Independent living service volunteer volunteer roles in Cumbria

We are recruiting for Volunteers to to join our team in the National Domestic Abuse Helpline Team.

Job Title: National Domestic Abuse Helpline Volunteers

Location: Homeworking
Salary: Voluntary role and therefore Salary not applicable
Contract type: Voluntary

Hours: 3-4 hours per week. (We are currently looking for candidates who can support us for shifts between 10am-10pm. Any day, Monday – Friday and 10am-6pm Saturday & Sunday)

We want kind and empathic people to work at Refuge, who believe in equality, diversity, and inclusion, are experts in their area of knowledge, want to make a positive difference and improve the lives of the women and children we support.

This is an opportunity to join Refuge as a Helpline Volunteer to provide high quality practical and emotional support to survivors of domestic violence and their children living in our refuges.

We are looking for volunteers to ensure those who contact us are provided with a safe, supportive and welcoming service as well as providing trauma-informed emotional support to women who are experiencing domestic abuse and other forms of violence against women and girls (VAWG). You will also aid survivors in their understanding the dynamics of domestic abuse and the different forms it takes.

For further information on the key accountabilites for this volunteering role, please see our job profile document.

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 2nd March 2026

Interview Dates: From Monday 30th March 2026 to Thursday 9th April 2026 (online)

Induction dates:Monday 11th May 2026 – Friday 15th May 2026 inclusive 9.30am-4.30pm (online) (Please note that you would need to be availble for these dates)

About us

VoiceAbility is an independent charity and one of the UK’s largest providers of advocacy and involvement services. We deliver a wide range of service contracts funded by local authorities, health trusts and other voluntary and private sector organisations.

We’ve been supporting people to have their say in decisions about their health, care, and wellbeing for over 40 years. We make sure people are heard when it matters most.  For more information on what Advocacy is and the services offered then please visit our website.

About the role?

Our Trustees play a critical role in the organisation, helping set the strategy and review progress in relation to it, providing support, challenge and expertise to the Chief Executive and Directors.

A Trustee plays an essential role in seeking to maximise VoiceAbility’s positive impact as well as to stretch and hold to account the Chief Executive.

The role also has ultimate responsibility for the compliance with legal and regulatory requirements, as well as ensuring that the organisation acts in line with its charitable objectives and is financially stable. Trustees work as a team, applying good judgement and taking collective responsibility.

About you

We are looking for a Trustee with sound independent judgement, strategic vision and the ability to think creatively.  You will embody the organisations values and act in the best interests of the charity at all times. 

You will be engaged and motivated by the work of VoiceAbility and be able to build strong relationships and have experience of working as a non-Executive director or Trustee; however, lived experience is equally important.

We are seeking to recruit Trustees who bring Expertise in Finance, Safeguarding, Human Resources, Commercial and Operational Delivery.

Time commitment

Approximately one day per month.  Please note that this time commitment will be spread across multiple days and is likely to be cyclical.

There are four board meetings per annum.  Board meetings tend to be online, but face-to-face, or hybrid meetings may take place from time to time.  There would also be a commitment of two to four committee meetings per annum, a board strategy or development day and site visits.  Each trustee will also belong to at least one committee.

Equality and Diversity

VoiceAbility believes in fostering an inclusive workplace which welcomes, values, and celebrates the diversity of its staff and partners, treats all on a basis of equality and encourages all to meet their maximum potential.

VoiceAbility are a Disability Confident employer, any applicant that identifies themselves as having a disability and can demonstrate that they meet all the essential criteria for the role will be offered an interview.  If you need to apply in a different way, please contact HR for further options.

How to apply

Please follow the link to our latest vacancy page

Important Dates:

Closing date for applications: 

28 February 2026

 Interviews to be held: ongoing

The role

Are you passionate about the work of Methodist schools and a strong advocate for them?

We are seeking an inspiring Chair for the Methodist Schools Committee, someone who can offer strategic direction, nurture relationships, and support the Methodist schools at a pivotal time. 

About you

We are looking for someone who:

· Is a member of the Methodist Church in Britain.

· Has a strong understanding of, and the ability to articulate and communicate, a Methodist vision and ethos for education.

· Has a strong grasp of the range of Methodist schools and their role within the life of The Methodist Church.

· Has proven ability to offer effective strategic direction and oversight, balancing support and constructive challenge

· Is relational and collaborative, with an ability to bring different stakeholders together to work in a common cause;

This post carries an occupational requirement for the post holder to be a Christian (in accordance with the Equality Act 2010).

Duration

An initial three‑year term, with the possibility of extension for another term, up to six years in total.

Time Commitment

Normally four MSC meetings per year, with occasional attendance at Methodist Academies and Schools Trust (MAST) and Methodist Independent Schools Trust (MIST) committee meetings and the Connexional Council.

The Chair typically liaises with the Director of Methodist State Schools, members of the Senior Management Group of the Connexional Team, Trustees, and key partners.

If you have questions about the role or require reasonable adjustments to be made at any stage of the recruitment process, please email HR Team.

Closing date: 16 February 2026

Shortlisting date (updated): 26 February 2026

Interview date (updated): 13 March 2026 (in person interview)

As part of the Government led Gommunities for Afghans programme, we are looking to recruit individuals or groups to make up a team of 6 volunteers to support an Afghan family - you could be friends, neighbours, colleagues, faith groups, veterans, or community organisations are welcome. 

We are currently focussed on supporting families across Wales, West Midlands and Scotland but be keen to support elsewhere geographically where possible.  With this in mind, you may live in these areas, but we are also delighted to bring volunteers together remotely to support a family. 

You will be at the heart of this programme. It is a rewarding opportunity to make a real difference!

The Communities for Afghans programme is a community-led Government initiative supporting families as they rebuild their lives in the UK. It is a Government-approved scheme that enables local people to welcome Afghan refugee famiklies into their community. Volunteers will be supported by us to find housing for a family, provide practical and emotional support enabling them to settle into daily life and feel a genuine sense of belonging in the community.

How community sponsorship work

1. Form a Sponsor Group Create a team of six or more volunteers — friends, neighbours, colleagues, faith groups, veterans, or community organisations.
2. Training & Ongoing Support Our partners provide full training, so your group feels confident and well prepared. This simple, practical training is offered before you begin and continues throughout the sponsorship journey.
3. Identify Suitable Housing With our guidance, your group helps find long-term accommodation. We then match an Afghan family of the appropriate size and ensure the property is suitable and affordable. Government funding is available for rent deposits and related costs.
4. Welcome & Support the Family Volunteers help the family register with schools, healthcare, benefits, and local services, while introducing them to the community and supporting them as they adjust to life in the UK.
5. Be the Local Point of Contact You act as the family’s trusted guide, helping them navigate the area, understand local systems, and access opportunities that only residents truly know.
6. Commit for Three Years Sponsor groups support the family for three years, providing consistency as they grow in independence, confidence, and resilience.

Why Your Support Matters

Volunteering through Community Sponsorship is a powerful act of solidarity. You are not only helping one family — you are strengthening your entire community.

Your support helps families: 

• Rebuild their lives in safety and dignity
• Access education, healthcare, and employment
• Learn English and integrate into the community
• Become confident and independent

And your community benefits:

• Stronger local connections
• Celebrated diversity
• Practical meaningful humanitarian action

Are you passionate about helping people from Afghanistan feel welcome and supported in the UK? Do you have the language skills and cultural understanding to assist Afghan refugees as they navigate the challenges of building a new life? If you’re adaptable, resilient, and dedicated to making a difference, we’d love to hear from you!

About us

Gulab Sorkh Foundation (GSF) is an independent charity supporting Afghan nationals resettled in the UK under the ARAP scheme. We are a small but impactful organisation, dedicated to helping those who worked closely with British forces in Afghanistan and their families integrate successfully into British life.

Job description

We are looking for two volunteer interpreters—one fluent in Dari and one fluent in Pashto — to join our team at the Gulab Sorkh Foundation (GSF). You will play a key role in supporting Afghan refugees who have resettled in the UK, assisting them in accessing essential services and communicating effectively in their daily lives.  This is an influential volunteer opportunity where you will make a real difference by helping Afghan refugees integrate into British society, providing crucial interpretation during interactions with service providers such as healthcare professionals, housing officers, and legal advisors.

As a Volunteer Interpreter, you will:

• Provide interpretation services (Dari or Pashto) to Afghan refugees, ensuring clear 
• communication between them and various UK service providers.
• Assist refugees in understanding key information related to housing, healthcare, 
• education, and other public services.
• Facilitate communication during meetings, appointments, and community events to 
• support their integration journey.
• Offer support and cultural understanding to ensure refugees feel comfortable and 
• respected throughout their resettlement process.

Key responsibilities:

• Interpret accurately and sensitively between Dari/Pashto and English during one-on-one 
• and group interactions.
• Help beneficiaries understand and complete necessary paperwork or official forms in 
• both languages.
• Collaborate with case managers and external partners to ensure the refugees’ needs are 
• effectively communicated.
• Be aware of and sensitive to the needs of individuals who may have experienced trauma 
• and displacement.
• Follow data protection laws and policies

Essential skills:

• Fluency (written and verbal) in Dari and/or Pashto and in English.
• A high level of cultural sensitivity and empathy towards Afghan refugees.
• Strong communication skills, with the ability to translate complex information clearly 
• and accurately.
• Ability to remain neutral and impartial in all interactions.
• Commitment to safeguarding vulnerable individuals and confidentiality.

Desirable skills:

• Level 3 in Interpretation.
• Previous experience working with refugees or vulnerable communities.
• Knowledge of UK systems such as healthcare, housing, and immigration.
• Understanding of the Afghan Relocations and Assistance Policy (ARAP) scheme.
• Ability to work independently and as part of a team.

Please note:

This is an unpaid voluntary position, offering flexibility to fit around your other commitments.

This is a completely remote role, and as such you will need to ensure that you have access to a confidential, quite space during your working hours.

To apply please upload your CV and covering letter (max. 2 A4 pages each) 
In your application, please explain how you meet every point on the essential criteria with examples. If you meet any of the desired criteria, please do the same for these.  We actively encourage applications from individuals with lived experiences of migration or refugee resettlement.

Please get in touch with us if you have any queries.

We look forward to hearing from you

Do you have experience in digital and social media? Can you help us improve our communications and raise the profile of the work we do?

We are seeking an expert, creative Volunteer Digital and Social Media Lead. You will help us promote our programmes supporting people in prison and young people at risk of entering the justice system, as well as our Community Bike Shop, which funds and strengthens this work.

What you’ll do:

• Design and schedule engaging posts, stories, and reels across Instagram, Facebook, TikTok, and more to grow our audience.

• Develop strategies for viral campaigns and collaborations to boost awareness and donations and share your expertise with our team.

• Analyse metrics (engagement, reach, growth) and refine tactics based on what resonates.

• Create eye-catching visuals using tools like Canva.

• Update our website as required and make suggestions for improvements.

• Work with our expert Trustee to consider how we can use online retail platforms to sell our refurbished bikes.

What we’ll provide:

· Creative freedom within agreed priorities and tone of voice.

· Access to the right tools plus shared photos, stories and impact stats.

· A named contact, light-touch sign-off, and occasional check-ins to remove blockers.

Time commitment: we’ll agree a realistic scope with the right volunteer based on their availability.

Reasonable agreed expenses will be paid.

Thank you

Mark Flannagan
Chief Executive

About us

UpCycle, works with individuals in prisons and young people at risk in marginalised communities.  We use bicycle maintenance workshops to help build life skills, enhance employability, prevent offending and reoffending, and foster social reintegration.  We also offer lead rides, bike fit-it sessions and other ways to engage with vulnerable people.

In prisons

· We delivered 956 un-refurbished bikes and received back 768 refurbished bikes across eight prisons and one Young Offenders Institution, training over 238 individuals.

In the Community

· Over 1034 bikes were donated to our Community Bike Shop, of those we refurbished and distributed more than 612 to underserved communities locally and overseas.

· Workshops in Bradford engaged 361 participants in diverse cycling-related activities across the area.

· "Bike to the Future" and other initiatives reached 220 young people with more complex needs.

Closing Date:

We are reviewing applications on a rolling basis and applications will be reviewed as they are received.

The Role:

We are currently seeking a Finance Trustee to join our Board as Treasurer. It’s a voluntary role that requires a committed individual with financial expertise to take a collaborative approach, supporting our Trustees, our Head of Finance and Governance, and our management team to oversee the financial affairs of our charity and ensure that they are legal, constitutional, and within accepted accounting practice.

Our Organisation:

Greener and Cleaner delivers locally but thinks, and influences, nationally. Our vision is greener, healthier, better connected communities across the UK. We seek to achieve this through normalising 360-degree sustainable living, bringing the community together to make changes that can deliver a big impact. We have a non-judgemental peer-to-peer approach, so that all elements of the community feel empowered to take action in how they live, work, and play and in how they use their voice to push for change.

Treasurer Role:

The primary role is to ensure alongside other Trustees that they accept ultimate responsibility for the affairs of G&C and ensure that it is solvent, well run, and delivering the charitable outcomes for which it has been set up. As well as fulfilling the duties of a Trustee, the Treasurer ensures that effective and appropriate financial measures, controls, and procedures are put in place and reports to the Board at regular intervals about the financial health of the organisation.

• Overseeing the presentation of budgets, internal management accounts, and annual financial statements, as produced by the finance team or others where appropriate, to the Board of Trustees
• Ensuring that proper accounting records are kept, and that appropriate accounting procedures and controls are in place. 
• Liaising with any paid staff about financial matters, as appropriate.
• Ensuring that robust and comprehensive financial policies are in place and being implemented, and supporting the development of policies covering financial reserves, and cost management. 
• Overseeing financial controls and adherence to systems. 
• Drawing any major financial concerns to the attention of the trustee and the management team.
• Ensuring that the charity has appropriate reserves in line with its reserves policy, and monitoring and advising on the financial viability of the charity. 
• Advising on the financial implications of the charity’s strategic plan, including overseeing the charity’s financial risk-management process.
• Ensuring that the charity has an appropriate investment policy and that investments and assets are maximised.
• Leading on the appointment of and liaison with external auditors. 
• Overseeing the development and implementation of systems for appraising, mitigating, and reporting corporate risk. 
• Ensuring that the accounts are prepared and disclosed in the form required by relevant statutory bodies – for example, the Charity Commission and/or the Registrar of Companies.
• Keeping the board informed about its financial duties and responsibilities.
• Supporting other Trustees in understanding the charity’s financial position and decision making.
• Contributing to the fundraising strategy of the charity and its ethical fundraising policy.
• Making a formal presentation of the accounts at the Annual General Meeting and drawing attention to important points in a coherent and easily understandable way.

The Person We’re Looking For:

• A finance professional with a firm understanding of charity finance and some experience of fundraising and pension schemes.
• Knowledge of charity fundraising, bid writing, and/or other income generation and/or securing funding through creation or leveraging of partnerships and networks (at a national or local level).
• A strategic thinker with an ability to balance risk and opportunity and the skills to analyse proposals and examine their financial consequences.
• Clear communicator with the ability to explain financial information to members of the Board and other stakeholders.
• Willing to play an active role in areas such as forecasting, setting budgets, and liaising with auditors.

In addition, the Treasurer will also have the responsibilities and qualities of all Trustees.

Responsibilities of All Trustees:

• Demonstrating a commitment to G&C’s objectives
• Contributing to setting the strategic goals and monitoring performance by active participation in Board discussions and decision-making
• Actively assisting the charity to build their connections and partnerships for the purposes of most effectively delivering their goals and fundraising
• Ensuring that G&C complies with its governing documents, the law, and all other relevant documentation
• Helping to identify risks and ensuring appropriate controls are in place
• Helping the Board to make sound decisions by making available their own personal knowledge and experience
• Assisting the Chair to appoint and appraise the performance of the Senior Leadership Team members
• Sharing relevant skills and expertise with the Senior Leadership Team members
• Making all reasonable efforts to attend Board meetings, away days, development meetings, publicity events, and other such public functions as requested by the Chair
• Ensuring the charity’s focus on equality, diversity, and inclusion remains at the heart of its strategy and delivery

Trustee Person Specification:

In addition to the Treasurer role specific above, our Trustees will ideally also demonstrate the following:

• A commitment to the objectives and activities of G&C
• A willingness to devote time and effort to G&C beyond attending board meetings
• Have strategic vision, an ability to think creatively, and an appropriate level of financial literacy
• Understanding of and acceptance of the legal duties, responsibilities, and liabilities of their position
• Have good independent judgement
• Be willing to effectively act as part of a team
• Adhere to the Nolan Principles of public office: selflessness, integrity, objectivity, accountability, openness, honesty, and leadership
• A willingness to allow the Employee/s to make reasonable decisions and to act within the limits prescribed by the Board

To Apply:

To see the full job advertisement with details on how to apply, and to learn more about the role and our organisation, please see the attached supporting documents.

Settled is recruiting new trustees to join its Board and support EU citizens and Ukrainian refugees to access their rights in the UK. This is a voluntary role, open to first-time trustees and those with board experience. We are particularly interested in skills relating to finance, fundraising, governance, or equity, diversity and inclusion, as well as lived experience. Meetings are mainly online, with one in-person away day per year. Closing date: 5pm, Monday 2 February 2026.

Trustee and Treasurer
Rainbow Migration, the longest-running UK charity dedicated to supporting LGBTQI+ people through the asylum and immigration system, is seeking a trustee who will also serve as the organisation’s Treasurer.

We are looking for someone who is passionate about our vision that LGBTQI+ people can settle in the UK and lead fulfilling lives, and our mission to support LGBTQI+ people through the asylum and immigration system and influence policy and practice.

At Rainbow Migration, we don’t just accept difference – we celebrate it, we support it, and we thrive on it. We particularly encourage applications from people who have sought asylum on the basis of their sexual orientation, gender identity, gender expression or sex characteristics.

The role of trustees and the Treasurer

Being a trustee is a rewarding role. Trustees are volunteers who bring their expertise to shape our strategy and direction, and help ensure we remain an authoritative organisation on LGBTQI+ asylum and immigration. They have overall legal responsibility for the charity, make sure our finances and resources are well used to implement our mission, and are required to participate fully in the governance of the charity. Trustees also play a role as ambassadors for the organisation and our work.

The Treasurer takes a lead role in ensuring Rainbow Migration’s financial affairs  are conducted within legal requirements, accounting conventions and good practice to ensure the financial viability and sustainable development of the organisation. A detailed role description for the role of Treasurer is appended.

Time commitment

We are looking for people who can commit to being a trustee for at least three years.

Trustees meet on a weekday evening five times per year. Meetings are usually held on Zoom except in December when we meet in person in London.

Preparation for the meetings involves a time commitment of two to four hours for detailed reading of papers, which are provided several days in advance.

The Treasurer also chairs the Finance Subcommittee, which meets on a weekday evening at the end of each quarter. The present Treasurer prepares the primary financial statements and notes, from the underlying accounting records at the year-end, for inclusion in the Annual Report and Accounts; the successful candidate will need to decide whether to continue with this approach or if there is a suitable alternative.

Key responsibilities

Financial oversight:

• Support the Trustee Board to maintain a clear and timely picture of the financial health of the organisation
• Ensure the Trustee Board and management team fulfil all required fiduciary and regulatory responsibilities
• Keep up to date on developments in charity finance regulations and best practice
• Chair the Finance Subcommittee to oversee Rainbow Migration’s financial management, ensuring robust processes and controls are in place
• Ensure the committee develops a long-term financial strategy (including a reserves policy) for the organisation, with objectives which can be monitored
• Advise the Board on financial strategy, risk management and resource allocation
• Support the Executive Director and Operations and Office Manager to develop and improve financial policies and procedures
• Work with the Executive Director, Operations and Office Manager and Fundraising Manager to monitor budgets, cash flow and financial performance
• Oversee the production of clear and accessible financial reports to the Board and its sub-committees by Rainbow Migration staff, and lead discussions during meetings

Reporting:

• Ensure regular financial reports (i.e. management accounts, annual budgets, cash flow projections, etc) are accurate, comprehensible, timely, correctly formatted, and properly discussed and understood by the Trustee Board (as required by law)
• Ensure the timely preparation of annual accounts in accordance with charity regulations (UK SORP)
• Oversee the appointment of the Independent Examiner or auditors and provide overall oversight of the annual examination or audit process

Systems and controls:

• Ensure the charity has proper systems in place for budgeting, financial control, insurance, and reporting
• Ensure compliance with all HMRC tax requirements, as appropriate

Trustee

We are seeking three committed Trustees to join a national fostering Board at a pivotal time, supporting strategic growth and championing foster care across the UK.

Position: Trustee (Volunteer)
Organisation: The Fostering Network
Location: UK wide. Particular interest in Wales and Northern Ireland
Hours: Approximately 10 to 15 days per year
Term: 3 years, renewable for up to two further terms
Remuneration: Voluntary role. Reasonable travel expenses reimbursed
Closing Date: Monday 23 February 2026
Interview Dates: W/C 16 and 23 March 2026

About the Role

This is an opportunity to join the Board of Trustees at a national fostering charity, following the launch of a new organisational strategy and the appointment of a new Chair in 2025. Trustees play a vital role in setting strategic direction, ensuring strong governance and supporting the organisation to deliver meaningful change for children and young people in foster care.

Key responsibilities include:

· Providing strategic oversight and constructive challenge at Board level

· Supporting delivery of the five year organisational strategy

· Acting as an ambassador for the charity and its values

· Contributing to effective governance, risk management and financial oversight

· Building strong relationships with fellow Trustees, senior leaders and stakeholders

· Attending Board and committee meetings, both in person and online

About You

You will bring personal experience of the foster care sector and a strong commitment to improving outcomes for children and young people.

We are particularly interested in candidates who:

· Are based in Wales or Northern Ireland

· Are qualified social workers working within fostering services

· Have skills in finance, particularly qualified accountants

· Have experience in commercial or business development

You will demonstrate sound judgement, strategic thinking, discretion and the ability to contribute confidently within a Board setting.

About the Organisation

The UK’s leading fostering charity and membership organisation. Founded 50 years ago by foster carers, it works across all four nations to influence policy, improve practice and strengthen the fostering community. At the heart of its work is a belief in the power of relationships to transform lives.

Other roles you may have experience of could include; Trustee, Non Executive Director, Board Member, Independent Board Member, Social Work Leader, Finance Director, Commercial Director, Strategic Advisor.

Founded in 1997, the Islington Centre for Refugees and Migrants provides a place for refugees, migrants, and people seeking asylum to rebuild their life with support and community. From classes to casework to financial assistance, the Centre has a wide offering available for our community of over 200 people. Our approach is compassionate and human and the support we offer is long term - on average people stay with us around four years.

The current Board brings a wide range of charity and public body experience including strategy and fundraising and we are looking for skills to both enhance and complement these strengths.

The Centre has a dedicated and talented staff team led by our CEO, Andy Ruiz Palma, who joined in 2000 as an English teacher. In addition to this staff resource we have around 40 volunteers who provide direct support through activities. We also have in place accountancy support to the executive and a dedicated fundraising team.

We are looking for someone who can demonstrate a strong empathy with our client group and who understand how to work with organisations rooted in a local community. You will bring excellent people and communication skills and demonstrate good team-working.

We are open to applications from people looking for their first Trustee role or who may not have considered being a Trustee before and will provide mentoring to help trustees find their feet.

We are looking to recruit a deputy treasurer with:

A good understanding of financial management and reporting

A recognised accounting, finance or similar qualification

Ability to analyse and communicate financial information to the wider Board

Willingness to provide financial advice and support to the management team as needed

Knowledge and experience of fundraising finance practice in voluntary and community organisations (desirable)

Are you passionate about building a more inclusive, sustainable and resilient economy? Are you looking for a meaningful way to use your finance expertise?

ECU is a small, dynamic non-profit working to transform the economy so that everyone has the freedom and security to live a good life. 

We are now recruiting for ECU’s first Treasurer, who will lead at board level on monitoring ECU’s financial performance and sustainability, ensuring that we have robust financial policies and processes in place, and supporting other board members to fulfil their collective responsibilities around finance. 

This is an exciting time to join ECU. We have an ambitious vision for change, a strong analysis of the opportunities and barriers to progress, and a clear view of our role in building a better economy. Our board is committed, collaborative and inclusive, with a strong understanding of its role and remit, and a culture of open dialogue. Our work is challenging, fascinating, and fulfilling – and, with rising levels of inequality, an unfolding climate emergency, overstretched public services and a growing concentration of corporate power, it couldn’t be more important.

Help safeguard our future: Join BBS UK as our Treasurer

Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.

Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.

We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.

It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.

The role

As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.

This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.

Key responsibilities include:

• Maintaining a strategic overview of the charity’s financial health

• Presenting clear summaries of financial information at Board meetings

• Advising Trustees on the financial implications of plans and decisions

• Overseeing the annual budget and supporting longer-term financial planning

• Ensuring appropriate financial controls and procedures are in place

• Supporting the preparation of annual accounts and liaison with the Independent Examiner

• Helping ensure appropriate reserves are maintained in line with policy

The Board of Trustees retains collective responsibility for the charity’s finances.

We’re looking for someone with:

Essential:

• Experience in finance, accounting, bookkeeping, or financial oversight

• Confidence interpreting financial information and explaining it clearly to non-financial colleagues

• Understanding of financial controls and good governance

• Ability to think strategically and identify financial risks

Desirable:

• Experience in a charity or not-for-profit setting

• Understanding of restricted and unrestricted funds

• Experience working with budgets or management accounts

We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.

As a BBS UK Trustee, you will have:

• Induction, training, and ongoing support

• Reasonable expenses reimbursed

• Opportunities to develop new skills and contribute at a strategic level

• The chance to make a meaningful difference to a rare disease community

• Opportunities to collaborate with dedicated trustees, staff, and partners

Time commitment

• Attendance at four Board meetings per year (online, approximately 3 hours each)

• Reviewing financial information monthly or quarterly

• Additional input around budget setting and year-end accounts

• Attendance at our annual conference weekend (in person; expenses covered)

If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.

BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.

We are looking for a finance professional to join our engaged and friendly board as Treasurer, with specific oversight of the charity’s financial management. While day-to-day financial administration is carried out by employees or external providers, the Treasurer works closely with them and the Board to ensure sound financial governance. The Treasurer provides financial leadership, helps trustees understand the organisation’s finances, and ensures that the charity meets its financial and statutory obligations.

You will have a qualification in Financial Management, Accounting, or Audit, or perhaps be a senior Finance Manager or Director in a charity. We welcome applications from people for whom this is their first Treasurer role, but we are seeking candiates who have some understanding and/or experience of the charity sector.  We are willing to provide access to training around the treasurer role, but a basic knowledge of charity accounting and financial management would be a strong advantage.

You will have the ability to communicate financial information clearly to those without financial expertise and be a strategic thinker, with the ability to balance financial scrutiny with broader trustee responsibilities.

Our board meet once a month (either virtually or in person in London) for around 90 minutes. We aim to have strategy days twice a year. You will meet with the CEO and Finance Manager once a month, and be available for ad hoc emails, advice. Trustees are usually appointed for a three-year term, which can usually be extended. 

You will also bring a commitment to the values, aims, and objectives of the charity, and a desire to help children and young people who have experienced grief.