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Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 1 week ago Apply Now
Closing tomorrow
Refugee Council, London (Hybrid)
£41,013 to £44,235
Posted 1 week ago

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Weston Park Cancer Charity, Sheffield (Hybrid)
£32,889 - £38,978 per year
The Communications & PR Manager will play a critical role in telling our story.
Posted 1 week ago
Closing in 3 days
English+, Norwich, Norfolk (Hybrid)
£20,280-25,000 (FTE £40,560-50,000)
Posted 3 weeks ago
Chinnor Village Centre, Chinnor, Oxfordshire (On-site)
£26,241 FTE (£8,397 pro rata)
The Clubs Coordinator will help with supporting our activities for older people, including those with dementia.
Posted 4 days ago Apply Now
Rainbow Trust Children's Charity, Multiple Locations (Hybrid)
£24,000 pa + Company Car and benefits (including 25 days annual leave, reward scheme and pension)
Deliver a high-quality family support service as part of our team to families in the local area, at a time where they need it most.
Posted 1 day ago
Closing in 7 days
Church Action on Poverty, Remote
31,022 per year (pro rata)
Are you someone who is organised, logical & comfortable working with numbers, who wants to use their finance skills for a cause that matters
Posted 2 days ago
First Give, London (Hybrid)
£16,817 (£28,028 FTE)
We are seeking an enthusiastic, proactive and motivated administrator seeking a varied part time and flexible role at a growing charity
Posted 4 days ago
Rochdale and District Mind, Rochdale, England (Hybrid)
£60,000-£65,000 DOE (£48,000-52,000 for 28 hours)
Posted 6 days ago
OCVA, Oxford, Oxfordshire (Hybrid)
£50,240 per year FTE
Inspire, connect and champion Oxfordshire’s voluntary and community sector as Chief Executive of OCVA
Posted 1 week ago Apply Now
Closing in 5 days
Pancreatic Cancer UK, EC3R, London (Hybrid)
£37,605 per year inclusive of London weighting plus benefits
Posted 1 week ago
Page 8 of 12
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.