Administrator and engagement officer jobs

We’re looking for an ambitious Partnerships Officer (internally Executive) to help drive income by supporting and building profitable, long-term partnerships with individuals and organisations. Working within the Philanthropy and Partnerships team, the role of the Partnerships Executive is to deliver excellent relationship management to maximise income revenues.

To thrive in this position, you’ll need to:

• Manage a portfolio of corporate supporters <£10k ensuring they meet their maximum giving and engagement potential.
• Provide excellent relationship management and customer service support across all key audiences in partnership with the account managers.
• Deliver event support for flagship fundraisers such as our annual Dragon Boat Race, Corporate Sports Day, in-hospital volunteering opportunities and innovative Christmas campaign.
• Create fundraising and marketing materials, in partnership with the marketing and communications team, to drive new supporters and support existing partners. Including leading on a regular external Philanthropy and Partnerships newsletter.
• Provide operational support to the philanthropy and partnerships team, including desk based research and database management and reporting.
• Respond to fundraising queries (email and telephone) promptly and efficiently.
• Manage the philanthropy and partnerships teams’ presence on social media, including creating content which helps to promote impact, the charity and supporters.
• Support the team to deliver remarkable stewardship of all donors, including the management of our banking and thanking process and helping to create bespoke impact reports and materials.
• Ensure accurate and up-to-date records of activities and communications are captured on our CRM database (Salesforce) along with regular reporting.
• Provide general administrative support to the philanthropy and partnerships team as and when required.
• Build and maintain records of recognition milestones for supporters providing monthly reports to wider team for stewardship activity.

What we offer: 

• Flexible and hybrid working to support work-life balance 

• Generous annual leave entitlement with additional leave for long service  

• Enhanced sick pay 

• Enhanced Maternity Pay 

• Employee Assistance Program and Lifestyle Savings

• Free flu jabs 

• Cycle to work scheme 

• Charity events throughout the year 

• Employer enhanced auto-enrolment pension scheme with 8% employer contribution 

• Ongoing commitment to education and professional development 

The Charity is committed to equal opportunities and welcomes applications from all suitably qualified persons regardless of their race, sex, disability, religion/belief, sexual orientation or age.  

Successful candidates will have access to vulnerable beneficiaries therefore the role is subject to Disclosure and Barring Service (DBS) clearance.  

If you think you have the qualities we are looking for and the desire to contribute, please download the Job Vacancy Pack and then send us a CV and covering letter explaining how you meet the criteria for the role and making clear why you would like to be considered for it. 

PLEASE NOTE: Within our organisation, this role is titled Partnerships Executive. This reflects our internal structure and does not change the scope or responsibilities described in this advert.

We will conduct interviews as suitable candidates apply and we're ready to hire if we find the right person before the job ad closes.

This role will play an important role in the successful planning and delivery of UUKi’s events, supporting activity in logistics, content, sponsorship, marketing and administration. The events will include in-person international conferences with over 300 delegates and high-profile speakers, to webinars and small roundtables.

The Events Assistant role requires strong organisational abilities, together with excellent customer service and an attention to detail.  Previous events and/or administrative experience would be advantageous, but more importantly you must have a willingness to learn and a proactive and flexible approach.  This is a fast-moving environment with several projects on the go at the same time.

Knowledge of Excel, Canva and Microsoft Outlook would be desirable, alongside a willingness to learn online platforms used for registration and marketing.

Please note that the Events Assistant role will involve occasional unsociable hours in the run-up to and on the day of events.

Interviews will take place on Wednesday 27 May 2026.

To be considered for this opportunity, please submit a CV, accompanied by a covering letter no longer than two sides of A4, describing how you meet the criteria listed in the person specification of the recruitment pack.

An exciting and unique opportunity has arisen to join Your City & Metropolitan Hospitals Charity, working in partnership with Dudley Group NHS Charity, in a newly created role during a period of growth.

We are seeking a Legacy & In‑Memory Fundraising Officer to lead the day‑to‑day delivery of legacy and in‑memory fundraising across both charities. This is a vital role focused on growing sustainable long‑term income while providing compassionate, sensitive support to donors and bereaved families.

Information Officer

Salary: 

• Actual salary for 28 hours per week is £26,574.40 plus London Weighting £2,400 or Home Allowance £450 pa.
• Actual salary for 21 hours per week is £19,930.80 plus London Weighting £1,800 or Home allowance £450.  

Hours: Part-time 28 or 21 hours per week
Benefits: • Flexible working • 30 days annual leave plus recognised bank holidays (pro-rata for part-time staff) • Contributory pension scheme • Healthcare cash plan covering dental, optical, 24/7 GP service •Employee assistance programme • Opportunities for learning and development

Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited for everyone affected by cystic fibrosis (CF). We're working towards a brighter future for everyone with CF by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.

We are looking for an Information Officer to join our busy and supportive team at an exciting time of rapid change in cystic fibrosis and the information landscape. Changes in clinical care, treatments and the experiences and needs of people with CF have led to a dramatic increase in the breadth and volume of information we need to create, at a time when trusted information is more important than ever.

To navigate this, you’ll need solid editorial expertise and a commitment to engaging with and empowering the cystic fibrosis community through the development of high quality, engaging, accessible information, in print and digital formats.

You will develop and maintain our extensive offer of health and other information, including factsheets, booklets, clinical guidelines, web content and videos aimed at people affected by cystic fibrosis and clinical teams. You will make sure that our resources meet the needs of our target audiences through sensitive and meaningful involvement with people with CF and healthcare professionals.

You will have experience of producing high quality, comprehensive information for people with health conditions from concept through to publication and a knack for making complex health information easy to understand. An understanding of and commitment to the criteria of the Patient Information Forum quality kitemark (the PIF TICK) is integral to the role. 

This position will involve working on multiple projects concurrently, juggling priorities, being proactive in your approach and creating reactive information to address emerging issues. Strong organisational and time-management skills are needed, as is the ability to work autonomously, and also collaboratively with colleagues in the team and wider organisation, and a range of external stakeholders.

* If London office-based, you will be required to attend London Head Office 40% of weekly working hours. If home-based, you will be required to attend the London Head Office for business needs as required. Please note this is a UK-based role and candidates will need to be based in the UK.

We offer a range of benefits including:

• Flexible working
• 30 days annual leave plus recognised bank holidays (pro-rata for part time staff)
• Contributory pension scheme
• Healthcare cash plan covering dental, optical, 24/7 GP service 
• Employee assistance programme
• Opportunities for learning and development

Please note you will need to have the right to work in the UK before starting work with us and we will check this. We do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for our roles.

Closing date for completed applications is 11:59pm on Monday 1 June, 2026. 

First interviews will be held week commencing Monday 8 June, 2026. Second interviews will be held week commencing Monday 15 June, 2026.

We reserve the right to bring forward the closing date or extend if necessary.  Therefore, if you are interested in this role, please submit your application as early as possible.

How to Apply

Before applying, please ensure you read the job description for more information about the role. 

Applications should be made through our recruitment portal Hireful and to apply, please select ‘Apply Now.’

No agencies or media please.

Our commitment to an inclusive workplace

Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with diverse backgrounds, experiences, and perspectives; particularly people who have cystic fibrosis, people who identify as being from an ethnic minority group, as LGBTQ and people with disabilities.

It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.

REF-228 389

As Grants and Outreach Officer, you will play a key role in driving Electrical Safety First’s mission to reduce deaths, injuries, and accidents caused by electricity, particularly for the most vulnerable in society.

You will help manage the Charity’s grant scheme programme, which distributes £1,000,000 annually to fund community-based initiatives that raise awareness of electrical safety and reduce risks for those who face the most danger. Through this, you will help empower local organisations to create tangible change in their communities.

In addition to helping administer the grant scheme, you’ll support the Charity’s outreach initiatives, working closely with the Senior Grants and Outreach Officer to identify opportunities to expand the charity’s reach and partnerships. 

The charity’s outreach work goes beyond working with grant partners to maximise impact. It also involves identifying and developing partnerships with organisations that enable us to reach the most at-risk and hard-to-reach groups, working with them as trusted intermediaries, and supporting the development of longer-term, sustainable projects that deliver lasting impact.

This includes proactively engaging with grant recipients and partners, visiting funded projects to see first-hand the difference our work is making in educating people and saving lives, raising the profile of the charity, and ensuring outreach activity supports wider organisational objectives, including policy and public affairs priorities.

As this role sits within the Public Affairs and Policy team, there will be opportunities to connect grant and outreach work to the charity’s wider UK public affairs activity. This may include supporting work on key issues such as product safety, housing, and net zero, and occasional opportunities to support the team’s engagement with political stakeholders.

This is a unique opportunity to combine grant management and outreach, while gaining experience in public affairs, all with the goal of helping protect lives and making a real difference at a national and local level. 

Working With Us

This is a hybrid role, with the office located in Borough, a short walk from London Bridge. There are expectations for travel around the UK as part of supporting grant recipients and outreach work.

Additional Information

Applications will close on 17th May, though please note that we may close the application sooner depending on the number of applications received, so we would encourage you to apply as soon as you are able. 

Successful applicants will be contacted to arrange an interview, which will involve a task to be specified closer to the time. Unfortunately due to capacity, we will be unable to contact unsuccessful candidates.

Our Benefits

• 25 days’ holiday a year (plus bank and public holidays)
• Festive Break (Discretionary): Up to three extra paid days off between Christmas and New Year 
• Employee assistance programme
• Employee discount platform
• Hybrid working
• Learning opportunities
• Life assurance
• Loyalty awards
• Workplace pension scheme
• Private medical insurance (Optional)

Use of Artificial Intelligence by candidates

We recognise that many candidates find Artificial Intelligence to be a useful tool to support your application. However, all examples and statements provided must be truthful, factually accurate and taken directly from your own experience. Please therefore do not solely rely on AI for your application.

About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June. 

The Business Support Co-Ordinator is an essential member of the team, responsible for ensuring that public engagement activity is underpinned by high-quality, reliable data through careful management of the CRM. As Business Support Co‑Ordinator, you will play a vital role in enabling our Team to deliver the organisation’s strategy and charitable objectives. You’ll provide high‑quality administrative and project support across the organisation, working closely with senior leaders.

This is a varied, fast‑paced role suited to someone who enjoys accurate data collection, managing multiple priorities and contributing to meaningful social impact. We like to invest in our people; most of our staff are undertaking additional qualifications. There is the opportunity to be enrolled on level 3 qualifications relevant to the role.

London Landmarks Half Marathon Communications & Engagement Officer

The London Landmarks Half Marathon is looking for a creative, highly organised Communications & Engagement Officer to help shape how we connect with participants, communities and partners. It’s an exciting time to join the team as we look ahead to our 10th anniversary in 2027.

This role is ideal for a strong storyteller who enjoys creating clear, compelling content across multiple channels. You’ll turn ideas into high-quality communications, manage multiple workstreams at pace, and ensure everything is accurate, consistent and on brand. You’ll be confident working with stakeholders, managing approvals and keeping projects moving in a fast-paced environment.

Storytelling is central. You’ll bring participant and charity stories to life with authenticity and care, capturing the real impact of mass participation events on individuals and communities.

Working across social media, email and web, you’ll use insight to continually improve communications.

This is a great opportunity for someone collaborative, detail-focused and purpose-driven, who wants to help deliver a high-profile event that raises vital funds for charity.

To apply, please send your CV and a cover letter (max. 2 pages) outlining your suitability for the role and how your experience matches the job description and role profile. Applications close at 9am on 25 May.

Thank you for your interest in Greater Manchester Mayor’s Charity. Greater Manchester Mayor’s Charity launched in April 2019 with one clear vision, that homelessness has no place here in Greater Manchester. As one of the founding funders of A Bed Every Night, we have been at the forefront of efforts to reduce rough sleeping in the city region. Since our launch, our grant making has evolved to complement this emergency response through two additional priority areas: Places and Spaces, and Targeted Prevention.

But as the challenges develop, so does our response. Our next step is to support organisations and initiatives working with communities – as well as individuals – to turbocharge progress towards a city-region where everyone has a safe, genuinely affordable place to call home and everyone can flourish and thrive.

In collaboration with the VCFSE sector of Greater Manchester, 10GM, the GMCA and NHS GM, Greater Manchester Mayor’s Charity are powering the Live Well Communities Fund and helping the partners to grow the success of the first year of this programme.

The Partnership & Engagement Officer will play a central role in this new collaboration, driving forward engagement with VCFSE partners deploying the fund and delivering funded activities whilst also growing partnerships and identifying opportunities to grow the fund itself.

Spanning fundraising and engagement, this is an exciting opportunity at the heart of an innovative new stage for Greater Manchester Mayor’s Charity and the city region. If you are ready to take the next steps in your career, growing and developing in a fast-paced, high-profile charity and working alongside a small but committed team dedicated to addressing homelessness in Greater Manchester, then we look forward to receiving your application!

The Role

We are looking for a highly organised, confident individual who is excited working in a fast-paced, high-profile environment and passionate about addressing homelessness and empowering communities in and across Greater Manchester.

You will play a crucial role in growing the Live Well Communities Fund. This will include building relationships to identify and maximise funding opportunities, working with our Communications and Content Executive and the Live Well Communities Fund partner organisations to share learnings and impact from funded activities, and providing administrative support to ensure the smooth running of this project alongside our Office Lead.

You will be comfortable working flexibly within a small team, as well as engaging and networking with people and organisations across the public, private and VCFSE sector.  You will have excellent written and verbal communication skills and be committed to our vision: a Greater Manchester where everyone has a safe, secure and genuinely affordable place to call home, and is able to flourish and thrive in a strong, resilient community.

This is a great opportunity for someone looking for a role in a dynamic and growing organisation with real social impact.

The Greater Manchester Mayor’s Charity values diversity. Dedicated to cultivating and upholding a culture of inclusion, we are committed to equal opportunity and anti-discrimination practices and full members of the Greater Manchester Good Employment Charter.

We seek diversity in our applicants and are particularly interested in attracting applications from candidates from historically marginalised groups and people under-represented in the Charity sector.

About the Role

We are seeking an experienced freelance Finance Committee Clerk to support the administration and governance of our Finance Committee. This is a light-touch but important role, providing professional clerking support to ensure our committee meetings are well-structured, properly documented, and compliant with good governance practice.

The Finance Committee meets four times per year and comprises five members: the Treasurer (Chair), the CEO, and three trustees. The clerk plays a vital behind-the-scenes role in keeping meetings running smoothly.

Key Responsibilities

• Coordinate meeting dates, send invitations, and manage attendance ahead of each quarterly meeting
• Prepare and circulate agendas in collaboration with the Chair and CEO (at least two weeks before each meeting)
• Confirm quorum and ensure all supporting papers are distributed no later than five working days before the meeting
• Attend all Finance Committee meetings and take accurate, concise minutes capturing key discussion points, decisions made, and action points with owners and deadlines
• Circulate draft minutes to the Chair within one week of each meeting and finalise following review
• Maintain a live log of action points and follow up with relevant staff ahead of the next meeting
• Maintain a secure archive of all meeting documents and decisions for audit and continuity purposes

Person Specification

Essential

• Proven experience clerking for a Board, committee, or similar governance body (charity, housing association, NHS, local government, or equivalent)
• Excellent minute-taking skills — able to capture decisions and actions accurately and concisely
• Strong organisational skills with the ability to manage multiple deadlines Comfortable handling confidential and sensitive information with discretion
• able to work independently and proactively with minimal supervision
• Proficient in Microsoft Office (Word, Outlook)

Desirable

• Familiarity with charity governance frameworks and sector norms
• Experience working with finance-focused committees or boards
• Understanding of committee papers such as management accounts, budgets, and financial forecasts (financial expertise is not required)

Terms of Engagement

This is a freelance engagement. The successful candidate will be self-employed and will invoice us on a quarterly basis. A short services agreement will be provided covering scope, fee, confidentiality, and notice period.

Chief Operating Officer (COO)

The Shrine of Our Lady of Walsingham

Location: Walsingham, Norfolk

Salary: £60,000 – £70,000 per annum (plus benefits)

The Shrine of Our Lady of Walsingham is one of England’s most important Christian pilgrimage destinations, welcoming thousands of pilgrims and visitors each year from the UK and overseas. Alongside its devotional life, the Shrine operates a range of activities including accommodation, catering, retail, education, events and visitor services, all supporting its charitable mission.

Governed by the Walsingham College Trust Association, the Shrine is now strengthening its operational and financial foundations to ensure long‑term sustainability while remaining faithful to its spiritual purpose.

The creation of the Chief Operating Officer (COO) is in response to this context. The COO will act as deputy to the Priest Administrator and provide professional leadership across finance, operations and organisational systems. This is a broad and influential role, combining financial stewardship, commercial oversight and operational leadership, enabling the Priest Administrator to focus on mission, worship and pilgrimage.

This is a rare opportunity to play a pivotal role in the long-term sustainability of a nationally significant spiritual institution.

Essential experience includes:

• Qualified accountant (ACA, ACCA, CIMA or equivalent)
• Senior level experience covering finance and operations
• Knowledge of charity finance, governance and compliance
• Commercial acumen and experience overseeing trading or income generating activities
• Strong leadership, communication and stakeholder engagement skills
• A collaborative leadership style aligned with Christian ethos and values
• Preparedness to live within reasonable / practicable travelling distance of Walsingham.

Age UK Wandsworth is a local, independent charity that works to promote the wellbeing of all older people in the London Borough of Wandsworth. We offer a variety of services with the goal of helping older people to #AgeWellinWandsworth. Our charity is consistently growing, so we are creating this new role to support our CEO with social media, marketing and organising events. The role will suit someone who is calm, mature, professional, organised and creative and will be comfortable working directly with a creative and curious CEO committed to transforming the charity’s online presence.

The Noah’s Ark Charity supports the Noah’s Ark Children’s Hospital for Wales in providing world class care, helping to ensure the best outcome and experience possible for children and their families.

Scope of role

The data officer role plays a vital part in the Noah’s Ark Charity’s supporter experience.The charity’s database, Donorflex, is used to manage relationships and contacts with many thousands of supporters. The system is critical to ensure that we hold and look after all the data that supporters have given us compliantly; that we maximise use of this data to inform decision making and that our colleagues have the training and support necessary to use the system in the most efficient and effective way.

Person specification

We are seeking a data officer with broad experience of using computerised management information systems. The candidate will have strong Microsoft excel skills, good knowledge of databases, excellent numeracy and data analysis skills.

This is a great opportunity to join a small but highly motivated team.   

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.