41 Digital marketing manager jobs in Bracknell, Bracknell Forest

Who we are

IPSEA (Independent Provider of Special Education Advice) is a national charity working to ensure that children and young people with special educational needs and disabilities (SEND) receive the educational support they are legally entitled to. Since we were formed in 1983, we have helped to improve the education experience of thousands of children and young people across England. We do this by providing free and independent legal advice and casework support for families, undertaking policy work and delivering training on the SEND legal framework.

What you’ll do

Reports to: Fundraising Manager

Location: Remote, with occasional travel for funder and staff meetings 4-5 times a year

We are looking for an experienced and motivated Trusts and Philanthropy Officer to join our small, ambitious fundraising team. IPSEA has a proven track record of successfully securing grants for core costs and projects. You will be responsible for researching new funding opportunities, preparing and submitting tailored applications and reports, and managing relationships with funders through thoughtful and timely stewardship. You will also have the opportunity to shape the early development of our strategies in major gifts and wider philanthropy and contribute to this work into the future.

This is a key role in IPSEA’s fundraising strategy and will help secure long-term financial sustainability for our services. 

If you share our commitment to protecting, promoting and upholding the rights of children and young people with SEND and would like to use your fundraising skills at IPSEA, we would love to hear from you. 

What we can offer you

• 5% employer pension contributions
• Healthcare cash plan
• Flexible working arrangements
• 25 days annual leave plus bank holidays plus an additional day off for your birthday (pro-rata if part-time).

To apply

Visit our website to download a recruitment pack and application form.

Deadline for applications: 9am on 5 October 2026.

First-round interviews: on 16 October in London, with second-round interviews (online) in the week commencing 19 October 2026.

NO AGENCIES PLEASE.

A Rocha UK is a unique Christian nature conservation charity, mobilising Christians and churches to care for the natural world. We are a member of the Worldwide A Rocha Family, a federation of Christian conservation charities, and we have sister organisations in 23 other countries. A Rocha UK has a staff of 25 and many volunteers. We run nature conservation activities on our own reserves, advise a national network of conservation partners, inspire Christians to protect nature and act on climate change through our Wild Christian scheme, and run the popular Eco Church scheme for local churches. Our office is close to overground and tube stations, with its own secure cycle and parking facilities.

In 2026 we launched a new three year strategy with exciting goals of deepening our support to those in each of our programmes and increasing our reach in order to see more people equipped to care for creation. We also have a heightened focus on cross-cutting issues of social justice, climate resilience, becoming more prophetic and ensuring we are both learning from and serving all of the UK. Among others, a key enabler to fulfilling this strategy is growing our income from just under £1m to £1.25m by the end of 2028, which this new role will play an important part in.

A Rocha UK is engaged with a large Christian constituency (Nearly 23,000 individuals on its e-mail lists, over 9000 churches registered for Eco Church across 25 denominations, over 60 Partners in Action, ranging from Christian conference centres through to community farms, and over 8000 individuals in Wild Christian - for individuals and households looking to live more sustainably).

This role is focused on growing Individual and Church giving from this constituency. There is work to do on developing engaging supporter journeys and fundraising appeals. There is also opportunity to develop fundraising propositions and take creative approaches to growing new donors. As well as the opportunity to be involved in developing our Wild Christian programme. 

For more information please click on the job description below. 

Individual Giving Executive

Up to £27,500 + excellent benefits

Leatherhead, Surrey

Join Rainbow Trust Children’s Charity and play a vital role in ensuring our teams can support families facing the unimaginable, helping us make a real difference.

We are looking for someone who is passionate about inspiring people to support our work with seriously ill children and their families. As an Individual Giving Executive, you will play a key role in growing and retaining our community of supporters, ensuring they feel valued and engaged.

About the role:

Reporting to the Individual Giving Manager, and working closely with external partners, the Individual Giving Executive will play a key role in growing and retaining our community of supporters, ensuring they feel valued and engaged. The post holder will contribute to the planning, delivery, and evaluation of fundraising campaigns across multiple channels, including direct mail, digital, and telemarketing.

This role offers an exciting opportunity to develop expertise in direct marketing and individual giving fundraising, working on a variety of campaigns designed to attract, retain, and inspire donors.

You will gain hands-on experience in supporter communications, project management, and data-driven fundraising, helping to shape effective appeals and engagement strategies. Your creativity and attention to detail will help ensure our messages reach the right people in the right way, building lasting relationships with supporters.

Why join us:

We’re proud to be a Two-Star Best Companies Top 50 mid-sized organisation and a Top 10 Charity, and we’re committed to creating a great place to work. You will benefit from:

• Pension scheme where we contribute 5% of your salary and you contribute at least 3%.
• A life assurance scheme for all employees which provides a death in service benefit of three times’ basic pay.
• Flexible working hours to balance home and working life.
• 25 days of annual leave plus public holidays – rising to 26 days after 1 year, 27 days after 5 years and 30 days after 11 years, with an additional 5 days to use in your 10th or 20th year of service (pro rata for part time).
• The option to buy/sell annual leave, as well as additional leave for your birthday, wedding/civil ceremony and an extra half day off for Christmas shopping.
• Time off in Lieu.
• Employee Assistance Programme with access to remote GP, counselling, physiotherapy, resources to support your mental health and financial wellbeing, as well as a 24/7 helpline via Help@Hand.
• Family friendly policies, focused on employee wellbeing, and an active cross-organisational wellbeing group running a number of initiatives throughout the year.
• Access to the Blue Light Card Scheme, and other rewards and discounts.
• Bike to work, season ticket loan and payroll giving schemes.
• A recommend a friend recruitment bonus scheme.
• Robust training and development programmes to support your learning and growth

If you’d like to find out more about these benefits and working with us, please visit our why work with us page on our website.

More information about us and our recruitment process can be found in our Candidate Pack on our website.

About us:

Rainbow Trust Children’s Charity enables families who have a child with a life-threatening or terminal illness to make the most of their time together, providing expert practical and emotional support where they need, it for as long as it is needed. For families living with childhood illness, time is everything. Right now, there are too many families coping alone with no support, no time to think, no time to make memories and no time for each other. We believe that no family should go through this alone, so we are here to change that.

How to apply:

To apply please email your Cv to us via the link.

Interview dates: Interview dates to be confirmed

Your covering letter should highlight why your application should be considered above others and clearly state how your experience matches the essential criteria outlined in the Person Specification.

Please disclose in your covering letter if you have used AI for any part of your job application.

Early application is encouraged as we will review applications throughout the advertising period and reserve the right to close the advert early.

Interviews will take place at our Head Office in Leatherhead. We will only contact those applicants who have been successful. If you require any adjustments during the interview process, please let us know.

An enhanced DBS disclosure will be required for this post.

Rainbow Trust is committed to safeguarding and promoting the welfare of children and young people and expects all employees to share this commitment.

Rainbow Trust is an equal opportunities employer, and we welcome applications from all backgrounds. 

Event & Engagement Coordinator

Remotely based in North West England and a willingness to travel where appropriate

Job Purpose:

To plan, coordinate, and deliver a range of local events across North West England with the potential to grow into other areas in the future, ensuring each event is well-organised, inclusive, and engaging for local communities. The Local Event & Engagement Coordinator will collaborate closely with partners, local authorities, suppliers, volunteers, and members to deliver high-quality, unique and memorable experiences.

Who are we looking for?

· Energetic and positive, bringing enthusiasm to everything you do.

· Excited by change, seeing new opportunities and possibilities.

· Keen to succeed with a strong development mindset.

· Passionate about delivering great events and experiences.

· Open to feedback, always looking for ways to improve.

Key Responsibilities:

Event Coordination

· Plan and manage logistics for a variety of local member events, making sure all events are accessible and attractive to both existing and potential members.

· Liaise with relevant external and internal contacts such as venues, suppliers, CSSC’s ticketing platform, Head Office departments, and volunteers.

· Complete all relevant compliance work such as risk assessments and public liability checks.

· Support both long standing and new volunteers with all aspects of volunteer led events, including creating events on ticketing platform and promoting events through email and social platforms

· Develop and manage event budgets, ensuring value for money and accurate financial tracking.

· Oversee event setup and breakdown where applicable, managing on-site logistics and resolving any issues on the day.

· Recruit and coordinate volunteers to assist with events.

· Evaluate event success through feedback, data collection, and post-event reporting.

 

Digital Engagement

· Promote events via social media, email campaigns, posters, and local press in collaboration with marketing teams.

· Manage and grow the North West’s CSSC TikTok presence, including content planning, filming, editing, posting, and community engagement.

· Create engaging, on-brand short-form video content tailored to target audiences.

· Monitor performance metrics and use insights to optimise content strategy and increase reach and engagement.

· Stay up to date with emerging social media trends, tools, and platform updates.

Key Skills & Experience:

Essential:

· Proven experience in planning and delivering events.

· Strong organisational and time-management skills.

· Ability to manage budgets and handle multiple projects simultaneously.

· Excellent communication and stakeholder engagement skills.

· Flexibility to work evenings and weekends when required.

· Ability to analyse member insights to inform event planning and attract potential new members.

· Ability to work collaboratively with regional teams to support membership growth and positive member experiences.

· Ability to build rapport with volunteers and identify the support needed for successful event delivery.

· Confidence in using IT systems and ticketing platforms to promote events across appropriate channels.

Desirable:

· Experience working with community groups, charities, membership organisations or not for profits.

· Knowledge of health and safety and safeguarding procedures.

· Familiarity with marketing or PR for events.

· First Aid or event safety training.

· Previous experience with ticketing platforms or willingness to learn.

· Understanding of how comms and events align with one another.

· Data literacy or willingness to understand some basic data analytics

· Full UK driving licence and willingness to travel where appropriate

High Value Development Officer

We are seeking a talented writer and relationship-builder to help create compelling propositions that inspire high-value donors to support vital work.

Position: High Value Development Officer
Salary: Circa £31,700 per annum, with London weighting where applicable
Location: Home-based
Hours: 36 hours – flexible 4 day week or 9 day fortnight
Contract: Fixed term until April 2027
Closing date:  CV’s reviewed on a rolling basis

About the role

This is an exciting opportunity to join a High Value Engagement team and play an important role in developing compelling donor communications, propositions and stewardship materials.

Working across Philanthropy, Trusts & Grants and Corporate Partnerships, you will help ensure high-value donors receive timely, accurate and engaging information that demonstrates the impact of their support and encourages long-term relationships.

Key responsibilities will include:

• Developing compelling cases for support, bespoke proposals and donor materials.
• Researching and gathering information, data, case studies and evidence for bids, pitches and proposals.
• Creating fundraising toolkits including budgets, case studies, digital assets and stewardship materials.
• Supporting the development of the high-value donor stewardship programme.
• Helping to organise donor stewardship activities, webinars and small events.
• Turning complex health, impact and business intelligence data into accessible and persuasive fundraising content.
• Building strong relationships across internal teams to source the information fundraisers need.
• Working alongside creative colleagues to develop visual content that helps bring the organisation’s work and impact to life.

About you

You will be an excellent writer and researcher who can take complex information and turn it into clear, concise and compelling content.

You will have strong research and analytical skills, excellent attention to detail and the ability to manage competing priorities and deadlines. Comfortable working collaboratively across an organisation, you will be confident building relationships with colleagues at all levels and able to work independently using your own initiative.

You will also be confident using Microsoft Office and databases and have strong administrative and communication skills.

Fundraising experience would be valuable, but the skills required could also have been developed within communications, research, bid writing, marketing, business development or another environment where persuasive written content and relationship-building are central.

About the organisation

You will be joining a leading UK charity supporting people affected by stroke. Working across the organisation, you will gain exposure to a wide range of services and impact, helping high-value fundraisers tell compelling stories that inspire supporters and strengthen long-term donor relationships.

You will be joining an organisation committed to its values, equal opportunities and diversity.

Other roles you may have experience of could include: Fundraising Officer, High Value Fundraising Officer, Development Officer, Trusts and Grants Officer, Bid Writer, Proposal Writer, Fundraising Communications Officer, Philanthropy Officer, Corporate Partnerships Officer, Donor Engagement Officer or Fundraising Content Officer.

The Role
We are looking for a fixed-term (12 months)Fundraising Data and Insight Leadto help National Deaf Children's Society to maximise and diversify our income streams. You will work closely with fundraising colleagues to produce robust reports, help design and deliver exciting customer-focussed initiatives, and get the most value for our customers.

What you'll do

• Create and maintain regular fundraising reporting
• Design and answer complex fundraising questions using data science methodologies
• Lead analytics work to understand our audiences, supports, and potential new customers
• Use AI to increase the efficiency and effectiveness of data reporting and analytics
• Work closely with key staff members including the Chief Income & Marketing Officer, and the Platform Lead for Money Matters (Fundraising)

What you'll need

• Proven experience in data science or data analytics
• An excellent grasp of fundraising within the third sector, and experience of supporter analysis and insights
• Experience leading work on complex financial or fundraising-related datasets
• Ability to use SQL and Python
• Confident and comfortable to translate complex information into useable and useful insights, and options for decision-making
• Strong digital skills and a sound understanding of agile values & principles.
• A criminal record check / DBS disclosure (if offered the position).

What you'll get

• Home-based working with flexible hours.
• 25 days holiday - plus an additional 3 days at Christmas (& bank holidays).
• Pension (5.5% employer contribution).
• Healthcare Cashplan.
• Annual performance-based salary increase.
• Employee Assistance & Wellbeing Programmes.

What we do
The National Deaf Children's Society are the leading charity for deaf children. We give expert support on childhood deafness, raise awareness and campaign for deaf children's rights, so they have the same opportunities as everyone else.

Pre-employment checks
As part of our commitment to creating a safe and trusted environment for the children, young people and families we support, all offers of employment are subject to background checks. These include Right to Work verification, Criminal Record Disclosure, and ID and address verification.

To complete an online Right to Work check, you will need a valid UK or Irish passport, or a government share code if you are not a British citizen. If an online check is not possible, we’ll need to verify your documents in person at our London office. Please be aware that travel time and expenses for this appointment cannot be reimbursed.
Disability Confidence

We are a Disability Confident Employer and committed to offering interviews to candidates who request to be considered under the disability confident scheme and meet the minimum requirements of the person specification.

The National Deaf Children’s Society is a registered charity in England and Wales no. 1016532 and in Scotland no. SC040779.

About Us: 

Princess Alice Hospice is a charity supporting people in life, death and grief. We’re dedicated to working closely with individuals, communities and organisations in the London Boroughs of Kingston and Richmond and large parts of Surrey, to ensure more people receive the support they need. 

About the role: 

We’re thrilled to offer a fantastic opportunity to join our Fundraising Team in a temporary role supporting our Christmas events programme. You’ll help deliver our festive calendar, with a particular focus on our flagship Santa Fun Run, which aims to raise an incredible £66,000. You’ll also support Light Up a Life and our Christmas Tree Collections in January. 

This is a varied, hands-on role. Key responsibilities include: 

• Researching and ordering stock and liaising with suppliers

• Loading and driving a small van

• Putting up banners 

• Distributing leaflets to businesses and organisations in our care area 

• Liaising with community fundraisers to promote the event

• Engaging with staff across the organisation to promote the event 

• Updating event briefing documents 

• Calling supporters to discuss the event, helping them set up fundraising pages and supporting their fundraising 

• Liaising with the Volunteering team to recruit and brief volunteers

• Attending all events is essential. Event dates are 29 November 2026, 4 December 2026, 13 December 2026 and 8–12 January 2027. 

You'll be there to help set up events and ensure they run smoothly on the day. You’ll also support the wider marketing and administration involved in event management and delivery, including preparing marketing literature and providing administrative support. 

Who are we looking for? 

We’re looking for someone who enjoys being part of a lively team, is happy to get stuck into practical tasks and is confident engaging with supporters, volunteers and colleagues. 

• Ready to unwrap an exciting career in fundraising and make a meaningful difference 

• Passionate about bringing brilliant events to life and creating a buzz in the community 

• A super-organised multitasker who keeps the details sparkling and thrives as part of a team 

• Bursting with energy, can-do enthusiasm and enough festive spirit to rival Santa’s elves! 

You’ll help bring the Santa Fun Run to life, which may include dressing as Santa or an elf, promoting the event around the Hospice and in the community, and encouraging people to sign up. 

What you’ll be doing: 

• Supporting the event lead with planning and logistics 

• Motivating participants and engaging the community 

• Assisting with event setup and delivery, including lifting boxes, erecting gazebos and packing vans 

• Driving a van (so a full UK driving licence is essential) 

• Working flexibly, including evenings and weekends as needed 

This role is ideal for someone who wants hands-on experience in the lively world of community fundraising. You’ll build practical skills across charity events and seasonal campaigns while helping create memorable experiences for supporters and the local community. 

At Princess Alice Hospice we are passionate about creating an inclusive workplace that values diversity. We are fully committed to equality of opportunity and warmly welcome applications from individuals of all backgrounds, cultures, and lived experiences. We value the unique perspectives each person brings and strive to create a workplace where everyone feels respected and supported. We are an organisation where you can be you.

We are signed up to the Disability Confident scheme and we guarantee to interview all disabled applicants who meet the minimum criteria for the vacancy. 

Please visit the Join our Team section on our website for tips and guidance on how to complete your application form, and what to expect when interviewing with us. 

Please visit our Privacy Notices section to understand and be aware of how we use the data you provide to us.

All of our vacancies except from retail are subject to a relevant DBS check.

Job Title: Community Engagement Officer – North

Duration: Permanent

Hours: 36 hours per week, plus pension and benefits

Salary: £30,300 per annum, plus pension and benefits

Location: Homebased with regular travel across the North

The future of CCT’s outstanding collection of historic churches depends on communities supporting their local CCT church with funds, events, inspiring interpretation, visitor services and preventive conservation. The Local Community Officer will engage and support communities and volunteers to care for 20 historic churches across the North, (Cumbria, Lancashire, Merseyside, Greater Manchester – North, West Yorkshire) ensuring each site achieves agreed standards.

We have recently published our TRUST values, which outline the behaviours and expectations that act as our foundations at CCT. We have attached the pack, outlining each value, which we will also be using as part of our shortlisting and interview process to find the right candidates that align with our values.

If you would like to apply for this role, please visit our recruitment portal to begin your application. You will be asked to submit a CV and a short supporting statement (max 2 sides A4) outlining why you’d like to apply and how you fulfil the person specification for this post, so you’ll need to refer to the job description.

The closing date for receipt of applications is 8am on Friday 16th October 2026.

The interviews will take place in York on Wednesday 28th October 2026. Please note that the interview date and location have been specifically chosen according to the availability of the panel.

  

Please note: As part of our recruitment process, we undertake candidate psychometric testing. If your application is successful and you are invited to interview, you will receive an email asking you to complete a series of activities, these need to be completed at least 2 days before your interview.

All successful applicants will be subject to a basic DBS, credit check, references and right to work checks.

We are a Disability Confident Committed Employer. Candidates who declare that they have a disability and who meet the essential criteria for the job will be offered an interview.

If you have any queries about this role, or if you have a disability and wish to request a reasonable adjustment at any stage of the recruitment process, please contact us.

We are an inclusive employer and offer equal opportunities to all regardless of an individual’s age, disability, gender identity, marriage or civil partnership status, pregnancy or maternity, race, religion or belief, sex and sexual orientation.

We are not a licensed sponsor at this time. Any offer of employment will be made subject to valid right to work in the UK being provided.

Position: Breathing Space Coordinator, Wales
Hours: 21 hours per week
Contract: Fixed term until March 2029
Location: Home-based in Wales
Salary: £26,912 per annum FTE, (£16,147 per annum actual for 21 hours per week) plus excellent benefits
Salary Band and Job Family: Band 1, Charity
You’ll start at our entry point salary of £26,912 per annum FTE (£16,147 actual), increasing to £28,594 per annum FTE (£17,156 actual) after 6 months service and satisfactory performance and to £30,276 per annum FTE (£18,166 actual) after a further 6 months.

About us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus.

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information.

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

This part-time, fixed-term role (21 hours per week) will coordinate our Breathing Space project in Wales until March 2029. The project enables unpaid carers supporting people with MS and other neurological conditions to take short breaks.

We are seeking an enthusiastic, experienced Project Coordinator who enjoys delivering fixed-term funded projects, working directly with the people we support and our volunteers. Excellent communication skills and a proven ability to achieve project objectives are essential.

You will work closely with unpaid carers, people affected by MS and other neurological conditions, key external partners, the Service and Support Team, the Director for Wales and teams across the MS Society. Focused on outcomes and tangible results, you will build strong stakeholder partnerships and represent the MS Society at meetings and events promoting the project to unpaid carers.

The role can be based anywhere in Wales, but regular travel across Wales is expected.

Welsh language skills are desirable

Closing date for applications: 9:00 on Monday 28th September 2026.
Anticipated interview date: 6th & 7th October.

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

Equal Opportunities 
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 38 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.