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Stop Domestic Abuse, Havant, Hampshire (Hybrid)
£36,547 - £39,372 per year
Posted 1 day ago Apply Now

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Spear - Inspiring Work, Cheltenham (On-site)
from £31,639 to £34,390 pa depending on experience
Posted 1 week ago
Housing Justice, London (Hybrid)
£44,203 per year
Lead our London community‑powered homelessness prevention work as Citadel Manager, driving partnerships, impact, and volunteer-led support.
Posted 1 week ago
Closing in 4 days
Walk Wheel Cycle Trust, United Kingdom (Hybrid)
£37,142 per annum (pro rata for part time)
Posted 1 week ago
Closing tomorrow
National Autistic Society, Hybrid (Hybrid)
£27,284 - £30,000 per annum
Posted 4 weeks ago Apply Now
Closing in 5 days
Harris Hill Charity Recruitment Specialists, Surrey (Hybrid)
circa £60,000 FTE (PAYE)
Posted 1 week ago Apply Now
Jack Petchey Foundation, London (Hybrid)
£34,908 per year (pro-rata 0.6FTE £20,943)
Our team of Grants Officers support schools and youth organisations to join and run our flagship Jack Petchey Achievement Award Scheme.
Posted 1 day ago
Closing in 7 days
Tibet Relief Fund, NW1, London (On-site)
£17,600 - £18,500 per year
Posted 3 weeks ago Apply Now
Page 26 of 34
Wolfram Syndrome UK
Remote
£14,100 - £15,600 per year
Part-time (0.5 FTE)
Permanent

Using Anonymous Recruitment

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Job description

Wolfram Syndrome UK (WSUK)

WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. For further information visit the Wolfram Syndrome UK website 

WSUK Adult Support Co-ordinator Role

WSUK is seeking a part-time adult support co-ordinator (2.5 days per week, working over 4-5 days, 0.5 FTE, £14.1k-£15.6k per annum), based in the Midlands area. This home-based role will provide support to WS affected adults and their families to help improve the quality of their lives. Through liaising with professionals (including the WS expert clinical team at Queen Elizabeth Hospital (QEH), Birmingham), external or advocacy organisations, this role will help facilitate access to the services to which WS affected adults and their families are entitled. The adult support co-ordinator will help adults and their families to increase their confidence and independence in living with their condition. This role will also act as an important point of contact for WS affected adults, providing advice and support in confidence.

Skills and experience

Applicants should have several years’ experience in a similar position, working with people affected by sensory loss, long-term medical / genetic condition, or disability. Applicants should also have a strong desire to help improve the lives of adults living with a long-term condition or disability and be confident in talking with people with a range of abilities and diverse cultural backgrounds.

Applicants should have experience in working effectively as part of a remote team, be confident in working independently and in managing conflicting priorities.

Some limited UK travel will be required (particularly to meet WS affected adults during their WS clinic visit at QEH, Birmingham (6 clinics per year) and the annual WS conference. An enhanced DBS check will be required.

Application resources
Organisation
Wolfram Syndrome UK View profile Organisation type Registered Charity Company size 1 - 5
Posted on: 24 March 2026
Closing date: 17 April 2026 at 12:58
Job ref: ASC 2026
Tags: Advice / Information, Fundraising, Advocacy, Blind, Deaf, Health / Medical, Wellbeing, Events / Activities

The client requests no contact from agencies or media sales.