Regional programmes manager jobs in Belfast

Family Support Coordinator

Dravet Syndrome UK

Key Information

• Location: Home-based/remote,  with travel to national events throughout the year both for the Family Services and occasional travel for the wider needs of the organisation
• Salary: £28,000 - £32,000 per annum
• Hours: 40 hours per week
• Contract: Permanent
• Working Pattern: Monday-Friday, 9am-5.30pm, with occasional evenings and weekends (TOIL provided) 

About Us

Dravet Syndrome UK (DSUK) is the leading UK charity supporting people affected by Dravet Syndrome, a rare and severe form of epilepsy that impacts the whole family. Founded by parents in 2008, we provide family support, professional education and fund vital research to improve lives and create hope for the future. [Family Sup...JD v1 (1) | Word]

About the Role

We're looking for a compassionate and organised Family Support Coordinator to help deliver practical, emotional and financial support to families affected by Dravet Syndrome.

Working closely with the Head of Family Services, you'll be a key point of contact for families, supporting enquiries, coordinating grants, managing online communities, helping organise family events, and ensuring families can access the information and support they need.

This is a varied and rewarding role combining family support, community engagement, event coordination and administration. 

Key Responsibilities

Family Support

• Manage a caseload of families, providing practical and emotional support.
• Respond to enquiries and signpost families to appropriate services.
• Support newly diagnosed families, bereaved families, and those navigating transition to adulthood.
• Maintain accurate records using the charity's CRM system.

Grants & Community Support

• Coordinate family grant applications and payments.
• Moderate and support the charity's private Facebook community.
• Collect feedback and help improve family services.
• Escalate safeguarding concerns in line with policy.

Events & Engagement

• Support the delivery of the Annual Family Weekend Away and other family events.
• Assist with webinars, support programmes and educational activities.
• Build positive relationships with families and volunteers.
• Attend key family-facing events across the year. 

Administration

• Support reporting, record management and service administration.
• Ensure compliance with safeguarding, GDPR and organisational policies.
• Attend team meetings, training and charity events. 

About You

Essential

• Experience supporting children, adults and families.
• Experience supporting people with complex medical, learning or additional needs.
• Strong communication, organisational and relationship-building skills.
• Ability to provide empathetic, person-centred support.
• Experience using Microsoft Office and CRM/database systems.
• Understanding of safeguarding, confidentiality and GDPR.
• Ability to work independently and manage competing priorities.
• Willingness to travel and work occasional evenings and weekends.

Desirable

• Background in Health & Social Care, Mental Health, Community Development, Counselling or Education.
• Experience organising events or community activities.
• Knowledge of Dravet Syndrome or other neurological conditions.
• Full UK driving licence and access to a vehicle. 

Why Join Us?

• Make a meaningful difference to families affected by a rare and life-limiting condition.
• Join a supportive and flexible remote-working charity.
• Play a key role in delivering services that support hundreds of families across the UK.
• Be part of a passionate team committed to improving lives through support, education and research. 

The Role
We are looking for an Advice & Guidance Officer who can make a meaningful difference in the lives of deaf children, young people, and their families.

A key focus of this role will be delivering the service remotely using technology. In addition, you will use your interpersonal skills and experience working with families to connect with local community groups, raise awareness of our services, promote membership, and provide support to families, deaf young people, and professionals.
 
This role is part time, based on 21 hours per week.
 
This is a fully remote role, but will have a focus on Central Scotland Casework and will require some regional travel so applicants should live in Scotland and possess a driving licence and have access to a car.
 
 
What you'll do
 

• Deliver tailored information and advice to individuals and groups of deaf children, young people, and their families.
• Support deaf children, young people, and their families in becoming more confident in articulating their needs independently.
• Help deaf children, young people, and their families explore their options and decide on a preferred course of action.
• Develop and maintain effective relationships with professionals and organisations that support deaf children.
• Attend both in-person and online events to provide information and advice tailored to different audiences.

 
What you'll need
 

• Significant experience and understanding of the skills and practices required to deliver person-centred support to children, young people, and their families.
• Experience providing information and advice to families and young people, both digitally and face-to-face.
• A strong working knowledge of education and special educational needs, including relevant legislation, government guidance, and local implementation.
• An understanding of deafness and its impact on children, family dynamics, raising a deaf child, and child development-translating this into effective, child-centred practice.
• Strong digital skills and a sound understanding of agile values & principles.
• A criminal record check / PVG Scheme Disclosure (if offered the position).

What you'll get

• Home-based working with flexible hours.
• 25 days holiday - plus an additional 3 days at Christmas (& bank holidays).
• Pension (5.5% employer contribution).
• Healthcare Cashplan.
• Annual performance-based salary increase.
• Employee Assistance & Wellbeing Programmes.

 
What we do
 
The National Deaf Children's Society are the leading charity for deaf children. We give expert support on childhood deafness, raise awareness and campaign for deaf children's rights, so they have the same opportunities as everyone else.
 
Pre-employment Checks
 
As part of our commitment to creating a safe and trusted environment for the children, young people and families we support, all offers of employment are subject to background checks. These include Right to Work verification, Criminal Record Disclosure, and ID and address verification.
 
To complete an online Right to Work check, you will need a valid UK or Irish passport, or a government share code if you are not a British citizen. If an online check is not possible, we’ll need to verify your documents in person at our London office. Please be aware that travel time and expenses for this appointment cannot be reimbursed.
 
Disability Confidence
 
We are a Disability Confident Employer and committed to offering interviews to candidates who request to be considered under the disability confident scheme and meet the minimum requirements of the person specification.
 
The National Deaf Children’s Society is a registered charity in England and Wales no. 1016532 and in Scotland no. SC040779.

Relationship Fundraising Executive.

Salary: £25,805.57 per annum.

Location: Remote, must be based in the UK.

Contract: Fixed Term Contract for 12 months, 35 hours per week. 

Benefits:   

· 29 days annual leave PLUS bank holidays, with up to 5 additional days for continuous service and option to buy or sell leave. 

· Gain professional qualifications and excellent training/development opportunities. 

· Flexible maternity, adoption, and paternity packages. 

· Pension with up to 7% employer contribution with included life assurance cover. 

· Staff discounts and Blue Light Card eligibility with 15,000 national retailer's discounts. 

Why Action for Children?   

Working here is more than a job. Everyone in the Action for Children family is passionate about protecting and supporting children. It is the sense of purpose that drives us every single day. Because we know that, when we work together, we can make a huge difference to bring lasting improvements to vulnerable children's lives.  

A bit about the role 

This isn't just another fundraising role. You'll help deliver one of the UK's most iconic fundraising events, supporting hundreds of passionate supporters as they take on life-changing challenges and raise vital funds for Action for Children. If you're energised by supporter engagement, motivated by ambitious targets and passionate about making a difference, we'd love to hear from you.

Be part of something extraordinary.

We're looking for an experienced and passionate fundraiser to join Action for Children at an exciting time of growth. As we expand our challenge events programme, including one of the UK's most iconic fundraising events, the London Marathon, we're investing in additional fundraising capacity to help us engage, inspire, and support more supporters than ever before.

This fixed-term role offers a unique opportunity to play a key part in delivering a high-profile fundraising programme that will generate significant income to support vulnerable children, young people, and families across the UK.

The opportunity

You'll manage and steward a large portfolio of challenge event participants, helping them maximise their fundraising potential and delivering an exceptional supporter journey from registration through to event day and beyond.

Working closely with fundraising, marketing, and supporter care colleagues, you'll develop meaningful relationships with supporters, provide personalised fundraising advice and encouragement, and create memorable experiences that inspire long-term support for Action for Children.

As part of a growing and ambitious team, you'll also contribute to the development of our wider challenge events portfolio, helping us identify opportunities to improve supporter experience, increase income, and grow participation across a range of nationally recognised events. Action for Children's challenge events portfolio includes flagship events such as the London Marathon, Great North Run, and a range of other popular challenge events throughout the year. 

Let's talk about you  

We're looking for someone who combines excellent relationship-building skills with strong organisational ability and a genuine passion for supporter experience.

You may currently work in fundraising, events, customer service, sales, account management, or supporter engagement. Whatever your background, you'll be comfortable managing multiple priorities, building rapport with a wide range of people and motivating others to achieve ambitious targets.

Most importantly, you'll be enthusiastic, proactive and excited by the opportunity to be part of one of Action for Children's most ambitious fundraising growth areas.

Please see the Job Description for the full list of accountabilities and requirements.  

Please note we do not offer sponsorship for this role.

Talent Pool    

We know talent when we see it. But sometimes we find the right person but not for the right job. We'd love to keep your details for when the right job comes up. Let us know if you'd rather, we didn't.   

Diversity, equality, and inclusion    

At Action for Children, we're dedicated to building a diverse, inclusive, and authentic workplace. We actively encourage applications from Black, Asian & Minority Ethnic, and disabled candidates as they are under-represented within Action for Children. We want to take deliberate and purposeful action to ensure equal opportunity to all groups in society and for Action for Children.  

 Don't meet every single requirement? 

If you're excited about this role but your experience doesn't align perfectly with the job description, we'd love you to apply anyway. You might just be the perfect person for this role, or another role within the Action for Children family.  

Want to know more about Action for Children? 

Find us on  Linkedin, Facebook or YouTube to get to know us better. 

Closing Date: Tuesday 21st July 2026. Interviews will be scheduled shortly after the closing date.