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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The National Flood Forum (NFF) is seeking a dynamic, motivated individual for the role of Flood Engagement Officer for West Midlands. This is an exciting opportunity for someone passionate about working with communities, especially those at risk of flooding, to deliver community-based flood risk management solutions.
Key Details:
Role Overview:
The Flood Engagement Officer will support the West Midlands community engagement team, reporting to a Community Engagement Manager. Your primary responsibility will be to work closely with communities to support them in tackling flooding risks.
Key Responsibilities:
About You:
The ideal candidate will be:
You must also be a resident of the UK with the right to work in the UK.
About the National Flood Forum:
The NFF is a national charity founded by those affected by flooding, working to support and represent individuals and communities at risk. The organization focuses on empowering flood-affected communities to recover and improve flood resilience. The NFF encourages applications from individuals with lived experience of flooding, and from diverse backgrounds.
Application Process:
To apply, please submit the following:
This is a wonderful opportunity for those passionate about community engagement and flood risk management to make a tangible difference in people’s lives.
The client requests no contact from agencies or media sales.
About the role
An opportunity to join the busy GIS and Data Team servicing an ambitious and evidence driven conservation organisation. Working with the Senior Biological Data and GIS Officer you will work on multiple conservation projects identifying and creating technical tools to assist with digital data capture and visualisation. The main focus of the role will be to support the Advisory Teams’ field and reporting work (grassland, rainforest and consultancy).
There will be multiple opportunities to work with a large range of projects and staff members, work with cutting edge technology and make a real impact to the operational success of the organisation.
This is a maternity cover.
About you
You will have experience working with ArcGIS technology and researching and developing technical products to assist with streamlined data flow. You will be proficient in creating visualisation outputs, mapping etc. and be comfortable liaising with staff to create the optimum products suitable for their needs.
You will have the ability to troubleshoot problems that may arise from staff and volunteers using technologies, identify solutions and work directly with end users to ensure they are able to utilise successfully.
You will likely be working on multiple projects concurrently so good time management and implementing prioritisation techniques will be key. You will also be a strong team player and willing to support ad hoc Data Team priorities that may arise at short notice.
You will take an active part in Data and Science Team meetings and meet with other staff to discuss needs and offer opinion on best solutions for their needs. You may also on occasion be asked to carry out basic training to assist with newcomers to the GIS field who are interested in starting their own GIS journey.
To apply for the role or view the full recruitment pack, please visit our website. We look forward to hearing from you!
Please note we do not accept CV's.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are seeking an exceptional leader to be our next chief executive, leading a respected and influential membership organisation at the heart of a thriving grassroots movement.
You’ll be working to build on the success we’ve seen and strong position and voice we have established for ourselves and our members, as a leading force for inclusive and sustainable transport and communities.
You’ll bring an impressive track record in values-based leadership, a proven ability to engage and inspire grassroots change-makers, strategic partners and policy-makers, and a deep belief in the importance of community-led change towards a sustainable, equitable future.
About us
Community Rail Network is a national not-for-profit organisation, which is in the process of applying for charitable status, supporting a growing ‘community rail’ movement, which helps communities get the most from their railways, promotes sustainable and inclusive travel, coordinates volunteering and place-making, and brings people together.
Community rail is made up of 77 community-based organisations, and around 1,300 station volunteer groups and other community-led initiatives around Britain. Their activities range from creative projects for young people, to advising train operators on service improvements, to building travel confidence among marginalised groups, to biodiversity projects at stations, to promoting greener tourism by rail.
Our enthusiastic team of 24 works from home in dispersed locations, but we come together regularly in person and online. We work collaboratively to support members, provide training, events and resources, run campaigns, and champion community rail and its insights. We believe in helping everyone reach their potential while having a good work-life balance.
About this role, and your main responsibilities
Our current CEO is moving on after nine years in role, leaving the organisation, team and wider movement in a strong and empowered position to deliver on the next phase of our development.
Your opportunity is to lead the organisation, and to deliver on our new five-year strategy setting an ambitious course for the future during a period of major transformation for our railways and the wider transport system. You will ensure that we are:
As CEO, you will lead a passionate and experienced senior leadership team with three direct reports, while working closely with and reporting into our Board, key partners and funders, and ensuing an engaging, empowering, tenacious approach across all we do.
Advocacy of community rail and its benefits will be high on your agenda, and you will be working closely across multiple stakeholders including UK and devolved national governments, regional and local authorities as well as forging collaborative partnerships with like-minded organisations.
Maintaining our community-centric ethos, you will need to ensure we're effective in enabling members to unlock greater value from the railways at a grassroots level, while drawing on their insights to affect wider change. With hundreds of member groups and organisations across Britain delivering life-changing, place-enhancing work, you will have a solid foundation to build on, to take community rail forward and expand our impact in the years ahead.
Last, but not least, you will be responsible for ensuring the strong and effective governance of the organisation, modelling our governing principles, values and behaviours, and ensuring that we have robust financial and resource management in place.
Skills, competencies and qualities
Other information
The role will involve extensive travel within Britain as part of building your profile and that of the organisation with central and devolved government in Scotland and Wales, and increasingly with the devolved regions of England.
There is flexibility on location given the requirement to travel and that your office will be home-based. You will need to travel to in-person quarterly team meetings (usually in London or West Yorkshire) and to Board meetings which alternate between online and London. It is expected that travel will be by public transport and easy access to the rail network is therefore required to ensure journeys can be made sustainably.
This is a full-time position, 37 hours per week. We use a flexi-time system with core hours 10am-3pm, and are committed to being a flexible, supportive and understanding employer. This is a permanent position with a probationary period of six months.
Benefits: 25 days annual leave plus bank holidays (rising up to 30 days, plus Bank Holidays, in line with long service); pension with employer contribution of 7%; and access to Employee Assistance Programme.
Successful applicants will need to provide proof that they have the right to work in the UK and provide two references.
Community Rail Network is an equal opportunities employer. We welcome applications from disabled people and Black, Asian and other minoritised groups, who meet with the skills and competencies for this role. We will provide reasonable adjustments for interviews as required.
Applications by Tuesday 12 May 2026 (23:30) with two attachments: your CV and a covering letter of up to two sides of A4 summarising why you are the ideal person for this job and relevant experience and competencies. Please include a daytime phone number and an email address and identify your notice period in your cover letter.
First interviews take place 21-22 May 2026 online. Second interviews will be in person, Monday 1 June 2026, in London. Candidates invited for interview will be contacted by phone about a week before. Due to limited resources, we are unable to provide feedback to other candidates.
**Please be aware we use AI monitoring filters to detect any AI generated content**
Championing the community rail movement | Connecting people and their railways | Creating inclusive, empowered, sustainable and healthy communities
The client requests no contact from agencies or media sales.
Location - Hybrid (based at home or local community) with regular travel in the South of England
Are you a communications professional looking for an exciting and rewarding new role? Emmaus UK is recruiting for a Regional Communications Officer to help support people on their journey out of homelessness.
About Emmaus
Emmaus (pronounced em-may-us) is a movement of charities that empowers people to overcome homelessness. We provide a stable home and tailored, life-changing support for people who are experiencing or at risk of homelessness. By focusing on each person’s strengths, we help people rebuild their lives and work towards the future they want to create.
As part of a nationwide network of Emmaus charities, we provide skills, training and work experience to help people achieve their goals and regain independence.
Together, we are ending homelessness one person at a time.
About the role
The Regional Communications Officer role is an exciting and varied opportunity to work with Emmaus communities across the South of the UK, helping to raise their profile and engage supporters.
You will work closely with up to four Emmaus communities to identify their communications needs and deliver a mix of activity to help them achieve their goals. As part of a wider team, you will also share ideas and build on each other’s experience to maximise PR, digital and communications opportunities.
This is a hybrid role, offering the flexibility to work from home or from within an Emmaus community.
Building and maintaining strong relationships with a wide range of stakeholders will be key to this role. Regular travel to your allocated communities is essential, typically at least once a week, so we are looking for someone based in or around London. You will also attend quarterly team meetings, usually held in Birmingham, although these may occasionally take place elsewhere in the UK and may require an overnight stay.
This is a part-time role, Monday to Friday, with a minimum of 22.5 hours a week (three days) and the potential for the role to be four days a week (30 hours), to be confirmed at interview.
Who are we looking for?
We are looking for someone with a strong communications skillset and at least two years’ experience in a busy communications, public relations or marketing role. While not essential, knowledge of homelessness and the charity sector would be an advantage.
Creativity and passion are essential. You will have a broad range of communications skills, enjoy seeing your ideas come to life and be keen to continue developing your experience within a national homelessness charity.
This is an exciting and rewarding opportunity for someone who enjoys working with different people and communities. The successful candidate will be organised, adaptable and able to manage multiple projects, relationships and campaigns.
If you are passionate about making a difference and creating long-lasting impact, this is the perfect time to join Emmaus UK.
What we offer
· Salary: £18,696 (3 days)/£24,928 (4 days)
· Working hours: Part-time minimum of 22.5 hours a week (three days), and the potential for the role to be four days a week (30 hours)
· Contract: Permanent
· Pension: Stakeholder pension with employer contribution
· Annual leave: 25 days + Bank Holidays + 3 concessionary days leave
· Training & development: Individually tailored induction. Ongoing training and development
· Volunteering: 2 days allowance each year
· Employee assistance: A 24/7 employee assistance scheme is available
· Flexible working: Options available, subject to the requirements of the role
· Life assurance: Death in service lump sum of 3 x salary
To apply
To apply for this role, please complete our application form and equal opportunities monitoring form and email them to us, our email address is in the application pack.
Please ensure you refer to the job description and person specification when completing your application form. CVs and posted applications will not be accepted.
The closing date for applications is Monday 11 May 2026.
Shortlisted candidates will be invited to an interview via Microsoft Teams during the week commencing Monday, 18 May 2026. As part of the interview process, candidates will also be asked to complete a set of tasks.
If you would like to arrange an informal discussion about the role, please email us, our email address is in the application pack.
Equal Opportunities
Emmaus UK is an equal opportunity employer and is committed to providing a working environment free from discrimination. We actively promote an inclusive culture and aim to create a workplace where people from diverse backgrounds, characteristics, perspectives, ideas and experiences work together.
We welcome applications from all individuals, regardless of age, race, gender, sexual orientation, ethnicity, religion or belief, disability, marital status or parental responsibilities.
To ensure fairness and consistency in selecting the best candidate, all applications are anonymised until the interview stage is confirmed. This means shortlisting is based solely on the relevance and suitability of experience.
The client requests no contact from agencies or media sales.
Are you a passionate and creative communications expert with experience in the charity sector, excellent relationship-building abilities and a crafter of persuasive and powerful story telling that resonates with a variety of audiences? Can you deliver compelling communications and campaigns to help increase our income generation and raise our profile with potential supporters and champions? Do you want to be part of a dynamic, ambitious, joyful organisation? Then this could be the role for you!
We are going through an exciting growth phase at the Choir with No Name with new choirs launching and an ambitious strategy to increase our choirs across the UK from six to thirty by 2033. We are investing in our fundraising and comms function to grow our income in line with our bold strategy and delivery plans.
About us
The Choir with No Name (CWNN) has been building supportive choir communities involving people impacted by homelessness and marginalisation since 2008. We were founded on the premise that singing makes you feel good; it is a welcome respite from the challenges life throws at you, and helps build confidence, skills and genuine, long-lasting friendships.
“I’m so happy to have found CWNN. It’s made such a difference to me. I’ve broken a 25-year cycle with drugs and honestly, I don’t think I could have done it without the choir. I’m not existing anymore, I’m living, and that’s huge.”
- Richard, choir member
Your role
You will be responsible for the management, development and delivery of marketing and communications to support CWNN’s fundraising strategy. You’ll work alongside our Development Manager to create compelling fundraising campaigns, content and communications, growing engagement from individuals, companies, community fundraisers and potential funders while simultaneously raising our profile among stakeholders through strategic communications and marketing plans. This work includes:
Work alongside our Development Manager to create and deliver impactful and innovative fundraising strategies including our public appeals, challenge events and local fundraising campaigns.
Developing and implementing communications strategies to promote CWNN’s work, managing our social media platforms and external comms to ensure they reflect our strategic goals and values.
Create engaging digital content for our website and social media including written copy, video and graphics, to drive engagement, increase awareness and generate income.
Capturing and analysing key campaign engagement KPIs to inform future strategies and approaches to best engage existing and new audiences.
Produce quarterly comms impact overview for senior management and trustee reports.
Create marketing materials for external use, eg. corporate pitch documents, fundraising packs, gig programmes, flyers and posters using Canva.
Co-creating case studies, supporting members to share their stories, their way, amplifying their voices and demonstrating the impact of our choirs to stakeholders.
Co-lead our co-produced ‘Digital Storytellers’ programme with our Community Participation Manager, supporting members to manage their own local social media accounts, sharing their stories and raising awareness of their choirs to new audiences.
Maintain, organise and populate CWNN’s media library and YouTube channel.
Write and distribute press releases to both regional and national press and media, fielding media enquiries and building our media contacts.
Oversight of the day to day content management and maintenance of the website
Co-ordinate our internal communications programme and internal newsletter, working with senior leadership team.
Carry out any other tasks that arise that are within the scope and purpose of the post as requested by your line manager
About you
Essential:
Desirable:
We are an equal opportunity employer and firmly believe that each team member can provide a unique perspective and valuable contribution to the lives of the people we work with, and applications from individuals are encouraged regardless of age, disability, sex, gender, sexual orientation, pregnancy and maternity, race, ethnicity, religion or belief. We particularly welcome applications from people with lived experience of homelessness. We follow an anonymous recruitment process. CVs will be requested at interview stage.
For full job description and details on how to apply, click on 'redirect to recruiter' at the top of the page.
The client requests no contact from agencies or media sales.
About the role
Home-based role within the relevant region, or within reasonable travelling distance to meet the requirements of the post (subject to meeting homeworking assessment requirements, including a minimum broadband speed of 18Mbps and a dedicated space to work from).
In this key role you will be responsible for assisting the Senior Negotiating Officer to manage and support our stewards, safety and equality representative networks across the South West, supporting them in providing individual and collective industrial relations support to members, working both in and outside of the NHS. You will also be expected to spend approximately 25% of your time, managing cases from across the UK, but predominantly from nearby regions.
You will work in collaboration with other health trade unions across the region.
You will work with the CSP regional team to recruit and organise members, influence on local workforce issues and promote physiotherapy.
You will provide representation for members at disciplinary hearings, grievances and disputes with employers, and provide general advice and information to representatives and members on issues such as pay, terms and conditions, and employment legislation.
With significant trade union experience at a senior level, and an understanding of NHS structures and government policy on health, you will have excellent communication, negotiation, training and presentational skills, combined with a strong collaborative approach and a thorough understanding of, and commitment to, equality and diversity principles and the ability to put them into practice.
Working arrangements
Flexible working
We currently have employees working part-time, job share, compressed hours, adjusted start and finish times, and other non-standard working patterns. We are open to considering alternative arrangements and would welcome discussion with successful candidates about any specific flexibility they may require, subject to organisational needs.
Why work for the Chartered Society of Physiotherapy?
The Chartered Society of Physiotherapy (CSP) is the professional, educational and trade union body for the UK's 67,000 chartered physiotherapists, physiotherapy students and support workers; and one of the largest representative bodies in healthcare.
At the CSP, our goal is to create a culture characterised by innovation, respect, encouragement, passion and teamwork. We all strive for continuous improvement and to deliver the best possible outcomes for our members. We aspire to work in a way that embodies our values of learning, courage, inclusive and integrity. Our shared values are part of our organisational DNA, reflecting the expectations we have of ourselves and others. They guide what we do and how we do it, to have the greatest impact for our members. Please visit the website for further information.
How to apply
For further information and details of how to apply, please visit the website via the apply button. CVs will not be accepted.
As part of the application process, candidates will be asked to provide written responses to six criteria, which can be found in the Candidate Information Pack.
Closing date: 10am, 13 May 2026.
Shortlisting outcome: w/c 18 May 2026.
Interview date: 28 May 2026 (in person in Exeter).
Equality, Diversity and Belonging
Accessibility and adjustments
To support an equitable and accessible recruitment experience, we actively encourage candidates to let us know if they require any reasonable adjustments during the application or interview stages. Please contact HR, and we will work with you to meet your needs.
Disability Confident Scheme
As part of the Disability Confident Scheme, candidates who declare a disability and meet all the essential criteria will normally be shortlisted for interview. In the event of a high volume of applications, we may choose to limit the overall numbers of interviews offered to both disabled and non-disabled candidates. In such cases, a proportionate number of disabled candidates will be shortlisted for interview. For further information on how we apply the scheme, please visit the website.
Our commitment to equity, diversity and belonging
The CSP is committed to equity of opportunity, aiming to provide a working and learning environment free from discrimination. We are taking appropriate steps to create a workforce that reflects the diverse society in which we work and live in. Therefore, we particularly encourage applications from candidates under-represented in the CSP’s workforce, including those from Black, Asian and minority ethnic backgrounds, those with disabilities and LGBTQIA+ people. Please note, all candidates will be expected to actively demonstrate their commitment to Equity, Diversity, and Belonging throughout the application and interview stages. To view our equity, diversity and belonging strategy, please visit the website.
NO AGENCIES
Transport for All has a strong reputation for leading the debate and advocating for change to improve the journeys made by disabled people. This role presents an opportunity for a strong leader with the commitment, enthusiasm and expertise to build on our success.
Our Chief Executive will be responsible for continuing to delivering the remainder of our 5-year strategy, whilst horizon-scanning to work with the team and wider DPO community to engage in the opportunities and changes ahead. We’re a small team and this is a wide-ranging role which includes:
• Representing the voice of the 16 million+ people in the disabled community by influencing policy and infrastructure decision-makers through our campaigns.
• Overseeing a highly regarded policy and public affairs function with associated communications and stakeholder engagement, maintaining our high profile and reputation with national and local governments.
• Ensuring the charity’s funding is robust and sustainable, looking at how we can diversify our income and direct it towards what matters through continuing to deliver our strategy and planning for our future.
• Overall responsibility for our successful training, research and consultancy business, building partnerships and further growth. This includes the National Accessible Transport Survey.
• Championing our award-winning support services for disabled people.
• Leading our expert teams through a period of growth and consolidation, embedding a strong organisational culture and matching our structure and systems to our upcoming challenges and increasing size.
You will report to and be supported by a well-functioning and committed Board of Trustees who are professionals with experience of working in the charity and transport sectors, as well as finance, legal and government backgrounds.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Do you have experience in supporting vulnerable adults and empowering them to move forward with their journey?
Walking With the Wounded (WWTW) supports those who have served in the British Armed Forces and their families, specialising in developing pathways to independence.
We currently have an exciting opportunity for a Veterans Liaison and Officer (VLSO) to join a team providing support to ex-armed forces personnel. You will be home-based, with a caseload spread across Hertfordshire and occasionally adjoining counties.
We are looking for a dedicated individual who will empower ex-service personnel to regain their independence after a period of Mental Health (MH) Crisis, supporting them to thrive and contribute to our communities. This role will join a team of existing VLSOs across the East of England as part of a wider collaborative team within NHS England’s Op Courage - the Veterans’ Mental Health and Wellbeing service, and will work with other service charities and local support services. You will be home based with daily travel around your local region to support your clients and build relationships in the community, whilst working as part of the wider regional WWTW and NHS clinical teams.
We are looking for a highly motivated self-starter with prior experience of working with vulnerable adults; an individual who can work independently to set priorities that accurately reflect the client’s needs. Your role will be to work with clients in the community (or their homes), facilitating intense support and analysing individual needs to create a support plan that will break down barriers to a successful stabilisation, whilst navigating their mental health pathway.
In return, we will provide you with the opportunity to demonstrate and develop your skills and career as a Veterans Liaison and Support Officer in a supportive, inclusive environment. In this role, no two days are the same and every day will bring new challenges. Internal training will be provided, and we encourage our staff to develop their own personal and professional skills.
For an informal discussion please contact Anne Germany 07935-065716.
Walking With The Wounded deliver employment, mental health & care coordination programmes to veterans & their families in collaboration with the NHS.
The client requests no contact from agencies or media sales.
The role
The Innovation team at Leadership Skills Foundation is responsible for the design and evaluation of learning programmes that give young people life‑changing skill development and leadership opportunities. As Innovation Officer you will provide support to our Innovation Leads across learning development, visual design, and research activities.
This role is ideal for a creative all-rounder. You don’t need to be an expert in all areas on day one. We are looking for a proactive problem solver who can grow into the role and is energised by the idea of wearing multiple hats to help young people succeed.
You will directly support a broad range of projects including:
Our strategic partnership with Sport England to positively impact a wider diversity of young people through sports leadership opportunities.
The development of our new youth voice initiative to empower young people to lead positive change.
The expansion of our Environment Leaders Programme to raise awareness and equip young people with green skills for their future employment.
What you’ll do
Learning development
Work collaboratively to help create and test new learning programmes, and continuously improve our range of Awards and Qualifications based on research findings e.g. from our Sport England Programme.
Support the creation, editing and quality-checking of course content and materials, such as Learner Evidence Records and tutor guidance documents.
Support digital learning activity, including content creation, managing online platforms and testing user experience.
Visual design and content
Create engaging visual designs for use in course materials and impact reporting, ensuring designs are always accessible and on brand.
Manage our library of learning resources, ensuring designs are reviewed regularly and improved based on feedback and research findings e.g. from our Sport England Programme.
Research and evaluation
Play a supporting role organising and conducting research interviews, observations, surveys and focus groups.
Assist with data collection and analysis of qualitative and quantitative insights.
Support the preparation of engaging impact reports and insight summaries.
What you’ll love
Remote working with flexible / agile working, with some travel to in-person meetings.
A small, friendly team committed to making a difference for young people.
Summer and winter team events.
Optional Vitality Health Care Plan, with option to add family/significant others at reduced rate ((following successful completion of probation period).
*** Please review the job pack for the full person specification and further information. This is a full-time, two‑year fixed‑term contract, with the ambition to extend subject to funding. ***
Empowering every young person to shape their future and lead their communities.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Project Officer - Active Journeys
When registering to this job board you will be redirected to the online application form. Please ensure that this is completed in full in order that your application can be reviewed.
Project Officer – Active Journeys
£29,835 per annum (pro rata for part time)
Ref: 167REC
Full time 30-37.5 hours per week – we are happy to talk flexible working
Base: Home based with hybrid working across Central Southern England
Contract: 12 month Fixed Term Contract (with view of extension or permanency subject to funding)
Disclosure: Enhanced DBS is required for this position as the post holder will be working with school and community groups in the region.
ABOUT THE ROLE
Team: Active Journeys, South and East
As Project Officer, you will work across a wide range of projects to support and enable more people to walk, wheel and cycle. This is a dynamic and varied role, providing flexible support to short-term projects and initiatives or support different stages of longer-term projects.
What You’ll Be Doing
This role is ideal for someone who enjoys taking on new challenges, where a workday never looks the same, and the opportunity to work with colleagues with a wide mix of disciplines.
The role involves undertaking in‑person work across the region. This includes regular travel and occasional work outside of core office hours.
ABOUT YOU
We’re looking for someone who has experience and understanding in the areas listed below. You don’t need to meet every requirement — if you feel you’d be a good fit, we encourage you to apply.
LIVING OUR VALUES
At the Walk Wheel Cycle Trust, we’re a values‑driven organisation. We’re looking for people who are:
Always Learning – curious, open‑minded and committed to continuous improvement.
Championing Equity – inclusive, respectful and focused on ensuring everyone has a voice and fair opportunity to succeed.
Taking Ownership – proactive, responsible and empowered to make things better.
Delivering Together – collaborative, transparent and motivated by shared success.
Through our values we make it possible for more people to walk, wheel and cycle safely, healthily and joyfully.
WHAT WE OFFER
We want you to feel supported, valued, and empowered in your role. That’s why we offer flexible working, a positive team environment, and benefits designed to support your wellbeing, finances, and family life.
Wellbeing Support
Financial Benefits
Family Friendly Policies
ADDITIONAL INFORMATION
We're the charity making it possible for everyone to walk, wheel and cycle



Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.
Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.
Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.
At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.
As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.
This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.
If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.
Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



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