Challenge event manager jobs in Cambridge, cambridgeshire
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Key responsibilities:
1. Main Purpose of the Job
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To ensure the panel reflects AvMA’s values and that where possible the panel is managed in line with our strategic plan.
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To manage and oversee the operation of the specialist AvMA clinical negligence panel to include ensuring the qualifying requirements for panel applicants are relevant and up to date and reflect any important medical and legal developments.
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The assessment of panel applications and interviewing of Applicants. Convening meetings of the panel committee, drafting agendas for those meetings and identifying issues to be discussed.
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Identify ways for the AvMA panel application process to become more streamlined, efficient and supportive of lawyers making panel applications. To develop the process to ensure it is fit for purpose, relevant and continues to meet the needs of the public.
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Ensuring the AvMA database of panel membership and special interests is kept up to date. Giving informal advice to solicitors enquiring about panel membership requirements, liaising and meeting with firms as required.
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Travelling and attending key networking events, including AvMA’s three-day (2 overnight stays) annual conference and AvMA annual panel meeting (usually held end Nov, beginning December), engaging with potential AvMA panel applicants, promoting the benefits of accreditation and the junior scheme (Certificates Competence Scheme (CCS)), keeping up to date with medical and legal developments. Speaking at panel meetings and generally to promote the panel.
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Working with the conference department to identify relevant topics for panel meetings and conference events.
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To improve on the current re-accreditation process to make it more streamlined and user friendly for applicants.
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To ensure relevant data from panel applications is captured on the CRM. Regular analysis of panel data, findings shared with AvMA senior leadership team and more widely where appropriate.
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To pursue AvMA’s EDI strategy by considering ways in which the panel can be developed to ensure panel members are as ethnically diverse as possible.
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To liaise with AvMA’s conference department to advise on any training which may be required to strengthen AvMA panel members knowledge and information base.
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To work with the Director Medico Legal services in assessing applications for Certificate of Competence Scheme (CCS) for juniors. To update and work on the Certificates Competence Scheme including organising applicant feedback to ensure this scheme continues to be fit for purpose. To inform and work with panel applicant mentors in strengthening the scheme.
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To deliver on administrative requirements such as quarterly reports for trustees, working with AvMA’s Service Delivery Quality and Outreach Committee (SDQOC) as required to update on continued improvement of AvMA Panel Accreditation Scheme.
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Dealing with queries raised by AvMA Panel applicants and/or juniors who may have had their applications rejected.
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Ensuring AvMA panel template letters and documents are updated
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From time to time speaking publicly about requirements for AvMA panel membership, common pitfalls and how to overcome them as well as other matters relating to panel.
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To consider client complaints about panel members to determine whether the threshold for disciplinary action under AvMA’s Panel procedures is met.
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To manage disciplinary procedure for AvMA Panel members, identify and liaise with adjudicators, prepare documentation, set up the hearing.
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To manage appeals against rejection of an application for accreditation/reaccreditation, liaise with adjudicators.
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To keep on top of any government, regulatory or other policy changes which may affect the way in which patients can access justice, recover damages and seek redress for adverse clinical outcomes, as well as any improvements or impediments to lawyers undertaking this work.
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To develop and grow the AvMA panel accreditation and Certificates Competence scheme membership; to identify cost efficiencies and maximum engagement with AvMA accredited panel solicitors.
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Any other duties associated with the role.
2. Skills and Experience
Administration of the AvMA Panel
The bulk of the administration and management tasks do not require specialist skills; however, assistance is provided by the PA to the CEO when required.
AvMA has a Customer Relationship Management (CRM) driven computer system throughout the organisation, the introduction has been phased and the applicant should be confident enough with sufficient IT skills to onboard the new system. The CRM works with Microsoft Dynamics 365 a data driven software solution which is intended to manage, track and store information. AvMA considers IT to be an ongoing commitment and the new panel accreditation manager should be willing to consider ways in which AvMA can maximise the impact of the CRM to improve services and data collection on key issues identified from panel related activities.
Tasks such as updating and preparing new panel application documents and report forms will require medical and legal input, the panel application interview process will involve discussions about topical medico legal issues and for this reason the post would suit someone who has a legal background, ideally qualified as a solicitor or barrister, preferably with clinical negligence accreditation. A a medical background would be helpful.
Assessment of new applications, interviews and dealing with correspondence
The Panel Accreditation Manager is primarily responsible for the assessment of new panel accreditation applications.
The role of Panel Accreditation Manager would suit someone who has practised as a claimant clinical negligence lawyer who is looking to draw on their expertise and experience in a new role.The successful applicant should be confident in assessing former peers and colleagues in a fair and impartial way.
The nature of this work is such that the Panel Accreditation Manager can come into possession of sensitive information, discretion and respecting confidentiality are key qualities for this role.
Reaccreditations
Reaccreditation assessments are done internally by the Panel Accreditation Manager, occasionally assistance can be provided by members of the internal panel assessment team.
AvMA aims to make reaccreditations more straightforward for practitioners and the new appointee will be expected to liaise with the profession to understand where they consider the biggest hurdles to reaccreditation lie and to consider how these can be overcome without compromising standards.
AvMA receives a minimum of 15 applications for reaccreditation per annum, however numbers are usually considerably higher, up to 30 per annum.It is thought that the reaccreditation process could be designed to be more streamlined and user friendly for both the applicant and in house.
Other AvMA Panel assessments
In addition to assessing AvMA panel applications and reaccreditations the Panel Accreditation Manager will need to assess applications from accredited panel members who have changed firms.
Change of firm applications tend to be straightforward if the applicant has been on the panel for some time and is going to a firm where there is another AvMA panel member but the process is more in depth for those going to a firm which does not have another AvMA panel member. The Panel Application Manager needs to be confident that the new firm can meet the minimum standards and supervision requirements required of a first time panel application.
There are about 5 applications for changes of firm rising to a maximum of 10 per annum.
Interim Reviews
From time to time first time applicants may demonstrate that they largely meet the core criteria for AvMA Panel membership but there may be some areas that require improvement.In those cases, AvMA can award the applicant AvMA panel status subject to a review sometime later.The Panel Accreditation Manager is responsible for following up that review and examining progress made.The review is an opportunity to identify if the applicant has succeeded in strengthening the areas of weakness identified.If they have not, they risk losing their AvMA panel status entirely.
There are about 3 interim reviews per annum, currently not exceeding 6.
3. Other
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To support the Events Department’s quality initiatives and to suggest continuing improvements where needs arise.
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To undertake other duties commensurate with the post as may be required.
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Deputise for the Head of Events when necessary
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Partnerships Manager is responsible for developing, securing and stewarding our partnerships, with a particular focus on the corporate and higher education spaces. Reporting to and working closely with the CEO, the postholder will lead on relationship‑driven partnership development and account management, ensuring partners experience a professional, values‑aligned and impactful relationship with Brightside.
The postholder will steward these partnerships from initial engagement through to renewal, working closely with the Partnerships Lead to support renewals and identify opportunities for deeper partner engagement. The role will involve researching potential partnerships, securing meetings through outreach and networking, generating proposals, and delivering high‑quality ongoing stewardship to partners. In addition to corporate and higher education partners, the postholder will also steward relationships across government and the third sector.
Please note - this role will require extensive travel to London for partnership meetings, events and networking. Our ideal candidate would therefore be based in London or within commuting distance.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for
Pipeline development
- Researching potential prospects across the corporate and higher education sectors, including analysis of corporate ESG strategies and university access and participation plans
- Maintaining and enhancing our prospects database on our CRM
- Building and nurturing relationships with prospective partners
- Delivering pitch presentations to prospective partners
- Regular attendance at in-person prospect meetings or networking events to build strong relationships that develop into new partnerships
- Generating proposals that align partner priorities to Brightside’s aims
- Maintaining regular contact with prospects to stay on their radar and keep them up to date with Brightside activity
- Attending regular networking events and relevant contacts to build contacts across sectors
Partnership management and stewardship
- Acting as the consistent relationship manager across the partnership lifecycle
- Stewarding partnerships beyond programme activity, maintaining relationships that reflect partners’ wider goals, values and organisational priorities
- Holding regular partnership check-ins focused on relationship health, strategic alignment and future opportunities
- Ensuring partners feel informed, valued and connected to Brightside’s broader mission and impact
- Working closely with the partnerships delivery team to stay up to date on delivery progress and partner milestones
- Identifying opportunities to deepen or broaden relationships, including multi-year partnerships or expanded engagement
- Delivering a consistent, high-quality partnership experience that strengthens long-term retention
- Attending partner events and conferences where relevant, becoming embedded within their communities
- Working with the Partnerships Lead to prepare for and initiate renewals conversations, including renewals proposals and monitoring
Application instructions
- Submit your CV and one-page cover letter via CharityJob
- Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria (listed in the job description) for the role with clear examples, specifically the items tested at application
- You must answer the screening questions
- Applications without a cover letter or screening questions answered will not be considered
- Applications due: 23:30, Wednesday 27 May 2026
- First interviews (online): 4/5 June 2026
- Second interviews (in person, London): 11/12 June 2026
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
ARUK Advert
The Research & Partnerships Directorate is a fast-paced, collaborative team committed to achieving Alzheimer’s Research UK’s vision. The Directorate has responsibility for delivering on the charity’s principal remit: funding world-class research to ultimately defeat dementia. Alzheimer’s Research UK funds dementia research through a large portfolio of investigator-led grant awards, research fellowships and strategic initiatives within the UK and increasingly internationally.
The Senior Research Funding Manager will work closely with the Head of Research Funding, leading a team focused on delivering our core grants management processes. This role is vital in advancing ARUK's research objectives and promoting engagement within the ARUK-funded research community. They will work collaboratively within the Research & Partnerships directorate and with other teams, including the Communications and Philanthropy teams.
We’re looking for someone with strong research management experience and a good eye for detail who is excited by the opportunities in the dementia research landscape.
Key Responsibilities:
Research Operations Leadership
· Foster and deepen relationships with the global dementia research community, with support of the Research Engagement team, ensuring ARUK remains a trusted leader in funding excellence.
· Provide oversight and functional leadership for research operations across distinctive functions: pre-award, post-award (including invoicing and reporting), and grant system management, ensuring clear ownership, robust processes and alignment with organisational goals and long-term impact.
· Oversee the delivery and continuous improvement of grants review, awarding and management processes, ensuring a high-quality applicant and award-holder experience and timely, accurate, audit-ready outputs aligned with best practice, funding policies and ARUK values.
· Lead research funding governance and policy, ensuring clear decision-making, robust guidance (including due diligence and risk management where appropriate), and consistent application of funding requirements across the end-to-end grant lifecycle.
Scientific Strategy and Innovation
· Provide strategic advice on research funding through horizon scanning and analysis of ARUK’s funding portfolio, identifying gaps/opportunities and shaping options for future funding strategies and schemes.
· Develop and implement new grant schemes and funding initiatives, ensuring alignment with ARUK’s research strategy and the evolving needs of the dementia research community (including early career researchers).
· Build collaborations with leading funding organisations and strategic partners (e.g., AMRC), representing ARUK externally and identifying opportunities to address shared research priorities and drive collective impact.
People Leadership
· Line management of three Research Managers, effectively delegating work to support delivery of their objectives.
· Leadership and development of a wider core team of six, fostering a collaborative and growth-oriented environment.
· Help to promote an inspiring team culture where personal development is prioritised.
Knowledge, skills and experience needed:
· Strong science background, educated to degree level in a relevant subject (preferably with a postgraduate qualification or equivalent work experience).
· Good working knowledge of grant management systems (e.g., Flexigrant).
· Experience of research grant funding/management.
· Excellent interpersonal and relationship management skills, with experience of building and managing relationships with a diverse range of stakeholders, at all levels of seniority.
· Experience of developing and delivering strategies, ability to spot opportunities and translate these into operational plans, thinking beyond the immediate issue to look at broader topics or themes.
· Proven ability of planning, managing and delivering projects; ability to prioritise and manage multiple tasks, showing adaptability to meet challenging targets and deadlines.
· Experience of line management, including supporting and developing colleagues and, ideally, managing through others (e.g., managing managers or team leads).
· Strong communication skills with the ability to convey complex information to diverse audiences
· A team player who can collaborate effectively with a range of stakeholders internally and externally to deliver.
· Excellent eye for detail with a focus on continuous improvement.
· Excellent time management skills and ability to prioritise competing demands.
· Ability to work independently.
· Willingness to travel, including occasional overnight travel.
· Commitment to ARUK’s vision, mission and values.
Additional Information:
Ways of working:
As part of our Agile ways of working, you will be required to work approximately 2 days a week from the office, which is subject to the requirements of the role and the business needs. Flexibility on where you work can be split between working from home and our office.
Roles that are classed as part of the Agile ways of working are not able to claim any costs for Mileage/Travel on Public Transport, Accommodation and/or Meals. This includes when attending the office for various meetings/events.
Our Office: Our office is at 3 Riverside, Granta Park, Great Abington, Cambridge, CB21 6AD.
Salary: Circa £53,000 per annum, plus benefits.
Please download the Vacancy Pack on our website for more information.
The closing date for applications is the 17th May 2026, with interviews being arrange once shortlisting has been completed. Please indicate in your covering letter if you are unable to attend an interview on a certain date. We would encourage you to submit your application at the earliest opportunity, as on occasion we may have to bring forward the interview date and/or the closing date based on the needs of the business. Although a possibility, this will only happen in exceptional circumstances. Please indicate in your covering letter if you are unable to attend an interview on a certain date.
We value diversity and are committed to creating an inclusive culture where everyone can be themselves and reach their full potential. We actively encourage applications from people of all backgrounds and cultures, particularly from those in the global majority, those with disabilities, men and those from the LGBTQIA+ community. Any offer of employment is however subject to you having the right to work in the UK.
As part of our commitment to being an inclusive employer and ensuring fairness and consistency in our selection process, we will handle your CV and application with the utmost confidentiality. Should you require any adjustments at either the application or interview stage, please contact us via our website.
How to apply: Please create an online account using our Online Recruitment Platform which can be accessed through our Job Vacancies page. You will be able to attach your CV to your application and track the status of your application.
About Alzheimer’s Research UK: Alzheimer's Research UK is the UK's leading dementia research charity. Our mission is to accelerate progress towards a cure. Today 1 in 2 people will be impacted by dementia, either through caring for a loved one, developing it themselves or tragically both. But there is hope.
There has never been a more important and exciting time in dementia research. With promising new drugs in clinical trials that slow the progression of the diseases that cause it, and revolutionary new ways to diagnose them on the horizon, we are now at a tipping point. Working with the smartest minds globally and across the UK, with industry and academia, Alzheimer’s Research UK is uniquely placed to invest in the very best research identifying barriers to a cure and knocking them down so that there are more and better treatments for everyone with dementia. For the first time in history, we can see a future where people with dementia can get a swift and accurate diagnosis, and effective treatments that could slow or even stop their disease. We stand for everyone affected by dementia. We stand for a cure.
In 2024, we were incredibly proud to be awarded a 3-star accreditation by Best Companies which recognises ‘World Class’ levels of workplace engagement. This is the second consecutive time; we have been awarded a Best Companies 3-star accreditation.
We were also listed in the prestigious Best Companies lists:
· 18th in the 100 Best Large Companies to Work For in the UK.
· 10th in the 50 Best Companies to Work For in the East of England.
· 2nd in the 30 Best Companies to Work For in the Charity Sector.
ARUK really does look after its people, where you will be able to add value and make a difference.
To view further details about working for us and the benefits we offer, please visit Alzheimer’s Research UK
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.
The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for:
Trusts and foundations:
- Identify and research trusts and foundations that would support our organisational priorities and funding needs
- Develop high quality, compelling grant applications and cases for support
- Build and maintain a healthy pipeline of funding opportunities
- Lead funder relationship management and deliver high-quality stewardship
- Lead on grant reporting, including monitoring, accountability and opportunities for reapplication
- Working closely with technology and delivery teams to build evidence-based cases for support for key projects
- Ensure clear and effective handover of successful grants to delivery teams, including reporting requirements and timelines
- Attending external events and meetings to support our fundraising strategy and learning
Major donors:
- Identify and research potential major donors whose interests and capacity align with our mission
- Cultivate new donor relationships through targeted outreach, contact mapping, networking and events
- Build and maintain a healthy pipeline of potential major donors
- Develop tailored engagement and stewardship plans approaches for each donor
- Create meaningful opportunities for donors to share insight, experience or sector knowledge and ensure this expertise is valued and acknowledged
- Lead major gift conversations and negotiations, including face-to-face meetings
- Provide high quality, personalised stewardship to major donors
- Identify opportunities to grow or repeat giving through deeper donor engagement
- Deliver exceptional stewardship to major donors
Individual giving
- Maintaining regular contact with donors and potential donors (including our volunteers and alumni) to generate donations
- Maintaining and monitoring our individual giving platforms
- Ensure all donations and supporter interactions are accurately recorded and that donors receive timely acknowledgements
Application instructions
- Submit your CV and one-page cover letter via CharityJob
- Your cover letter should be no more than 1-2 pages and must explain how you meet the essential criteria for the role, with a focus on the items tested in application and clear examples (see job description for the essential criteria)
- You must answer the screening question on the application page
- Applications without a cover letter or screening question will not be considered
- Applications due: 23:30 Wednesday 27 May
- First round interviews (online): 4/5 June 2026
- Final interviews (online or in person) 10/11 June 2026
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
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Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
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Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
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Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
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Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
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Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
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24-hour confidential Employee Assistance helpline
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Private health insurance
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Flexible hours
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5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
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Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
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Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
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Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
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Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
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Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
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Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
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Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
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Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
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Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
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Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
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Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
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Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
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Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
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Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
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Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
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Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
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Collect and analyse feedback, producing short evaluation summaries to inform future planning.
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Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
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Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
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Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
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Event logistics prepared within agreed timelines
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Accurate event information published and updated within required timeframes
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Participant satisfaction and engagement measured through surveys
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Conference and event attendance targets met
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CRM data entry completed within 2 working days of events
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Budget expenditure tracked monthly with minimal variance
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Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
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Experience organising in person events from start to finish for over 300 attendees.
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Experience liaising with suppliers, venues and speakers.
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Experience with CRM/data entry, with close attention to detail.
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Experience organising and hosting remote events.
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Understanding of hybrid events.
Desirable
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Experience in the charity sector.
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Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
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Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
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Understanding of the importance of safeguarding around events.
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Exceptional communication skills.
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Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
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Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
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Skilled in problem solving, with a proactive, solutions focused approach.
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Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
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Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
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Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
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Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
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Resilient and adaptable, able to navigate complexity.
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Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
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Demonstrable commitment to equity, diversity and inclusion.
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Personally, and professionally, responsible with high standards of integrity and accountability.
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A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About Spear
We launched the award-winning Spear Programme over 20 years ago, and there are now 18 Spear Centres across the country, equipping unemployed 16–24-year-olds facing barriers to employment with the skills and mindset they need to secure work and thrive in the workplace.
Spear operates a joint venture model with churches across the UK to run our Spear Centres. Some Centres operate in collaboration with independent charitable trusts, while others are run directly with the local church (both referred to below as ‘Spear Church Partners’ or ‘Church Partners’).
About the role
We’re looking for a new Church Partnerships Manager to join us for this northern based role, with travel across the region.
This is an exciting opportunity to play a key role in driving national growth by developing and nurturing partnerships with churches across the North of England. You will be at the forefront of developing new relationships with potential early-stage partners, inspiring churches to engage with our mission, and supporting them through the pipeline, and helping to establish a diverse and thriving network of church partnerships.
We are looking for a confident relationship-builder who can engage and influence a wide range of stakeholders, particularly church leaders, and who is comfortable working in a dynamic and evolving environment.
Key information:
- Salary: £37,000
- Location: Remote with once a month travel to London for team meetings and regular travel in the North of England
- Full-time, 12-14month Fixed Term Contract, with the possibility of extension
- Closing date: We interview on a rolling basis and will close the role early if we find the right candidate
For more information please read through our Job Specification and Work with Us Pack.
If you require any reasonable adjustments as part of the recruitment process, please let us know.
Person Specification
- A practising Christian, passionate about personally representing the values and beliefs of Spear, and our mission to equip and support young people facing barriers to employment
- Strong leadership ability with the confidence to make effective decisions
- Outstanding people skills and emotional intelligence, capable of quickly winning trust and confidence, as well as network, influence and negotiate with church leaders and a range of audiences, internally and externally
- An understanding of the needs and workings of churches and their leaders, and the ability to innovate, build our growth strategy and generate new partnerships
- An excellent communicator (both written and verbal)
- Excellent initiative and a self-starter, with the ability to operate flexibly in a changing and dynamic environment and in response to the support needs of each partner
- Strong organisational skills including the ability to establish appropriate processes and structures and to manage multiple priorities to meet targets and deadlines
- Strong quantitative skills including ability to work with and interpret impact data, fundraising pipelines and basic financial information
- Microsoft Word, Outlook, Excel and PowerPoint competent and experience of/ability to use databases
Spear is a dynamic, growing youth employment charity that coaches young people to overcome barriers and thrive in work and life.
The client requests no contact from agencies or media sales.
Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
Job Summary
This role forms a key part of a new Strategy & Insight Team at Bowel Cancer UK, which seeks to build core capabilities to enable us to be as effective as we can be for people affected by bowel cancer. The Audience Insight Specialist will be an internal leader, building our capability to understand our core audiences and the people we need to reach to achieve our strategic goals. You will support a cultural shift in how the charity takes an audience-led approach to planning, decision-making, and communications, as our CRM, data infrastructure, and Strategy & Insight functions continue to develop. Making best use of internal and external sources, you will distil data into meaningful insight, tailored to different audiences. You will support a consistent approach to audiences across the organisation, while flexing to meet the needs of different teams, ensuring that any understanding of audience is rooted in evidence.
Safeguarding
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The client requests no contact from agencies or media sales.
Harris Hill has an exciting opportunity for an experienced Events Fundraiser, to support a charity for 2 to 3 months, covering long term sick leave.
This role will start on the 18th May, and can be a remote role however, they would like the successful candidate to go into the office on the first week to meet people.
The role will support the charity during a busy period, whilst they gear up for two £100k events in the next 2 months. These events will walking events, so we'd ideally like someone who has experience of supporting similar challenges/ community events.
The first walk is require you to deliver the remaining actions of the walk, and the second event you will act as event lead. You will also deliver post events activity and evaluations.
If you are immediately available, please apply for more info.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Description:
We are seeking a Health and Science Information Manager to lead the development of highquality health information and research communications for people affected by polycystic kidney disease (PKD). This is an exciting opportunity to shape how individuals access, understand and engage with trusted information throughout their journey, from diagnosis and day-to-day management, to the latest scientific and clinical research developments. In this role, you will oversee our extensive portfolio of patient information resources, ensuring all content is accurate, accessible, evidence-based and aligned with the PIF TICK quality standard. You will identify opportunities to create new and engaging resources that meet the evolving needs of the PKD community, using innovative approaches to improve how information is delivered across multiple channels. A key part of the role will be translating complex scientific and medical research into clear, compelling and patient-friendly content. You will help increase awareness of clinical research opportunities, communicate emerging developments in PKD science, and support greater understanding of how research can shape future treatments and care. We are looking for someone with strong strategic thinking, excellent editorial judgement, and the ability to communicate complex health and scientific information with clarity and empathy. This role would suit someone passionate about improving lives through trusted health information while helping connect people to the future of PKD research.
RESPONSIBILITIES:
Health information management and quality:
• Support the development and management of the PKD Charity’s health information portfolio across digital and print platforms
• Ensure all content meets PIF TICK standards, including robust processes for development, review, updating and governance
• Maintain oversight of the full information catalogue, ensuring content is accurate, consistent and aligned with current clinical guidance
• Work with clinicians, researchers, and people with lived experience to co-produce and review content Content development and user need
Content development and user need:
• Identify gaps in current provision and lead the development of new information resources
• Ensure content is clear, accessible, inclusive, and tailored to the needs of different audiences
• Use patient insight, feedback and data to continuously improve the quality and usability of information Innovation in information deliver.
Research and science communication:
• Explore new ways of delivering information beyond written formats (e.g. video, audio, webinars, digital tools)
• Improve how information is presented and accessed across the website and other platforms
• Stay up to date with best practice in health information and digital engagement Research and science communication
• Monitor developments in PKD research, treatments, and clinical trials
• Translate complex scientific and medical information into clear, engaging, and accurate content for non-specialist audiences
• Work with the Communications Manager and wider colleagues to plan integrated campaigns, awareness activity and audience engagement.
• Develop compelling stories, updates and features that bring research to life and show its relevance to people affected by PKD.
• Work with colleagues to increase awareness, understanding and interest in PKD research.
Building engagement with research:
• Help create a culture of interest and engagement in research across the PKD community
• Develop content that builds understanding of how research works and why it matters
• Support communication around studies and clinical trials to ensure patients feel informed.
Collaboration and stakeholder engagement
• Work collaboratively across the organisation to ensure consistency and alignment in messaging
• Build relationships with healthcare professionals, researchers, and external partners
• Involve patients and volunteers meaningfully in content development and review
Quality, monitoring and impact:
• Monitor the reach and effectiveness of health information and research communications
• Maintain accurate records of content review cycles and updates in line with PIF requirements
• Use insight and evaluation to continuously improve content and delivery
ABOUT YOU:
• Strong Content and Editorial Skills: You have experience producing high-quality written content, with excellent attention to detail and the ability to present complex topics clearly and accurately.
• Health or Science Communicator: You have experience working with health, medical or scientific information and can translate technical material into accessible language for public audiences.
• Collaborative Relationship Builder: You work well with others, build positive working relationships quickly, and enjoy partnering with colleagues across different functions to achieve shared goals.
• Confident Team Player: You are comfortable working closely with colleagues such as communications, fundraising, support and leadership teams, contributing ideas and supporting collective priorities.
• Strategic and Proactive: You can see the bigger picture, identify opportunities for improvement and take initiative to drive projects forward.
• Organised and Self-Motivated: You are comfortable managing your own workload, balancing priorities and delivering high-quality work in a remote setting.
• Values-Driven: You are motivated by improving lives, empowering patients with trusted information and supporting progress in PKD research.
HOW TO APPLY:
For information on how to apply, please read the job pack for further details.
The client requests no contact from agencies or media sales.
Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
Job Summary
As the Senior Public Affairs and Campaigns Officer, and with the support of the Senior Public Affairs and Campaigns Manager you will be responsible for the development, implementation and monitoring of public affairs and campaigns activity in order to achieve real change through influencing policy and legislation on health services which impact the lives of people affected by bowel cancer in England, with a particular focus on Westminster.
Safeguarding
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The client requests no contact from agencies or media sales.
Location(s)
This position is open to candidates currently based in Scotland, in line with the role’s operational requirements. The role is home-based with in person attendance to our ‘All Staff Days’ in London (5 per year), team meetings (roughly 6 meetings per year) and occasional travel to other meetings and Westminster as required. Where possible, these are combined with an overnight stay.
London office: AdviceUK, 83 Victoria Street, London, SW1H 0HW
Job Title: Policy and External Affairs Manager (Scotland)
Employment Type: Part-time
Reporting to: Head of Policy, Programmes and Media
Pay scale: £40,000 - £42,500 Full time equivalent (Actual salary £32,000-34,000)
Interview: In person interviews will take place on Friday 29th May at our London office
Working hours: 28 hours per week (4 days/0.8) within normal operating hours. Flexible working arrangements will be considered. (Normal operating hours are 8.00am - 6.30pm, Monday – Friday.) Lunch & other breaks are unpaid.
Special conditions: Some evening and weekend work may be required for which time off in lieu (TOIL) will be granted. Some travel will be required which may entail some overnight stays.
We are committed to diversity and inclusion and welcome applications from all backgrounds, particularly encouraging those from underrepresented groups.
CHARITY OVERVIEW
Since 1979, AdviceUK has been supporting advice organisations by helping them to be efficient, competent and effective, and by campaigning for a policy environment that supports advice agencies and people needing advice.
We are both a membership body and charity. We support our 700+ members (109 of which are located in Scotland) to provide advice to around 2 million people every year. We are working towards a world in which every individual, regardless of means, is able to access the advice they need to exercise their rights and deal with any legal and social welfare challenges they may face.
JOB PURPOSE
To set up and manage our policy and public affairs activities in Scotland ensuring AdviceUK has a strong voice, so we can secure policy change to benefit organisations delivering advice and the communities they serve. The post holder will be responsible for establishing AdviceUK’s first policy and influencing strategy for Scotland, including through developing policy solutions informed by strong evidence and rooted in member experience, and leading effective political and stakeholder engagement which will influence change. They will work closely with colleagues across the UK to join up policy, influencing and communications work.
KEY TASKS AND RESPONSIBILITIES
1.Strategy
1.1 Develop AdviceUK’s first policy and influencing strategy for Scotland, through consultation with members and stakeholders and analysis of the landscape and opportunities in Scottish policy making.
1.2 Put plans in place to roll out a specific programme of proactive and reactive policy work to further AdviceUK’s strategic aims in Scotland and represent the voices of Scottish members.
1.3 Devise measures to monitor the impact of our policy and influencing work in Scotland and report back to staff, trustees, members and stakeholders about the difference we are making.
2.Policy development
2.1 Collaborate with AdviceUK members, partners, sector stakeholders and
beneficiaries to develop clear, concise and authoritative policy positions on key issues.
2.2 Produce high-quality, well-argued policy materials based on data and evidence, including reports, select committee responses, evidence statements, briefings and responses to Scottish Government consultations.
2.3 Provide policy input for media statements, press releases and social media posts relating to Scotland, which are managed by the Press Officer and Digital Marketing Officer.
2.4 Develop an expert knowledge of policy issues affecting Advice UK members, keep up to date on the political and legislative environment and identify opportunities to use these to further Advice UK’s strategic objectives.
2.5 Represent AdviceUK at policy and/or sector meetings and events.
3. Public affairs
3.1 Roll out a programme of public affairs work including Scottish parliamentary engagement to promote AdviceUK’s strategic priorities.
3.2 Build and maintain effective relationships with stakeholders across the Scottish Government and parliament, local and decision makers, non-governmental bodies and other relevant stakeholders.
3.3 Champion an evidence based approach to all Advice UK’s advocacy and external relations work, drawing on research and member insight to inform our campaign messages.
3.4 Ensure regular opportunities for Advice UK members in Scotland to feed into our public affairs and advocacy work, and regular communications on our impact, to demonstrate how we amplify their voice.
3.5 Monitor and evaluate public affairs work, including collecting relevant metrics, to report back on our success and inform future campaigns.
4. Research and data
4.1 Work with Policy, Programme and Media (PPM) colleagues as well as the wider AdviceUK team to develop the evidence base needed to inform our policy and campaigns work in Scotland.
4.2 Work with the Research and Policy Analyst to carry out analysis that identifies emerging trends in the Scottish advice world and use this to provide evidence-based policy briefings and specific policy solutions.
5. General duties
5.1 Ensure you effectively communicate Advice UK’s vision, mission and objectives to staff, members and external stakeholders.
5.2 Ensure you demonstrate Advice UK’s values and behaviours in all aspects of your work
5.3 Build and maintain positive relationships with key stakeholders including staff trustees; members, partners and suppliers
5.4 With support from your manager, deliver your agreed personal objectives and undertake any agreed development or training
5.5 Maintain a strong understanding of our members and the advice sector more generally, by reading internal reports; accessing relevant data reports; following our social media channels and, where possible, attending member and other relevant events. With the agreement of you line manager, ensure you make time to speak to members and visit their services.
5.6 Adhere at all times to Advice UK’s policies and procedures
5.7 Carry out any reasonable duties compatible with the post assigned by your line manager
Our purpose is to improve the lives of people in need of advice. We do this by supporting our members, so it is easier for them to help their clients.
The client requests no contact from agencies or media sales.
Mass Participation and Events Fundraising Lead
We are seeking an experienced leader to drive forward the development and implementation of the events and mass participation fundraising strategy.
Position: CE405 Mass Participation Lead
Location: Home-based, UK Nationwide. However, frequent travel will be required as part of this role (may include team meetings or other work-related meetings)
Hours: Full-time, 35 hours per week
Salary: Circa £49,000 per annum (inner London weighting £3,950 per annum/pro rata or outer London weighting £2,457 per annum/pro rata may be applied in accordance with where you live)
Contract: Permanent
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.
Closing Date: 5 June 2026 Midnight
Interview Date: 16 and 17 June 2026. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you email your application.
The Role
Reporting to the Head of Regional Fundraising this is an exciting role leading our ambitious vision for this area of our team. Worth currently over £2m annually we are looking to grow our income from third party and owned products and events.
You will provide strategic leadership to the Mass Participation team (2 direct reports and accountability for a further 6) as well as playing an active leadership role across the Regional Fundraising Team and Mass Engagement department, contributing to the wider directorate goals and objectives.
You will be an innovative thinker with the ability to review our existing programme, the wider market environment and identify opportunities for supporter acquisition, engagement, and retention. You will oversee a customer-centric approach where supporters receive an outstanding experience and feel proud of their continued contribution.
Key responsibilities will include:
· Developing strategy for events and mass participation products
· New fundraising product development
· Strategic leadership of a geographically dispersed team, embedding a culture of high performance
· Setting meaningful income and expenditure budgets and being able to accurately re-forecast putting action plans in place to mitigate shortfalls.
About You
We are looking for someone with experience of:
· Delivering targets with successful outcomes.
· Developing strategy for events and mass participation products
· Project planning and problem solving.
· Delivering formal presentations and public speaking.
· Budget development, planning and forecasting and an understanding of risk, mitigation and contingency planning.
· Achieving annual income and expenditure targets.
· Recruiting, managing, motivating, developing and training staff and/or volunteers.
· Analysing and interpreting data.
You will need a full driving licence and own vehicle (or can demonstrate that you meet the travel requirements of the role which include travelling extensively across the region/country).
To fulfil the role, you must be a resident of the UK and have the right to work in the UK.
Applications
Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.
You will be able to view the role profile when you apply.
Stroke Association
Finding strength through support
The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
We’re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of our supporters and donors that we can provide vital support.
Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.
We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.
We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.
You may also have experience in areas such as Mass Participation, Mass Participation Manager, Mass Participation Officer, Challenge Events, Events Lead, Fundraising Events Lead, Events Fundraiser, Events Fundraising, Regional Fundraiser, Supporter Engagement, Community Fundraiser, Participation, Individual Giving.
Please note this role is advertised by the recruitment agency acting for the client – Not For Profit People
We are looking for a highly motivated and organised individual with the ability to manage teams, build strategic relationships with employers to grow the Living Wage network, and develop projects that will grow our accreditations schemes and proactively influence change across a broad range of stakeholders in public life.
- Develop and deliver strategies, working collaboratively across the organisation.
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Direct a team and line manage multiple staff and freelancers, supporting them to deliver projects and contribute to the LWF business plan.
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Monitor and evaluate the impact of our work to refine our strategy, deliver projects effectively and demonstrate the value of the real Living Wage.
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Clearly communicate the evidence for positive change to grow the Living Wage movement. Encourage employers and key stakeholders to become champions of the Living Wage movement.
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Oversee accreditation processes, identify and implement improvements to make our work more efficient.
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Build and manage relationships with key stakeholders, policy makers and employers to support them to pay the real Living Wage and seek accreditation.
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Create, develop and employ the tools and knowledge available to inform and advise employers on implementing the Living Wage throughout their organisation.
Remote role with travel across the UK particularly to Birmingham.
The client requests no contact from agencies or media sales.
What does it take to lead the national voice for special schools at a time of real change?
Chief Executive Officer (CEO) – National Association of Special Schools (NASS)
National – home-based, with regular travel across England and Wales, particularly London
£90,000–£110,000 per annum
Full-time, permanent.
About NASS
The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.
We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.
This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.
As our next Chief Executive, you will:
- Strategy & Impact: Lead NASS through a period of policy and structural change, ensuring the organisation remains clear on purpose, responsive to members and influential in the SEND landscape.
- Governance & Finance: Work closely with the Board of Trustees to provide strong governance, prudent financial stewardship, robust risk management and clear strategic oversight.
- Operational Leadership: Provide confident leadership to a small, remote team, strengthening collaboration, accountability, resilience and a positive, high-trust culture.
- Income Generation: Oversee budgeting, planning and reporting while developing thoughtful opportunities to diversify income through membership, partnerships, events and related activity.
- Community & Partnerships: Build and sustain trusted relationships with government, parliament, regulators, sector bodies and member schools, ensuring NASS remains relevant and well connected.
- Member Services: Protect and enhance the practical offer to members, from briefings and special interest groups to conferences, webinars, training and peer-to-peer learning.
- Brand & Profile: Act as a credible public ambassador for NASS, helping to modernise communications and broaden the organisation’s voice beyond a founder-shaped model.
- Future Growth: Shape a distributed leadership profile and support a more varied, accessible and engaging approach to membership, advocacy and communications.
- A seasoned senior leader with experience in a charity, membership body, education or public sector setting, and a clear track record of leading through change.
- A strong strategic thinker, able to absorb complex information quickly and translate it into clear, practical direction.
- A confident communicator with the gravitas to represent NASS with members, staff, trustees, MPs, peers, media and national partners.
- A politically astute relationship-builder, comfortable navigating a complex and fast-moving external environment.
- Experienced in governance, with a sound understanding of working with boards or trustees and supporting effective decision-making.
- Numerate and commercially minded, with experience of budgets, financial planning, income generation or partnership development.
- Credible, approachable and resilient, with the emotional intelligence to lead well in a high-profile, remote and sometimes uncertain context.
- Direct SEND experience would be a significant advantage, alongside understanding of specialist education or similarly complex stakeholder environments.
Why NASS?
- This is a chance to lead a respected, member-led organisation with a strong national reputation and a clear public purpose.
- You will help shape the future of specialist education at a time when SEND reform is high on the agenda.
- NASS has a loyal, experienced and collegiate remote staff team, supported by an active Board of Trustees.
- The organisation offers a genuinely influential platform, with strong connections across the sector and with government.
Application
For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.
Closing date for applications: 9am, Monday 8th June 2026
As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
- Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
- Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear
- Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
- Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.

