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Page 1 of 36
Remote
£38,000 FTE
Part-time (22 hours per week)
Temporary (9 months)

Using Anonymous Recruitment

This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.

Job description

The Community Engagement & Support role is about providing greater sustainability and resilience for the Fahr’s Disease community and Fahr Beyond as a charity. The post holder will be building the capacity for Fahr Beyond to provide support for people living with Fahr’s and their families through creating a volunteer network that can provide an ongoing fortnightly support group. Additionally, through working with other organisations, the post holder will develop more support pathways and opportunities for patients; this is envisioned as strategic work within the Parkinson’s and Dementia space.

This post will also play a key role in bridging Fahr Beyond’s work with the community and medical professionals to develop awareness of Fahr’s Disease.  

What will you do in the role?

Volunteer Mobilisation & Management

  • Support the development of a volunteer strategy for Fahr Beyond
  • Actively manage the establishment of a volunteer network utilising prior expressions of interest, and you will support the onboarding of volunteers
  • The main point of contact for volunteers and help resolve matters they may have

Engagement & Communication

  • Monitor and respond to incoming correspondence to Fahr Beyond, along with assigning any actions for response to the appropriate volunteer
  • Support the trustees and volunteers with managing Fahr Beyond’s social media
  • Work with Fahr Beyond volunteers to ensure that Fahr Beyond maintains regular communications with patients, medical professionals, and key partners
  • ·Represent Fahr Beyond at sector events and/or meetings, particularly with organisations we are a member of

 

Project & Event Management

  • Support (and if required coordinate) Fahr Beyond’s education and awareness events for Fahr’s Disease, and events connecting multiple stakeholders in the Fahr’s Disease space
  • Support volunteers in creating fundraising and community involvement activities (online and potentially in-person) 
Application resources
Application Instructions

Please send your CV (no more than 3 A4 Pages) and a Covering Statement (of no more than one A4 page) in a PDF or Word Document format by email to Dr Adam Tate, Chair of Trustees with the subject ‘Community Engagement & Support Officer – Application’ by 9:00am (BST) Friday 24th July 2026

Organisation
Fahr Beyond View profile Organisation type Registered Charity Company size 0

To support people living with Fahr's Disease and their families

Posted on: 05 July 2026
Closing date: 24 July 2026 at 09:00
Job ref: Community Engagement & Support Officer
Tags: Communications, Fundraising, Advocacy, Volunteering Management, Digital, Delivery, Engagement / Outreach, Health / Medical, Public Relations, Social Media, Wellbeing, Governance / Management

The client requests no contact from agencies or media sales.