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Page 20 of 36
Twickenham, Greater London (Hybrid)
£26,000 - £28,000 per year
Full-time or part-time (30 hours per week)
Contract (12 months)
Job description

This assignment will be fulfilled at 30 hours per week across Monday–Thursday. The successful applicant will be required to visit the charity's Twickenham office at a minimum of once per week.

Fowler’s Syndrome UK (FSUK) is the only charity in the world dedicated to women (and afab) with Fowler’s Syndrome or Chronic Idiopathic Urinary Retention; a life-changing and poorly understood bladder condition that causes full or partial urinary retention.

The CEO is looking to appoint a highly organised, pragmatic, and detail-focused professional to deliver executive, project and governance support on an initial fixed-term contract of 1 year.

In this vital role, you will harness your initiative as you provide proactive PA support to the CEO and Chairs of the medical and trustee boards, while delivering project and event coordination across FSUK’s core programmes.

Excitingly, alongside executive and governance administration and support and ensuring that the charity maintains the highest standards of compliance and record-keeping, you will also be responsible for project management of two major initiatives such as FSUK’s flagship CURATE consensus project, alongside their annual two-day conference. From coordinating clinicians and steering groups, to managing logistics, guest travel, supplier liaison, and on-the-day delivery, you’ll ensure these complex projects run efficiently. You will also assist with grant applications, research activity, and the production of project trackers and reports.

Are you inspired by the prospect of coordinating projects and events, and do you flourish when responsible for a broad portfolio of work?

Being exceptionally well-organised, confident in managing multiple priorities, and able to communicate professionally with a wide range of stakeholders is crucial for the success of this post. You’ll need to have excellent project management, written skills, proficiency in MS Office, and the discretion to handle sensitive information. Experience with grant applications, safeguarding, or working in a charity, healthcare, or academic setting would be advantageous, though not essential.

Lived experience of Fowler’s Syndrome is not essential but would be a welcome bonus!

If you’re eager to play a vital role in nurturing FSUK’s patient community, enhancing the digital presence of a growing charity that ensures women living with Fowler’s Syndrome feel supported and connected, we’d love to hear from you.


Fowler’s Syndrome UK welcomes applications from people of all backgrounds and especially anyone with lived experience of FS. We actively encourage interest from racially and culturally minoritised individuals, those who are neurodivergent, part of the LGBTQIA+ community, or living with a disability.

Please get in touch if you would like to talk to us about any support that you may need in completing an application.

Application resources
Application Instructions

Please apply with an up to date CV and a tailored cover letter that reflects your suitability and interest in this opportunity.

Posted by
Fowlers Syndrome UK View profile Organisation type Registered Charity Company size 1 - 5
Posted on: 13 September 2025
Closing date: 06 October 2025 at 12:30
Job ref: PAPSO_FSUK
Tags: Administration, Finance, IT, Project Management, Operations, Digital, Compliance / Quality, CRM, Customer support, Data Entry, Education, Health / Medical, Helpline, Information Management, Monitoring and Evaluation, Office Management, Programme Management, Public Health, Research, Events / Activities