Event fundraising officer volunteer roles in Leeds

Voice 21 – Trustee with fundraising expertise 

About Voice 21
Voice 21 is the national oracy education charity. We support schools to build speaking and listening into the curriculum, teaching, learning and wider school life so that every child can use their voice to thrive in school, work and life. Our training and development programmes for teachers and school leaders transform learning through talk, expanding access to high-quality oracy education, particularly for children who need it most.

Why join the Voice 21 Board of Trustees now?
Since its inception in 2015, Voice 21 has built a national movement to put oracy at the heart of education in the UK. In November 2025, the government responded to Professor Becky Francis’s Curriculum and Assessment Review by adopting the definition of oracy used by Voice 21 and by the independent Oracy Commission in its 2024 report,  We Need to Talk: ‘Articulating ideas, developing understanding and engaging with others through speaking, listening and communication’.

The government has also committed to publish national guidance on oracy, modelled on the Writing Framework, and to strengthening oracy teaching within subjects. The Schools White Paper published in February 2026 reinforced this direction, positioning oracy as the fourth “R” alongside reading, writing and maths.

Oracy is now firmly part of national policy, and Voice 21 continues to build evidence of its impact on young people’s attainment, wellbeing, belonging and career readiness.

This policy shift represents a major campaigning success for Voice 21 and others who campaigned  alongside us. Our new 2030 Strategy aims to seize this moment and secure high-quality, evidence-based oracy education for every child, particularly for those children in schools serving disadvantaged communities.

Investment will be critical to achieving this ambition. Fundraising currently provides 20% of our income. Our goal is to increase this to 40%, doubling fundraised income to support delivery of our 2030 strategy.

The Role: Trustee with fundraising expertise

Voice 21 is keen to strengthen its board-level knowledge and skills by adding a fundraising specialist trustee. We are looking to appoint a strategic fundraising leader who has substantial experience of successfully developing fundraising departments and growing voluntary income. As trustee, you will provide strategic oversight, constructive challenge and advice on fundraising strategy.

Ideally your career will have focused on high value and relationship fundraising (philanthropy, trusts, corporate partnerships). As a subject specialist, you will help to expand and deepen fellow trustees’ understanding of fundraising strategy and operations, providing knowledge, guidance, challenge and advocacy.

Your expertise will be invaluable at this pivotal moment for Voice 21, as the charity prepares to launch an ambitious new strategy, with a goal to double fundraised income by 2030. Your insights will be particularly appreciated by the experienced Head of Fundraising, CEO and Director of Operations – including contributing critical/analytic skills to help evaluate fundraising ideas and opportunities – though your primary focus will be advising on fundraising at governance level.

Knowledge And Experience: 

• Significant senior fundraising experience, with proven ability to secure major income.

• Personal experience working with high profile figures, senior leaders in major companies, people with high levels of personal wealth who are seeking charitable missions like ours to support.

• Understanding of charity leadership, including developing and implementing organisational strategy.

• Broad understanding of fundraising management across income streams.

Why this role matters:

This is an opportunity to make a real difference in tackling the disadvantage gap at a pivotal moment for oracy education. You will have the chance to influence a dynamic Board and staff team with great ambitions for our 2030 Strategy.

Time commitment:

• Board meetings: three per year, in person in London (9am–12pm)

• Annual strategy day (9am - 3pm)

• Finance Committee: four virtual meetings per year (approximately 2 hours per meeting) 

• Opportunities to attend Voice 21 events throughout the year.

Safeguarding:

This role is subject to an enhanced DBS check.

Application details:

To apply:

• a CV and a covering letter of 1- 2 pages; 

Please include: 

• Details of your interest in joining Voice 21 as a trustee; 

• An outline of your current work / relevant experience; 

• A note of any training and development needs you think you’ll have if you are appointed. 

Valuing every voice

Voice 21 believes that every voice should be heard and valued. We are committed to the equal treatment of all current and prospective employees and trustees do not condone discrimination on the basis of age, disability, sex, sexual orientation, pregnancy and maternity, race or ethnicity, religion or belief, gender identity, or marriage and civil partnership. Voice 21 is a diverse and inclusive workplace and we strongly encourage suitably qualified applicants from a wide range of backgrounds to apply and join us.

About The Stray Cat Charity (TSCC)

The Stray Cat Charity is a newly established UK-registered CIO working to rescue, rehabilitate, and rehome stray cats in Greece, starting in Patras. Our current priority campaign is to raise £35,000 to build a dedicated stray cat shelter in Patras, Greece, which will provide safe housing, veterinary care, and a pathway to adoption for vulnerable cats. As a growing new charity, we are building our fundraising and outreach network across the UK.

Role Purpose

We are looking for a motivated volunteer to support the growth of our charity by helping identify and connect with potential supporters in their local area. This includes community groups, schools, corporates, and potential major donors who may be interested in supporting or fundraising for stray cats in Greece. The aim of this role is to help generate awareness, build relationships, and support fundraising activity for our current and future campaigns.

Key Responsibilities

The volunteer may support with:

• Researching local community groups, schools, faith groups, and businesses
• Identifying potential corporate partners and supporters in their region
• Contacting organisations to introduce The Stray Cat Charity and its mission
• Encouraging groups to support the charity through donations or fundraising
• Promoting our current campaign to raise £35,000 for a stray cat shelter in Patras, Greece
• Supporting or initiating community fundraising activities where appropriate (e.g. sponsored events, school fundraisers, awareness campaigns)
• Helping to raise awareness of stray cat welfare issues in Greece through local outreach

Fundraising Options

Volunteers may either:

• Focus on outreach and relationship-building, or
• Actively support or lead local fundraising efforts for the charity’s campaigns

Ideal Volunteer

We are looking for someone who is:

• Confident communicating with people and organisations
• Passionate about animal welfare
• Self-motivated and able to work independently
• Comfortable researching and reaching out to potential supporters
• Interested in community engagement or fundraising

About the Charity

The Stray Cat Charity is a new organisation, meaning volunteers will play a key role in shaping our growth, impact, and fundraising success from the ground up.

Support Provided

We will provide:

• Guidance on messaging and outreach
• Information about the charity and campaigns
• Ongoing support and communication from the founder/trustee

Impact of This Role

Your work will directly contribute to raising vital funds to build a safe shelter in Patras, Greece, improving the lives of stray cats and creating long-term sustainable welfare solutions.

Reports to: Chief Executive Officer

Direct Reports: Fundraising Managers

Team Structure: Fundraising Team 

Location: Remote, UK-based

Time Commitment: 12 months minimum | Part-time | Flexible hours

About the Role

We are seeking a passionate and experienced Head of Fundraising to lead and develop our fundraising strategy at a crucial time in Youth Advantage UK's growth. Reporting to the CEO, you’ll oversee a multi-disciplinary fundraising team and play a key role in shaping our strategy to secure the resources needed to support our mission.

This is an exciting opportunity for an experienced fundraising leader who is ready to take on a leadership position, mentor a growing team, and make a tangible impact on the lives of those we serve. You will be instrumental in driving fundraising across diverse channels, from major donor cultivation to digital fundraising and events.

Please note: This is a voluntary and unpaid role, with no financial compensation or future paid opportunities attached. We encourage you to apply if you have relevant/transferrable skills for this role.

Key Responsibilities

• Lead and Execute Fundraising Strategy – Develop and drive a comprehensive fundraising strategy that includes grant fundraising and aligns with the organisation’s mission and financial goals.
• Manage Fundraising Teams – Provide leadership to Fundraising Managers and the Partnerships Lead, ensuring successful delivery across all fundraising channels.
• Build Relationships with Major Donors – Cultivate and maintain strong relationships with key donors, stakeholders, and potential partners to secure long-term support.
• Oversee Fundraising Events – Lead and support the planning, execution, and evaluation of fundraising events that engage donors and raise critical funds.
• Digital Fundraising – Oversee online giving campaigns and strategies to increase digital fundraising engagement and revenue.
• Reporting and Budgeting – Monitor fundraising progress, ensuring targets are met, and provide regular reports to the CEO and Board.
• Team Development – Mentor and coach the fundraising team, ensuring they are motivated, developed, and equipped to excel in their roles.
• Strategic Partnerships – Build and nurture community partnerships that expand our reach and increase funding.
• Brand Advocacy – Act as a passionate ambassador for the charity, enhancing its visibility in the charity sector and promoting its mission.

What We’re Looking For

We’re looking for a dynamic leader with the skills and experience to make a positive impact. You’ll thrive in this role if you have:

• Proven experience in fundraising, with a strong track record across digital campaigns, corporate partnerships and grant fundraising.
• Leadership experience in managing and developing fundraising teams or volunteers.
• A strategic mindset with the ability to think big and execute effectively in a resource-constrained environment.
• Hands-on experience in managing the day-to-day operations of fundraising campaigns while being able to step back and think at a strategic level.
• Strong relationship-building and communication skills, with the ability to inspire and engage diverse stakeholders.
• A passion for the cause – a genuine belief in the mission of Youth Advantage UK and a commitment to making a difference.
• Familiarity with digital fundraising tools and social media platforms for promoting campaigns (desirable but not essential).
• Previous experience in volunteer-led organisations is a bonus.
• Remote working experience or comfort with managing teams virtually.

What You’ll Gain

• A chance to lead a national HR function with real-world complexity and purpose.

• The opportunity to mentor and develop emerging HR talent.

• Practical experience shaping HR strategy within the third sector.

• Recognition through:

o LinkedIn testimonial and reference

o A public thank you post

o Permission to list Youth Advantage UK as an employer on your CV/LinkedIn

o A written reference upon completion of your commitment

Important Information

This role is completely voluntary. There is no financial payment, benefits, or employment status. It is ideal for experienced HR professionals looking to give back, stay active in leadership, or contribute to a values-led organisation in a meaningful way.

Apply Now

If you're passionate about fundraising and want to make a real difference, we’d love to hear from you. Help us unlock new opportunities for Youth Advantage UK and join our dedicated team of changemakers today.

The Chief Financial Officer is responsible for overseeing broader financial management, including budgeting, financial forecasting, resource allocation and fundraising.

Key Responsibilities:

• Having oversight of all financial management across the organization and developing reports for the board
• To overall manage budgeting and financial forecasting
• To ensure that the department heads covering fundraising and finance are supported and well aligned with the strategic direction and priorities of Youth Advantage UK
• To ensure the organization has sufficient financial resources
• To ensure fundraising occurs and supports the organization's need
• To line manage departmental heads with relevant departments
• To contribute to wider C Level Executive work such as taking part in meetings, presenting the organization and dealing with problems as they arise

Requirements:

• To have over 5 years of experience in the financial sector
• To have at least 2 years of experience in a senior financial management role (such as Senior Manager or Department Head) 
• To be able to provide leadership and management
• To have good IT skills, accounting skills, budgeting skills, ability to use spreadsheets and remote systems and good communication skills

A Little About Us!

Youth Advantage UK is a research-led, un incorporated un registered charitable organization. We use a research-led approach to protect the rights and interests of young people through positive action such as projects, policy work, research, services, events. We promote and empower change.

Why we need you!

Youth Advantage UK are in our early stages but are growing and looking for volunteers to help achieve our aims to become a registered charitable organization. Your skills and expertise are what we need to continue to grow. Without our volunteers we cannot grow and appreciate those who apply with us!

What we offer!

Anybody who wishes to help and contribute to a good cause are welcome to apply for one of our volunteering positions. We will speak to you about what your aims are to ensure that the volunteering position you are applying for is suitable. By volunteering you have the chance to learn something new and contribute to a successful organization who is looking to help young people in the UK.

�� Guardian Light Foundation Board of Directors – Roles, Expectations & Benefits �� Our Mission

Guardian Light Foundation (GLF) is a for-profit social enterprise dedicated to transforming the lives of homeless and abused children, teenagers, and struggling single-parent families. We provide safe housing, education, career pathways, legal aid, and life-skills support to help individuals rebuild their lives with dignity and independence.

We are building not just an organisation — but a movement of hope, empowerment, and social impact.

�� BOARD EXPECTATIONS (Applies to ALL Members)

Every GLF board member plays a direct role in the success and sustainability of the organisation.

�� Core Expectations

• Fundraising Commitment:
  Every board member must actively participate in fundraising campaigns, donor outreach, and sponsorship drives.
  Each member is required to make a personal monthly donation to the organisation (amount optional but meaningful).

• Time Commitment:
  Minimum of 20 hours per month, including board meetings, subcommittee work, fundraising events, and strategic planning.

• Ambassadorship:
  Represent GLF publicly as a visible ambassador at community events, speaking engagements, and networking functions.

• Governance & Accountability:
  Ensure the organisation operates ethically, transparently, and in alignment with its mission and legal obligations.

• Strategic Leadership:
  Contribute skills, knowledge, and professional networks to advance the organisation’s growth, partnerships, and visibility.

• Passion for the Mission:
  Demonstrated commitment to supporting children, teenagers, and single-parent families experiencing hardship.

�� OVERALL BOARD MEMBER BENEFITS

• Prestige: Founding member of a ground-breaking national social enterprise.

• Networking: Exclusive access to philanthropists, public officials, and corporate leaders.

• Leadership Development: Gain board-level governance and strategic experience.

• Impact Legacy: Directly shape programs that provide homes, hope, and opportunity for hundreds of lives.

• Visibility: Public recognition through GLF website, media, and national campaigns.

• Personal Fulfilment: Be part of a purpose-driven organisation changing the narrative for children and families in need.

�� IDEAL CANDIDATE PROFILE (For All Roles)

We are looking for leaders who are:

• Deeply passionate about social impact, youth empowerment, and family stability.

• Professionally experienced (1+ years) in their area of expertise.

• Team players who bring creativity, positivity, and initiative.

• Connected and influential, willing to open doors and amplify GLF’s message.

• Dedicated, committing time, expertise, and monthly donations.

Position: Board of Director - Treasurer (Unpaid Volunteer Role)

Reports to: Board Chairperson

Location: Hybrid (remote + in-person events as needed)

Responsibilities:

• Oversee all financial matters including budgeting, accounting, and financial reporting.

• Ensure compliance with statutory financial regulations and charity law.

• Work closely with auditors and the Finance Committee.

• Present financial reports at each board meeting.

• Support fundraising and resource management strategy.

Requirements:

• Background in finance, accounting, or business administration.

• Knowledge of charity finance and UK financial reporting standards.

• Integrity and attention to detail.

Benefits:

• Direct influence over financial sustainability and impact measurement.

• Recognition in philanthropic financial management networks.

Compensation:
This is an unpaid volunteer position.

The Wellbeing Officer (Trustee) provides information, guidance and advice to volunteers and service users around topics such as mental health and wellbeing. Additionally, if service users or volunteers have any concerns, the best point of contact is the wellbeing officer.

What do we specifically expect of this role?

● Delivery of a plan to proactively assist officers and volunteers in public-facing roles, with tools and techniques to prevent or reduce any initial harm/trauma from purposeful or accidental harmful interactions - social media, live events, outreach, panel events, etc.

● Providing support for service users by way of triaging and responding to requests that come through to the wellbeing inbox. ● Building and maintaining wellbeing resources for service users and following a data-informed approach as to areas of wellbeing improvement. This includes building relationships with external service providers that can assist in helping members of our community.

How much commitment is required?

We are flexible around your own schedule. However, the following commitments are in place for all member of the Hidayah board:

● To be able to attend all Trustee meetings and to deliver a comprehensive report to the committee each meeting with updates and to completed actions as and when they appear;

● To aim to attend all other planning meetings as necessary when close to Hidayah events as well as the events themselves (where possible due to geography);

● To help to fundraise for, and advertise, any Hidayah events and fundraising drives;

● To be part of a communications group to keep up to date with Hidayah developments;

● To contribute toward and to maintain the administration of our file sharing system ‘Google Drive’ so it is always up to date with clear records, templates and forms; 1

● To check emails and to respond when needed;

● Enthusiasm, dedication, responsiveness, flexibility and eagerness in supporting the aims, vision and mission of Hidayah;

● To contribute toward the Annual Report once a year;

If taking on the role, you're expected to be in post until the next AGM. This role is subject to a 6 months probationary period.

What do we expect from a Wellbeing Officer (Trustee)?

Please note that you must agree with and fit the criteria below to be eligible to volunteer in this role:

● A self-starter who can volunteer with minimal supervision.

● Exceptional written and verbal communication skills.

● Friendliness, enthusiasm, dedication, responsiveness, flexibility and eagerness in supporting the aims, vision and mission of Hidayah.

● Reliable and regular volunteer.

● A team-player.

Additional:

● Experience of successfully working collaboratively.

● Preferably some experience of mentoring and/or supervision.

● Prior experience of wellbeing provision.

● Must be 18+ and live in the UK

Supporter Engagement Officer

At TVS we’re devoted to empowering vulnerable young people through education. We aim to unlock potential and shape a brighter future for young people living in poverty.  We are recruiting a team of volunteers and are searching for dedicated individuals to help us to strengthen the bonds between our organisation and the incredible people who support our work with rural children in South Africa.

As a Supporter Engagement Officer you would have responsibility for one or more of the following:

Stewardship: Thanking donors and demonstrating the impact of their gifts.

Communication: Reaching out to supporters via phone, email, and social media.

Database Management: Updating supporter records and preferences.

Enquiries: Answering questions about donations, fundraising events, and campaigns.

Whether you have experience in customer service, community engagement, or simply a passion for making people feel appreciated, we encourage you to apply. Join our supportive team, develop your skills, and make a meaningful impact.

Vision Action is a unique organisation that works in low- and middle-income countries, supporting national governments to deliver and strengthen their eye health strategies. We work in partnership with local governments, civil society organisations, international and national NGOs, and the private sector. Our ambition is to increase equitable access to eye care services and glasses and accelerate achievement of the UN Sustainable Development Goal 5.

The role of the board is to oversee the overall direction and activities of the charity, including its policies and procedures, to ensure that they are consistently in accordance with the charitable purposes defined in the objects clause in its constitution. The board sets and monitors the strategic direction of the charity, although the implementation of strategy is achieved through the executive team. The board must always act in the best interests of Vision Action, taking decisions as a group and not as individuals.

Terms of service

For Vision Action the trustees are members who have been elected to serve on the board. Vision Action’s constitution allows for up to 12 trustees, who can serve a maximum of three consecutive terms of three years.  Vision Action is a company limited by guarantee and the trustees are its legal directors. The trustee role is voluntary, although relevant expenses incurred in the course of fulfilling trustee responsibilities are reimbursable in line with organisational policy.

Trustees are appointed by the Vision Action board of trustees annually at the board meeting following the Annual General Meeting (AGM). The time commitment involved in being a trustee includes attendance at four board meetings per year, one of which is an all-day strategy session. Board meetings are typically held for half a day on a weekday afternoon, with at least half the meetings taking place online.  Board papers are circulated in advance for review and preparation.

In addition, trustees are expected to attend the AGM, which is usually held on a weekend, as well as occasional members’ forums or other Vision Action events, which are often arranged alongside board meetings in the evening. Trustees may also be asked to participate in ad hoc meetings or online discussions relating to specific topics. Sub-committee meetings are also held in advance of board meetings, and trustees are also expected to participate in one or more of these groups depending on their expertise and responsibilities. Trustees will also be expected to commit time to undertake a full induction process.

Main tasks

Charity trustees have ultimate responsibility for directing the affairs of the charity and ensuring it is solvent, well-run and delivering the charitable outcomes for the benefit of the public for which it has been set up. Each trustee will be expected to join one of the two sub-committees (Programmes and Research; Fundraising and Finance).  The committees meet (in person or remotely) at least four times per year, usually timed with or in advance of the board meetings. 

General responsibilities

• Ensure th[JT1] at Vision Action complies with its governing document (i.e. its constitution[JT2]  and byelaws), charity law, and any other relevant legislation or regulations.
• Ensure that Vision Action pursues its objects as defined in its governing document.
• Ensure Vision Action applies its resources exclusively in pursuance of its objects, i.e. it must not spend money on activities which are not included in the objects, however worthwhile they may be.
• Contribute actively to the board’s role in the formulation and review of strategy, setting overall policy, defining goals, setting targets and evaluating performance against agreed targets.
• Safeguard the good name and values of Vision Action and maintain good relations with its members.
• Ensure that all policies are implemented, monitored and reports are acted upon, (including the policies on harassment and misconduct, safeguarding, recruitment of ex-offenders, and anti- bribery).
• Strive for Vision Action to reflect the full diversity of society in all its activities.
• Ensure the financial stability of Vision Action.
• Protect and manage the property of Vision Action and ensure the proper investment of its funds.
• Appoint and support key leadership and monitor their performance.

In addition to the above statutory responsibilities, each trustee should attend board meetings and use any specific skills, knowledge or experience they have to help the board reach sound decisions.  This may involve leading discussions, focusing on key issues, providing advice and guidance on new initiatives, evaluation or other issues in which the trustee has special expertise; and then always upholding the decisions taken by Board. Trustees are also expected to support Vision Action’s fundraising initiatives.

Treasurer specific responsibilities

Hold specific responsibilities relevant to the role:

• Chair the fundraising and finance sub-committee, overseeing and advising on the financial risks, challenges, health and resilience of the charity, reporting back to the full board.
• Monitor and advise on the financial viability of the charity, including the financial risks. This should include regular monitoring of cost recovery.
• Advise the board on the financial implications of its plans and policies.
• Monitor the preparation of budgets, accounts and financial statements and their presentation to the board.

Ensure policies and practices are in keeping with aims:

• Oversee the development and implementation of financial reserves, cost‐recovery and investment policies.
• Annually review the financial control framework to identify any changes, gaps and potential areas of exposure.
• Oversee the development and review of other policies and procedures as delegated to the fundraising and finance sub-committee by the board.

Ensure best practice:

• Support the Co-CEO (finance & operations) in preparing and presenting the budgets, management accounts and annual financial statements to the board, ensuring it receives a fully informed picture of the charity’s financial performance, position and effectiveness.
• Liaise with the Co-Chief Executive Officers and, as appropriate, with the investment advisors and auditors on matters relating to the organisation’s financial activities.
• Provide board‐level liaison with the external auditors on specific issues such as the auditors’ management letter, auditor remuneration and related board representations.
• Lead on recommending the appointment of new auditors to members of the organisation.
• Work with the Finance and Operations Manager to ensure that proper accounts and records are maintained, and that financial resources are spent and invested in line with good governance and legal and regulatory requirements.
• With the Finance & Operations Manager and the Joint Chief Executive Officers, closely monitor the reserves and investment plan, providing assurance to the board on the organisation’s future financial stability.
• Review all management accounts before they are placed before the board.

Personal specification

All our trustees are expected to have:

• A commitment to Vision Action’s vision and mission.
• A commitment to our values: being evidence-based, being inclusive, having integrity, sustainable programmes and being collaborative.
• Willingness to devote the time and effort needed to fulfil the role.
• Integrity.
• Strategic vision.
• Good, independent judgement.
• An ability to think creatively.
• A willingness to speak their mind.
• An understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship.
• An ability to work effectively as a member of a team and to take decisions for the good of Vision Action.

The treasurer will have:

• Experience as a director of finance (or equivalent) and/or in a treasurer role, with extensive experience of overseeing financial and management accounting, financial reporting, monitoring and controls, and external audit.
• An understanding of charity accounting and reporting standards (Charities SORP 2026), or a willingness to develop this through personal learning and development.
• A recognised accountancy qualification (CAAB) and
• Experience in international development would be an advantage.

The position is supported by the CEO who is an accountant and a part time bookkeeper.

The Next Step

We welcome questions and a discussion on our current financial circumstances with our treasurer and chair. Our treasurer retires in 2026, and we would like to involve any new appointment in our committees and board meeting in the last part of this year.

PR )Help us raise awareness, grow our community and bring more smiles to children across the UK.

Make a Smile is looking for a proactive, creative PR Officer to help share our story. If you enjoy communicating, building relationships and spotting opportunities, this role offers a meaningful way to make an impact.

What You’ll Do

• Seek out PR opportunities locally and nationally
• Build relationships with newspapers, radio, TV, university media and online platforms
• Pitch stories, arrange interviews and support chapters with media engagement
• Help organise university Instagram/TikTok takeovers and newsletter features
• Attend networking events and build connections with supporters and public figures
• Ensure our social media pages are high‑quality and on‑brand
• Work with the Website and Video Officers to share media features and create inspiring content
• Add interested contacts to our mailing list and help produce a monthly newsletter

Who This Role Suits

You don’t need formal PR experience - just enthusiasm and confidence. You’ll thrive if you:

• Enjoy writing, storytelling or creating content
• Feel comfortable reaching out to people and building relationships
• Are proactive and organised
• Have an interest in media, marketing, journalism or communications
• Want to gain experience in PR within a supportive charity environment
• Care about Make a Smile’s mission and want to help us reach more families

What You’ll Help Us Achieve

• Greater visibility for Make a Smile 
• Stronger volunteer recruitment and fundraising 
• Consistent, high‑quality branding across chapters
• More opportunities to showcase the impact of our work

WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.

We are looking for our next Chair of Trustees – someone who will work closely with our Executive Team and Board to guide the organisation through what is both a challenging and genuinely exciting time. The funding environment is tough. The political context is difficult. And yet the need for what we do has never been greater.

This is an unpaid voluntary role. Reasonable out-of-pocket expenses will be reimbursed in accordance with our Volunteer Expenses Policy.

The successful candidate will lead a vibrant, well-established, national charity as it navigates the next chapter of its story.

Main tasks

• Developing and setting our future strategy, alongside the Executive Team and other Trustees
• Helping shape and deliver our future, identifying opportunities in an evolving landscape
• Leading the Board of Trustees, including regular 1:1s and providing space for reflection
• Acting as a 'critical friend' to our Executive Team, as well as formal line management to the CEO (and COO in their absence)
• Acting as an ambassador for the charity – raising awareness of what we do and engaging potential supporters and other key stakeholders
• Responsibility, along with the other trustees, for the governance of the charity
• Contributing to the ongoing strategy of the charity, in line with our charitable objectives
• Participating in board meetings and sub-committees in an inclusive and thoughtful way

Please download our Chair Application Pack for more information.