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The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.



The Charity and Our Vision.
For over 15 years, Scotty's Little Soldiers has been supporting children and young people who have been bereaved of a parent who served in the British Armed Forces. We are about to embark on an exciting journey which will see the charity evolve to support anyone affected by a military-connected bereavement and ultimately empower a community of more than 25,000 bereaved individuals and their families by 2035.
Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity currently offers a unique blend of emotional, practical, and educational support to over 750 young people.
We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles and believe in the power of community, resilience, and connection.
Role Mission.
To be an integral part of the delivery of Scotty’s new navigating entitlements casework (START) Programme, a single point of contact service designed to support anyone affected by military-connected bereavement.
This is a hands-on, and vital role within a brand new team. You’ll be the first step in ensuring that everyone in the bereaved military community receives compassionate, personalised, and well-coordinated support.
The key responsibilities of this role are:
Service Design & Delivery
Working closely with the Head of START, contribute to the planning and rollout of the START Programme
In many cases be the first port of call for Scotty’s families, and be a welcoming and inclusive contact for all those families
Implement the new service model, workflows, triage process and beneficiary journey
Ensure the service you deliver is trauma-informed, inclusive, and responsive to beneficiary feedback
Manage your own caseload with support from Head of START programme
Team Leadership & Development
Once your experience has grown, provide peer support to any further caseworkers joining the team in 2027 and beyond (depending on demand)
Ensure an ongoing focus on your own learning and development, always creating space for reflective practice
Ensure that you live the culture that reflects The Scotty’s Way and encourages your own personal growth
Be an active part of the wider Families team contributing to Daily Huddles and team plans and objectives
Collaboration & Partnership
Build and maintain, alongside the Head of START strong referral pathways with external organisations (military & non-military charities, NHS, social care)
Build your expertise on navigating entitlements for the bereaved community to ensure that Scotty’s families receive the best possible support.
Work collaboratively with other Programme teams to ensure consistency, shared learning & efficient internal referrals
Monitoring & Evaluation
Ensure that you are reporting consistently on beneficiary engagement, support outcomes, and follow-up actions
Work with your direct support to use evidence and insights gathered to adapt and improve the service over time
Ensure CRM records are complete, accurate, so they can be used to inform delivery decisions
Contribution to Charity-Wide Goals
Feed into cross-functional projects including Outreach, Fundraising, and Strategy
Act as a representative of Scotty’s at sector events or external meetings where appropriate
Support content development by sharing anonymised stories, insights, and themes
The 30-day goals for this role are:
Built a deep understanding of Scotty’s mission, our audience, the services we provide, and strategic direction.
Worked closely with the Head of START and other programme Heads to understand the history of Scotty’s helping families navigate entitlements, including reviewing current and recent cases.
Become familiar with the key stakeholders, partners and organisations (including statutory, charitable and others) for casework in the START Programme.
The 60-day goals for this role are:
Built confidence and knowledge around the START programme aims and objectives, and the needs of Scotty families.
Supported the Head of START to implement the new casework programme and beneficiary journeys.
Built understanding of the processes that are in place to monitor the outcomes and impact of the new START Programme.
Contributed to the design of a light CRM for initial use in START casework.
Supported the development of and started to build understanding of the necessary processes and procedures for casework including safeguarding, triage, wait time limits etc.
Started the training plan for new START caseworkers.
The 90-day goals for this role are:
Supported the launch of the new START Programme alongside Scotty’s team members.
Welcomed the first families to Casework following the processes and framework that the Head of START has implemented.
Worked with the Head of START to set a clear plan for the remainder of 2026 and beyond for the START programme, establishing it as a quality Scotty’s service for families.
Starting to provide outcomes and data that enable the programme’s outcomes to be evidenced.
About You:
Must-Have
Experience in service delivery, casework, and personalised support services
Ability to work independently and manage a busy, varied caseload
A compassionate and person-centred approach to casework
Excellent organisational and communication skills
A clear understanding of safeguarding vulnerable adults
Nice-to-Have
Familiarity with military family life or bereavement support
Background in information, advice and guidance within the charity or statutory sector
An understanding of the importance of service co-design with users or lived experience groups
Additional Information
The role will require some evening or weekend work
Enhanced DBS check required
Travel will be required to events and team training days
The Scotty’s Way
At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:
Families Come First
Everyone a Supporter, Every Supporter a VIP
Love What You Do
Remember, Every Day
Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Take Ownership and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.
Closing date: 15th May 2026. Due to resource and time constraints, we are unfortunately unable to provide feedback for every application received and will only contact candidates shortlisted for an interview.
Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.
We do not discriminate based on race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.
We encourage all qualified individuals to apply for employment within our charity, and we provide a fair and inclusive recruitment process for all candidates.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Engagement Officer
We’re looking for an enthusiastic and motivated individual to join the Engagement Team.
This is an exciting opportunity to work with stroke survivors and their families to support them following a stroke.
Position: 000007 Engagement Officer
Location: Home-based South West, Hampshire and Isle of Wight. However, extensive travel will be required as part of this role across Hampshire, isle of Wight, BaNES, Swindon and Wiltshire and frequent travel across the wider South west locality (may include team meetings or other work-related meetings)
Hours: Part-time, 21 hours per week
Salary: Circa £17,800 per annum (FTE circa £29,813.07)
Contract: This is a fixed-term until 30 April 2027
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.
Closing Date: Sunday 26 April 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.
Interview Date: Thursday 7 and Friday 8 May
The Role
Reporting to the Engagement Lead, the Engagement Officer helps strengthen local stroke communities by bringing people together, championing lived experience voices, and building warm, trusted relationships with volunteers, partners, and healthcare professionals. By supporting local groups, gathering insight, and sparking meaningful conversations, the role ensures stroke survivors and carers feel heard, connected, and supported to reduce the devastation of stroke.
Key responsibilities will include:
About You
You will be:
With experience of
This role requires extensive travel across a large geographical locality to attend a variety of meetings and events in health and community settings. Candidates must be able to demonstrate how they can meet this requirement of the role
Please state any preferences for flexible options in your covering letter.
When you click to apply, you will be able to see the full responsibilities and person specification for further information on the role. Please submit your CV, (including details of your current address), and a supporting statement of no more than two pages, demonstrating how you meet the person specification and what you bring to the role in terms of your skills and experience.
Finding strength through support
The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of supporters and donors that they can provide vital support.
The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.
The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.
A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.
You may also have experience in areas such as Engagement, Community Engagement, Volunteer Engagement, Advocate, Advocacy, Health, Social Care, Engagement Officer, Community Engagement Officer, Volunteer Engagement Officer.
Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP
CEO
Reporting into the Board of Trustees, we are seeking an inspirational CEO for the PDA Society, who can lead with humility and curiosity, empowering and supporting our staff along the journey. They will be responsible for the day-to-day management of the charity and its staff and volunteers, and will oversee the development of our training products, research and support services, whilst ensuring sustainable growth in impact and income.
This is a fantastic opportunity to join a trusted enterprise within the PDA community with a strong mission and a committed, values driven team. The successful candidate will be passionate about improving the lives of PDAers and their families. You will be energetic, creative and bring new ideas for enhancing the charity’s reputation, through nurturing existing relationships and developing new ones to achieve the charities goals. Our ideal candidate will have lived experience of autism, PDA or other neurodivergence although this is not essential.
Closing date for applications: Midnight on 22nd April 2026
Interviews with Trustees: April / May 2026
Our mission is to improve the lives of PDA children, PDA adults and their families. We are working hard to build awareness and understanding.
The client requests no contact from agencies or media sales.
Colorectal Cancer Clinical Nurse Specialist
Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
Job Summary for Colorectal Cancer Clinical Nurse Specialist
In our Services team we aim to deliver clear and accessible support offer for people affected by a bowel cancer diagnosis through a clinically focused ‘front door’ of services. The post holder will work collaboratively with the Clinical Lead to deliver a strategy which will extend our reach to bowel cancer patients and establish referral routes from the NHS into our services.
As our Clinical Nurse Specialist you will work on the Charities Ask the Nurse Service alongside other specialist nurses. This is our service for patients to ask questions or concerns about bowel cancer. You will be responsible answering queries from those affected by bowel cancer and managing and developing the service.
You will work closely with the Clinical Lead to ensure Bowel Cancer UK’s clinical focus meets the needs of those affected by bowel cancer and is up to date. You will also provide expert clinical advice, with guidance of the Clinical Lead, across all areas of Bowel Cancer UK - including health professional education, policy, communications and fundraising equipping them with timely health system and clinical information.
Main responsibilities
Safeguarding
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The client requests no contact from agencies or media sales.