Senior challenge events executive jobs

Are you passionate about delivering exceptional events and creating memorable experiences? Do you thrive in a fast-paced environment where no two days are the same? If so, The Royal College of Radiologists (RCR) wants you on our team as our new Events Administrator!

We are at an ambitious and exciting stage, redesigning and expanding our portfolio of learning products and delivering a growing programme of in-person, online and hybrid events including major conferences like our Global AI Conference.

As our Events Administrator, you’ll play a key role in ensuring the smooth delivery of meetings and conferences that make a real difference to clinical care. Working closely with our Conference Organiser and the wider Learning Team, as well as colleagues in marketing, sponsorship and external stakeholders, you’ll help us deliver events that inspire, educate and connect healthcare professionals worldwide.

What you’ll do

• Support the planning and delivery of high-quality events across the UK and globally.
• Coordinate logistics, manage registrations, and ensure delegates and speakers have an exceptional experience.
• Work with subject matter experts, sponsors and partners to bring events to life.
• Provide outstanding customer service and troubleshoot on the day to keep everything running smoothly.

What we’re looking for

• Experience in event administration and logistics (in-person, online and hybrid).
• Strong organisational skills and attention to detail.
• Excellent communication and relationship-building abilities.
• Confidence using Microsoft Office and online event platforms (e.g., Zoom).
• A proactive, adaptable approach and a passion for delivering great experiences.

Why join us:

• Make a difference to the lives of Doctors and the specialities they work in every day!
• Hybrid working (60% working week can be done remotely)
• Modern working environment
• Equipment provided to work from home
• Generous annual leave allowance
• Excellent pension scheme
• Interest free season ticket loan and cycle to work scheme
• Employee Assistance Programme

Director of Mission and Evangelism

The successful candidate will come to serve alongside me and our other leaders. They will bring significant knowledge and
understanding of the Anglican church, the challenges and opportunities it faces in evangelism to those on the margins, and a creative empowering approach to answering those challenges. As Church Army continues its journey of significant strategic reshaping, you would play a vital role in shaping the vision and strategy and then leading the work of Church Army for the next season of ministry. As Church Army reorientates itself towards a much stronger focus on training and equipping for evangelism on the margins, the new Director will be able to demonstrate both understanding and experience in this area. You will also be able to demonstrate an ability to engage in the wider work of the Anglican church, as we seek to work in closer partnership on numbers of projects.

Matt Barlow
CEO, Church Army.

About the role

We have an exciting opportunity to join our team to provide administrative and event delivery support across all event and fundraising activities. This will include a wide range of admin and support tasks pre-event, onsite and post-event for the BOA’s flagship event, BOA Annual Congress, and other educational, social and fundraising events, both face to face and virtual, delivered by the team. In addition, the postholder will be responsible for maintaining comprehensive administration systems across the events and fundraising team, corresponding with members, Stakeholders, delegates, fundraisers etc, using the CRM database, updating event and fundraising content on the BOA website, and supporting content creation for social media.

If you are a proactive individual with drive and enthusiasm looking for a new challenge, have an interest in events and fundraising and would be keen to work for a membership organisation involved in supporting trauma and orthopaedic surgeons and care for orthopaedic patients we would love to hear from you.

About you

• Able to establish good relationships with people at varying levels of seniority, including clinicians, expert advisors from the Council and subcommittees, and external stakeholders and organisations.
• Ready to get stuck in and capable of undertaking multiple tasks or projects at any one time
• Excellent written and oral communication skills, with the ability to deal with people diplomatically and appropriately
• Comfortable with handling multiple issues and flexibility to adapt if priorities change or opportunities emerge at short notice.
• Proactive and keen to make a difference while appreciating the importance of sound project management and an eye for detail
• Good organisational skills and time management with ability to prioritise and independently work to deadlines
• Strong attention to detail and ability to achieve high standards of work with little supervision.
• Confident learning and using IT and online systems, including CRMs

What we can offer you

• Good team working environment
• 25 days paid holiday + bank holidays and up to 4 Association closure days.
• Enhanced contributory pension scheme & other leave entitlements.
• Employee Assistance Scheme
• Benefits platform.

We are fully committed to equality and diversity and will assess your application based on your experience, skills and suitability to the position only

About us

Around 10 million adults and 12,000 children, have a musculoskeletal condition in the UK today. We are a professional membership organisation and registered charity with the mission of ‘Caring for Patients, Supporting Surgeons’ working with our members to deliver excellence in surgical care and restore pain free mobility.

Our activities include influencing and engagement, professional practice, research and training and education. We have over 5,000 members worldwide, the majority based in the United Kingdom and Ireland. Membership is made up of consultants (active or retired), surgeons in training and staff and associate specialist grades (SAS).

Our Midlands team has a new opportunity for an Executive Officer. You will be responsible for supporting effective grant-making across the region, helping us to distribute over £60m to good causes throughout the area.

As an Executive Officer, you’ll be part of a driven and passionate team, led by a Senior Head of Regional Funding. Within the team there is 1 Senior Grant Making Manager, 8 Funding Managers and 26 Funding Officers.

Reporting to the Senior Head of Regional Funding, you will work on a hybrid basis, working both remotely and spending some of your time in the Birmingham office (located near Five Ways). There will also be some occasional travel to other locations across the region throughout the year.

Organising will be at the heart of your role, and you will be in regular contact with the team across the region. The key duties of the role include:

• Supporting the Senior Head of Regional Funding, Senior Grant Making Manager, Funding Managers and their teams.
• Administration of our grant-making database using Salesforce.
• Diary management for the Senior Head of Regional Funding and Senior Grant Making Manager.
• Organising, supporting and minuting a range of regular online and face-to-face meetings.
• Responding to customer enquiries made to the region.
• Supporting teams with stakeholder engagement.
• ​General administrative and facilities support. 

​Interview Details:

• ​Date: 7th & 8th January
• ​Format: In-Person
• ​Location: Hybrid, flexible working, Birmingham based, with an expectation to be in the office around 1 day every 2 weeks.

We will be hosting a briefing session about the role on: Wednesday 3rd December 2025, 13:00 – 13:45 pm. To register or ask any questions about the recruitment process, please email the recruitment team.

​How to apply:

Upload your CV in word format and write a supporting statement (1000 words) with the following criteria, we will use this to score your application.

Essential:

• Excellent organisational skills and attention to detail with the ability to plan and proactively manage competing demands.
• Excellent customer service skills, with experience of working in a customer-facing role.
• Excellent verbal and written communication skills, with the ability to work with senior stakeholders.
• Ability to work within a team but to also work independently, using your own initiative.
• Good IT skills (including Microsoft Office) with an ability to work across a variety of systems and platforms, interpreting financial information, arranging meetings and booking travel.

​Desirable:

• Ability to handle sensitive information with discretion and sensitivity.
• Previous voluntary or work experience in the charitable sector.
• ​Diary management experience

​Equity, Diversity and Inclusion  

Communities in the UK come in all shapes and sizes. National Lottery funding is for everyone – therefore, we are committed to equity, diversity and inclusion and we work hard to ensure our funding reaches where it is needed.  

We also believe our people should represent the communities, organisations and individuals we work with. That’s why The National Lottery Community Fund is committed to being an inclusive employer and a great place to work. We recognise and celebrate the fact that our people come from diverse backgrounds. We positively welcome applications from people from ethnic minority backgrounds, people with disabilities or longstanding health conditions, people who are LGBTQ+, and people from different socio-economic and educational backgrounds, as well as people of all ages. 

As a Disability Confident Employer, we take a proactive approach in making reasonable adjustments, if needed, throughout the recruitment process and during employment. (This can be related to a physical and mental health condition). 

An exciting opportunity has arisen for a Senior Events Manager to join a leading national charity based in Central London.

This is a full-time, 12-month fixed-term role within the Events & Community Fundraising team, focused on developing and delivering an engaging and ambitious challenge events portfolio to maximise income and supporter engagement in support of the organisation’s vital work.

Key responsibilities of the role:

• Lead the planning, delivery, and growth of flagship challenge events, including a major endurance event and a multi-location walking series.
• Line manage an Events Executive and oversee the delivery of multiple bespoke fundraising events.
• Develop and implement multi-channel marketing campaigns to recruit participants and enhance supporter journeys.
• Manage six-figure income and expenditure budgets, ensuring events are delivered efficiently and within financial targets.
• Build and nurture relationships with suppliers, sponsors, volunteers, and internal stakeholders to ensure smooth event delivery.
• Provide strategic direction and identify opportunities to increase net income and event reach.
• Collaborate with colleagues across fundraising, communications, and senior leadership to report on performance and share insights.
• Ensure compliance with health and safety, insurance, and legal regulations throughout the event cycle.
• Represent the charity at key events, engaging with participants and supporters to strengthen relationships and build loyalty.
• Support the development of new fundraising initiatives and contribute to the overall success of the events programme.

Ideal candidate profile:

• Proven experience in delivering large-scale fundraising events or campaigns.
• Strong project management skills with the ability to manage multiple priorities and stakeholders.
• Excellent written and verbal communication skills, with confidence in engaging supporters and suppliers.
• Financially literate with experience managing significant budgets.
• Proficient in event management tools, CRM systems, and Microsoft Office.
• Creative, proactive, and solutions-focused with a collaborative approach to team working.
• Willingness to travel across the UK and occasionally overseas, including working outside core hours and weekends.
• Full UK driving licence required.
• Passionate about making a social impact and empathetic to the charity’s mission.

Location: Central London

Salary: £45,760

Working hours: Full-time, 35 hours per week

Working pattern: Hybrid, 2 days per week on-site

Contract: 12-month fixed-term contract

This vacancy is being actively shortlisted, so early applications are encouraged. We are an equal opportunities employer and welcome applications from all backgrounds.

Are you a passionate, experienced fundraiser looking for a new challenge? Do you have strong partnerships and trusts experience, but also a good understanding of developing individual giving journeys? Are you excited by the opportunity to manage a new fundraising programme in a small, growing organisation? Then this might be just the role for you.

We are looking for an ambitious and proactive Senior Fundraising Manager to build on our past fundraising activity, diversifying income streams and nurturing new and existing partnerships with industry. In this role, you will also develop our member donations income stream and maximise our fundraising potential with the wider public, including patients and families with experience of intensive care. Working closely with the Head of Communications and Membership Engagement, you will contribute to shaping the fundraising strategy to support our new and enhanced organisational strategy and brand strategy.

Working closely with other members of the senior management team, including the Head of Sponsorship and Events, you will help develop relationships with industry for the long term and in relation to our yearly State of the Art Congress, aimed at the intensive care community.

You’ll have a strong track record in building and managing partnerships, securing grants from charitable trusts and foundations, and delivering successful fundraising campaigns. You will be a strategic thinker, confident communicator, and relationship-builder who is motivated by making a difference. Able to juggle both management and hands-on, operational activities, you’ll be keen to get stuck in and make a difference.

You will sit in a small, dynamic and supportive team also responsible for communications and membership engagement, and you’ll work with closely with them to integrate fundraising messages within our broader communications. You will also have a dotted line to other key teams within the organisation, in a matrix-style working set-up.

As an organisation, we have just reviewed our organisational strategy under the leadership of our new CEO, which means a lot of exciting developments are afoot needing additional funding. As part of this growth, we will be growing our offer for patients and families, which will have strong links to the fundraising strategy you will help manage.

We're looking for a senior leader to drive our ongoing strategy formation, development and implementation. You'll lead strategic workstreams, deputise for the Head of Strategy & Transformation, and provide strategic advice to our Chief Executive and Senior Leadership Team. Working with multi-disciplinary teams, our Youth Panel and diverse stakeholders, you'll ensure our strategy creates meaningful change for young people.

We’ve ambitions to change so much, to improve support for endometriosis – are you the experienced and highly organised Executive Assistant to CEO we need to help us?

We are the UK’s leading charity for all those affected by endometriosis, determined to ensure that everyone gets prompt diagnosis and the best treatment and support. We have an exciting opportunity for an experienced Executive Assistant to join our team at Endometriosis UK and help us make a real difference for the 1.5 million in the UK with the disease. This is a crucial role for our small but growing charity, supporting the CEO to ensure the smooth running of the organisation. You’ll be a key point of contact, proactively managing all aspects of EA support to the CEO to enable them to maximise their performance and delivery, as well as coordinating our governance administrative systems and processes. You will be working as part of a passionate team with a strong commitment to achieving change to help those with living with endometriosis.  

The role will be ideal for a highly organised, proactive, and experienced Executive Assistant used to working on their own initiative and comfortable with multi-tasking in a fast-paced environment. You will be a born organiser, with superb judgment, a diplomatic approach, solution focused and with excellent problem-solving skills. You will have the ability to think two steps ahead, guided by our strategic and operational priorities, and the confidence to steer senior managers accordingly. You will bring a meticulous attention to detail and exemplary skills in prioritisation, time management and task completion. Advanced skills in MS Office are essential. Your written and verbal communication skills will be first-rate, with stakeholders at all levels. You will be comfortable handling confidential material with the utmost discretion. You will have proven experience supporting senior executives and Boards, ideally in the charity or non-profit sector. The EA will also play a proactive role in improving organisational processes and supporting priority areas as needed.

This will be a busy, varied and important role working closely with the CEO to make sure their diary supports their strategic priorities. Key responsibilities include managing, triaging and responding to emails, complex diary management to ensure effective use of their time, providing briefing papers and ensuring the CEO is well prepared for meetings, and ensuring we’ve efficient governance and office processes. You will need to have the ability to exercise tact, diplomacy and sensitivity, with excellent interpersonal and teamwork skills. You will act as that indispensable individual for the CEO, ultimately responsible for proactively ensuring their work life runs effectively and efficiently. The key focus of the role is to ensure the CEO is able to maximise their impact and influence in the charity, plus ensuring the smooth operation of board and committee functions,

This is a hands-on role in a small but ambitious charity, ideal for someone who’s willing to get stuck in, take initiative, is flexible and brings structure and calm to a busy leadership team. You’ll be a trusted partner, helping to manage schedules, coordinate meetings, prepare documents, and ensure everything runs smoothly behind the scenes.

We look forward to receiving your application. 

Job title: Executive Assistant to CEO

Reporting to: Chief Executive

Working hours: Full time/ 37.5 hrs a week

Location: Endometriosis UK’s office at London Bridge, with hybrid working options

Contract: Permanent

Annual salary: £38,000 - £40,000 depending on experience, and incl London Weighting

Closing date for applications: 9am, Monday 1st December 2025

Interview date: Monday 8th and Tuesday 9th December, at our office in London Bridge

This position plays a key role in growing income,inspiring participation and building new ways forpeople to support Action for Pulmonary Fibrosis.The Senior Fundraising and Innovation Manager will create and scale fundraising products, expand community and third-party participation and cultivate ideas that turn into measurable income. It is a role that combines strategy with action, identifying opportunities and testing them, through to launch, improvements, analysis and embedding
them into the APF fundraising portfolio.
The postholder will own an income target, lead fundraising product growth and manage a team with their own income responsibilities.

Success means more supporters raising more money, in more ways, with clear journeys and deeper connection to APF’s mission. This role will collaborate closely with the Senior Supporter Care and Campaigns Manager, and the
Senior Partnerships and Philanthropy Manager, as well as the Communications team, to ensure audiences receive seamless, coordinated journeys. Campaign planning, product launches and supporter stewardship will be delivered through collaboration and combined success measures to ensure fundraising activity is connected.

Further details can be found in the job description attached. 

At 21 Together, we believe every person with Down’s syndrome has the right to live a happy, rich and fulfilling life. Based in Maidstone and working across Kent, we support children and young people with Down’s syndrome, their families, and the professionals who work with them.

We are a small but impactful charity looking for an inspiring Chief Executive Officer to lead us through the next phase of our growth.

Job Title: Chief Executive Officer (CEO)
Organisation: 21 Together
Location: Maidstone, Kent (Hybrid working available)
Salary: From £48,561 FTE, dependent on experience 

Contract: Permanent or Fixed Term (flexible)
Working Hours: Part-time or Fractional (minimum 3 days per week)
Closing Date: 5th January 2026

Interview Date: Early January 2026

The Role

As CEO, you’ll provide strategic leadership, oversee operations, and drive income generation to ensure our long-term sustainability. You’ll work closely with our committed Board of Trustees, lead a passionate team, and act as the public face of the organisation.

We’re open to part-time or fractional working arrangements (minimum 3 days/week) to attract the right person.

Key Responsibilities

• Deliver our mission and long-term strategy
• Ensure strong financial oversight and fundraising success
• Lead and support staff and volunteers, fostering a positive and inclusive culture
• Maintain strong governance and ensure legal compliance
• Represent the charity externally and build key stakeholder relationships
• Monitor impact and promote continuous improvement

About You

We’re looking for someone who is:

• An experienced leader with a strategic mindset
• Financially astute, with a track record of managing budgets and securing income
• A confident communicator with excellent stakeholder engagement skills
• Committed to inclusion, learning, and supporting vulnerable communities

Desirable: Experience or understanding of Down’s syndrome and/or learning disabilities.

What We Offer

• Flexible working (minimum 3 days/week)
• Hybrid arrangements available
• Supportive and values-led culture
• Opportunity to make a meaningful, visible difference

Are you an excellent relationship manager who can communicate effectively with senior level stakeholders both internally and externally? Are you proactive, with great attention to detail whilst being able to deal with competing demands in a fast-paced environment?  We’re looking for a Senior Partnership Manager to lead and shape some of the most exciting collaborations in the sector. You’ll combine strategic partnership management with direct line management, overseeing a high-performing team while directly managing two flagship relationships: Disney – one of our most iconic partners and a brand-new partnership with a leading tech company launching in the new year
 

This is a chance to work at the heart of innovation, creativity, and growth—building relationships that make headlines and deliver real impact.

Salary

The salary for this role is £47,303 per annum and we operate a hybrid working policy of a minimum of 2 days per week in the office. 

In line with our EDI strategy and Total Reward policy, we calculate our salaries based on benchmarking data across the charity sector. To ensure fairness for existing staff and new joiners, we do not offer salaries above the advertised rate.

Key Responsibilities

• Manage an annual portfolio budget of up to £2M.
• Develop and deliver a portfolio of high performing, creative, sustainable and impactful corporate partnerships. 
• Lead on the strategic direction on mid-level partnerships within the portfolio.
• Line manage Partnerships Manager and Senior Executive. 
• Motivate partners through impactful materials, strategic partnerships plans, strong and effective communications and a robust stakeholder matrix. 

What’s in it for you?

• A role that rarely comes up—true career-defining opportunity.
• Influence at the highest level with global brands.
• A dynamic, collaborative environment where your ideas matter.

Skills, Knowledge and Expertise

• Significant experience of corporate fundraising, with a focus on managing partnerships from various industries. 
• Experience managing partnership income over £1M.
• Exceptional relationship building skills. 
• Stakeholder management skills. 
• Presentation skills. 

If you’re ready to lead, innovate, and make partnerships that change the course of corporate fundraising, apply now and be part of something extraordinary!

Are you passionate about turning data into stories that inspire change? The Medical Research Foundation is seeking a strategic and analytical Senior Research Impact Manager to lead our monitoring and evaluation efforts ensuring we can demonstrate the real-world impact of the research we fund.

This is a high-profile role at the heart of our mission. You’ll develop and implement frameworks, analyse outcomes, and communicate insights to shape our research strategy and inspire donors. If you thrive on evidence, storytelling, and strategic influence, this is your opportunity to make a lasting difference.

Why this role matters

We fund the brightest minds to tackle the biggest challenges in human health. But to keep doing so, we need to show the world that our funding makes a difference. Your work will help us prove our impact by capturing outcomes, evaluating effectiveness, and sharing compelling stories that drive support and shape future funding.

You will:

• Develop and implement research monitoring and evaluation systems and tools that align with our strategy.
• Oversee and review research reporting, following up with researchers using structured M&E tools to capture key impact data and stories.
• Lead on impact reporting and, working closely with our Fundraising and Communications functions, tell compelling stories of our research impact to the public and our donor base.

About You

You are a data-driven thinker with a passion for medical research and a talent for turning evidence into action. You are confident leading projects, managing data, and communicating complex ideas with clarity and purpose.

You bring:

• Experience of monitoring and evaluation, impact assessment, and the collection, analysis, reporting and management of data, ideally in medical research
• Familiarity with the UK biomedical research landscape
• Excellent interpersonal, communication, IT and data visualisation skills
• Line management expertise

Bonus points if you have:

• Experience of widely used databases (e.g. Dimensions, EuropePMC), survey tools
• Experience of Flexigrant or Flexigrant Insights
• Project management or strategic planning experience
• Confidence in presenting complex concepts to non-expert audiences

What we offer

• A chance to be part of a mission that matters.
• A supportive, collaborative, and ambitious team culture.
• Opportunities to grow, learn, and make a real impact.

About the Medical Research Foundation

Our vision? A world where medical research improves health for everyone. We fund life-changing science, and we’re proud of the role good governance plays in that mission.

Salary & Working Style

• £51,000-£56,000 per year full-time (36 hours per week) dependent on experience
• 30 days' holiday plus bank holidays
• 12% employer pension contribution + life assurance
• Generous other benefits
• Wellbeing support and flexible working culture

This is a full-time post, but we are happy to consider a part-time contract (min 0.8 FTE). 

We value spending time working in-person to develop strong connections with each other and with our mission, so you will be based at our central London office for a minimum of three days a week if you are full-time (Monday, Tuesday, and either Wednesday or Thursday) with the option to work remotely for the remainder.  If you are part-time, you will be office-based for at least 50% of your time.

A Place for Everyone

At the Medical Research Foundation, we believe that diversity drives creativity and innovation. We are dedicated to promoting equality of opportunity, fostering fairness and inclusion, and creating an environment where everyone feels that they belong.

We especially welcome applications from individuals from minoritised groups, including those from Black, Asian, and minority ethnic backgrounds, disabled people, and members of the LGBTQI+ community.

The Opportunity   

This role is central to shaping and delivering the Social Mobility Foundation’s media, public affairs, and campaigning work, alongside the Campaigns Manager. You will influence changemakers - including politicians and journalists - through strategic media, political, and social media interventions. You will also collaborate with our Young Campaigners to amplify their voices and co-create impactful campaigns with them that drive systemic change.

1. Helping to plan and deliver campaigns activity, both planned and reactive, including: 

• Organising campaign events e.g. Parliamentary receptions and communicating our campaigns online and on social media.
• Assisting the Campaigns Manager to commission research and polling support our campaigning.
• Monitoring parliamentary activity, and horizon scanning - considering how political developments may affect our campaigning work, providing opportunities and risks. 

2. Leading our media work to maximise the impact of our campaigning, building awareness of social mobility as an issue amongst influential and informed audiences: 

• Developing and executing media and communication plans to support our campaign goals.
• Monitoring the media and responding to stories that allow us to land our key messages, share our point of view and platform SMF young people.
• Responding to requests from journalists for comment and advising and briefing members of staff on how to respond.

3. Co-create campaigns alongside our Young Campaigners and engage them in delivering and designing campaign activity:

• Developing and facilitate spaces for our Young Campaigners to co-create campaign activities and take actions to influence changemakers.
• Working with young people to share their experiences, through speaking at events and other campaigning opportunities.
• Training and supporting young people to speak to the media, ensuring safeguarding processes are embedded and providing follow up pastoral support where needed.

See attached job description for more detail on the key responsibilities in the role

Person Specification

• Experience of working within a media, campaigning, public affairs or political environment.
• Excellent understanding of the UK political system and political processes and a thorough understanding of public affairs tactics.  
• Experience of planning and delivering projects or campaigns in a charity, political or media context. 
• Excellent copywriting skills, with experience of writing press releases, quotes, interview briefings, social media posts and opinion pieces.
• Experience of successfully influencing policy or practice.
• Experience of speaking to journalists, succinctly describing our positions, handling media enquiries and making recommendations to senior colleagues on next steps.

See attached job description for more detail on the person specification

Benefits

• 36/37 days (England & Wales and Scotland respectively - includes bank and public holidays and three days to be taken between Christmas and New Year) plus up to 3 days additional annual leave increasing with length of service.  
• Time off in lieu for work outside contractual hours
• Employer pension contributions of 5% plus salary sacrifice contribution the equivalent of Employer National Insurance after a satisfactory completion of your probationary period 
• Flexible work options such as hybrid working, flexitime, part-time
• Cycle to Work scheme

How to Apply

If you are interested in applying for this role, please head over to our website by 23:59, Tuesday 2nd December and submit:
 

a) A cover letter (no longer than 700 words) outlining your previous experience, your motivation and your suitability for the role.
 

b) A 500-word op-ed written for our CEO, Sarah Atkinson on why the government should make large employers report on their class pay gap, linking this to a recent news hook, relevant events or political moments happening soon.
 

c) A short email pitching your op-ed to the comment editor of the Guardian.

Please note that generic applications and CV’s will not be considered.

CamRARE is celebrating a decade of progress and impact and is seeking a dynamic Managing Director to lead our next chapter of growth. 

As our Managing Director and founding member prepares for her planned retirement, Cambridge Rare Disease Network (CamRARE) is seeking a dynamic and visionary new leader to guide the charity into its next decade. You will drive strategic growth, strengthen partnerships, ensure long-term sustainability, and champion innovation, research, and community impact for people affected by rare and undiagnosed conditions. 

You will inspire and empower a passionate and talented team of staff, trustees, volunteers, families and partners, while building strong connections across our networks to expand our reach, visibility, and influence. As an energetic and forward-thinking leader, you will bring the drive and expertise to strengthen partnerships, grow income through innovative fundraising and strategic collaborations, and champion CamRARE as a trusted voice within the rare community and beyond.

Why choose a career at Cambridge Rare Disease Network?

#purpose – We’re on a mission to make life with a rare condition easier through community, collaboration and connections. Your role is to lead this mission to directly contribute to a better future for those living with rare conditions.

#growth – We’re a small, ambitious team where you’ll have opportunities to shape and grow with us. You will use your experience and knowledge to make a measurable impact.

#diversity and inclusion– We value the diversity and unique insights each person brings. We actively welcome applications from candidates of all backgrounds and lived experiences.

About Cambridge Rare Disease Network

There are over 10,000 rare conditions that affect 400 million people globally. Receiving a diagnosis can take years. Most rare diseases have no treatment. Coordination of care is often poor.

We’re on a mission to make life easier for those affected—uniting individuals, families, patient groups, researchers, industry, clinicians and policymakers to accelerate solutions and improve lives. Through knowledge-sharing, collaboration, and creativity, we aim to make the journey smoother for people living with rare and undiagnosed conditions and their families.

• CamRARE connects patients, advocates, research experts, and leaders—catalysing action to drive solutions and create lasting change
• Connects knowledge with lived experience to transform the journey toward better diagnosis, treatment, and support for individuals and their families
• Connects, educates, and supports the rare disease community - locally and globally - to improve outcomes and transform lives

Leading CamRARE

As Managing Director, you will provide strategic leadership for the charity, oversee governance and operations, develop and execute the strategy set by the Board of Trustees, and build key external partnerships. This role leads fundraising efforts and develops high-level external stakeholder relationships with Government bodies, including healthcare organisations/departments, Industry, patient and charity organisations, and Research Institutions involved in rare disease. This is a key role to build, strengthen and nurture the charity's connection with the rare disease community, empowering them and fostering an inclusive and supportive network.

We’re looking for someone who:

• Has a deep commitment to improving the lives of individuals and their families living with rare conditions.
• Has proven experience of 10+ years in a senior leadership role with a track record of delivering impact.
• Has experience in strategic planning, organisational development, and leading change.
• Brings creativity, adaptability and a “can-do” attitude.
• Has experience in income generation and managing stakeholder relationships.Has strong team management skills with a focus on development and building an inclusive workplace culture.
• Has experience in financial management and resource allocation.
• Has excellent interpersonal and communication skills, with the ability to influence and inspire.
• Has sound knowledge of issues affecting the voluntary sector
• Enjoys working independently, hands-on as part of a team and effectively with remote teams
• Experience in and enjoys networking and partnership building, can communicate effectively with a broad range of people
• Experienced in business delivery aligned to financial targets, core objectives and strategy implementation
• Has experience leading events and campaigns