK providing specific services to children and young people.

At Back Up, inclusion is at the heart of everything we do. Please read our Equality, Diversity and Inclusion Policy Statement. We are committed to creating an inclusive working environment where all our employees are encouraged to reach their full potential, and individual differences are valued and respected. We particularly welcome applications from those from black, Asian or ethnic minority backgrounds or those with higher level spinal cord injuries.

In 2024 Back Up won The Times and The Sunday Times Spotlight Award for Best place to work for disabled employees. As well as this, Back Up has been voted one of the top ten charities to work for (Third Sector Best Charities 2020). The enthusiastic, inclusive and supportive spirit of our very skilled staff ensure excellence in the services we deliver.

Member Engagement Coordinator
Location: SIA House, Oldbrook, Milton Keynes MK6
Salary: £35,040 per annum
Contract: Two year fixed term contract (funding until October 2027)
Hours: Full time, 35 hours per week Monday to Friday

About Us

The Spinal Injuries Association is committed to a singular vision: a fulfilled life for everyone affected by spinal cord injury.

Everyone has a right to live a fulfilled life and that means the life they choose, a life that has the same opportunities as everyone else. We are the expert guiding voice for life after spinal cord injury.

About the Role

This exciting new role will be central to amplifying the voices of our current and future members, ensuring their lived experiences and needs shape our work.

This role will use our CRM system and a range of communication types and channels to foster lifelong engagement, support campaigns, and strengthen relationships with our partners and healthcare professionals.

Duties & responsibilities

• Use our CRM system, along with online and face-to-face communications.
• Coordinate member engagement and communications across services, fundraising, academy, and campaigns, using targeted segments of our membership.
• Work with colleagues to develop a membership hub that:
• Support the CRM and member engagement manager in maintaining an accurate, up-to-date, and GDPR-compliant database.
• Manage subscription payments for our magazine, FORWARD, including sending renewal reminders by email and post.

Benefits

• Annual leave: 28 days per holiday year plus bank holidays, increasing to 30 days after two years of service (pro-rated for part time employees)
• Access to Group pension scheme (6% employer contribution)
• Access to Group life assurance scheme
• Access to Healthcare cash plan
• Access to discounted gym membership
• Access to Employee assistance programme (EAP)
• Employee volunteer days
• Free car parking at Milton Keynes, Head Office
• Investing in their people - all members of staff are encouraged to discuss their development plans and aspirations with their line manager. A budget is available for talent development.

Closing date: 1 September 2025, 9am
Interview dates: Week beginning 8 September 2025 in person at SIA House, Milton Keynes, or online via Microsoft Teams.

Interested?

If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.

At SIA, we value diversity. We are committed to providing an inclusive and supportive environment as we believe diversity fosters a more innovative, creative, and caring culture.

We are striving to create a culture that fully represents all the communities we serve. We are an equal opportunity employer, and all applicants will be considered for employment regardless of race, age, ethnicity, religion, sexual orientation, gender, gender identity, family or parental status, or disability status.

Disabled candidates who meet the standard job criteria will be offered a guaranteed interview.

No agencies please.

Working pattern: full-time (36.25 hours per week) - part time considered

It is essential that you live within the Thames Valley region, or close enough to commute 

Working location: mostly remote work with some travel required. You will deliver a face-to-face service to clients in their own home or safe meeting place across the Thames Valley area as well as providing support by phone, email or other means to suit the service user. We take a person-centred approach so the amount of travel will vary depending on your caseload at the time. You’re in control of your own diary. 

Why this role is important: Every 20 minutes, someone is killed or seriously injured on UK roads. For families affected, the emotional and practical challenges are immense. As a Caseworker, you will provide trauma-informed care to individuals and families suffering from the sudden bereavement or life-altering injury of a loved one. Working mostly remotely, with some home visits to service users, you’ll offer vital emotional and practical support—including helping them access therapeutic resources, financial assistance, and guidance through the complexities of medical and legal processes. 

About Brake: Brake is a renowned and respected road safety charity with a 30-year history dedicated to supporting people affected by road crashes and advocating for safer streets. 

The role: This is a rewarding role where every day brings the opportunity to make a positive difference to people's lives. We regularly receive testimonials from service users describing the life-changing impact of receiving support from our caseworkers in the National Road Victim Service.

You'll join a closely knit team of fellow caseworkers, each using their individual experience and skills to provide person-centred support to victims. This provides a ready-made peer group who share best practice and knowledge and support each other so, in turn, they can best support road victims. There's no sugar coating it, this isn't an easy role, it requires a special type of person with strong resilience, but the reward is a strong sense of purpose, every day. You can’t pour from an empty cup, so we have strong support systems in place to support our caseworker's wellbeing, including clinical supervision. 

What we offer:

- A generous 35 days of annual leave (including bank holidays and 3-day end of year shutdown) 

- Birthday day off 

- Flexible working (choose a working pattern to suit you between the hours of 8am-6pm Mon-Fri) 

- Enhanced sick pay and compassionate leave 

- Death in service benefit 

- Pension 

- Employee Assistance Programme 

- Clinical supervision and excellent support 

- A rewarding role with purpose 

- Be part of a skilled, friendly team with an engaged Board of Trustees 

- Opportunity to attend prestigious events such as the Brake annual reception and awards (if you want to) 

Who we're looking for 

Full training will be provided under the guidance of our dedicated Training Officer. Our induction program has been developed to equip caseworkers with the skills they need to provide high quality support to road victims and covers topics such as being trauma-informed, safeguarding and risk management. We're open to candidates from all sorts of backgrounds, as long as you're a compassionate, self-starter with a background in providing high-quality emotional support and advocacy. Your experience in roles within the NHS, any health and social care, road safety, counselling, the police and family liaison officers, lived experience or any type of casework could make you an ideal candidate. 

Essential Requirements: 

• A full, clean UK driving licence and access to your own vehicle (travel expenses are reimbursed) 

• Resident within commutable distance to the Thames Valley area. 

• Experience delivering frontline support, preferably involving sudden bereavement or heightened vulnerabilities. 

• Strong advocacy and research skills to liaise with multiple organisations on behalf of service users. 

• Competency in I.T skills to work remotely. 

Desirable Experience: 

Comprehensive understanding of the processes involved in the criminal justice system and coronial process 

Equality, Diversity & Inclusion: Brake is passionate about creating an inclusive workplace that values diversity. We’re committed to supporting employees to achieve a good work/life balance and flexible around caring commitments. We welcome your application whatever your background or situation. We particularly welcome applications from those who are part of the global majority, the LGBTQIA+ community or disabled. We are proud to be a disability confident employer. We don’t want you to ‘fit’ our culture, we want you to enrich it. So, if you have a passion for making a difference and share in our vision for a world where no one is killed on our roads, we would love to hear from you. 

Apply now: If you're up for a new challenge and have the skills, apply now by sending your CV and cover letter. We'd like to get to know the real you through your application, not an AI version. If you do use AI to write your cover letter, please check it and make sure it reflects who you are. We encourage cover letters in alternative formats such as videos or presentations. 

Not for traffic offenders: Due to the nature of our work we can't accept applications from traffic offenders. Candidates will be asked to disclose whether they have any unspent points on their licence at screening/interview. 

An enhanced DBS check is required due to the sensitive nature of our service. 

Questions? If you would like to discuss the role further, please get in touch, we'd love to chat.