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Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 3 days ago Apply Now
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Katherine Low Settlement, Battersea (On-site)
£30,000 pro rata
Passionate about youth work? Lead engaging youth clubs and activities that help to shape brighter futures at KLS.
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£94,592 per year
We are looking for a Deputy Director to join the Health and Care Policy Team at The Health Foundation
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Single Homeless Project, Westminster (On-site)
Starting at £29,822.41 and rising incrementally to £32,034.46 per annum
Support people moving on from rough sleeping to settle, sustain tenancies and build confidence for the future.
Posted 6 days ago
Harris Hill Charity Recruitment Specialists, Epsom (Hybrid)
£30k per year
Posted 2 weeks ago Apply Now
Closing in 3 days
The National Churches Trust, Westminster (Hybrid)
£11,200 – £13,600 per annum (£28,000 – £34,000 FTE)
Join us as a part-time Data and Impact Officer and help keep churches open and in use.
Posted 1 week ago
Closing in 7 days
Linacre College, Oxford, Oxfordshire (Hybrid)
£23,020 per year (£38,366 per year pro rata for 0.6FTE)
Posted 1 week ago
Closing in 4 days
The National Academy for Social Prescribing (NASP), London (Hybrid)
£30,385 per year
Posted 3 weeks ago
The King's Trust, Multiple Locations (On-site)
£45,000 - £65,000 per year
Posted 1 day ago
Page 29 of 43
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.