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About the role
We’re seeking a PPIE Manager to lead and strengthen patient involvement across mitochondrial disease research. As an equal partner in the LifeArc Centre for Rare Mitochondrial Diseases, The Lily Foundation leads the programme’s patient and public involvement strategy.
While the initial priority for this role is delivering the PPIE strategy for the LifeArc Centre, as a permanent member of the team, you’ll be responsible for building a sustainable involvement infrastructure that extends across all Lily Foundation research workstreams.
You’ll become a ‘patient expert’ who can bridge the gap between the patient community and the scientific world. You’ll be proactive in upskilling and empowering both patients and researchers, ensuring that lived experience remains the compass for future research.
Key responsibilities
Person specification
We’re looking for someone who blends a professional background with a genuine heart for our cause.
Essential knowledge and skills
Essential experience
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment. We particularly welcome applications from people with lived experience of mitochondrial disease or other rare conditions.
Closing date: Monday 11th May 2026
Interviews: W/c 18th May 2026
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The role
We are seeking an experienced Manager of Philanthropic Giving with a strong track record in securing major gifts. The ideal candidate will excel at building trusted, long-term relationships with donors and feel confident leading conversations that result in significant philanthropic support. This role will also contribute to the development and delivery of a trusts and foundations strategy, helping to grow and strengthen our portfolio.
Working closely with the CEO, senior leadership and trustees, you will develop compelling funding propositions, steward donors and funders through excellent reporting and engagement, and represent myaware at meetings, events and networking opportunities. You will also maintain accurate records through our CRM system, track performance against targets, and contribute to income planning and reporting. This is a strategic and hands-on role with real impact for people affected by myasthenia.
The Manager of Philanthropic Giving will be predominantly home based within the UK (with occasional working and meetings at Derby HQ) and will work in co-operation with the fundraising team and all myaware colleagues to deliver agreed fundraising targets and campaigns. Own transport is essential for this role as occasional travel throughout the UK will be required to attend donor meetings, events and networking opportunities, as well as the ability to travel to the Derby office. There may be the need to occasionally work during weekends and evenings and therefore there is a need to work flexibly when required.
Who We Are Looking For
We are looking for an experienced and motivated fundraising professional with a strong track record in major donor fundraising along with experience in Trusts and Foundations fundraising. You will have experience in personal communication in asking for high level funds, and experience of stewarding high net worth individuals to maintain high levels of engagement over a significant period. You will have experience of Trusts and Foundations fundraising including pipeline management and stewardship, writing compelling funding applications and impact reports.
You will be a strategic thinker with excellent interpersonal, research and organisational skills, confident managing a complex pipeline and working collaboratively across teams. You will be comfortable working independently, using CRM systems, and engaging senior stakeholders, including trustees and high-level donors. Most importantly, you will share myaware’s values, demonstrate empathy with our cause, and be committed to making a meaningful difference through philanthropy.
If this sounds like you, we would love to hear from you.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Monday 25th May 2026.
Provisional interview date will be week commencing: 01.06.2026
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Job Title: Head of Insight and Impact
Reporting To: Assistant Director of Network Development and Impact
Manages: Data Analyst (direct management), Data Coordinator (dotted line)
Contract: Permanent
Hours: Full time (36 hours per week, flexible)
Salary: £49,440 - £55,620 per annum (appointments are typically made at the lower end of the salary range)
Location: Remote (occasional travel to Leicester office & other UK locations as necessary)
About Home-Start UK
Home-Start is a federated charity consisting of a central national office – Home-Start UK - and over 170 geographically dispersed local Home-Start organisations, all working together under the same identity.
We recognise that being a parent has never been easy. Every Home-Start volunteer is trained to work alongside parents to overcome the challenges they are facing. We work with parents to build on their strengths and give them the support that they tell us they need. We offer no judgement – just compassionate, confidential help and expert support. This peer-to-peer support is key to the difference Home-Start makes and often our volunteers have lived experience of the challenges their families are facing themselves.
About The Role
Head of Insight and Impact is an exciting new leadership role for Home-Start UK at a critical time as we develop and prepare to launch our new, federation-wide strategy in early 2027. You will ensure we make best use of the data and evidence that we already hold and build the insight-led culture we need to deliver on our mission.
Your key responsibilities will be to:
Ultimately, your efforts will help ensure that our movement can reach and support more families with babies and children facing their toughest times.
The people at Home-Start are its most important resource. Home-Start UK has been accredited with Investors in People since March 2005, which recognises the commitment we give to developing our staff.
Benefits of working for Home-Start
If this sounds like your kind of opportunity, then we want to hear from you!
The closing date for applications is Tuesday 19th May at 4pm.
First stage interviews will take place virtually on week commencing 1st June.
Second stage interviews will take place in-person at our Leicester Office on week commencing 8th June.
Interested?
If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.
Home-Start UK is committed to Equality of Opportunity and Diversity. We wish to encourage applications from all parts of the community irrespective of gender, race, colour, age, sexual orientation or disability.
No agencies please.
Prospectus are delighted to be supporting our client with the recruitment of the Marketing & Communications Manager. Reporting into the Head of Marketing and Digital, this critical role translates the organisation's mission into action, turning strategic priorities into clear, engaging, and audience-focused campaigns, and ensuring audiences are guided and supported every step of the way.
Deepening the critical understanding of the work that the organisation deliver for bereaved children, young people and families, you will craft compelling copy and maintain messaging that is consistent, timely, and effective across channels. You will deliver campaigns that compel people to act, whether that’s engaging with CBUK services, supporting initiatives, or sharing their message. By combining insight, creativity, and empathy, your campaigns will connect with audiences on a meaningful level, encouraging participation, advocacy, and support for our mission.
The successful candidate will demonstrate organisation and drive to bring strategy to life, converting to meaningful content and campaigns. You will have previous experience of engaging external suppliers, and with oversight of PR and Press, your experience of supporting the generation of compelling content is a given. As well as your leadership and involvement within external marketing and communications, you will also lead on internal communications, driving colleague engagement and understanding.
To apply please submit your CV only in the first instance. You may also be asked to complete a supporting statement if you do progress further in the recruitment process.
As a specialist Recruitment Practice Prospectus are committed to building inclusive and diverse organisations, and welcome applications from all sections of the community. Prospectus invest in your journey as a candidate and are committed to supporting you in your application.
Our client supports children, young people and families facing bereavement, as well as parents and carers of children with life-limiting conditions, providing specialist services, training and support across the UK. Following a recent merger, the organisation has strengthened its reach and impact, bringing together two leading charities to provide even greater support to grieving children and families nationwide.
Prospectus is delighted to be supporting our client with their search for an Individual Giving Manager. This role will support the delivery of a fundraising plan, growing income across channels including Direct Mail, Regular Giving, Lottery, Legacies and In Memory. Working closely with the Head of Individual Giving and Supporter Engagement, you will lead on acquisition campaigns, creative development and supplier management, using a mix of digital and traditional approaches to expand and engage the supporter base.
The ideal candidate will bring strong experience in Individual Giving, with the ability to develop compelling campaigns that grow income and attract new supporters. You’ll be confident delivering end-to-end programmes, including direct mail, managing budgets and using CRM systems to track performance and insights. Highly organised and adaptable, you’ll be comfortable juggling multiple priorities while creating engaging supporter journeys across a range of channels.
£40,000
Permanent and full time
Remote with occasional travel to High Wycombe
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Jessica Stoddart at Prospectus
If you feel you meet some of the criteria but not all, we really hope you'll enquire and learn more. Prospectus can advise and support on each part of the role and hopefully your application, so we look forward to hearing from you. In order to apply please submit your CV in the first instance. Should your experience be suitable, we will arrange for a meeting to brief you on the role. You'll then have all the information you need to formally apply. We are looking forward to connecting with you soon.
Our client supports children, young people and families facing bereavement, as well as parents and carers of children with life-limiting conditions, providing specialist services, training and support across the UK. Following its recent merger, the organisation has strengthened its reach and impact, bringing together two leading charities to provide even greater support to grieving children and families nationwide.
Prospectus is delighted to be supporting our client with their search for a Corporate Partnerships Manager. This role will focus on growing income through strong account management and relationship building, delivering high-quality stewardship, creative campaigns and compelling impact reporting. Working across new business and existing partnerships, you will help drive income growth and deliver our client's national corporate proposition.
The ideal candidate will bring a strong track record in corporate fundraising, with experience managing multi-faceted partnerships and achieving income targets. You will be a confident relationship builder with excellent communication and influencing skills, able to engage senior stakeholders with professionalism and credibility. Highly organised and proactive, you will be comfortable managing multiple priorities while bringing a creative and resilient approach to developing impactful corporate partnerships.
£40,000
Permanent and full time
Remote with occasional travel to High Wycombe
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Jessica Stoddart at Prospectus
If you feel you meet some of the criteria but not all, we really hope you'll enquire and learn more. Prospectus can advise and support on each part of the role and hopefully your application, so we look forward to hearing from you. In order to apply please submit your CV in the first instance. Should your experience be suitable, we will arrange for a meeting to brief you on the role. You'll then have all the information you need to formally apply. We are looking forward to connecting with you soon.
This is a rare opportunity to join Active Bradford at a truly pivotal moment, as we lead a bold, place-based movement to tackle health inequalities and create a district where being active is part of everyday life. Backed by over £4m of Sport England investment and delivering flagship programmes like JU:MP, Active Bradford is at the forefront of national innovation in physical activity, bringing together partners across health, education, and communities to drive meaningful, lasting change.
As Finance and Governance Manager, you will play a mission-critical role at the heart of this impact. You’ll bring financial clarity, insight and rigour to decision-making, ensuring every pound delivers value for the communities we serve. Working closely with the CEO, Board and senior leaders, you’ll shape strategy through high-quality financial planning, strengthen governance, and build systems that enable a small, passionate team to focus on what matters most – changing lives through movement.
This is more than a finance and governance role, it’s a chance to influence, lead and leave a legacy. With flexibility built in, a values-led culture, and the opportunity to work at the cutting edge of a nationally recognised programme, this role offers both impact and balance in equal measure.
You will:
Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.
Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.
Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.
At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.
As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.
This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.
If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.
Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Community Outreach Worker
Reports to: Head of Policy and Campaigns
Location: Remote working
Salary: £35,000
Contract: 18 months fixed term contract
Hours: 35 hrs per week. Office hours are 9.00 – 17.00
About the role
We’re looking for an engaging, empathetic and self-reliant outreach worker to join our dedicated team working to deliver support and practical advice to a community that has suffered as a result of the biggest treatment scandal in NHS history.
This is an opportunity to work for an organisation with a 75-year track record of effective advocacy for our small community of people living with genetic and acquired bleeding disorders and their families. Most importantly, this role has the potential to directly improve peoples’ lives.
Around two thirds of our members are impacted by the contaminated blood scandal of the 1970s and 80s, which was recently investigated by the Infected Blood Inquiry. The resulting report in 2024 recommended improved health resources for people with bleeding disorders as well as compensation and support for those infected and affected by the scandal.
Although significant progress has been made, there’s a lot more to do. Many of the community feel isolated and with the Infected Blood Inquiry now closed there is a need for people to maintain and develop connections with others that understand what they have and continue to endure. It is vital that the community has a safe environment to express their views and seek help and support.
Part of the role will involve supporting the future generations of affected families ensuring they have the support and care they need to live their best lives.
Background and purpose
We are the only UK-wide charity for all those affected by a genetic bleeding disorder, a community of individuals and families, healthcare professionals and supporters.
For more than 75 years we have campaigned for better treatment, been a source of information and advice and supported people living with life-long conditions.
We want to ensure that everyone affected by a bleeding disorder:
Lives the best life that they can
Never feels alone or isolated
Feels empowered and confident.
We do this by:
Improving understanding about living with a bleeding disorder
Providing support at all life stages
Influencing and advocating on policy and access to treatment.
More than 40,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year. Membership of the Haemophilia Society is free and open to all.
Key responsibilities:
Qualities, skills, and experience
Personal qualities
Other requirements
What we offer:
Competitive Salary
Generous Pension
Private Healthcare
Contribution Agile Working
25 days’ holiday (pro rata) plus an additional day for each year of service up to 5 years
The Haemophilia Society is an equal opportunity employer.
The client requests no contact from agencies or media sales.
The role
The Innovation team at Leadership Skills Foundation is responsible for the design and evaluation of learning programmes that give young people life‑changing skill development and leadership opportunities. As Innovation Officer you will provide support to our Innovation Leads across learning development, visual design, and research activities.
This role is ideal for a creative all-rounder. You don’t need to be an expert in all areas on day one. We are looking for a proactive problem solver who can grow into the role and is energised by the idea of wearing multiple hats to help young people succeed.
You will directly support a broad range of projects including:
Our strategic partnership with Sport England to positively impact a wider diversity of young people through sports leadership opportunities.
The development of our new youth voice initiative to empower young people to lead positive change.
The expansion of our Environment Leaders Programme to raise awareness and equip young people with green skills for their future employment.
What you’ll do
Learning development
Work collaboratively to help create and test new learning programmes, and continuously improve our range of Awards and Qualifications based on research findings e.g. from our Sport England Programme.
Support the creation, editing and quality-checking of course content and materials, such as Learner Evidence Records and tutor guidance documents.
Support digital learning activity, including content creation, managing online platforms and testing user experience.
Visual design and content
Create engaging visual designs for use in course materials and impact reporting, ensuring designs are always accessible and on brand.
Manage our library of learning resources, ensuring designs are reviewed regularly and improved based on feedback and research findings e.g. from our Sport England Programme.
Research and evaluation
Play a supporting role organising and conducting research interviews, observations, surveys and focus groups.
Assist with data collection and analysis of qualitative and quantitative insights.
Support the preparation of engaging impact reports and insight summaries.
What you’ll love
Remote working with flexible / agile working, with some travel to in-person meetings.
A small, friendly team committed to making a difference for young people.
Summer and winter team events.
Optional Vitality Health Care Plan, with option to add family/significant others at reduced rate ((following successful completion of probation period).
*** Please review the job pack for the full person specification and further information. This is a full-time, two‑year fixed‑term contract, with the ambition to extend subject to funding. ***
Empowering every young person to shape their future and lead their communities.



The client requests no contact from agencies or media sales.
About the role
An exciting opportunity has arisen for a motivated and detail-oriented Senior CRM Support Officer to join our dedicated CRM team, supporting our internal database system (CHIP).
Working within a small but influential team, you will act as the main point of contact for system users across the organisation, providing high-quality first and second-line support via multiple channels. You will troubleshoot issues, guide users, and work closely with IT, CRM and operational colleagues to resolve more complex system problems.
A key part of the role is helping users feel confident and capable when using CHIP effectively and in line with compliance requirements. This includes supporting onboarding and induction for new users, creating clear and accessible learning resources (such as user guides, knowledge base articles and video tutorials), and delivering briefings or drop-in sessions.
You will also contribute to continuous improvement by gathering user feedback, identifying trends, supporting system testing, and helping embed best practice across services to ensure accurate and reliable data use.
About you
We are looking for someone who can demonstrate:
What we offer (benefits)
We offer a supportive working environment with a strong focus on wellbeing, development, and work-life balance:
Recruitment process
As part of shortlisting, candidates will complete a short online skills assessment aligned to the essential requirements of the role. This helps ensure a fair and consistent selection process. Full details will be provided to shortlisted candidates.
Safeguarding & recruitment
NYAS is committed to safeguarding children, young people, and adults at risk. All successful applicants will be subject to:
In accordance with UK immigration law, candidates must have the legal right to work in the UK.
About NYAS
NYAS (National Youth Advocacy Service) is a leading rights-based charity ensuring that children, young people, and adults are fully respected, represented, and supported in expressing their views and having their rights upheld.
We work with care-experienced individuals who often rely on statutory services and may be impacted by gaps in provision. Our advocacy and legal services help ensure their voices are heard and acted upon.
We are an inclusive employer committed to equality and diversity. We welcome applications from all individuals regardless of background. We are also a Disability Confident Employer, guaranteeing interviews to disabled applicants who meet the minimum criteria.
How to apply
To apply for this role, please visit our website and complete the online application form.
Please ensure you refer to the person specification within the job description and clearly demonstrate how you meet the required criteria in your application.
The job description and person specification are available on the vacancy page of our website.
We reserve the right to close this vacancy early if we receive a high volume of applications.
At NYAS, we listen to what children, young people and vulnerable adults want. We empower them to have their voices heard.
Elrha is a global organisation that finds solutions to complex humanitarian problems through research and innovation.
We are looking to recruit a Digital Innovation Adviser (Paternity Cover) to join our Programmes team on a fixed-term basis (16 weeks). This is an exciting opportunity for a technically-minded professional with a passion for responsible AI and digital innovation to play a central role in Elrha's growing portfolio of AI-focused work.
In this role you will have the opportunity to shape how Elrha integrates AI and digital tools across its humanitarian research and innovation work. You will lead the delivery of our AI Lighthouse partnership with NetHope, act as our internal responsible AI adviser, and develop exciting new business development opportunities including an AI Sandbox and Rapid Innovation Fund. You will also play a key role in building Elrha's internal AI strategy and ensuring our digital platforms remain fit for purpose.
Your application will need to demonstrate:
If you want to be part of an organisation that creates positive change in the humanitarian sector, then join us and we'll give you every opportunity to succeed.
We offer:
Note for applicants:
Closing date:4 May
Interview dates:13 & 14 May
About Elrha
Elrha is a global organisation that finds solutions to complex humanitarian problems through research and innovation. We fund and support projects that go on to shape the way in which people across the world are supported during a crisis. We're an established and respected part of the humanitarian community, working closely and meaningfully with our fellow networks and actors to make change happen.
Read our strategy: shaping the future: our strategy for research and innovation in humanitarian response 2023 - 2040. It sets out how we'll work with our community to realise its potential in humanitarian response, and how we'll capture the real change and improvements to the lives of people affected by crisis.
Our strategy sets out our values by which we hold ourselves accountable as individuals and as an organisation and employer.
Commitment to Diversity & Inclusion
Elrha is committed to diversity and equality of opportunity in all aspects of our work both external and internal. We strive to be an inclusive employer and particularly encourage applications from under-represented groups such as returning parents or carers who are re-entering work after a career break, people who are LGBTQ+, from Black, Asian and Minority Ethnic backgrounds, with a disability, impairment, learning difference or long-term condition, with caring responsibilities, from different nations and regions, and from less advantaged socioeconomic backgrounds.
Please ensure you read the full job description, the Candidate Pack, and complete the Personal Statement as requested in the application process. We look forward to hearing from you.
A global organisation that finds solutions to complex humanitarian problems through research and innovation.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
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Do you have experience in supporting vulnerable adults and empowering them to move forward with their journey?
Walking With the Wounded (WWTW) supports those who have served in the British Armed Forces and their families, specialising in developing pathways to independence.
We currently have an exciting opportunity for a Veterans Liaison and Officer (VLSO) to join a team providing support to ex-armed forces personnel. You will be home-based, with a caseload spread across Hertfordshire and occasionally adjoining counties.
We are looking for a dedicated individual who will empower ex-service personnel to regain their independence after a period of Mental Health (MH) Crisis, supporting them to thrive and contribute to our communities. This role will join a team of existing VLSOs across the East of England as part of a wider collaborative team within NHS England’s Op Courage - the Veterans’ Mental Health and Wellbeing service, and will work with other service charities and local support services. You will be home based with daily travel around your local region to support your clients and build relationships in the community, whilst working as part of the wider regional WWTW and NHS clinical teams.
We are looking for a highly motivated self-starter with prior experience of working with vulnerable adults; an individual who can work independently to set priorities that accurately reflect the client’s needs. Your role will be to work with clients in the community (or their homes), facilitating intense support and analysing individual needs to create a support plan that will break down barriers to a successful stabilisation, whilst navigating their mental health pathway.
In return, we will provide you with the opportunity to demonstrate and develop your skills and career as a Veterans Liaison and Support Officer in a supportive, inclusive environment. In this role, no two days are the same and every day will bring new challenges. Internal training will be provided, and we encourage our staff to develop their own personal and professional skills.
For an informal discussion please contact Anne Germany 07935-065716.
Walking With The Wounded deliver employment, mental health & care coordination programmes to veterans & their families in collaboration with the NHS.
The client requests no contact from agencies or media sales.