Lived experience volunteer roles

Founding Trustees – No Guard Alone 

No Guard Alone is a newly forming charity being established to address mental health challenges in the UK security sector - a workforce of over 450,000 people exposed to isolation, risk, and repeated conflict, but with little sector-wide and bespoke support.

We are now recruiting founding trustees to help shape the organisation from the outset.

This is an opportunity to:

• Build a charity at formation stage
• Help define strategy, governance, and direction
• Contribute to a meaningful and under-recognised area of need

We are particularly interested in experience in:
Governance, finance, fundraising, mental health, safeguarding, digital, research, or the security sector.

We are building a balanced board and welcome both professional expertise and relevant lived experience.

Time commitment: 4–6 meetings per year
Location: UK (remote with some in person meetings where necessary)
Remuneration: This is a voluntary role with reimbursement of reasonable expenses

If you’re interested in helping build something from the ground up, get in touch for an initial conversation via 

Are you passionate about creating inclusive, anti-sectarian, and empowering spaces for Muslims?

Inclusive Mosque Initiative is looking for a Chair of Trustees to help lead our mission forward.

The Chair provides visionary and strategic leadership to the Board 
of Trustees of IMI, ensuring effective governance, accountability, and alignment with IMI’s 
mission to create inclusive, safe, and inter-sectarian spaces for Muslim worship, learning, and 
community building. This pivotal role supports the organisation’s growth and impact while 
fostering a values-driven, accessible, and collaborative board culture.

Why Join the Board?

• Be a Changemaker: Help steer a mosque committed to justice, inclusion, and community.
• Use Your Skills for Good: Whether your expertise is finance, governance, community engagement, or advocacy, your contribution will help us grow.
• Grow and Learn: Access free training in governance, leadership, and social justice while working alongside passionate Muslim leaders.
• Shape the Future: Play a pivotal role in guiding IMI’s growth, from expanding community programs to strengthening our financial sustainability.

Who We’re Looking For

We welcome Trustees who:

• Are Muslim.
• Are passionate about IMI’s Core Values and mission.
• Bring diverse professional and lived experience and skills to strengthen the Board.
• Are ready to collaborate, challenge, and support in a dedicated team.

To apply, see the role description packs and fill in the online form

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. We are looking for a new Treasurer to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills. 

Endometriosis UK is the largest UK charity for those with endometriosis. Endometriosis UK works to:

• Provide support to those with endometriosis and their families and friends

• Provide clear, objective information about the condition and its treatments

• Raise awareness amongst health professionals and the general public about the condition

• Support research into endometriosis.

This is an unpaid role. Reasonable pre-agreed travel expenses will be paid.

Time commitment:

• Five meetings a year, including preparation for meetings, reading papers etc; and attendance at an annual strategy day and AGM (held on the same days as Board meetings).

• Trustees have the opportunity to take part in Board sub-groups and project groups to develop aspects of the organisations’ work. Current sub-groups include the Finance Committee and Diversity & Inclusion Sub-Group. Trustees are also invited to attend Endometriosis UK events.

We are recruiting for one new treasurer to join the board. We are particularly looking for:

• Personal or professional experience of diversity and inclusion issues

• Marketing and digital marketing

• Communications and social media

• Campaigning and achieving change

• Experience of working in Primary Care

• Charity finance experience

• Currently living in Northern Ireland, Scotland or Wales

Personal experience of living with, or having a close family member with, endometriosis, is vital on our Board. Whilst we look favourably on applications from those in the endometriosis community, we already have Trustees with first hand lived experience and new trustees do not need to have endometriosis. 

We also particularly welcome applications from trustees from a range of backgrounds and experiences as part of our commitment to diversity.

The role will start at a Board meeting on 28th November 2026, when our current Treasurer reaches the end of their 6-year term of office. Prior to the roles starting, the incoming Treasurer will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

We are explicitly seeking a Trustee with lived experience that reflects the realities faced by the children, families and communities we serve. By lived experience, we mean someone who has personally navigated circumstances where opportunity was limited or unevenly distributed. This might include growing up in a low-income household, experiencing social or economic disadvantage, attending a school with few resources, or feeling that STEM (Science, Technology, Engineering and Mathematics) was a world that did not feel open or accessible.

If you have built your path despite these kinds of barriers, forging a career, finding your voice, or creating opportunities that were not readily available, your insight would be invaluable. We are looking for someone who can bring a different perspective to our Board, ask questions others may not think to ask, and help us stay grounded in the experiences of the communities who need us most.

You do not need previous governance experience. What matters most is your insight, your judgement and your commitment to CSC’s mission. We will provide a full induction, training and ongoing support to make sure you feel confident in the role. As a Trustee, you will work collectively with the Board to ensure the charity is well-run, financially sound, and delivering meaningful public benefit.

The Baobab Centre supports young asylum seekers and refugees who have experienced severe human rights abuses and arrived in the UK as unaccompanied minors. Our work focuses on rehabilitation and justice, providing long-term, holistic support to help young people heal from trauma and rebuild their lives.

We are at an exciting time of change within the organisation and now seeking new Trustees to join our Board and help guide Baobab through its next phase of development. 

The Baobab Centre is looking for new Trustees with experience of one of more of the following - management at a senior level in the third sector; fundraising; IT & Digital, IT Security; or clinical practice in psychotherapy.

Lived experience of the asylum and social care systems in the UK and/or work experience with young asylum seekers and refugees is particularly welcome. We also actively welcome young professionals and first-time trustees who are motivated to learn, bring fresh perspectives, and contribute their skills to an impactful charity.

Ref: V268 | Advisory Group Member | Northern Ireland

We’re looking for three Advisory Group Member Volunteers over the age of 18 years old, based in Northern Ireland.

You would need to commit to at least three quarterly meetings per year, and other ad hoc sub-group meetings and events as requested.

We are particularly Interested in applications from individuals with lived experience and skills or knowledge in income generation, communications, commissioning or rehabilitation.

Our Advisory Group normally meets in Belfast; however, events can be anywhere in Northern Ireland and meetings can be joined remotely. Travel expenses will be covered. 

The volunteer will be

· Someone with the skills and expertise to advise Northern Ireland’s senior management team on organisational strategy, operational planning, influencing the Stormont government, income generation and the external environment.

· A people person with good listening skills

· A great communicator who enjoys meeting new people

· Reliable and organised

· Passionate about supporting people affected by stroke

Grant and Sponsorship Proposals Writer needed to research and apply for funding opportunities.

What will you be doing?

• Grants & Sponsorship Proposals
• Grant Tracking & Reporting
• Additional Supportive Actions

Due to word limit, please refer to role description attached to this opportunity.

What are we looking for?

• Proven experience in grant writing, fundraising, or bid writing (charity sector experience desirable).
• Excellent research, writing, and editing skills with strong attention to detail.
• Ability to interpret funding criteria and tailor proposals accordingly.
• Strong organisational and time management skills.
• Analytical mindset for tracking and reporting on outcomes.
• Commitment to AuDHD UK’s mission and values.
• Lived experience of AuDHD or neurodivergence (desirable).
• Must be a UK resident as the role will require a DBS check

Our Trustees support all aspects of our work, with the aim of providing strategic support, governance and assurance that enables us to continue to deliver our core service and increase the number of women we can support into work by dressing and coaching women for interview and job success. 

The time commitment for this voluntary, unpaid role is an average of a day a month, with more time given at busy periods of the year. There will be a requirement to attend board meetings, with some trustees also sitting on subcommittees that meet around 4 times a year. In addition, there are events to attend and occasional additional duties to support our wider work. 

Smart Works regularly completes board reviews and skills audits. At the current time, applicants with experience and knowledge in the following areas would be advantageous:

• Charity law and regulation
• Accounting, finance, audit
• Fundraising
• Risk
• Legal
• Change Management
• Fashion Retail

If you feel you have valuable experience and skills to contribute to the Smart Works mission and would like to use your professional experience for good, we would love to hear from you.

For full details of the role and how to apply, please see the job pack attached. 

Manor Gardens Welfare Trust has been at the heart of Islington since 1913, where we were set up to address 10% rates of infant mortality. More than a century later, we're still pioneering: our Dahlia Project is the UK's first specialist psychotherapy service for FGM survivors, our award-winning Surplus Café, and leadership of the Islington Food Partnership have made us a serious force in community food justice, our advocacy work supports some of the boroughs most vulnerable residents in 16 community languages, and our youth services work with young people at risk of gang violence and exploitation in one of London's most deprived boroughs. We own three Grade II listed buildings in Upper Holloway, directly support over 2,500 people a year, and reach 10,000 more through outreach and partnerships. 

What we do

From multilingual advocacy and community wellbeing to youth work, therapeutic services, and food security, we work across the intersections of disadvantage, with particular expertise in supporting refugee and minoritised communities, survivors of FGM and sexual violence, young people at risk of exploitation, and people facing mental health challenges. We are a small organisation with an outsized impact, and we take seriously our responsibility to influence policy as well as deliver services.

What we're looking for

We're seeking trustees with expertise in one or more of the below areas:

Fundraising and income development — You will have significant experience leading or overseeing fundraising strategy, with a strong track record across trusts and foundations, statutory commissioning, or other income streams relevant to a charity of our size and complexity. You understand what sustainable income looks like for a community health organisation navigating a difficult funding environment.

Services and community leadership — You will have deep experience leading or developing services for under-represented, minoritised, or marginalised communities, ideally in the voluntary and community sector. You understand what excellent, culturally competent, trauma-informed practice looks like — and how to govern it well.

Human resources — You will have significant HR expertise and an understanding of what good people management looks like in a complex, mission-driven organisation. Whether your background is in-house, consultancy, or the voluntary sector, you'll be able to bring a thoughtful, practical perspective to workforce questions at board level and contribute to our HR and Communications sub-group, as well as the wider board.

In either case, you'll bring strong communication skills, genuine commitment to equity and inclusion, and the strategic clarity to contribute meaningfully at board level.

What you'll join

Our board of six trustees brings expertise spanning third sector leadership, asset management, law, HR, finance, and communications. We meet five times a year, with three sub-groups (Fundraising and Services; HR and Communications; Finance and Facilities) that meet as needed. The time commitment averages around six hours per month. Trustees are appointed for three-year terms, with the potential for renewal.

Knowledge

Understanding of the legal duties, responsibilities and liabilities of trustees.

Qualities and Behaviours

Strategic vision;

Commitment to inclusion, equalities and diversity and to the vision and mission of our charity;

Commitment to MGWT’s values;

Interpersonal and communication skills;

Collaborative approach;

Honesty and integrity;

Willingness and ability to devote the necessary time and effort to the role.

We warmly welcome applications from people with lived experience of the issues we address, and from those who are under-represented in charity governance more broadly.

AFRIL’s Allotment of Refuge is an integrated group of growers and gardeners both with and without lived experience of migration. The Allotment provides a weekly wellbeing space for AFRIL members to come together with members of the broader community and learn about food growing, learn new skills and enjoy a shared lunch. The Allotment also grows crops which are distributed at AFRIL’s Foodbank.

Our volunteers are crucial in supporting AFRIL staff to obtain the best outcomes for our clients, and this role will provide you with an opportunity to see a hands-on outdoor project, learn about growing and gain valuable insight into the immigration system and its many challenges.

WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions.

Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.

About us

We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.

What are we looking for?

We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.  As part of the organisation’s work to foster diversity, equity and inclusion, we aim to have a broad and varied membership of the Board. We encourage applications from the devolved nations of the UK. We particularly welcome applications from people with lived experience of rare, genetic or undiagnosed conditions either directly, via family and friends, or through a connection with one of our member organisations.

We are keen to recruit people with skills and knowledge in one or more of the following areas:

● Business development and income generation

● Human resources and people management

● Fundraising and philanthropy

● Media, communications and public relations

● Reproductive choice techniques and ethics

● Research in genetics or rare conditions.

What will you be doing?

Trustees play a key role in leading and supporting the charity. We ask them to:

● Attend four Board meetings each year (at least two meetings are held online, with one or two in-person Board meetings each year usually in central London)

● Attend one in-person Board Strategy Away Day each year (usually following one of the in-person Board meetings)

● Attend the one-hour Annual General Meeting in autumn each year

● Consider joining one of our sub-committees, with up to four online meetings each year.

The roles are voluntary (unpaid). We reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK activities. 

Most of our trustees are sponsored by our member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application.

We will provide full induction for successful candidates.

All postholders will be appointed for a first term of up to three years, with a possible further three years and up to a maximum nine years in exceptional circumstances.

We’re looking for an exceptional leader to become our next Chair of Trustees — and help shape the future of Little Village. 
 
What began as a grassroots response has grown into a London‑wide baby bank network, supporting thousands of families every year. But with more than one in three children in London living in poverty, our work — and our ambition — has never mattered more. 
 
Over the next chapter, we plan to expand our reach across London and scale our advocacy, including our national leadership as a co-founder of the Baby Bank Alliance, to drive lasting systems change for families experiencing poverty. 
 
As our current Chair’s term comes to an end in early 2027, we’re seeking someone with strong governance experience, strategic vision, and a deep commitment to social impact — someone ready to help lead an organisation with growing influence, reach and responsibility. 

We’d love to hear from you if you:  

• Have experience chairing boards, committees or senior leadership meetings.  

• Have strong understanding of governance (best practice)  

• Have experience of charity fundraising and income generation  

• Can commit the time and expertise to play a key role on our Board.  

• Share our passion for tackling child poverty and supporting families.  

This is an opportunity to play a defining role in a movement for change. 

We are especially keen to diversify our Board and particularly welcome applications from men and people under-represented in charity governance, including those from Black, Asian and Minority Ethnic backgrounds, LGBTQ+ people, people with disabilities, and people with lived experience of poverty.  

Next steps  

If joining the Little Village family sounds appealing, we’d love to hear from you. You can find more details in our recruitment pack, including how to arrange an informal chat before applying 

Find out more and apply here: Recruitment - Little Village 

Closing date: 12pm, Wednesday 3rd June 

Appear+

We provide psychosocial frameworks, training, and AI tools to combat appearance-based stigma.​

�� Role Summary

Appear+ is not just a product; we are building a system that understands lived experiences of appearance, identity, and psychosocial well-being. We are looking for someone who can help structure insights from user interactions into meaningful patterns.

�� What You’ll Do

• Help categorize and structure lived experience data
• Identify patterns in user responses and behavior
• Support development of simple insight frameworks
• Contribute to how Appear+ evolves based on real use

Essential Skills

• Background in research, psychology, sociology, or behavioral science
• Ability to work with qualitative data
• Strong pattern recognition and structured thinking

Desirable

• Experience with Airtable / Notion / Sheets
• Interest in human-centered AI or social systems

Impact

���� You will help shape how lived experiences become knowledge, and eventually influence systems and society.

Minimum Hours per Week:

2-3 hours per week

Duration:

3-5 months

At the heart of Ronald McDonald House Charities, is a simple belief: families belong together, especially when a child is seriously ill. Every day, we support parents, siblings and carers at one of the most challenging moments of their lives, offering not just a place to stay, but space to breathe, connect and cope.

We are the UK’s leading provider of family accommodation, with a network of 14 Houses supporting around 530 families each night. Thousands more families use our Houses each year as a place to rest, refresh and gather strength before returning to their child’s bedside. Yet demand continues to exceed supply, and too many families are still facing long commutes, sleepless nights on hospital chairs or in cars.

Over the next five years, our ambition is clear: to help more families and to serve them better, expanding both our accommodation and our programme of emotional and practical support. To help guide us through this pivotal phase, we are seeking to appoint two new Trustees to our Board:

• Trustee – Paediatric Experience: We are looking for a Trustee with significant paediatric expertise and a strong understanding of the clinical and hospital environment. This may be from a senior paediatric, nursing or allied health background, or with strategic or operational experience from the children’s health sector. You will bring insight into the realities facing children, families and healthcare teams, helping the Board make informed, compassionate decisions.
• Trustee – Finance & Investments: We are also seeking a Trustee with strong finance experience, including knowledge of investments. You will provide strategic oversight and constructive challenge around financial sustainability, reserves, investment strategy and stewardship, supporting our long term growth and resilience.

We are committed to building a Board that reflects a wide range of perspectives, backgrounds and lived experiences. We warmly welcome applications from first time trustees as well as those with prior board experience, and we are particularly interested in candidates who bring empathy and a deep understanding of the challenges families face during a child’s hospital stay.

We begin this next chapter from a position of strength, with the continued backing of the McDonald’s system alongside a clear ambition to diversify income and strengthen our organisation. By 2029, we aim to grow income to over £20m while reducing reliance on any single source.

If you share our values and want to help shape a future where more families are supported, together, we would love to hear from you.

How to apply
To download a full copy of the candidate brief and learn more about the role, please click the ‘Apply’ button, where you will be redirected to the website of our recruitment partner, Tall Roots. Applications should include a CV and a covering letter explaining why you would like to join our Board and how your skills, experience and values would enable you to make a strong contribution as a Trustee at Ronald McDonald House Charities. If you would like an informal discussion about the opportunities, please email Mark Crowley at Tall Roots.