Small grants officer jobs in Edinburgh

We're FIRST UK, a EdTech charity using robots, role models and competitions to make STEM more approachable and inclusive – empowering young people with the technical knowledge and soft skills to engineer better futures. 

It’s an exciting time to join us as we move from startup into scaling mode. We’re backed by some of the world’s leading tech-enabled businesses including Arm, Purposeful Ventures, Smiths Group, Bloomberg, Lockheed Martin, Raytheon, and many more.

In summer 2026 we’ll publish a new 5-year strategy articulating how we will build more than robots in schools and community groups nationwide, alongside growing our annual income to £2m by 2027.

It’s easy to see why competitions like this really do help students develop the skills they’re going to need for the rest of their lives. Honestly, I wish I had something like this when I was at school.

Spencer Kelly, BBC Broadcaster

What we're looking for

A fundraiser, partnerships guru, and consummate relationship builder. Someone who can support the CEO to identify, go after, and convert opportunities which sustain and scale the charity’s impact. Broadly this means more money and greater participation. Through your ability to seek out and support the relationships which matter most you will ensure the charity secures:

• Income generating relationships with trusts, foundations, and philanthropists
• Corporate partnerships fuelling our programmes with funding and volunteers
• Collaborations with organisations supporting outreach and growth
• An ecosystem of proactive trustees, advisors, ambassadors and advocates

Working closely with the CEO you’ll get the charity in front of the right people, having the right conversations which grow investment and participation. Your tenacity will help build and steward a network to achieve our mission better and sooner.

Who this might suit

A people person. You love seeking out and building relationships, then maximising their impact. You might have worked in a charity fundraising position before. You understand what good looks like in terms of brokering strong partnerships – and relish the mix of research, prospecting, proposal development, pitching, and importantly onward stewardship of the relationships we win to ensure we amplify, leverage and retain them.

Whatever your background – the common, transferable skill set is being excellent at relationships. Understanding that it’s not just about the chat, it’s about the follow through. You do what you say you will – and do it well.

The experience you'll have

• Evidence of winning income (e.g corporate partnerships, sponsorship, grants etc)
• Evidence of driving growth (this might be in sales, membership, users, income etc)
• Experience stewarding relationships (partners, funders, trustees, volunteers, stakeholders)

You might also possess

• Passion for STEM, tech for good, inclusion

What you'll get

Responsibility, autonomy, sense of purpose. You’ll be working in a small organisation which is lean, agile and fast-paced. Unimpeded by hierarchy and bureaucracy you’ll have the freedom to experiment, fail fast and crack on. You’ll be presenting a compelling case for support against a validated impact model. Long before pandemics we were working flexibly and remotely – it’s embedded to our culture.

I'm in, what's next?

• Check out the full role profile on our HR platform
• Browse our website and get familiar with our mission
• Answer 3 short screening questions, upload CV and hang tight until Sun 08th Mar
• Shortlisted candidates will be invited to interview by Thu 12th Mar

Safer recruitment

You must live in and have the right to work in the UK. In accordance with our Safer Recruitment Policy, all employees of the charity will be asked for two references which will be conducted by phone and are subject to Enhanced Disclosure and Barring Service checks upon appointment. 

The International Prader-Willi Syndrome Organisation (IPWSO) is seeking a talented and motivated CEO who will deliver our organisational strategy which aims to improve the lives of all those affected by a rare genetically determined disorder called Prader-Willi syndrome (PWS). 

The role of CEO at IPWSO is both challenging and rewarding. You can help deliver change for people affected by PWS from across the globe by helping us build solidarity, promoting scientific reasoning and research, helping to foster new relationships, supporting our members, and striving for equality for everyone affected by the syndrome.

You will work alongside passionate volunteers and experts in PWS from across all continents and with a skilled and small staff team based in the UK. We are all dedicated to making a tangible difference!

For the full person specification and the JD, please refer to the attachment below.

#CEO #Chief Executive #Chief Executive Officer 

The BE Support Trust is recruiting for a Fundraising Officer (Part Time).   We are seeking a strategic, motivated, and relationship-focused Fundraising Officer to help us diversify income and grow our fundraising activity.

What you will do

• Develop and deliver an annual fundraising plan aligned with strategic priorities.
• Research new funding streams and produce pipeline/KPI reports.
• Prepare high quality trust, foundation and grant applications.
• Build and manage corporate partnerships and sponsorship proposals.
• Lead fundraising elements of charity events and community activities.
• Support donor stewardship and maintain accurate CRM/Gift Aid records

What you will bring

• Demonstrable fundraising experience
• Excellent writing and bid/proposal development skills
• Strong relationship abilities
• Organisational confidence managing multiple deadlines

Why Join us

• A small supportive and committed team
• Meaningful work where you see the impact everyday
• Opportunity to shape fundraising in a growing charity
• Flexible working and part-time structure

Applications reviewed on a rolling basis.

Finance Assistant

Gendered Intelligence (GI), established in 2008, is a registered charity that works to expand understandings of gender and improve the lives of trans  people. 
We are a trans-led and trans-involving organisation with a wealth of lived experience, community connections of many kinds, and a depth and breadth of trans community knowledge that is second to none.
We imagine a world where many different gender identities and expressions are visible and valued and where trans, non binary and gender exploring people live healthy, safe and fulfilled lives.

Job Overview

• Hours: 0.4FTE (14 hours per week)
• Contract type: Fixed Term, 12 months
• Salary: £13,479.57 (£33,698.93 FTE), plus London Weighting of £1,300 (£3,250 FTE) where applicable.
• Location: Remote, with the option of hybrid working from our London office 

Recruitment Process & Timeline 

• Deadline for submission of applications:  Noon on Friday 27th February 2026
• Shortlisted applicants will be informed by:Wednesday 4th March
• Interviews are provisionally organised for: Tuesday 10th March

Main Duties and Responsibilities

You will be working closely and collaboratively with the Finance Officer, who will have oversight of the following areas and will induct you into the financial systems and procedures:

• Manage the finance email inboxes (payables and receivables).
• Maintain accurate and detailed Purchase Ledger records: liaising with budget holders for authorisation, posting supplier invoices to Xero and making payments.
• Raise Sales Ledger invoices to customers in a timely fashion and other receipts such as Donations and grants and monitoring credit control.
• Manage the administration of several Petty Cash floats, Cards and Staff Expenses including liaising with staff members for receipts and returns.
• Process Bank Reconciliations.
• Support with month-end, quarter-end, year-end and ad hoc finance tasks and reporting requirements

Full job description, with person specification, in the attached recruitment pack. Please read the full job description before beginning your application. 

Diversity Information

We are actively seeking to bring people with different lived experiences, diverse backgrounds, abilities and gender identities into the organisation, to create a workplace that is welcoming for all. 

Please be aware that we are currently unable to sponsor visas and ask that candidates ensure they have the legal right to work in the UK for the duration of their employment with us.

Additional Support

Want to learn more before applying?  We’re aware that people may have different needs or additional queries, and we want to support all potential applicants.

Please see the attached recruitment pack for details of the support we offer at GI.

As Finance and Operations Manager at Fight Bladder Cancer, you will play a pivotal role in shaping and building our finance and operational functions at a strategic level.

You will support all aspects of the charity’s work and development through the provision of strong financial assistance - ensuring accurate financial reporting, sales and other invoicing, bookkeeping, grant management and payroll management.

You will also take day-to-day responsibility for organisational administration. 

This role will involve close collaboration with our small team (currently 7.5 FTE) to ensure our day-to-day finance and operational requirements are met, working closely with the CEO and Board of Trustees to build greater financial resilience and strategic financial awareness within the charity.

Fundraising Officer (Part-time)

Prostate Scotland
Edinburgh (hybrid working)
28 hours per week

About us

Prostate Scotland is the leading charity dedicated to prostate cancer and prostate disease in Scotland. We work to ensure that every man affected by prostate cancer and disease has access to trusted information, support and guidance when they need it most.
We are a small, committed organisation with big ambitions. As we begin delivering our new five-year strategy, this is an exciting time to join our team and help us increase our impact for men and their families across Scotland.

About the role

Our supporters are central to everything we do. Many choose to fundraise for Prostate Scotland because they, or someone close to them, has been affected by prostate cancer or disease.
As Fundraising Officer, you will play a key role in supporting individuals and communities to raise vital funds. You will provide warm, practical and responsive support throughout their fundraising journey — from helping them set up online fundraising pages, to answering questions, sharing their stories and celebrating their achievements. You will help build meaningful relationships with supporters, ensuring they feel valued, listened to and inspired to continue supporting our work.

What you’ll be doing

• Supporting individual and community fundraisers throughout their journey
• Building and managing positive relationships with supporters and partners
• Contributing to fundraising plans and income growth
• Supporting the implementation and ongoing use of our new CRM system
• Maintaining accurate supporter records and reporting
• Championing supporter activity and recognising fundraising achievements

Who we’re looking for

• You are someone who enjoys working with people and building relationships. You are organised, proactive and comfortable juggling different priorities. You may already have experience in fundraising, supporter care or customer-focused roles, or you may be looking to take your next step into the charity sector.
• Most importantly, you share our commitment to improving outcomes for men affected by prostate cancer and disease.

Why work for Prostate Scotland?

You’ll be joining a supportive, friendly team where your work will make a real difference. We value collaboration, compassion and continuous improvement, and we are committed to creating an inclusive and positive working environment.

Key details

• Contract: 12 months (with expectation to extend, subject to funding)
• Hours: 28 hours per week
• Salary: £30,000 per annum (pro rata)
• Location: Edinburgh (hybrid working)

How to apply

• To apply, please complete our application form on the Prostate Scotland website or through this platform.
• Closing date: 22 February 2026
• Interviews: 27 February 2026

Employee benefits

Join a charity that puts its people first! We offer a generous annual leave allowance of 35 days (pro-rata for part-year starters), a pension scheme, funded learning, flexible home-based working, and an inclusive, mission-driven culture – all designed to help you thrive while making a real difference in Scotland.

Additional information

Downloads available:

• Job Description
• Application Form
• Equal Opportunities Monitoring Form
• Equality Policy
• Completion of the Equal Opportunities Monitoring Form is optional and will not affect the selection process.

Please note: we are unable to sponsor or take over sponsorship of an employment visa at this time.

Role Overview:
The Talent Set are delighted to partner with Lesley Hynes Fundraising (LHF), a highly regarded fundraising consultancy specialising in charitable trusts and foundations. Led by founder and Managing Director Lesley Hynes, who brings over 30 years’ specialist experience, LHF works in close partnership with inspiring charities across the UK, delivering expert strategy and hands-on fundraising that creates real impact across causes including social justice, health inequalities, environmental protection and community support.

This Trusts Fundraiser role offers an exciting opportunity to join a collaborative, fully remote team with a long-standing track record of delivering exceptional service to charity clients. The postholder will deliver vital trusts and foundations fundraising across a diverse range of causes, contributing to the highest standards of fundraising practice within a supportive, ambitious and growth-oriented environment that values creativity, expertise and professional development.

Key Responsibilities:

• Develop and implement strategies to maximise trust and foundation income for client charities.
• Conduct detailed prospect research and maintain accurate records of funding opportunities.
• Prepare compelling grant applications and assist with funder reports and monitoring requirements.
• Support the organisation of events and attend external meetings with trust and foundation representatives as needed.
• Contribute to team capacity by providing expertise and additional support to colleagues.
• Maintain accurate client and fundraising data in line with GDPR and data protection legislation.
• Assist the MD in ensuring compliance with all relevant fundraising regulations.
• Keep up to date with trust landscape developments and fundraising best practices.
• Support business development activities, including website and social media updates.

Person Specification:

• Proven experience (minimum three years) in trust and foundation fundraising, ideally within small/medium charities.
• Track record of securing grants of £300,000+ annually.
• Ability to build and manage relationships with key funders and stakeholders.
• Exceptional written and verbal communication skills, with strong attention to detail.
• Skilled in research, data management, and analytical tasks.
• Capacity to interpret complex financial and grant information.
• Organised with good time management and the ability to work independently under deadlines.
• Strong interpersonal skills to collaborate effectively with diverse teams and clients.

What’s on Offer:

• Salary: £34,000-£44,000
• Location: Remote
• Contract: Permanent
• Fantastic Benefits Include: 5% employer pension, Healthcare Cash Plan, annual wellbeing budget and regular investment into training & personal development

How to Apply:
To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button (please do not apply via email). We aim to get back to all successful candidates within 48 working hours.

Commitment to Diversity:
The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, religion or belief, sex, sexual orientation, gender reassignment, marriage and civil partnership, pregnancy and maternity, disability, or age. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.

The Bikeability Trust is entering a new exciting phase of our strategy to 2035 to ensure more children can cycle with confidence. A year into our strategy we have reviewed Executive Team roles and responsibilities and are now looking for a creative Communications and Fundraising Director to lead our mission driven communications, income generation and impact reporting functions.

You will be an experience senior leader in communications, who has the drive to take our strategy to the next level. A key member of the Executive Team, working across the home based diverse staff team to bring together the impact of our work through corporate communications and influencing. We recommend reading our annual reviews on the Bikeability website to see a flavour of the work you could be leading.

Our income generation work is focussed on small impactful corporate partnerships, we have tested some individual giving and are planning to host a fundraising Ball in 2026. Experience in fundraising is desirable, with communications experience as essential as this role will ensure strong relationships with Government. 

If you would like to have a short discussion with the CEO before applying please contact Emily Cherry CEO. We are looking to interview shortlisted candidates on the 23rd or 25th February. We are looking for a candidate to start from 1st April or sooner. 

Chief Executive - Help & Care
Location: Home-based within easy reach of Dorset (regular travel across the region)
Salary: circa £85,000 per annum
Contract: permanent, either full-time basis (37 hours per week) or part-time (30 hours per week). We are happy to discuss flexible working arrangements for part-time hours, including how these are worked across the working week.

Are you an innovative leader who will put communities and social justice at the heart of transforming how health and social care is delivered in Dorset and the south of England?

Help & Care has been supporting communities across Dorset and the south coast since 1985. We deliver person-centred services that promote dignity, independence and connection - from dementia coordination and health coaching to our award-winning Roots gardening programme and social prescribing partnerships. Working with over 25 partners across health, housing and the voluntary sector, we co-produce services that make a real difference to older people, those with long-term conditions, carers and people at risk of isolation.

As our new Chief Executive, you will collaborate with a dedicated Board and a strong, highly motivated team focusing on the following key areas of responsibility:

• Strategic leadership: Define an ambitious, values-led strategy and deliver it, securing long-term impact alongside sustainable financial growth.
• Values leadership: Place Help & Care’s values - social justice, innovation, personal and collaborative - at the heart of decision-making and model them through visible leadership.
• Growth & income diversification: Lead business development to diversify income streams, winning commissioned contracts and developing social-enterprise opportunities to reduce reliance on public commissioning.
• Partnerships & advocacy: Strengthen and sustain senior-level relationships across the NHS, local authorities, commissioners and the voluntary sector; represent Help & Care across systems, media and stakeholder networks.
• Service quality & impact: Embed rigorous monitoring and evaluation so outcome evidence drives commissioning decisions, improves financial performance and enhances the organisation’s reputation.

• People leadership: Inspire, retain and develop a high-performing, compassionate leadership team and workforce, focused on talent development, wellbeing and accountability.
• Governance & financial stewardship: Provide the Board with timely, high-quality reporting, oversee financial recovery or sustainability plans as required, and ensure robust risk, compliance and governance arrangements.

Who you are:

• An experienced CEO or senior director from complex, multi-service health, social care or community organisations, with experience of developing and delivering multi-agency contracts.
• Proven track record of securing commissioned contracts, leading tendering and contract oversight, and developing income diversification, including social-enterprise opportunities.
• Comfortable driving strategic transformation and financial sustainability, with demonstrable expertise in strategic financial management.
• A values-led, collaborative and visible leader with high emotional intelligence and resilience, committed to social justice, person-centred practice and co-production; an effective public representative and mentor.

Why Help & Care?

• Lead a highly respected regional provider with an outstanding track record of co-production and innovation.
• Shape an organisation poised for growth and greater regional influence.
• Hybrid, home-based working, regular travel across Dorset, and the chance to safeguard vital services for local communities.

For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence

Closing date for applications: 9am, Monday 23rd February 2026. Interviews and assessments on 3rd, 4th and 5th March.

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

Job Description

Job Title: Family Liaison Officer

Location: Remote working (Home based)

Salary: £28,000

Hours: Full time (35 hours per week)

About React:

React – Rapid Effective Assistance for Children with potentially Terminal illness is a dynamic charity working to improve the quality of life for children with life-limiting illnesses living in financially disadvantaged households throughout the UK. Our work is unrivalled by any other organisation and our passion and belief that every child should have comfort, dignity, and the opportunity to participate in life as fully as possible is our driving force.

The Job, in a few words:

Reporting directly to the Director, this role will support our small team working with React families and donors.  We encourage our staff to get involved with all aspects of our work and candidates must be literate, logical and have sympathy for the cause. Good writing skills are essential. To succeed in the role you must be a self-motivated team player who is happy to roll up their sleeves and get on with the job.

SUMMARY OF ROLE AND REQUIRED SKILLS:

Working directly with our families and donors you will be responsible for a variety of administrative tasks and must have:

• Ability to work on your own initiative

• Excellent communication and interpersonal skills

• Strong literacy skills are a must

• Good computer skills including Word, Excel and Outlook

• Flexible and pro-active approach

• To operate within the ethos and culture of React and promote our values

KEY RESPONSIBILITIES:

• To summarise family applications

• To liaise with families and healthcare professionals

• To make grant awards to React families and process payments

• To enter data on databases and maintain accurate records

• To assist with the preparation and writing of new fundraising applications

• To identify and research funding opportunities as requested

• Be a collaborative team-player who is willing to learn all aspects of React’s work

SKILLS, QUALIFICATIIONS, EXPERIENCE AND ATTRIBUTES:

• Educated to degree level

• Excellent administrative and time management skills

• Intelligence, organisation and creativity

• Ideally at least two years work experience

About Friends of Ibba Girls School (FIGS) 

Friends of Ibba Girls School, South Sudan (FIGS), is a registered UK Charity (114620) set up in 2011, at the request of local community leaders to help build and develop a girls’ boarding school in South Sudan. Ibba Girls Boarding School now educates over 320 primary and secondary school girls from across Western Equatoria State and employs around 40 staff. 

The school provides high-quality education in a context where most girls leave school before completing primary education and very few reach secondary level. FIGS is a relatively small UK-based charity with a strong national reputation and a substantial impact, demonstrating what high-quality girls’ education can achieve in South Sudan. FIGS works closely with Windle Trust International, which provides technical, financial and organisational support to the school in South Sudan. 

FIGS raises approximately £500,000 each year to meet the running and development costs of IGBS and FIGS. Fundraising and effective communications are therefore central to our mission. We are a small team and are looking for someone who will thrive in a varied role, is proactive, organised, and capable of handling multiple demands, with a readiness to learn and take on additional responsibilities. 

The Role 

This role involves supporting both fundraising and communications activities, alongside essential administrative functions. The Fundraising and Communications Officer will play a key role in implementing FIGS’ fundraising and communications plans, supporting donor engagement, campaigns, events, and day-to-day operational administration. You will be working closely with our Head of Fundraising and Communications, ensuring that FIGS has the resources to continue to support the education and boarding of over 320 marginalised girls in South Sudan.

The role is home-based but requires the ability and willingness to travel to fundraising and supporter events across the UK, including occasional evenings and weekends. 

FIGS is a trustee-led charity, with an active and engaged Board that plays a hands-on role in governance, strategy, fundraising and ambassadorial work. Trustees bring a wide range of experience, including diplomacy, international development, education, finance and communications, and work closely with staff to ensure the charity is well-run, accountable and effective. 

While Trustees retain strategic oversight and are closely involved in key decisions, FIGS also has a small paid staff team responsible for day-to-day operations, fundraising delivery and communications. The culture is collaborative and supportive, with regular interaction between Trustees and staff, and a shared commitment to the success of Ibba Girls Boarding School. 

The staff team currently consists of: 

• Head of Fundraising and Communications, responsible for overall fundraising strategy, communications, donor relationships and line management 

• Fundraising and Communications Officer (this role), supporting the delivery of fundraising and communications activity, donor engagement and essential administrative functions 

Staff work remotely within the UK and collaborate closely online, with regular team meetings and clear priorities. In South Sudan, Windle Trust International acts as FIGS’ managing agent, providing professional management and operational oversight of Ibba Girls Boarding School. 

This role sits at the heart of FIGS’ fundraising and communications work. You will work closely with the Head of Fundraising and Communications, interact regularly with Trustees (particularly around campaigns, events and reporting), and help ensure that systems, supporter engagement and communications run smoothly and professionally. 

The role is well-suited to someone who enjoys working in a small, mission-driven organisation, is comfortable with a degree of trustee involvement, and values collaboration, clarity and shared responsibility. 

Key Responsibilities 

Fundraising and Communications 

•  Support fundraising plan delivery: Assist in achieving income targets and KPIs, including helping to draft grant applications and end-of-project reports. 

• Campaign and appeal support: Assist with planning and delivery of fundraising campaigns and appeals (digital and postal). 

• Donor communications: Draft and support newsletters, blogs, appeals, event invitations, and other donor communications

• Relationship-building: Support engagement with individual donors, community groups, churches, schools, and other supporters 

• Events support: Assist with organisation, promotion, and delivery of webinars and in-person fundraising/supporter events. 

• Online presence: Help maintain and develop FIGS website, email marketing, social media content, and video content. 

• Donor stewardship: Ensure supporters are thanked promptly and follow-up actions are completed in line with policy. 

• Ambassadorship: Represent FIGS positively in communications and at events. 

Administration and Fundraising Support 

• Database and record maintenance: Update CRM and administrative records. 

• Administrative support for campaigns and events: Help coordinate fundraising activities and materials. 

• Communications materials coordination: Maintain photo/video archive, collateral, and documentation. 

• Administrative support for smooth running: Ad hoc tasks as agreed with Head of Fundraising and Communications. 

• Trustee and volunteer support: Practical arrangements for events and supporter engagement. 

• Support Head of Fundraising and Communications with monthly fundraising and communications reports

• Gift Aid and basic financial support (future): Assist with processing if needed. 

• Team meetings: Prepare for and attend weekly online meetings. 

And other duties from time to time as set out by the line manager.

Person Specification 

Essential

• Experience in fundraising, communications, charity administration or a closely related role. 

• Experience of fundraising from Trusts and Foundations, digital fundraising, email fundraising, or demonstrable transferable skills. 

• Strong written communication skills, with the ability to write clearly and engagingly for different audiences. 

• Excellent organisational and administrative skills, with strong attention to detail. 

• Confidence in using databases/CRMs, email marketing platforms and standard office software. 

• Understanding of, or willingness to learn, GDPR and good practice in supporter data management. 

• Ability to work independently from home and manage competing priorities. 

• UK-based, with the ability and willingness to travel to events across the UK. 

• Commitment to FIGS’ values and to the importance of girls’ education. 

Desirable 

• Experience supporting or delivering digital fundraising campaigns. 

• Experience of fundraising in a small charity environment. 

• Experience of video editing for communications purposes. 

• Experience supporting events (online or in-person). 

• Experience managing or contributing to websites and social media for an organisation. 

• Familiarity with Gift Aid processes.

Equality, Diversity and Inclusion 

FIGS is committed to equality, diversity and inclusion, and welcomes applications from people of all backgrounds and identities.

 

How to Apply 

To apply, please submit: 

• A CV 

• A supporting statement (up to 500 words) explaining your suitability for the role and how you would contribute to FIGS’ fundraising and communications work. 

Please also include details of two referees. 

Applications should be submitted via Charity Jobs. Interviews will be held remotely. 

• Application Deadline: February 23rd

• First round interviews: WC March 2nd

• Second round of interviews:  WC March 9th

SUDC UK is a national charity dedicated to funding research, raising awareness and supporting families affected by Sudden Unexplained Death in Childhood (SUDC). Our team is passionate, warm, friendly and impact-driven.

SUDC is the sudden and unexpected death of a child aged 1-18 years where the cause of death remains unexplained despite a thorough investigation. 40 children are affected every year in the UK, more than young child deaths due to traffic accidents, fires or drowning and comparable to 1-2 seemingly healthy children dying every fortnight, often going to sleep and never waking up. 

As a specialist charity, SUDC UK informs, empowers and advocates for families when their child dies suddenly and unexpectedly. We operate nationally and have expertise in SUDC, bereavement support, the child death process, genetic investigation, SUDC research and medical screening.Founded by three bereaved parents, we have deep understanding of the impact of SUDC and loved children, and their families, are at the heart of all we do.

The purpose of this role is to lead and deliver our income generation and marketing strategy, growing sustainable income streams while increasing our profile, reach and impact. This dynamic and rewarding role blends strategic leadership with hands-on delivery, including first-line management of a small team.

About Metabolic Support 
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well. 

About the Role 
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact. 

Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels. 

As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease. 

Key Responsibilities 

• Lead and deliver an integrated fundraising and communications strategy 

• Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events 

• Act as an external ambassador for Metabolic Support 

• Oversee communications, marketing, social media and brand development 

• Manage donor relationships, stewardship and CRM (Nutshell) 

• Provide fundraising forecasts, reports and budgets to the Board 

• Ensure compliance with GDPR and fundraising regulations 

About You 

• Proven experience in fundraising, communications or income generation 

• Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors) 

• Excellent written and verbal communication skills 

• Confident relationship-builder and storyteller 

• Highly organised, proactive and comfortable working autonomously 

• Strong alignment with Metabolic Support’s mission and values 

Other Information 

• UK-based with eligibility to work in the UK 

• Willingness to travel and work occasional evenings/weekends 

Ataxia UK is in an exciting phase of expansion in its Fundraising activity, specifically regarding investment in a Philanthropy function with a dedicated member of staff. In the past, High Net Worth Individuals (HNWI) have been managed reactively by the CEO and other Fundraising staff as opportunities have arisen. Ataxia UK (AUK) now wants to make a step change, in response to identified potential within the current fundraising landscape, towards strategic management of a pipeline of HNWI. As part of this, AUK is looking to engage a consultant on a fixed term contract, to work closely with the Senior Philanthropy Manager to undertake comprehensive research & scoping, in order to populate a HNWI pipeline for AUK. 

Please note, due to the large number of applications we receive, you will only be contacted should we wish to invite you to interview.