Head of fundraising jobs for the Disability sector

About The Advocacy Project

We help people speak up and make decisions about their health, wellbeing and social care. We’re here to make sure people who are vulnerable because of their circumstance can understand their rights, make effective choices about their lives and voice their concerns.

Some of the ways we do this include:

· advocacy services that make sure people can express their wishes when decisions are being made about their care or wellbeing

· user involvement projects that help organisations improve what they offer by listening to people who use their services

· local Healthwatch services, which act as health and social care champions for the areas they serve and give people a direct channel to share their feedback

Our services are independent, confidential, and free to those receiving them. Together, our teams are standing up for essential rights and supporting people to have a say on the issues that matter to them.

About the role

We are seeking a skilled Bid Writer to work alongside our Head of Business Development to secure vital funding through tenders and trusts and foundations. If you have experience of winning income for front line services (especially advocacy), we would be particularly delighted to hear from you.

Key responsibilities

î  Identify pipeline tenders.

î  Manage and write tender submission

î  Produce highly quality proposals for trusts and foundations working closely with staff and service users

î  Produce best practice toolkit

î  Manage funder communications and reporting.

î  Assist with other funding applications as required

Experience and skills

î  Proven success as a bid writer in the charity sector.

î  Ideally experience in Advocacy or user involvement

î   Proven experience with large grants, tenders, and government contracts.

î  Highly IT proficient with experience of using AI to support in bid preparation

î  Ability to work collaboratively

î  Be highly organised and self-motivated with a proven ability to work to tight deadlines

î  Proactive, dynamic, able to work effectively independently

î  Strong writing, research, and communication skills.

î  Knowledge of fundraising regulations, GDPR, and best practices.

î  Strong understanding of EDI principles and how to apply them in your work

Benefits of working for us

We’re committed to providing an empowering, flexible and supportive working environment for all our staff.

Our employee benefits include 30 days annual leave (including up to 3 days between Christmas and New Year), participation in a pension scheme with 6% employer contribution, access to a free confidential counselling service, and an interest-free travel/bike loan.

All our staff are supported to learn and develop in a variety of ways, including a monthly lecture series where we invite sector experts to talk to our staff on topical issues.

We are a Disability Confident and Mindful Employer.

Working within the aims, policies and principles of the Citizens Advice Service, the Head of Impact and Development is responsible for driving the charity's strategic initiatives to enhance its reach, impact, and sustainability. This role encompasses fundraising, partnership development, and service expansion. The ideal candidate will be a visionary leader with a passion for social impact and a proven track record in growth strategy within the nonprofit sector. 

Location: Hybrid, attached to either The Grange in Buckinghamshire or Beatrice Wright Centre in Yorkshire. Regular UK travel required.
Salary: £60,000 per annum
Contract: Full-time, permanent

Hearing Dogs for Deaf People is seeking an experienced and inspiring fundraising leader to grow community fundraising and events income, helping more people who are deaf or have hearing loss reconnect with the world around them.

Hearing Dogs for Deaf People transforms lives through the unique partnership between a person and a highly trained hearing dog, while also providing practical and emotional support that builds connection, companionship and confidence. As the charity continues to expand its reach and impact, community fundraising, events and volunteering will play a vital role in helping more people access this life-changing support.

Reporting to the Director of Income Generation, you will lead the development and delivery of an ambitious community fundraising and events strategy, driving sustainable income growth and deepening supporter engagement across the UK. You will oversee a diverse portfolio of community activity and events, building strong relationships with supporters, volunteers, local groups and organisations that share our commitment to improving the lives of people with hearing loss.

Leading a passionate and motivated team, you will create opportunities for supporters to fundraise, volunteer and advocate for Hearing Dogs in their communities. You will also work closely with colleagues across fundraising, communications and service delivery to maximise engagement, strengthen supporter journeys and embed legacy giving within community activity.

The successful candidate will bring significant experience of community and/or events fundraising, with a strong track record of delivering income growth and supporter engagement. They will be a confident and collaborative leader, capable of developing strategy, inspiring teams and empowering volunteers, while using insight and data to drive performance and innovation.

This is an exciting opportunity to shape the future of community fundraising at a much-loved charity, helping more people live well with hearing loss through connection, companionship and confidence.

Please download our Candidate Pack [PDF] for further information, including details on how to apply.

Role closes for applications Wednesday, 24th June
 

This is an opportunity to play a leading role in shaping the future of Resources for Autism.

Since 1997, we have supported autistic people and their families through services that are safe, empowering and neuro-affirming. As demand for our work continues to grow, we are looking for an ambitious and strategic Head of Income Generation & Business Development to help us build a stronger, more diverse and sustainable future.

Reporting to the CEO and joining our Senior Leadership Team, you will lead the development of a progressive income generation strategy that expands new partnerships, income streams and opportunities for growth — ensuring we can continue delivering life-changing support to autistic people across London and the West Midlands. 

We are looking for someone who combines commercial awareness with creativity, relationship-building and a genuine commitment to social impact.

LOCATION: London (or Birmingham with regular travel to London)

SALARY: £50,000 - £56,000 depending on experience

HOURS: Full time

The Role

You will design and deliver a new income generation strategy that unlocks growth across:

· Corporate partnerships

· Major donors and philanthropy

· Community, individual and digital giving

· Earned and paid‑for services

· Grants, trusts and public sector funding (as part of a balanced mix)

· Recurring /regular donations from committed individuals

You will take an “intrapreneurial” approach — spotting opportunity, building new propositions, testing ideas and learning quickly — while embedding a culture where income generation is seen as a shared organisational priority, not the responsibility of one team.

Essential Experience & Track Record

• A demonstrable track record of generating income and/or building sustainable revenue streams, across more than one income source.
• Evidence of developing and delivering an income or growth strategy, particularly in contexts requiring diversification or change.
• Experience of driving new opportunities — such as partnerships, products, services or supporter propositions — rather than only maintaining existing income.
• Proven success in building and stewarding senior relationships, including corporates, funders, donors, commissioners or strategic partners.
• Experience working at a senior level within an organisation, with exposure to executive decision‑making and governance (e.g. Board or Trustee engagement).

Essential Skills

· Demonstrable evidence of success and business growth

· Experience and success in one or more of the following:

• Corporate partnerships or sponsorship

• Major donor / philanthropy programmes

• Earned or paid for services/ sales

• Community or digital fundraising

· Experience developing and delivering successful strategies.

· Evidence of successful relationship-building skills with funders, donors, corporate partners or others.

· Experience managing or mentoring staff or volunteers.

· Strategic thinker with the ability to work collaboratively across teams and with senior stakeholders.

· Good market research and data analysis skills that have influenced decisions

· Experience contributing to or leading at organisational growth.

· Highly organised, with the ability to manage multiple priorities and deadlines.

· Excellent communication skills (written and verbal) adaptable to different populations including: colleagues, external professionals, service users, families, volunteers, donors

Desirable Skills

· Understanding of and commitment to adhering to fundraising policies, ethical standards, and relevant regulatory frameworks (e.g. Fundraising Regulator Code of Practice, GDPR).

· Experience in minor/major donor fundraising and/or corporate partnerships.

· Familiarity with the autism or disability sector.

Staff Benefits 

90% of our staff say that Resources for Autism is “a great place to work”. 

Not only will the work you do ensure we are making vital differences and inspiring others, but our other benefits also include: 

· 25 days of leave (pro rata for part time roles) each year plus 8 bank holidays and an additional 3 Celebration days that could be used between Christmas and new year, but may be used for other religious days or significant days such as your birthday 

· access to ongoing training and progress in the areas that interest you 

· access to our wellbeing initiatives and an Employee Assistance Programme 

Application Process

Read more about us and the role on our website

To apply, you will need to complete our application form in full, including your full employment and education history. Any gaps in employment should be clearly explained within your application.

Please note that CVs may be included as supporting documents but will not be accepted in place of a completed application form.

As part of your application, we ask that you provide a personal statement outlining how your experience, skills and approach meet the requirements of the role and person specification.

Fundraising Manager — £35,000–£40,000 | Hybrid / Somerset / Bristol | Permanent | 35 hrs (flexible)

Thrive has been at the heart of Somerset's communities for 100 years. Village agents supporting isolated older people. Diverse communities programmes. Fuel poverty campaigns. Real, local, human work — delivered across every corner of the county.

This centenary year, Thrive is building its next chapter. A new chief executive has reset the strategic direction. Community energy is building. And the organisation has made a clear decision: it wants a sustainable fundraising base that isn't dependent on statutory contracts alone.

This role is the cornerstone of that ambition.

This isn't a maintenance hire. It's a builder's role.

The Fundraising Manager will lead across community fundraising, individual giving and trusts and foundations — with community and individual giving as the primary focus. The tools are in place. The mission is compelling. The stories are extraordinary. Thrive already has the reach, the relationships and the centenary momentum. What's missing is the right person to build the pipeline and turn that momentum into lasting income.

The target: 2,000 active supporters by year end, with a clear pathway to converting them into regular givers over time.

What you'll be doing:

• Building a structured community fundraising programme — creating frameworks that enable supporters, staff and volunteers to fundraise on Thrive's behalf
• Growing the individual giving base from a low starting point — developing supporter journeys, regular giving and stewardship
• Managing a grants pipeline and writing compelling applications to trusts and foundations
• Leading digital acquisition campaigns in partnership with the marketing team
• Line managing the Fundraising Administrator and helping them develop grant-writing skills over time
• Helping build a fundraising culture across the organisation where frontline staff feel part of the story

What we're looking for:

• A track record in community fundraising, individual giving or events fundraising
• Some experience of trusts and foundations — this doesn't need to be your primary specialism
• Strong written skills — the ability to translate real human stories into compelling fundraising copy
• A self-starter who works well with autonomy in a small team
• Genuine connection to Thrive's mission and the communities it serves
• Based in Somerset or within easy reach of Taunton — primarily home-based with approximately one day per week in the office

What Thrive offers:

• £35,000–£40,000 FTE
• Genuine flexibility — hybrid working that actually reflects how the organisation operates
• A values-led culture where kindness, compassion and psychological safety aren't just policies
• 25 days annual leave plus bank holidays
• Real scope for career progression — if the fundraising function delivers, the trajectory in salary, responsibility and seniority is genuine

This role will suit you if:

You want to be a Head of Fundraising one day. You're frustrated by being siloed. You want breadth, autonomy and the chance to build something that matters — in a place where the mission is real and the communities are real.

This role is being recruited exclusively through Raise + Recruit, an independent not-for-profit executive search adviser. All enquiries are handled in complete confidence.

For a confidential conversation, contact John Austin — no obligation, no lengthy application process at this stage.

GRANTS MANAGER

Location: The Music Works Hub, Gloucester/Remote Hybrid (minimum 2 days/week in the Gloucester Hub)

Contract: Permanent Hours: Full-time, 37.5 hours, part time 0.8 considered

Report to: Head of Fundraising

Salary: £32,000–£34,500 Closing Date: Monday 29th July, 5pm, although short-listing will be on a rolling basis, and we reserve the right to close recruitment early if the right candidate is found. 

ABOUT US

The Music Works (TMW) is a Gloucestershire charity that transforms young lives through music. We’re specialists in working with young people in challenging circumstances to help them reach their full potential in music, learning and life. We work with over 4,000 young people a year in schools, through open access and referral programmes at our inclusive music hubs in Gloucester, and the Forest of Dean and via our Creative Careers programmes. Our approach is youth-led, with young people involved at every stage of planning and delivery. Here is an introduction to our work: About The Music Works

THE ROLE

We’re looking for an experienced and motivated Grants Manager to join our fundraising team and support the development of our grants and trusts income, from research and writing through to reporting and funder relationships. The successful candidate will play a central role in the fundraising team, working closely with the Head of Fundraising to manage the end-to-end process of our trusts and foundations income.

Core responsibilities will include writing and submitting funding applications, managing active grants and funder communications, leading on reporting, and maintaining our funder stewardship plan. This role would suit someone with a proven track record in trust and foundation fundraising who is confident working independently, motivated by making a difference, and ready to play a key part in sustaining and growing our work.

About The Advocacy Project

We help people speak up and make decisions about their health, wellbeing and social care. We’re here to make sure people who are vulnerable because of their circumstance can understand their rights, make effective choices about their lives and voice their concerns.

Some of the ways we do this include:

· Advocacy services that make sure people can express their wishes when decisions are being made about their care or wellbeing

· User involvement projects that help organisations improve what they offer by listening to people who use their services

· Local Healthwatch services, which act as health and social care champions for the areas they serve and give people a direct channel to share their feedback

Our services are independent, confidential, and free to those receiving them. Together, our teams are standing up for essential rights and supporting people to have a say on the issues that matter to them.

About the role

The Advocacy Project vision is clear: everyone should have a voice. We work tirelessly to ensure that those who are often unheard or whose wishes are dismissed are heard and their rights upheld.

We believe passionately that everyone should have equal outcomes when accessing health and social care services, and we all live our values everyday showing up with kindness, strength, honesty and belief in the work we do. Our work makes a difference, but we need to reach more people and change more lives; can you be part of our journey? 

You will be joining The Advocacy Project at a critical time as we enter the second year of our new strategy.  Key to the success of the new strategy is developing a sustainable business model that moves us from a reliance on statutory income to a mixed portfolio of funding including trusts and foundations and paid for services.  Focussing on growth we are looking to secure at least £250,000 new income annually while maintaining our current income levels, we aim to double our income by the end of our strategy in 2030.

As part of our senior leadership team, you will be agile and collaborative, a fundraising professional who has developed and delivered an income generation strategy and achieved income growth across multiple income streams, including developing commercial income streams, grants and statutory income. You will be hands on, getting stuck into applications, prospecting, communicating, and developing new income opportunities. Building strong relationships with staff, volunteers and service users, you will also have the ability to engage with stakeholders and build relationships externally. You will develop evidence-based and impact-led cases for support for various projects and must be able to unlock growth, develop new approaches and help communicate our impact.

You will build and lead a small, effective and positive fundraising team.

Key responsibilities

• Developing our income strategy to ensure we reach our financial and strategic goals.
• Chairing the Business development and fundraising committee
• Further developing trust and foundations pipeline, growing income and identifying new opportunities.
• Further develop our commercial income opportunities including training, consultancy and paid for services.
• Overseeing all tender submissions including building the pipeline and writing or commissioning tender writers.
• Working with the CEO and our comms officer to ensure our Comms and Income generation strategy are aligned.
• Recruiting and managing bid writers as required. 
• Working with our Finance team to ensure all donations are collected and recorded correctly, holding budget responsibility for fundraising and cooms.
• Building our case for support, working closely with staff and service users to understand their lived experience.
• Representing The Advocacy Project with funders, commissioners and external partners
• Ensure the Board of Trustees are regularly updated on the progress of income generation and our comms engagement, using a transparent and consistent reporting framework.
• Embed a fundraising culture within The Advocacy Project.

About you

We’re looking for someone with a significant success and experience of impactful charitable fundraising across diverse income streams especially from trust and foundations.

You must be passionate about our work the role of advocacy and involving service users in design.

Essential

î  Effective line management skills and ability to deliver alongside and through small team.

î  Experience of developing trust and foundations pipelines, bid writing and evidenced success of winning significant funding.

î  Experience of statutory services and tender submissions

î  Experience of developing new income streams.

î  Experience of delivering to targets, including a strong understanding of risk and how best to manage it

î  Knowledge of fundraising regulations, GDPR, and best practices

Desirable

î  Experience of working as a senior leader within a third sector, public sector, or voluntary organisation, including setting strategy and managing change

î  Experience of designing and delivering commercial income streams including business to business and direct to consumer products

î  Previous experience in an Advocacy/user voice organisation

î  Previous experience of co production.

Skills

î  Strong leadership and management skills

î  Ability to work collaboratively and lead change effectively

î  Be highly organised and self-motivated with a proven ability to work to tight deadlines

î  Positive, creative, entrepreneurial, and solutions focused.

î  Proactive, dynamic, able to work effectively independently.

î  Ability to problem solve and think creatively

î  Confident networker, with strong communication skills.

î  Strong understanding of EDI principles and how to apply them in your work

Benefits of working for us

We’re committed to providing an empowering, flexible and supportive working environment for all our staff.

Our employee benefits include 30 days annual leave (including up to 3 days between Christmas and New Year), participation in a pension scheme with 6% employer contribution, access to a free confidential counselling service, and an interest-free travel/bike loan.

All our staff are supported to learn and develop in a variety of ways, including a monthly lecture series where we invite sector experts to talk to our staff on topical issues.

We are a Disability Confident and Mindful Employer.

Job Title: Head of Business Operations
Salary: £40,000 per annum (£32,000 per annum pro rata) + 10% company pension on successful completion of probation
Contract: Permanent
Base: The Brain Charity, Norton Street, Liverpool, L3 8LR
Hours: Part Time - 30 hours per week
Responsible to: Chief Executive Officer
Direct Reports: 4

Summary of Role

The Head of Business Operations will play a key leadership role within The Brain Charity, leading and overseeing the effective and safe delivery of a range of business and operational activities. This includes responsibility for premises management, health and safety, data protection compliance, ICT systems, and operational services such as room hire and café provision.

Working closely with the Chief Executive Officer and senior colleagues, the role will ensure that systems, processes and services run efficiently, meet regulatory requirements, and support the charity’s wider objectives. The postholder will also lead on continuous improvement, oversee operational performance, manage budgets and commercial activities, and develop sustainable income-generating services that support people living with neurological conditions.
 

Key Responsibilities

Management of Physical Assets

• Hold responsibility for the organisation’s assets register.
• Ensure that all buildings owned by the organisation and their fixtures and fittings are maintained to a high standard in a cost-effective way.

Health & Safety, Security & Business Continuity

• Provide leadership and assurance on the effectiveness of Health & Safety controls across the organisation.
• Ensure the safe, secure and continuous operation of the charity’s premises, including oversight of access arrangements, security controls, and incident response.
• Ensure Health & Safety and food safety policies are in place, effectively implemented, embedded into day-to-day operations, and consistently monitored to maintain full compliance across all operational activities.
• Ensure statutory checks, monitoring activities and remedial actions are completed, documented and reviewed in line with regulatory requirements.
• Maintain organisational readiness for incidents affecting premises safety, security, or continuity of service delivery, and act as the designated Deputy within the Business Continuity Plan, carrying out responsibilities in line with the defined scope and actions of the plan.
• Act as a designated security key holder and first point of contact for premises alarm activations and building security incidents, ensuring appropriate timely response and escalation.

Data Protection & GDPR

• Support and contribute to ensuring compliance with GDPR and data protection legislation across the organisation.
• Support the CEO and senior leadership team in meeting data protection responsibilities, including compliance reporting and engagement with the ICO and Subject Access Requests where required.

ICT, Digital & Systems Oversight

• Provide oversight of ICT infrastructure, Microsoft 365 accounts and CRM systems, ensuring they support operational and business objectives.
• Produce and present quarterly reports covering ICT performance, KPIs, system risks and improvement activity.
• Manage supplier relationships and contracts for IT support services, including due diligence, contract management and renewal.
• Support ICT and CRM development initiatives in line with organisational priorities.
• Ensure compliance with Cyber Essentials requirements and oversee the organisation’s cyber security posture.

Operational Management

• Take responsibility for improving the performance, productivity, efficiency, and profitability of the café, room hire services.
• Work collaboratively with the Communications Team to support the promotion and advertising of business activities, including room hire and café services.
• Lead and manage facilities refurbishment and improvement projects, ensuring they are delivered safely, on time and within budget.
• Oversee contractor engagement ensuring compliance with Health & Safety and contractual requirements during works.
• Ensure appropriate insurance policies are in place, regularly reviewed and maintained in line with organisational risk exposure.
• Act as the operational lead for insurance-related matters, including renewals and claims support.
• Support the CEO and Trustee Board with financial matters relating to business activities as required.
• Monitor and analyse business data, producing reports and delivering presentations to senior management and the trustee board.

Financial Management

• Set and manage budgets for existing product and service delivery.
• Forecast sales targets and monitor progress against these.
• Support the CEO and Trustee Board with financial matters related to business activities as required.

People Management

• Take responsibility for being up to date with the charity’s current policies and procedures and ensure they are adhered to by all staff within your department.
• Monitor, performance manage and improve the efficiency of all direct reports.
• Support the professional development of all direct reports.
• Provide ongoing and regular formal supervision through the organisation’s supervision and appraisal framework.
• Motivate staff to achieve their KPIs through quality controls.
• Monitor, train and support all volunteers.
• Delegate tasks to achieve the overall aims of the organisation in line with own responsibilities.
• Contribute to The Brain Charity management rota when required. 

Other

• Take responsibility for being up to date with the charity’s current policies and procedures and to adhere to these.
• Actively support promotional and fundraising events for The Brain Charity, attending a minimum of 1 fundraising or client-focussed event over the course of a year.
• Assist and support volunteers within the team as and when required.
• Carry out any other reasonable tasks which may be required by the charity from time to time.
• Regularly provide cover for all aspects of the department you belong to during any absence relating to your colleagues.

About the role

This role leads our income generation and communications function, playing a central part in securing the charity’s long-term sustainability and growth.

You will be responsible for developing and delivering our fundraising and communications strategies, ensuring we generate the income needed to sustain and expand our work. A key focus will be building a diverse and resilient funding model, balancing multiple income streams while strengthening engagement with our supporters and stakeholders.

This is both a strategic and hands-on role. It is also a broad brief, and you won’t be expected to be an expert in everything. Instead, we are looking for someone with the knowledge, confidence and strategic approach to play to their strengths and those of their team, while drawing on additional expertise and capacity where needed.

The role includes leadership of our communications and media activity, ensuring our messaging is clear, compelling and aligned with our brand across all audiences, including supporters, partners and the wider public.

You will lead and support a team of staff and volunteers, fostering a collaborative and high-performing environment, with the capacity to grow and evolve in line with our ambitions.

As a senior leader, you will contribute to the wider strategic direction of the organisation, helping to identify new opportunities for innovation and impact.

This role would suit an experienced income generation or fundraising leader who is looking to broaden their impact across communications, or someone seeking an opportunity to play a key role in shaping the future direction of a values-driven organisation.

Closing date: midnight Sunday 14th June 2026.

Shortlisted candidates will be invited to attend a first interview with OpenSight week beginning 22nd June and, if successful, a potential second interview week beginning 29th June.

Head of Finance | DFN Project SEARCH

Remote, with travel to London on average once a month plus occasional site visits | £51,500 – £61,500 | 9-day fortnight (after probation), flexible working welcome

DFN Project SEARCH is a national charity supporting young adults with a learning disability, autism, or both, into real, paid, lasting work. Last year alone, 431 young people started jobs through our programme. We work with around 200 employers, colleges and local authorities across the UK, and we've supported over 2,900 people since we started. We're good at what we do, and we want to do a lot more of it. Our aim is to support 10,000 interns by 2030.

We've grown rapidly, which is exciting, and this role has been newly created to make sure all the finance processes are set up so that we can continue to grow and scale properly. So, this isn't a steady-state job where you inherit clean processes and just keep them ticking. You'll be helping to build the structure as the charity grows around it.

That means we need someone who can lead and do. You'll own the finance function end to end: month-end, management accounts, statutory reporting, cash flow, controls. You'll also shape how all of it should work as we continue to grow. One day you're posting journals and reconciling the balance sheet; the next you're helping a budget holder who's never read a P&L understand their numbers, or modelling what reaching 10,000 interns actually means financially. You'll report to the Finance Director and line manage our Finance Administrator.

What your time will look like:

- Running the finance function day to day and ensuring everything is accurate, compliant and efficient, which means journals, reconciliations, month-end close, the monthly rhythm

- Producing management accounts and board-level reporting that people can act on, with clear commentary

- Working with the Finance Director on budgeting, statutory accounts, audit and VAT

- Strengthening cash flow forecasting, treasury, reserves and credit control

- Owning the controls framework, financial policies and procedures, and getting more out of Xero so we have real-time insight, not using out-of-date assumptions to make business critical decisions

- Managing restricted, designated and unrestricted funds, and reporting to funders properly and on time

- Supporting fundraising and bid colleagues with budgets for grant applications and tenders

- Overseeing payroll and pensions with our provider

- Helping non-finance colleagues across the charity get more confident in their own financial understanding

What we need from you:

- A qualified accountant (ACA, ACCA, CIMA, CIPFA or equivalent)

- Solid charity finance experience. You'll know Charity SORP, restricted funds and grant reporting, and you're across the changes coming to SORP

- Someone happy with their hands on the controls: month-end, reconciliations, statutory accounts and board reporting

- Strong on Xero (or quick to get there) and advanced Excel

- The ability to explain numbers clearly to people who don't think in numbers

- Experience setting up or developing financial instructions, controls and processes in a charity

You don't need to tick every single box. If you've been part of a finance team that's been through this kind of change and you're ready to step up and lead it yourself, we'd still really like to hear from you.

But honestly, the most important element is you, and how you bring people along with you through a period of change. You'll be comfortable bringing structure and calm to an organisation that's still growing into its processes. We need someone who can be calm and measured when the numbers feel busy, who can be a steady anchor point for the team when a lot is changing, and who knows when to help and when to teach someone how to help themselves. You'll be relentless about making things better, but able to bring people with you rather than drag them. If you want to lead a change rather than just be part of one, this is for you!

The practical stuff: This is a remote and flexible role, and we mean it, but it isn't a "never-leave-the-house" role. The leadership team comes together regularly, on average once a month, plus occasional travel to sites and the odd away day. Travel is always planned in advance and we cover the costs. If you can reach London comfortably and you value time with the people you work with, you'll get the best of both.

- 25 days' annual leave, plus your birthday off and bank holidays on top, with the option to buy back additional leave

- 9-day fortnight after successful completion of probation: 37.5 hours worked across nine days, with the tenth day off

- Flexible working genuinely considered: job share, part-time (minimum 4 days), compressed hours

- Pension: 6% employer contribution

- Employee Assistance Programme and NHS top-up wellbeing support

Please note we are unable to offer visa sponsorship, so you'll need the existing right to work in the UK.

It won't be a surprise that we're a Disability Confident employer. We share interview questions in advance, and if you need any adjustments to the process, or a different format for any stage, please just tell us.

If you're a charity finance person who wants their work to really mean something, and who fancies building something rather than just maintaining it, we'd love to hear from you.

Dates to note:

- Closing date: 16th June

- First interviews (remote): 24th–25th June

- Final interviews (London): 30th June

Position: Head of Experience
Hours: Full-time, 35 hours a week
Contract: Permanent
Location: Office-based in London N4, with flexibility to work remotely
Salary: £65,118 per annum plus excellent benefits
Salary Band and Job Family: Band 4

About Us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus.

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information.

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

The Head of Experience is a senior cross-organisational leadership role building and leading a new Experience function at the heart of the Engagement and Income Generation directorate.

It exists to change how the organisation understands and responds to the people it exists for. That means identifying where experiences can be improved and creating the conditions to act on it.

The postholder will drive cross-functional collaboration so that audience insight and data consistently inform strategic decisions. They will create the systems and governance that turn insight into action across the breadth of MS experience.

The postholder is accountable for driving measurable improvements in how audiences experience every interaction with us. This builds the conditions for integrated, audience-led engagement at scale, in service of delivering greater impact and sustainable income.

Closing date for applications: 9:00 on Thursday 18th June 2026

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

We particularly welcome applications from disabled people and or people from minoritised ethnic backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our recruitment and selection process 

• The first round of our recruitment and selection process includes an interview with competency-based questions.
• Our recruitment and selection process might also include extra tasks. For example, a written or Microsoft Excel test or making a presentation.  
• We’ll let you know what the selection process will include when we invite you to interview. You can ask for any more reasonable adjustments for the interview as part of the invitation.
• You might also be invited for a second interview. We’ll let you know about this during the selection process.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 39 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.

Chief Executive, Cavernoma Alliance UK
Home-based within the UK
28 hours (including some evening and occasional weekend work)
Actual salary: £35,840 to £38,079
Equivalent full-time salary: £48,000 to £51,000

Cavernoma Alliance UK is a well-established UK charity supporting people affected by cavernoma, a rare condition involving clusters of abnormal blood vessels in the brain or spinal cord.

Founded in 2005 by people with lived experience of cavernoma, we provide peer support, trusted information, awareness raising and research advocacy for the cavernoma community. We also work closely with leading neurologists, neurosurgeons and researchers across the UK to help improve clinical care, information and research for people affected.

We are now looking for a new Chief Executive to lead and be an ambassador for the work of CAUK. This is a meaningful and varied role in a small charity where your contribution will be visible. It would suit someone looking for a senior charity role with real purpose, flexibility and a close connection to the community they support.

You will be joining an organisation with a supportive Board of Trustees, a staff team that cares deeply about the community we serve, highly committed volunteers, and strong clinical and research partnerships.

We are in the second year of our five-year strategy, ‘Together For a Cure - 2025 to 2030’, and are making good progress across our priorities. The current Chief Executive is leaving after three and a half years in post to take up a new opportunity, and the charity is in a positive and stable position.

A major focus for the role over the coming years will be supporting delivery of a five-year UK-wide clinical trial starting in August 2026. This study could potentially identify the first medication treatment for cavernoma.

Alongside this, the role will focus on maintaining sustainable income, supporting high quality peer-led services through our Head of Volunteering and Member Services and volunteer team, and continuing to grow CAUK’s reach and awareness, particularly online.

We would particularly welcome applications from people with previous charity management experience, whether within a small charity or in a more senior role within a larger organisation. We are also open to applicants who can demonstrate a strong understanding of the charity sector through trustee, professional or voluntary experience.

This is a home-based role with flexibility, although there will be occasional travel across the UK, typically every 1 to 2 months, including meetings in London.

If you would like an informal conversation about the role before applying, we would be happy to arrange this with the current Chief Executive and/or Chair of Trustees.

Key dates

Applications open: 27 May 2026
Closing date: 9am, 22 June 2026

Stage 1 interviews will be held virtually during the last week of June.
Stage 2 interviews will be held in person shortly afterwards.

How to apply

To apply, please read our Recruitment Pack carefully and then complete our online application form using the link below. You will also need to email your CV to us using the contact details provided in the Recruitment Pack.

Please note that applications submitted without both a completed application form and CV will not be considered.

We are unable to accept enquiries or applications from recruitment agencies.